MY AUTISM DIAGNOSIS STORY
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- เผยแพร่เมื่อ 28 ก.ย. 2021
- How I got diagnosed, the process, the CAMHS experience!
Let me know if there's anything you want to see in the future :)
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I can relate to you a lot, I was a very angry child and teen. My family thought I just had anger management issues and anxiety. However, at age 21, I am so glad to finally have an official diagnosis after years of intense struggle. Thank you for sharing your story, you are so brave and beautiful. This is such important work you're doing for the autism community!
Thank you so much! Good that you finally have an explanation :)
I was diagnosed with severe ocd onset age 7 then bpd and now my GP thinks I may be on the spectrum and advised me to seek a private assessment. It's like a light bulb going off right now watching this, Thank you x
I’m pleased for you that you got your diagnosis. I sat chuckling to myself at some things you said as I can relate. I’m a 45 year old male and only realised I may have ASD in March 2020. Finally plucked up the courage to speak to my GP around 8 weeks ago, gave her a list of issues I have that fits the DSM criteria and she agreed I should be assessed. However, my local clinic use a triage service to assess the applications for suitability, and mine was declined due to “Insufficient information to warrant a diagnosis” Having found my local clinics referral form online, I’ve seen that my GP had to state if I can initiate interaction, hold a 2 way conversation, and make eye contact. Of course I can, I’ve worked in a customer facing job for 30 years and am naturally much more comfortable with people now than when I was 16!! 😤 I can’t help but feel I’ve been turned down because I don’t fit the stereotype. I’m not leaving it there, I need to go back and ask to be referred to a service outside of my area under the NHS right to choose.
That’s such a shame! Definitely keep pushing, it’s still not fully understood yet and it’s infuriating that people still use the stereotypes! I’m surprised I even got my diagnosis so early because I was apparently ‘very very good at masking’ and still am.
@@darceylauren masking is something I don’t relate to at all. I’ve spent my entire life thinking everybody else was just been a complete “expletive”. So many people across a whole range of relationships (kids growing up, school, work, family) have said the same things to me for so long (my whole life) how much longer do I bury my head in the sand without taking a look at myself. Then my wife said “Sometimes I could swear you’ve got Asperger’s syndrome” and 💡
My GP has been amazing. I’m still waiting to get on the waiting list at an out of area clinic, but the wheels are turning. I think I’m about a year away from getting my answer.
I was diagnosed at 35, and my past along with my memories of childhood make a lot more sense now. The last year has been a wild ride. It's only the last few weeks that I've realized I mimic a lot of behaviors and sayings of my social interactions to fit in with people and look "normal". It takes a lot of energy to socialize in a meaningful way and not just be on autopilot. Even when I try though, I lose a lot of the details coming from other people and focus on one or two things they said instead of understanding the bigger picture.
Thank you for sharing. 🙂
i was almost misdiagnosed with bpd but luckily i read about autism myself and brought it up. it made so much sense and i finally understood why i felt and behaved the way i do. great video, love hearing other people's autism diagnosis journeys! you're really pretty as well xx
Thank you! Glad to hear you got a diagnosis!
I was diagnosed at 5 & was highly stereotypical. Apparently my Nan read a newspaper article about another kid at 18 months, & it kicked the diagnostic process off (was very lucky, even though they tried diagnosing me with just Global Developmental Delay first).
They mustn’t have changed the methodology in those 10 years, as I was doing this some of this back in 2001 at 4/5 (apparently in the mirror room, when all the other kids came in, I ran to a corner & spun the wheels of a toy car repetitively lol). I can remember the occupational therapist doing those imagination tasks post diagnosis too & instantly remember how uncomfortable I was at them writing EVERYTHING I did down, from speech to body language.
It’s crazy as apparently ASD isn’t a ‘one size fits all’ condition, but the methodology to diagnose it sure is.
This was a very good watch though, you’ve earned a sub 😊
That’s so true, it’s now widely recognised as a spectrum disorder with all sorts of different types, yet the diagnosis is exactly the same it’s odd! Which is why I’m so lucky to have even got a diagnosis in the first place cos I mask so much and my report seemed to comment on it as me just showing ‘normal’ behaviour that meant I might not have autism. Thanks for sub!
'TH-cam suggested' popped you up on my feed! Autism, travel and nature, Love your content 🙏🏼🌟
I'm 52 and just figured out my ASD. When I was around 35 I was told I was ADHD, and treated for it but never with a formal assessment. I really don't think I do now. ADHD medication never really did for me what other ADHDers report it does for them. I love seeing everyone's story that posts it on TH-cam, but I especially love this video because it has clips of you as a kid. THis helps me look back at my own childhood a little better, but more importantly look at my daughters. My youngest is almost assuredly on the spectrum.
Thanks for putting yourself out there in this way!
Ahh I’m so glad! Thanks for watching and sharing :) I’m hoping to put more videos out at some point hopefully!
Thank you for sharing your experiences- it helps so much to hear others’ diagnosis stories!!
Loved listening thank you 😊 I have been diagnosed at age 54 with ASD
Both my daughters now almost 23 & 19 were both diagnosed ages 14 & 12. CAMHS was a hard ride for sure as parents & for both my daughters. Glad you finally got your diagnosis 🙂
Later in life diagnosis here too.. I'm 36 now and was also diagnosed with aspergers around 32/33.. life-changing! X
Thank you for sharing this valuable information. You are a brave young woman. Peace.
Awesome presentation papers you made yourself 👌 interesting video as well. I'm currently waiting for my own ASD assessment ☺️
Thank you so much!
Thank you for sharing you diagnosis journey. It is helpful ❤
Thank you!
I really have to talk about with my mother how I was as a child. I was pretty quiet. But I also was like you at some times ...
I had assessments aged 8, 9, clearly dyspraxia and ADHD, one statement aged 9 Aspergers traits.
I got a degree in 1999 aged 20, pgdip 2000.
So proud of your parents for persevering! My husband has obsessive compulsive and on the autistic spectrum. Not easy to live with him but love him to bits! No one helped him. I am a teacher so managed to figure it out. Far more help should be given to children at school. Poor reflection on the educational systems round the world. We are both 70yrs. Old. Don't give up. Learn to observe yourself. A diary for yourself to reflect on yourself.
Thank you!
You’re beautiful inside and out
Thank you :)
Thank you for sharing your experience. Could you make sure you flip the video horizontally in the future? The book spines in the background are distracting.
Hi. Thanks for making this video. Yeah I'm on a wait list to be assessed for ASD here in the states. I'm 47 and have had somewhere in the neighborhood of 85 jobs. Not sure what the actual number is though. After learning more about ASD and moving in with my parents last year, I came to realize that my father is probably on the spectrum too! What's your area of focus? Mine is singing and playing guitar; my father's is playing pool : ) Look forward to checking out some of your other vids!
Thank you for watching! I love doing anything creative and obsessed with crystals haha! Hope you get a diagnosis though, whether that’s ASD or something else-just good to know what it is and be able to move forward with it
@@darceylauren oh yeah, I like crystals and gems, metals, etc. Perhaps I was a rockhound in another life lol! TH-cam has some great vids of ppl finding them. Any good geology museums in your neighborhood?
Just been diagnosed as an adult and, I agree, it is a long and painfull process
I knew I had dyspraxia aged 23.early 2002. People thought I had Asperger’s syndrome. I had a non standard diagnosis of Aspergers traits February 2004, aged 25. I learned about adult dyspraxia. I got my diagnosis of dyspraxia, privately aged 33, May 2012. I learned I had generalised anxiety disorder spring 2014, aged 35. I had a nervous breakdown to get my ADHD detected February 2020, aged 41. The NHS waiting time is 4 years +. I got my ADHD diagnosis, privately aged 41, August 2020, Birmingham . The reports for dyspraxia and ADHD are detailed .
Gréât vidéo. 15:16 creeping up on us is so funny to me
I struggle with the reading and understanding quickly as well. I have to read aloud, and often have to re-read before it sinks in.
It’s a struggle getting through books 😅
Thank you for this video. If you haven’t discovered Saga Johanna you may enjoy her channel.
Exelent video, but where is your new videos?
Thank you! I’ve just been busy at the moment 😅 got one lined up though soon
@@darceylauren ok❤️😄❤️
I feel like there's no one to talk to about autism where I live. It's been a very trying quarantine after getting diagnosed just as soon as it began.
I'm autistic I got die knows with autism when I was 8 years old
I'm laughing, "decided to do a presentation instead" is sooo ASD
I hate where it says "must have 'good' body language" when talking to others - who decides what that is? Whether body language is perceived as 'good' or 'bad' can vary depending on the situation, culture of the person you are talking to and whether they are neurotypical or not. Kind of reads like 'you should make yourself uncomfortable to make neurotypicals feel comfortable".
Matthew 19:26
But Jesus beheld them, and said unto them, With men this is impossible; but with God all things are possible.