One of the few videos that acknowledges that systems outside of a person's control can affect one's ability to take care of themself was really validating to hear and emphasizing interdependence is very healing
Right! I live in Seattle, WA. USA where we have 4 seasons & a lot of weather variables. Once the cold & cloudy weather hits my symptoms get worse. Fatigue, depression & body aches. I use extra energy (that I don't have) to stay warm. So, 9 months of hibernation & survival mode waiting for the sun is not a great way to live.
This is one of the best videos about pacing I've ever seen. I've lived with ME for over 20 years and had to figure a lot of this out for myself as a teenager and young adult. I'm very happy to see resources like this widely available online to help support people with Long Covid as well as many other illnesses.
It’s helpful that you’ve explained pacing in such a simple way - but please acknowledge that progress is also possible with pacing. It is not just about limiting your life, it is about expanding your life and eventually making a full recovery.
Prioritizing the 'fun ones' and sources of Joy is KEY to this, and to happiness and pleasure in Life as a whole! 🥰 Joy is ALWAYS on the top of my 'to do list'! Pacing / balancing activity and rest is part of the natural cycles needed by our body to functional properly. We are all a part of Nature and made up of the same things our natural world is - as nature functions in cycles of night/day, the seasons, the tides etc, so do we! We too NEED to run in balanced cycles like Nature to maintain healthy, or to restore health🥰 Let's toss out society's unhealthy rules about what is 'productive' or 'good', and make our own healthier, balanced rules for living and thriving in the life!!
Well said and well done. Thank you for providing a relatable and easily understood explanation to help as well as advocate for those suffering with LC or ME. 🙏🏼
This is a great video that explains simply what is pacing. It also addresses many of the different nuances and facets and perspectives. Pacing can be a simple word, but it is anything but.
Thank you, but one little thing: The sound effects are quite painful (and I'm not super sensitive to sound). I think more severely affected patients will not be able to watch/listen to the video. Maybe put a warning somewhere that those are more targeted towards care-takers and HCWs? Or a hint to mute the sounds and just activate the subtitles could make the video more accessible for some.
Thank you for the feedback. In the description of the video we signpost to audio only version without additional sounds. Here’s the direct link 👇 open.spotify.com/episode/3BOqIrNmHWqUWdRl80Abik?si=XoGi0cXvRPGTZFtLvrM65g
Loved the content, but the sound effects caused me pain as I had to turn up the volume to decipher the whispered voiceover. Thank you for the information, regardless.
"Trust your instincts" can be bad advice. Pacing oy works for me bc it means going against my instinct to exert myself. If I wait until my instincts tell me to rest, then I have alreasy exceeded my energy envelope, and may have a serious crash
Hello! The video is incredibly helpful and clear. Not so surprisingly it is helpful for swapping out a taxing conversation with a ready made explanation. I notice the generated subtitles work very well in English but the automatic translation can be poor in places (I tested for French). Would you be interested in me providing translated subtitles for this video in French?
We are glad it is helpful. @youtube are responsible for the automatic translations of closed captions. We have no control over them. We are however translating the video series, and French is under development in partnership with ApresJ20.
Translations are planned. You can access the available videos in German or turn on German subtitles. Visit our website to learn more. longcovid.physio/german-long-covid-video-series
One of the few videos that acknowledges that systems outside of a person's control can affect one's ability to take care of themself was really validating to hear and emphasizing interdependence is very healing
Thank you for the feedback. We are pleased this video was validating.
Right! I live in Seattle, WA. USA where we have 4 seasons & a lot of weather variables. Once the cold & cloudy weather hits my symptoms get worse. Fatigue, depression & body aches. I use extra energy (that I don't have) to stay warm. So, 9 months of hibernation & survival mode waiting for the sun is not a great way to live.
This is one of the best videos about pacing I've ever seen. I've lived with ME for over 20 years and had to figure a lot of this out for myself as a teenager and young adult. I'm very happy to see resources like this widely available online to help support people with Long Covid as well as many other illnesses.
Thank you so much for this feedback. We are so very happy that this video is having a positive impact.
Same here, it’s tweeked even since the 2017 pain toolkit, for modern day issues.
Awesome video thanks for sharing!!!!!! I have fibromyalgia and chronic fatigue also chronic pain!!!! Soft hugs for my fellow warriors
It’s helpful that you’ve explained pacing in such a simple way - but please acknowledge that progress is also possible with pacing. It is not just about limiting your life, it is about expanding your life and eventually making a full recovery.
Absolutely. I have had long covid for a little over a year and I am seeing small signs of progress. Recovery is possible!
Excellent, thank you - pacing is a simple idea but it really does work - one of the key things to understand if you have LC, probably THE key thing.
Prioritizing the 'fun ones' and sources of Joy is KEY to this, and to happiness and pleasure in Life as a whole! 🥰 Joy is ALWAYS on the top of my 'to do list'! Pacing / balancing activity and rest is part of the natural cycles needed by our body to functional properly. We are all a part of Nature and made up of the same things our natural world is - as nature functions in cycles of night/day, the seasons, the tides etc, so do we! We too NEED to run in balanced cycles like Nature to maintain healthy, or to restore health🥰 Let's toss out society's unhealthy rules about what is 'productive' or 'good', and make our own healthier, balanced rules for living and thriving in the life!!
Well said!
Well said and well done. Thank you for providing a relatable and easily understood explanation to help as well as advocate for those suffering with LC or ME. 🙏🏼
Thank you for your feedback.
This is also wonderful advice for those with Dystonia, Rheumatoid Arthritis, Fibromyalgia, Cancer patients...the list can be very long.
Thank you! 🌻
Had to watch with an eye covering 💙🤩🤕 So on point!!
I have ME and this is a great video to help me explain what I mean to close one’s, when I mention Pacing. Thank you
This is a great video that explains simply what is pacing. It also addresses many of the different nuances and facets and perspectives. Pacing can be a simple word, but it is anything but.
Thank you for your feedback. We are pleased this video is able to explain something complex, in a simple way.
Thank you, but one little thing: The sound effects are quite painful (and I'm not super sensitive to sound). I think more severely affected patients will not be able to watch/listen to the video. Maybe put a warning somewhere that those are more targeted towards care-takers and HCWs?
Or a hint to mute the sounds and just activate the subtitles could make the video more accessible for some.
Thank you for the feedback. In the description of the video we signpost to audio only version without additional sounds. Here’s the direct link 👇
open.spotify.com/episode/3BOqIrNmHWqUWdRl80Abik?si=XoGi0cXvRPGTZFtLvrM65g
Yes, I came here to say this! These sound effects are very difficult for sensory issues!
Loved the content, but the sound effects caused me pain as I had to turn up the volume to decipher the whispered voiceover. Thank you for the information, regardless.
This is superb! Thankyou 🙌
You're so welcome!
Thank you
"Trust your instincts" can be bad advice. Pacing oy works for me bc it means going against my instinct to exert myself. If I wait until my instincts tell me to rest, then I have alreasy exceeded my energy envelope, and may have a serious crash
Thank you for your comment. We provide lots of advice in this video. We hope it expands beyond solely trusting instincts.
Instincs may be different from your desires
Hello! The video is incredibly helpful and clear. Not so surprisingly it is helpful for swapping out a taxing conversation with a ready made explanation.
I notice the generated subtitles work very well in English but the automatic translation can be poor in places (I tested for French). Would you be interested in me providing translated subtitles for this video in French?
We are glad it is helpful.
@youtube are responsible for the automatic translations of closed captions. We have no control over them.
We are however translating the video series, and French is under development in partnership with ApresJ20.
@@LongCOVIDPhysio so glad to hear it. Aprèsj20 is our French hope. Thank you
Könnt ihr das Video auch auf deutsch aufnehmen und teilen?
Translations are planned. You can access the available videos in German or turn on German subtitles. Visit our website to learn more.
longcovid.physio/german-long-covid-video-series
This is such a great video, but I could really have done without the random background noises using up unneccessary cognitive space.
P r o m o S M