Thank you sharing your channel with me. I've found my FND diagnosis very difficult. Constant relapses and pain. It helps knowing that there's someone to relate to. ❤
I want to come back and watch this again since I am currently dealing with extreme fatigue, but I know some of these tips will help me when I can comprehend and remember them!
Hi Lenny, I am so glad I found your channel- I am new to FND since the fall. You have such grace and patience in dealing with everything. For clenching, I relax with my fists over the edge of the bed helps and gravity, then gradually unclenches it. I find daily tasks really challenging with this symptom. How do you deal with housework, dressing, etc?
Hi how long You have Fnd?? I was diagnosed last September on fnd and now I attend psychology doc and fizjo therapist . They try change my thinking that I don’t have any illness thats so imbarest.
Hi, I loved your post. I am on the same option as you. I have the same problem as you. I have really bad pain in my leg before it comes numb and I can't use my leg. Do you take any pain relief.....love to hear from you....lol
I don't have such bad pain all the time, but do have limbs that stop working! I have some strong prescription painkillers I can take for migraines. Happy to answer any other questions :)
I had the leg pain.. then became numb.. and been in the FND, FMD, etc world ever since.. i lost usage of it and feeling and sensations.. and then came back.. the warmer months i don't feel as bad as the cooler months.. which was seven month of chilly for me.. my onset was sparked resulting from an auto accident.. i think i took gabapentin for the leg stuff.. i had spasms.. that eventually were tremors.. then myoclonic jerking.. almost 4 years ago my thingy began.. almost 3 years i lost the use of my left hand.. seemingly from cane usage.. in the past few months.. I've had much more usage of my acquired claw hand.. but my pinky and ring seem like they'll stay permanent.. i began losing sensation in my right hand last year.. after retesting.. cervical spondylosis and mild nerve damage were diagnosed.. along with the spasms still.. i thank you both for sharing.. I'm gaining enough courage to maybe one day share my story.. thank you.. and much continued success on your journeys
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Im new to FND and struggle with all the said symptoms and im greatful that im not alone
Thank you sharing your channel with me. I've found my FND diagnosis very difficult. Constant relapses and pain. It helps knowing that there's someone to relate to. ❤
It is really hard! Thank you for your comment.
FunctionaLenny was told now that my diagnosed is not confirmed as they are now unsure.
You are not alone. I was diagnosed with FND this summer. It causes periods of partial to complete paralysis that last for minutes or hours.
I want to come back and watch this again since I am currently dealing with extreme fatigue, but I know some of these tips will help me when I can comprehend and remember them!
Please take your time
Hi Lenny, I am so glad I found your channel- I am new to FND since the fall. You have such grace and patience in dealing with everything. For clenching, I relax with my fists over the edge of the bed helps and gravity, then gradually unclenches it. I find daily tasks really challenging with this symptom. How do you deal with housework, dressing, etc?
i have fatigue too
what tablets do you take for your bad heads ? love your sense of humur
Kevin Ratley I used to be on a preventative called Sandomigran. I now just take a variety of painkillers when I get a migraine.
Hi how long You have Fnd?? I was diagnosed last September on fnd and now I attend psychology doc and fizjo therapist . They try change my thinking that I don’t have any illness thats so imbarest.
Peter Doniec I’ve had FND for about 1 year. I think physiotherapy and psychologist are a good idea!
Thank you for your video
Hi,
I loved your post. I am on the same option as you. I have the same problem as you. I have really bad pain in my leg before it comes numb and I can't use my leg. Do you take any pain relief.....love to hear from you....lol
I don't have such bad pain all the time, but do have limbs that stop working! I have some strong prescription painkillers I can take for migraines. Happy to answer any other questions :)
I had the leg pain.. then became numb.. and been in the FND, FMD, etc world ever since.. i lost usage of it and feeling and sensations.. and then came back.. the warmer months i don't feel as bad as the cooler months.. which was seven month of chilly for me.. my onset was sparked resulting from an auto accident.. i think i took gabapentin for the leg stuff.. i had spasms.. that eventually were tremors.. then myoclonic jerking.. almost 4 years ago my thingy began.. almost 3 years i lost the use of my left hand.. seemingly from cane usage.. in the past few months.. I've had much more usage of my acquired claw hand.. but my pinky and ring seem like they'll stay permanent.. i began losing sensation in my right hand last year.. after retesting.. cervical spondylosis and mild nerve damage were diagnosed.. along with the spasms still.. i thank you both for sharing.. I'm gaining enough courage to maybe one day share my story.. thank you.. and much continued success on your journeys