Hi Jane, your videos are helping people, I got bronchitis and went to the doctor. He prescribed leviquin. I asked him why are you giving me this, and told him all the problems with it. He said you need something strong. Bronchitis is viral antibiotics will do nothing I said. I did not take it. Bronchitis is already clearing up naturally.
That's great to hear! I find it's about 50/50 with doctors-some absolutely know and others either haven't heard it or refuse to listen. So glad you didnt take it! Please keep spreading the word to doctors and others about this awful medication
Thank You I have been given these and kept blaming neuropathy. I started again for UTI My face was numb legs burn tingle tingling balance bad using a walker. Was given it a few weeks ago from ER. Then I mentioned to my doctor a black box warning she said I needed it. I have very t tight muscle like spasms The doctors told me there is nothing they can do for me. I lost all reflexes too
, see if a doctor will do a blood test for Guillian Barre antibodies. I think some of us who have a reaction like this actually have GBS. Your symptoms sound exactly like my friend Chuck. He eventually made a full recovery-but I think he initially had GBS. Please keep me posted
Hello ma'am. How are you now? I dont know but im currently struggling with muscle spasm and joints pain after a flu and had antibiotics..its been 3 wks..
@@overcoming-togetherbyjayne3857 You guys are very inspiring 🙂 I'm utilizing my competitive mentality of "visualize/execute" to remind my body of the end goal every day. I think it's listening too! Enjoy your day!
@@Lianne-qm4yp I would say 97% I still sometimes get neuropathy here and there but it’s mild. My gut isn’t the same as before. I also have bad medical trauma anxiety. Hang in there. The key is patience and time
@@Michellephoney Hi ma'am. Hope you're doing well. Back in Dec 2023, had a lung infection. Took antibiotics (not Cipro) and nsaids as prescribed. I got muscle spasm and joint pains all over my body while on meds. (Didnt think that meds might be the cause). I was so stress and anxious. Got hospitalized because i was weak. Loaded with lots of meds. Cant remember some of the meds. I think it's their protocol to inject antibiotics. I also took NSAIDs again. I cold turkeyed from Lyrics. After a month i had bunch of weird symptoms (so many to mention), like neuropathy symptoms. I think these were the withdrawal symptoms. That was in April. I under went Physical therapy. It helped. I tried to eat healthy. I can say that I was 80% recovered in August. Then by the end of Aug, i had flu. Body aches again. Got hospitalized, again loaded with antibiotics. All of a sudden, some of the symptoms cameback. Here I am again feeling so anxious sometimes and have brain fog. My eyes are hurting again..
Just watched this again and WOW DOUG TOOK 40 PILLS ?!?!?! 😯 I'm currently just getting over another flare . These drugs are brutal on the body . And I completely understand Heather when she said that it feels like it moves around in the body . I go through that alot
I know, crazy right? As you know, I took only 4 pills and it did a lot of damage. It's so insane. When are you and I going to start our own youtube channel?
@@overcoming-togetherbyjayne3857 Yea I'm sorry we all had to go through this . I'm hoping we can start our channel soon . I've been going through it again unfortunately. Not so sure what gave me a flare up . I know I had to cut some magnesium out again . For some reason the magnesium just does not work well will my body .
@@markanthonyhernandez3378 side effects are numb and heavy legs . Also in the arms as well . Not in arms as much as legs tho . Trouble walking at times , balance issues . There's facial pressure at times with facial twitching as well
My Dr told me that the symptoms were all in my head as well. They just don’t want to be libel. I’ve recovered quite a bit but will never take them again. I was originally prescribed this for an infected prostate.
Ugh! that's what so many of them do-if they dont understand the symptoms or dont want to feel responsible they say it is all in our head-victimizing us yet again!
This happened to my 27yr old daughter, she has suffered the last four years! Please please tell us what she should do to repair her body and restore her health. She believes she will never be the same. My heart is bleeding for her.
Tell her not to give up hope! I've seen people get better 4,5 and six years out. Has she gotten any better? What are her main symptoms? It could help to get all of her vitamins, iron and hormone levels tested as well as pretty extensive autoimmune testing and maybe see a neurologist. Depending on symptoms testing for Myasthenia Gravis could be indicated. Supplementing with Vitamin D and magnesium can never hurt and PT and light exercise to build back muscle could also help. Sending healing thoughts her way! She is young which increases her chances of an ultimate recovery
thank you! and yes everyone needs to keep spreading the word.-I hate when I tell doctors and they dont listen. but we need to try and if we cant stop doctors from prescribing it unnecessary. at least we can tell as many people as we can to avoid this line of medication at all costs
How can we get help 😭. Almost 12 years and 2 back surgeries later I'm so much worse than I was before... Being crushed from my lower back to my feet.. everything they have done to me has made me worse 😭
So sorry to hear this especially after 12 years! I just keep trying everything and anything to see what will work. These days I'm trying PT and personal training again (starting very slow) I'm also trying low dose naltrexone which is supposed to be good for chronic pain. I'm also taking vitimin D, magnesium and tumeric. Sending healing thoughts your way!
One pill of Cipro and yeah Im 3 years out. I walk a lil better but I can't do a lot. I have an exhaustion that hits that I cant push through because when I do try to push through it it leaves me almost unable to move for a long time because of just utter exhaustion. I also have neuropathy and tendon pain and rigidity in achilles especially. The problems seem to move around because it affects the mitochondria. Mitochondrial support can help. It doesn't cure it but it helps. CoQ10 and magnesium help me the most.
Sorry for some reason, I am just seeing this now. Wow, it took only one pill. It sadly sounds like a typical reaction from many of us with similar reaction. I hope you are doing somewhat better now!
I totally disagree about it being the doctors fault. It is up to them to stay up to speed on all of the damage that they are doing with the drugs are prescribing!
I just found these sites also. I'm 10 months out. Still in pain. I didn't know what it was, but have had an awful time walking? Sleeping, fatigue, foggy vision. I had a miserable holiday season. I am a caregiver to my husband. I'm looking for some answers now. Levaquin.
I know it doesnt seem that way-but ten months is still pretty early when it comes to these medications. A lot of people get better somewhere between 12-18 months. It could be good to have a doctor check all of your vitamin levels plus your iron. A lot of people say magnesium helps-but time is often the best healer for a lot of people.
I'm so sorry to hear that you are still in terrible pain after all these years. I still have lots of aches and tightness but I wouldn't call it terrible pain anymore. Do you find that you get a little better each year? I know someone who completely recovered at year 12 so there is still hope! Sending healing thoughts your way!
I think recovery time depends on how many times you've been given them, how many other flouride containing medicines and anethesia, flouridated water, and yeah it's likely that many people with fibromyalgia, mental health episodes, and probably tons of other diagnosis, are suffering from these. They were given before the now many black box warnings, and continue to be prescribed. Originally used as chemo drugs.
Yes about half of the doctors still dont seem to know about the dangers of them. I only took four pills and four years later I am not nearly the person I was before taking them. But I did have underlying autoimmune issues so others should recover more quickly.
What about dry mouth Missouri thick white saliva dry mouth all the time is that a symptom of Ciprofloxacin if it is will it go away it's really bad it has no children if I try to sleep
Please tell me what is the way to recover I took Ciprofloxacin for 5 days every 12 hours and one IV of it and I feel terrible all because they said I had a bacterial infection and this was all done in Guatemala it's horrible whats the way to recover? I'm having anxiety depression I'm exhausted panic attacks weakness @@overcoming-togetherbyjayne3857
they are-its just that a lot people feel like regular doctors dont take these antibiotic reactions seriously so they want to go to doctors who specialize in antibiotic reactions-but those are functional doctors who usually dont take insurance-thats not the route I suggest, i say if your problems are neurological go to a top neurologist, if they are psychological go to a top psychiatrist, I havent found the functional or alternative doctors that helpful-but others disagree. it sometimes is hard to get neurologists and or other specialists to take some of these symptoms seriously, but I say keep trying until you find a neurologist who does. I also feel like neurologists dont tests for diseases like GBS or Myasthenia Gravis unless you completely cant walk or are on a ventilator-so they miss the mild to moderate cases of many of these diseases, ybut I say depending on the symptoms push them to run all of the tests and keep trying different ones until you find one who will listen.
Ma'am, you think other antibiotics also cause such symptoms? Cause after antibiotics I feel so anxious, sometimes weak, also having muscle spasms and joint pain..
it does! I'm getting better, but it has been a six year long journey and I'm still not where I want to be yet. (most people improve much quicker than I do) It's been awful but all we can do is move forward, try to get better and educate others so it doesnt happen to them. And yet doctors continue to prescribe it
Not yet, but one is coming out in a couple of weeks. In the meantime, I would check all vitamin levels and iron and maybe hormone levels and I would work with a neurologist, rheumatologist and psychiatrist depending on the symptoms. If there are any tendon ruptures, you would obviously need an orthopedist. Vitamin D and Magnesium are generally good to take overall. I would need to know more about the specific symptoms to give more suggestions-but maybe checking out my comments to some other people based on their symptoms could help. And keep an eye out because I will try to get the next video that has lots of advice out ASAP. (it's already recorded, I just have to edit it a bit
Please I want to FaceTime with you the talk I took it for 5 days every 12 hours 500 mg plus IV and I'm feeling really scared panic attacks how do I get in contact with you because it's nausea total loss of appetite is that a side effect loss of appetite completely can't sleep at night tired all the time
I responded to your email about setting up a time to chat. The nausea and loss of appetite should definitely go away. I needed help and medication to deal with anxiety and insomnia. I know some people in the Floxy community are against those types of medications but I couldnt have gotten through this ordeal without them. They really do help. sending healing thoughts and looking forward to connecting over Zoom
Again warning so tiny you can’t read the warnings went on line so I could read them and I refuse to take any more. I used to do for others now I need help myself
I took for sinus infection last May. Ii couldn't remember what the doctor gave me but found it on my pharmacy app. I have pain in muscles of right leg. Is so painful I can barely walk my dog. I've had it since. Will it end?
it should. Almost everyone gets better. I had a bunch of underlying conditions, so my recovery has taken longer and been less than I hoped for. However, almost everyone I have spoken to (and I have spoken to many people who have been harmed by this medication) makes a full recovery. you might want to try magensium and vitamin D and have a doctor test all of your vitamins and iron levels. You may also want to get an MRI. I didnt because I heard that most people with a reaction to this drug dont have things that show up on MRIS. But I finally got one on my left knee and hip all these years later and I did have both a hip labral and a meniscus tear. If I had known that earlier, it could have helped.
9 months in now . Numb & heavy legs everyday . Feels like my legs are walking through thick mud all-day . Can't feel my muscles in my legs . Legs feel like they're losing coordination at times (if that makes any sense) Daily cognitive issues as well . Lightheadedness , confusion , walking around like I'm concussed on a daily basis . If I do too much with my body I go numb everywhere . Even have breathing issues every now and then . This drug ruined my life and all for a sinus infection smh
So sorry that you are going through this! The symptoms you mentioned are very similar to what I had. I'm about 75% better now. I took a long time to heal but I have several previous other conditions. Most people heal much quicker-but still can take a year or more. It takes a long time-but you will get better!!! I am still on the fence as to whether what I had was Guilliain Barre Syndrome (the symptoms are very identical to what someone I know had who had a lumbar puncture and was diagnosed with GBS-I dont believe she took a fluoroquinolone) But the symptoms also identical to what some people who FQ Toxicity have. MY theory is that some people who have FQ toxicity might have gotten GBS from the antibiotic. Did the doctors do any testing on you? Either way treatment is mostly the same, rest and physical therapy. Sending positive, healing thoughts your way
@@overcoming-togetherbyjayne3857 Thank you so much for the positive thoughts and healing blessing sent my way . It definitely means alot . And thank you for spreading awareness to many . I been wanting to get on here awhile now and make videos spreading awareness however my symptoms really bust me up and make it hard sometimes . As of tests I've been to a Neurologist , cardiologist and Vein specialist . My neurologist did an MRI & MRA of my brain , and MRI of my neck and an MRI of my lower back . All came back clear . They only found mild stenosis in my lower back which he assured me 110% that my symptoms are not coming from the stenosis . He's also done an EMG which came back good as well . My cardiologist has did two echocardiograms on me , one regular and one where I run on the treadmill and then back to the table where they put the ultrasound on my heart and around the surrounding arteries . Also a ultrasound leg Doppler and a cartoid artery doppler . All of those came back normal . My vein specialist did a ultrasound leg Doppler of my leg veins and all came back normal . No one can explain to me what's going on with my legs . I covered every test I can . I asked my neurologist about a lumbar puncture and he said it's not necessary that if there were any sort of abnormalities it would show in my MRIs. Nothing found but here I am 9 months later still with heavy and numb legs that feel like they're walking in heavy mud daily . My arms getting the feeling from time to time as well . So many times I thought I had a stroke or was having one. I can't even count how many times I've been to the hospital since this all happened . I've started working with a doctor who supposedly specializes in Flouroquinolone toxicity out of Florida yet did no type of testing on me and just sold me supplements . Started taking the supplements and all and behold I was prescribed way too much magnesium that I started experiencing Hypermagnesia where my limbs were literally going paralyzed and my breathing was becoming extremely shallow . Anything over 2.1 is considered magnesium toxicity . I was at a 2.6 after all that magnesium . Since stopped the magnesium all of that has went away but I am still stuck with my symptoms mentioned earlier . So I really don't know if these so called Flouroquinolone experts can be trusted or are they just out for money .
Again so sorry you are going through this. I know how awful it is because I have been there. I had exact same symptoms. I dont believe it is true that MRI would have shown GBS. Only a lumbar puncture would have. But whether it is GBS or FQ Toxicity or those are one in the same, you will get better in time and it gets easier. For now, you may want to monitor all of your vitamins and hormones (iron, testosterone, vitamin D etc) because whatever "this" is, it's more difficult to get better if those things are out out of range. Everyone promised me I would get better and I didnt believe them. But I did. I took longer than most, but I did get a little better each year . You will get better too and hopefully it will be quicker than my recovery was.
@@overcoming-togetherbyjayne3857 I'm glad you got better and trust me I know what you mean by not believing people when they tell you. People are constantly telling me I will get better and I never believe that . And I know that's not the mentality to have but it's easier said than done which I know you understand that . When I tested my vitamin d levels they were at a 12 ! Been working on bringing that up at 10,000 iu a day . My testosterone levels were shot as well . I'm doing injections for those now . I have to get a b vitamins panel done soon to see where those levels are at . How old are you if you don't mind me asking and how many pills did you take ?
@@Myworldmymind908 I was 47 when I took four pills of Levaquin. I am now 50. I think getting your testosterone and vitamin levels normalized along with time and trying to do some movement, for however short of a period you can make it, will get you better. But it will take time!
Cipro is fluoride, it destroyed my thyroid and my eyes. I have arthritis in my neck because of this and pain in the side of my head and my toes are destroyed.
Most people fully recover! From talking to many people around the world, it looks like a majority completely recover in the 6 month to a year period. Many others recover between 12 and 18 months. For people like me, I havent recovered fully because I had all sorts of underlying conditions. I also dont believe these reactions are all one thing, so for example, if yo have autoimmune disease, these medications can unmask them and you probably wont get better until those conditions are treated. But if it is just a general reaction, from my experience, I believe most people fully recover.
Some people say yes, some people say no. I would try everything that is covered by insurance first. I didnt find that stem cells really helped me-but everyone is different.
also, i forgot to add that a lot of people get better with time-so the outlook is generally good but it's scary. And while waiting to get better, you want to make sure you dont throw away money at people promising cures that they can't deliver. Some people have gotten better with stem cells but it's a mixed bag
Hi, years ago they prescribed Levaquin 500, took 4 pills. After the first one, i would start vomiting & my legs would give out and black out. It got worst, called the doctor, he prescribed a different antibiotic. This was years ago, today i seen the doctor and he prescribed Ciprofloxacin 250. Should I take it?
Noooo! Never take another Fluoroquinolone antibiotic ever again! Tell the doctor you had a horrible reaction last time and to prescribe another antibiotic. If you had a bad reaction once, it could happen again and it could be worse the next time
@@maladaptivedaydreamerwithj2632 I agree. I did call the vet after to notify them there is a black box warning on those and they need to stop prescribing them.
I would try a psychiatrist and therapist. A lot of Floxies may disagree but I would not have been able to get through the first year or so without anti-anxiety and and anti-depressants. They really did help! And you can wean off of them when you are feeling better.
sorry I'm just seeing this now-yes I think that these antibiotics can unmask underlying autoimmune issues and or cause new ones. Along with tendon tears, I think I developed at least two new autoimmune diseases. I'm genetically predisposed to autoimmune diseases and because of it, the Levaquin led to more of them. I think getting a basic autoimmune panel done is generally a good idea
Thank you for the reply. I have autoimmunity in my CNS per spinal tap results. I have documented small fiber neuropathy as well. I am hopefully starting IVIG if my insurance approves. I was a 100% healthy, extremely active, extremely fit individual before taking this poison for a sinus infection....I had no idea. I have major muscle loss and atrophy and horrible insomnia. I already had 500 million stem cells via IV in Mexico last month. The stem cell clinic doctor looked at my legs and said 'cipro legs'. I am going to do whatever I can do to heal. I am learning everything that I can learn about medication injuries....SSRI, benzo, antibiotic, finasteride, accutane, lyme disease, covid vaccine, and long covid. There seems to be tens of millions of people injured. It is interesting that all of these seem to have overlapping features and symptoms. Brain/neurological damage. I do think that healing is possible. I have totally lost faith in U.S. institutions. Citizens have been poisoned for decades. No wonder this country is completely breaking down....many, many Americans have been poisoned.
every video is different-and there are different solutions depending on the symptoms/person. Some people get better in time. Some people get better with vitamin supplementation like magnesium. I usually recommend that people have a doctor check their iron and vitamin levels. In some cases, it would be good to have an autoimmune disease panel checked. In others MRIs could be helpful. And still others may need to see a psychiatrist for the psychological problems these antibiotics can cuase. But others get better in time. There is unfortunately, no one size fits all solution
@@overcoming-togetherbyjayne3857 thanks for responding.. I am 10 yrs in and DEVASTATED... spent my savings trying to heal this... WHERE IS THE JUSTICE!!? WHY ISNT INSURANCE PAYING FOR ALL OUR OUT OF POCKET EXPENSES FOR THE DESTRUCTION TO OUR HEALTH AND LIVES?
"sue happy???" 25:45 Your entire medical system is structured around naked exploitation and human rights crimes. FDA commissioner Margaret Hamburg prevented damaging information to be released about Levaquin, while her husband managed millions of dollars in Johnson and Johnson (Levaquin) stock on Wall Street. Who gets injured by Pharma and makes the case not to go after Pharma for damages?
Everyone handles things differently. Doug didnt feel that suing would help his recovery and preferred to focus on healing. Also as I have sadly found out, you can't even sue if you wanted to if you took the generic as I did.
@@maladaptivedaydreamerwithj2632 That's not just wanting to heal oneself. It's a warped worldview held by people who run coverage for corporate crime while punching down on people who seek appropriate redress.
@@maladaptivedaydreamerwithj2632 The people who are needlessly injured by fluoroquinolones are made to spend thousands of dollars out of pocket (if they have it) to get help. Many are unable to work. Some go into medical debt. Their family lives are adversely impacted, and this guy says, just get over it? This predatory behavior will continue if no one stands up and exposes these corporations and the governments who shield them from prosecution.
I recently took 4 tabs of Levaquin and have body aches and pains. I've taken this before and had no issues. Maybe now since I am 68 years old it's taken its toll on me. This medicine needs to be banned.
Agreed! Hopefully your aches and pains wont last long. I have heard about many people who feel better in a couple of months or even weeks. It could be a good idea to check vitamin levels, iron and hormones. Magnesium could help a little too. Sending positive thoughts that you get back to normal soon
It’s not about the magnesium. It is for the symptoms. The cause is your mitochondria, and you can take a hand full of magnesium, and shit your pants every day. It won’t change nothing in the cause. When I started working on my mitochondria, it started to heal.
Please I want to get better please contact me what do I need to do to get better I'm feeling fatigued and really scared and I took this Ciprofloxacin for 5 days every 12 hours 500 mg and I took an IV one IV with one bag and I'm just feeling really bad and I'm so sorry I took Ciprofloxacin what do I do I've been to my doctor they said that urine test normals complete blood cell count normal and then I got back and told them what happened but I'm not feeling normal
I'm so sorry you are gointg through this! How long ago did you take it? For some people it just takes a couple of weeks to months of resting and then they get better. Others take longer, but almost everyone eventuallly gets significantly better. Perhaps it could help to get all of your vitamin, iron and hormone levels tested. Regardless of the results vitamin D and Magnesium could help. Depending on your symptoms, you could have unmasked an autoimmune disease, so it might be good to see a rheumatololgist to run some antibody tests for autoimmune disease. If you are having trouble walking or feel muscle weakness, it could be good to go to a neuorlogist to get tested for myasthenia gravis and Guilliane Barre. They wont want to test you for that unless you are in a wheelchair, but if your eyes, neck, arms legs feel week insist on those blood tests. You could have a peripheral neuropathy in which case a neurologist could help and if you are struggling with insomnia or anxiety etc a psyhiatrist could help. Regardless, it could be good to speak with a therapist to help you get through this time. I wyouould try to focus on the symptoms and less on telling the doctor you were floxed. You could tell them the symtpoms started X days after the medication, but leave it at that and then focus on your symptoms. Sending prayers that you are one of the people who get better quickly.!
@@overcoming-togetherbyjayne3857 I took it on the 20th of this month that was the last pill I believe I took put a week before that they gave me an iv of it I'm walking still that I have loss of appetite completely I have to force myself to eat I feel fatigued I had low testosterone before this is at the hormone levels? My heart is beating faster I'm just so sad I'm so scared I I'm having panic attacks I really need to connect with you if possible and do a FaceTime with you or something I'm really in a battle and I feel like but this anxiety I feel like it's killing me
@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in
@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in
Hi Jane, your videos are helping people, I got bronchitis and went to the doctor. He prescribed leviquin. I asked him why are you giving me this, and told him all the problems with it. He said you need something strong. Bronchitis is viral antibiotics will do nothing I said. I did not take it. Bronchitis is already clearing up naturally.
That's great to hear! I find it's about 50/50 with doctors-some absolutely know and others either haven't heard it or refuse to listen. So glad you didnt take it! Please keep spreading the word to doctors and others about this awful medication
Thank You I have been given these and kept blaming neuropathy. I started again for UTI My face was numb legs burn tingle tingling balance bad using a walker. Was given it a few weeks ago from ER. Then I mentioned to my doctor a black box warning she said I needed it. I have very t tight muscle like spasms The doctors told me there is nothing they can do for me. I lost all reflexes too
, see if a doctor will do a blood test for Guillian Barre antibodies. I think some of us who have a reaction like this actually have GBS. Your symptoms sound exactly like my friend Chuck. He eventually made a full recovery-but I think he initially had GBS. Please keep me posted
Hello ma'am. How are you now? I dont know but im currently struggling with muscle spasm and joints pain after a flu and had antibiotics..its been 3 wks..
So happy to see you guys doing so well❤ I hope to have a healing story in the future and refuse to let this be the final chapter. Thanks for sharing.
You will! Some people take longer than others, but you will heal! (nearly everyone does!)
@@overcoming-togetherbyjayne3857 You guys are very inspiring 🙂 I'm utilizing my competitive mentality of "visualize/execute" to remind my body of the end goal every day. I think it's listening too! Enjoy your day!
I wonder if I will ever heal
Thank you for spreading awareness on this and giving hope. I took 2 levaquin about 4 months ago and I’m still healing.
You will get better! Almost everyone does, just on different timelines.
@@overcoming-togetherbyjayne3857 appreciate it love!!!
@@Michellephoney hello. Are you fully recovered now?..
@@Lianne-qm4yp I would say 97% I still sometimes get neuropathy here and there but it’s mild. My gut isn’t the same as before. I also have bad medical trauma anxiety. Hang in there. The key is patience and time
@@Michellephoney Hi ma'am. Hope you're doing well. Back in Dec 2023, had a lung infection. Took antibiotics (not Cipro) and nsaids as prescribed. I got muscle spasm and joint pains all over my body while on meds. (Didnt think that meds might be the cause). I was so stress and anxious. Got hospitalized because i was weak. Loaded with lots of meds. Cant remember some of the meds. I think it's their protocol to inject antibiotics. I also took NSAIDs again. I cold turkeyed from Lyrics. After a month i had bunch of weird symptoms (so many to mention), like neuropathy symptoms. I think these were the withdrawal symptoms. That was in April. I under went Physical therapy. It helped. I tried to eat healthy. I can say that I was 80% recovered in August. Then by the end of Aug, i had flu. Body aches again. Got hospitalized, again loaded with antibiotics. All of a sudden, some of the symptoms cameback. Here I am again feeling so anxious sometimes and have brain fog. My eyes are hurting again..
Just watched this again and WOW DOUG TOOK 40 PILLS ?!?!?! 😯
I'm currently just getting over another flare . These drugs are brutal on the body . And I completely understand Heather when she said that it feels like it moves around in the body . I go through that alot
I know, crazy right? As you know, I took only 4 pills and it did a lot of damage. It's so insane. When are you and I going to start our own youtube channel?
@@overcoming-togetherbyjayne3857 Yea I'm sorry we all had to go through this . I'm hoping we can start our channel soon . I've been going through it again unfortunately. Not so sure what gave me a flare up . I know I had to cut some magnesium out again . For some reason the magnesium just does not work well will my body .
What side effects are you experiencing
@@markanthonyhernandez3378 side effects are numb and heavy legs . Also in the arms as well . Not in arms as much as legs tho . Trouble walking at times , balance issues . There's facial pressure at times with facial twitching as well
@Christian King u can try me at jaynebigelsen@gmail.com
My Dr told me that the symptoms were all in my head as well. They just don’t want to be libel. I’ve recovered quite a bit but will never take them again. I was originally prescribed this for an infected prostate.
Ugh! that's what so many of them do-if they dont understand the symptoms or dont want to feel responsible they say it is all in our head-victimizing us yet again!
This happened to my 27yr old daughter, she has suffered the last four years! Please please tell us what she should do to repair her body and restore her health. She believes she will never be the same. My heart is bleeding for her.
Tell her not to give up hope! I've seen people get better 4,5 and six years out. Has she gotten any better? What are her main symptoms? It could help to get all of her vitamins, iron and hormone levels tested as well as pretty extensive autoimmune testing and maybe see a neurologist. Depending on symptoms testing for Myasthenia Gravis could be indicated. Supplementing with Vitamin D and magnesium can never hurt and PT and light exercise to build back muscle could also help. Sending healing thoughts her way! She is young which increases her chances of an ultimate recovery
God bless you Jane & thanks for sharing to help warn people !
thank you! and yes everyone needs to keep spreading the word.-I hate when I tell doctors and they dont listen. but we need to try and if we cant stop doctors from prescribing it unnecessary. at least we can tell as many people as we can to avoid this line of medication at all costs
How can we get help 😭. Almost 12 years and 2 back surgeries later I'm so much worse than I was before... Being crushed from my lower back to my feet.. everything they have done to me has made me worse 😭
So sorry to hear this especially after 12 years! I just keep trying everything and anything to see what will work. These days I'm trying PT and personal training again (starting very slow) I'm also trying low dose naltrexone which is supposed to be good for chronic pain. I'm also taking vitimin D, magnesium and tumeric. Sending healing thoughts your way!
One pill of Cipro and yeah Im 3 years out. I walk a lil better but I can't do a lot. I have an exhaustion that hits that I cant push through because when I do try to push through it it leaves me almost unable to move for a long time because of just utter exhaustion. I also have neuropathy and tendon pain and rigidity in achilles especially.
The problems seem to move around because it affects the mitochondria. Mitochondrial support can help. It doesn't cure it but it helps. CoQ10 and magnesium help me the most.
Sorry for some reason, I am just seeing this now. Wow, it took only one pill. It sadly sounds like a typical reaction from many of us with similar reaction. I hope you are doing somewhat better now!
It will mess you up ! I been limping for a month and still limping
so sorry to hear this! But a month is still early when it comes to these side effects-most people fully recover-sending healing thoughts your way!
I totally disagree about it being the doctors fault. It is up to them to stay up to speed on all of the damage that they are doing with the drugs are prescribing!
Totally agree with you! the system doesnt help them because the drug reps tell them it isnt true but it is up to them to stay up to date
Is permanent appetite loss common with taking Ciprofloxacin
I have heard of temporary loss of appetite but not permanent no-it should get better!
I just found these sites also. I'm 10 months out. Still in pain. I didn't know what it was, but have had an awful time walking? Sleeping, fatigue, foggy vision. I had a miserable holiday season. I am a caregiver to my husband. I'm looking for some answers now. Levaquin.
I know it doesnt seem that way-but ten months is still pretty early when it comes to these medications. A lot of people get better somewhere between 12-18 months. It could be good to have a doctor check all of your vitamin levels plus your iron. A lot of people say magnesium helps-but time is often the best healer for a lot of people.
7 years out, almost died, still daily pain but I can walk now even if in terrible pain
I'm so sorry to hear that you are still in terrible pain after all these years. I still have lots of aches and tightness but I wouldn't call it terrible pain anymore. Do you find that you get a little better each year? I know someone who completely recovered at year 12 so there is still hope! Sending healing thoughts your way!
Keep plugging away! It can still get better even after all these years
I think recovery time depends on how many times you've been given them, how many other flouride containing medicines and anethesia, flouridated water, and yeah it's likely that many people with fibromyalgia, mental health episodes, and probably tons of other diagnosis, are suffering from these. They were given before the now many black box warnings, and continue to be prescribed. Originally used as chemo drugs.
Yes about half of the doctors still dont seem to know about the dangers of them. I only took four pills and four years later I am not nearly the person I was before taking them. But I did have underlying autoimmune issues so others should recover more quickly.
What about dry mouth Missouri thick white saliva dry mouth all the time is that a symptom of Ciprofloxacin if it is will it go away it's really bad it has no children if I try to sleep
What people take to improve their recovery and is it even 100% possible to recovery?
Not sure why I never saw this comment-but yes it's 100% possible to fully recover and most people do
Please tell me what is the way to recover I took Ciprofloxacin for 5 days every 12 hours and one IV of it and I feel terrible all because they said I had a bacterial infection and this was all done in Guatemala it's horrible whats the way to recover? I'm having anxiety depression I'm exhausted panic attacks weakness @@overcoming-togetherbyjayne3857
Why wouldn't neurological symptoms or any of the other symptoms not be covered by insurance?
they are-its just that a lot people feel like regular doctors dont take these antibiotic reactions seriously so they want to go to doctors who specialize in antibiotic reactions-but those are functional doctors who usually dont take insurance-thats not the route I suggest, i say if your problems are neurological go to a top neurologist, if they are psychological go to a top psychiatrist, I havent found the functional or alternative doctors that helpful-but others disagree. it sometimes is hard to get neurologists and or other specialists to take some of these symptoms seriously, but I say keep trying until you find a neurologist who does. I also feel like neurologists dont tests for diseases like GBS or Myasthenia Gravis unless you completely cant walk or are on a ventilator-so they miss the mild to moderate cases of many of these diseases, ybut I say depending on the symptoms push them to run all of the tests and keep trying different ones until you find one who will listen.
Ma'am, you think other antibiotics also cause such symptoms? Cause after antibiotics I feel so anxious, sometimes weak, also having muscle spasms and joint pain..
yes the fluoroquinolones are the worst-but everyone is different and any medication can have side effects!
Thanks for the response ma'am.
Drug is a monster just one pill destroy people's lives
it does! I'm getting better, but it has been a six year long journey and I'm still not where I want to be yet. (most people improve much quicker than I do) It's been awful but all we can do is move forward, try to get better and educate others so it doesnt happen to them. And yet doctors continue to prescribe it
Do you have a video that tells what you guys did so we can go explore?
Not yet, but one is coming out in a couple of weeks. In the meantime, I would check all vitamin levels and iron and maybe hormone levels and I would work with a neurologist, rheumatologist and psychiatrist depending on the symptoms. If there are any tendon ruptures, you would obviously need an orthopedist. Vitamin D and Magnesium are generally good to take overall. I would need to know more about the specific symptoms to give more suggestions-but maybe checking out my comments to some other people based on their symptoms could help. And keep an eye out because I will try to get the next video that has lots of advice out ASAP. (it's already recorded, I just have to edit it a bit
Please I want to FaceTime with you the talk I took it for 5 days every 12 hours 500 mg plus IV and I'm feeling really scared panic attacks how do I get in contact with you because it's nausea total loss of appetite is that a side effect loss of appetite completely can't sleep at night tired all the time
I responded to your email about setting up a time to chat. The nausea and loss of appetite should definitely go away. I needed help and medication to deal with anxiety and insomnia. I know some people in the Floxy community are against those types of medications but I couldnt have gotten through this ordeal without them. They really do help. sending healing thoughts and looking forward to connecting over Zoom
Again warning so tiny you can’t read the warnings went on line so I could read them and I refuse to take any more. I used to do for others now I need help myself
I took for sinus infection last May. Ii couldn't remember what the doctor gave me but found it on my pharmacy app. I have pain in muscles of right leg. Is so painful I can barely walk my dog. I've had it since. Will it end?
it should. Almost everyone gets better. I had a bunch of underlying conditions, so my recovery has taken longer and been less than I hoped for. However, almost everyone I have spoken to (and I have spoken to many people who have been harmed by this medication) makes a full recovery. you might want to try magensium and vitamin D and have a doctor test all of your vitamins and iron levels. You may also want to get an MRI. I didnt because I heard that most people with a reaction to this drug dont have things that show up on MRIS. But I finally got one on my left knee and hip all these years later and I did have both a hip labral and a meniscus tear. If I had known that earlier, it could have helped.
9 months in now . Numb & heavy legs everyday . Feels like my legs are walking through thick mud all-day . Can't feel my muscles in my legs . Legs feel like they're losing coordination at times (if that makes any sense)
Daily cognitive issues as well . Lightheadedness , confusion , walking around like I'm concussed on a daily basis . If I do too much with my body I go numb everywhere . Even have breathing issues every now and then . This drug ruined my life and all for a sinus infection smh
So sorry that you are going through this! The symptoms you mentioned are very similar to what I had. I'm about 75% better now. I took a long time to heal but I have several previous other conditions. Most people heal much quicker-but still can take a year or more. It takes a long time-but you will get better!!! I am still on the fence as to whether what I had was Guilliain Barre Syndrome (the symptoms are very identical to what someone I know had who had a lumbar puncture and was diagnosed with GBS-I dont believe she took a fluoroquinolone) But the symptoms also identical to what some people who FQ Toxicity have. MY theory is that some people who have FQ toxicity might have gotten GBS from the antibiotic. Did the doctors do any testing on you? Either way treatment is mostly the same, rest and physical therapy. Sending positive, healing thoughts your way
@@overcoming-togetherbyjayne3857 Thank you so much for the positive thoughts and healing blessing sent my way . It definitely means alot . And thank you for spreading awareness to many . I been wanting to get on here awhile now and make videos spreading awareness however my symptoms really bust me up and make it hard sometimes .
As of tests I've been to a Neurologist , cardiologist and Vein specialist . My neurologist did an MRI & MRA of my brain , and MRI of my neck and an MRI of my lower back . All came back clear . They only found mild stenosis in my lower back which he assured me 110% that my symptoms are not coming from the stenosis . He's also done an EMG which came back good as well .
My cardiologist has did two echocardiograms on me , one regular and one where I run on the treadmill and then back to the table where they put the ultrasound on my heart and around the surrounding arteries . Also a ultrasound leg Doppler and a cartoid artery doppler . All of those came back normal .
My vein specialist did a ultrasound leg Doppler of my leg veins and all came back normal . No one can explain to me what's going on with my legs . I covered every test I can . I asked my neurologist about a lumbar puncture and he said it's not necessary that if there were any sort of abnormalities it would show in my MRIs.
Nothing found but here I am 9 months later still with heavy and numb legs that feel like they're walking in heavy mud daily . My arms getting the feeling from time to time as well . So many times I thought I had a stroke or was having one. I can't even count how many times I've been to the hospital since this all happened .
I've started working with a doctor who supposedly specializes in Flouroquinolone toxicity out of Florida yet did no type of testing on me and just sold me supplements . Started taking the supplements and all and behold I was prescribed way too much magnesium that I started experiencing Hypermagnesia where my limbs were literally going paralyzed and my breathing was becoming extremely shallow . Anything over 2.1 is considered magnesium toxicity . I was at a 2.6 after all that magnesium . Since stopped the magnesium all of that has went away but I am still stuck with my symptoms mentioned earlier . So I really don't know if these so called Flouroquinolone experts can be trusted or are they just out for money .
Again so sorry you are going through this. I know how awful it is because I have been there. I had exact same symptoms. I dont believe it is true that MRI would have shown GBS. Only a lumbar puncture would have. But whether it is GBS or FQ Toxicity or those are one in the same, you will get better in time and it gets easier. For now, you may want to monitor all of your vitamins and hormones (iron, testosterone, vitamin D etc) because whatever "this" is, it's more difficult to get better if those things are out out of range. Everyone promised me I would get better and I didnt believe them. But I did. I took longer than most, but I did get a little better each year . You will get better too and hopefully it will be quicker than my recovery was.
@@overcoming-togetherbyjayne3857 I'm glad you got better and trust me I know what you mean by not believing people when they tell you. People are constantly telling me I will get better and I never believe that . And I know that's not the mentality to have but it's easier said than done which I know you understand that . When I tested my vitamin d levels they were at a 12 ! Been working on bringing that up at 10,000 iu a day . My testosterone levels were shot as well . I'm doing injections for those now . I have to get a b vitamins panel done soon to see where those levels are at . How old are you if you don't mind me asking and how many pills did you take ?
@@Myworldmymind908 I was 47 when I took four pills of Levaquin. I am now 50. I think getting your testosterone and vitamin levels normalized along with time and trying to do some movement, for however short of a period you can make it, will get you better. But it will take time!
Cipro is fluoride, it destroyed my thyroid and my eyes. I have arthritis in my neck because of this and pain in the side of my head and my toes are destroyed.
I'm sorry this happened to you! But I do believe healing is possible
Anyone had fully recovered in this side effects..? I'm 6 months now and still suffering
Most people fully recover! From talking to many people around the world, it looks like a majority completely recover in the 6 month to a year period. Many others recover between 12 and 18 months. For people like me, I havent recovered fully because I had all sorts of underlying conditions. I also dont believe these reactions are all one thing, so for example, if yo have autoimmune disease, these medications can unmask them and you probably wont get better until those conditions are treated. But if it is just a general reaction, from my experience, I believe most people fully recover.
Do MSC stem cells seem to help with the neuropathic pain with this condition? I am considering going internationally to get stem cell therapy.
Some people say yes, some people say no. I would try everything that is covered by insurance first. I didnt find that stem cells really helped me-but everyone is different.
also, i forgot to add that a lot of people get better with time-so the outlook is generally good but it's scary. And while waiting to get better, you want to make sure you dont throw away money at people promising cures that they can't deliver. Some people have gotten better with stem cells but it's a mixed bag
Hi, years ago they prescribed Levaquin 500, took 4 pills. After the first one, i would start vomiting & my legs would give out and black out. It got worst, called the doctor, he prescribed a different antibiotic. This was years ago, today i seen the doctor and he prescribed Ciprofloxacin 250. Should I take it?
Nooooo! tell them you had a bad reaction to a fluoroquinolone antibioitic and will never take one again!!!!
Noooo! Never take another Fluoroquinolone antibiotic ever again! Tell the doctor you had a horrible reaction last time and to prescribe another antibiotic. If you had a bad reaction once, it could happen again and it could be worse the next time
These antibiotics poisoned my dog and gave her seizures. She had the worst seizure last week and I had to put her down. so sad.
How awful! This makes my heart hurt-we need a campaign to start educating vets!
@@maladaptivedaydreamerwithj2632 I agree. I did call the vet after to notify them there is a black box warning on those and they need to stop prescribing them.
Guys what you guys think could help me with my psychological problems after antibiotics. Extreme anxiety, panic Attack, paranoia, depression????
I would try a psychiatrist and therapist. A lot of Floxies may disagree but I would not have been able to get through the first year or so without anti-anxiety and and anti-depressants. They really did help! And you can wean off of them when you are feeling better.
Thank you so much for your response. Yes I start sertraline today . I will let you know how I feel in 3 weeks
@@younglegacy1637hello. How are you now?..
Does fluroquinolone toxicity cause auto immune diseases in some? Does anyone know why some people are affected and some people are not affected?
sorry I'm just seeing this now-yes I think that these antibiotics can unmask underlying autoimmune issues and or cause new ones. Along with tendon tears, I think I developed at least two new autoimmune diseases. I'm genetically predisposed to autoimmune diseases and because of it, the Levaquin led to more of them. I think getting a basic autoimmune panel done is generally a good idea
Thank you for the reply. I have autoimmunity in my CNS per spinal tap results. I have documented small fiber neuropathy as well. I am hopefully starting IVIG if my insurance approves. I was a 100% healthy, extremely active, extremely fit individual before taking this poison for a sinus infection....I had no idea. I have major muscle loss and atrophy and horrible insomnia. I already had 500 million stem cells via IV in Mexico last month. The stem cell clinic doctor looked at my legs and said 'cipro legs'. I am going to do whatever I can do to heal. I am learning everything that I can learn about medication injuries....SSRI, benzo, antibiotic, finasteride, accutane, lyme disease, covid vaccine, and long covid. There seems to be tens of millions of people injured. It is interesting that all of these seem to have overlapping features and symptoms. Brain/neurological damage. I do think that healing is possible. I have totally lost faith in U.S. institutions. Citizens have been poisoned for decades. No wonder this country is completely breaking down....many, many Americans have been poisoned.
sounds like no solutions in this video, just complaints?
every video is different-and there are different solutions depending on the symptoms/person. Some people get better in time. Some people get better with vitamin supplementation like magnesium. I usually recommend that people have a doctor check their iron and vitamin levels. In some cases, it would be good to have an autoimmune disease panel checked. In others MRIs could be helpful. And still others may need to see a psychiatrist for the psychological problems these antibiotics can cuase. But others get better in time. There is unfortunately, no one size fits all solution
@@overcoming-togetherbyjayne3857 thanks for responding.. I am 10 yrs in and DEVASTATED... spent my savings trying to heal this... WHERE IS THE JUSTICE!!? WHY ISNT INSURANCE PAYING FOR ALL OUR OUT OF POCKET EXPENSES FOR THE DESTRUCTION TO OUR HEALTH AND LIVES?
lucky people in US. people in other parts don't have stem cell access!
"sue happy???" 25:45
Your entire medical system is structured around naked exploitation and human rights crimes.
FDA commissioner Margaret Hamburg prevented damaging information to be released about Levaquin, while her husband managed millions of dollars in Johnson and Johnson (Levaquin) stock on Wall Street.
Who gets injured by Pharma and makes the case not to go after Pharma for damages?
Everyone handles things differently. Doug didnt feel that suing would help his recovery and preferred to focus on healing. Also as I have sadly found out, you can't even sue if you wanted to if you took the generic as I did.
@@maladaptivedaydreamerwithj2632 That's not just wanting to heal oneself. It's a warped worldview held by people who run coverage for corporate crime while punching down on people who seek appropriate redress.
@@maladaptivedaydreamerwithj2632 The people who are needlessly injured by fluoroquinolones are made to spend thousands of dollars out of pocket (if they have it) to get help. Many are unable to work. Some go into medical debt. Their family lives are adversely impacted, and this guy says, just get over it?
This predatory behavior will continue if no one stands up and exposes these corporations and the governments who shield them from prosecution.
I recently took 4 tabs of Levaquin and have body aches and pains. I've taken this before and had no issues. Maybe now since I am 68 years old it's taken its toll on me. This medicine needs to be banned.
Agreed! Hopefully your aches and pains wont last long. I have heard about many people who feel better in a couple of months or even weeks. It could be a good idea to check vitamin levels, iron and hormones. Magnesium could help a little too. Sending positive thoughts that you get back to normal soon
@@overcoming-togetherbyjayne3857 Thank you so very much. I’m seeing my doctor today.
It’s not about the magnesium. It is for the symptoms. The cause is your mitochondria, and you can take a hand full of magnesium, and shit your pants every day. It won’t change nothing in the cause. When I started working on my mitochondria, it started to heal.
How did you improve your mitochondria?
How do you work on mitochondria?
Please share how you healed your mitochroria???
Hello guys. How are you now?..
Please I want to get better please contact me what do I need to do to get better I'm feeling fatigued and really scared and I took this Ciprofloxacin for 5 days every 12 hours 500 mg and I took an IV one IV with one bag and I'm just feeling really bad and I'm so sorry I took Ciprofloxacin what do I do I've been to my doctor they said that urine test normals complete blood cell count normal and then I got back and told them what happened but I'm not feeling normal
I'm so sorry you are gointg through this! How long ago did you take it? For some people it just takes a couple of weeks to months of resting and then they get better. Others take longer, but almost everyone eventuallly gets significantly better. Perhaps it could help to get all of your vitamin, iron and hormone levels tested. Regardless of the results vitamin D and Magnesium could help. Depending on your symptoms, you could have unmasked an autoimmune disease, so it might be good to see a rheumatololgist to run some antibody tests for autoimmune disease. If you are having trouble walking or feel muscle weakness, it could be good to go to a neuorlogist to get tested for myasthenia gravis and Guilliane Barre. They wont want to test you for that unless you are in a wheelchair, but if your eyes, neck, arms legs feel week insist on those blood tests. You could have a peripheral neuropathy in which case a neurologist could help and if you are struggling with insomnia or anxiety etc a psyhiatrist could help. Regardless, it could be good to speak with a therapist to help you get through this time. I wyouould try to focus on the symptoms and less on telling the doctor you were floxed. You could tell them the symtpoms started X days after the medication, but leave it at that and then focus on your symptoms. Sending prayers that you are one of the people who get better quickly.!
@@overcoming-togetherbyjayne3857 I took it on the 20th of this month that was the last pill I believe I took put a week before that they gave me an iv of it I'm walking still that I have loss of appetite completely I have to force myself to eat I feel fatigued I had low testosterone before this is at the hormone levels? My heart is beating faster I'm just so sad I'm so scared I I'm having panic attacks I really need to connect with you if possible and do a FaceTime with you or something I'm really in a battle and I feel like but this anxiety I feel like it's killing me
@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in
@@overcoming-togetherbyjayne3857
the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in
Hi ma'am. Can I reach you via email?..
yes its jaynebigelsen@gmail.com