Thank you guys for doing this interview with us! I’d like to clear up a few things in the comments, cuz y’all are jumping to conclusions. I had hopeful doctors who were optimistic about his life, however, the 3 blatantly RUDE doctors really made this harder than it needed to be. We were aware of the facts & made a decision knowing things could go either way and were prepared for both. As you can see, we got extremely lucky with our choice and not only met our baby, but have raised a very happy go lucky almost 4 year old. ANOTHER THING; it was OUR CHOICE. This is OUR STORY. No where did SBSK or my family say that we are against abortions. I am pro-choice and believe abortions are healthcare and any pregnant person deserves access to safe, judgement free care no matter the reason. Thank you for all of you that are being kind. I’m so happy my boy is shining so bright all over the world 💜 be kind, it’s free! Edit to add; healthcare professionals are there to present information, education, and provide options. Not bully a young first time mom into a choice she didn’t want to make for herself. ALSO, doctors and medicine SAVE LIVES! Please stop the extremism.
Your family is beautiful. Your son is an adorable goofball, your man has the best demeanor and seems like the best dad ever. You're doing a great job, your boy is happy and by his definition healthy. You're so blessed ❤🎉 keep advocating for yourself and your family I wish we lived in a perfect world where you didn't have to. Sending lots of love ❤❤❤
If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven. The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved. JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16 Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.' Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late. We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now... 'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen. 🎉🎉
If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven. The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved. JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16 Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.' Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late. We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now... 'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.
He is a beautiful and a gift!! I was told to terminate at 8 months gestation because of as heart condition, cleft lip and palate and possible Downs. Well. I left that practice and went to another. They hooked me up with a Childrens hospital and my unborn baby and I were treated with compassion and love. My son was healthy and just needed surgery. No downs. Happiest baby like yours. He will be a senior this year. God bless your family!
@@janusdoe252 It doesn't need an overhaul. Every decision is probabilistic. If there is a 90% chance you lose a bet and you take it and win, I'm happy for you! Doesn't change the fact that most people who take the bet lose.
I adopted a baby with a heart like his (plus ASD, VSD, malformed mitral valve, transposition on the great arteries and coarctation of the aortic arch). He is almost 8 and doing amazing.
If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven. The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved. JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16 Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.' Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late. We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now... 'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.
We just had our lecture on Congenital Heart Defects in OB/Pediatrics! I can visualize the defects you listed in my mind. Yes, these are big words, but 1 in 110 births have a CHD, so they're fairly common. So glad that your son is doing well! Thanks for sharing!
i know right? like he genuinely cares. and has gotten so many amazing and unheard stories out to people who’ve never known anything beyond the more common life and health issues people deal with, and brought more awareness bc of it. a truly great person / team
I have a mild case if CDLS and I'm 31 turning 32 this year. I'm 4'7. I also have learning disabilities. I do love seeing little one with the same syndrome as me. Take care guys!
Yes. Quality of life for every second you can provide it to him counts. Love counts. Joy counts. If you can see and hear him and he can know he is safe, no one has the right to tell you no. Ezra seems like a lovely boy. You seem like a beautiful family. This minute is what matters. This gift is what matters. Joy to you and yours.
often we forget that although people with disabilities have to live with compromises and hardships, they are often also the happiest people, even if they cannot express it in the way we expect!
@@lilik6945 yes that is fully correct coming from the disability community myself sometimes we're not always the happiest people but we love life and we want to enjoy it so why terminate little kids that are born with something at least give them a chance at life a chance to breathe the chance to see the Sun a chance to be out in the open and a chance to see the trees and eat ice cream travel the world yk I honestly hope that doctor gets fired because you should not straight up just say that that is like disrespectful thing you would ever say to a parent.
@@KPAproductionStudios1970 Not every disability is compatible with life, or indeed a decent quality of life. It is a hard conversation to have with heartbroken parents but there are definitely times when terminating a wanted pregnancy is the kindest option. Doctors should give their medical opinion and recommendations without being fired or demonised. This child is obviously happy and well-cared for and the parents made the right choice for their family. But there are pregnancies that have little to no chance of this positive outcome. Let’s not demonise doctors and parents who make a heartbreaking decision to spare their child suffering.
Doctors may give educated advice about scientific outcomes. Families make choices based on heart, soul, grace, and need. Information informs, but cannot dictate need. @@susanstevenson3532
What a beautiful, loving family. This mom and dad seem like some of the easiest-going people, and also have the wisdom & strength to navigate the medical community & advocate for their son when needed. It’s clear that they know what’s best for Ezra, and it’s also clear that Ezra is a very happy boy. Both mom & dad let him meet his milestones in his own time, which is all that matters. Enjoy your happy, handsome son, Mom & Dad, you are both outstanding parents! ❤️
He is so adorable!! I've watched several videos by SBSK now and I just noticed that I keep smiling unconsciously. I am so glad that I have been introduced to all these amazing people. This was very insightful and educational. Everyone in SBSK are such inspirations!
@@HopefulInterventions Well, yes, and no one is fighting that, it's just that in the end it should be up to the woman to decide and you really should not say it so straightforward and on the phone. That is just... a no no.
I keep thinking how brave this couple was to stick with their choice. I want to be like that and not be swayed by others. A beautiful example I'll never forget.
Recommending termination is a valid and complex decision between medical professionals and the parents. While you shouldn't fault parents for not terminating, the inverse is true - parents who go forward with termination are not any less valid. It's a very touchy subject, but it should be a subject between parents and doctors, no one else.
It was the manor in which they spoke to us. Terminating a pregnancy for any reason is a decision made out of love and self preservation and I respect all peoples choices!
Yes, but doctors recommend termination in WAY more cases than is actually necessary or would be best for the child. Crazy rare, painful, terminal diseases? Of course. But something like Down Syndrome or what the boy in this video has? That's just uneducated.
truly amazing parents. i would never judge someone who did terminate because of this-not everyone is capable of being a parent to a child with such health issues, whether that’s by financial or just personal capability. but clearly they were more than capable and are doing amazing, and thankfully have a fantastic relationship with one another as well!! which clearly makes this child even happier :-) it was just heartwarming to watch them be loving parents together, but even more so, for them to just enjoy their time with him and happily let him move at his own pace and be his own little man. for however long they have with him, whether it be years or decades, i know he will be in a joyful and safe space. which is all we can ask for for the children in this world. thank you for sharing your story!!!!
Seeing mom and dad express so much love and joy for Ezra is so beautiful. He’s one lucky kiddo to have such cool parents, and the world is a better place with the three of them here 💜
What a beautiful family you have. There is so much love flowing and it is families like yours and stories like yours that dispel the myth that people with disabilities are somehow less-than or that people with disabilities can’t live full, happy lives. Thank you for sharing your beautiful child with the SBSK community, Ezra is a little charmer!
This may be controversial but I feel like doctors do have to push people in order for parents to understand the severity and potential life-long effects and that way, they are certain the parents are ready to make their own choices. Since it's usually impossible to predict quality of life, they cannot possibly tell parents that they should bring a child into the world because that child will be ok, because they don't know, and that could have worse consequences. While it seems heartless, I think it does help the parents to go into 'fighting mode' if they are ready to take on the responsibilities. And don't forget that some people in the medical field are exposed to so much hardship, they often have a different view on life than others people. I hope I'm not offending anyone with this statement.
i have to agree. maybe *not* in the way in which this doctor approached the subject, (as the mother described in a comment reply.) but in the sense that it still is important to sort of lay those options out there to see if they _are_ able to fight for the future child’s life. it is ok that not everyone is able to be this parent [although clearly this couple were meant to be!] i also agree that some doctors are sometimes just harsh because of the dark things they see everyday, especially in pediatric wards and so on. bedside manner is important. maybe he had prior experience with a patient with the same conditions and was worried for them, who knows. either way i wish they had gotten a different tone of conversation, but it looks like everything went down the way it did for a reason, and gratefully they have a beautiful son in a loving home. *_just hope that doctor presents options and likelihoods in a realistic but unbiased way in the future._* ♥
Idk if ur controversial, but i do agree. It puts into perspective the hardships they could face, and I think it's up to an individual to decide and mentioning the fact they may not be compatible with life let's a family decide on the course, to wait it out and hope, or to terminate. Everyone has the choice at the end of the day on what they do with their bodies and their struggles
Ezra is a such a sweet boy. These parents are awesome...so loving and respectful of his needs.They celebrate Ezra's hard fought milestones. What a wonderful family! Thank you for sharing!
Hi Ezra! I loved watching your video, and learning a little bit about you. Guess what? I’m learning to sign too! I interact with people with all sorts of disabilities, and learning sign language is really helpful. I bet you can sign better than me right now though 😂 To Ezra’s parents: You are both beautiful, *exceptional* individuals. I’d take a bullet for either one of you. I wish there were more people like you. Your decision to give Ezra the best life he can possibly have at the moment has not gone unnoticed, and will not go unrewarded.
Ezra is THE COOLEST little kid. He just reminds me of those super chill basketball or sports players in high school that are always geeking and laughing 🤣😭 he’s got that general personality about him. He’s so adorable! He is such a smart, happy soul and that’ll never change!💗
What a precious joy and beautiful blessing Ezra is. Watching this family is why I subscribe to this channel, my heart is warmed watching the most purest of love in all the world. Thank you for sharing such a sweet angel with us!!
Wow! I salute you both. What an incredible story...and how dare these doctors tell u over and over to terminate. You both followed your heart and Ezra is now here with all of us! This is HIS journey and yours as well. He's adorable, btw and thank you so much for sharing your story! 🌺🌺🦋🦋
I love how you both are raising Ezra. He is such an engaged, communicative toddler who's love for both of you is clearly evident. Keep up the great work.
So happy to see Ezra happy and smiling with his family! Keep up the awesome parenting Mom and Dad! Doctors are people too, they don't know everything and they make serious mistakes all the time, sadly. I'm glad the Mom followed her heart and is able to have such a strong bond with her child. I wish Ezra a life of love, fun, peace, and joy!
I was born with an extra chromosome and they found it when i was still in the womb. The nurses also told my mom to terminate her pregnancy with me.But my disability is not as severe as other people who have a chromosome disorder i just have a intellectual disability but it isn’t as serious! I just am a slower learner and have to think about what i need to say. Also have ADHD and struggle with depression and anxiety
I cannot imagine getting news like that and having to make a decision. I am certain either way is so tough. But I love y'all's outlook. Don't seem to be rushing or stressing over anything just relishing in every moment and what a darn beautiful smile that boy has. ❤😊😊 He clearly has purpose to bring light to lives of many!
All children can potentially develop at different stages for 3 he doesn’t seem all too far behind honestly. Thank you to the parents for sticking with him. Keep it up and be positive.
I am so grateful that this couple had Ezra, he's beautiful; mom and dad, thank you for loving him, and thank you for giving this world the gift of his life.
Ezra has two awesome parents and im sure he'll continue doing well because of their attitudes and expectations. I glad they thought for themselves after hearing from doctors. Look at rhat adorable little boy❤ I know parents who saw theur kids become adults when they were told not to take them hone, they'd live a short time. We were so proud, as classroom staff,to hear that and tell parents that. Keep doing what youre doing!!!!
What does he have to offer the world? The sad reality is that he will never be able to live independently and will need round the clock care for the rest of his life. What will happen if his parents pass away before him?
@@BimBop83 These people thrive on optimism to let their ignorance continue. I'll say be careful otherwise you'll be labeled as a troll and "extremist" (Check the pinned comment). I don't understand how people are praising this couple to the moon. Ezra will have a difficult life and it is so unfair.
Adorible. My neice had this also. Was just learning to walk at 11 years old. Praying he keeps doing well. They sure are happy kidos. God bless you all.
Termination is a choice of course, but they don't need that person to have full on advocated for it. Thats messed up. Hope he does great now and proves them wrong.
The option would have been appreciated, but how they would badger us with it just hurt. I respect everybody’s right to chose the best option for them. 💜
@@andravaslike you said in the video, the doctor was so incredibly rude about it.. thats no way to talk about something like that to a mother! its so upsetting, and the fact they would say something like that over the phone instead of properly discussing the chances of risks with you makes me so angry. you are so strong, thank you for sharing your story with us ❤
How is having a disabled child with significant mental and physical health issues, who will need extensive round the clock care for the rest of his life, a blessing?
@@BimBop83exactly. Same as when they say it’s a gift from God. Any other gift that you receive that is defective you return so why pretend a profoundly disabled child is something that everyone wishes for. It’s just a huge cope.
OMGGGG EZRA MY LITTLE MAN!! CAN'T BELIEVE OUR LITTLE THREATENING TODDLER GOT SO FAR 🥺🥺🥺🥺🥺 haven't even watched the video yet but I'm already immensely proud of our little man!!!! Love him so much
You can tell that mom is a wealth of knowledge, I’m sure she’s reading anything and everything to give her any advantage to help. The Dad is the perfect speed he’s the kind of calm reassurance that makes everything better and Ezra is just a sweet and precious boy that will thrive with them and obviously already is. This family is the embodiment of love. Thank you for sharing that love, it truly makes the world a little sweeter.
I love you kid , you are a true definition of a warrior . You are amazing and I can very tell your parents treat you right full of life no matter how bad this world is light like you bake this world bright. ❤
I follow a young woman called Stephanie George and her husband, Gio, here on You Tube. They also have an adorable little son called Sebastian who also has Cornelia de Lange syndrome. These boys are so very precious and perfect.
Doctor's often give prognoses that are based on some textbook or study. Each child has an individual presentation of symptoms and/or things they excel at. Ezra excels at fun, bringing up your spirits, he interacts with people and toys. the doctors were wrong. 😃😃👋👋♥♥
so sweet and cute little baby. so cute little family, that gives every baby, kid, child, and even adults seniors, and disabled adults, give us all a chance in the world and in life, amen
This family is one of the most BEAUTIFUL and one of the most REAL families I have ever seen. I thank God that these loving precious parents choose LIFE OVER DEATH. And this precious child's smile is contagious!
He's got great, supportive parents and that makes all the difference. I don't think of myself as an emotional person, but watching this brought out a lot of feelings. All the best, Ezra and family.
Such awesome loving parents of a cute happy kid! It sucks how cold hearted the medical profession can be, so eager to just dispose of imperfect children and prejudging "quality of life". Parents do need to be made realistically aware of the diagnosis and challenges, but the outcome for every child is different and the choice of how to deal with it should always be the parent's!
ALL life is precious, inclusing this beautiful little angel!!!!!! Momma, thank you for not terminating your pregnancy and bringing this amazing young one into the world. Being the parent of a child with special, extra needs can be challenging, but it is SO OBVIOUS that this little lovebug is worth it. The love shared between this child and his family, I have no doubt, both enriches and adds so much to the lives of both child and parent. Well done!!!!
@Butternutsquashy i will make the correction immediately. I am hearing impaired and couldnt get any subtitles to work. Thanks for helping me out on that one. Love and hugs to you and yours from rural Northeast Michigan!!! ❤❤❤❤❤❤
First time mum here! My little baby is called Ezra.. he’s only a couple of months old and healthy I praise God. I also praise God for your Ezra! Clearly he has a purpose and He will fulfill it against all odds. He’s such a happy lovely baby and doesn’t look like he is in any amount of distress. God bless your family.
Ezra has joy and his smile is infectious. He is a lucky boy as he has the best parents who love him unconditionally. This is one very sweet family and I know Ezra will reach his full potential with loving and dedicated parents. May God bless them and protect them. ❤️🇨🇦🙏
He's a really lucky baby to get so much love as he does. You two parents are beautiful together. I see so much caring and connection in your family. It touches my heart that there are such good families like you are out there. We should all be so lucky to have gotten as much love as you have to give when we were kids. Thank you for letting us get to know you. God bless 💞
The absolute WORST feeling being told to terminate your pregnancy. I got that same message and I too was determined to give my son the BEST life whatever that looked like and my baby is still thriving. I pray he continues to thrive and be a happy little one ❤
Siete bravi in questo canale TH-cam fate interviste mettendo a suo agio le persone con disabilità e le loro famiglie lasciate spesso sole vi faccio gli auguri per tutta la vita è che abbiate fortun🤩⭐️
Ezra has a beautiful smile. He is a very happy little boy. Lots of love and hugs to this beautiful family. They are amazing family that will fight for their son to give him a wonderful life.
Thank you guys for doing this interview with us! I’d like to clear up a few things in the comments, cuz y’all are jumping to conclusions.
I had hopeful doctors who were optimistic about his life, however, the 3 blatantly RUDE doctors really made this harder than it needed to be. We were aware of the facts & made a decision knowing things could go either way and were prepared for both. As you can see, we got extremely lucky with our choice and not only met our baby, but have raised a very happy go lucky almost 4 year old.
ANOTHER THING; it was OUR CHOICE. This is OUR STORY. No where did SBSK or my family say that we are against abortions. I am pro-choice and believe abortions are healthcare and any pregnant person deserves access to safe, judgement free care no matter the reason.
Thank you for all of you that are being kind. I’m so happy my boy is shining so bright all over the world 💜 be kind, it’s free!
Edit to add; healthcare professionals are there to present information, education, and provide options. Not bully a young first time mom into a choice she didn’t want to make for herself.
ALSO, doctors and medicine SAVE LIVES! Please stop the extremism.
You're wonderful parents and, Ezra is a joyous child.❤❤❤❤
Very well said!!!
@@janusdoe252 Great comment. Trolls are all over TH-cam. Best to never comment. Totally not worth it.
💯💯💯
Your family is beautiful. Your son is an adorable goofball, your man has the best demeanor and seems like the best dad ever. You're doing a great job, your boy is happy and by his definition healthy. You're so blessed ❤🎉 keep advocating for yourself and your family I wish we lived in a perfect world where you didn't have to. Sending lots of love ❤❤❤
“Even if he didn’t reach milestones, we would be ok.” I love that! Everyone is worthy, regardless of ability. What great parents!
No. There’s a difference between “becoming class president” milestones and “being able to have basic human functioning” milestones.
@@natalier4053what a jerk-thing to say. What’s your point? You should be embarrassed 🙄
@@janusdoe252 Your entire comment were your words, not mine. Stop projecting.
@@janusdoe252 No one is reading your rant lmao
@@natalier4053they never said specific milestones, simply that everyone is worthy, which is true. Existing is the only thing required
My brother was born with this syndrome! He’s now almost 40 years old. It’s so cool to see more people like him 🤍 much love to Ezra
Woaw, awesome!! ^^
If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven.
The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved.
JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16
Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.'
Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late.
We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now...
'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.
🎉🎉
that’s heartwarming and very hopeful 🖤 happy for your family and brother :-)
Is he in a group home, or does he live with family?
You’re all special. Dad, so impressed with your attitude. Mom, you’re beautiful! You’ll both make Ezra proud!!
If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven.
The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved.
JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16
Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.'
Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late.
We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now...
'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.
Totally agree!! Beautiful family
He is a beautiful and a gift!! I was told to terminate at 8 months gestation because of as heart condition, cleft lip and palate and possible Downs. Well. I left that practice and went to another. They hooked me up with a Childrens hospital and my unborn baby and I were treated with compassion and love. My son was healthy and just needed surgery. No downs. Happiest baby like yours. He will be a senior this year. God bless your family!
Thanks for sharing!
Some doctors, a lot even, gaslight their patients today. It’s happened to me more than once. It’s incredibly hurtful and disappointing 😪
@@janusdoe252 It doesn't need an overhaul. Every decision is probabilistic. If there is a 90% chance you lose a bet and you take it and win, I'm happy for you! Doesn't change the fact that most people who take the bet lose.
@@MandragaraExactly
She is not a gift. She s an individual.
It’s obvious they’re both great parents ❤ I’m glad Ezra got awesome parents and I’m glad they have Ezra.
Будут ли у этого ребёнка нормальные дети?? И станут ли эти родители бабушкой и дедушкой??? Или всю жизнь будут ухаживать только за этим ребёнком???
@@ИнессаКарташоваtheir life, not yours. Why do you care?
I adopted a baby with a heart like his (plus ASD, VSD, malformed mitral valve, transposition on the great arteries and coarctation of the aortic arch). He is almost 8 and doing amazing.
If you died TODAY, where would you be spending eternity? Have all your sins been forgiven or are you still hoping that you're a good enough person to earn a spot in heaven.
The reality is that no one can earn a spot, our sin disqualifies us. But the God news is that Jesus paid for our qualification by dying on our behalf taking the punishment that we deserved.
JESUS said, "For God so loved the world, that He gave His one and only Son; that WHOEVER believes in Him should not perish, but have everlasting life." - John 3:16
Nothing is more important than your eternal destination. Please, don't say, "When I get older I'll get right with God' or 'I'll get serious with Jesus one day when I'm ready.'
Don't wait any longer, today is the day of salvation. Get right with God today, for tomorrow very well might be too late.
We invite you to REPENT and accept that Jesus Christ is Lord of your life by praying this simple prayer out loud right now...
'Heavenly Father, I turn away from my old life and repent for my sins. I believe that Jesus came for me, that Jesus died for me and that Jesus rose again for me so that I can be forgiven and receive eternal life. I believe in my heart and confess with my mouth that Jesus Christ is the Lord of my life from this day. Through Him and in His Name, receive the gift of eternal life. I ask you to fill me with the Holy Spirit and lead me for the rest of my life. In Jesus name - Amen.
We just had our lecture on Congenital Heart Defects in OB/Pediatrics! I can visualize the defects you listed in my mind. Yes, these are big words, but 1 in 110 births have a CHD, so they're fairly common. So glad that your son is doing well! Thanks for sharing!
I had a little daughter who had Cornelia de Lange Syndrome. She brought us so much joy. You’re a very lucky family.
Am so sorry for the lost she is in heaven with the lord
cry with me, so you can lighten the load and share the burden with someone 😭
Aw man these parents are so amazing it made me cry
💪🥲
@@strawberry_cupcakes❤
Ezra has the best smile ever. What a precious little poppet. Mum and dad are amazing. Xx
The person who owns this channel should get a noble Peace Award for how great you are
i know right? like he genuinely cares. and has gotten so many amazing and unheard stories out to people who’ve never known anything beyond the more common life and health issues people deal with, and brought more awareness bc of it. a truly great person / team
Life is a gift & I’m so happy Ezra’s parents advocated for him! No one is guaranteed tomorrow which makes every day precious!
It is a curse for some ppl. Please always look at both sides.
Lol what world are you living on
What a lovely family. I can tell Ezra's parents love him very much. And I'm so proud of his milestones! I wish nothing but the best for them.
I have a mild case if CDLS and I'm 31 turning 32 this year. I'm 4'7. I also have learning disabilities. I do love seeing little one with the same syndrome as me. Take care guys!
These are wonderful parents! ❤ So loving and caring and you can see Ezra responding to that.❤️
Yes. Quality of life for every second you can provide it to him counts. Love counts. Joy counts. If you can see and hear him and he can know he is safe, no one has the right to tell you no. Ezra seems like a lovely boy. You seem like a beautiful family. This minute is what matters. This gift is what matters. Joy to you and yours.
often we forget that although people with disabilities have to live with compromises and hardships, they are often also the happiest people, even if they cannot express it in the way we expect!
@@lilik6945 yes that is fully correct coming from the disability community myself sometimes we're not always the happiest people but we love life and we want to enjoy it so why terminate little kids that are born with something at least give them a chance at life a chance to breathe the chance to see the Sun a chance to be out in the open and a chance to see the trees and eat ice cream travel the world yk I honestly hope that doctor gets fired because you should not straight up just say that that is like disrespectful thing you would ever say to a parent.
@@KPAproductionStudios1970 Not every disability is compatible with life, or indeed a decent quality of life. It is a hard conversation to have with heartbroken parents but there are definitely times when terminating a wanted pregnancy is the kindest option. Doctors should give their medical opinion and recommendations without being fired or demonised.
This child is obviously happy and well-cared for and the parents made the right choice for their family.
But there are pregnancies that have little to no chance of this positive outcome. Let’s not demonise doctors and parents who make a heartbreaking decision to spare their child suffering.
@@susanstevenson3532Exactly, thank you
Doctors may give educated advice about scientific outcomes. Families make choices based on heart, soul, grace, and need. Information informs, but cannot dictate need. @@susanstevenson3532
My baby has CDLS! So glad to see this. They are the sweetest children, the biggest gift.
Thank you, Lord for giving life to Ezra and blessing him with such great parents! ❤
Amein. GOD makes no mistakes!!
AMEN 🙏🏻🙏🏻🙏🏻
God bless you '
@@beholdheiscomingonthecloud5526And God never loses
Amen sister
Amen! :D
What a beautiful, loving family. This mom and dad seem like some of the easiest-going people, and also have the wisdom & strength to navigate the medical community & advocate for their son when needed. It’s clear that they know what’s best for Ezra, and it’s also clear that Ezra is a very happy boy. Both mom & dad let him meet his milestones in his own time, which is all that matters. Enjoy your happy, handsome son, Mom & Dad, you are both outstanding parents! ❤️
Dad has an awesome attitude!!! I’m so glad dad is here! Most times the main care falls on the mom. Kudos to you, dad!!! Y’all are all special
It just feels like he got exactly what he needed in parents. Keep it up! You guys are really doing great. What a lovely boy!
He is so adorable!! I've watched several videos by SBSK now and I just noticed that I keep smiling unconsciously. I am so glad that I have been introduced to all these amazing people.
This was very insightful and educational. Everyone in SBSK are such inspirations!
Oh my word, me too ❤
Ezra is so fortunate to have two loving parents. God bless you all.
You can just see the hurt in the father’s face when she said they advised her to terminate the pregnancy.
But in many cases there’s a valid reason.
@@HopefulInterventions Well, yes, and no one is fighting that, it's just that in the end it should be up to the woman to decide and you really should not say it so straightforward and on the phone. That is just... a no no.
@@HopefulInterventions Yeah, because why give the baby a fighting chance right? F ing animals
@@thejony5Because a lot of parents don’t have the ability or access to things they need to care for a child with severe disabilities
@@zac7790 Give it up for adoption. How is that a valid excuse?
dad and mom is legit good people, you guys seriously inspired me to be a better person, its amazing how actions we take have global vibrations.
He is a little boy with a huge personality! He is very happy and it shows! God bless you and your parents Ezra! 😃👍👍🙏🙏🙏♥️❤️
This precious baby is so lovable, adorable,and a blessing. The love his parents have for him is an example of what a family must be
What precious parents. Ezra is a joyful little fellow. So often love determines quality of life and this sure is one of those times.
I keep thinking how brave this couple was to stick with their choice. I want to be like that and not be swayed by others. A beautiful example I'll never forget.
Recommending termination is a valid and complex decision between medical professionals and the parents. While you shouldn't fault parents for not terminating, the inverse is true - parents who go forward with termination are not any less valid. It's a very touchy subject, but it should be a subject between parents and doctors, no one else.
It was the manor in which they spoke to us. Terminating a pregnancy for any reason is a decision made out of love and self preservation and I respect all peoples choices!
Between the child too
Yes, but doctors recommend termination in WAY more cases than is actually necessary or would be best for the child. Crazy rare, painful, terminal diseases? Of course. But something like Down Syndrome or what the boy in this video has? That's just uneducated.
God Bless Yall@@andravas
Wow! Well said. I wanted to comment but didn’t know how to word it so I won’t be attacked!
truly amazing parents. i would never judge someone who did terminate because of this-not everyone is capable of being a parent to a child with such health issues, whether that’s by financial or just personal capability. but clearly they were more than capable and are doing amazing, and thankfully have a fantastic relationship with one another as well!! which clearly makes this child even happier :-) it was just heartwarming to watch them be loving parents together, but even more so, for them to just enjoy their time with him and happily let him move at his own pace and be his own little man. for however long they have with him, whether it be years or decades, i know he will be in a joyful and safe space. which is all we can ask for for the children in this world. thank you for sharing your story!!!!
Seeing mom and dad express so much love and joy for Ezra is so beautiful. He’s one lucky kiddo to have such cool parents, and the world is a better place with the three of them here 💜
That little boy is the happiest little guy I've ever seen! He's absolutely adorable and obviously incredibly loved. ❤
Mad respect for the parents!!!!
What a beautiful family you have. There is so much love flowing and it is families like yours and stories like yours that dispel the myth that people with disabilities are somehow less-than or that people with disabilities can’t live full, happy lives. Thank you for sharing your beautiful child with the SBSK community, Ezra is a little charmer!
My beautiful son has CDLS and is 28 now ... Enjoy your blessing
This may be controversial but I feel like doctors do have to push people in order for parents to understand the severity and potential life-long effects and that way, they are certain the parents are ready to make their own choices. Since it's usually impossible to predict quality of life, they cannot possibly tell parents that they should bring a child into the world because that child will be ok, because they don't know, and that could have worse consequences. While it seems heartless, I think it does help the parents to go into 'fighting mode' if they are ready to take on the responsibilities. And don't forget that some people in the medical field are exposed to so much hardship, they often have a different view on life than others people. I hope I'm not offending anyone with this statement.
i have to agree. maybe *not* in the way in which this doctor approached the subject, (as the mother described in a comment reply.) but in the sense that it still is important to sort of lay those options out there to see if they _are_ able to fight for the future child’s life. it is ok that not everyone is able to be this parent [although clearly this couple were meant to be!]
i also agree that some doctors are sometimes just harsh because of the dark things they see everyday, especially in pediatric wards and so on. bedside manner is important. maybe he had prior experience with a patient with the same conditions and was worried for them, who knows. either way i wish they had gotten a different tone of conversation, but it looks like everything went down the way it did for a reason, and gratefully they have a beautiful son in a loving home.
*_just hope that doctor presents options and likelihoods in a realistic but unbiased way in the future._* ♥
A lot of genetic testing is faulty. It is murder, doctors should not be pushing anyone toward anything.
Idk if ur controversial, but i do agree. It puts into perspective the hardships they could face, and I think it's up to an individual to decide and mentioning the fact they may not be compatible with life let's a family decide on the course, to wait it out and hope, or to terminate. Everyone has the choice at the end of the day on what they do with their bodies and their struggles
Every kid deserves a chance. Thank heavens they gave Ezra that chance at life!!❤❤❤
AMEN
Nah
Ezra is a such a sweet boy. These parents are awesome...so loving and respectful of his needs.They celebrate Ezra's hard fought milestones. What a wonderful family! Thank you for sharing!
Hi Ezra! I loved watching your video, and learning a little bit about you. Guess what? I’m learning to sign too! I interact with people with all sorts of disabilities, and learning sign language is really helpful. I bet you can sign better than me right now though 😂
To Ezra’s parents: You are both beautiful, *exceptional* individuals. I’d take a bullet for either one of you. I wish there were more people like you. Your decision to give Ezra the best life he can possibly have at the moment has not gone unnoticed, and will not go unrewarded.
Ezra is THE COOLEST little kid. He just reminds me of those super chill basketball or sports players in high school that are always geeking and laughing 🤣😭 he’s got that general personality about him. He’s so adorable! He is such a smart, happy soul and that’ll never change!💗
Smart? In what way?
Such a sweet boy, so well loved by parents who understand him and appreciate his individuality! If only we all had that! Best to your family ❤️🙏💞
God bless parents like this! May we care for all our children as well.
What a precious joy and beautiful blessing Ezra is. Watching this family is why I subscribe to this channel, my heart is warmed watching the most purest of love in all the world. Thank you for sharing such a sweet angel with us!!
Laugh is special medicine,hope he and his family always stay happy.
Wow! I salute you both. What an incredible story...and how dare these doctors tell u over and over to terminate. You both followed your heart and Ezra is now here with all of us! This is HIS journey and yours as well. He's adorable, btw and thank you so much for sharing your story! 🌺🌺🦋🦋
Ezra's so aware 🥺 I love these parents, stay strong and Ezra will be too ❤
I love how you both are raising Ezra. He is such an engaged, communicative toddler who's love for both of you is clearly evident. Keep up the great work.
so touched by this family, the love and peace radiates through the screen. Ezra is such a happy & beautiful little guy.
So happy to see Ezra happy and smiling with his family! Keep up the awesome parenting Mom and Dad! Doctors are people too, they don't know everything and they make serious mistakes all the time, sadly. I'm glad the Mom followed her heart and is able to have such a strong bond with her child. I wish Ezra a life of love, fun, peace, and joy!
Dios permita a este chiquito vivir muchísimos años de vida con sus papás ,que lo cuide y les ayude a salir adelante y sean muy felices ❤
Ezra is such a lovable kid with a sweet smile. His parents are great and it's obvious how much they love him. Beautiful family!
I was born with an extra chromosome and they found it when i was still in the womb. The nurses also told my mom to terminate her pregnancy with me.But my disability is not as severe as other people who have a chromosome disorder i just have a intellectual disability but it isn’t as serious! I just am a slower learner and have to think about what i need to say. Also have ADHD and struggle with depression and anxiety
I cannot imagine getting news like that and having to make a decision. I am certain either way is so tough. But I love y'all's outlook. Don't seem to be rushing or stressing over anything just relishing in every moment and what a darn beautiful smile that boy has. ❤😊😊 He clearly has purpose to bring light to lives of many!
All children can potentially develop at different stages for 3 he doesn’t seem all too far behind honestly. Thank you to the parents for sticking with him. Keep it up and be positive.
I am so grateful that this couple had Ezra, he's beautiful; mom and dad, thank you for loving him, and thank you for giving this world the gift of his life.
Ezra has two awesome parents and im sure he'll continue doing well because of their attitudes and expectations. I glad they thought for themselves after hearing from doctors. Look at rhat adorable little boy❤
I know parents who saw theur kids become adults when they were told not to take them hone, they'd live a short time. We were so proud, as classroom staff,to hear that and tell parents that. Keep doing what youre doing!!!!
Ezra has so much to offer this world, and his wonderful parents recognized that even before birth! Such a happy family. I love these people.
What does he have to offer the world? The sad reality is that he will never be able to live independently and will need round the clock care for the rest of his life. What will happen if his parents pass away before him?
@@BimBop83you are absolutely evil and you are the one who is not offering anything worth replicating, tbh.
@@BimBop83 These people thrive on optimism to let their ignorance continue. I'll say be careful otherwise you'll be labeled as a troll and "extremist" (Check the pinned comment).
I don't understand how people are praising this couple to the moon. Ezra will have a difficult life and it is so unfair.
As I see now, he is more as living toy for his parents. It's not a life of a 3 year kid. If to be honest. Nothing to be glad of.
He’s such a doll, and mom and dad are wonderful!
Adorible. My neice had this also. Was just learning to walk at 11 years old. Praying he keeps doing well. They sure are happy kidos. God bless you all.
You can feel the love these parents have!
It breaks my heart seeing such a happy beautiful baby to go through something. Praying for this little angel.
Termination is a choice of course, but they don't need that person to have full on advocated for it. Thats messed up. Hope he does great now and proves them wrong.
The option would have been appreciated, but how they would badger us with it just hurt. I respect everybody’s right to chose the best option for them. 💜
Choice of the kid
@@andravaslike you said in the video, the doctor was so incredibly rude about it.. thats no way to talk about something like that to a mother! its so upsetting, and the fact they would say something like that over the phone instead of properly discussing the chances of risks with you makes me so angry. you are so strong, thank you for sharing your story with us ❤
ALL human beings always the deserve their chance at life and unborn children are as human as they get.
Your son is such a blessing, and you two are intrinsically supportive
How is having a disabled child with significant mental and physical health issues, who will need extensive round the clock care for the rest of his life, a blessing?
@@BimBop83exactly. Same as when they say it’s a gift from God. Any other gift that you receive that is defective you return so why pretend a profoundly disabled child is something that everyone wishes for. It’s just a huge cope.
@@nat22228así es, cada quien es libre de decidir, pero lo que no está bien, es que romanticen" este tipo de situaciones....
OMGGGG EZRA MY LITTLE MAN!! CAN'T BELIEVE OUR LITTLE THREATENING TODDLER GOT SO FAR 🥺🥺🥺🥺🥺 haven't even watched the video yet but I'm already immensely proud of our little man!!!! Love him so much
What a beautiful family ❤
Such loving parents ❤️
He is still threatening as ever 🫶🏼 much love 💖💖💖
@@andravas little menace 🥺🥺 gonna watch it as soon as I get home from work!
You can tell that mom is a wealth of knowledge, I’m sure she’s reading anything and everything to give her any advantage to help. The Dad is the perfect speed he’s the kind of calm reassurance that makes everything better and Ezra is just a sweet and precious boy that will thrive with them and obviously already is. This family is the embodiment of love. Thank you for sharing that love, it truly makes the world a little sweeter.
What a bundle of joy! They are amazing and loving parents!
A beautiful blessing of a child. I'm glad to see you didn't listen to the "experts".
I love you kid , you are a true definition of a warrior . You are amazing and I can very tell your parents treat you right full of life no matter how bad this world is light like you bake this world bright. ❤
That is one happy and loved little boy!!!
I follow a young woman called Stephanie George and her husband, Gio, here on You Tube. They also have an adorable little son called Sebastian who also has Cornelia de Lange syndrome. These boys are so very precious and perfect.
What an outstanding set of parents. They love their son and that's their greatest accomplishment.
Ezra is so darn adorable!❤ They are so blessed to have him as their son. Thats unconditional love on both sides of that relationship. ❤
What a lovely, gorgeous little boy! He looks so happy and his parents obviously adore him ❤
Doctor's often give prognoses that are based on some textbook or study. Each child has an individual presentation of symptoms and/or things they excel at. Ezra excels at fun, bringing up your spirits, he interacts with people and toys. the doctors were wrong. 😃😃👋👋♥♥
He is absolutely adorable and such a joyous little boy. Bless him and his parents!!
so sweet and cute little baby. so cute little family, that gives every baby, kid, child, and even adults seniors, and disabled adults, give us all a chance in the world and in life, amen
He has taught a lot of people - great job raising a happy baby ❤
The parents are good people.
Im soooooo happy for your bundle of joy. Ezra is such a strong name and is perfect for your baby. Beautiful family ❤
I follow 2 families on TH-cam who have kids with CDLS. One is a little boy age 5 1/2 named Sebastian and a little girl age 4 1/2 named Freya.
This family is one of the most BEAUTIFUL and one of the most REAL families I have ever seen. I thank God that these loving precious parents choose LIFE OVER DEATH. And this precious child's smile is contagious!
Ezra is adorable. Bless his parents for not listening to the doctors, What a great family.
He's got great, supportive parents and that makes all the difference. I don't think of myself as an emotional person, but watching this brought out a lot of feelings. All the best, Ezra and family.
He’s amazing. He will be signing and walking, without a doubt. He has such a kind and fun personality. The doctors were wrong.
The doctor were not wrong . Don’t be delusional.
@@connieartist1907Don't be a pessimist!
Yeah.. They were ABSOLUTELY WRONG 🧐
Such awesome loving parents of a cute happy kid! It sucks how cold hearted the medical profession can be, so eager to just dispose of imperfect children and prejudging "quality of life". Parents do need to be made realistically aware of the diagnosis and challenges, but the outcome for every child is different and the choice of how to deal with it should always be the parent's!
But theyre just doing their job?
@@coffeebean2370 this is turning into a pro life channel I swear
@@batacumbafr
ALL life is precious, inclusing this beautiful little angel!!!!!! Momma, thank you for not terminating your pregnancy and bringing this amazing young one into the world. Being the parent of a child with special, extra needs can be challenging, but it is SO OBVIOUS that this little lovebug is worth it. The love shared between this child and his family, I have no doubt, both enriches and adds so much to the lives of both child and parent. Well done!!!!
@Butternutsquashy i will make the correction immediately. I am hearing impaired and couldnt get any subtitles to work. Thanks for helping me out on that one. Love and hugs to you and yours from rural Northeast Michigan!!! ❤❤❤❤❤❤
You are AWESOME PARENTS! He is so blessed having you!! God bless you all❤❤❤
First time mum here! My little baby is called Ezra.. he’s only a couple of months old and healthy I praise God. I also praise God for your Ezra! Clearly he has a purpose and He will fulfill it against all odds. He’s such a happy lovely baby and doesn’t look like he is in any amount of distress.
God bless your family.
Ezra has joy and his smile is infectious. He is a lucky boy as he has the best parents who love him unconditionally. This is one very sweet family and I know Ezra will reach his full potential with loving and dedicated parents. May God bless them and protect them. ❤️🇨🇦🙏
Thank you for giving him a chance. He’s very sweet!
He's a really lucky baby to get so much love as he does. You two parents are beautiful together. I see so much caring and connection in your family. It touches my heart that there are such good families like you are out there. We should all be so lucky to have gotten as much love as you have to give when we were kids. Thank you for letting us get to know you. God bless
💞
The absolute WORST feeling being told to terminate your pregnancy. I got that same message and I too was determined to give my son the BEST life whatever that looked like and my baby is still thriving. I pray he continues to thrive and be a happy little one ❤
Siete bravi in questo canale TH-cam fate interviste mettendo a suo agio le persone con disabilità e le loro famiglie lasciate spesso sole vi faccio gli auguri per tutta la vita è che abbiate fortun🤩⭐️
Ezra is such a bright spark and so lucky to have such loving and caring parents ✨️ 😍. He's so happy and content. Just delightful.
Ezra has a beautiful smile. He is a very happy little boy. Lots of love and hugs to this beautiful family. They are amazing family that will fight for their son to give him a wonderful life.
Lovely family. I hope any parents who make the difficult decision not to risk having a child who they've been told will suffer don't feel any shame.
I have loved every single person on this channel not one of them has been anything less than an angel. Nothing makes me legitimately smile more
Thanks guys, these videos are great
What fantastic parents for a fantastic kid. Ezra's in great hands.
OHMYGOODNESS!!!!! What a sweet lil man he's beautiful😍😘❤💙