Trisomy 18 Life Expectancy | My Daughter's Birth Story Part Two
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- เผยแพร่เมื่อ 11 ก.ค. 2019
- Parents who are expecting a baby with Trisomy 18 have questions and painful decisions to make:
Should the pregnancy be carried to term?
What quality of life will the baby have?
What kind of birth they will have?
How long the baby will live?
We met Kristen Cook, who found out that her unborn child, Hannah, had Trisomy 18, a chromosomal abnormality that is fatal in most cases.
One of the first things Kristin and her husband Jason wondered was how long can a baby with Trisomy 18 survive? They wanted to know if Trisomy 18 was always fatal. And if life expectancy was low, how they could provide Hannah with the most comfort and care at every stage along the journey?
Whatever the outcome, their number one concern was giving Hannah the most comfortable experience possible.
The Cooks were both engineers; they had done their research. They had been preparing themselves for the worst. When Kristin was making her way into the OR for her c-section, the reality that Hannah’s life might be over hit her.
"At that moment it hit me that I didn’t know if this was the end, because it could be the end." - Krisitin
We followed her through the beginning of her story and now we pick back up with her at the point of delivery.
What I’d like for you to pay attention to today is how the Cook family decided to manage their time with Hannah and how they made every moment count, even their last moments with her.
Even though this sounds like a very sad story, it’s also richly rewarding and I think you’ll find hope through hearing their story.
Watch part one about Trisomy 18 • Trisomy 18 | Finding O...
Glad you're here!
Tracy
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D I S C L O S U R E
This channel is not meant to give any medical advice but does provide hope, encouragement, education, and resources on your health journey. Please contact your Primary Care doctor for medical support.
Hi there!
Thank you so much for watching. Are you pregnant or thinking about becoming pregnant? Watch today's episode about my patients journey with Trisomy 18 and she and her husband were committed to caring for the child through every single moment.
What are your thoughts about Kristin and her daughter Hannah?
Have a great week,
Tracy
Dr Tracy, I would love to hear from a professional about HG. I have had it with all my pregnancies
999999999999999999999999999999999999999999999
ℒ𝑜𝓋𝑒 𝒶𝓃𝒹 𝒾𝓉'𝓈 𝓁𝒾𝒻𝑒 𝒶𝓃𝒹 𝓁𝒾𝓋𝒾𝓃𝑔.
ℬ𝑒𝒶𝓊𝓉𝒾𝒻𝓊𝓁 𝒷𝒶𝒷𝓎.
ℬ𝑒𝒶𝓊𝓉𝒾𝒻𝓊𝓁 𝓈𝓉𝑜𝓇𝓎✨💫🌟
Trisomy 13 or 18 always comes back to haunt me. 30 years ago me and my best friend, since preschool, were both pregnant. At that point medical opportunities were not on todays level. My friend had a a little girl with Trisomy 13. And two months later I had a healthy little girl. It was heartbreaking and there is no cure, it is a death sentence. I became her godmother and helped or fought for a decent life for this pressious little girl. She lived til she was almost 3 years. Today, the other lovely girl born that year, my daughter is pregnant and expecting twins❤️❤️I still can't, completly, stop worrying that something horrible will happen😩
No no I will be the most lucky grandmom🙏But nature can be so cruel😢😢
I wonder if Kristin and Jason considered their other children and what this would do to them.
I didn’t catch how long did she survive? She had a trach, G-tube, cardiac surgery, plus a couple other hospitalisations, two parents caring for her, two-or-more full-time nurses.
All this with a two-year old and a four-year old.
Does anyone else wonder if all this was okay for those two other little kids?
So, Hannah died, and there is finally time for the other kids. They then feel guilty because their life is much better once the T-18 baby dies.
I was that kid who didn’t die.
Please, please, please consider the children you already have before making a decision to keep a pregnancy with a lethal trisomy or something like anencephaly, which some pregnant families now think they want to carry to term.
All Hannah knew in her entire life was love. What a great life ❤
6 weeks ago my precious grandson River, who had full T18, passed away after coming home for 9 days and getting the rhino virus after being in the hospital hid whole life, over 4 months old. He was such an amazing baby and my daughter and son in law were amazing parents. River was loved by everyone who meet him both in person or via video visit. Not a moment goes by that I don't miss him. He had a bond with his mother that was so very special, and his daddy starts prenursing this fall to be a nicu nurse!! This was a beautiful story about sweet baby Hannah. Much like her Hannah after getting the rhino virus my sweet little River monster got several infections and his little body could not fight anymore. He will forever be in my heart until the day I get to meet him again.
Pam,
River is so blessed to have been loved by you and your family. I hope you share your story with more families who are feeling lost and afraid with this diagnosis.
May you find comfort and peace knowing that your precious little grandson River is safe in the arms of Jesus in Heaven 🤲🏻💙
I’m so very sorry for both of your losses ❤🙏❤️
We had our Jake for 4yrs!!!! They change our world as we no it forever. We had no idea what we were doing but we learned we laughed n we love!!!! They r truly gifts from God that we were chosen to have him in our lives!!!! Greatest gifts of all!!!!
What a beautiful tribute to your gorgeous daughter. From one Edwards mum to another, I loved her little big toe and I know she will be with you in your heart forever. Treasure your memories, no one can take them away from you and a huge part of her will always be with you.
I lost 4 babies to Edwards. Two miscarriages at 12 & 8 weeks, no cause found, and I was told it was nothing genetic, I was just unlucky. Then I had a fullterm (3 days past her due date) stillborn daughter who weighed just under 8lbs. They did a post mortem on her and could find nothing wrong with her so they put it down to 'cot death' but in the womb.
A year later I has my son by elective caesarean at 37 weeks as he was breech and they didn't want to let him go full term because of what happened to his sister. From birth my instincts were telling me there was something wrong with him but no one would listen to me. He was checked out by 6 different paediatricians in the 5 days we were in hospital after his birth and none of them found anything wrong with him. No one listened to me, assuming I was just an over anxious mother because I had lost his sister the year before. We took him home and my health visitor dismissed my concerns when I was worried he wasn't reaching his milestones saying he was a few weeks early, he's a bit behind, he'll catch up, stop worrying, just enjoy him. In the end I had to keep my concerns to myself as I was afraid they would think I had post natal depression and they would take him away from me.
Long story short, when he was 5.5 months old he had a cold and was very congested and I noticed his breathing was quite laboured. My instincts once again told me he wasn't looking right so I decided to take him to the baby clinic to get him checked out. I put him in the car and as we were at traffic lights I glanced down to see he had turned purple so I pulled over into the car park of a solicitors, grabbed him and ran into reception shouting at the receptionist to call an ambulance. This was 21 years ago and I didn't have a mobile phone.
He ended up in our local hospital where they worked in him for 5 hours before transferring him to St. Thomas Hospital in London. They also worked in him for another 5 hours before coming to us to say there was nothing else they could do. They said they would phone GOSH, Great Ormond Street Hospital, to see if they had a bed and they did so he was transferred over there and withing 45 minutes they had him intubated and put into and induced coma so his body could recover.
He was in PICU for 10 days before being transferred to a respiratory ward where we were trying to get our heads round that he might need a tracheotomy to prevent this happening again. Then the genetic team paid a visit and asked to take bloods as they obviously saw some signs that caused them some concerns.
A week later we were called into a room where the consultant told us our son had a rare form of Edwards Syndrome/Trisomy 18. That they only knew of 6 other children in the world who had this particular form of Trisomy 18. Of the 6 children, 5 died between 6-8 months, only one lived until 13 months. They said our son would have no quality of life, they said he would never walk or talk and that his condition was incompatible with life, to take him home and expect him to die at any time. They were literally that blunt.
We were transferred back to our local hospital for a week where we were taught to do CPR and resus and then we took him home. Well our son lived happily for another 10 months. He was never in any pain, never cried, was not on any meds. He pulled out his nasogastric tube and preferred being fed by his habermann bottle. He progressed onto solids with his favourite being carrots and avocados. He went to special needs swimming and was at his happiest in the warm water were he used to sing to himself. He charmed everyone he met. He had a happy life surrounded by love and was the most delightful little boy ever. But sadly the doctors were right and eventually one night he had an epileptic type fit and 3 weeks later his heart stopped during the night while he was asleep.
Even though we had agreed to no resus, when it happens your instincts kick in so my husband did mouth to mouth and CPR while I phoned for an ambulance. Our local hospital whisked him away while we were in the parents room phoning our families to tell them he was gone. Then they came and told us he was intubated and we could go and see him. They hadn't had his notes there in A&E and didn't realise we didn't want machines breathing for him so they took him off the machines and put us in a private room. My mum flew over from Ireland the next day and we all got to say our goodbyes as we wanted to let him go when he was ready. I did not want him being kept alive on machines. Our little soldier lived for another 16 hours and he died in my arms when he was ready to go to sleep. I felt his heart stop beneath my fingers and I knew he has gone to be an angel.
He was an absolute joy and I treasured every day of his short but wonderful life. I just wish I had had more time with his sister but I only had half a day with her, but at least I got 15 wonderful months with my son and have many happy memories of our time together.
We had had genetic testing done after our son was born and found out my husband was a carrier of this condition even though he wasn't affected by it himself. We had lost 4 babies over a 10 year period and none of the doctors had even suggested genetic testing. A simple blood test would have showed he was a carrier and we could have been spared 10 years of heartache. I now say to any couple who are experiencing multiple miscarriages to insist on genetic testing. Healthy babies just don't die for no reason. Having said that I do not regret having had our son, but couples should get more support from doctors and more answers when they keep losing babies.
I hope my story helps others to speak out and push for testing to get answers.
Wow, sweetheart. I am so, so sorry. I am so sorry that you went through so much pain. I am so glad you had joy for a time, but I am so sorry for your loss. I wish drs listened more. Moms know. We just do. Your kids are always near you, watching over you.
Thank you again for being a support system and resource to others in the comments section. ❤️❤️❤️
Love your kind and thoughtful comment here. Thank you for being a source of encouragement. ❤️❤️❤️
@December LLC - We did adopt two little girls two years after our son died but sadly my youngest daughter passed away unexpectedly in May of this year, a week after her 20th birthday. I am utterly devastated and don't think I will ever get over her death as it happened while she was in hospital with two members of staff with her 24/7 and still she died.
There is an investigation going on currently and there will be an inquest but the inquest won't happen for 18-24 months so I still have no answers 7 months after she died. That is the hardest bit, not knowing why she died.
@EmpressKajal - We only had testing done when our son was diagnosed. We had lost 3 babies before him and it was his genetisist who asked us if we wanted to be tested as he was sure one of us was a carrier. This was the NHS here in London. We didn't have to pay for it because he suggested it.
I'm sure you could ask for a test privately if need be. I doubt it would be expensive as it is literally a blood test, especially if they know what they are looking for in the first place.
I think it would be worth it because at least you would know whether you or your partner were a carrier and then you can make decisions on what to do. At least you would know one way or the other.
This was 22 years ago that I went through all of this. I was hoping things might have moved on but it doesn't look like it has.
I've learnt from dealing with doctor's that if you don't ask, they don't volunteer much so no harm in asking and if they say no, ask how much it would cost if you go private.
Let me know how you get on. Fingers crossed for you. xx
On 4/18/2020, I lost my baby girl Camilla Skye to Trisomy 18. She only stayed with us for 2 days before she was called home. But this little girl, an angel now, showed me and taught me how to always know how much God loves us. Nine months of pregnancy and 2 days of life, I felt like I had know her for years. This was my baby, and although it was just 2 days ago that I had to say goodbye, I'm glad I got to hold her in my arms and sing to her until God saw fit to bring her home. It's hard, I'm mourning. But I have strength knowing that she brought purpose to my life. I want to become a NICU nurse now as well.
I'm so sorry for your loss. Your baby was so lucky to be loved by you. 💕
Thank you so much for sharing your sweet story with us. I hope your dream of becoming a NICU nurse comes true. Please keep us posted on your progress.
I am so sorry for your loss!
Niki Gordon So your precious baby
may have started you on a rewarding
career path...where you would be
helping others.Good luck,dear.
.
Don’t lose that passion.
Such a beautiful story!
Our first child was a beautiful girl born with hypoplastic left heart syndrome. She lived for 35 days, from November 1, 1996 till December 6, 1996. She died with sepsis. My husband and I do not regret having her, and found comfort in knowing we did everything possible to try to save her life. I still think about her and love her to this day.
Thanks for sharing this, Christina.
I couldnt help but cry when I saw Hannahs Face A true living Angel on this earth. May God bless the family.
Love your heart. Thank you for being here and leaving a thoughtful comment. ❤️❤️❤️
Exactly she is and her story needs to be told.
I remember hearing the diagnosis, I was numb. I will never forget my son. Thank you for this video.
Big hugs to you. Thank you for sharing this. Let me know if there is anything that I can ever do for you. Feel free to reach out via email or over on Instagram in direct messages. ❤️❤️❤️ Keep your chin up.
Thg
I lost a sibling to trisomy 18 when I was 20 ( late life baby for mom) and she made it to 3 then caught pneumonia and die to not being able to clear her lungs she couldn't shake it and after fighting it for 1½ mo. in the hospital she joined the angels 😇🥰... She is missed
Thank you so much for this. My grand daughter passed @ 19 weeks gestation with full Trisomy 18. G’d bless all these heavenly babes. Xoxoxo
I would have never put my child through that if there was no chance.
Thank you for sharing this family's story. I am a photographer for Now I Lay Me Down To Sleep, and recently did a session for a precious little boy with trisomy 18. The love the family showed was incredibly beautiful. I am so honored to have met them.
Thanks for sharing! That is awesome. Love your niche.
Wow, what a touching story. I am 39 yrs old and 19 weeks pregnant. I was told today that my unborn has trisomy 18. The internet can be my worse enemy or my best friend, so I have decided not to do anymore research about trisomy 18 because it was breaking my heart. One thing I do know is God is in control. Thank you for sharing your story. God bless you!
Thanks for sharing!! And best of luck to you. Trust your instincts. ❤️
Only God knows why things happen, hope you and baby are ok
Is ur child ok
You will have a lovely daby
I am a retired R.N. and have had the privilege of caring for Special Needs children like Hannah and other Illnesses also. I count myself privileged and that God chose me to care for these ANGELS ON EARTH and be a part of their families life in doing so. I am retired now. I still keep in touch with the families as I am able.
Wow. I watched this video because I’m a NICU nurse and have a Trisomy 18 patient in my unit. The respect and honor you hold for the providers who took care of your daughter is inspiring. God is good all the time. Your family is beautiful.
Hi! So glad you're here and watching. Thank you for taking the time to comment. I'm honored to serve my patients in this way.
Im 21 years old I’m 30 weeks pregnant my son has been diagnosed with trisomy 18 thank you for this video
Hi, Kay! I'm so sorry I'm just now seeing this comment. How did things go with you and your son?
❤🙏❤🙏❤🙏❤
Is ur son fine?
@@prachisawhney1105Вероятнее всего, нет.
Thank you for your story. I am 6 months pregnant. My son has been diagnosed with T-18. I’m having a rough time figuring out all of it, and feeling selfish for wanting to keep and meet my child. I know GOD has a plan for my family. Trying to stay positive!!
Alicia, you are in my thoughts. It's not selfish at all to want to spend as much time as possible with your son, and to want the best quality of life for him. Don't let anyone persuade you otherwise. You are already a great mom. You will do the right things, one decision at a time.
What an eloquent and amazing mother...I was mesmerized by her words.
How beautifully put. Thank you for your thoughtful comment. ❤️❤️❤️
You not only gave your daughter life in the traditional sense, but gave her the very best life she could have known; loved and well cared for, and as long as was possible. Bless you, your husband and all your gifted providers.
Wonderful and lovely comment. Thank you for being here. ❤️❤️❤️
What a beauty of a little baby and a strong, loving mother. I am also a nurse (L&D) and also a mom to a Hannah and a James. This was such a sweet story of genuine, selfless love on the part of Hannah's parents. May the Lord give you His perfect comfort until you rejoin your little Hannah, who rests forever safe and happy in His strong arms.
Umm.. thank you, for the video. I’m eldest son of the fam. My mom’s pregnant with my lil sister diagnosed with T-18. I feel... not alone!
I'm so very glad to hear that! Please keep us posted!
How's it going?
Khadar Omar I will pray for your family and just give that little Angel as much love as you can and help your mom and dad as much as possible and remember God loves us all and we are his creation
I am a grandmother who not only has lost one grandson but has 3 of his siblings & blessed with 4 of his cousins. I can not immagine the pain that my son & wife went through nor any other parent's pain of losing a child. i can know what personally went through. We were blessed with him for 20days & in those 20 days he did more to touch peoples souls than most do in a lifetime. His was born extremely early which they called a micro-premiee, You like my daughter-in-law who i love as my own daughter, are some of the strongest women that i know. i wish i could hug you, it probably wont matter to you but to me it would mean alot.
Wow, thank you for sharing your story. I'm so glad you're here. Please let me know if there is ever anything that I can do to help! Reach out via email. ❤️❤️❤️
So sad but, you had the opportunity to show her for nine months that she was loved.
Love your kind spirit, Brenda. Thank you for watching and commenting.
What a heartbreaking story filled with an immeasurable amount of love.
Beautifully said. ❤️❤️❤️
All I can say, with a full heart and tears in my eyes, is thank-you for sharing this beautiful and humbling story.
Amazing parent/s, and you can totally see the beauty and vitality in Hannah's eyes in the pictures shown.
I completely agree. Thank you so much for your thoughtful comment!
The amount of grace this mother has is incredible. She gave her baby the best possible life she could knowing the outcome was going to be unfavorable. My heart goes out to her and her family. God bless you all and God bless your sweet Angel baby Hannah. ❤️
I completely agree. Thank you so much for your thoughtful comment!
Thanks for sharing your story. 8/01 I lost my baby girl to trisomy 18.she stayed with us for 25days. I miss her everyday.
I lost my son last year from this .it was heartbreaking . My son Nicolas. Rest in peace my angel,and reast in peace Hannah. Thank you for the video❤
Thanks for being so brave caring and sharing yr experience, I’m taking care of another baby with same Dx home health peds nurse here , I listen to stories like yours to get more insight on how parents are feeling and how I can be more supportive to them , been a nurse for 21 yrs but you never stop learning, god bless you and yr family 🧚🏽♂️😘🥰 take care
Thank you for watching and commenting. So glad you're here!
Wow. Amazing. So happy to hear that you, DR. Papa and this amazing mom have such a special observation, I know that many people today do aboard baby’s with these diagnoses. Having been threw this myself ,I’m 28 years old , my special third child Renana Chaya that was diagnosed with trisomy 18 and lived with us for amazing meaningful 4 month! We enjoyed every moment, me my husband and her two sisters (4,2 years)
Well said! Thank you so much for sharing your journey! Hugs to you.
Wow what an amazing mother, and what a beautiful little girl! I’m so touched by this video. My little boy is also life limited but because of brain injury at birth. I felt a lot of connections to what this mum was talking about, and I can sympathise with a lot of their experiences together. My journey with my son has been a hard one, and I have dealt with it badly to say the least. My son is such an inspiration to me as was this little girl to her family. I’m currently in hospital with my son after a lengthy 5 week stay in picu. Infections are scary, they come out of nowhere and you don’t know whether you’ll be going home again. My love goes out to anyone who has a child with complex needs or life limiting conditions or to those who have lost their little ones. When you become a mother, you don’t expect to have to put your child to rest, or to plan it when we should be planning their futures. But they bless us in different ways, and my son has taught me more than anyone could teach me in a lifetime! 💜
Prayers. For.a miraculous healing for your son.
@@henriettadenzig5023 thank you xxx
❤️❤️❤️ Thank you so much for sharing your story. Please keep us in the loop about how things go for you. Take care of you. God bless and you've got this.
@@DrTracyPapa thank you so so much ❤️ take care x
I had a little boy, Elijah, with trisomy 18, at 21 weeks. It was a very painful time
Thank you for sharing. Big hugs to you. So glad you here.
She is absolutely beautiful. This is a beautiful testimony
Thank you for your thoughtful comment. ❤️
What a heartbreakingly beautiful story. Thank you for sharing your Hannah with us. She has touched many hearts. Sending love. X
You are so welcome! Thank you so much for your kind comment!
Beautiful story. So sorry for the loss of your Hannah ❤️
Thank you so much for sharing! You are all very special!
I don't know why this was in my recommended videos to watch but I watched all the way to the end I cried at the end why because my wife just passed in October and the passing of everyone animal or human makes me cry lately but I know they're all in a better place God bless Hannah
I'm so sorry for your loss. Sending you prayers for comfort.
so sorry for your loss
I'm so sorry for your loss. So glad you're here. Stay strong.
May the Lord bless this woman! I have been crying through the whole video.
Love your tender heart. ❤️❤️❤️
Thank you sharing your story. It means so much to me and comforts me at this very hard time.
Thank you for sharing your beautiful daughter🙏💞☺
Thank you for sharing Hannah with us. She was such a sweet, beautiful little angel that left way to soon but she's forever in your heart. I loved her smile.
You will be doing so much for families that will have the same situation but you will be able to truly understand what they are going through and I am sure you will be a comfort to them and you were already a comfort through this video for people that are currently going through it. God bless
You are so welcome!
Thank you for sharing your amazing story. So inspiring. I’ve been told I have a 1:5 chance of having a child with Trisomy 13 or Trisomy 18. I’m 38 and always wanted to be a mum. I feel blessed to be pregnant but have been terrified all weekend of what will be. I’m due to have the NIPT test Monday. This brave story has inspired me to be brave myself no matter what for the sake of my unborn child. Thank you so much for sharing 🌈💕
Hannah was truly beautiful and you were blessed ❤️
Thank you for sharing your! So sorry for your loss. Many prayers and blessings are being given in your name
Thank you for your thoughtful and kind comment! ❤️❤️❤️
Sometimes we just have to speak positively upon our kids so instead of saying an infection is gonna take her from us just say she’s gonna be with us forever… this is a beautiful story and thanks for sharing this story
Live your life with purpose! Hannah's purpose was complete 💘 LOVE.
Thank you for sharing an encouraging word!
What a darling baby girl. So sorry for your loss. So happy you had some time with her. She knew she was loved and adored. Her life was short but full. Thank you for sharing your story, it must have been difficult.
Thank you for watching. It was an honor to serve my patients in this way.
This makes me wanna cry because it was discovered in the 7th month of my sister’s pregnancy that her daughter Regean had Trisomy 13 and we knew nothing about this and she was advised that these babies never live more than a few days after birth and it was best to induce labor and so they trusted their doctor and had her at 7.5 months and she was alive until she came out and my sister and her husband and my mom spent a little time holding her and then they took her away and I believe if she knew that her baby could had lived longer she would have carried her to full term because Carla hoped she was gonna live even if only a short time because she wanted what all mom’s want to see her baby open her eyes yawn cry etc and I know if the dr would have said that she might live for up to 3 years she would have jumped at that. That being little Angel I’m so glad they got that time with her and those smiles and cries and cuddles and I know it would had meant so much if we all could have had that with Regean
Thank you so much for sharing your story, Virginia. You are so welcome here. Please let me know if there is anything that I can do for you. Please feel free to email me or direct message me on Instagram. ❤️❤️❤️
Dr. Tracy Papa of course
You are such an incredible mother. Your sweet Hannah knew what love was when so many precious children do not. I'm so sorry for your loss. She is a beautiful Angel. ♥️
what a beautiful baby Hannah was.
I agree. ❤️❤️❤️
What a beautiful story and heaven has gained the most precious angel!
Thank you so much for your kind comment!
How wonderful. How sad for the baby, but wonderful the mother is giving back. God bless you.
I totally agree. Thank you for your thoughtful comment.
❤️❤️❤️
My son was born to me at 21. Now, he's trisomy 21. 40 years later I'm so blessed. You folks done the best thing for Hannah. God bless you to this day. Angie
Beautiful story
RIP Hannah
Thank you.
A beautiful story ♥️ God Bless you and your family 🙏🏼
Thank you so much! ❤️❤️❤️
Hannah is a beautiful Angel. I wish you the very best. God Bless your family.
Thank you so much! I agree. ❤️❤️❤️
This was heartbreaking and heartwarming at the same time. It made me take stock of everyone and everything I love
Thank you so much for your thoughtful comment. ♥️
🙏❤ thank you for this video for sharing your experience
Isn't she wonderful?!
I have lost a baby girl too. She didn't have trisemy18 but she had a heart condition because I have Lupus, I didn't know it could cause heart defects. I was very afraid and heartbroken during the pregnancy and after. I was very alone because my husband and his mother blamed me. The doctors refused surgery because they couldn't get her under anesthesia without her dying they couldn't hardly keep her alive on the ventilator. They changed to a different one that did short quick breaths I didn't want my baby girl dying on a cold table cut open alone. I wanted to hold her in my arms and tell her that I love her and that I didn't want her to suffer. I wanted to tell her it was okay to go to heaven and I would see her again. My husband and his mom got angry and told me I was murdering my daughter( doctors don't give you the option to stop life support if there is any chance at life) they told me they hated me. But ultimately I was able to hold my Kaitlyn Arabella and tell her I love her and let her go. She lived for 5 days after birth. That was 11 years ago
Hi there! Thank you for taking the time to watch and leave a comment. I'm sorry for your pain. So glad you're here. Seeing you all the encouragement.
So sorry you went thru this
😌beautiful story!
Thank you!
Glad you enjoyed it! ❤️❤️❤️
What a beautiful testimony of love and Hannah's legacy. 💕
Dr. Papa, I noticed that this was at Cook Children's Hospital, just down from where I now work. I'm a pediatric and neurodevelopmental vision specialist relatively new to the Ft. Worth area. My name is Dr. Brandi Stewart. I hope sometime that maybe I can meet you and/or some your colleagues. Thank you for all that you do.
Welcome to Fort Worth, Dr. Stewart! I hope our paths cross soon!
You are amazing mother to be able to go through this my daughter was born sick but now my daughter is 30 years old they told me she was not to live past 2 weeks and she did it
I completely agree. Thank you so much for your thoughtful comment and sharing a bit of your story.
@@DrTracyPapa you are very welcome and I just wanted to let her know that she's not the only one there's a whole bunch of us out here that went through the same thing
I have had this experience too. The hardest time of my life 😪
Oh Dr Papa! What a inspirational woman and mum this lady is. I think God did choose her and hubby to be Hannas parents. Yes it is heartbreaking but at the same time is a beautiful selfless life of a mum having a daughter with high needs. God bless you all and God bless Hannah!! a little fighter till the end of her very short life. xxxxx❤️❤️❤️❤️
she was so beautiful.such a little angel.i am so sorry for you.i send big love and hugs.nadine😘
Thank you for your kind words.
Beautiful story.
Glad you think so!
My heartfelt thoughts to Hannah and her family ❤️
I'm 30weeks pregnant and my daughter is diagnosed with trisomy 18 and hydrancephaly(I think that is how it's spelled)! I'm scared but after watching this video I am not as afraid!! I'm set to start an induction when time and do a natural delivery but if any distress I will go to an emergency c-section
I pray that all goes well
@FeliciaPeek. You shared this about a year ago.
I’ve thought about you many times since.
How are you now?
I hope that you had some precious time with your daughter. Perhaps she is still with you ♥️
If you’re reading this, please let us know how the birth went for you, and what you named your baby girl.
Please tag me, or I may not see your reply, and I so want to. Thank you.
@ lesbonschiens I had my Baby girl Se’Lesia March 13, 2021 Natural Breech Delivery! She stayed with us a shy of 4months 3months 3wks to be exact July 6,2021 she left us here in the house!! We made the best memories though with her in such a short Period!!!
Hannah was beautiful! What a blessing she was to you! You are a courageous woman!
GRACIAS. THANK YOU SO MUCH.
You are welcome!!
So brave. Beautiful.
Thank you! I agree!
My daughter would have been 7 months today. I had her for 11 days and I miss her everyday
This is a very informative video. I’m also a planner and would want things organized like this if I was faced with this.
Oh thank you so much. I'm really glad it was informative. What video would you like me to make next?
Hanna served her purpose. You are blessed.
Thank you...
You're welcome!
Thanks for sharing
Gorgeous baby!!!
I’m 19 years old, my baby girl Naomi was diagnosed with Trisomy 18 last week. Thank you for the videos💗😔
Congratulations and good luck with Naomi. There may be support groups in your area or Facebook groups for Trisomy 18 that you can check out if you need more support.
Prayers for a miraculous healing for your baby.
I have friends that gave birth to Danny - he has Trisomy and is a thriving 6 year old!
Total engineer like thinking. What an awesome person she is.
Thank you !
Hannah’s mama and Dr.Papa
What an absolutely stunning and beautiful story you shared with your subscribers.
As a new social worker as well as a. Former NICU mama myself I certainly have a special burden on my heart for families facing special needs pregnancies as well as life limiting diagnoses for their babies.
I am well prepared for my future clients thanks to you sharing your story as well as researching on my own .
Wow! Thank you so much for watching and leaving this great comment.
God bless you and your family. Hugs sweetie..I am so sorry for your loss. 🫂🫂🫂💖💖💖
God bless you always.
❤️❤️❤️
That baby has such a wise, wonderful little face.
What a thoughtful and loving comment. ❤️❤️❤️
Oh my word she was truly beautiful, I will remember her little face and beautiful eyes forever. ♥️
What a beautiful baby, Hannah was!!
I worked in a kids hospice for 4 years and looked after a beautiful little girl with Edwards syndrome. She died age 1. But looked like a newborn. She was amazing. Called sapphire
Thank you so much for sharing your story.
What a beautiful little girl.
❤️❤️❤️ Indeed.
Balling my eye out
I know, right? But Kristen herself is very bright and positive, with happy memories of Hannah.
She was a little doll, so cute.
She sure is a beautiful little baby!!! She was well loved.
She really was a pretty baby.
Indeed! ❤️❤️❤️
Wasn't she?! ❤️❤️❤️
Excellence ‼️❤️‼️
Thank you!! ❤️
May you continue to have peace and comfort knowing that your precious little Hannah is safe in the arms of Jesus in Heaven. 👼🏻🤲🏻💖
Beautiful baby.
I think so too! ❤️❤️❤️
God did choose you because you are awesome, amazing and perfect for the the big responsibility. You WERE and ARE still perfect. My best to you!
Hi, Sandy, Thank you so much for your thoughtful and kind comment. I really appreciate it. ♡♡♡
Beautiful child.
Thank you for making this video. I miscarried our son who had trisomy13 which I think is very similar. So, so sad.
I am truly sorry for your loss. 💕
Oh my goodness.... ♡
♡♡♡
Beautiful
Lost my first grandson to this last year. He only survived three days. 😢
Beautiful little angel! You were so blessed with this precious lil one and the family with the help of God and this wonderful nurse held up strong and proud. God Bless this family always with love and beautiful memories 💞🙏
Thank you so much for your kind and thoughtful comment!
❤️❤️❤️
Omg heartbreaking 😭💔
But so encouraging as well.
My nephew and his wife had a daughter with Tri so my 18,13 and another condition. Only baby ever born with all three She made it I think a month before she passed.
Thank you so much for sharing a bit of your story.