What actually happened to me l sichenmakeupholic
ฝัง
- เผยแพร่เมื่อ 3 ต.ค. 2024
- Hi guys, this is the longest and the hardest video,I've ever made so far. I'm so sorry It's all over the place but I couldn't set myself to refilm this again and I promised you guys to make a video on why I've been missing and the journey I had gone through. I'm sorry if I was stumbling a lot, it's because I didn't want to prep for this video..I just wanted to be as honest as possible and I hope this video will help some of you guys out there. As always Thank you so much for being here. LOVE YOU.
More information about Lupus:
www.mayoclinic...
sichenmakeupholic
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Hi, medical student here.
The doctor that told you that LIMITED differential diagnosis was HORRIBLE. (They didn't even take a complete history!!!) And that doctor was also horrible for making you feel like your disease is somehow your fault! Your feelings and concerns in response to everything that was happening is totally valid! I am so sorry for everything that you are going through, and thank you so much for sharing your journey.
Totally agree with you, ICU nurse here, your experience as a patient is heartbreaking! I am so sorry what has happened to you. Given the wrong diagnosis and not giving enough anaesthetic during a major procedure is just not acceptable! You are so brave to share your experience with us.
Totally agree with you ..they should till her everything is fine and not make her feel it’s bad and scary ..psychologically the patient will feel bad and scared unfortunately it’s practice here also ..which I think it’s should not be there 🤦🏻♀️
Toylin, you took the words out of my mouth! I was about to rant about the unprofessionalism of that doctor. Making a diagnosis without taking complete history and having the results from thorough testing and scaring the living daylights - to contemplation of suicide - out of their patient is unforgivable. That moment when he/she had a fallen face and made Sichen touch the lump...wtf? I just am appalled. If I were her I'd sue. Disgusting! Sichen, if you're reading this, I am so sorry you went through such a terrifying ordeal. If you don't already have one, I would lovingly like to suggest a really really really good therapist. Preferably some support from a mental health professional that works with individuals that have had medical trauma or is living with a disease. Girl, I've been through cancer, 8 months of chemo and 38 days of radiation where I received some nasty burns and today, I am healthy and happy. I know what its like to be scared and get the worse news about your body. Yep, love yourself, love your beautiful body, it wants to live, and find a healthy way to manage your stress. Mediation has done wonders for me. We are all sending you love and girl - YOU WILL GET THROUGH THIS. Love from Toronto, Canada.
I’m not sure where you are training as a medical student, but in Australia what that doctor told her is standard practice. We are trained to ensure that patients always know exactly what is going on, what tests or procedures we are doing and why we need to do them. This is the only way we can gain informed consent, which is required by law in Australia. Even though it can be worrying for a patient it is essential that they know what is going on so that they can make important decisions about their body and their life. And personally I would rather be prepared for the worst and receive a good outcome than be oblivious and have my world suddenly flipped.
I’m sorry to hear about all your experiences. Perhaps in your countries there are also laws and legal obligations that dictate informed consent. On the flip side, in my experience, most patients want to know.
"With social media you don't see what's going on in people's life; you only tend to see the best of them."
Words have never been truer. You are a fighter, Sichen! You are beautiful! Stay strong!
Your nurses shouldn’t of held you down and yelled at you. A nurse should of known to advocate for their patients and address their pain and stop the procedure.
I’ve been held down and yelled at as a patient until I finally broke down and asked for help and a nurse listened to my experiences and changed everything. I’ve heard stories of patients who said that they were in a lot of pain from certain procedures and their nurses stopped it for them. This is why I’m becoming a nurse; patients need to be treated as people, not a procedure.
Alice Oh should have*
Damnn!!!
I also had an experience where I woke up to anaesthesia and apparently had a panic attack, though I don’t quite remember it, I do remember a nurse yelling at me to stop being dramatic. Luckily the other nurses around were nicer and soothed me instead. It was clear that yelling is never necessary (especially since I was just crying non stop. I wasn’t yelling). I wish you the best in your career. We could use more nurses like you :)
This is why I'm becoming a nurse too
"You don't want to be me because I dont want to be myself."
That made me cry. It's a tough situation you are living in, and it astounds me that someone so pure and loving like yourself, is going through it. It's a dark place Sichen, but tunnels and wells are dark too. What I am trying to say is that you might feel stuck, or like it will never end, but theres always light at the end, and a rope that you can hold on to.
Please love yourself. Dont worry about us and your videos, people who care about you wont mind you not uploading for months, just as long as you are well. Please care for yourself, we only want the best for you.
Nobody:
Me: *crying harder than her*
omg yeah i literally had to go and grab tissues, i love this girl and i can't stand seeing her sad like this 😔
Same :(
Same :(
Hi, I’m a doctor practising in England and just chanced upon your video for some reason. I was going to watch something random however unfortunately i have landed onto a topic I see day in day out. This meant that I dont know who you are and your significance on social media but there are a few key points that perhaps you could share on your platform to other members of public in where you live. I will also share you video to create more awareness in the areas that I would like to highlight. This is because I went through the same thing you did having been diagnosed as having Kikuchi’s disease. But unfortunately it is insulting for me that your doctors did not treat you the same way I was treated. It is n even worse experience for you because you’re a lay person so every information should have been given to you extremely clearly.
1. It is the right thing to discuss some possible diagnoses to you at the start to prepare you for the worse.
2. It is inappropriate to manipulate your decision by advising that you have a LN biopsy as contrast to a fine needle biopsy however the doctor is allowed to give you advice that you can use to weigh up your own decisions.
3. In the UK, the patient has every right to keep ALL her hospital gown on until the start of the procedure. The theatre drapes should not be affected by having clean hospital gowns on. It is completely unnecessary to be exposed all naked to the rest of the members of the theatre staff for unknown amount of time - until the arrival of your surgeon. You should be allowed to ask to be kept dignified until the start of the procedure.
4. Prior to the surgery, your doctors should have discussed with you that you will be having a local anaesthetic instead of general anaesthesia (put to sleep). There are various benefits of either - I had general anaesthesia because if complications do arise, at least I am already asleep. It is more appropriate and humane to use general anaesthesia for complicated procedures where the patient is also not anxious about “what’s going wrong”.
5. When using local anaesthesia on a large area, the doctor should be using enough to numb the whole area. When you subsequently fe pain, a good doctor should ask if you require more anaesthetic (numbing injection). You were appropriate to voice out your qualms and I feel sorry for you that your doctor and nurses were inadequate to address your pain.
6. Upon completion of the surgery, you could have declined examination when your doctor “stared at your green drape” in a strange way. You have the rights to ask him to complete his sentence instead of saying “may I”. You can take him to court in the UK for misconduct because in your eyes, you saw him as violation of your privacy and dignity. He could have had perverted thoughts in his mind before examining you.
7. There’s no need for the examination to happen while you’re completely unclothed. These examination can happen at a later time in the clinic.
8. I assume you’ve had diagnostic tests that has proven that you do have Lupus because you didn’t mention any of the test positives. If you do have lupus, be optimistic. There are many new medications nowadays - although expensive from your region that can be effective. Try to not worry about it too much
9. Clinical illness and depression is a big issue. Don’t forget to talk to friends, do something you love and seek medical help if you require
With all that I have shared with you, hopefully everyone who has read this knows to ask for more respect from a doctor. This is especially common when dealing with Asian doctors. If they have put your dignity or privacy at risk, ask for respect! No women/men should have to go through such shame
I wonder if her doctor ordered blood work for autoimmune markers. Would have saved her the pain and stress she went through.
Btw, I know you didn't mean it in the wrong way but I'm Asian American and I'm a doctor. I do not treat my patients that way. All races have good and bad doctors. Please don't think all Asian doctors are rude and disrespectful to their patients.
Emily Mangiaracina Hi, yeah you would hope they did. Totally agree and blood test should be initial investigations exactly like how I get treated with my admission. I had SLE tests.
Oh dont mean it in the wrong way. I am Asian too and since practising in the UK, I have found it very difficult to keep up with ethics in another country. Probably relevant else where as well but my comparison has been made since leaving my own country to practise in the UK. In Malaysia for example, ethics is almost negligible which pains me. Will always advocate the importance of ethics in medicine and I hope women in Malaysia is aware that they have a say when it comes to their health. =)
@@precelia06 Gotcha! I understand what you mean now =) It's sad to think that ethics will never change in certain countries unfortunately.
Emily Mangiaracina Thanks for being understanding. I’m not a big fan of posting comments on social media which can be easily misconstrued but I’m glad that this is not always the case. I sense Sichen may have a hint of Malaysian accent though I might be wrong but yes, it will probably take a century or two before any improvement in the way doctors practise in certain countries. Shame!
@@precelia06 I agree 100%. I don't post often for the same reason haha
Hey sichen, my mum has lupus which attacked her heart. I know it's really hard for you to accept that it is not curable, but it is not the end of the world. My mum got it because she was like you, she wore herself out and kept pushing herself. As you said, remember to take time to yourself and get lots and lots of rest, dont push yourself so hard or it will get worse :/ . You have a lot of loyal subs here and we will all understand. Stay strong :)
lily thank you so much lily for sharing your mom story, I’ve learn it the hard way , I really hope everyone will love themselves before it might be too late.
lily Did she survive or is she going though it..? Also Im sorry for your mom 😞
@@riidisc4810 she's still here!! thanks for asking :) unfortunately she has accumulated a large range of other health issues. It's hard to take in but putting our trust in God and knowing he is looking after us is helping haha. Not to scare anyone with the health issues, it can be prevented with plenty of rest and sleep!
lily Ohhh Ok, I hope she feels better, Stay strong!
This comment touched my soul pray your mom is okay trust me I know what she's going through in the same boat
First of all, when I saw one of your make-up videos I thought: "wow, that's one of the most beautiful girl I've ever seen in my whole life", now seeing you treating that condition I can add the: "wow, that's the strongest and most beautiful girl I've ever seen in my life" I can say, you're beautiful, and you gonna be okay, because you deserve be okay, you're so humble and sweet, and the life have something amazing for you.
Get well soon pretty~
All the love from Dominican Republic
I have had lupus for about 3 years now. Last week was my anniversary. I gets easier. I promise.
Kawaii fries just like three days ago my doctor said I might have lupus but she’s not sure so she checking to make sure I’m only thirteen 😭
A friend linked me to this video and I hope you get to read this. I also have lupus and watching this brought a lot of memories back, especially the feeling of not being able to run away from your own body and wishing you could trade it for anything else. I was diagnosed in 2011 and the first year was very difficult. Though please trust me that it gets easier, and eventually having lupus just becomes part of you like being short-sighted or having black hair. Your ANA was 1:320 which is really good. Mine was 1:12,000 at diagnosis and I literally thought I was going to die. Though after starting medication I felt so much better and it's been under control ever since. I take one pill a day (Plaquenil) and get regular checkups but aside from that, life is totally normal (haha as a YTer that's also planning, filming, editing 24hrs a day). I was worried that lupus would affect my ability to have a baby and I did need very close monitoring during pregnancy, but everything ended up being entirely fine. ❤️
Maqaroon thank you for sharing Maqaroon 💕 please read this sichen, we your loyal fans want to make sure you'll be alright just like Maqaroon :")
Ok but whats wrong about having black hair? All natural hair color look beautiful to me :)
@@shuyira621 she doesn't mean it's bad, she just means soon it becomes like a normal trait that you're accustomed to.
I hope she sees this to serve as light from her journey
Please please, never apologise for being nervous or not knowing what to tell us because as long as we know that you are hanging in there, we will be happy. Please take care of yourself and we will be here cheering you on ❤️ Love you makeup mum.
Please, don’t apologize.
One day, two, three weeks, months, five years, or even 10, I hope you find the path to loving yourself.
I'm so sorry, to hear that this is happening to you. My Grandmother had lupus and my mother now has it too. I can only imagine how hard it is for you now. Stay strong, I wish you all the best.
And I'm so sorry for you! Be strong 💪
How many people love you and support you⬇️ take care of you honey🍀♥️ The biggest Kiss from France 🇫🇷 and I know that all the countries are here💙💚💛💜🖤💗♥️
My mom has lupus. I was in the doctor's office with her when I was 10. She didn't understand English, but I knew that she had the incurable kind and I straight up cried, thinking the worst. I felt so guilty that I was such a terrible child to my single mom, but 17 years later, she's doing OK :-) I take care of her, take her to get blood drawn and make sure she drinks her medications. I can't promise you that everything will be ok, babe, but there are medications to keep your illness stable and you have so many fans who love you. I pray we find a cure in this lifetime
Laura Nguyen this is a nice comment
People really don't realize how detrimental physical health is to mental health, you talking about covering your mirrors and having dreams about cutting the lymph nodes out killed me. I went through a period where I had symptoms very close to yours, with a cause and diagnosis that ended up very different, but the tender lymph nodes, achy joints, being tired, running a fever, I couldn't eat or even stand up long enough to shower, I missed a month of classes my freshman year of college. That line of "I'll be ok because I have to be, not because I want to be" reduced me to a sobbing mess and I'm so sorry you had to go through something so traumatic. It breaks my heart to think of how scared and helpless you must have felt but I'm so glad that you've pulled through it. You're such a strong person who radiates beauty from inside and out and I hope if you ever fall into darkness again you let yourself rely on the people that love you to help pull you out. Sending so much love.
Thank you so much Leah for sharing your story and showing others that metal health is extremely important when we going through this
"I'll be okay because I have to be, not because I want to be at that time."
That resonates so deeply with me at this point in my life. Wishing you good health and joy, you're incredible.
Girl I can tell you I feel you. I had autoimmune diseases too. I lived. If you ever need anyone to talk to, message me anytime.
I have RA , it's hard whatever you have emotionally and physically
Oh my god I just couldn't stop crying throughout the whole video. I'm so sorry for what you are going through and I wish you get better. I know I can't understand even half of the pain you had to/ are going through, but I really really appreciate your effort into sharing your emotions and spreading awareness about such a less talked about topic. Not everyone is able to do it, it takes guts to do so. Also, to you I'm just another subscriber who's commented on your video, but to me you are one of my favourite TH-camrs and someone I admire deeply (even if you're not as active online as before, I don't mind)- whether it be your makeup and editing skills or your work ethic. That's why when you mentioned being su****al and your fear of imminent death, I just started bawling my eyes out. I'm sincerely praying that you get well. I wish that you stay strong, healthy and happy, surrounded by people you love, doing all the things you want to do, without any limitations. Sorry for the long comment. Thanks for reading.
this broke my heart to watch and i can't imagine what you are going through. you are so so strong. keep fighting. sending love ❤️
Yes i cried through this whole video with her because ive been in a situation where i almost killed myself for not taking care of myself. I didnt realise i was doing that to myself but trust me you'll learn how to love yourself and be yourself with some practice. I Love You Sichen😊😘
Please don't overwork yourself!! We love you and want the best for you
As someone who has lupus as well, this means a lot. Thank you for speaking out and sharing your story. ❤️
Adriana Flores get well soon🥺❤️❤️❤️
I have had lupus for about 9 years now. You can live a normal life with it! Stay strong beauty
I struggled a lot with lupus when I was younger, it took me 10 years to finally be diagnosed with it. I’m 17, and going to school, walking and things are difficult. But being optimistic about new treatments helps me keep striving forward. Thank you for brining awareness to lupus, not many people know about it, so many who have it, are unable to reach out and get help.
I have lupus too, when she was describing her symptoms it really sounded like lupus
Clicked ASAP ❤ stay strong we always support you no matter what happens
this was a godsend (algorithm send) for me. I was battling episodes of chronic migraines for the past two weeks, I could not get up and I knew what was the trigger, but I pushed through thinking it will pass. then I took a sick leave from work to rest and my mind has cleared. and then I get this video - I have not been loving myself for a long time. thank you for reminding me. your pain rings those important bells, thank you.
You’re such a strong spirited person Sichen. It’s not easy to go through what you did but you still kept going. We really appreciate you sharing this video even tho it seems very difficult its very brave and inspiring of you Godbless 💕 im happy that you’re back and you seem much better than before!
I have an autoimmune disease, and so does my mother. They're so hard, and they can be invisible. I know you're on a hard road. But even not knowing you, we love you, and support you.
i feel u. im cancer survivor.. i had lumps on the same spot as you but in both side of the neck.done my chemo n radiotheraphy last year. still tryna live my life..you’ll b fine. have faith in god.
So happy to hear you survived cancer! If you don't mind me asking, what symptoms besides the lumps did you have? I'm currently trying to get a diagnosis for the lumps but because of covid everything is delayed/stopped :/
You broke my heart at the same time you opened my eyes. I really hope you and people who are suffering to get better soon and choose to live a positive life. Life is hard, but loving and understanding is not only easy, it is also curative. Thank you so much for spreading the message and for always having us in your thoughts. We love you ♥️
So agree with you
As you said “Don’t give up”, honey, don’t give up. You are amazing human being. Love and support from me and all of my family.
It's ok girl you have over 1.3 million people supporting you!😊❤️👍
Please don’t ever overwork yourself
Never feel guilty of not publishing videos often enough
We will wait for you being healthy even if not that often, than you being stressed and ill
You are very talented and amazing person
Thank you for sharing your feelings with us ♥️
Don't ever apologize for being nervous and stumbling on your words. We love you and we will always support you❤
Hi, you're not alone... I have had lupus. In 2012, I was diagnosed Lymphoma and Dec 2018, I was diagnosed Lupus.. Be positive, never give up and stay strong darling.. You'll be fine like me 🤗
I am truly praying for your health, both physically and mentally. You are an amazing person that was given the test of bravery and still continued strong. I love you so much and I know you will be blessed because of this beautiful message you're portraying despite the process you had to go through. God bless you, Sichen! 💖💖💖
You're the most courageous woman i've ever seen. You're beautiful inside as outside. Love from 🇫🇷.
You're so strong dear...i can't believe you passed all these through, and you'll also surpass this
Sichen,
I was in a car accident, underwent surgery, and struggled with a lot of personal esteem issues as a result. Thank you for being strong for not only yourself, but your fans as well.
You are my favorite TH-camr, you have taught me so much and about being creative, beautiful (inside and out), and hard working. We will always support you
My best friend has lupus and she's a doctor. She often feels a pain headache due to stress with medical school stuff like night shift, deadlines. But she still has the spirit to continue her passion. She always smiles and jokes around with us like she has nothing to worry. She still works hard to become a cardiologist despite her parent told her not too. She said she wants to do things that she loves to do and doesn't want her illness to keep her.
And I want you to keep your spirit up! keep doing what you love to do while taking care of your health. I wish for the best things in life for you. You are strong, and you can do it!
I dont think I've ever commented on any of your videos before but this has really touched my heart. Watching this made me reflect on my own life and for me I work 6 days a week, 9-10hrs per day. I hardly ever have time to do other things I enjoy. On my day off its filled with errands that is all crammed into one day. I realised I'm so overworked, but even though I have acknowledged it I still seem to carry on. I dont have time to even think. My attention span is so short bc I'm literally multitasking all the time. Last year I was diagnosed with IBS, which can occur due to stress. I lost about 22lbs during that summer. Despite all that I'm still carrying on a year later. I tried eating properly and did manage to gain back 11lbs. However I do love my job, it's just very full on. I dont even know how I should go about this
I hope you're okay ,we love you and will always support you through anything! 🥺❤️
it's okay, take time to recover, we'll be here supporting you!
I feel you girl I had TB and I removed my lymph node and tomorrow I'm going to have an operation to remove my gallbladder because I have gallstones so I really feel you don't worry everything will be fine you just need to have hope 🌞🌻
Aw good luck girl 💕
We understand sichen 😘 take a hiatus if it'll be good for your recovery. We can be patient for you queen! Make sure to come back with awesome videos in the future!
Having a chronic disease changes your life, it makes you grow up in a strange way...
Thank you for sharing on those topics, take care of you ❤️
i love you, you made me realise that life is not just about pleasing others and your looks, but loving the people that surround you and you should love yourself first before loving others, this made me cry bless you ♥
Sichen, my heart goes out to you. It is so heartbreaking to hear that you have been silently suffering these past few months. Just hearing that you reached a point of hopelessness and dark thoughts is so tragic. We all love you so much Sichen, so many of us would be devastated to lose you. I wish I could give you the biggest hug, you are such a strong and beautiful woman. The world needs more people like you!
Your entire experience with the doctors sounds absolutely mortifying. The fact that they were stating “possible diagnoses” to you and proceeding with the biopsy without administering the proper amount of anesthetic is low standard of care. Anyone in your shoes would react the same way you did, Sichen.
Stay strong my love, thank you so much for all of your beautiful, creative work. You have truly inspired me artistically and countless mornings I watch your videos for makeup inspiration. Please take it easy though, love. Do not push yourself. Just know we are always praying and sending love to you ♥️
Hi, i´m from Slovakia and i have lupus 9 years (sorry for my bad english :D )
Lupus attacked my bones, i have pain on my hands and fingers, they are painfull and i have problems with moving them. But i still drawing, working, use medicine and i´m almost stabilized.
You must not scared, you must accepting lupus and smiling. You´re so pretty, you make beautiful makeups and therefore you must be strong and positive.
Write me for more help anytime :) Good luck i send you a hug!
im glad to hear you're still doing what you love!!!!! good luck on your journey
Please take care hun. And thank you for speaking about your situation
Such a cute comment 😊 I hope you're doing well! ❤️
Thank you so much for sharing us your story Thank you so much again for being so strong and helping others who might needed this
True! Do not be scared. Do not let lupus decide what you do in life and who you are. I have lupus(SLE) for 8 years now.
i think you should put in the title the name of your disease and then people who search some info, some help can find your video easily :)))
in any case, I'm proud of your, you have shown courage and i wish you the best❣️🙏
DON'T CRYYY BABYYY😭😭💜💜💜💜😭😭😭WE ARE HERE FOR U
I'm really impressed with your makeup skills & personality. Don't worry, everything gonna be allright. Btw, today i found out that my tumor isn't malignant! I'm so happy & i want to share that positive energy with You :) i'll pray for You.
this was very eye-opening and i feel i need to change my prioritizes in life and stop focusing on the externals as much as i do. thank you💚
Thank you so much for being real with us. It took a lot of courage for you to sit and talk with us about this sensitive topic and it will not go unnoticed. Thank you so much for all the videos you gave us and the honesty from this video alone. You're helping me and other who have gone through pain and it makes me feel less alone. Take care Sichen!! We love you and want you to relax and come back when you're ready
I am very sorry to hear about your body condition and disease. But you and this video mean so much to me because I was just heard that my brother turned out to have a disease that is not curable and what he can do is just preventing his lungs from getting worse. Since i knew that I’ve been crying for a week but you really cheered me up. Thank you.
Watching you has made me realize that you're right. In the end, all of the achievements we have don't matter if we aren't taking care of ourselves and being with our loved ones. I appreciate that you had the courage to upload this, being something that made you upset, I am truly honest, thank you.
Stay strong, dear! All the love from the Philippines! ❤️
When the doctor said you don't have cancer it felt like AGT's golden buzzer moment to me and this is the first video I watch for her.
I have been diagnosed with lupus since middle school. 2019 is my 7th year companied by the disease. I went to hospital by myself the first time because my parents thought the symptoms were just allergic reactions, not near anything serious. I still remember that day. I was sitting on the chair alone, getting the blood test and crying, thinking what doctor told me that I probably have lupus and I did, still does.
The biggest lesson I learned over the year is to love myself and be forgettable. Love the things and people that make you happy and forget the things and people that make you unhappy. For instance, I barely recall the fear I had for the disease at the first 2 years after been diagnosed.
Sichen, you will be positive and be happy. Don’t worry too much or stress yourself to not afraid. The transition takes time and by just appreciating the wonderful things you got can help you escape the emotion downfall.
I love you and thank you for all the great video !❤️❤️❤️❤️
I cried. Except for the disease she got, she was like a reflection of me...not in the creepy way, but her attitude towards the camera talking all alone, her way of talking, her way of thinking...
Please do get well soon, it's been a very hard time for you. Thank you for explaining it all to us. We love you no matter what
You're such a strong girl and an aspiration to a lot of people, never give up and we love you !!
Never apologize about it. You are brave enough to talk about something that not many people would talk about. Keep fighting and we will always be there for you😊
this is hands down the most beautiful video I have ever seen. this literally opened my eyes to what people go through mentally during diagnosis. thank you for opening up. just know that even those days you feel like giving up, STAY STRONG because there will never ever be a soul the same as yours if you’re gone.♥️
i can't even start to imagine how you must've felt going through all this... my heart goes out to you and i'm so happy to see you back and doing your best
I don’t usually leave a comment. I was diagnosed with a liver tumor las year and luckily it was not malignant. But I know how bad it felt like before the result came out and how painful and scary the surgery was. So I just want you to know that you are very brave. Stay strong and focus on your wellbeing. And thank you for sharing this experience with us.
Sending love from California. I can only imagine how hard it is to live with Lupus, let alone having to relive the experience to make this video. Sichen, you are so so strong; thank you for speaking up about this and raising awareness for others. I hope you stay healthy and ride the waves of your emotions sincerely, don’t feel like you must act a certain way in front of us and your videos. Just be yourself and take things slow so you are not stressed. We all want the best for you! Love you Sichen! ❤️
You made me cry. I really hope you can feel better soon! Stay strong girl!
I had noticed you disappeared and I was worried something had happened to you. This was such a touching video and I sincerely wish you all the best. I will keep thinking of you and hoping you are okay and pulling through. This video means a lot to me in many ways. Thank you for sharing, you are so courageous and I want the best for you.
Yt recommended this video, I wasnt even a subscriber..I'm so sorry for what you've been through
Thank you for sharing this! Thank you so so much for doing this.
You are amazing ❤❤
Thank you for showing your most vulnerable side to us. You are so brave. Sending love from Singapore.
ive been following you for a long time and im really proud of u for talking about this !!
I am struggling with Sickle Cell which makes u live in chronical pain and attacks all of your organs and bones, I'm only 27 but I feel like I'm 70 because it's so debilitating and I had a stroke which left my left eye blind. Every day I lay on bed and watch your old vids because you're my escape. Don't lose hope, you will get thro it.
Love you from Yemen ♥️🇾🇪
I dont know you, i clicked on ur vid cause i was bored, u made me cry!!! Stay strong girl, ur strong, uve been through much and its hard just hearing u, i know what u mean about the people u love that matters, and i know how it feels to not want to talk about it cause u relive it, u see i lost my mother beginning of this year, and saying how it all happened it still feels like i relive that moment, stay strong girl!! Ur so real and stay real, this is real life and real people, things will change up for u a lil bit things that once matter dont matter anymore and things that didnt matter now matters, a lot will change but i promise u ull find ur way... ur story really touched me. Also if its so hard i recommend seeing a therapist, it may help u figure out the new u and be at peace with who u once were
Im so proud of you for filming this as well ... You can do this and pull through 💪🏻💓 we will keep supporting u . u have been so strong 💓well done 😔💓
P.s the numbing thing is anesthesia
My mum has lupus and it scares me so much. Never apologise for the way your health is sweetheart. Take your time and look after yourself, do what YOU can do and dont feel bad about it. Thank you for sharing your experience and being so open, you are so strong and ily.
I’ve been following for years and never commented! I’m so glad you shared it cuz I’ve been missing your content a lot. You’re so strong and please take good care of your body first
My brain: "don't cry, don't cry"
My heart: **screams**
My eyes: **bawling**
Thank you so much! You’re so brave and kind to share this with us. A lot of us including myself needed to hear that we need to learn to love ourselves. I wish you a healthy recovery! We love you so much!
This is the first video of yours I watched and I'm glad I did. I never write comments on TH-cam but I feel like I should share my experience which is quite similar to yours.I was diagnosed with aplastic anemia which is a bone marrow failure disease where I don't produce normal amounts of blood, immune cells and platelets. It changed me physically and mentally, the disease makes me feel tired and weak all the time, even though I sleep a lot. Mentally, it made me lose a lot of motivation and during the first couple months, I was depressed. I was in university during this time and I was struggling a lot because my fatigue affected my motivation to study. I literally just wanted to lay on my bed and do nothing. Like you, before they found out about my diagnosis through a biopsy, I was told it was either aplastic anemia, leukaemia, and some other disease (I forgot the name). I was so scared that it would be leukaemia, so when I find out it was aplastic anemia I was more grateful than sad. I cried a lot during the whole process, especially alone at night because I was scared I would die. But eventually, I learned to live with it. Yes, I still have it and am still tired to this day but through this, I found what was important in life. I found God because I couldn't and wouldn't lean on anyone, I didn't want my loved ones to worry about me. But with God, I was able to share all my worries and He comforted me and showed me the important things in life. The things I used to take for granted like my family and friends are now the people I cherish and spend a lot of time with. Through this process, I turned into a Christian. And I am grateful for every single day and try not to waste it because everyday, whether your sick or not, is a gift. Therefore, I know how you feel. I really do, so don't give up because you WILL get through it. I will be praying for you.
Also, I have a high chance of getting Lupus as well so I go to a Lupus research clinic once in a while to see if theres developing signs of Lupus. During the first year of university, I barely slept and was stressed the entire year. I worked myself too hard because I thought grades were the most important thing as a student. If any students are reading this, please take care of yourself and don't think a bad test grade is the end of the world, because it is not. Your health is more important than school.
That is my long story, thanks for reading it.
I was also diagnosed with scoliosis and I acted normal infront of everybody, even infront of my parents because I don't want them to worry. I don't hve anyone to talk yo about my worries after college if how am I be able to find a job if I am not physically fit.... And stuffs like that. Ifelt like I also lost motivation. This help me feel better thank you for sharing.
@@princessramonah21 Everything is going to be okay. And if you are struggling, you should try to find someone to talk too. I know it will be hard initially but once you do, it makes everything better. After a few months of my diagnosis, I told my really close friends of how I felt. It was really comforting to know that there were people who cared for me. I prayed a lot during this time and that especially helped me. If you don't feel comfortable talking to anyone then pray; He will listen to all your worries and will comfort you. So please don't deal with this alone.
😭😭Hope you'll get well soon. We'll always support you! I really want to watch more of your videos,but I believe that those who loves you will be willing to wait for high quality videos of yours.🌈🌈🥰
i clicked this video so fast!!! i love you sich! we support you and care for your health!! both mentally and physically!
Thank you for sharing these.
I realized that I haven’t taken care of myself for a long time.
Thank you for being so honest and brave.
May God bless you.
never stop fighting and don’t you ever lose hope! you can get through anything, you have your family, your fans but most importantly you have to have your back as well ❤️❤️❤️
stay strong. i just learned about this disease in medical school and it has never felt so real to see someone who totally doesnt deserve it go through it. there is something called immunotherapy that you might want to look into. it might help. i love the message youre sending. please keep striving :)
I don't usually comment on vids but this was very powerful. Thank you for sharing your experience, hardship and vulnerability. Your msgs really moved me, and I'm sure are helping others as well. Wishing you good health always..
Hi :) I'm a medical assistent, so I'm often confronted with diseases and the patients who suffers from them... English is not my first language so it's kinda hard for me to express my thought and feelings the right way. Usually when someone tells you about their diagnosis ppl tend to say stuff like "it'll be better." "I understand how you feel" "you have to be strong" etc. pp. The words are meant to be encouraging but tbh... none of us who is blessed to not suffer from any serious diseases can not relate to the heavy words we are saying. Not even a doctor knows if it'll be getting better. To say to be strong is always easier than be strong, cauze strength needs energy and in this situations it's hard to have any energy left... I just want you to know that there are many ppl supporting you. I hope you're able to cheeish the time with your friends and family. Your strenght to tell us viewers the truth of what has been going on in your life, your mind, your health is really admirable. Maybe you'll feel weak but to be able to open up, to look back, to cherish and to accept is one of the biggest strenght a human can have. I wish you and your family only the best ♥
Still I have a hard time to accept the fact that the doctor only told you these three diagnosis and not any other differential diagnosis... Also to everybody else, take care of your health. Not only your body but also your menthal healt. Both are of the same value. Even though I think it's harder to take care of your mental health than your body....
Nana yeah im a nurse and we’re taught about things NOT to say in school for example “it’s okay, I understand” “it will get better dont worry” etc but rly most of us don’t understand and no one for sure knows if you’ll get better so why give false hope, I usually say “I’ll do the best I can in giving you medical assistance and making u comfortable” etc
Last year i had two of them but now i don't have nothing ?i think they only stay 1 week Is that ok ?
@@juliawhysoasian Yes we also talked about this in school. The thing is, in our society (I live in Switzerland so I can only talk about how it is here) it's common to say "It's okey" etc eventhough the words are doing more damage than any help. But I'm glad to hear that this is a topic that is known about :))
@@bayoudhala8133 Hi! Idk if I understand correctly what your concern is but swollen lymph node is usually a 'side effect' when you have a viral infection, it's a natural reaction of the body. But to give health advice over the internet is always very difficult because you cannot give for one concern one universal advice, our body is a complex system. If you are unsure, worried or not feeling well please call a doctor or go in for a consultation. They will be able to help you :) Better safe than sorry :))
I'm praying for you, please don't lose hope. Sending lots of love and light your way from India ❤️
thank you for sharing your story sichen. you're so brave for sharing such an intimate and personal part of your life. i appreciate that you have given us the honour to know about it. i (as well as your other subscribers i'm sure) absolutely adore your work. please go at your own pace with producing the amazing work that you put out. we'll be here waiting for it no matter how long that takes. all the best and stay strong!!
I'll pray for you! Don't worry everything will be fine 😘
Sichen, I can’t find a way to express all of how I feel, not only about your share of a very private experience with something so hard to go through but also about your sincerity when discussing what’s important and true. My heart broke a million times hearing the wave of emotions and physical stress you went through. I also have autoimmune conditions that I just discovered last year, and although they are much much muchhhh less complex than yours, I find your thoughts to be very relatable and comforting to how I felt and sometimes still feel. I’ve also learned the importance of self-love and finding ways to destress because of these autoimmune problems. A career and other things really are only secondary to health. We literally cannot work, love and care for others, or do anything meaningful to us without our health, so many cheers to self-love! ♥️♥️♥️
I’m also grateful for your reminder that present day social media is constantly conditioning our minds to not focus on the fact that everyone is going through their own battles and presume that so many things are perfect outside of ourselves. The tides need to change on this and I sense it is already happening slowly, with your influence and other influencers who are speaking up about it. You’re amazing for being a part of this change. 🥰
Thank you for sharing this part of your journey with us, for being so true and vulnerable. ♥️♥️♥️
You’re so incredibly strong, and inspiring. I’m rooting for you, and everything you are going through❤️
I had breast tumor 5 years ago
I feel soooo down and deppresed and keep thinking about die, because my neighbour pass away because she had breast tumor for 3 years but never tell her family and never get any medication, it turn into cancer, when she pass away and 1 week later I find out that I have breast tumor too I feel soooo scared and keep thinking "what if I die too". But it's cured few mounth later, but I still feel scared if it's come back. I always "check it" everyday
And thanks for share this video, I feel like I am not alone and I will learn to love and care to myself more ♥
Sorry for my poor english 😂
This video was such a heartbreak to watch but I’m glad you’re at least in better spirits about life. You’re a very strong woman and I know your gonna kick lupus’ butt every god damn day. We love you so much sichen! ♡
Sichen, please take your time to recover, everything will be fine. I just want to give you a big-big hug. Stay strong. We love you so much❤❤❤
Sichen, thank you for telling us your story, as hard as it is to talk about. I'm also going through a disease that is very similar to lupus and I had the same symptoms and emotional & physical pain. Stay strong and healthy...don't overwork yourself! We love you. 💞
Watching you tell your story brought me to tears, thank you for sharing something so personal and meaningful
First video I actually cried with someone. I’m sending you love and positivity from New York. I have Rheumatoid Arthritis, an autoimmune disease that attacks the joints. It started with aching in my joints until I couldn’t walk--that’s when I knew something wasn’t right.
I have a friend who has Lupus, and it has gone into remission for her. She still has some pains, but she is now off medication because she doesn’t need it. Remission is possible.
It has taken me many medications and time to find the right one that works for me-and there are days I forget I have RA.
No one will understand an autoimmune disease and what it robs from us unless they have it too. BUT: it does get better. The denial, the pain, the fear, and the anger, they come in waves...but it does get better. What has helped for me: purposeful self-care, mindful meditation, and being surrounded my loved ones (especially my mom).
Seriously, I want to punch the doctor who gave you those three diagnoses without checking blood tests or anything, making you unnecessarily suffer.
You know your body best. I know it can feel like your body betrayed you, because I still feel that way 5 years later. But loving yourself, feeding yourself Whole Foods, and checking in with yourself really make a difference.
Thank you for your honesty and your story. You are not alone ❤️❤️❤️
I have RA too. You said "there are days I forget I have RA" and I am so happy for you. That is my dream sentence which I can't form yet :) May I ask which medication worked for you?
pls stay strong, remember youre not alone,we love you sichen youre so precious :)
Don’t say sorry honey you can cry it’s okay