Thanks for your vid! I didn't know it was IBD awareness week last week. I was just diagnosed with small bowel Crohn's Disease in my duodenum and ileum almost a month ago. I've been on Prednisone for 3 weeks now. It's been a real weird journey for sure! I'm 38 and now, but I think I had my first flare 4 years ago. My Dad was also just diagnosed with Crohn's Disease. I really don't know what to expect! My Dad has had a bowel resection. I am scared of the treatment costs and of getting surgery someday, and I'm scared of more flares and the pain, crippling fatigue, fevers, nausea, and diarrhea. It sux a lot man! So thanks for sharing! It's good to know you are living your life fifteen years on. I hope to do the same!
Hey! I’m sorry to hear about your recent diagnosis. All kinds of emotions I know. The first few months can be tough as you figure out the best treatment plan and work to get things under control. Hoping that you and your doctor figure things out quickly and get you in remission. Also sorry to hear about your dad as well! My younger sister and mom were diagnosed a couple months after I was too! I guess things start to make sense for some family members when one person gets diagnosed and everyone has similar symptoms. Let me know if you have any questions or if I can support you in any way. I didn’t see your comment until now or I would’ve responded sooner!
@@AaronBlocker No worries at all! I have a stupid music channel where I play depressing music, haha, and I sometimes miss folks' comments for a little while too--and I mean sometimes a few weeks. Thanks so much for your reply! It's been a real roller coaster in so many ways: all the tests, the feelings, the doctor bills, the Predisone side effects haha. I felt like I was having a constant panic attack for like 2 weeks until I started tapering. I don't have many people I know who can relate so it's reassuring to see videos like yours! I don't know anyone else with Crohn's Disease but my Dad, and he's still just figuring things out. I feel bad for him because it went undiagnosed for so long he has strictures now. Thanks for sharing this--it's comforting.
Thanks for your vid! I didn't know it was IBD awareness week last week. I was just diagnosed with small bowel Crohn's Disease in my duodenum and ileum almost a month ago. I've been on Prednisone for 3 weeks now. It's been a real weird journey for sure! I'm 38 and now, but I think I had my first flare 4 years ago. My Dad was also just diagnosed with Crohn's Disease. I really don't know what to expect! My Dad has had a bowel resection. I am scared of the treatment costs and of getting surgery someday, and I'm scared of more flares and the pain, crippling fatigue, fevers, nausea, and diarrhea. It sux a lot man! So thanks for sharing! It's good to know you are living your life fifteen years on. I hope to do the same!
Hey! I’m sorry to hear about your recent diagnosis. All kinds of emotions I know. The first few months can be tough as you figure out the best treatment plan and work to get things under control. Hoping that you and your doctor figure things out quickly and get you in remission.
Also sorry to hear about your dad as well! My younger sister and mom were diagnosed a couple months after I was too! I guess things start to make sense for some family members when one person gets diagnosed and everyone has similar symptoms.
Let me know if you have any questions or if I can support you in any way. I didn’t see your comment until now or I would’ve responded sooner!
@@AaronBlocker No worries at all! I have a stupid music channel where I play depressing music, haha, and I sometimes miss folks' comments for a little while too--and I mean sometimes a few weeks. Thanks so much for your reply! It's been a real roller coaster in so many ways: all the tests, the feelings, the doctor bills, the Predisone side effects haha. I felt like I was having a constant panic attack for like 2 weeks until I started tapering. I don't have many people I know who can relate so it's reassuring to see videos like yours! I don't know anyone else with Crohn's Disease but my Dad, and he's still just figuring things out. I feel bad for him because it went undiagnosed for so long he has strictures now. Thanks for sharing this--it's comforting.