I left a longer post below on other stuff.... but How does migraine Jen deal with the baby? How much & what kinds of things can Migraine Jen do with her? Also since your diagnosis's are all relatively recent & I "assume" you bought the 2 story house before knowing ALL you do now.... have y'all considered getting a 1 story to eliminate you having to deal with the stairs? This may be too personal?? And I know it's easier to get more space with a 2 story... so might not be the best choice overall? (also bigger backyard for baby & Buddy usually with 2 story) 🥰
Migraines & Panic disorder are my two biggest...Oh! and Conversion Disorder (most doctor's no nothing of & psychiatrist don't want to talk about, lol)...Anyway, I too have a Service Dog, he is a Blessing!!! I know Buddy is a Blessing to you as well!!!....You do have a lot to deal with & I admire your pleasant, funny way of handling it!!!
I would love to see a video on you and you baby (: and how you take care her with a migraine. I was also wondering how the ginger is helping so far with migraines. Thanks for this video!!
When you mention knowing the difference between anxiety/panic attacks and POTS symptoms...that is exactly what I told relatives and healthcare workers. I literally said, "I've dealt with and managed anxiety almost all my life...this is not the same thing."
I’ve been in my diagnosis journey for about a year and a half now and we could not figure out why I was “falling asleep” almost every day doing different activities. I come from an active background and also got a D1 scholarship so the question was why was I “falling asleep” so often. I quit athletics and moved home (this was my choice and I am way happier because of it). I had sleep apnea and narcolepsy tests all came back normal. Bloodwork is always normal also. I recently figured out that when I’m “falling asleep” that my heart rate is through the roof. I was just able to get into a cardiologist and now have a heart monitor test and a tilt table. Your explanation of browning out is exactly what happens! I’m so happy you explained it this way I’m literally in tears. Thank you so much! I usually watch you videos because my migraines are similar to yours but wow thank you so much for explaining it the way that you do! I am going to share this with my family because finally someone else feels the way that I do. Also my SD Stormie (I sent you a picture on Instagram) was sad that Buddy’s presents was not in this video.
I always have such a hard time explaining to people what it’s like to have POTS and to faint, so THANK YOU! 😁 ETA: Yes to the cold wet wash cloth. I’ve noticed it works better for me if I put it on the back of my neck vs. my forehead. They also make things that are like hand warmers, where you break a package (like a glow stick), and it immediately becomes cold and you can hold it against you. I’ve seen them in hospitals and at Walmart.
Oh my god I’ve GOTTA try that with the washcloth!! And yeah I’ve gotta hard time explaining pots to people too but sometimes it’s me being bad at explaining and other times it’s other people like my managers who dosnt give two craps if I’ve gotta sit because as long as I have feet I can work. But oh my gosh I’ve gotta give that washcloth a shot!! That sounds so refreshing!
Yes, absolutely.... back of neck. I feel like my body is on fire inside when im overheating. Half more pores dont open or sweat much. Its so weird... the side of my face that doesn't sweat... there are these "salts" .... sometimes grainy or powdery, but still grainy, they come out the pores over my right eyebrow. I really wish i could affort to collect and test this stuff that comes out my pores? 🤷🏻♀️
@@lishy_jan_2381 yeah. we just needed to get out of his berry and mushroom patch..lol i do go armed with a large load, just dont use it unless i have to.i like my critters.saw 2 bears this week. an elk charge is scarier and the cougars are worse..i use medical mushrooms that i harvest to help the POTS symptoms. lions mane for nero cell growth and reishe for the anemia and powered matcha for blood ox.. it works well enough id risk the bears to get it. i stopped going faint from low red cells..still pass out but not the slow decent,yawning, fuzzy face and arm loss.lol i still get super stupid if im on my feet to long..
My faints are very similar to yours! My husband and I call "browning out" my "limp noodle stage" because I my whole body goes completely limp. LOL! Thanks for creating such a relatable video & for being so open and honest!
When I realized that it was just my body malfunctioning and not my brain and things I was afraid of or actually having something to be worried about it really helped and my mental health improved dramatically.
The explains exactly what I’ve felt for so long... I’ve had “seizure-like” episodes since I was 16 and I’ve had doctors constantly telling me it’s all in my head. It helps to see someone else having the same things I have. It Gives me hope that the right doctor will help me soon!!
I've been having seizures for about 3 years now. They have just recently, as of last August, officially diagnosed me with Psychogenic non-epileptic seizures. According to my neurologist, it's all psych related that has gone untreated for too long and is now physical. But I have muscular tension dysphonia, complex regional pain syndrome in my right knee, bursitis in my left hip, herniated and degenerative discs in my lumbar spine, 2 brain tumors, and chronic migraines, in addition to my mental health conditions that I have been in therapy for, for years now. But because of those it was automatically it is anxiety and stress. Just talk to a therapist. I know my anxiety and stress, is not the same. I hope you have found some answers in the last two years @gloryabelonie3839.
I'm a therapist and your right about the struggles that people with chronic health problems deal with!! I work with people who are medically complex and we're human beings with bodies and things happen to them. You are very brave in sharing your story!!! Wish you and your family the best. Take care of yourself!!!
Browning out! This is the exact description of where my panic attacks take me. I end up on the floor, still conscious but I can't talk, or see or move my body. Scary. Definitely a brown feeling.
For me, I always feel so confused, both before it happens and especially afterwards. All I usually remember is starting to feel really out of it and not being able to see properly, and then I wake up super confused
Thank you for doing what you do.. I recently was diagnosed with POTS and gastroperesis, I completely understand how it is and because of you I don’t cry so much.. I don’t feel so alone in this world with all these crazy things going on. Like you my husband was so scared to leave me at home, so you inspired us to get a service dog.. with the help of my doctors and husband we are getting her tomorrow. After a lot ALOT of research and training studying we decided to go with a Great Dane and start her as a puppy.. was so excited and tonight find myself nervous scared then I passed out and hubby says yep this is why your getting your pup.. :) Thanks Jen for everything keep up the fantastic work. As much as I watch your videos your like family to us and your deff NOT ALONE.. :)
I assumed your experiences would be very different from mine. But you described how it ALL feels so profoundly accurately its stunning. I can't believe our experiences are SO similar. I never would have been able to explain this so eloquently. This was amazing!!!
I just discovered your video and was enthusiastically nodding, gasping and sobbing at 3 in the morning watching it because I've been dealing with POTS for over 20 years and was only diagnosed a month ago. You have described so well what I have struggled to understand and share for all this time. We share so many symptoms and feelings and it has been a whole thing of family, friends, DRs and even myself gaslighting me over all of it until I didn't even believe it was worth talking about. You may never know how much it means to me to have found this video!! ❤️ Thank you!!
I feel like you deserve so many more subscribers than you have. I absolutely love your content and I come away each time feeling like I learned something or at least understand something further. Thank you for being you
Exactly! Her channel has more than doubled in subscribers in the last 2 months. I predict she will hit 100K at least by the end of the year! (who knows.... it could be more!) She had 8K when I started watching at the beginning of December.
I am just starting to deal with all of this. I was recently diagnosed with Pots. I have stage 2 CHF already. I'm 38 and I wasn't expecting this to be my life. I am having chronic migrains aswell and my insurance is a mess. I just wanted to thank you because its nice to hear someone else talk about the things I am learning to deal with.
A wet wash cloth on your chest can help. I learned that from a nurse while donating blood and it definitely helped to prevent a faint during the procedure.
I've not heard anyone outside of my narcolepsy groups describe the feeling of waking up in the middle of REM! It's the worst! So glad to hear that other people actually do understand that feeling
I just turned 21 and I share multiple conditions with you. My migraines were also classic for years and then turned to complex vestibular migraines just over a year ago. I was one semester away from finishing college and I had to stop and quit working my dream job. Finding your channel months ago has been so helpful for my mental health and feeling less alone. So thank you for sharing.
Thank you for being so open about your medical issues. I wish nobody had to go through anything like what you describe. I know how fainting feels and what my migraines feel like. When I was in my early teens, I blacked out. I could walk and talk and hear everything going on. I just couldn't see for a couple minutes. My doctor didn't know what happened. Never happened again.
You described pots to the T! One of my least “favorite” conditions.. so much that goes into it and so many symptoms. Thank you for making your vlogs!! They have helped me reach out to my Neuro about my migraines. On the road to figuring out what meds work best. 🤞
Thank you for all you do! I’m getting ready to go to cardiology in a month or so for my diagnosis finally for POTS. I feel like I’ve had so many similar struggles to you, and you’re so right that a POTS attack is NOT an anxiety attack. My resting hr is usually in the low 60s but I had one day where I couldn’t get it below the 90s. I was told to just stop paying attention to it and it would go down because I was just making my anxiety worse... I also never thought to track the relation to my POTS with my migraines, but I feel like after a bad migraine the next few days I’m stuck in bed due to tachycardia if I get up. Things for me to think about. You’re awesome, Jen! And so not alone.
For me, fainting when I have a trigger like getting my blood taken feels like a massive *whoosh* in my ears, almost like holding up sound cancelling seashells up to my ears. Then everything starts going black creeping in as a vignette around my vision as it feels like I'm falling backwards, even if I'm already laying down! I think the visual from "Get Out" when he falls into the sunken place is actually a good way of describing what it feels like for me.
I had this happen to me today for the first time! I haven’t been able to find a way to describe it, it was so scary. My body never collapsed but my vision ended up going completely black and I had to sit down.
Thank you so much for sharing. I have complex partial seizures, no convulsions, but faints exactly like you describe. I hate waking up or coming out of it and being angry that I “let “ it happen again as if I had control.🤨 love ❤️ you and your channel. You are a beautiful, intelligent, and compassionate woman. 👏🥰
I have to say this again, but you are amazing with how you deal with this. I'm just dislexic and that is a huge struggle on me but... Ah, I'm crying.. you're amazing with how you deal with this!
I am perfectly healthy but watch your channel. Good info for us who may come upon someone who is exhibiting your symptoms. We can watch closely, but not intrusively in case you need help. I am learning a lot from your channel, and I am thanking God for the learning experience! Thank you, Jenn and Buddy!
My life has been turned upside down last December. I kept passing out always having a brain fog, absolute fatigue. Went back on my anti anxiety meds and started to feel much better, thinking that it was all stress related. Recently i just had a tilt table test done and passed out pretty hard. Like I was dreaming when I passed out. So now they have me on a heart monitor for 30 days and a blood pressure meds to see how I do. I have never been so confused ever like this in my life, but seeing your videos have been giving me a better out look on my symptoms. Thank you for posting and being open about your health. I keep looking forward in seeing your weekly videos. :)
I get all the way to 'browning out' but don't ever fully faint. Instead, if I get to that point, I end up falling asleep for several hours. My husband and I watch your videos together and he is always saying "yep" when you say things. It is crazy how many times you describe things or scenarios we have dealt with on my POTS journey! I am SO GLAD you are sharing all of this because you are so much better at explaining things than I am! Don't think you just ramble. You actually share a lot of information that can help a lot of people when you 'ramble'. Call it bonus information! 😄👍
I had my first more serious browning out today. Luckily I watched this video last week as I've been researching POTS while going through the diagnosis process. I just wanted to comment and say thank you so so so much. Thanks you you and the videos you've made, whilst it was an unpleasant experience I wasn't scared because I knew sort of what to expect and things to help so I cannot say thank you enough for taking a lot of the fear away during this diagnosis process!
I was dealing with POTS for almost two decades before I was finally diagnosed! I had been to every specialist out there and had all of them either try to diagnose individual symptoms or tell me I am just too overweight and need to exercise more! Those situations can be both demoralizing and frustrating. I am SO glad I trusted my body and didn't run on a treadmill pushing through the pain as several doctors recommended! Now I always make sure any new doctor, regardless of specialty, knows about POTS before I see them.
My migraines have been more frequent in the last few months and your videos have helped me so much! I was recently put on bloodpressure medication to try and see if that could help lessen the frequency, after having 22 migraine attacks in january. My normal bloodpressure is 110/70 so my system could not handle the medication, and I came very close to fainting. I am now off the medication. Your video of you fainting meant that I could keep calm and take the neccesary precautions. So thank you for both the entertainment and the knowledge you share. Hugs from Denmark 😀
Great to hear your story and what it feels like for you. I have a surgestive diagnosis of POTS, but from the tilt table test my Blood pressure dropped very low. So people are saying OH but doctor has says Pots. Great to hear your side of things. Since the diagnosis has taken forever my parents tell me it can't be that serious if it took this long to diagnosed. Which upsets me a bit. But great to hear other stories and know im not alone. I haven't fully fainted (like blacked out) but I have got closed especially after baths and showers and I find my tongue goes numb and tingly first then it's spread throughout the head and heart palipations as well plus a lot of what you said. Thanks again for sharing :)
Depression and anxiety are brutal, I've struggled with that for way longer than I even can admit to myself... but your videos give me hope. One step at a time, we're with you.
Yes! I can totally relate. Even with some of the mental health aspects. I love how you explained the relation with illness and mental health. And I think you did a wonderful job explaining what it's like to faint.
I have POTS and chronic migraines and love watching your channel. I learn more from you about migraines then from my doctors who tell me nothing which can be scary. You're amazing 💖 also the cool wet washcloth helps me either on my face or back of neck
I’ve only been watching you for a few months but I’m just absolutely amazed by you. 🥺You go through a lot it seems like and you’re staying so strong. I’ve very worried as soon I have to go have Tilt table test done on me to see what’s causing my fainting spells
I get migraines. Have for 35+years. I have identified several triggers causing my migraines. I get some of the same feelings, the fog, can't talk, etc. Keep being you.
♥️♥️♥️Thank you very much for your honesty. I have two illnesses called hypophysis insufficiancy and asthma. It's hard to live with life changing illnesses. ♥️♥️♥️
Thank you for trying to explain POTS and telling your story of chronic migraine. In my situation, my chronic migraines were diagnosed so much more quickly than my daughter being diagnosed with POTS. No one knows what POTS is and always hard to explain. And yes, my daughter says a cold wet wash cloth helps so much!
My faints are similar to this with the addition of right before I faint I get an almost 'out of body experience' feeling. Not sure if it's just because like you said, the control you have over your limbs and body is pretty limited when you're about to faint. Thank you for being so open about these things - proud to be one of your great big YT family!
I dont faint, i am really glad about it! But i have daily migraines for more than 10 years (i am 29). Your channel helps me a lot, because for years it felt like i was totally alone with this (didnt help that several neurologists told me that daily migraines do not exist). I have a wonderful and caring husband, but it can still be very hard mentally. You are so strong! I was not brave enough yet to get pregnant, i am so scared i wont be able to take care of my own children. I admire you for taking this step and it really gives me hope that i can do it too! Thanks for being so open on this channel, i bet it is not easy, but i does help so much ♡
Thank you for sharing and opening up that you live with mental health issues ♥️ I can only imagine how that opens you up to horrid people and their comments but those of us that follow you appreciate you and your experiences ♥️
Thank you for opening up about mental health. It’s completely understandable that it would be a difficult topic, and I’m sorry that you’ve been through so much. I hope that you continue to be gentle with yourself and give yourself permission to share as much of as little as you want. I hope too that everyone here continues to be kind to you. Comments can be rough places, and I hope no one is cruel to you because of your experiences with mental and physical illness.
My mother has similar symptoms to these but they diagnosed her with Lupus. It's nice to have a better understanding of how bad her migraines could actually be now!
We love your rambly little channel 😁 I'm learning a lot, and it's not like your tangents aren't relevant. Your content has helped me understand some of the people in my life better who share some of your conditions.
Yeah I don't know how it works, but I have been diagnosed with both orthostatic hypotension 10 years ago by a cardiologist, to now being diagnosed with pots by a cardiac electrophysiologist. The exhaustion from pots can be brutal. I think you did a great job of explaining this. It is a hard thing to explain things like this to people that have never passed out.
Thank you!!!!! I have had vestibular migraines for years and during my last recovery I discovered you and am now your #1 fan. I also experience heart issues, changes in blood pressure but because I don't faint only nearly faint Dr said it was only vertigo issues because its always during or after a migraine attack but now with her help I will push to explore POTS. Merci!!!!!
A cold wash cloth definitely help before going out and coming back to the world. I find even putting it on your legs like under your calf’s helps a lot and it’s easy to keep it there if it’s a bigger cloth and your SD Does DPT too. Thankyou for being so brave and making the world not as scary knowing we’re all not alone.
I had palpitations in my 20’s and 30’s. I’m in menopause now and I don’t get them. So happy. I to have persistent depression and I have had panic attacks. No, they are not the same as a POTS attack
I'm here...just to show I care, I want to learn, I want to understand, and to help take on some of that mental load for you. I'm only just starting to take more notice of my migraines and figure out the why. You've encouraged me to take more control of my health. You are not alone *hugs*
As always, Jen, thank you for your vulnerability and willingness to be so open. More and more research shows that our mental health and physical health are very connected-so it's totally understandable that have chronic illnesses affect your mental health.
I am currently in the process of seeing a cardiologist and will be having a tilt test soon. I am currently wearing a holter monitor and soon will have a echocardiogram. You are describing my life. I havent fully past out yet but I have been really close. My symptoms are so crazy. Your videos are so helpful. Thank you for sharing. I've been a mystery to the Dr.s and have been marked as someone who has anxiety. 🙄
It feels a little wrong getting excited about your videos considering they are all about your chronic illness. However, I truly enjoy and look forward to your videos! I don't have POTS or migraines but I do have Spina Bifida. I completely understand disability and mental health issues. Stay encouraged girl!
I just came across your video!! Wow I get chronic migraines myself. I do not faint. But so many things you said do happen to me. Bits and pieces. But I don't faint. I love this video. I can't wait to see next week's. I don't know what triggers my migrains. I have had them even as a little child. Oh I was so sick then to.
You made me feel so much better to know it not just in my head and i do feel alone. I did have to get counselling for the anxiety. The migraine a lot, nausea too. I spend 22hours in bed Cause of ME and Fibromyalgia the pot symptoms and FND. I feel like I am hit by a bus everyday, but even more worst when I faint. Noise is so bad I have to wear ear plugs and defenders or it triggers me in many ways. Everything you said is all on point. I can’t believe it. Thank you so much.
I've been fainting since I was 11 and can relate to alot of what you go through. I now know that I have hypermobile Ehlers-Danlos Syndrome and some other co-morbidities. When I was little it became a race to the bathroom to splash cold water on my face, and that would stop the faint if I could do it in time. Unfortunately, I was warned that the bathroom has the most hard and dangerous surfaces to hit your head on. A cold washcloth feels sooooo good! As an adult, putting an icepack on the back of my neck or elsewhere can delay a faint or turn it into a pre-syncopal event instead of a full syncope. Man, I have shed a few tears as I listen to someone else (you) telling exerpts from my horror story life. So sorry you have to live with this also, but glad you seem to have a great support system. Good luck on your journey!
I remember when I had low blood sugar and I just lost my vision completely and I remember being light-headed but not idk it was fun. I feel light-headed everyday but thankfully I never faint
You gave some wonderful examples that we can all relate to. That was very helpful in understanding! (but I have never heard you mention "Ear bombs" before...? curious on that one) I am in awe of how you deal with all of this. Question: IF you wanted to... can you exercise? play tennis? swim? etc..? (that may be too deep & need a different video?) ok.. static in your hair: if more/deeper conditioner doesn't help, you can always try rubbing a dryer sheet over your hair before a video if it bothers you. (or lightly spritzing your hairbrush with water) *OH.. maybe putting a bottle in your basket that sprays water would help!?* You would have it handy & could also use it to pour water on a washrag in the basket as needed for fainting spells.... (side note: I don't think anyone noticed the static in your hair till you mentioned it. LOL) 😊 edit: The spray water bottle thought came to me AFTER the "static" issue. I don't expect you to spray your hair. LOL🤣
I suffer from panic disorder/panic attacks/anxiety and depression. All that fun stuff. The first time I ever experienced a panic attack it pulled me out of sleep and I felt like I was having a heart attack. I had a lot of the symptoms you mentioned... racing heart, clammy, dizzy, brain fog, I would feel like I’m going to faint (an out of body feeling) and sometimes get nauseous. I also have a service dog. She performs deep pressure therapy on me when I need her to because what can make it worse is the pacing I feel like I need to do in order to keep myself from fainting. I don’t have them as much as I did in the past only because I’m not scared of them and know how to calm myself before it gets too bad. There are times I am not so lucky. Loved this video! Have a great weekend! ❤️
I would love to hear about your mental health journey. I'm currently struggling through an anxiety disorder (with a therapist and soon a psychiatrist) and I would love hearing about the tips and tricks you use to get yourself out of your depression and anxiety loops.
Hi, I'm new to your channel. I suffer with epilepsy and straight after coming around I get a migraine. I know how you feel it is horrible and it's the part where some people actually dont know what it feels like and what you we have to go threw in our daily lives. Sending hugs and kisses. Xx
Thank you for sharing this. My faints are pretty similar. But diffremt at the same time. Being someone with migranes and believed to have pots i understand how the symptoms very. Also to answer your wash cloth video for me it helps a lot. Unless I'm having cold sweats before I go out.
its great learning about these kinds of conditions I am a nurse and this is extremely helpful, I also know what it is like living with a weird condition I have crohns and glaucoma but also medically diagnosed low blood pressure and a postural drop when going from laying to sitting and sitting to standing, there has been heaps of times i have landed straight on my face from getting up to quick which is really dangerous so your tips on getting ready for a faint are super helpful Thanks so much for making these awesome videos
I was diagnosed with supraventricular tachycardia and I will blackout if can't squat down and change position...not easy to do if your driving! Thank you for sharing! I just realized that this sounds like the symptoms I've had too. Never been tested for POTS. I've been told it's "just" a panic attack. 😑
Oh my goodness! I've had this a few times. It happens about once or twice a year now. I switched to "my blood type" diet and it helped a lot. Thank you for helping not feel alone. I'm so sorry this happens to you a lot. I say it feels like dying. The sinking feeling, weakness, & the body changes hot/cold clamy, & pain the fading away. To me that it what I imagine dying feels like.
Thank you for sharing! I just recently started watching your videos and they're very helpful to me to see what other people's symptoms to POTS are. I went to a neurologist years ago and they told me I might have dysautonomia, but that was all they did for me. They didn't explain anything about what that meant or what I could do for myself or even what type of dysautonomia I might have. So I've been on my own for the past 3 or 4 years in that respect and I aged out of my parent's insurance right around that time as well. So now, I am working on getting back in to see a different neurologist and possibly even a specialist to see what I can do because it effects my everyday life.
I was just recently(very recently) diagnosed with POTS and my faints are different but kinda similar. I have only had one time where I fainted out of nowhere and it was very similar. But I often "faint" or black out(but only for a few seconds) after standing up and it is very different, for me I loose vision, get really hot, all of my body tingles, and at this point I get a HORRIBLE headache, then my legs seem to wiggle😅 and I fall down (sometime I can sit before this happens but it happens so fast it is unlikely) then I lay on the ground for about a minute with a horrible headache and it all over. Although afterwards I feel pretty crappy. This video was so extremely helpful and informational thank you so much! I actually found out I had PITS through watching you and seeing that many symptoms matched up. Thank you again!
Hey Jen!! Love your videos! I don't have any of the illnesses that you have hahahaha but I found them so interesting, you do a GREAT job explaining, don't worry about that! (Actually, I have one thing to ask, if you'd consider putting the medical terms written on the screen, so we can understand better. English is not my first language, so it's hard to get them by just listening) I'd love if you talked more about your mental health... Seriously, you're so so strong, I admire you so much, your story is amazing. I would love to know how you overcame, and still fight depression, anxiety, PTSD, etc... Thanks for sharing your battles with us ♥
I'm looking forward to watching this video to hear what fainting feels like to you. For me, fainting comes from HBP meds and standing up too fast. I would describe it like everything stops working. From what I can piece together, I can feel a faint about to happen, I have about 3 seconds to get to a chair. I can see the chair, I reach for the chair, then my body fails. Things go black, but in my mind's eye I still see the chair, but my body has stopped functioning and I collapse where I am. What's funny is that when I wake up a few seconds later, I feel rested if I have not hit anything.
I get so excited when you post girl!!! Hope you and the Family are doing so so good!!! Much love from Florida ❤️ Girl I live in Florida and I have actually ran from A bear 🤣🤣🤣 but later my dad told me that he would have not hurt me, we were camping at the time, that was funny when you said that!!!
I really appreciate you sharing your experiences. I have figured out because of you that I have migraines with aura. I had no clue what the brain fog was from. it was scary. Thank you
Thank you so much for your videos, nobody has ever took my migraines seriously, or understood why sometimes I& felt like being me but with most of the brain unplugged. Since we found your videos, we've mesured that we have migraines almost 70% of the days and we'll be able to talk about it to some doctor. On the topic of this video: I& had never heard anyone talk about browning out before, doctors always ask "did you pass out" and don't really get that you can fight it and it's not a binary thing, so thank you, we feel much less alone! Don't know about wet towels but cold hand on the forehead helps us stay connected to reality when about to pass out.
Thanks Jen, always love watching your videos! And it never feels like you're rambling so don't worry about that! 😁 You mentionned your diet a few times, saying that it's very regular yet you don't meal prep/cook too much because of your conditions. I'd be very curious to learn more about your eating habits!
I want to say thank you for your tangent on being chronically ill and the mental health struggles that come with it. I started getting migraines at the end of 2017, my junior year of high school and by the end of 2018, they had progressed to being chronic. Now I'm 19, turning 20, all of my friends are off at college, on missions for their church, getting married, and overall just getting started with their life while I've been majorly struggling with my mental health and just surviving day to day with migraine days more than half of the time, headache days the rest of the time. Then recently I've been trying to kick depression and anxiety by actually doing things and it's made so that 90% of the time I have a horrible migraine and headache days are becoming a rarity. Your channel has given me some hope for the future and also just it's so nice to hear that I'm not alone with the mental health struggles that come with being chronically ill. Sorry that none of this comment is about pots, I've been watching all your videos and your tangent just hit me haha. I would love to hear more videos on battling mental health struggles or just mental health and chronic illness in general if you're comfortable with it!
I don't have any sort of diagnosed conditions like you've mentioned, so if I nearly or fully pass out it's usually due to some combination of anxiety and pain for me. The first time I nearly passed out I had just gotten a cortisone shot, got out to the waiting room, and it sounded like I had sand running in my ears. Didn't know what was happening, so I stood up to pay, and when she handed me my change I couldn't find my pocket so I dropped it all over the floor. Thankfully, she realized what was happening so she sat me down and got me a soda. My mum was right in front of me, but at that point I'd also lost vision (it looked like a checkered picnic table) so if I stared hard enough I could just BARELY make out her outline. She said I had a thousand yard stare going on. Haha. Thankfully sitting down and getting some sugar in me helped. I have a similar reaction when I get a piercing or tattoo as well, and that used to be the case for any shot, but that's been better recently, which I think may be due to much-needed weight gain. Anyway, the one time I fully passed out was 100% due to pain. I'd slipped on a ice cube and landed on tile in a seated position. It took me about 10 minutes to get up from the floor and sit in a chair, and then it was a few minutes after that that I finally passed out. Right before it happened, my limbs started getting tingly, and that can also happen when I hyperventilate so I was just trying to stay calm and breathe normally. When I realized that wasn't working and that I wasn't anxious, it dawned on me that I was about to pass out so I said to the person near me "I feel like I'm about to pass out", then I proceeded to do so....I was out for just about 10 seconds with my eyes open staring at everyone (I was at work), felt okay afterwards, and then we got up and went to the hospital. Haha.
I can relate to some of these.. the sand running in your ears. I think I've only fainted due to emotional things like the first time i got needle or becuase once I stood up to quicky and my mom caught me. Though worst feel one I didnt actually faint, i was having a miscarriage and I got hit with shock and and was VY nausous (threw up twice) and felt like my head was full of static-- checkboard type thing. I can't imagine whag it would be like if that was a regular thinf
@@silverdeer2515 oof, yeah that sounds rough. Agreed, I'd rather just fully faint than almost faint and then not. Oh, forgot to mention, I also get REALLY hot when I'm about to pass out, so if I'm going to something I think might trigger it (like getting a shot) I bring a little handheld fan (it's actually a frisbee, but it folds up small and works great).
Okay. I've been diagnosed with dysautonomia but I have polycystic ovarian syndrome which is a pituitary gland problem. I also have orthostatic hypotension. My heart rate, blood pressure, temperature regulation, and breathing are all sometimes irregular. I was on a blood pressure medication to control it when it went too high, but I'd have blood pressures as low as 80/40 some mornings. I'm much better on a heart rate regulator (keeping it from going too high) to indirectly control my blood pressure. You explain fainting really well but I dont have very much time for a warning. Sometimes only enough time to slide to the floor and lie down. I actually did pass out Monday morning and hit the bathroom floor from standing. All of this is so very confusing and difficult to figure out so I really appreciate you sharing your experience here. Sorry for the rambling, I'm trying to figure it all out too.
Jen, I have had migraines and cluster headaches since I was diagnosed at age 5. I’m 52 now and also have hemiplegic migraines or complex migraines too. They all suck but I also have major anxiety (which is typical for a migrainer) but I have bipolar disorder. Funny but I don’t have the depression part of that much just only when my chronic migraines are lasting 20+ days a month (which is very often). I have PTSD after my ex husband abused me and our kids and even though it’s been 17 years since I fled from him I still get the jumpy reactions all the time. (Like when my dog barks suddenly, which he doesn’t very often , or when a balloon pops, any loud sudden noise makes me jump and kind of freak out. My psychiatrist said it will never go away but it will get better. Anyway, watching your videos is like my personal support system because although chronic migraines are so prominent in the population, there just isn’t support groups or simply anything out there because sadly most people think “oh you just gave a headache “. News flash... you don’t necessarily always have head pain when you have migraines. People just don’t know and don’t get it. I haven’t been able to work since may 2014 because I started with the hemiplegic/complex migraines and it happened so often it scared me to death. Unfortunately, the federal government hasn’t awarded my disability claim yet but hopefully with my new lawyer I’ll get it this year. I have extremely high blood pressure on a constant basis, was diagnosed at age 16 but in October I had my last hemiplegic migraine attack and my blood pressure was down so far that once again, my neurologist admitted me for 3 days. By the third day I was back on my BP meds because it had spiked by the second day. I didn’t feel like anything was really wrong, however it was during the hemiplegic attack so I wasn’t fully aware of what actual body parts were not working right during them. I have such intense stroke like symptoms, and I’m at super high risk for strokes because of my BP plus I have pulmonary embolisms in both lungs so they admit me each time. Anyway... I have to avoid so many foods because of my migraines. I haven’t eaten cheese since I was 9, haven’t drank alcohol in 15 years and can NOT be around anyone who wears strong perfume. Sadly, my mom does but she’s doing better with now thank God. I really appreciate your videos and can so relate to them. It’s also nice to watch your videos of Buddy and brings happiness to know there’s that kind of help out there for you and others like you. He’s so fun to watch too! I hope you have been doing well with your migraines and POTTS attacks since you’ve had your adorable baby girl. You look amazing. Hopefully any post pardum issues were minor for you. Keep up the great work! I’ll keep watching! Thanks for keep doing the videos even after baby girl came. Thanks again! Cheers, Susan.
Thanks for watching, I love you guys 😭 Please reply with your requests for future video topics!
More videos related to migraines:) also talking about experiences with doctors and how you advocate for yourself would be interesting!
I left a longer post below on other stuff.... but How does migraine Jen deal with the baby? How much & what kinds of things can Migraine Jen do with her? Also since your diagnosis's are all relatively recent & I "assume" you bought the 2 story house before knowing ALL you do now.... have y'all considered getting a 1 story to eliminate you having to deal with the stairs? This may be too personal?? And I know it's easier to get more space with a 2 story... so might not be the best choice overall? (also bigger backyard for baby & Buddy usually with 2 story) 🥰
Migraines & Panic disorder are my two biggest...Oh! and Conversion Disorder (most doctor's no nothing of & psychiatrist don't want to talk about, lol)...Anyway, I too have a Service Dog, he is a Blessing!!! I know Buddy is a Blessing to you as well!!!....You do have a lot to deal with & I admire your pleasant, funny way of handling it!!!
I would love to see a video on you and you baby (: and how you take care her with a migraine. I was also wondering how the ginger is helping so far with migraines. Thanks for this video!!
@@SR-pc4xk Jen has been posting great results about the ginger on her IG stories. You should subscribe over there for daily info!
When you mention knowing the difference between anxiety/panic attacks and POTS symptoms...that is exactly what I told relatives and healthcare workers. I literally said, "I've dealt with and managed anxiety almost all my life...this is not the same thing."
YES. EXACTLY!
Yes! I have done this!
Omg I've said the same thing. So frustrating when they look at you like it's just anxiety.
10000%!!
I feel you guys. I don’t have POTS, but I have anxiety. I already see how different they are.
I’ve been in my diagnosis journey for about a year and a half now and we could not figure out why I was “falling asleep” almost every day doing different activities. I come from an active background and also got a D1 scholarship so the question was why was I “falling asleep” so often. I quit athletics and moved home (this was my choice and I am way happier because of it). I had sleep apnea and narcolepsy tests all came back normal. Bloodwork is always normal also. I recently figured out that when I’m “falling asleep” that my heart rate is through the roof. I was just able to get into a cardiologist and now have a heart monitor test and a tilt table. Your explanation of browning out is exactly what happens! I’m so happy you explained it this way I’m literally in tears. Thank you so much! I usually watch you videos because my migraines are similar to yours but wow thank you so much for explaining it the way that you do! I am going to share this with my family because finally someone else feels the way that I do. Also my SD Stormie (I sent you a picture on Instagram) was sad that Buddy’s presents was not in this video.
I always have such a hard time explaining to people what it’s like to have POTS and to faint, so THANK YOU! 😁
ETA: Yes to the cold wet wash cloth. I’ve noticed it works better for me if I put it on the back of my neck vs. my forehead. They also make things that are like hand warmers, where you break a package (like a glow stick), and it immediately becomes cold and you can hold it against you. I’ve seen them in hospitals and at Walmart.
Oh my god I’ve GOTTA try that with the washcloth!! And yeah I’ve gotta hard time explaining pots to people too but sometimes it’s me being bad at explaining and other times it’s other people like my managers who dosnt give two craps if I’ve gotta sit because as long as I have feet I can work. But oh my gosh I’ve gotta give that washcloth a shot!! That sounds so refreshing!
I am absolutely going to try those instant cold things for my migraines! Thank you!!!
Yes, absolutely.... back of neck. I feel like my body is on fire inside when im overheating. Half more pores dont open or sweat much. Its so weird... the side of my face that doesn't sweat... there are these "salts" .... sometimes grainy or powdery, but still grainy, they come out the pores over my right eyebrow. I really wish i could affort to collect and test this stuff that comes out my pores? 🤷🏻♀️
I usually keep some instant cold packs in the trunk of my car. When I'm not home it's not like I can grab one from my freezer.
"Or your running from a bear... causes weve all been in that situation" XD I love that!
IKR I must have looped that 3 seconds like 8 or 9 times just rofl. 🤣 Man I love what Jen comes up with or the beating up a lion.
ive ran from a bear and have pots, feels the same...lol
@@marylynn9975 really? That's so crazy. Hoping the bear thing was a one time only ordeal
@@lishy_jan_2381 yeah. we just needed to get out of his berry and mushroom patch..lol i do go armed with a large load, just dont use it unless i have to.i like my critters.saw 2 bears this week. an elk charge is scarier and the cougars are worse..i use medical mushrooms that i harvest to help the POTS symptoms. lions mane for nero cell growth and reishe for the anemia and powered matcha for blood ox.. it works well enough id risk the bears to get it. i stopped going faint from low red cells..still pass out but not the slow decent,yawning, fuzzy face and arm loss.lol i still get super stupid if im on my feet to long..
My faints are very similar to yours! My husband and I call "browning out" my "limp noodle stage" because I my whole body goes completely limp. LOL! Thanks for creating such a relatable video & for being so open and honest!
When I realized that it was just my body malfunctioning and not my brain and things I was afraid of or actually having something to be worried about it really helped and my mental health improved dramatically.
The explains exactly what I’ve felt for so long... I’ve had “seizure-like” episodes since I was 16 and I’ve had doctors constantly telling me it’s all in my head. It helps to see someone else having the same things I have. It Gives me hope that the right doctor will help me soon!!
I've been having seizures for about 3 years now. They have just recently, as of last August, officially diagnosed me with Psychogenic non-epileptic seizures. According to my neurologist, it's all psych related that has gone untreated for too long and is now physical. But I have muscular tension dysphonia, complex regional pain syndrome in my right knee, bursitis in my left hip, herniated and degenerative discs in my lumbar spine, 2 brain tumors, and chronic migraines, in addition to my mental health conditions that I have been in therapy for, for years now. But because of those it was automatically it is anxiety and stress. Just talk to a therapist. I know my anxiety and stress, is not the same.
I hope you have found some answers in the last two years @gloryabelonie3839.
I'm a therapist and your right about the struggles that people with chronic health problems deal with!! I work with people who are medically complex and we're human beings with bodies and things happen to them. You are very brave in sharing your story!!! Wish you and your family the best. Take care of yourself!!!
Browning out! This is the exact description of where my panic attacks take me. I end up on the floor, still conscious but I can't talk, or see or move my body. Scary. Definitely a brown feeling.
For me, I always feel so confused, both before it happens and especially afterwards. All I usually remember is starting to feel really out of it and not being able to see properly, and then I wake up super confused
I don't have POTS or the other things you mentioned, but this was very educational. Thank you for this. 😊❤
I am getting married in a month and have been sending your videos to my fiancée so he can understand my POTS!
Aww hope it helps strengthen your relationship. That's really heartwarming.
Thank you for doing what you do.. I recently was diagnosed with POTS and gastroperesis, I completely understand how it is and because of you I don’t cry so much.. I don’t feel so alone in this world with all these crazy things going on. Like you my husband was so scared to leave me at home, so you inspired us to get a service dog.. with the help of my doctors and husband we are getting her tomorrow. After a lot ALOT of research and training studying we decided to go with a Great Dane and start her as a puppy.. was so excited and tonight find myself nervous scared then I passed out and hubby says yep this is why your getting your pup.. :)
Thanks Jen for everything keep up the fantastic work. As much as I watch your videos your like family to us and your deff NOT ALONE.. :)
I assumed your experiences would be very different from mine. But you described how it ALL feels so profoundly accurately its stunning. I can't believe our experiences are SO similar. I never would have been able to explain this so eloquently. This was amazing!!!
I just discovered your video and was enthusiastically nodding, gasping and sobbing at 3 in the morning watching it because I've been dealing with POTS for over 20 years and was only diagnosed a month ago. You have described so well what I have struggled to understand and share for all this time. We share so many symptoms and feelings and it has been a whole thing of family, friends, DRs and even myself gaslighting me over all of it until I didn't even believe it was worth talking about. You may never know how much it means to me to have found this video!! ❤️ Thank you!!
I feel like you deserve so many more subscribers than you have. I absolutely love your content and I come away each time feeling like I learned something or at least understand something further. Thank you for being you
Exactly! Her channel has more than doubled in subscribers in the last 2 months. I predict she will hit 100K at least by the end of the year! (who knows.... it could be more!) She had 8K when I started watching at the beginning of December.
I am just starting to deal with all of this. I was recently diagnosed with Pots. I have stage 2 CHF already. I'm 38 and I wasn't expecting this to be my life. I am having chronic migrains aswell and my insurance is a mess. I just wanted to thank you because its nice to hear someone else talk about the things I am learning to deal with.
A wet wash cloth on your chest can help. I learned that from a nurse while donating blood and it definitely helped to prevent a faint during the procedure.
I've not heard anyone outside of my narcolepsy groups describe the feeling of waking up in the middle of REM! It's the worst! So glad to hear that other people actually do understand that feeling
I just turned 21 and I share multiple conditions with you. My migraines were also classic for years and then turned to complex vestibular migraines just over a year ago. I was one semester away from finishing college and I had to stop and quit working my dream job. Finding your channel months ago has been so helpful for my mental health and feeling less alone. So thank you for sharing.
When u said you 20k family... YOUR CHANNEL TOOK OFF! Feels like only yesterday I subbed at 1.69k Congratulations!!!
Thank you for being so open about your medical issues. I wish nobody had to go through anything like what you describe. I know how fainting feels and what my migraines feel like. When I was in my early teens, I blacked out. I could walk and talk and hear everything going on. I just couldn't see for a couple minutes. My doctor didn't know what happened. Never happened again.
You described pots to the T! One of my least “favorite” conditions.. so much that goes into it and so many symptoms. Thank you for making your vlogs!! They have helped me reach out to my Neuro about my migraines. On the road to figuring out what meds work best. 🤞
Thank you for all you do! I’m getting ready to go to cardiology in a month or so for my diagnosis finally for POTS. I feel like I’ve had so many similar struggles to you, and you’re so right that a POTS attack is NOT an anxiety attack. My resting hr is usually in the low 60s but I had one day where I couldn’t get it below the 90s. I was told to just stop paying attention to it and it would go down because I was just making my anxiety worse... I also never thought to track the relation to my POTS with my migraines, but I feel like after a bad migraine the next few days I’m stuck in bed due to tachycardia if I get up. Things for me to think about. You’re awesome, Jen! And so not alone.
For me, fainting when I have a trigger like getting my blood taken feels like a massive *whoosh* in my ears, almost like holding up sound cancelling seashells up to my ears. Then everything starts going black creeping in as a vignette around my vision as it feels like I'm falling backwards, even if I'm already laying down! I think the visual from "Get Out" when he falls into the sunken place is actually a good way of describing what it feels like for me.
I had this happen to me today for the first time! I haven’t been able to find a way to describe it, it was so scary. My body never collapsed but my vision ended up going completely black and I had to sit down.
Thank you so much for sharing. I have complex partial seizures, no convulsions, but faints exactly like you describe. I hate waking up or coming out of it and being angry that I “let “ it happen again as if I had control.🤨 love ❤️ you and your channel. You are a beautiful, intelligent, and compassionate woman. 👏🥰
I have to say this again, but you are amazing with how you deal with this. I'm just dislexic and that is a huge struggle on me but... Ah, I'm crying.. you're amazing with how you deal with this!
I am perfectly healthy but watch your channel. Good info for us who may come upon someone who is exhibiting your symptoms. We can watch closely, but not intrusively in case you need help.
I am learning a lot from your channel, and I am thanking God for the learning experience! Thank you, Jenn and Buddy!
My life has been turned upside down last December. I kept passing out always having a brain fog, absolute fatigue. Went back on my anti anxiety meds and started to feel much better, thinking that it was all stress related. Recently i just had a tilt table test done and passed out pretty hard. Like I was dreaming when I passed out. So now they have me on a heart monitor for 30 days and a blood pressure meds to see how I do. I have never been so confused ever like this in my life, but seeing your videos have been giving me a better out look on my symptoms. Thank you for posting and being open about your health. I keep looking forward in seeing your weekly videos. :)
I get all the way to 'browning out' but don't ever fully faint. Instead, if I get to that point, I end up falling asleep for several hours.
My husband and I watch your videos together and he is always saying "yep" when you say things. It is crazy how many times you describe things or scenarios we have dealt with on my POTS journey! I am SO GLAD you are sharing all of this because you are so much better at explaining things than I am!
Don't think you just ramble. You actually share a lot of information that can help a lot of people when you 'ramble'. Call it bonus information! 😄👍
I had my first more serious browning out today. Luckily I watched this video last week as I've been researching POTS while going through the diagnosis process. I just wanted to comment and say thank you so so so much. Thanks you you and the videos you've made, whilst it was an unpleasant experience I wasn't scared because I knew sort of what to expect and things to help so I cannot say thank you enough for taking a lot of the fear away during this diagnosis process!
I was dealing with POTS for almost two decades before I was finally diagnosed! I had been to every specialist out there and had all of them either try to diagnose individual symptoms or tell me I am just too overweight and need to exercise more! Those situations can be both demoralizing and frustrating. I am SO glad I trusted my body and didn't run on a treadmill pushing through the pain as several doctors recommended!
Now I always make sure any new doctor, regardless of specialty, knows about POTS before I see them.
My migraines have been more frequent in the last few months and your videos have helped me so much! I was recently put on bloodpressure medication to try and see if that could help lessen the frequency, after having 22 migraine attacks in january. My normal bloodpressure is 110/70 so my system could not handle the medication, and I came very close to fainting. I am now off the medication. Your video of you fainting meant that I could keep calm and take the neccesary precautions. So thank you for both the entertainment and the knowledge you share. Hugs from Denmark 😀
Great to hear your story and what it feels like for you. I have a surgestive diagnosis of POTS, but from the tilt table test my Blood pressure dropped very low. So people are saying OH but doctor has says Pots. Great to hear your side of things. Since the diagnosis has taken forever my parents tell me it can't be that serious if it took this long to diagnosed. Which upsets me a bit. But great to hear other stories and know im not alone. I haven't fully fainted (like blacked out) but I have got closed especially after baths and showers and I find my tongue goes numb and tingly first then it's spread throughout the head and heart palipations as well plus a lot of what you said. Thanks again for sharing :)
Depression and anxiety are brutal, I've struggled with that for way longer than I even can admit to myself... but your videos give me hope. One step at a time, we're with you.
There's always hope 🙏 thanks for being here and sending warm fuzzies
Yes! I can totally relate. Even with some of the mental health aspects. I love how you explained the relation with illness and mental health. And I think you did a wonderful job explaining what it's like to faint.
I have POTS and chronic migraines and love watching your channel. I learn more from you about migraines then from my doctors who tell me nothing which can be scary. You're amazing 💖 also the cool wet washcloth helps me either on my face or back of neck
I’ve only been watching you for a few months but I’m just absolutely amazed by you. 🥺You go through a lot it seems like and you’re staying so strong. I’ve very worried as soon I have to go have Tilt table test done on me to see what’s causing my fainting spells
I get migraines. Have for 35+years. I have identified several triggers causing my migraines. I get some of the same feelings, the fog, can't talk, etc. Keep being you.
You have no idea how good it feels to know someone else gets extreme confusion with POTS too. Thank you
It seems common! Thanks for sharing that you get it too!
Young, beautiful lady - you are absolutely amazing! Thank you for sharing such helpful but extremely personal information. xx
I was just diagnosed with tachycardia. I’m terrified. It’s nice to see your videos. It makes me feel not so alone
Fantastic upload! They should teach the importance of mental health in schools. Keep it up!
♥️♥️♥️Thank you very much for your honesty. I have two illnesses called hypophysis insufficiancy and asthma. It's hard to live with life changing illnesses. ♥️♥️♥️
Thank you for trying to explain POTS and telling your story of chronic migraine.
In my situation, my chronic migraines were diagnosed so much more quickly than my daughter being diagnosed with POTS. No one knows what POTS is and always hard to explain.
And yes, my daughter says a cold wet wash cloth helps so much!
You are amazing for so many reasons. From sharing info to making others feel less alone to your humor!
Wow, thank you!
My faints are similar to this with the addition of right before I faint I get an almost 'out of body experience' feeling. Not sure if it's just because like you said, the control you have over your limbs and body is pretty limited when you're about to faint. Thank you for being so open about these things - proud to be one of your great big YT family!
That's super interesting. Happy to have you here! 😊
I dont faint, i am really glad about it! But i have daily migraines for more than 10 years (i am 29). Your channel helps me a lot, because for years it felt like i was totally alone with this (didnt help that several neurologists told me that daily migraines do not exist). I have a wonderful and caring husband, but it can still be very hard mentally. You are so strong! I was not brave enough yet to get pregnant, i am so scared i wont be able to take care of my own children. I admire you for taking this step and it really gives me hope that i can do it too! Thanks for being so open on this channel, i bet it is not easy, but i does help so much ♡
It means so much that I gave you some hope! Thank you. You've got this. Wishing you all the best 💜
Thank you for sharing and opening up that you live with mental health issues ♥️
I can only imagine how that opens you up to horrid people and their comments but those of us that follow you appreciate you and your experiences ♥️
Thank you for opening up about mental health. It’s completely understandable that it would be a difficult topic, and I’m sorry that you’ve been through so much. I hope that you continue to be gentle with yourself and give yourself permission to share as much of as little as you want. I hope too that everyone here continues to be kind to you. Comments can be rough places, and I hope no one is cruel to you because of your experiences with mental and physical illness.
My mother has similar symptoms to these but they diagnosed her with Lupus. It's nice to have a better understanding of how bad her migraines could actually be now!
I have seizures and I get asked a lot what it feels like. It is so hard to describe. Greatly appreciate this video
I'd be so curious to know. Glad you liked it!
Blessings sweet soul. You explained it perfectly. Im going too save this too share with close friends and family.
I think you explained it quite well. When I faint I see a rushing white water rapids. Luckily it’s not too often, maybe a few times a year.
Thank you for bringing awareness to POTS. I was diagnosed with it 2 years ago and it is hell.
We love your rambly little channel 😁 I'm learning a lot, and it's not like your tangents aren't relevant. Your content has helped me understand some of the people in my life better who share some of your conditions.
Awwwwwww thank you 😊
Yeah I don't know how it works, but I have been diagnosed with both orthostatic hypotension 10 years ago by a cardiologist, to now being diagnosed with pots by a cardiac electrophysiologist. The exhaustion from pots can be brutal. I think you did a great job of explaining this. It is a hard thing to explain things like this to people that have never passed out.
The symptoms all overlap so much! Thanks for the feedback 💜
Thank you!!!!! I have had vestibular migraines for years and during my last recovery I discovered you and am now your #1 fan. I also experience heart issues, changes in blood pressure but because I don't faint only nearly faint Dr said it was only vertigo issues because its always during or after a migraine attack but now with her help I will push to explore POTS. Merci!!!!!
You're welcome! This means so much ❤ fingers are crossed for you
A cold wash cloth definitely help before going out and coming back to the world. I find even putting it on your legs like under your calf’s helps a lot and it’s easy to keep it there if it’s a bigger cloth and your SD Does DPT too. Thankyou for being so brave and making the world not as scary knowing we’re all not alone.
Thank you for the tips 💜 you're very welcome
I had palpitations in my 20’s and 30’s. I’m in menopause now and I don’t get them. So happy. I to have persistent depression and I have had panic attacks. No, they are not the same as a POTS attack
I'm here...just to show I care, I want to learn, I want to understand, and to help take on some of that mental load for you. I'm only just starting to take more notice of my migraines and figure out the why. You've encouraged me to take more control of my health. You are not alone *hugs*
💜💜💜 hugs, thank you
As always, Jen, thank you for your vulnerability and willingness to be so open. More and more research shows that our mental health and physical health are very connected-so it's totally understandable that have chronic illnesses affect your mental health.
Thank you 💜 and thankfully the discussion has become so normalized!
I am currently in the process of seeing a cardiologist and will be having a tilt test soon. I am currently wearing a holter monitor and soon will have a echocardiogram. You are describing my life. I havent fully past out yet but I have been really close. My symptoms are so crazy. Your videos are so helpful. Thank you for sharing. I've been a mystery to the Dr.s and have been marked as someone who has anxiety. 🙄
It feels a little wrong getting excited about your videos considering they are all about your chronic illness. However, I truly enjoy and look forward to your videos! I don't have POTS or migraines but I do have Spina Bifida. I completely understand disability and mental health issues. Stay encouraged girl!
I get what you mean! But you know I'm so glad you enjoy them 😘 Thanks!
I just came across your video!! Wow I get chronic migraines myself. I do not faint. But so many things you said do happen to me. Bits and pieces. But I don't faint. I love this video. I can't wait to see next week's. I don't know what triggers my migrains. I have had them even as a little child. Oh I was so sick then to.
You made me feel so much better to know it not just in my head and i do feel alone.
I did have to get counselling for the anxiety.
The migraine a lot, nausea too.
I spend 22hours in bed
Cause of ME and Fibromyalgia the pot symptoms and FND.
I feel like I am hit by a bus everyday, but even more worst when I faint.
Noise is so bad I have to wear ear plugs and defenders or it triggers me in many ways.
Everything you said is all on point.
I can’t believe it.
Thank you so much.
You are an amazing woman!!! I can’t imagine how hard everyday can be
It's... tiring 😩
I've been fainting since I was 11 and can relate to alot of what you go through. I now know that I have hypermobile Ehlers-Danlos Syndrome and some other co-morbidities. When I was little it became a race to the bathroom to splash cold water on my face, and that would stop the faint if I could do it in time. Unfortunately, I was warned that the bathroom has the most hard and dangerous surfaces to hit your head on. A cold washcloth feels sooooo good! As an adult, putting an icepack on the back of my neck or elsewhere can delay a faint or turn it into a pre-syncopal event instead of a full syncope. Man, I have shed a few tears as I listen to someone else (you) telling exerpts from my horror story life. So sorry you have to live with this also, but glad you seem to have a great support system. Good luck on your journey!
Wet wash cloth: yes it has been an amazing help for fainting...
Thank you so much for these videos!!
Thanks and you're welcome!
I remember when I had low blood sugar and I just lost my vision completely and I remember being light-headed but not idk it was fun. I feel light-headed everyday but thankfully I never faint
Try dryer sheets for the hair static
You gave some wonderful examples that we can all relate to. That was very helpful in understanding! (but I have never heard you mention "Ear bombs" before...? curious on that one) I am in awe of how you deal with all of this. Question: IF you wanted to... can you exercise? play tennis? swim? etc..? (that may be too deep & need a different video?) ok.. static in your hair: if more/deeper conditioner doesn't help, you can always try rubbing a dryer sheet over your hair before a video if it bothers you. (or lightly spritzing your hairbrush with water) *OH.. maybe putting a bottle in your basket that sprays water would help!?* You would have it handy & could also use it to pour water on a washrag in the basket as needed for fainting spells.... (side note: I don't think anyone noticed the static in your hair till you mentioned it. LOL) 😊 edit: The spray water bottle thought came to me AFTER the "static" issue. I don't expect you to spray your hair. LOL🤣
I suffer from panic disorder/panic attacks/anxiety and depression. All that fun stuff. The first time I ever experienced a panic attack it pulled me out of sleep and I felt like I was having a heart attack. I had a lot of the symptoms you mentioned... racing heart, clammy, dizzy, brain fog, I would feel like I’m going to faint (an out of body feeling) and sometimes get nauseous.
I also have a service dog. She performs deep pressure therapy on me when I need her to because what can make it worse is the pacing I feel like I need to do in order to keep myself from fainting. I don’t have them as much as I did in the past only because I’m not scared of them and know how to calm myself before it gets too bad. There are times I am not so lucky.
Loved this video! Have a great weekend! ❤️
Thanks for sharing AND for being there for us! I hope you know that you are not alone.
💜 thank you!
I would love to hear about your mental health journey. I'm currently struggling through an anxiety disorder (with a therapist and soon a psychiatrist) and I would love hearing about the tips and tricks you use to get yourself out of your depression and anxiety loops.
My service dog licks my face ferociously until I come back to. She literally French kisses me! 😂😢
You are so sweet, funny and informative at the same time. I love watching your videos. Thank you for sharing your story ♥️
Can you do a series of videos explain haw you trained Buddy
Hi, I'm new to your channel. I suffer with epilepsy and straight after coming around I get a migraine. I know how you feel it is horrible and it's the part where some people actually dont know what it feels like and what you we have to go threw in our daily lives. Sending hugs and kisses. Xx
Thank you for sharing this. My faints are pretty similar. But diffremt at the same time. Being someone with migranes and believed to have pots i understand how the symptoms very. Also to answer your wash cloth video for me it helps a lot. Unless I'm having cold sweats before I go out.
its great learning about these kinds of conditions I am a nurse and this is extremely helpful, I also know what it is like living with a weird condition I have crohns and glaucoma but also medically diagnosed low blood pressure and a postural drop when going from laying to sitting and sitting to standing, there has been heaps of times i have landed straight on my face from getting up to quick which is really dangerous so your tips on getting ready for a faint are super helpful Thanks so much for making these awesome videos
I was diagnosed with supraventricular tachycardia and I will blackout if can't squat down and change position...not easy to do if your driving!
Thank you for sharing! I just realized that this sounds like the symptoms I've had too. Never been tested for POTS. I've been told it's "just" a panic attack. 😑
Oh my goodness! I've had this a few times. It happens about once or twice a year now. I switched to "my blood type" diet and it helped a lot. Thank you for helping not feel alone. I'm so sorry this happens to you a lot. I say it feels like dying. The sinking feeling, weakness, & the body changes hot/cold clamy, & pain the fading away. To me that it what I imagine dying feels like.
Thank you for sharing! I just recently started watching your videos and they're very helpful to me to see what other people's symptoms to POTS are. I went to a neurologist years ago and they told me I might have dysautonomia, but that was all they did for me. They didn't explain anything about what that meant or what I could do for myself or even what type of dysautonomia I might have. So I've been on my own for the past 3 or 4 years in that respect and I aged out of my parent's insurance right around that time as well. So now, I am working on getting back in to see a different neurologist and possibly even a specialist to see what I can do because it effects my everyday life.
It's so frustrating how much we are left on our own to figure this stuff out 😕 hope you find a great doc!
I was just recently(very recently) diagnosed with POTS and my faints are different but kinda similar. I have only had one time where I fainted out of nowhere and it was very similar. But I often "faint" or black out(but only for a few seconds) after standing up and it is very different, for me I loose vision, get really hot, all of my body tingles, and at this point I get a HORRIBLE headache, then my legs seem to wiggle😅 and I fall down (sometime I can sit before this happens but it happens so fast it is unlikely) then I lay on the ground for about a minute with a horrible headache and it all over. Although afterwards I feel pretty crappy. This video was so extremely helpful and informational thank you so much! I actually found out I had PITS through watching you and seeing that many symptoms matched up. Thank you again!
Hey Jen!! Love your videos! I don't have any of the illnesses that you have hahahaha but I found them so interesting, you do a GREAT job explaining, don't worry about that!
(Actually, I have one thing to ask, if you'd consider putting the medical terms written on the screen, so we can understand better. English is not my first language, so it's hard to get them by just listening)
I'd love if you talked more about your mental health... Seriously, you're so so strong, I admire you so much, your story is amazing. I would love to know how you overcame, and still fight depression, anxiety, PTSD, etc...
Thanks for sharing your battles with us ♥
Love it! Thanks for that feedback. I have actually planned to do that on a few of my recent videos... but I always run out of time!! 😂
I'm looking forward to watching this video to hear what fainting feels like to you. For me, fainting comes from HBP meds and standing up too fast. I would describe it like everything stops working. From what I can piece together, I can feel a faint about to happen, I have about 3 seconds to get to a chair. I can see the chair, I reach for the chair, then my body fails. Things go black, but in my mind's eye I still see the chair, but my body has stopped functioning and I collapse where I am. What's funny is that when I wake up a few seconds later, I feel rested if I have not hit anything.
Wow you explain things super clearly!!
I get so excited when you post girl!!! Hope you and the Family are doing so so good!!! Much love from Florida ❤️ Girl I live in Florida and I have actually ran from A bear 🤣🤣🤣 but later my dad told me that he would have not hurt me, we were camping at the time, that was funny when you said that!!!
I really appreciate you sharing your experiences. I have figured out because of you that I have migraines with aura. I had no clue what the brain fog was from. it was scary. Thank you
"See this static? What do I do?" Stay grounded.
Thank you so much for your videos, nobody has ever took my migraines seriously, or understood why sometimes I& felt like being me but with most of the brain unplugged. Since we found your videos, we've mesured that we have migraines almost 70% of the days and we'll be able to talk about it to some doctor.
On the topic of this video: I& had never heard anyone talk about browning out before, doctors always ask "did you pass out" and don't really get that you can fight it and it's not a binary thing, so thank you, we feel much less alone! Don't know about wet towels but cold hand on the forehead helps us stay connected to reality when about to pass out.
Thanks Jen, always love watching your videos! And it never feels like you're rambling so don't worry about that! 😁
You mentionned your diet a few times, saying that it's very regular yet you don't meal prep/cook too much because of your conditions. I'd be very curious to learn more about your eating habits!
This video means so much to me.
Wish I could give you a hug in real life
@@MommingwithMigraine I would gladly accept all the hugs right now. 🙏🏼
I want to say thank you for your tangent on being chronically ill and the mental health struggles that come with it. I started getting migraines at the end of 2017, my junior year of high school and by the end of 2018, they had progressed to being chronic. Now I'm 19, turning 20, all of my friends are off at college, on missions for their church, getting married, and overall just getting started with their life while I've been majorly struggling with my mental health and just surviving day to day with migraine days more than half of the time, headache days the rest of the time. Then recently I've been trying to kick depression and anxiety by actually doing things and it's made so that 90% of the time I have a horrible migraine and headache days are becoming a rarity. Your channel has given me some hope for the future and also just it's so nice to hear that I'm not alone with the mental health struggles that come with being chronically ill. Sorry that none of this comment is about pots, I've been watching all your videos and your tangent just hit me haha. I would love to hear more videos on battling mental health struggles or just mental health and chronic illness in general if you're comfortable with it!
I don't have any sort of diagnosed conditions like you've mentioned, so if I nearly or fully pass out it's usually due to some combination of anxiety and pain for me. The first time I nearly passed out I had just gotten a cortisone shot, got out to the waiting room, and it sounded like I had sand running in my ears. Didn't know what was happening, so I stood up to pay, and when she handed me my change I couldn't find my pocket so I dropped it all over the floor. Thankfully, she realized what was happening so she sat me down and got me a soda. My mum was right in front of me, but at that point I'd also lost vision (it looked like a checkered picnic table) so if I stared hard enough I could just BARELY make out her outline. She said I had a thousand yard stare going on. Haha. Thankfully sitting down and getting some sugar in me helped. I have a similar reaction when I get a piercing or tattoo as well, and that used to be the case for any shot, but that's been better recently, which I think may be due to much-needed weight gain. Anyway, the one time I fully passed out was 100% due to pain. I'd slipped on a ice cube and landed on tile in a seated position. It took me about 10 minutes to get up from the floor and sit in a chair, and then it was a few minutes after that that I finally passed out. Right before it happened, my limbs started getting tingly, and that can also happen when I hyperventilate so I was just trying to stay calm and breathe normally. When I realized that wasn't working and that I wasn't anxious, it dawned on me that I was about to pass out so I said to the person near me "I feel like I'm about to pass out", then I proceeded to do so....I was out for just about 10 seconds with my eyes open staring at everyone (I was at work), felt okay afterwards, and then we got up and went to the hospital. Haha.
I can relate to some of these.. the sand running in your ears. I think I've only fainted due to emotional things like the first time i got needle or becuase once I stood up to quicky and my mom caught me. Though worst feel one I didnt actually faint, i was having a miscarriage and I got hit with shock and and was VY nausous (threw up twice) and felt like my head was full of static-- checkboard type thing. I can't imagine whag it would be like if that was a regular thinf
@@silverdeer2515 oof, yeah that sounds rough. Agreed, I'd rather just fully faint than almost faint and then not. Oh, forgot to mention, I also get REALLY hot when I'm about to pass out, so if I'm going to something I think might trigger it (like getting a shot) I bring a little handheld fan (it's actually a frisbee, but it folds up small and works great).
Okay. I've been diagnosed with dysautonomia but I have polycystic ovarian syndrome which is a pituitary gland problem. I also have orthostatic hypotension. My heart rate, blood pressure, temperature regulation, and breathing are all sometimes irregular. I was on a blood pressure medication to control it when it went too high, but I'd have blood pressures as low as 80/40 some mornings. I'm much better on a heart rate regulator (keeping it from going too high) to indirectly control my blood pressure. You explain fainting really well but I dont have very much time for a warning. Sometimes only enough time to slide to the floor and lie down. I actually did pass out Monday morning and hit the bathroom floor from standing. All of this is so very confusing and difficult to figure out so I really appreciate you sharing your experience here. Sorry for the rambling, I'm trying to figure it all out too.
I do not faint, I get terrible adrenaline surges that cause SVT and high blood pressure among other horrible symptoms. Thank you for sharing!
Jen, I have had migraines and cluster headaches since I was diagnosed at age 5. I’m 52 now and also have hemiplegic migraines or complex migraines too. They all suck but I also have major anxiety (which is typical for a migrainer) but I have bipolar disorder. Funny but I don’t have the depression part of that much just only when my chronic migraines are lasting 20+ days a month (which is very often). I have PTSD after my ex husband abused me and our kids and even though it’s been 17 years since I fled from him I still get the jumpy reactions all the time. (Like when my dog barks suddenly, which he doesn’t very often , or when a balloon pops, any loud sudden noise makes me jump and kind of freak out. My psychiatrist said it will never go away but it will get better. Anyway, watching your videos is like my personal support system because although chronic migraines are so prominent in the population, there just isn’t support groups or simply anything out there because sadly most people think “oh you just gave a headache “. News flash... you don’t necessarily always have head pain when you have migraines. People just don’t know and don’t get it. I haven’t been able to work since may 2014 because I started with the hemiplegic/complex migraines and it happened so often it scared me to death. Unfortunately, the federal government hasn’t awarded my disability claim yet but hopefully with my new lawyer I’ll get it this year. I have extremely high blood pressure on a constant basis, was diagnosed at age 16 but in October I had my last hemiplegic migraine attack and my blood pressure was down so far that once again, my neurologist admitted me for 3 days. By the third day I was back on my BP meds because it had spiked by the second day. I didn’t feel like anything was really wrong, however it was during the hemiplegic attack so I wasn’t fully aware of what actual body parts were not working right during them. I have such intense stroke like symptoms, and I’m at super high risk for strokes because of my BP plus I have pulmonary embolisms in both lungs so they admit me each time.
Anyway...
I have to avoid so many foods because of my migraines. I haven’t eaten cheese since I was 9, haven’t drank alcohol in 15 years and can NOT be around anyone who wears strong perfume. Sadly, my mom does but she’s doing better with now thank God.
I really appreciate your videos and can so relate to them. It’s also nice to watch your videos of Buddy and brings happiness to know there’s that kind of help out there for you and others like you. He’s so fun to watch too!
I hope you have been doing well with your migraines and POTTS attacks since you’ve had your adorable baby girl. You look amazing. Hopefully any post pardum issues were minor for you.
Keep up the great work! I’ll keep watching! Thanks for keep doing the videos even after baby girl came.
Thanks again!
Cheers,
Susan.