I was prescribed Ciprofloxacin for a non existent gut issues and I took it while I was tapering off benzodiazepine ,my life turned upside down from then on. I have terrifying panic attacks ,sleep issues , akathsia and I became depressed and suicidal. Now at a year and half ,my mental symptoms are a little better ( am on anti depressants and on stable dose of benzo just to keep myself alive) ,my physical disabilities gradually increase,now I can't walk at all and there are pains and numbness throughout my entire lower extremities and hands,I also developed some numbness on my left side of my head ,seems to me that has to do with nerve damages.
So sorry I'm just seeing this now and so sorry this happened to you! I hope you are feeling a bit better. Although medical doctors often don't understand this, it is still good to see both a rheumatologist and neurologist and get a full antibody panel as well as vitamin, iron and hormones checked. Mine seems to be autoimmune related (which I had prior to the Levaquin) but which got much worse. But we all have different things going on, but in almost all cases, people get better with time!
How long ago did you take it? I am glad that you are moving toward recovery. I do think this is something we can all recover from. But for some of us, it takes longer than others. I am a few weeks away from the three year mark, and my arms are about 60-70 better, but my legs still have a ways to go.
How are you nowadays ? I hope better . I was given Ciprofloxacin for a sinus infection in October 2020 it's been 7 months now and I have numb & heavy legs every single day all-day . Same feeling as you described feels like my legs are walking in cement . The worse is climbing steps . I'm also left with a head pressure and brain fog daily as well . I wonder if this will ever heal honestly . Sad part is I have a two year old girl who I can no longer be active with anymore due to this .
I'm sorry that you are going through this! For me, the cement feeling has gone away, but I'm still left with lots of achiness and get tired easily. In the beginning, I could barely walk across my apartment and now I can be on my feet for about an hour, hour and a half. So I'm much better, but not back to former self. That said, I have talked to many people with this, and most seem to get completely better within 12-18 months. I think when you are older ( I'm 50) recovery can take longer. You are still in early stages-so hopefully you will be better soon!
I have a theory (obviously not scientifically proven-just a theory) that some of us who have these symptoms might have gotten the neurological autoimmune disease Guilliane Barre Syndrome. About half my neurologists think I have that. It's doubtful that seven months out a doctor would be able to diagnose you with that- and doctors dont seem to only diagnose it when someone completely can't walk. Email me directly at jaynebigelsen@gmail.com if you would like to discuss. Wishing you a speedy recovery from now on!
@@overcoming-togetherbyjayne3857 thank you for the reply I definitely appreciate it . Sorry you had to go through this as well . I'm glad you're getting better . Have you taken any supplements ?
@@Myworldmymind908 I have done a lot of things: magnesium, Coq10, vitamins D and K, collagen, physical therapy, acupuncture, PRP, and stem cells. I honestly dont know which of these things helped me or if it was just time that is getting me better. I feel like everything has helped some but there is no way to tell for sure. And many people get better in the first year or so without doing these things. I do recommend trying to do some exercise or physical therapy so the muscles dont atrophy.
@@overcoming-togetherbyjayne3857 sorry for the late reply as to the email . I will definitely email you asap . Thank you so much . Looking forward to discussing this further
I emailed you . Hope to hear from you soon . I am still suffering from Flouroquinolone toxicity 9 months now . Thought I was getting better at one point but then it took a turn for the worse. Hopefully we can talk soon by email . Til then I wish you excellent health
I dont think I received the email... Feel free to email me at either support@overcoming-together.com or jaynebigelsen@gmail.com. Sadly, 9 months is a short time in the world of fluoroquinolone side effects. Since you were getting better, it shows that you definitely have the ability to heal and while there can be some setbacks-your body will continue to heal. Sending positive thoughts for your healing journey!
Goodnight . I have had a burning/tingling sensation in my left leg since the day I took ciprofloxacin, a single pill (this was on January 8th, that is, 3 months ago). I have already performed electroneuromyography and it was normal. I've thought about the possibility of being a fine fiber neuropathy. I also have muscle spasms all over my body. Can anyone tell me if this happens? I believe the tingling has subsided, but it's still horrible. I take pregabalin and nortriptyline daily for this pain. I had no pain in the tendons, just these neuropathy symptoms and muscle spasms. The problem is, this neuropathy seems to get worse depending on the way I put my body (which could be a circulation problem). I do not know what else to do. Will this ever stop? Has anyone had this burning/tingling/numbness feeling and managed to recover? And muscle spasms, also passed?
Sorry that you are going through this. I had the tingling and the muscle spasms at one point. For the most part, they have gone away. Although I am not a doctor, I have heard from people all around the world who had similar reactions and almost all got better with time. Three months is still very early. A lot of people get better somewhere within 6-12 months. It could be a good idea to get all of your vitamin levels checked as well as iron and hormones, because sometimes vitamin deficiencies are the cause and it would be a simple fix. Sending thoughts for a quick recovery your way.
Used 3 weeks of cipro 500mg two months ago and getting since extreme unbearable cold legs and feet with tingling! using magnesium,Aplha lipoic Acid, and b complex. Any suggestion pls ?
sorry just seeing this now! A lot of times these side effects go away simply with time. But I have heard B12 can help. If it doesnt get better, perhaps a neurologist could help as it may be a neuropathy. Sending healing thoughts!
I was given levaquin in the hospital without any mention of the black box warning. I had crazy muscle spasms in my back while on it and was told it was from the medicine so it was stopped.
"Fluoro"quinolone is in the name stands for fluoride, a lethal nerve toxin that destroys bones as well. Yet it is in toothpaste marketed as a benefit to strengthen tooth😅.
mam i take cipro 500mg one month ago after course the pill i feel fatigue, dizzness numbnness and weak my muscle body also feel ,gastrics problem tendon pain ,tighten my troat something happen my troat
So sorry to hear that! It almost always gets better in time. But you should get tested for vitamins, iron and hormone deficiencies as well as do a full autoimmune panel. If you are weak and can't walk you should ask about Myasthenia Gravis and Guiilliane Barre. But i fthey rule all of that out, then it is just a side effect of the medication, and you will get better in time! It didnt help me, but many people said maganesium helped them. Sending healing thoughts!
I too have been dealing with this. Maybe try a holistic approach, I'm tired of being a paying customer to medical doctors, and big pharma their gonna destroy us all. Nutrition is key. Keep praying we get answers.
my gut problems started immediately, my connective tissue problems started 2 years after cipro, its 5 years after now and the symptoms spread from extremities to my torso, heart area and throat. same complaint as another poster, feels like morphological changes to the throat
I was prescribed Ciprofloxacin for a non existent gut issues and I took it while I was tapering off benzodiazepine ,my life turned upside down from then on. I have terrifying panic attacks ,sleep issues , akathsia and I became depressed and suicidal. Now at a year and half ,my mental symptoms are a little better ( am on anti depressants and on stable dose of benzo just to keep myself alive) ,my physical disabilities gradually increase,now I can't walk at all and there are pains and numbness throughout my entire lower extremities and hands,I also developed some numbness on my left side of my head ,seems to me that has to do with nerve damages.
So sorry I'm just seeing this now and so sorry this happened to you! I hope you are feeling a bit better. Although medical doctors often don't understand this, it is still good to see both a rheumatologist and neurologist and get a full antibody panel as well as vitamin, iron and hormones checked. Mine seems to be autoimmune related (which I had prior to the Levaquin) but which got much worse. But we all have different things going on, but in almost all cases, people get better with time!
Same ! I took 5 of that poison ! same feeling as you! Still working on recovery !
How long ago did you take it? I am glad that you are moving toward recovery. I do think this is something we can all recover from. But for some of us, it takes longer than others. I am a few weeks away from the three year mark, and my arms are about 60-70 better, but my legs still have a ways to go.
Hi Eric did you recover?
How are you nowadays ? I hope better . I was given Ciprofloxacin for a sinus infection in October 2020 it's been 7 months now and I have numb & heavy legs every single day all-day . Same feeling as you described feels like my legs are walking in cement . The worse is climbing steps . I'm also left with a head pressure and brain fog daily as well . I wonder if this will ever heal honestly . Sad part is I have a two year old girl who I can no longer be active with anymore due to this .
I'm sorry that you are going through this! For me, the cement feeling has gone away, but I'm still left with lots of achiness and get tired easily. In the beginning, I could barely walk across my apartment and now I can be on my feet for about an hour, hour and a half. So I'm much better, but not back to former self. That said, I have talked to many people with this, and most seem to get completely better within 12-18 months. I think when you are older ( I'm 50) recovery can take longer. You are still in early stages-so hopefully you will be better soon!
I have a theory (obviously not scientifically proven-just a theory) that some of us who have these symptoms might have gotten the neurological autoimmune disease Guilliane Barre Syndrome. About half my neurologists think I have that. It's doubtful that seven months out a doctor would be able to diagnose you with that- and doctors dont seem to only diagnose it when someone completely can't walk. Email me directly at jaynebigelsen@gmail.com if you would like to discuss. Wishing you a speedy recovery from now on!
@@overcoming-togetherbyjayne3857 thank you for the reply I definitely appreciate it . Sorry you had to go through this as well . I'm glad you're getting better . Have you taken any supplements ?
@@Myworldmymind908 I have done a lot of things: magnesium, Coq10, vitamins D and K, collagen, physical therapy, acupuncture, PRP, and stem cells. I honestly dont know which of these things helped me or if it was just time that is getting me better. I feel like everything has helped some but there is no way to tell for sure. And many people get better in the first year or so without doing these things. I do recommend trying to do some exercise or physical therapy so the muscles dont atrophy.
@@overcoming-togetherbyjayne3857 sorry for the late reply as to the email . I will definitely email you asap . Thank you so much . Looking forward to discussing this further
I took only a few days of cipro and within a week I broke my back carrying a vacume up the stairs. My life has been a living hell ever since.
So sorry to hear! How long ago was that? For most people it does get better with time-but it can take quite a while.
Sending positive thoughts and prayers your way in the hopes that you recover soon.
I emailed you . Hope to hear from you soon . I am still suffering from Flouroquinolone toxicity 9 months now . Thought I was getting better at one point but then it took a turn for the worse. Hopefully we can talk soon by email . Til then I wish you excellent health
I dont think I received the email... Feel free to email me at either support@overcoming-together.com or jaynebigelsen@gmail.com. Sadly, 9 months is a short time in the world of fluoroquinolone side effects. Since you were getting better, it shows that you definitely have the ability to heal and while there can be some setbacks-your body will continue to heal. Sending positive thoughts for your healing journey!
@@overcoming-togetherbyjayne3857 hi I just emailed you now at 12:05 am Saturday July 17th my email is filomari2018@gmail.com
Goodnight .
I have had a burning/tingling sensation in my left leg since the day I took ciprofloxacin, a single pill (this was on January 8th, that is, 3 months ago).
I have already performed electroneuromyography and it was normal. I've thought about the possibility of being a fine fiber neuropathy.
I also have muscle spasms all over my body.
Can anyone tell me if this happens? I believe the tingling has subsided, but it's still horrible.
I take pregabalin and nortriptyline daily for this pain.
I had no pain in the tendons, just these neuropathy symptoms and muscle spasms. The problem is, this neuropathy seems to get worse depending on the way I put my body (which could be a circulation problem).
I do not know what else to do. Will this ever stop? Has anyone had this burning/tingling/numbness feeling and managed to recover? And muscle spasms, also passed?
Sorry that you are going through this. I had the tingling and the muscle spasms at one point. For the most part, they have gone away. Although I am not a doctor, I have heard from people all around the world who had similar reactions and almost all got better with time. Three months is still very early. A lot of people get better somewhere within 6-12 months. It could be a good idea to get all of your vitamin levels checked as well as iron and hormones, because sometimes vitamin deficiencies are the cause and it would be a simple fix. Sending thoughts for a quick recovery your way.
Used 3 weeks of cipro 500mg two months ago and getting since extreme unbearable cold legs and feet with tingling! using magnesium,Aplha lipoic Acid, and b complex. Any suggestion pls ?
sorry just seeing this now! A lot of times these side effects go away simply with time. But I have heard B12 can help. If it doesnt get better, perhaps a neurologist could help as it may be a neuropathy. Sending healing thoughts!
I wish you the best ❤️
thank you!!
its fluoroquinolones
I was given levaquin in the hospital without any mention of the black box warning. I had crazy muscle spasms in my back while on it and was told it was from the medicine so it was stopped.
I hope the muscle spasms stopped after taking it! Because mine kept happening even once I stopped. But I'm finally getting better!
@@overcoming-togetherbyjayne3857 oh my! Fortunately mine only lasted for another day after stopping the medication.
"Fluoro"quinolone is in the name stands for fluoride, a lethal nerve toxin that destroys bones as well. Yet it is in toothpaste marketed as a benefit to strengthen tooth😅.
mam i take cipro 500mg one month ago after course the pill i feel fatigue, dizzness numbnness and weak my muscle body also feel ,gastrics problem tendon pain ,tighten my troat something happen my troat
So sorry to hear that! It almost always gets better in time. But you should get tested for vitamins, iron and hormone deficiencies as well as do a full autoimmune panel. If you are weak and can't walk you should ask about Myasthenia Gravis and Guiilliane Barre. But i fthey rule all of that out, then it is just a side effect of the medication, and you will get better in time! It didnt help me, but many people said maganesium helped them. Sending healing thoughts!
I too have been dealing with this. Maybe try a holistic approach, I'm tired of being a paying customer to medical doctors, and big pharma their gonna destroy us all. Nutrition is key. Keep praying we get answers.
my gut problems started immediately, my connective tissue problems started 2 years after cipro, its 5 years after now and the symptoms spread from extremities to my torso, heart area and throat. same complaint as another poster, feels like morphological changes to the throat
i'm trying a detox homeopath next month to try and coax this from my cells. nhs owes me 25 grand and 5 years of life back.
@@johnline hey how do you feel now ? can a 24years old use COQ 10 ?