I hope you are doing well, I just came across your video. I just want you to know you are DEFINITELY not alone. I'm a guy in my 40s, have had 7 years of hell lol, in and out of ERs, told I was crazy, doctors don't believe symptoms are real. I've had hundreds of blood tests, IVs, bizarre tests, specialists, etc, etc. I suffer every day, many of your exact symptoms, cardiac probs, extreme muscle weakness, pots, life threatening swings in my bp, skin burning, vision probs, gastro probs, raynauds, etc. Nothing seems to help at all lol. Every time I have a flare my symptoms become permanently worse. Have people who depend on me and can't work, it sucks but I keep going. I understand what your going through and I hope someone can find something soon that permanently helps us all. Thanks for making vids!
I suggest you go on an extended fast. And I mean no cheating. Water and salt only. I personally recommend LMNT because I've used it and I know it works. If you can get at least 21 days, you'll reset your immune system. Once you get into ketosis and your body canabalizes the things making you feel terrible, you'll have to get carefully start therapeutic refeeding, refeeding syndrome is no joke and can kill you if you mess it up, but there's a solid chance you'll get your life back. At the very least, it'll buy you time. I was trach and vent dependent too, I still need to breathe against pressure periodically to maintain gas exchange, this exercise masks intended to make breathing harder are actually good for this, so I'm not stuck on bipap. But I'd rather die than be tied to machines. I don't presume to pick for anybody else, but it's not for me. Reset your immune system with an extended fast. Go from there. Edited to add: The thing is, if going into ketosis brings remission, you have to stay there to keep it. Good luck.
I watched an old video of yours just now about October 10. I just wanted to tell you about my wife's best friend. She graduated top five in her high school class with 4.0 GPA and was a Rhodes scholar and had a full college scholarship. At the age of 21, she was driving on the interstate to visit her family back home on college break, a semi truck blew a tire on the interstate. The semi truck driver lost control of his truck and crossed the median and hit her car head on. Her car caught fire and she died. This was back in 1998. In my town, I read an obituary once of a 26 year old man who died of cancer, he just graduated from medical school. This was about ten years ago. When I read that, I felt so sorry for him. I'm a new subscriber. I hope you do well with TH-cam!
Thank you so much for sharing about your wife's best friend. What an incredible life she had. I am so sorry it was cut so short. I am also sorry to hear about the 26 year old who just graduated from medical school and then died from cancer. May their memories be a blessing. Thank you for your kind words, and thank you for subscribing!
You do incredibly important work, thank you, and may you receive comfort in any time of need🙏I found you through your most viral vid, and am very touched by your story. Life is SO mysterious, and we just can’t know what our lot will be. Without a doubt, you’ve helped so many people just by sharing your knowledge and experiences. My favorite line from Mr Rogers (famously a religious man, but he didn’t force that view on others) is “You are enough, I like you just the way you are.” True wisdom🙏❤️🩹
Hi, I just saw your video that showed up on my feed and it says it was 3 years ago. I am really happy that you have found a new reason to live and that is wonderful. Every once in a while when you’re thinking you’re having a hard day and you happen to see what someone else is going through it makes you self correct and be grateful. I noticed that you must be a believer because you were mentioned how you prayed a lot. Even though you have not been healed yet, I don’t want you to give up. I have seen people healed, and I don’t know if you believe this, but I know in the Bible that faith comes by hearing the word of God and scriptures are healing to the body. Every day I try to do have my scriptures playing in the background and even if I can’t hear them really well I know they’re playing, and I know that they are drawing in the Lord and His angels and feeding my soul. I am going to add a link here and you might want to play the Scriptures all the time and you don’t have to play them loud in your house but you can claim them for yourself. I was listening to a testimony a while back and the lady prayed 12 years for her husband to be healed and he finally was. Some of us live. I’m going through a lot, but I still believe that we can claim healing and that it is possible and we should never give up on doing it. There’s certain things that run in my family line and I did some deliverance and Repentance and renouncement type praying and a few things that ran in my family line did not come on me or my children. There are family line types of things that you can come against through prayer kind of like inheriting what comes through the line and coming against it through the word of God. I don’t know if you believe this, but I’ve learned this over the years that you have to stand on your authority and Claim, Luke 10:19 and break things off through Galatians 3:13. It’s a different type of praying and it’s a Warfare type Praying. Where are your come in against a lot of different things that God does not want us to suffer from. I still am praying for a few things that run in my family like my shoulders and knees but I’m not gonna give up and I’m gonna believe for strength in these areas and I just want you to know that you can claim your healing to. Here is a good link to listen too and claim it for yourself. th-cam.com/video/wLuHOtt9E-Q/w-d-xo.htmlsi=2FCmUcL7k7XO6evq
Thank you so much for sharing. I appreciate all the information. Thank you also for the link. That is so kind of you to share that with me. I hope you receive healing for everything you are praying for.
Maybe this is silly, but you have the perfect expressiveness to your face and voice and the perfect cadence for children's content. I just found your channel, but you remind me of Mr. Rogers in your kind mannerisms and sincere expressions. Maybe it would be a fun avenue for you to explore
I got palliative care, to relieve pain, no treatment for the Liver Angio Sarcoma anymore, though i keep using Humria for the Crohn's disease though. But i am still relatively active and is not certain if i would live 3 months or less (In the Netherlands the treshold for hospice is 3 momths or less).
Yes! Actually they wanted to give my late mother Palliative care right before she died- which took the medical team by total surprise! Her passing, I mean.
I love watching your videos it inspiring people with different disabilities and I will keep praying for you you're not alone God got you I wish people be more kinder in this world some people are cruel in this world I have a speech impediment it's really hard for me to pronounce words I'm going through a lot of challenges but God will get me through and he will shine a light on me and he will shine the light on you too God bless keep up the great fight
Hi, Miss, I just wanted to say thank you for uploading these videos. I feel really sad that you are talking about hospice. Please know that if you have Jesus as your Lord and savior that in the future you will receive a perfect body that lives forever. Also a lot of people think a terrible time called the tribulation that is mentioned in the Bible is going to happen really soon. And before that happens Jesus will remove his followers from the earth. People call this the rapture. Here is the bible verse that talks about it. Matthew 24:38-39 For in the days before the flood, people were eating and drinking, marrying and giving in marriage, up to the day Noah entered the ark; 39 and they knew nothing about what would happen until the flood came and took them all away. That is how it will be at the coming of the Son of Man. 40 Two men will be in the field; one will be taken and the other left. 41 Two women will be grinding with a hand mill; one will be taken and the other left. I'm really sorry about everything that has happened to you. When Jesus returns for his millennial reign over the earth which will be after the tribulation. His followers will help rule over the earth with Him. And if you still want, you will be able to have a very important position in the medical field. in John 11:25 Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live: 1 Corinthians 15:51-57 Behold, I shew you a mystery; We shall not all sleep, but we shall all be changed, 52 In a moment, in the twinkling of an eye, at the last trump: for the trumpet shall sound, and the dead shall be raised incorruptible, and we shall be changed. 53 For this corruptible must put on incorruption, and this mortal must put on immortality. 54 So when this corruptible shall have put on incorruption, and this mortal shall have put on immortality, then shall be brought to pass the saying that is written, Death is swallowed up in victory. 55 O death, where is thy sting? O grave, where is thy victory? 56 The sting of death is sin; and the strength of sin is the law. 57 But thanks be to God, which giveth us the victory through our Lord Jesus Christ. I hope to meet you in the future. And God has very exciting things in store for His servents. It really will be amazing. Thank you so much for making these videos. I was wondering if there is anyway you could please pray for me. In the past I was not a good servent to Jesus. I really hope to do better in the future. It would mean so much to me if you prayed for me. Thank you.
@LifewithaVent Thank you so much. I really appreciate it. Are you feeling any better? We were so worried about you, when you said you have blood clots in your lungs. And when you said you are having trouble breathing. Were you able to get help from the doctor?
@@spongebob148 I was having a very hard time breathing. i ended up going to the emergency department for treatment. I am releasing a video about the emergency department visit and hospital visit on Sunday.
That clears up the confusion, I was confused when seeing them in the Medical encyclopedia!
I am happy the video was helpful.
I hope you are doing well, I just came across your video. I just want you to know you are DEFINITELY not alone. I'm a guy in my 40s, have had 7 years of hell lol, in and out of ERs, told I was crazy, doctors don't believe symptoms are real. I've had hundreds of blood tests, IVs, bizarre tests, specialists, etc, etc. I suffer every day, many of your exact symptoms, cardiac probs, extreme muscle weakness, pots, life threatening swings in my bp, skin burning, vision probs, gastro probs, raynauds, etc. Nothing seems to help at all lol. Every time I have a flare my symptoms become permanently worse. Have people who depend on me and can't work, it sucks but I keep going. I understand what your going through and I hope someone can find something soon that permanently helps us all. Thanks for making vids!
Thank you so much for sharing. I am so sorry you have been through so much. I appreciate all your kindness.
I suggest you go on an extended fast. And I mean no cheating. Water and salt only. I personally recommend LMNT because I've used it and I know it works. If you can get at least 21 days, you'll reset your immune system. Once you get into ketosis and your body canabalizes the things making you feel terrible, you'll have to get carefully start therapeutic refeeding, refeeding syndrome is no joke and can kill you if you mess it up, but there's a solid chance you'll get your life back. At the very least, it'll buy you time. I was trach and vent dependent too, I still need to breathe against pressure periodically to maintain gas exchange, this exercise masks intended to make breathing harder are actually good for this, so I'm not stuck on bipap. But I'd rather die than be tied to machines. I don't presume to pick for anybody else, but it's not for me. Reset your immune system with an extended fast. Go from there.
Edited to add: The thing is, if going into ketosis brings remission, you have to stay there to keep it. Good luck.
I'm so glad I discovered your videos! You've got a great channel here. Your videos are all either very compelling or very informative. Thank you!
Thank you so much. I appreciate your kindness.
Somehow, I stumbled onto your channel only to be taken by your story, grace and courage. You are truly, truly inspiring. God bless.
Thank you so much.
I watched an old video of yours just now about October 10. I just wanted to tell you about my wife's best friend. She graduated top five in her high school class with 4.0 GPA and was a Rhodes scholar and had a full college scholarship. At the age of 21, she was driving on the interstate to visit her family back home on college break, a semi truck blew a tire on the interstate. The semi truck driver lost control of his truck and crossed the median and hit her car head on. Her car caught fire and she died. This was back in 1998. In my town, I read an obituary once of a 26 year old man who died of cancer, he just graduated from medical school. This was about ten years ago. When I read that, I felt so sorry for him. I'm a new subscriber. I hope you do well with TH-cam!
Thank you so much for sharing about your wife's best friend. What an incredible life she had. I am so sorry it was cut so short. I am also sorry to hear about the 26 year old who just graduated from medical school and then died from cancer. May their memories be a blessing. Thank you for your kind words, and thank you for subscribing!
You do incredibly important work, thank you, and may you receive comfort in any time of need🙏I found you through your most viral vid, and am very touched by your story. Life is SO mysterious, and we just can’t know what our lot will be. Without a doubt, you’ve helped so many people just by sharing your knowledge and experiences. My favorite line from Mr Rogers (famously a religious man, but he didn’t force that view on others) is “You are enough, I like you just the way you are.” True wisdom🙏❤️🩹
Thank you so much. I appreciate your kindness.
Thank you for a detailed explanation 👍
Thank you for watching.
Hey! Hope you are doing well. Thank you for sharing your content. I appreciate you sharing your story. 🩷
Thank you so much.
Hi, I just saw your video that showed up on my feed and it says it was 3 years ago. I am really happy that you have found a new reason to live and that is wonderful. Every once in a while when you’re thinking you’re having a hard day and you happen to see what someone else is going through it makes you self correct and be grateful. I noticed that you must be a believer because you were mentioned how you prayed a lot. Even though you have not been healed yet, I don’t want you to give up. I have seen people healed, and I don’t know if you believe this, but I know in the Bible that faith comes by hearing the word of God and scriptures are healing to the body. Every day I try to do have my scriptures playing in the background and even if I can’t hear them really well I know they’re playing, and I know that they are drawing in the Lord and His angels and feeding my soul. I am going to add a link here and you might want to play the Scriptures all the time and you don’t have to play them loud in your house but you can claim them for yourself. I was listening to a testimony a while back and the lady prayed 12 years for her husband to be healed and he finally was. Some of us live. I’m going through a lot, but I still believe that we can claim healing and that it is possible and we should never give up on doing it. There’s certain things that run in my family line and I did some deliverance and Repentance and renouncement type praying and a few things that ran in my family line did not come on me or my children. There are family line types of things that you can come against through prayer kind of like inheriting what comes through the line and coming against it through the word of God. I don’t know if you believe this, but I’ve learned this over the years that you have to stand on your authority and Claim, Luke 10:19 and break things off through Galatians 3:13. It’s a different type of praying and it’s a Warfare type Praying. Where are your come in against a lot of different things that God does not want us to suffer from. I still am praying for a few things that run in my family like my shoulders and knees but I’m not gonna give up and I’m gonna believe for strength in these areas and I just want you to know that you can claim your healing to. Here is a good link to listen too and claim it for yourself. th-cam.com/video/wLuHOtt9E-Q/w-d-xo.htmlsi=2FCmUcL7k7XO6evq
Thank you so much for sharing. I appreciate all the information. Thank you also for the link. That is so kind of you to share that with me. I hope you receive healing for everything you are praying for.
Hello and how are you feeling? I appreciate the descriptions of hospice and palliative care! most people aren’t aware of these distinctions.
Thank you so much. I am doing ok. Thank you for asking.
Maybe this is silly, but you have the perfect expressiveness to your face and voice and the perfect cadence for children's content. I just found your channel, but you remind me of Mr. Rogers in your kind mannerisms and sincere expressions. Maybe it would be a fun avenue for you to explore
Thank you so much. I appreciate your kindness. That is a great idea.
@@LifewithaVent Sending you many well wishes and warm regards
@@NeccoWecco Thank you so much.
Thank you for the crystal clear information! You are AMAZINGLY INSIPIRING!!!
Thank you so much.
Your courage is beyond belief. God Bless you
Thank you.
Thank you for this very detailed information. Wishing you the very best💜
Thank you so much.
Nice video,,often wondered about the two
Thank you. I am glad the video was helpful.
I got palliative care, to relieve pain, no treatment for the Liver Angio Sarcoma anymore, though i keep using Humria for the Crohn's disease though. But i am still relatively active and is not certain if i would live 3 months or less (In the Netherlands the treshold for hospice is 3 momths or less).
Thank you for sharing. I am sorry you are going through so much. All my best to you.
Yes! Actually they wanted to give my late mother Palliative care right before she died- which took the medical team by total surprise! Her passing, I mean.
Thank you for sharing. I am so sorry to hear of your mother's death. May her memory be a blessing.
I love watching your videos it inspiring people with different disabilities and I will keep praying for you you're not alone God got you I wish people be more kinder in this world some people are cruel in this world I have a speech impediment it's really hard for me to pronounce words I'm going through a lot of challenges but God will get me through and he will shine a light on me and he will shine the light on you too God bless keep up the great fight
Thank you so much for sharing some of your story with me. I am so sorry you have been through so much. Thank you for all your kindness.
@@LifewithaVent you welcome it ok thanks for your support
Hugs from Canada 🇨🇦❤️🇨🇦❤️
Thank you.
Have you heard of Dr Brooke Golder? Your testimony sounds similar to hers. I think you and her would get along really well 😊
No, I have not heard of Dr. Brooke Golder. I will have to look her up. Thank you for sharing her name with me. I really appreciate it.
You have a beautiful smile❤
Thank you.
LifewithaVent, can you still have a family with your condition?
Yes I can.
Of your 10k Subs, how many have tracheostomy?
That is a great question. (I do not know the answer.)
❤
Thank you.
I'm sorry for the trouble you have experienced. I am a coward who can't even face easy things in life.
Thank you for sharing.
Hi, Miss, I just wanted to say thank you for uploading these videos. I feel really sad that you are talking about hospice. Please know that if you have Jesus as your Lord and savior that in the future you will receive a perfect body that lives forever. Also a lot of people think a terrible time called the tribulation that is mentioned in the Bible is going to happen really soon. And before that happens Jesus will remove his followers from the earth. People call this the rapture. Here is the bible verse that talks about it.
Matthew 24:38-39
For in the days before the flood, people were eating and drinking, marrying and giving in marriage, up to the day Noah entered the ark; 39 and they knew nothing about what would happen until the flood came and took them all away. That is how it will be at the coming of the Son of Man. 40 Two men will be in the field; one will be taken and the other left. 41 Two women will be grinding with a hand mill; one will be taken and the other left.
I'm really sorry about everything that has happened to you. When Jesus returns for his millennial reign over the earth which will be after the tribulation. His followers will help rule over the earth with Him. And if you still want, you will be able to have a very important position in the medical field.
in John 11:25
Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live:
1 Corinthians 15:51-57
Behold, I shew you a mystery; We shall not all sleep, but we shall all be changed,
52 In a moment, in the twinkling of an eye, at the last trump: for the trumpet shall sound, and the dead shall be raised incorruptible, and we shall be changed.
53 For this corruptible must put on incorruption, and this mortal must put on immortality.
54 So when this corruptible shall have put on incorruption, and this mortal shall have put on immortality, then shall be brought to pass the saying that is written, Death is swallowed up in victory.
55 O death, where is thy sting? O grave, where is thy victory?
56 The sting of death is sin; and the strength of sin is the law.
57 But thanks be to God, which giveth us the victory through our Lord Jesus Christ.
I hope to meet you in the future. And God has very exciting things in store for His servents. It really will be amazing.
Thank you so much for making these videos. I was wondering if there is anyway you could please pray for me. In the past I was not a good servent to Jesus. I really hope to do better in the future. It would mean so much to me if you prayed for me. Thank you.
Thank you for sharing. I appreciate all the Scripture verses. I am praying right now for you.
@LifewithaVent Thank you so much. I really appreciate it. Are you feeling any better? We were so worried about you, when you said you have blood clots in your lungs. And when you said you are having trouble breathing. Were you able to get help from the doctor?
@@spongebob148 I was having a very hard time breathing. i ended up going to the emergency department for treatment. I am releasing a video about the emergency department visit and hospital visit on Sunday.
I love your videos and keep on
I recommend you reading
Quran book you will like it
Thank you for sharing.
what happened to you is sad but trust me being a doctor is not happy it's bad really bad actually
good luck in your life
Thank you for sharing.
@@LifewithaVent i always looking forward to your videos during my night shift
Perhaps you should be working @@loyal4theway159
Jesus is going to come back for his second coming. He will heal those that believe.
Thank you for sharing.