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- เผยแพร่เมื่อ 25 มิ.ย. 2024
- Pacing is the balance between rest and activities. This video describes pacing, provides tips on how to pace when living with an energy-limiting condition, and identifies some of the common barriers people may encounter when trying to successfully pace.
Access the written transcript and audio only for this video:
longcovid.physio/long-covid-v...
Access the whole video series:
longcovid.physio/long-covid-v...
This video was illustrated and edited by:
Laura Bassi @fisiocamera
/ fisiocamera fisiocamera@gmail.com
The script was written and narrated by:
Darren Brown, Physiotherapist, UK
This video received consultation by:
Lindsay Skipper, Long COVID Physio Peer Support Committee, Physiotherapist UK
Prof Todd Davenport, Chair Long COVID Physio, Workell Foundation and Department of Physical Therapy, University of the Pacific, Stockton, California, USA
Dr Julia Moore Vogel, Scripps Research, USA
Prof Leonard Jason, Director of Center for Community Research and Professor of Psychology, DePaul University, USA
Lisa McCorkell, Co-Founder Patient Led Research Collaborative, USA
Helen Skiffington, Long COVID Physio AHP Committee, Occupational Therapist, UK
Ciara Breen, Long COVID Physio AHP Committee, Occupational Therapist, Ireland
Dr Michelle Bull, Co-Founder PhysiosForME, Physiotherapist, UK
Sammie McFarland, CEO and Founder Long Covid Kids, UK
This video was peer-reviewed by Long COVID Physio Leadership Team.
This is also wonderful advice for those with Dystonia, Rheumatoid Arthritis, Fibromyalgia, Cancer patients...the list can be very long.
Thank you! 🌻
One of the few videos that acknowledges that systems outside of a person's control can affect one's ability to take care of themself was really validating to hear and emphasizing interdependence is very healing
Thank you for the feedback. We are pleased this video was validating.
Right! I live in Seattle, WA. USA where we have 4 seasons & a lot of weather variables. Once the cold & cloudy weather hits my symptoms get worse. Fatigue, depression & body aches. I use extra energy (that I don't have) to stay warm. So, 9 months of hibernation & survival mode waiting for the sun is not a great way to live.
Awesome video thanks for sharing!!!!!! I have fibromyalgia and chronic fatigue also chronic pain!!!! Soft hugs for my fellow warriors
This is one of the best videos about pacing I've ever seen. I've lived with ME for over 20 years and had to figure a lot of this out for myself as a teenager and young adult. I'm very happy to see resources like this widely available online to help support people with Long Covid as well as many other illnesses.
Thank you so much for this feedback. We are so very happy that this video is having a positive impact.
Same here, it’s tweeked even since the 2017 pain toolkit, for modern day issues.
Excellent, thank you - pacing is a simple idea but it really does work - one of the key things to understand if you have LC, probably THE key thing.
It’s helpful that you’ve explained pacing in such a simple way - but please acknowledge that progress is also possible with pacing. It is not just about limiting your life, it is about expanding your life and eventually making a full recovery.
Well said and well done. Thank you for providing a relatable and easily understood explanation to help as well as advocate for those suffering with LC or ME. 🙏🏼
Thank you for your feedback.
I have ME and this is a great video to help me explain what I mean to close one’s, when I mention Pacing. Thank you
Had to watch with an eye covering 💙🤩🤕 So on point!!
This is a great video that explains simply what is pacing. It also addresses many of the different nuances and facets and perspectives. Pacing can be a simple word, but it is anything but.
Thank you for your feedback. We are pleased this video is able to explain something complex, in a simple way.
Thank you, but one little thing: The sound effects are quite painful (and I'm not super sensitive to sound). I think more severely affected patients will not be able to watch/listen to the video. Maybe put a warning somewhere that those are more targeted towards care-takers and HCWs?
Or a hint to mute the sounds and just activate the subtitles could make the video more accessible for some.
Thank you for the feedback. In the description of the video we signpost to audio only version without additional sounds. Here’s the direct link 👇
open.spotify.com/episode/3BOqIrNmHWqUWdRl80Abik?si=XoGi0cXvRPGTZFtLvrM65g
Yes, I came here to say this! These sound effects are very difficult for sensory issues!
"Trust your instincts" can be bad advice. Pacing oy works for me bc it means going against my instinct to exert myself. If I wait until my instincts tell me to rest, then I have alreasy exceeded my energy envelope, and may have a serious crash
Thank you for your comment. We provide lots of advice in this video. We hope it expands beyond solely trusting instincts.
Instincs may be different from your desires
This is superb! Thankyou 🙌
You're so welcome!
Hello! The video is incredibly helpful and clear. Not so surprisingly it is helpful for swapping out a taxing conversation with a ready made explanation.
I notice the generated subtitles work very well in English but the automatic translation can be poor in places (I tested for French). Would you be interested in me providing translated subtitles for this video in French?
We are glad it is helpful.
@youtube are responsible for the automatic translations of closed captions. We have no control over them.
We are however translating the video series, and French is under development in partnership with ApresJ20.
@@LongCOVIDPhysio so glad to hear it. Aprèsj20 is our French hope. Thank you
Könnt ihr das Video auch auf deutsch aufnehmen und teilen?
Translations are planned. You can access the available videos in German or turn on German subtitles. Visit our website to learn more.
longcovid.physio/german-long-covid-video-series
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