25 Days Stuck in Bed Recovering From Surgery
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- เผยแพร่เมื่อ 6 ก.ย. 2024
- Day 25 Recovering From Surgery.
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First episode of this series where medical issues started a few months after starting vanlife: • My Worst Nightmare | R...
Thanks for the support by liking, commenting, and sharing it means a lot to us! We share our lives to show the reality of van life and encourage others to live out their dreams. If we can do it - so can you! Disability comes in many different forms and affects many people but there is always a way to adjust to life circumstances and chase after your goals.
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thanks for watching everyone ! we appreciate everyone’s kind words and support so much. It’s been really difficult to put this film together due to our current circumstances! I’m (nicholette) not a morning person and it’s been especially hard during this time because I don’t feel good most mornings & brian has been amazingly supportive despite him also going through some things on his end as well. things are a little tough right now for both of us but we’re getting through it together, supporting one another & as always keeping it real 🫶🏼
get well soon love and hugs to you both xx
i understand i dont like my body either i have a very big scar on the bottom of my back due to my disability i never even showed my ex husband we were together 9yrs. im going through pain every day with an extra thing that happened to my legs 8yrs ago because i cannot stand or walk i cant stretch well and my muscles in my legs are tensing on themselves but i get through it that all happened with me just laying wrong which i had done millions of times xxx love and hugs xx
I know this story I’m about to tell you is in no way the same as what you are going through! My thoughts and prayers are with you both! March the 30th of this year my sister was in a very bad car accident! She shattered her left hip and now she has a drop foot on that side! She also broke the lower bones in the right leg( tib-fib) and the outer side of her right ankle! She had 3 surgeries at the trauma center the went to a rehab center to learn to use her up body to move! The Tuesday before the 4th of July she started standing and walking with a walker and a walking boot on the right leg and an AFO on her left for her drop foot! Started going to outpatient rehab and was 2 days into her walking with her on shoe! Then she had a skin bubble to come up and was extremely hot! She went for a follow up and they said she had an infection in the lower right leg and put her on antibiotics for a week 4 times a day! She went back and they said let’s see you back in a week and see if it is still looking as good if not better then now! Well it didn’t it actually went back and worse they we was praying for! That was on a Wednesday! On Thursday she was at the trauma center for surgery they debriefed it all the way down to the rods and the ankle hardware! She was in the hospital for 4 days and has a pick line for antibiotics 24/7 and is taking 2 anti fungal medication by mouth! We have to clean the incision site daily and take pictures to send to the trauma team daily! She goes back Wednesday we are praying she can have the stickers removed and that the new tissue and skin is growing back with out any further issues or germs! She will have to start all over with PT to get back where she was! Also she is not allowed to put any pressure on it at all! It has been a lot of work for me and doing things with my niece her daughter that she can’t! That hurts her more than a lot of people think! But she is my only sister and we do for each other as much as we can! Anyway Nicholette and Brian I am and have been praying for you both! It has been hurt for you both I’m sure and remember there is brighter days ahead for you both! ❤ and Hugs from your friend in Southwest Virginia
What a strong woman you are Nicholette! You and Brian will come through this even stronger. You both are an inspiration. ❤❤
Thank God she has you beside her getting through the tunnel to get her all healed. Keep all of us followers in the loop. Prayers to you both.
If I keep watching the two of you, I might end up starting my own TH-cam channel. Lol I can't tell you how relatable you are to myself and my husband. I will spare you the details for right now, but I wanted to let you know how truly inspirational you are to me. I am blessed beyond belief to have stumbled across your channel last year. You've gotten me through a lot of things with your positive attitude. Never give up! ❤
Nancy
You are doing the stuff.
I put an overnight catheter in my daughter over many years...hooked her up to her TPN until she was old enough to do it herself...she just had major surgery on her small intestine in March--all you are saying...has been my daughter's world for over twenty years.
I had a double mastectomy two years ago...drains, stitches, etc.
Praying that one stitch is not a problem...
11 days wound care...drain...lots happening...
You two stay tough...
Thank you for updating. Been praying and thinking of you...
Precious woman.
Half way through this "adventure" and things can start to wind down. Together you can do anything and you are proving it each and everyday! Thank you for showing the good, the bad and the in between and taking us all along with you! Keeping it real! One day very soon this will all be behind you!
Thank you so much for the update!! You are both so inspiring!! Wishing you well on the doctor visits 🙏🏼
I've been praying for you guys. I've noticed as I get older I find myself praying for people's health more and more. I want everyone to be as happy and healthy as possible! I think it's the root of so much trouble in the world. Anyway... I'm not a big church person or anything but, I do pray and, I'm definitely praying for you guys. Stay strong Brian and rest and heal Nicholette!!!
blessings 🙂 God bless you and Brian 🙏🏼
You are so beautiful gorgeous lady. Praying for you.
Prayers continue guys 👍👍👍
Hopefully you will feel better soon
praying for you Nicholette . you have a good man there.
I am so glad that you discovered the secret. You can only make it by working together the way you do. Our marriage has survived 57 yrs and counting. 57 years of incredible challenges: Good times and bad, certainly in sickness and in health. Joy every day? Of course not! But we seek eternal joy we simply can't see from the limited perspective of mortality. You don't just say it but you live it, "Eyes on the prize!" God bless you for setting the example. 💕
Lets go Nicolette and Brian ~ you've got this guys, keep up the great work. And yes ppl with no disabilities sure should be grateful for having it so easy in life. We should cherish the mundane things, you're spot on with your humble insight. Thankyou for shedding some prospective on it. Cheers from Australia 🇦🇺 👍.
Stay strong! You are so inspiring and beautiful couple
I don't know if you'll see this, but I've used steri-strips (little butterfly bandages) on popped stitches or sometimes on small injuries instead of stitches before; they hold the wound closed, stay on through all kinds of conditions (on my fingers while doing dishes, etc.) and work well. however, of course do whatever your doctor tells you to do! hang in there!
my body hates antibiotics; I know how lousy I feel even just taking one kind. I can only imagine how hard it is to take four! I have a disability that keeps me in bed for extended periods of time, too, and worry about potential pressure sores. as I'm still able to walk (but with a huge risk of falling), I'm trying to get up a bit more with my cane and get around. hearing about your flap surgery (my mother had one also; the sand bed was actually very hard for her and I'm so glad it's helping you) has helped motivate me to find more mobility tools and do what I can while I still can. thinking of you and hoping for the most complete healing possible, and as quickly as your body can manage it. thank you for sharing with us.
Hi Guys
As you both know im a quadriplegic and understand how challenging these past 25 days have been for you. I'm so incredibly proud of you for flushing those pain medications down the toilet and that took such courage.
You are both so amazing and fantastically uplifting that it beams through to us with all the brilliant and brave content that you make and bless us all with for which I Thank You from the bottom of my heart, I love you guys so much.
I'm currently bed-bound as well as my electric-wheelchair has broke after 8yrs of being my dedicated and loyal companion.
Your shorts and videos have and do continue to help me each day to keep pushing and look forward to sunnier brighter days no matter the current challenge being faced and for that I'm so incredibly thankful that I have you both in my daily life albeit through TH-cam.
Keep pushing, keep smiling and never stop being the amazing beautiful people that you are and never let the world tell you otherwise.
Sending all my love hugs and prayers from the UK 🇬🇧 God bless you both
👏💜👍🙏🤗♿️
#ForeverPromotingPositiveDisabilityAwareness
you are both doing fantastic keep going one day at a time xxx hugs
You’re an inspiration. Prayers that your recovery exceeds expectations and you are back to the life you loved soon. 🙏🙏
Nicolette, youre doing great. 🙏🙏🙏🙏
Holy moly, 25 days and counting! You're doing great! Medicine is a pain to take anytime, especially when it makes you feel crummy. If you can eat with them, it might help. There are some tough antibiotics out there.
Tv shows, board games like Yahtzee or (there's a new camel game that everyone loves), might help pass the time. Call friends and family to chat. Wishing you the best, you described your healing perfectly by saying it's unique! Yep, that's a good way of putting it. Good luck tomorrow at Dr appt. Hugs!!
Both of you are so strong, I wish the Best, be patient.
Good days will come back ❤❤
When we need to go to Pittsburgh for dr appointment we stay at durry Inn they have breakfast and dinner
❤You both are inspiring. ❤
We only see a few minutes of your life. can't imagine living through it with as much patience and perseverance 🙏
I have had 9 flap surgeries on my back and butt…it does get better…you can do it!
I hear you Nicole. I was on bed rest for a year with an exploded heel. Your attitude will ebb and flow. Can your lovely guy bring in a basket of leaves? I can totally empathize. Keep the focus on here and now even if you can only focus on the next minute.
What is an exploded heel?
Before you know it, you're going to be back to your good old self, you'll see. God never puts more on your plate than he knows you can handle. So chin up, eyes straight ahead and you'll be through all this zooming around the country doing videos. Just keep coloring, it really does help. 😊
You are strong, Nicolet, I did Rehab 45 years ago, and I saw Wheelchairs that you can be use while being on your stomach, look at the sky from your window. you’ll be out there soon.
Praying for you ❤️
Thank you so much for the life update Nicholette and Brian. I imagine it is very tough right now to see the end result. Keep your head up Nicholette - you got this!!!!
Absolutely love being along for the real life vanlife. Sending you love 💕
You do what you need to do. Updates are nice, but don't push yourself. Your channel helps me. Alot.
I think you are doing great. Look how far you have come. You two got this down pat. Prayers you heal fast. Love you both .
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All the best to u 2 🤟❤️
Your amazing Nicholette ❤ an incredible inspiration for sure ❤ praying for your complete recovery ❤
Brian you are an amazing boyfriend. I see nothing but loyalty..
I've been watching y'all from the day 1. And man, how I love you two with the open & honesty of your lives. Prayers for you Nicolette. You're gonna be up soon to continue your adventures baby. God gotcha ok? Much love from South Florida 🍊❤🙏🏻❤🙏🏻
Ps. Nicolette can you drink Ginger Ale? That will help sum with upset stomach.
Thank you for sharing! Wishing you rapid healing! I have gastroparesis, Ehlers Danlos Syndrome and autoimmune conditions so I have a permanent feeding tube and currently have a tunneled central line. I can usually hide my feeding tube but most of the time you can see my central line. I'm more comfortable than I used to but I definitely still notice people staring at my tubing and where the line comes out my chest.
I hear you on the Foley! Peeing on your own or straight cath is so much more comfortable
Hang in there lady ❤ You can do this 💪 sending you big love and strength for quick and complete healing ❤
Sending healing energy. I can’t imagine how hard this is for you.
You are amazing. Both of you ❤
I’m glad you’re almost done with bed rest. Hang in there, this only a bump in your journey. Brian is such a great and supportive caregiver and partner.
Come visit Santa Cruz, CA!
What a great message you are sending. You're almost done with your healing..I'm so happy for you. Brian is a true Saint and you are so lucky to have him. I'm proud of you..keep on healing. Hugs to you both from Iowa
I felt so much listening to you. We’re all so proud of you ,too! 💐Thanks for the peptalk about gratitude because everything you said is true. It’s amazing to think of what our body does for us that we don’t think about like digesting our food, or other things that some people can’t take for granted . It also hurts to be in this vessel sometimes or it’s very awkward . I really appreciate you touching up on shame . I have felt ashamed lately thinking I’ll never be able to date because of my disabilities. But that mindset only erodes my well being so no matter what, I’m focussed on being in the best physical shape I can as a picture in the future by taking one day at a time too. There’s always things I can be grateful for. Thank you for your graciousness , wisdom and straight talk.
I’m still here through perseverance, Strength , Goals, miracles and amazing surgeons (I hated being on acute care full spectrum antibiotics and bed for six weeks, too). It reminded me of that time and how grateful I was just to be alive and that’s what got me through plus crafts.
Good for you, Nicolette for your message of advocacy.
On a sidenote, you’re one of the healthiest couples I’ve ever seen or heard: the way you interact, and both look after each other, and yourselves to the best of your ability, not letting anything change your mindset nor your plans for long at all. P.S Nicolette, I hear you say, you don’t feel good at all most of the day and night. However, you feel like you deserve to feel of course and yet Nicolette, I don’t know how you do it but you still look gorgeous! Nothing touches your beauty inside or out. Prayers and best wishes always for you both. 🧚🏽♀️ 🙏🏼✨❤
You are amazing young woman!!! My daughter is a paraplegic also. She says sometimes she feels trapped in her body. I will be praying for you ❤
Thanks for sharing your story with us. I think it’s safe to say, we all wish you both a speedy recovery and a healthy life. We all enjoy being on this journey with you. We can’t wait till you can get back on the journey and remember we love you both and bless you both.❤❤❤
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Ty there isn’t enough info on osteomyelitis. Also the fact that antibiotics make you feel bad is something that happens a lot but not talked about. Ty ❤ for sharing and being a champion to me and many others.
❤❤❤❤
U LOOKING GOOD U DOING GREAT
Hey brian ur feet works better while washing cloths its wont hurt ur back just trying to help u
Sounds like a letter to the cooperative letters might get you some satisfaction!
I was on tough antibiotics fir 7 months after getting sepsis but my doctor also had me take probiotics also .you might ask about that because antibiotics alone can cause other infections in gut. Not to scare you but I'd really look into the probiotics but ask doctor first..im not a doctor 😢
Yeah when I was septic and took antibiotics for months I had probiotics inbwteen the antibiotics pills throughout the day
@@SharpLife4 I believe it definitely helped
You are such a strong person Nicholette and such an inspiration I pray I get the opportunity to meet you one day.
As for you Brian you are truly the example of a real man I am praying for you both!!!
I am getting my gallbladder out
I sent u a box its waiting for u at the post office
Nicolette you are doing great! Brian you are a gem, it’s so awesome that despite how your spoken to in the mornings you continue to in your loving caring way.
I am having surgery
If you were eligible to go to a rehab place that would have been an option? But ewwww most are kinda poorly run. You’d might have picked up more infection there too. I’m glad you’re in a fresh clean hotel place. It looks that way at least.
You’re doing great! Better and better every day.
I have fibromyalgia
🩵💙
Are you taking a probiotic, Nicholette??
I been doing this for several months stay off of it is all you can do it sux
You never see her with appreciation for brian. You never hear thank you as he waits on her. Im sure its mentally exhausting but i also think she cannot stand him. His personality behaviours, just him.