Nov 1: Sobbing at all the love and support in the comments. I'm so grateful for this community you guys have no idea. Thank you Update Nov 2: I'm reading through all the comments and taking notes. I'm eternally grateful for all your well wishes and all the advice I've received so far. Reading about other people's experiences means so much to me right now and I hope other people who are experiencing this will find their way here.
Thank you for taking the time to do this Lana - it can be mind boggling that these things can happen randomly even today without people knowing what causes them or how to go about dealing with them. I can see how much it concerns you which it would anyone. Keep digging and asking around and getting different opinions, you will eventually find an expert who has dealt with this before. Perseverance is key. I will keep you in my prayers.
Thank you soo much for sharing this with us. Please take good care of yourself and please keep us posted. i'll keep you on my prayers. All the love from Saudi for you Lana
Lana, you deserve the very best. You are amazing, intelligent, splendid, beautiful, interesting, intellectual and original. I wish you health, because not only you deserve it, it is much more than that.
This happened to me about three years ago. I went to bed on a Friday night and woke up Saturday morning completely deaf in my right ear. When I say completely, I mean it. Totally deaf. It was terrifying! I went to the doctor and they looked at my ear, it appeared normal in every way. Other than that, they offered me no help at all. The condition lasted about three weeks, upon which my hearing very slowly returned (which took about a month). While my hearing was returning, it sounded very robotic, hollow, and honestly, kind of menacing (if that makes any sense). Your experience mirrors mine so closely! You’re the first person I’ve ever encountered that understands what I went through. Thank you for sharing what you’re feeling and experiencing. This matters!
Once my hearing had completely returned, it was as if the event had never occurred. The robotic, hollow sounds lasted only while my hearing was still returning. I still have no explanation for any of this.
@@ianharrison7406 our body is not as biological as doctors and medicine believe it to be. There are different reasons for sickness and they can be short or long time, depending on how our system deals with this. Long story short, I no longer believe in physical sickness and see most occurrences energetically, which explains a lot of dead ends in medical science. My mentor here was David Hawkins, a medical doctor who did study energies and their impact on the body. Notable specific books are "Healing and Recovery" or "A map of consciousness explained". It is a source of material not many people are open for, but once you understand it such random and rare irrational occurrences are suddenly very common and logical. It will also point to healing, which is something Lana might be interested in too should she read this comment and be open enough for this path. Anyway - I hope this gives some clarification to the seemingly non-understandable events of our body and life.
This happens to a lot of patients of Multiple sclerosis, it may be worth discussing this with your doctor and doing the relevant test to see if it due to degradation of the myeline in the brain
Thank you so much for sharing your story. It means a lot to me, and I'm so happy you're doing better! Do you mind sharing how long it took for the robotic sounds to go away? Also, did it go away gradually or suddenly? Were you given prednisolone or did you get any other treatment?
everyone saying “oh she didn’t actually wake up deaf” she’s experiencing a condition called sudden deafness. it’s no different than how most legally blind people still have some vision left- it’s still called blindness. she didn’t name the condition herself guys.
Very true! I have some lower frequency hearing loss in my left ear, according to my audiologist. I haven't been diagnosed as deaf in that ear, but I consider myself that way. I do not hear as well in my left ear versus my right ear: like the volume is turned way down compared to my right ear. I attribute this to my Multiple Sclerosis, as my left side is more affected that my right. I work in medicine, and when I use my stethoscope, I only put it in the right side. No point in the left, I can't hear anything. Anyone trying to get my attention on that side has to yell.
exactly its a spectrum! anyone who is ranging from hard of hearing to complete absence of it can be considered deaf! i wish people who have no idea what theyre talking about would stop acting like they do
for real, once i woke up and could barely see out of my right eye and became so so scared but thankfully it passed (i think it was stress) so I can't even imagine waking up and going through this
These are the people that have never had it happen to them and don't understand how terrifying it is. It's baffling how people don't understand there are different degrees/levels of everything.
I'm an audiology student (currently at the end of my first year) and the mismanagement of ear and hearing related things is astonishing. Especially considering how vital our hearing is. We are taught that Sudden SNHL is an EMERGENCY and should be referred to an ENT immediately. Good on you for advocating for yourself when the first doctor didn't realise what an emergency this is!
Sweden is a special case. No hyppocratic oath and general lack of compassion in the relation MD-patient, is very noticeable in swedish health care system. Time? There is no such like emergency in the patient's treatment. Feeling pain? Take paracetamolum. Feeling pain for a week, take paracetamolum. Fever? Take paracetamolum. After two weeks, pneumonia? Antibiotic infuse to save you from dying.
@photoportraitist I had no idea, that sounds terrifying. I'd always heard such good things about Sweden as a country but that health care system cannot be sustainable. Is there a particular reason it's that way? like underfunding or... ?
@@beanisbeans many of the reasons why it also kind of happens in my country as well. (Either mostly due to money greed? Not sure but I strive for empathy and kindness.) (I live in Bulgaria, and while I am not sure and do not know the system's hospitality very well, in my experience, the staff appears to be poor at treating patients, particularly when it comes to identifying specific ones. Again, I am not sure and not even at my own personal experience, but really it's as if you have to wait until its too late? Which is sickening and disgusting..
@@photoportraitist Beeing in healthcare in Sweden; we do swear the hippocratic oath and most of the doctors I have met definately feel compassion. But the patients experience may be different and sometimes patients dont feel listened to. That is a failure but is usually due to stress and high workload. Sometimes the patients are not all that easy but we strive to do as good as we can and every patient deserves to be listened too. Sometimes we have to guide the conversation in a certain direction in order to get the information we feel is important, that sometimes is not the same as what the patients thinks is important. My experience is that if you take your time and sit down with the "difficult" patients a lot can be gained and it is very important that they adeqately listened to. Acute hearing loss is to be refered to a ear-doctor (after you have ruled out serious causes like stroke or similar) who will then (usually within 24 h) decide if they start treatment which consists of high dose prednisolone or sometimes antibiotics. The causes are often unknown and can be due to many different things but it is one of those things where we monitor the patients and follow up on them since the cause can be serious. Prednisolone has very low evidence level but is usually given.
About 28 years ago, when I was 7 years old, I woke up with static noise in my right ear. I didn't think much of it (what can you think of it, as a 7-year old boy). I briefly mentioned it to my parents, and they told me "if you still have experience this tomorrow, let us know and we can go to the doctor". I had never really used headphones/earplugs, or listened to loud music/sounds. This totally came out of nowhere. The static noise that I heard, during the day, just became like background noise and I kind of "forgot" it was there if that makes sense. The following days I just didn't really noticed it anymore, and the static noise was gone. A few days later when biking to school with my parents, they noticed me wanting to bike on the opposite side of them of where I would normally ride. When asked about it, I believe I said something like that I could hear them better this way. This lead them to get me to the doctor, and get my ears syringed (I'm not sure if this is the right word, it's where they use a syringe to put warm water in your ears to clear them out). This unfortunately didn't help, and after some time I also started to notice myself that my hearing in the one ear was worse than the other. I had a few years of tests (press the button when you hear the beep) and checkups, to see if they could find out what the root cause of the issue was, but they never really found something. Mind you, this was the time before cochlear implants were widely used, so this was not something . Some things I can remember they said back then: - It's most likely sudden deafness, and it will never get better (it only might get worse - which it didn't) - A hearing aid will never work - The root cause is something "behind" the cochlea (they could not see much further than that back then) - It's only certain tones that are mostly affected, and if you would translate the amount of tones that I can still vaguely hear, I can hear about 24% in my right ear (it hasn't changed in all these years). How it affected my life/still affects my life right now: - In small/crowded areas I have extreme difficulty following conversations (especially if the acoustics are bad). I really have to focus hard to understand people, unless they are directly to my left. - If I enter a room where I sit down, or interact with people, I always check where I can sit so I can hear most people in the room. I always sit at the edges of desks/tables, so I can be the guy that sits on the most right-hand side :) - I feel like I've gotten very creative with words, since I can hear 90% of a conversation, and have to fill in the words I did not hear. For example; I might hear "Did you take the smash outside?"- I know for a fact that my partner did not ask me to put the smash outside, so it would most likely be that she said "trash". Things like this, I feel have made me kind of creative with words, if that makes sense. It also just might be my nature, that I love language/words. Who's to say? ;) - The older I got the more I noticed I was starting to "ignore" the right (my deaf) side visually. My focus is nearly always on the left. For example, if I'm sitting in a restaurant with a group of people, and there's someone to either side of me, I most likely only interact with the person on my left side. I feel like this is an unconsious thing, but I know talking to the person to my right just takes so much energy, since I have to focus extremely hard on understanding them. I am really intrigued about this, and wonder what kind of "experiments" I can do with this, to see if it really is true that I ignore that side of my vision more or not. Some other random facts/thoughts I have about this: - In time (I have had this for over 28 years) you do get used to it. You work around it so often, that it becomes a second nature. - Since being an adult, I have always wanted to do a hearing check at one of those hearing-aid stores, just to mess with them if they find out my right ear is fucked :p - On a more serious note, I do still just want to try out what a hearing aid would do to my ears, even though I know that it will 99.99% sure not do anything for me. - I have gotten so used to it, that I very often forget that I am almost deaf in one ear. I'm sorry for dumping all this information on you like this- there's just so much to say about it, and so many thoughts. It's hard to make one comprehensive story about it, I apologize. First of all, I hope it will get better for you/you get better. And if it doesn't, I want to say not to worry, you will find your way. Just don't give up, and have hope, and make it work for yourself. If you have any questions, I'll gladly answer them. All the best, Nn
I read it all and thank you for sharing your information with uss!! I am amazed how quickly adapt ourselves with the things.. i cannot imagine myself not hearing in one ear but how confident you're leading your life.. you're definitely so bravee🫂
Your situation with hearing issues must be very difficult! Thank you for sharing this. A completely unrelated condition affects some people visually. I had heard about where someone's vision is perfectly fine, but their brain ignores either the right or left field of vision. AI said: This is called hemispatial neglect or unilateral neglect. This occurs when a person can see clearly but their brain ignores one side of their visual field, usually due to damage to one hemisphere of the brain, often the right parietal lobe. This means they might not be aware of objects, people, or even their own body parts on the affected side. For example, they might only eat food on one side of their plate or only shave one side of their face.
Had a similar experience when i was 7 or 8 but i woke up completely deaf on 1 ear, i dont remember if iit was the left or right ear but my mom brought me to the doctor immediately bc it was scary... Doctor prescribed some antibiotics and after 1 week it got better and 2 week everything was normal. Im now 27 and i would say i can hear average, maybe a little bit less than average but no problems In everyday life. i still don't know what i exactly had tho. I think Inflammation. Thank you for sharing ur story
@@LanaBlakely you need to see an audiologist and I've been hearing a lot about the 5G frequencies causing problems and in all honesty I have lost Hearing in one of my ears not completely but I constantly hear the sounds of cicadas which I never had before and it's not just coming from inside my house I could be hearing the same thing walking down the street but be very careful not to let the medical profession over medicate you and I got sick last December here in Houston Texas with something that was like the flu but it went on for four straight months of course I was outside in freezing weather and then later that day the weather warmed up significantly so who knows but what I will tell you about my treatment was they prescribed antibiotics and steroids but you have to be careful with steroids because with my case it caused irregular heartbeat so I'm just sharing this with you so that you have all the opportunities to ask the right questions and I don't want you to worry yourself too much sweet lady
@@LanaBlakely another thing is you might have an inner or middle ear infection which can cause temporary hearing loss so I would make an appointment with an ear nose and throat doctor and you are such a nice lady I just want the best for you
@@LanaBlakely first thing you need to do is go see your primary care physician then get referred to an ear nose and throat specialist. It could be as simple as a middle or inner ear infection
That sounds incredibly scary Lana. This video just shows how no one should take their health for granted. I really hope this clears up for you over the next few weeks.
This reminds me that we sometimes think everyone else's life is perfect and things go wrong with ours. The reality is, we are all facing obstacles in our life but most people don't know it. Thanks so much for your bravery for sharing your story, Lana, and I truly hope the very best for you.
I agree, we're all facing obstacles and most of the time, people don't talk about what they're going through. On the other side, we should all be grateful for the things in life we take for granted. Being able to see and hear properly, being able to breathe without problems and being able to walk. These things can be gone from our lives at any time.
Not necesserily. Problems with hearing can sometimes be the result of the person not hearing their own emotions. So composure is sometimes not the answer, but the problem itself.
I'm so sorry Lana. I personally recently developed tinnitus and can relate to how you are probably feeling. When it first started I did not know how I could ever live with it long-term. I felt like my life as I knew it was ruined. Not only was the sound horrible and my hearing worsened but I also felt I had to quit the activity I was most passionate about in life (dance) due to the loud music involved. I wasn't willing to risk making it any worse. As a result I dropped into a serious depression for several months. However, about one year later and it barely bothers me anymore - it's still there, hasn't changed from what I can tell, but I've gotten used to it. I don't know much about your condition but I just want to offer hope that even something that feels unbearable may not actually be so. I hope you are able to find answers that improve your hearing (keep advocating yourself!), but know that no matter what, we are more resilient than we think and even things that seem impossible can get better. Don't give up hope, and hang in there - you got this.
I can relate to the tinnitus which intensified after a similar experience to this sudden deafness and super weird robotic voices. Thankfully, I'm only left with the tinnitus and, like you have mostly grown accustomed to it.
Lately I'm learning that few things are as important as perspective and being grateful for life on a daily basis. Praying for your speedy recovery Lana. We are with you, as you have been with us during our difficult moments.
@LanaBlakely Ohh no, not my intention. Just wanted you to know that you're not alone. Everyone here has been helped by you. I have watched your "if you need comfort" videos countless times. You're definitely not alone 🙂
As a doctor with a couple years ENT experience, what you’re experiencing is really common actually. Try not to worry, if it is SSNHL, the treatment is oral prednisolone which should be started sooner (within 1 week ideally), if that fails there’s the option of steroid injections into the eardrum (intratympanic injections) which are usually effective within 3 to 4 week window. There’s also the option for hyperbaric oxygen therapy which should be used sooner as possible along side the other treatments (but this option doesn’t have loads of evidence into the benefits). You should also get an MRI scan if SSNHl is confirmed on hearing tests, I’ve seen some people improve completely, some people improve somewhat and some hearing stays the same, but can refer for temporary hearing aids if no improvement which can help with the hearing. There are options, just stay hopeful xx
As an audiologist, I completely agree! I will also add that she should get a full hearing assessment in order to fully confirm the diagnosis of SSNHL and determine its severity (with pure tone audiometry and speech recognition tests). It would also allow to completely rule out a middle ear condition.
could you please specify which temporary hearing aids you would use if there is no improvement. ? i lost my hearing on my right ear 6 years ago and doctor told me that it would be difficult to use these hearing aids and my only option is cochlear implant. thank you
In my situation, it was speculated that my TMJ possibly led to pinching of nerves in my ear as my jaw muscles were so distended. I hard plastic night guard has been helpful in getting some of the hearing back but not back top normal.
@@PaulTaylorWapsiSquarehave you tried Botox for your TMJ? You must do research though because there is always a chance of something going wrong, and only ever go to a medical professional to get this done! But I have heard it helps many people with TMJ, and it may be able to help you improve your hearing more effectively than a mouth guard at night alone! I only have very slight TMJ that comes and goes, but if mine were worse & more consistent, I would absolutely try this option so long as I could find the right professional to do it for me!
I am a professional musician (trumpet player) living in Singapore and had this exact same thing happen to me last month. I took the same steroids you did and regained about 30% of my hearing within a week. I also had MRI head scan to rule out tumour which luckily came out clear. This is very scary I and I'm sorry you're going through this. Hugs and support from Singapore.
This happened to my husband (who is a musician and cannot lose his hearing) last year and his hearing came back after he had a tube put in his ear, which immediately helped by draining the fluid that made him lose hearing in that ear. He first took a round of steroids (like the prednisone you are on), which did nothing. It was a drawn out process and was frustrating. So sorry you’re going through this. Best wishes!
Was he also experiencing diplacuais? (The robotic double sounds). Do you remember how long it took for him to recover? I’m so glad things turned out well for your husband!
@LanaBlakely Intratympanic steroid injection is the procedure I had referenced but couldn’t remember the name of when I originally commented, just FYI.
@@LanaBlakely He did not, actually. I’m afraid my statement was too cut and dry. Once the tube was in, he had immediate relief, but waited around a month to see if the hearing would return on its own before having the procedure. I hope you find relief soon. ❤️
I am glad his hearing was restored! However, it sounds like your husband had fluid behind his eardrum, not sensorineural hearing loss (which is not due to fluid buildup). In sudden onset sensorineural hearing loss, a tube wouldn't help, since the middle ear is not the issue.
I agree with what you said. But, saying that a medication does nothing is just false. Many explain using this medication to prevent the gradual loss of hearing. So, maybe if most people hadn't taken the drug so soon, they would have ended up with a worse outcome. But, in many cases, a drug doesn't have to be the solution since it might not solve the root cause. It is dangerous to say that the drug does nothing especially since people might read this, & decide not to take the medication when it might help them (aka they may have a different experience from what your husband has had). Know that most drugs don't work in the same way in most patients regarding their effectiveness or ability to perform their action sufficiently to treat the patient.
Im sooo relieved seeing all the ppl coming together in tje comments sharing everything they know or they can help with this shows that humanity still exists, im sooo sorry for your experience lana pls stay safe and take good care of yourself, i hope you'll recover very soon ❤️
Sending so much love right now.♥While I am not deaf, I do have Auditory Processing Disorder, which is also very rare, and hard to find information about too. It can be so confusing, and feel so lonely, but I promise you are not alone. I truly admire how you have stepped up to share your experience, because it takes guts, and will help so many people who have to face the same experience. No matter how the next few weeks/months/years go, you will be able to find just as much joy as you've always known, even if that takes time. Sending good vibes for a swift recovery ♥
I'm a doctor, but I'm not ENT. Unless there is an underlying cause to treat (eg, infection), corticosteroids (such as prednisone) are the right treatment. Many people recover their hearing, but the time frame differs. The one thing that you need to keep in mind is that it is at least not getting worse, so the prednisone might be preventing this from getting worse. Good luck. Keep us posted
Prescription of Corticosteroids assumes the immune systems causes the issue. I feel like this is case by case. In general these medication, like painkillers or antibiotics are over prescribed. Microbiologists and doctors should first establish causality. Long term negative effects are almost never investigated with most of these treatment modalities.
@ron5948 Steroids is the standard of care when it's idiopathic as it appears to be here. It not only targets possible immune involvement, but it also targets inflammatory states. Are you proposing it's better to deviate from standard of care and give her nothing instead?
My partner had something like this happen to him shortly after he had the flu, he could hear his own voice sounding robotic and distorted like you're experiencing. His hearing gradually got better over a 8 month period but he now has super sensitive hearing, he also developed tinnitus which i pray you don't get. I saw first hand how distressing this was for him so i really feel for you and so does he, hang in there you will recover!
I'm proud of you for advocating for yourself while at the doctor's, to be seen right away versus waiting until after the weekend, and for taking notes of everything. I'll be praying for you. Stay strong and have faith in miraculous healing/positive outcomes 🩷🩷 sending love.
It takes a lot of courage to speak about health issues, especially shortly after first experiencing them. Thank you so much for sharing and using your platform to create community, even in the harder times. All the best for your recovery, Lana❤
I never commented on TH-cam before but I know exactly how you feel. You're in the unknown scary place. I have been there this summer. I am a healthy 23 year old girl and it was really sudden. For a week I didn't know what I had (in my thyroid) until I found the right doctor and the next day I was in surgery. I am doing better now. I promise you. You will find the light in the end of the tunnel. It might not be the perfect happy ending without problems that we always imagine to have but you'll overcome it and I will pray for you. Sending you so much love and strength. Remember you're stronger than you know 💓
@@qsfilms06 Hey! My neck was swollen, it was a big nodule in my thyroid but I didn't have other symptoms related to thyroid issues. What are you experiencing?
i experienced something similar with my ears. I woke up suddenly at night and my hearing was low and it came with tinnitus. i was told to wait and it will get better as weeks or months went on, thankfully it did. I want to believe the same will happen to you. just make sure you're doing all the precautions to protect your ears. I had to switch from using and ear plugs or headphones and only using speakers, and i made sure i timed myself if i was ever going to be in a loud setting. And something thats most important that i didnt do (because it was so damn difficult) is to still make sure to live your life. Of course thats easier said than done, i spent months constantly doing hearing test and checking to see if my hearing came back every single hour, but it in turn makes you focus on it, and gives anxiety along with that. I tried doing an activity that would prevent me from thinking, because as soon as i started thinking the waves of emotions would come back. And remember it's okay to feel during these times, but make sure you dont spiral. "When in doubt, distract, distract, distract" is what ive been told by a doctor.
I appreciate this comment so much, and I can relate to the constant checking. I'm so glad you got better, and I will remember that line from your doctor.
Wow, this just gave me hope. I thought tinnitus was incurable. I’ve had it for months now and I’m hoping it will just go away. I’m also taking very careful precautions, like never using earphones in my life again & using overear headphones to cancel out the gym music when I’m working out.
I had a similar issue like this about 2 years ago. I went to a concert that was a bit loud, but certainly not the loudest show I’d ever been to. That night and the following days, I noticed the tinnitus that freaked me out, especially when trying to sleep or focus. It wouldn’t go away after a few days and I was very scared. I had a lot of pressure and felt blockage in my ears too, particularly the left one which started to hurt after a few days. My hearing felt muted and a had a strange echo to it like I was under water or in a cave. The doctors first gave me decongestants and then later prednisolone and antibiotics for suspected infection. The infection pain got better, but the ringing and pressure stuck around for weeks and then months. I finally got appointments with ENT doctors who did hearing tests which showed my hearing was in “normal” range. They said there may be some slight hearing loss but nothing extreme, which could be where the tinnitus came from. The second ENT doctor I talked with really helped me manage it though. His advice was to take the low hanging fruit wherever it is to help manage my anxiety and worries about it. Whether it was playing some white noise, soft music, or radio when sleeping/focusing, or staying busy to distract my mind from thinking about the issue too much. Talking about my worries with someone and trying to find practical ways to move forward vs constantly searching the web and reddit for answers and information helped me get through it. Thankfully, things have gotten better now. It took a while, and it’s not 100% solved, but life still goes on. I’m grateful for the health that I have, and cherish the moments that can be enjoyed, even as we face adversity. I hope and pray that we all find the peace in our lives we long for.
@@memocastVitamin B helps reduce tinnitus. I don’t remember why. I first discovered eating cherries reduced mine, then I learned it was likely the vitamin B in them. I take it once in a while when my ears are ringing more than usual.
This happened to me when I was a child. I woke up suddenly at night, as you described, with reduced hearing and very strong tinnitus. I was in pain and extremely scared. Neither my parents nor I knew what was going on. They gave me a pill for the pain and when I woke up again, I could only hear echoes in both ears. Fortunately, my hearing came back progressively and by noon that same day, I had regained it. To this day, I don’t know the reason for this incident. On rare occasions, I still experience tinnitus as well (but it doesn’t hurt and is brief), although I’m not sure if it’s related to that or just stress. Sometimes I just wonder if it’s something I should still worry about. 😓😓
Hey Lana, I'm so sorry and my heart goes out to you for something so horrible happening to you. We all wish you a full recovery and there is light at the end of the tunnel. Best wishes Lana, I can't imagine how hard it is going to be for you, but try to keep positive and remember that this is temporary till otherwise ❤.
Lana, this sounds so scary, and I’m so sorry that this happened to you. I’m wishing for you a full recovery, and every answer you can find. Your videos have helped me so much through the years, I’m disheartened that I can’t offer any help for you now. Please, please get better.
From Japan. I’m learning English with your videos cause I like how you think, learn about things, and share them!! I really hope you’ll get well soon. Take care of yourself. 無理しないでね！！
1) Stay positive (and calm if possible) and remember that your body is alive and is constantly working. It has an incredible ability to make miraculous changes. It's very rare for something to occur that can't be repaired; the same the problem came - the same it can dissapear! 2) Don’t forget you are not alone, we love you and me and many others will either have you in our prayers or in our thoughts - wishing you a full recovery! BELIEVE IT CAN HAPPEN & DON’T GIVE UP! ❤
Sending you lots of love & prayers Lana ❤ it says a lot about you that you're trying to help others with your vulnerability, which isn't easy, especially when it's related to your health.
Long rant: I've been an Audiologist for 5+ years. SSHL is definitely NOT rare! I catch one at least once every few months or often prescribe a hearing aid for somebody who didn't receive treatment or respond to it. It's not rare...it's just _very_ overlooked. Treatment within THREE DAYS has an over 70% chance of success. The closer to day 1, the better! My freshest memory of a case was just a few weeks ago, I had a guy walk into the clinic, no appointment, not a prior patient or registered. After he explained to the reception staff , I apologised to my current patient, asked for 5 minutes to pause what I was doing (because I knew if I didn't and he left with no answers, I could've failed to save his hearing)... looked in his ear, no wax, no discharge and told him to go straight to the hospital. He looked very shocked that it was _that_ serious. Lots of people appear stunned...some say 'Can I go this friday?' and the answer is always 'No, go today'...you must understand that hair cell damage is permanent. We do not regrow these cells. You are born with them how they are. You take care of them. Whether that is keeping your music low or protection at work or in this case, going to the emergency room. . I wrote down the condition on a slip of paper for him, it's important to say it with confidence! "I have a sensorineural hearing loss, I need ENT attention within 72 hours". He recovered great since he got treatment within the same day and I got a nice thank you. That wasn't the first time something like that happened and it will not be the last. I have also tested the same patient 6-12 months apart who are slowly recovering from SSHL. Some recover explosively fast, some it can even take up to an entire year. One very kind mother's experience sticks with me, we would celebrate every dB that she would consistently improve in the low frequencies. It's really heart breaking to see her tears of joy over the small increments of sound that she can feel again. Now she has only a mild hearing loss and it has stayed the same since, thankfully. Some, unfortunately never improve and there were 2 times were I had seen it get way worse and require immediate treatment once more. (These are all very specific memories to me because that is on my top priority list of things I simply cannot miss) On the bright side, a good hearing aid can make such a massive difference. Always with someone who knows what they are doing and is taking your feedback and hearing into account. The same hearing aid can feel drastically different depending on who has programmed it after all! It's important to support a one sided hearing loss. We have two ears for sense of direction. You can get away with one good eye with compensation but with our ears, it can be disorientating to feel like you can't understand where sound is spatially. Depending on your lifestyle, it may also be dangerous or isolating. Many many people enjoy their hearing aid whether its temporary or long term! I hope you find a happy place too, whatever it looks like :) Side note: What I've noticed and the research is very early with this but COVID may be the driver behind increased cases. You may not have any other symptoms, or it might just give you a sniffle but the virus seems to want to attack inner hair cells. I have also seen many young people in their 20s, 30s who developed a processing disorder after having long COVID. (You are speaking to them, their hearing is normal and yet they are just struggling to get your words and fail Speech in Noise testing, it's really concerning) I'll just keep my anecdotal observation of this to myself because there's a lot of controversy when you mention anything COVID related.
I was going to mention Covid. I have had a debilitating almost life destroying case of parosmia which I think came from symptomless Covid. Developed out of the blue and everything smelled like death and burning. Hearing this story immediately made me think of that possibility as parosmia was much more rare before COVID. Mine stayed for a year and I had lots of tests and tried everything there is and despaired and then it suddenly went. And now it comes back now and then. But no doctors listened to me when I said my ears also felt strange. I have glands constantly up in my neck under pressure me ear and they’re painful and I get tinnitus often on one side. They looked a little inflamed a doctor said. I thought perhaps this case of hearing loss could follow a similar slow healing trajectory and the cells in the ears heal and the brain catch up with the confusion and also heal. Edit: I mean the covid virus has attacked the cells and ear apparatus like my nose apparatus was and that the brain gets confused too by new information and also takes time to heal. Like there’s a dual process.
i really pray that your situation gets better, i can’t even imagine going through that. you’re such a light to everyone and i just know that there’s angels on your side, someone like you who’s this good will not have to endure something so horrible. i love you so much and i know that you have the strength (physical and emotional) to fight through this, we’re always supporting you
Very very sorry to hear that happened to you Lana. You brightened my life for a very long time when I was down due to life circumstances and I hope you find some comfort in this reply as I found some in your content.
Thank you for this video Lana. Your authenticity and genuine experience are astounding. You are great. We are here if you need anything. You are really important to me
I experienced something similar just over a year ago. I’m also in my 20’s. I don’t know what happened but I felt sick like I was dying. Some of the symptoms I suffered included hearing loss, hearing robotic voices and sounds, and very loud intense noise in my head that resembled fire or a plane engine. It was nonstop and TERRIFYING. I was going crazy and wondered how I could continue living. The hearing issue symptoms lasted for days (my other symptoms lasted months). No doctors were able to help me. Nobody knew what was wrong. I still wonder till this day what the hell happened to my body. Fortunately I’m healed now. But I’m always terrified that whatever that thing was will come back
My sweet Lana, I’m so sorry! I’m sending you all the healing wishes and hope this all gets better soon! I have hope you’ll be okay and will be able to move past this, but know that whatever happens your followers all love you and will never stop supporting you each and every video! Sending so much love! 💗
Lana, despite me never going through this, I just simply want you to know that every single one of us can feel whatever emotions you may find unable to communicate through the screen, and we are all sending love to you through the pain. The sudden strangeness or impermanence of things you never thought could be affected is always something that can knock you out of your skin, but whatever happens will move you and help you grow into the beautiful person that we all see you becoming. I am sending you the brightest of wishes!
I pray that you have a full and speedy recovery. We are all with you. You have a very bright and powerful spirit. We believe that you will get through this and recover very soon. Sending you all my love and prayers ❤️
THIS HAPPENED TO ME! I went to bed totally normal, and woke up the next day deaf in one ear. I went to multiple doctors, was given steroids (which helped bring my hearing back), and finally an ENT scheduled an MRI just in case. Sure enough, I had an acoustic neuroma (a slow-growing 100% benign type of tumor that presses on the nerve responsible for hearing). I got it treated swiftly with radiation therapy (too 3 sessions, very minimal side effects). However as the steroids wore off after a month or so my hearing disappeared again. My doctor said that steroids helped because they are basically just super powerful anti-inflammatories, and so it had likely reduced the pressure of the tumor pressing on the nerve. Because I couldn't stay on steroids, I have adopted an anti-inflammatory diet and take maximum-potency turmeric supplements (turmeric is famous for it's anti-inflammatory properties) every day, and it allows me to hear almost normally with only minor hearing loss on one side. I-kid-you-not, the turmeric supplements are the reason I can hear. One time I lost them while travelling for a month and I literally lost all my hearing until I started taking them again.
I am loosing my hearing from my 22, now 40. It is pretty bad now, I can't hear peopole without hearing aid. Do you think this supplements can help in cases like mine, tnx?
so scary, i wonder what is causing this?? sudden hearing loss doesn't even make sense to happen. Really hope you can recover! but good advice to take anti-inflammatory foods
Good for you for reading up on the condition, getting it checked out, and advocating for yourself to make things happen promptly! Not an MD, but as others have said, you probably want to get a more complete work-up in the near future and see if other treatment options are recommended in addition to/instead of the prednisolone.
You are such a strong and considerate person to take the time to share this information in the middle of such a stressful situation. Remember to be kind to yourself. One foot in front of the other.
Thank you for sharing your story ❤ A few years ago when I was 17 years old, I began to have a loud ringing in my right ear and in the following morning I woke up fully deaf in that ear. Took medication but unfortunately my hearing never came back! Really struggled in the beginning and felt deeply depressed...but with a lot of time and patience I've made peace with my new reality! As it's a very rare condition and an internal experience, it can be quite a lonely and depressing thing to go through...but I've realized I wouldn't be the person I am today if I hadn't gone through this! We need to stay strong and find joy beyond our hearing, and not let it affect our mental being
I had something similar a few years ago. I would constantly hear myself when I talked and had feeling of fullness in my ear. It was one of the scariest things I ever experienced. No doctor could diagnose it. Thankfully 2 months later it passed on it’s on and hasn’t returned since. Hoping you recover soon, I feel your pain 🙏
I experienced sudden hearing loss following a COVID infection, and it took nearly six weeks before my hearing returned to normal. As a composer and music producer, it was one of the most terrifying experiences of my life. Music isn’t just my career-it’s my passion, my identity, and the way I connect with the world. Suddenly being unable to hear properly felt like losing a part of myself. Every day, I worried about whether this might become permanent, and I found myself spiraling into thoughts about what my life would look like without music. The uncertainty was overwhelming. The doctor reassured me that in most cases, it resolves on its own, and thankfully, it did for me. Lana, I truly hope you’ll have the same positive outcome and that your hearing will be normal soon.
Oh my god Lana, I had the same thing happen to me 2 years ago. I’m also a woman in my 20s. It was the scariest thing. I have avoided loud places my entire life basically, I even use headphones when using a blender. And such a thing happened to me? It felt so unfair. I also took predisolone for 2 weeks as well as Betasserc and magnesium with B6. Please try to get hyperbaric oxygen therapy as soon as possible! I had about 8 sessions (5 days a week and 3 days the other week). They basically put you in a glass chamber and raise the oxygen, you stay there for about an hour per session. It promotes healing in the ears. I am claustrophobic so you can imagine my fear of going there, but it wasn’t too bad. You can watch TV whilst being in there and the staff constantly monitors you. What is also important is trying to avoid stress and take it easy. I know it’s difficult and I basically cried every day, but try to destress as much as possible - get cozy, read a book, cook something good. Stress can make it worse apparently. Also don’t use any headphones during this time! My hearing luckily recovered after a few weeks and I’m okay now. However my hearing in my one ear is still a bit worse than in my other unaffected ear. The whole experience was very traumatic for me and that unfortunately has left a mark, making my health anxiety worse. Also, I don’t use headphones basically at all anymore because the whole thing has made me reevaluate what I do to my ears. I just let the music or whatever I’m listening to play softly from my computer. If you need to talk to someone, let me know! I know how isolating and scary this experience can be. ♥♥
Thank you so much for sharing!! It's so valuable to me. I'm so glad you got better. Did you also experience diplacusis? (the robotic/double sounds). If so, did it go away and after how long? I've looked into hyperbaric oxygen therapy as well. It looks a bit scary but it's definitely worth a try.
@ I don’t think I had the robotic sounds necessarily. For me it started as a huge pressure in my ear until I went deaf in one ear. I didn’t even hear when I tapped or touched my ear, that’s how bad it was. As for the healing, I think it started improving after a week or so? And then another week after that it was pretty healed. But I was rushed into that hyperbaric oxygen therapy a day after getting on meds and I think that played a huge part in the healing. I know it seems scary but try to take it one day at a time. ❤️ Since the pressure raises in the chamber, you can take a piece of gum and chew it once they start the therapy (raise the pressure and oxygen) and once they end it and lower the pressure. Granted, you have to keep the gum in your mouth for the session which is annoying, but it helped to equalise the pressure in the ears when it was changed. It’s sort of like when the plane takes off and lands and the pressure changes, I usually chew gum then as well. You just lie there and the staff can talk to you via a phone that’s attached. The traumatic part of all this was of course the deafness, but also how I wasn’t taken seriously. My GP nurse said my ear was okay and I should just use nasal spray. I called the national nurse hotline and they hung up on me and told me I was “fine”. I rushed to the ER after a few days and then the ENT there also said she didn’t see anything, but luckily referred me to a hearing test. And the ENT who was in the next day took me seriously and put me on meds. I’m glad you got a diagnosis and predisolone quickly! I hate when we are just gaslit into thinking nothing is wrong with us. 😭
This is literally what happened to me. I had a fever lasting for two days and the next morning both my ears suddenly went deaf. Now my left ear is significantly worse than my other ear, and sounds appear to not only seem quieter, but it adds this robotic broken radio effect if I were to listen to music/take phone calls using my left ear. Furthermore, I've got constant ringing in both of my ears which apparently is called tinnitus, and loud sounds hurt my ears. I wish I had seek immediate care from my physician at that time, since there is a limited time for people experiencing sudden hearing loss to recover back both of their hearing (say 1-2 weeks). Anyways, I just wanted to say that you're not alone, and hopefully more people are aware that this can happen to anyone at anytime and so please if any of you reading this happens to know someone who is experiencing the same thing as I do, seek immediate help from doctors and book a Hyperbaric oxygen therapy (HBOT) session during the first week, as fast as possible.
I'm sorry to hear how hard this was for you. I just want you to know that this kind of thing isn't caused by listening to loud sounds. So you shouldn't be discouraged from wearing headphones at a reasonable volume.
I don't have this specific ear condition. but I do have tinnitus in my left ear that came on suddenly, and has not gone away. I never went to loud concerts, I don't drink or smoke, was always careful of my hearing. so I can relate to it feeling really unfair to end up like this, when it feels like I did everything right. hopefully everyone else can at-least have a speedy recovery
Hi Lana, I’ve been a subscriber of yours for a very long time. I haven’t gone through that exact health problem but I’ve been through many health problems which have been extremely challenging. I suffer from terrible Chronic Pain 24/7 which started when I was young. My advice, which it’s extremely difficult to do but it’s achievable, don’t stress overthinking or over researching, once you’ve done a thorough research give yourself time to relax to recenter, allow time to take place for the meditation to kick in and take it a day at a time, these things present in our lives to test our resolve and resilience.
Hope you get well soon Lana! Sending you Positive Energy and Prayers in hopes of your speedy recovery :)) Thanks so much for all you do! As a community, I hope that our support and wishes will help you through this ❤✨
I experienced exactly this as a child, down to every symptom. It happened suddenly, too. My mom brought me to an ENT and after multiple exams and appointments, he said I had some fluid behind my eardrum. He suggested surgery at first to drain the fluid, but mentioned it's very high risk and could perforate the eardrum, so he prescribed ear drops to break down the fluid. They helped, thank God. I recovered from it and now at age 21, never had this happen ever since. I only notice my right ear doesn't hear as well from time to time.
Thank you for being so brave in posting this as it is; this is what makes you so special in my view and why I've continued your journey for years. Stay strong! I'm really hoping your condition will get better soon!
Sending you lots of love Lana. This can be only a temporary situation if that helps any. There may be other people out there that are going through this too who find comfort in your story.❤️
I can only imagine how scared and anxious you are feeling with all the uncertainty. I wish I could help in some way. Stay strong Lana. I'm praying for you.❤🙏
Your description of damaged hearing is spot on. I had forgotten about how things sounded when my hearing was compromised due to a bad ENT infection which I experienced a handful of times when I was younger. Have you had a blood count done just to check for a hidden infection? I honestly don't know. But thank you for sharing your story Lana.
Lana, thank you so much for sharing this deeply personal experience with us. I can truly relate to what you're going through. I recently had a surgery-a right tympanomastoidectomy with left myringotomy insertion-after facing hearing issues myself. I remember waking up with one ear feeling blocked and filled with fluid, and struggling to hear clearly. It's such an unsettling feeling, and I completely understand the anxiety and isolation it can bring. Thankfully, after the surgery, my hearing has improved significantly, and I’m so grateful for that. I know the journey you’re on can be scary and uncertain, but please know that there’s hope and support from all of us who’ve walked similar paths. I’m praying for your recovery and truly wishing you healing and peace during this time. You’re not alone, and your courage in sharing your story is helping others feel the same.
I feel so bad for you right now. Life is always throwing challenges at us, and things like this have to require medical attention. Sometimes I fear about losing something super important to me too as well, and becoming depressed, and more because of it. Stay Safe, We Love You, and Keep on doing what you love Girl! ♥♥
it's crazy how one day you can wake up with your world completely turned around and suddenly poor health. wishing you all the best. you're so strong. don't ever give up ❤
I'm so sorry for what you are experiencing Lana. I've myself lost 50% of my hearing when I was 12 y.o and doctors said it could not be helped with hearing aid so mine was specific I guess. I just learned to live like that ; but your condition seems different, I hope you will find something, and relief. Sending love, you are a gem.
I remember a teacher of mine suffering from sudden deafness and as far as a know she recovered just fine. It's really true: health is not everything but without health everything is nothing. All the best to you, Lana!💗
Hey dear Lana 🫂🫂 Thank you for sharing this with the world! It's so important that such amazing people as you share their experiences with such things. Thank you for being so open and allowing your emotions even in that hard time. You're a wonderful person 🖤🖤 I hope you've gotten better by now and wish you a quick and full recovery and all the best from the bottom of my heart 🍀🫂🫂🖤🖤
All the best to you, Lana! I experienced a sudden hearing loss a about 2 years ago. It was very much related to stress at the time and I know how scary it can be. In my case, every went back to normal after a week or so. Sending love, stay strong!
Lana, first of all, I'm so sorry you're going through this. Secondly, my mother was experiencing something similar and after going to several doctors they figured it was an orthodontics problem, she had a surgery called orthognathic and it's a very drastic one, she is still recovering (after 4 months) but the hearing problem is gone. I hope you find a cure for this or that you can have a good adaptation. wishing you the best ❤
Hey, thank you so much for sharing this and for being so open. I haven’t experienced the same, but I’m also struggling with health issues, which is a huge burden in my life. Even though our experiences aren’t the same, I’m very grateful to hear about yours, and I deeply admire your courage to share it, especially in the form of a video! Recording, watching, and maybe even editing it must have been a lot, having to go through it again and again. So thank you for putting in all that work and for your bravery. You’re an incredible inspiration to me, and I appreciate so much how your openness encourages me to be more open about my own struggles ❤
You put on such a strong face and presence with this video especially when I slowly realised that you are speaking to the camera with these hear difficulties and still able to hear the echoey weird sounds or voice noise. All the best - I have never seen you before but I will send you healing vibes hundredfolds!!
I’m so sorry to hear about what you’re going through. I can only imagine how overwhelming this must feel. It’s a lot to take in, but I’m confident you’ll find strength through this, and we’ll be right here with you every step of the way 🤍
I'm sending you love and light Lana. I'm so grateful for your presence on here and the strength you have given others. I'm praying you find the strength you need
@@LanaBlakely The hyperacusis will get better in about 6 months, you'll likely have tinnitus permanently after this, but it will peel away layers in it's complexity over the next couple of years and end up less annoying. I just want to tell you it will never be worse than it is today. I've been through this myself a few years ago.
You are so brave to make this video. I have experienced sudden changes in health and its so scary and difficult to adjust. Especially when its so rare. You search and try to find answers and they are difficult to find. You are encouraging others by putting your story out there. I hope and pray for your health. God Bless
I also got SHL since I was 7, and then tinnitus at 15. But, I have adapted to those change considering I'm still sane. one of the most human strengths is our adaptability. Good luck!
i just drop some ideas that came into my mind after watching this video: - acupuncture/chinese medicine - tibetan medicine to improve blood circulation (padma28) - breathwork to also improve circulation in the small tissues
I am so sorry you are going through this, Lana. I didn't know about this condition and I've suffered only mild ear related issues, and those were really annoying and made me worried... So I can only imagine what you are going through. I hope this issue resolves and you can recover your normal hearing. Even if medicine does not seem to help, there is always hope that as sudden it came, it can also go by itself. Trust in your body and its ability to heal. Wishing you the very best and I hope you remember to take care of yourself and not stress too much over what you can't control. As hard as it may be, peace of mind is really important to heal. ♥
Hi Lana! You are so strong to share this. I’m sure if you ask for help the universe will give you some. I hope you get better soon! It is scary stuff. I admire your bravery.
Your use of silence is a testimony to the degree of vulnerability and seriousness in this video which I don’t think the audience has ever experienced before. This video is gonna bring you way closer to your audience. Hope you get better !
I had to self diagnose diplicausis too! My ENT specialist had never heard of it. I get it across both ears. The pre-warning I get is a ringing in my left ear. I worked out that It happens (for me) when my head is positioned leaning to the left. So If I hear the ringing start, I tilt my head to the right and the ringing stops and I avoid the diplicausis starting. Prior to making this realisation I had experienced the audial problems on 4 separate occasions. The first time I woke up with it and I noticed the bathroom sounded weird, then I cleared my voice and it wasn't right, when I spoke it was awful! It was like reverb, like my ear drums were beating twice for every sound, in both ears. Sounds were loud and it made me a bit dizzy and nauseous. The next time it happened I was listening to a video on my laptop. I had to go to a quiet room, even the sound of the fridge hum was too loud and not right. The 3rd and fourth times happened in bed and that's when I made the connection to the left side positioning of my head. Diplicausis can be caused by a few things, like an ear infection, meniers disease, or a blockage. I feel like in my case it must be something like a blockage as I'm able to clear it by turning my head the other way, IF I do it before the ringing gets too loud. It is a horrible thing to experience and made worse by the fact so little is know about it, and that even some professionals in the ear department haven't heard of it! I've been meaning to make my own video talking about my experience with this, as so little is known about it. Seeing the title of your video is what made me wonder if you had this same thing as me, and as soon as you mentioned the double hearing I knew what it was you were going through! I feel for you, and hope you find a kind of solution like I have, with tilting my head the other way, but the cause of yours could be different to mine.
Nov 1: Sobbing at all the love and support in the comments. I'm so grateful for this community you guys have no idea. Thank you
Update Nov 2: I'm reading through all the comments and taking notes. I'm eternally grateful for all your well wishes and all the advice I've received so far. Reading about other people's experiences means so much to me right now and I hope other people who are experiencing this will find their way here.
Get well soon!
Thank you for taking the time to do this Lana - it can be mind boggling that these things can happen randomly even today without people knowing what causes them or how to go about dealing with them. I can see how much it concerns you which it would anyone. Keep digging and asking around and getting different opinions, you will eventually find an expert who has dealt with this before. Perseverance is key. I will keep you in my prayers.
Thank you soo much for sharing this with us. Please take good care of yourself and please keep us posted. i'll keep you on my prayers. All the love from Saudi for you Lana
Take care Lana,we'll pray for your recovery. It's gonna be okay.
Lana, you deserve the very best. You are amazing, intelligent, splendid, beautiful, interesting, intellectual and original. I wish you health, because not only you deserve it, it is much more than that.
This happened to me about three years ago. I went to bed on a Friday night and woke up Saturday morning completely deaf in my right ear. When I say completely, I mean it. Totally deaf. It was terrifying! I went to the doctor and they looked at my ear, it appeared normal in every way. Other than that, they offered me no help at all. The condition lasted about three weeks, upon which my hearing very slowly returned (which took about a month). While my hearing was returning, it sounded very robotic, hollow, and honestly, kind of menacing (if that makes any sense). Your experience mirrors mine so closely! You’re the first person I’ve ever encountered that understands what I went through. Thank you for sharing what you’re feeling and experiencing. This matters!
May I ask even after it has been 3 years since your hearing return do you still hear sounds as "robotic" or hollow ?
Once my hearing had completely returned, it was as if the event had never occurred. The robotic, hollow sounds lasted only while my hearing was still returning. I still have no explanation for any of this.
@@ianharrison7406 our body is not as biological as doctors and medicine believe it to be. There are different reasons for sickness and they can be short or long time, depending on how our system deals with this. Long story short, I no longer believe in physical sickness and see most occurrences energetically, which explains a lot of dead ends in medical science. My mentor here was David Hawkins, a medical doctor who did study energies and their impact on the body. Notable specific books are "Healing and Recovery" or "A map of consciousness explained". It is a source of material not many people are open for, but once you understand it such random and rare irrational occurrences are suddenly very common and logical. It will also point to healing, which is something Lana might be interested in too should she read this comment and be open enough for this path. Anyway - I hope this gives some clarification to the seemingly non-understandable events of our body and life.
This happens to a lot of patients of Multiple sclerosis, it may be worth discussing this with your doctor and doing the relevant test to see if it due to degradation of the myeline in the brain
Thank you so much for sharing your story. It means a lot to me, and I'm so happy you're doing better! Do you mind sharing how long it took for the robotic sounds to go away? Also, did it go away gradually or suddenly? Were you given prednisolone or did you get any other treatment?
everyone saying “oh she didn’t actually wake up deaf” she’s experiencing a condition called sudden deafness. it’s no different than how most legally blind people still have some vision left- it’s still called blindness. she didn’t name the condition herself guys.
Very true! I have some lower frequency hearing loss in my left ear, according to my audiologist. I haven't been diagnosed as deaf in that ear, but I consider myself that way. I do not hear as well in my left ear versus my right ear: like the volume is turned way down compared to my right ear. I attribute this to my Multiple Sclerosis, as my left side is more affected that my right. I work in medicine, and when I use my stethoscope, I only put it in the right side. No point in the left, I can't hear anything. Anyone trying to get my attention on that side has to yell.
exactly its a spectrum! anyone who is ranging from hard of hearing to complete absence of it can be considered deaf! i wish people who have no idea what theyre talking about would stop acting like they do
for real, once i woke up and could barely see out of my right eye and became so so scared but thankfully it passed (i think it was stress) so I can't even imagine waking up and going through this
I also woke up one morning and could see clearly from one eye. Unfortunately,it didn't improve.is still the same after almost a year
These are the people that have never had it happen to them and don't understand how terrifying it is. It's baffling how people don't understand there are different degrees/levels of everything.
I'm an audiology student (currently at the end of my first year) and the mismanagement of ear and hearing related things is astonishing. Especially considering how vital our hearing is. We are taught that Sudden SNHL is an EMERGENCY and should be referred to an ENT immediately. Good on you for advocating for yourself when the first doctor didn't realise what an emergency this is!
Sweden is a special case. No hyppocratic oath and general lack of compassion in the relation MD-patient, is very noticeable in swedish health care system. Time? There is no such like emergency in the patient's treatment. Feeling pain? Take paracetamolum. Feeling pain for a week, take paracetamolum. Fever? Take paracetamolum. After two weeks, pneumonia? Antibiotic infuse to save you from dying.
@photoportraitist I had no idea, that sounds terrifying. I'd always heard such good things about Sweden as a country but that health care system cannot be sustainable.
Is there a particular reason it's that way? like underfunding or... ?
@@beanisbeans many of the reasons why it also kind of happens in my country as well. (Either mostly due to money greed? Not sure but I strive for empathy and kindness.) (I live in Bulgaria, and while I am not sure and do not know the system's hospitality very well, in my experience, the staff appears to be poor at treating patients, particularly when it comes to identifying specific ones. Again, I am not sure and not even at my own personal experience, but really it's as if you have to wait until its too late? Which is sickening and disgusting..
@@photoportraitist Beeing in healthcare in Sweden; we do swear the hippocratic oath and most of the doctors I have met definately feel compassion. But the patients experience may be different and sometimes patients dont feel listened to. That is a failure but is usually due to stress and high workload. Sometimes the patients are not all that easy but we strive to do as good as we can and every patient deserves to be listened too. Sometimes we have to guide the conversation in a certain direction in order to get the information we feel is important, that sometimes is not the same as what the patients thinks is important. My experience is that if you take your time and sit down with the "difficult" patients a lot can be gained and it is very important that they adeqately listened to.
Acute hearing loss is to be refered to a ear-doctor (after you have ruled out serious causes like stroke or similar) who will then (usually within 24 h) decide if they start treatment which consists of high dose prednisolone or sometimes antibiotics. The causes are often unknown and can be due to many different things but it is one of those things where we monitor the patients and follow up on them since the cause can be serious. Prednisolone has very low evidence level but is usually given.
@@beanisbeans Universal Healthcare always leads to this..
Thanks!
I pray You get well soon, dear Lana 😢😢!!
give me money
@@giovannigiorgio2262shut up
@@giovannigiorgio2262 lol
@@giovannigiorgio2262 Michael wants a date with her, not you.
@@alohaohana901 I am not sure what is going on in this reply section, but I respect and value you all. May God Jesus bless and keep everyone safe.
About 28 years ago, when I was 7 years old, I woke up with static noise in my right ear. I didn't think much of it (what can you think of it, as a 7-year old boy). I briefly mentioned it to my parents, and they told me "if you still have experience this tomorrow, let us know and we can go to the doctor". I had never really used headphones/earplugs, or listened to loud music/sounds. This totally came out of nowhere.
The static noise that I heard, during the day, just became like background noise and I kind of "forgot" it was there if that makes sense. The following days I just didn't really noticed it anymore, and the static noise was gone. A few days later when biking to school with my parents, they noticed me wanting to bike on the opposite side of them of where I would normally ride. When asked about it, I believe I said something like that I could hear them better this way. This lead them to get me to the doctor, and get my ears syringed (I'm not sure if this is the right word, it's where they use a syringe to put warm water in your ears to clear them out). This unfortunately didn't help, and after some time I also started to notice myself that my hearing in the one ear was worse than the other.
I had a few years of tests (press the button when you hear the beep) and checkups, to see if they could find out what the root cause of the issue was, but they never really found something. Mind you, this was the time before cochlear implants were widely used, so this was not something . Some things I can remember they said back then:
- It's most likely sudden deafness, and it will never get better (it only might get worse - which it didn't)
- A hearing aid will never work
- The root cause is something "behind" the cochlea (they could not see much further than that back then)
- It's only certain tones that are mostly affected, and if you would translate the amount of tones that I can still vaguely hear, I can hear about 24% in my right ear (it hasn't changed in all these years).
How it affected my life/still affects my life right now:
- In small/crowded areas I have extreme difficulty following conversations (especially if the acoustics are bad). I really have to focus hard to understand people, unless they are directly to my left.
- If I enter a room where I sit down, or interact with people, I always check where I can sit so I can hear most people in the room. I always sit at the edges of desks/tables, so I can be the guy that sits on the most right-hand side :)
- I feel like I've gotten very creative with words, since I can hear 90% of a conversation, and have to fill in the words I did not hear. For example; I might hear "Did you take the smash outside?"- I know for a fact that my partner did not ask me to put the smash outside, so it would most likely be that she said "trash". Things like this, I feel have made me kind of creative with words, if that makes sense. It also just might be my nature, that I love language/words. Who's to say? ;)
- The older I got the more I noticed I was starting to "ignore" the right (my deaf) side visually. My focus is nearly always on the left. For example, if I'm sitting in a restaurant with a group of people, and there's someone to either side of me, I most likely only interact with the person on my left side. I feel like this is an unconsious thing, but I know talking to the person to my right just takes so much energy, since I have to focus extremely hard on understanding them. I am really intrigued about this, and wonder what kind of "experiments" I can do with this, to see if it really is true that I ignore that side of my vision more or not.
Some other random facts/thoughts I have about this:
- In time (I have had this for over 28 years) you do get used to it. You work around it so often, that it becomes a second nature.
- Since being an adult, I have always wanted to do a hearing check at one of those hearing-aid stores, just to mess with them if they find out my right ear is fucked :p
- On a more serious note, I do still just want to try out what a hearing aid would do to my ears, even though I know that it will 99.99% sure not do anything for me.
- I have gotten so used to it, that I very often forget that I am almost deaf in one ear.
I'm sorry for dumping all this information on you like this- there's just so much to say about it, and so many thoughts. It's hard to make one comprehensive story about it, I apologize.
First of all, I hope it will get better for you/you get better. And if it doesn't, I want to say not to worry, you will find your way. Just don't give up, and have hope, and make it work for yourself. If you have any questions, I'll gladly answer them.
All the best,
Nn
I read it all and thank you for sharing your information with uss!! I am amazed how quickly adapt ourselves with the things.. i cannot imagine myself not hearing in one ear but how confident you're leading your life.. you're definitely so bravee🫂
Your situation with hearing issues must be very difficult! Thank you for sharing this.
A completely unrelated condition affects some people visually. I had heard about where someone's vision is perfectly fine, but their brain ignores either the right or left field of vision. AI said: This is called hemispatial neglect or unilateral neglect. This occurs when a person can see clearly but their brain ignores one side of their visual field, usually due to damage to one hemisphere of the brain, often the right parietal lobe. This means they might not be aware of objects, people, or even their own body parts on the affected side. For example, they might only eat food on one side of their plate or only shave one side of their face.
Had a similar experience when i was 7 or 8 but i woke up completely deaf on 1 ear, i dont remember if iit was the left or right ear but my mom brought me to the doctor immediately bc it was scary... Doctor prescribed some antibiotics and after 1 week it got better and 2 week everything was normal. Im now 27 and i would say i can hear average, maybe a little bit less than average but no problems In everyday life. i still don't know what i exactly had tho. I think Inflammation. Thank you for sharing ur story
Wishing you well, Lana. I'll be praying for that it gets cured, please keep us posted about how everything turns out. We all care about you!!!!
Thank you so much
@@LanaBlakely you need to see an audiologist and I've been hearing a lot about the 5G frequencies causing problems and in all honesty I have lost Hearing in one of my ears not completely but I constantly hear the sounds of cicadas which I never had before and it's not just coming from inside my house I could be hearing the same thing walking down the street but be very careful not to let the medical profession over medicate you and I got sick last December here in Houston Texas with something that was like the flu but it went on for four straight months of course I was outside in freezing weather and then later that day the weather warmed up significantly so who knows but what I will tell you about my treatment was they prescribed antibiotics and steroids but you have to be careful with steroids because with my case it caused irregular heartbeat so I'm just sharing this with you so that you have all the opportunities to ask the right questions and I don't want you to worry yourself too much sweet lady
@@LanaBlakely another thing is you might have an inner or middle ear infection which can cause temporary hearing loss so I would make an appointment with an ear nose and throat doctor and you are such a nice lady I just want the best for you
@@LanaBlakely first thing you need to do is go see your primary care physician then get referred to an ear nose and throat specialist. It could be as simple as a middle or inner ear infection
@@LanaBlakely ♡
That sounds incredibly scary Lana. This video just shows how no one should take their health for granted. I really hope this clears up for you over the next few weeks.
Sounds? [Respectufully]
This reminds me that we sometimes think everyone else's life is perfect and things go wrong with ours. The reality is, we are all facing obstacles in our life but most people don't know it. Thanks so much for your bravery for sharing your story, Lana, and I truly hope the very best for you.
I completely agree with this.
for real
I agree, we're all facing obstacles and most of the time, people don't talk about what they're going through. On the other side, we should all be grateful for the things in life we take for granted. Being able to see and hear properly, being able to breathe without problems and being able to walk. These things can be gone from our lives at any time.
Yes, we all have obstacles we are facing. I truly hope the best for you, Lana!
Your level of composure is admirable.
Not necesserily. Problems with hearing can sometimes be the result of the person not hearing their own emotions. So composure is sometimes not the answer, but the problem itself.
@@Bastet32any scientific evidence to back that up?
@@jamesonklein9363 Lol youre naive if you think theres scientific evidence to back up even 60% of what humanity knows. Get a grip
@@Bastet32 Ah right ok, so you’re full of shit, got it.
@@Bastet32Nonsense comment.
I'm so sorry Lana. I personally recently developed tinnitus and can relate to how you are probably feeling. When it first started I did not know how I could ever live with it long-term. I felt like my life as I knew it was ruined. Not only was the sound horrible and my hearing worsened but I also felt I had to quit the activity I was most passionate about in life (dance) due to the loud music involved. I wasn't willing to risk making it any worse. As a result I dropped into a serious depression for several months. However, about one year later and it barely bothers me anymore - it's still there, hasn't changed from what I can tell, but I've gotten used to it. I don't know much about your condition but I just want to offer hope that even something that feels unbearable may not actually be so. I hope you are able to find answers that improve your hearing (keep advocating yourself!), but know that no matter what, we are more resilient than we think and even things that seem impossible can get better. Don't give up hope, and hang in there - you got this.
Yeah, the classic tinnitus user experience...
I can relate to the tinnitus which intensified after a similar experience to this sudden deafness and super weird robotic voices. Thankfully, I'm only left with the tinnitus and, like you have mostly grown accustomed to it.
i got tinnitus after covid, have it 3 year now, still hard at night 🙁
@@Millylala I wonder if that's what caused my tinnitus... Oh well, not much to do but tolerate it I guess :v
@@Millylala Makes it pretty hard to sleep huh? What methods have you found somewhat effective to deal with it?
All my prayers, Lana. Trust that the body heals, I hope you receive proper guidance soon. LOTS OF PRAYERS. LOTS.
Thank you!!
Lately I'm learning that few things are as important as perspective and being grateful for life on a daily basis. Praying for your speedy recovery Lana. We are with you, as you have been with us during our difficult moments.
This made me cry (again)
@LanaBlakely Ohh no, not my intention. Just wanted you to know that you're not alone. Everyone here has been helped by you. I have watched your "if you need comfort" videos countless times. You're definitely not alone 🙂
@@LanaBlakelyyes you helped us a lot and we want to give our support and love to you ❤
As a doctor with a couple years ENT experience, what you’re experiencing is really common actually. Try not to worry, if it is SSNHL, the treatment is oral prednisolone which should be started sooner (within 1 week ideally), if that fails there’s the option of steroid injections into the eardrum (intratympanic injections) which are usually effective within 3 to 4 week window. There’s also the option for hyperbaric oxygen therapy which should be used sooner as possible along side the other treatments (but this option doesn’t have loads of evidence into the benefits).
You should also get an MRI scan if SSNHl is confirmed on hearing tests, I’ve seen some people improve completely, some people improve somewhat and some hearing stays the same, but can refer for temporary hearing aids if no improvement which can help with the hearing.
There are options, just stay hopeful xx
As an audiologist, I completely agree! I will also add that she should get a full hearing assessment in order to fully confirm the diagnosis of SSNHL and determine its severity (with pure tone audiometry and speech recognition tests). It would also allow to completely rule out a middle ear condition.
could you please specify which temporary hearing aids you would use if there is no improvement. ?
i lost my hearing on my right ear 6 years ago and doctor told me that it would be difficult to use these hearing aids and my only option is cochlear implant. thank you
its been like 5 years is it too late
In my situation, it was speculated that my TMJ possibly led to pinching of nerves in my ear as my jaw muscles were so distended. I hard plastic night guard has been helpful in getting some of the hearing back but not back top normal.
@@PaulTaylorWapsiSquarehave you tried Botox for your TMJ? You must do research though because there is always a chance of something going wrong, and only ever go to a medical professional to get this done! But I have heard it helps many people with TMJ, and it may be able to help you improve your hearing more effectively than a mouth guard at night alone! I only have very slight TMJ that comes and goes, but if mine were worse & more consistent, I would absolutely try this option so long as I could find the right professional to do it for me!
I am a professional musician (trumpet player) living in Singapore and had this exact same thing happen to me last month. I took the same steroids you did and regained about 30% of my hearing within a week. I also had MRI head scan to rule out tumour which luckily came out clear. This is very scary I and I'm sorry you're going through this. Hugs and support from Singapore.
You will get better, Lana 🩵 may God be with you 🙏🏼
This happened to my husband (who is a musician and cannot lose his hearing) last year and his hearing came back after he had a tube put in his ear, which immediately helped by draining the fluid that made him lose hearing in that ear. He first took a round of steroids (like the prednisone you are on), which did nothing. It was a drawn out process and was frustrating. So sorry you’re going through this. Best wishes!
Was he also experiencing diplacuais? (The robotic double sounds). Do you remember how long it took for him to recover? I’m so glad things turned out well for your husband!
@LanaBlakely Intratympanic steroid injection is the procedure I had referenced but couldn’t remember the name of when I originally commented, just FYI.
@@LanaBlakely He did not, actually. I’m afraid my statement was too cut and dry. Once the tube was in, he had immediate relief, but waited around a month to see if the hearing would return on its own before having the procedure. I hope you find relief soon. ❤️
I am glad his hearing was restored! However, it sounds like your husband had fluid behind his eardrum, not sensorineural hearing loss (which is not due to fluid buildup). In sudden onset sensorineural hearing loss, a tube wouldn't help, since the middle ear is not the issue.
I agree with what you said. But, saying that a medication does nothing is just false. Many explain using this medication to prevent the gradual loss of hearing. So, maybe if most people hadn't taken the drug so soon, they would have ended up with a worse outcome. But, in many cases, a drug doesn't have to be the solution since it might not solve the root cause. It is dangerous to say that the drug does nothing especially since people might read this, & decide not to take the medication when it might help them (aka they may have a different experience from what your husband has had).
Know that most drugs don't work in the same way in most patients regarding their effectiveness or ability to perform their action sufficiently to treat the patient.
Wishing you peace as you move through this.
Im sooo relieved seeing all the ppl coming together in tje comments sharing everything they know or they can help with this shows that humanity still exists, im sooo sorry for your experience lana pls stay safe and take good care of yourself, i hope you'll recover very soon ❤️
Sending so much love right now.♥While I am not deaf, I do have Auditory Processing Disorder, which is also very rare, and hard to find information about too. It can be so confusing, and feel so lonely, but I promise you are not alone. I truly admire how you have stepped up to share your experience, because it takes guts, and will help so many people who have to face the same experience. No matter how the next few weeks/months/years go, you will be able to find just as much joy as you've always known, even if that takes time. Sending good vibes for a swift recovery ♥
I'm a doctor, but I'm not ENT. Unless there is an underlying cause to treat (eg, infection), corticosteroids (such as prednisone) are the right treatment. Many people recover their hearing, but the time frame differs. The one thing that you need to keep in mind is that it is at least not getting worse, so the prednisone might be preventing this from getting worse. Good luck. Keep us posted
@@sunshinesmile94 does she notice a reply to a comment? Maybe better to write this as a comment.. just suggesting
@@mn5900they did and she hearted it
@@sunshinesmile94 👆 I hope Lana notices it, and its a beneficial knowledge.🫂
Prescription of Corticosteroids assumes the immune systems causes the issue. I feel like this is case by case. In general these medication, like painkillers or antibiotics are over prescribed. Microbiologists and doctors should first establish causality. Long term negative effects are almost never investigated with most of these treatment modalities.
@ron5948 Steroids is the standard of care when it's idiopathic as it appears to be here. It not only targets possible immune involvement, but it also targets inflammatory states. Are you proposing it's better to deviate from standard of care and give her nothing instead?
I am so sorry, Lana that happened to you. I wish you the strength to go through this scary and tough time.I will pray for you.
So so sorry you are going through this, Lana! Wishing you a full recovery!
I'm rooting for your full recovery, Lana. ❤
My partner had something like this happen to him shortly after he had the flu, he could hear his own voice sounding robotic and distorted like you're experiencing.
His hearing gradually got better over a 8 month period but he now has super sensitive hearing, he also developed tinnitus which i pray you don't get.
I saw first hand how distressing this was for him so i really feel for you and so does he, hang in there you will recover!
Omg verified user
I'm proud of you for advocating for yourself while at the doctor's, to be seen right away versus waiting until after the weekend, and for taking notes of everything. I'll be praying for you. Stay strong and have faith in miraculous healing/positive outcomes 🩷🩷 sending love.
It takes a lot of courage to speak about health issues, especially shortly after first experiencing them. Thank you so much for sharing and using your platform to create community, even in the harder times. All the best for your recovery, Lana❤
I never commented on TH-cam before but I know exactly how you feel. You're in the unknown scary place. I have been there this summer. I am a healthy 23 year old girl and it was really sudden. For a week I didn't know what I had (in my thyroid) until I found the right doctor and the next day I was in surgery. I am doing better now. I promise you. You will find the light in the end of the tunnel. It might not be the perfect happy ending without problems that we always imagine to have but you'll overcome it and I will pray for you. Sending you so much love and strength. Remember you're stronger than you know 💓
hi! how was it associated with your thyroid? I am experiencing the same right now and I have no idea why
@@qsfilms06 Hey! My neck was swollen, it was a big nodule in my thyroid but I didn't have other symptoms related to thyroid issues. What are you experiencing?
I have never seen her in pain so much in her face and eyes, i understand it is difficult, be strong lana. I know you are girl! Love you so much ❤
What a fantastic speaker, no editing. Listening to Lana is soothing, I’m not worried Lana will resume to normal fast.
i experienced something similar with my ears. I woke up suddenly at night and my hearing was low and it came with tinnitus. i was told to wait and it will get better as weeks or months went on, thankfully it did. I want to believe the same will happen to you. just make sure you're doing all the precautions to protect your ears. I had to switch from using and ear plugs or headphones and only using speakers, and i made sure i timed myself if i was ever going to be in a loud setting. And something thats most important that i didnt do (because it was so damn difficult) is to still make sure to live your life. Of course thats easier said than done, i spent months constantly doing hearing test and checking to see if my hearing came back every single hour, but it in turn makes you focus on it, and gives anxiety along with that. I tried doing an activity that would prevent me from thinking, because as soon as i started thinking the waves of emotions would come back. And remember it's okay to feel during these times, but make sure you dont spiral. "When in doubt, distract, distract, distract" is what ive been told by a doctor.
I appreciate this comment so much, and I can relate to the constant checking. I'm so glad you got better, and I will remember that line from your doctor.
Wow, this just gave me hope. I thought tinnitus was incurable. I’ve had it for months now and I’m hoping it will just go away. I’m also taking very careful precautions, like never using earphones in my life again & using overear headphones to cancel out the gym music when I’m working out.
I had a similar issue like this about 2 years ago. I went to a concert that was a bit loud, but certainly not the loudest show I’d ever been to. That night and the following days, I noticed the tinnitus that freaked me out, especially when trying to sleep or focus. It wouldn’t go away after a few days and I was very scared. I had a lot of pressure and felt blockage in my ears too, particularly the left one which started to hurt after a few days. My hearing felt muted and a had a strange echo to it like I was under water or in a cave. The doctors first gave me decongestants and then later prednisolone and antibiotics for suspected infection.
The infection pain got better, but the ringing and pressure stuck around for weeks and then months. I finally got appointments with ENT doctors who did hearing tests which showed my hearing was in “normal” range. They said there may be some slight hearing loss but nothing extreme, which could be where the tinnitus came from. The second ENT doctor I talked with really helped me manage it though. His advice was to take the low hanging fruit wherever it is to help manage my anxiety and worries about it. Whether it was playing some white noise, soft music, or radio when sleeping/focusing, or staying busy to distract my mind from thinking about the issue too much. Talking about my worries with someone and trying to find practical ways to move forward vs constantly searching the web and reddit for answers and information helped me get through it.
Thankfully, things have gotten better now. It took a while, and it’s not 100% solved, but life still goes on. I’m grateful for the health that I have, and cherish the moments that can be enjoyed, even as we face adversity. I hope and pray that we all find the peace in our lives we long for.
@@memocastVitamin B helps reduce tinnitus. I don’t remember why. I first discovered eating cherries reduced mine, then I learned it was likely the vitamin B in them. I take it once in a while when my ears are ringing more than usual.
This happened to me when I was a child. I woke up suddenly at night, as you described, with reduced hearing and very strong tinnitus. I was in pain and extremely scared. Neither my parents nor I knew what was going on. They gave me a pill for the pain and when I woke up again, I could only hear echoes in both ears. Fortunately, my hearing came back progressively and by noon that same day, I had regained it. To this day, I don’t know the reason for this incident. On rare occasions, I still experience tinnitus as well (but it doesn’t hurt and is brief), although I’m not sure if it’s related to that or just stress. Sometimes I just wonder if it’s something I should still worry about. 😓😓
Hey Lana, I'm so sorry and my heart goes out to you for something so horrible happening to you. We all wish you a full recovery and there is light at the end of the tunnel. Best wishes Lana, I can't imagine how hard it is going to be for you, but try to keep positive and remember that this is temporary till otherwise ❤.
hope you get thru this and many are here for you, you are not alone. Hang tight
Lana, this sounds so scary, and I’m so sorry that this happened to you. I’m wishing for you a full recovery, and every answer you can find. Your videos have helped me so much through the years, I’m disheartened that I can’t offer any help for you now. Please, please get better.
From Japan. I’m learning English with your videos cause I like how you think, learn about things, and share them!! I really hope you’ll get well soon. Take care of yourself. 無理しないでね！！
your english is great in written form. good job. keep going
@ thank you!!
1) Stay positive (and calm if possible) and remember that your body is alive and is constantly working. It has an incredible ability to make miraculous changes. It's very rare for something to occur that can't be repaired; the same the problem came - the same it can dissapear!
2) Don’t forget you are not alone, we love you and me and many others will either have you in our prayers or in our thoughts - wishing you a full recovery!
BELIEVE IT CAN HAPPEN & DON’T GIVE UP! ❤
This warms my heart. Thank you for the encouragement. It's needed !!
Wishing you peace and strength as you recover, Lana.
Sending you lots of love & prayers Lana ❤ it says a lot about you that you're trying to help others with your vulnerability, which isn't easy, especially when it's related to your health.
Long rant:
I've been an Audiologist for 5+ years. SSHL is definitely NOT rare! I catch one at least once every few months or often prescribe a hearing aid for somebody who didn't receive treatment or respond to it. It's not rare...it's just _very_ overlooked. Treatment within THREE DAYS has an over 70% chance of success. The closer to day 1, the better!
My freshest memory of a case was just a few weeks ago, I had a guy walk into the clinic, no appointment, not a prior patient or registered.
After he explained to the reception staff , I apologised to my current patient, asked for 5 minutes to pause what I was doing (because I knew if I didn't and he left with no answers, I could've failed to save his hearing)... looked in his ear, no wax, no discharge and told him to go straight to the hospital. He looked very shocked that it was _that_ serious. Lots of people appear stunned...some say 'Can I go this friday?' and the answer is always 'No, go today'...you must understand that hair cell damage is permanent. We do not regrow these cells. You are born with them how they are. You take care of them. Whether that is keeping your music low or protection at work or in this case, going to the emergency room.
. I wrote down the condition on a slip of paper for him, it's important to say it with confidence! "I have a sensorineural hearing loss, I need ENT attention within 72 hours". He recovered great since he got treatment within the same day and I got a nice thank you.
That wasn't the first time something like that happened and it will not be the last. I have also tested the same patient 6-12 months apart who are slowly recovering from SSHL. Some recover explosively fast, some it can even take up to an entire year. One very kind mother's experience sticks with me, we would celebrate every dB that she would consistently improve in the low frequencies. It's really heart breaking to see her tears of joy over the small increments of sound that she can feel again. Now she has only a mild hearing loss and it has stayed the same since, thankfully.
Some, unfortunately never improve and there were 2 times were I had seen it get way worse and require immediate treatment once more.
(These are all very specific memories to me because that is on my top priority list of things I simply cannot miss)
On the bright side, a good hearing aid can make such a massive difference. Always with someone who knows what they are doing and is taking your feedback and hearing into account. The same hearing aid can feel drastically different depending on who has programmed it after all!
It's important to support a one sided hearing loss. We have two ears for sense of direction. You can get away with one good eye with compensation but with our ears, it can be disorientating to feel like you can't understand where sound is spatially. Depending on your lifestyle, it may also be dangerous or isolating.
Many many people enjoy their hearing aid whether its temporary or long term!
I hope you find a happy place too, whatever it looks like :)
Side note: What I've noticed and the research is very early with this but COVID may be the driver behind increased cases. You may not have any other symptoms, or it might just give you a sniffle but the virus seems to want to attack inner hair cells. I have also seen many young people in their 20s, 30s who developed a processing disorder after having long COVID. (You are speaking to them, their hearing is normal and yet they are just struggling to get your words and fail Speech in Noise testing, it's really concerning)
I'll just keep my anecdotal observation of this to myself because there's a lot of controversy when you mention anything COVID related.
I was going to mention Covid. I have had a debilitating almost life destroying case of parosmia which I think came from symptomless Covid. Developed out of the blue and everything smelled like death and burning.
Hearing this story immediately made me think of that possibility as parosmia was much more rare before COVID.
Mine stayed for a year and I had lots of tests and tried everything there is and despaired and then it suddenly went. And now it comes back now and then.
But no doctors listened to me when I said my ears also felt strange. I have glands constantly up in my neck under pressure me ear and they’re painful and I get tinnitus often on one side. They looked a little inflamed a doctor said.
I thought perhaps this case of hearing loss could follow a similar slow healing trajectory and the cells in the ears heal and the brain catch up with the confusion and also heal.
Edit: I mean the covid virus has attacked the cells and ear apparatus like my nose apparatus was and that the brain gets confused too by new information and also takes time to heal. Like there’s a dual process.
Praying for your healing, Lana. You are so brave and thank you for sharing this to us. We are here for you.
i really pray that your situation gets better, i can’t even imagine going through that. you’re such a light to everyone and i just know that there’s angels on your side, someone like you who’s this good will not have to endure something so horrible. i love you so much and i know that you have the strength (physical and emotional) to fight through this, we’re always supporting you
Very very sorry to hear that happened to you Lana. You brightened my life for a very long time when I was down due to life circumstances and I hope you find some comfort in this reply as I found some in your content.
Thank you for this video Lana. Your authenticity and genuine experience are astounding. You are great. We are here if you need anything. You are really important to me
I experienced something similar just over a year ago. I’m also in my 20’s. I don’t know what happened but I felt sick like I was dying. Some of the symptoms I suffered included hearing loss, hearing robotic voices and sounds, and very loud intense noise in my head that resembled fire or a plane engine. It was nonstop and TERRIFYING. I was going crazy and wondered how I could continue living.
The hearing issue symptoms lasted for days (my other symptoms lasted months). No doctors were able to help me. Nobody knew what was wrong. I still wonder till this day what the hell happened to my body. Fortunately I’m healed now. But I’m always terrified that whatever that thing was will come back
My sweet Lana, I’m so sorry! I’m sending you all the healing wishes and hope this all gets better soon! I have hope you’ll be okay and will be able to move past this, but know that whatever happens your followers all love you and will never stop supporting you each and every video! Sending so much love! 💗
Lana, despite me never going through this, I just simply want you to know that every single one of us can feel whatever emotions you may find unable to communicate through the screen, and we are all sending love to you through the pain. The sudden strangeness or impermanence of things you never thought could be affected is always something that can knock you out of your skin, but whatever happens will move you and help you grow into the beautiful person that we all see you becoming. I am sending you the brightest of wishes!
THE TITLE GOT ME RUNNING HERE!
Same here
SAMS
I knew the worth of life and wellness.
Same here
me too, i waas scared for her for life...
I pray that you have a full and speedy recovery. We are all with you. You have a very bright and powerful spirit. We believe that you will get through this and recover very soon. Sending you all my love and prayers ❤️
rooting for your recovery! get well soon, Lana!
THIS HAPPENED TO ME! I went to bed totally normal, and woke up the next day deaf in one ear. I went to multiple doctors, was given steroids (which helped bring my hearing back), and finally an ENT scheduled an MRI just in case. Sure enough, I had an acoustic neuroma (a slow-growing 100% benign type of tumor that presses on the nerve responsible for hearing). I got it treated swiftly with radiation therapy (too 3 sessions, very minimal side effects).
However as the steroids wore off after a month or so my hearing disappeared again. My doctor said that steroids helped because they are basically just super powerful anti-inflammatories, and so it had likely reduced the pressure of the tumor pressing on the nerve. Because I couldn't stay on steroids, I have adopted an anti-inflammatory diet and take maximum-potency turmeric supplements (turmeric is famous for it's anti-inflammatory properties) every day, and it allows me to hear almost normally with only minor hearing loss on one side. I-kid-you-not, the turmeric supplements are the reason I can hear. One time I lost them while travelling for a month and I literally lost all my hearing until I started taking them again.
I am loosing my hearing from my 22, now 40. It is pretty bad now, I can't hear peopole without hearing aid. Do you think this supplements can help in cases like mine, tnx?
so scary, i wonder what is causing this?? sudden hearing loss doesn't even make sense to happen. Really hope you can recover! but good advice to take anti-inflammatory foods
Currently experiencing same post hearing evaluation, MRI and midway through course of steroids…
So the tumor went away, but the hearing hasn't come back? How's that possible?
Good for you for reading up on the condition, getting it checked out, and advocating for yourself to make things happen promptly! Not an MD, but as others have said, you probably want to get a more complete work-up in the near future and see if other treatment options are recommended in addition to/instead of the prednisolone.
You are such a strong and considerate person to take the time to share this information in the middle of such a stressful situation. Remember to be kind to yourself. One foot in front of the other.
Thank you for having the courage to share this! I am praying for you, Lana.
Thank you for sharing your story ❤ A few years ago when I was 17 years old, I began to have a loud ringing in my right ear and in the following morning I woke up fully deaf in that ear. Took medication but unfortunately my hearing never came back! Really struggled in the beginning and felt deeply depressed...but with a lot of time and patience I've made peace with my new reality! As it's a very rare condition and an internal experience, it can be quite a lonely and depressing thing to go through...but I've realized I wouldn't be the person I am today if I hadn't gone through this! We need to stay strong and find joy beyond our hearing, and not let it affect our mental being
Wishing you a quick recovery! Hope you get back to normal soon Lana, stay strong, you can beat this
Take care lana, you'll be fine, we're here
I appreciate that
@LanaBlakely here for you always
I’m so sorry you’re going through this Lana. I truly hope you get better soon!
I had something similar a few years ago. I would constantly hear myself when I talked and had feeling of fullness in my ear. It was one of the scariest things I ever experienced. No doctor could diagnose it. Thankfully 2 months later it passed on it’s on and hasn’t returned since. Hoping you recover soon, I feel your pain 🙏
I experienced sudden hearing loss following a COVID infection, and it took nearly six weeks before my hearing returned to normal. As a composer and music producer, it was one of the most terrifying experiences of my life. Music isn’t just my career-it’s my passion, my identity, and the way I connect with the world. Suddenly being unable to hear properly felt like losing a part of myself. Every day, I worried about whether this might become permanent, and I found myself spiraling into thoughts about what my life would look like without music. The uncertainty was overwhelming. The doctor reassured me that in most cases, it resolves on its own, and thankfully, it did for me. Lana, I truly hope you’ll have the same positive outcome and that your hearing will be normal soon.
Oh my god Lana, I had the same thing happen to me 2 years ago. I’m also a woman in my 20s. It was the scariest thing. I have avoided loud places my entire life basically, I even use headphones when using a blender. And such a thing happened to me? It felt so unfair.
I also took predisolone for 2 weeks as well as Betasserc and magnesium with B6. Please try to get hyperbaric oxygen therapy as soon as possible! I had about 8 sessions (5 days a week and 3 days the other week). They basically put you in a glass chamber and raise the oxygen, you stay there for about an hour per session. It promotes healing in the ears. I am claustrophobic so you can imagine my fear of going there, but it wasn’t too bad. You can watch TV whilst being in there and the staff constantly monitors you.
What is also important is trying to avoid stress and take it easy. I know it’s difficult and I basically cried every day, but try to destress as much as possible - get cozy, read a book, cook something good. Stress can make it worse apparently. Also don’t use any headphones during this time!
My hearing luckily recovered after a few weeks and I’m okay now. However my hearing in my one ear is still a bit worse than in my other unaffected ear. The whole experience was very traumatic for me and that unfortunately has left a mark, making my health anxiety worse. Also, I don’t use headphones basically at all anymore because the whole thing has made me reevaluate what I do to my ears. I just let the music or whatever I’m listening to play softly from my computer.
If you need to talk to someone, let me know! I know how isolating and scary this experience can be. ♥♥
Thank you so much for sharing!! It's so valuable to me. I'm so glad you got better. Did you also experience diplacusis? (the robotic/double sounds). If so, did it go away and after how long? I've looked into hyperbaric oxygen therapy as well. It looks a bit scary but it's definitely worth a try.
@ I don’t think I had the robotic sounds necessarily. For me it started as a huge pressure in my ear until I went deaf in one ear. I didn’t even hear when I tapped or touched my ear, that’s how bad it was. As for the healing, I think it started improving after a week or so? And then another week after that it was pretty healed. But I was rushed into that hyperbaric oxygen therapy a day after getting on meds and I think that played a huge part in the healing. I know it seems scary but try to take it one day at a time. ❤️ Since the pressure raises in the chamber, you can take a piece of gum and chew it once they start the therapy (raise the pressure and oxygen) and once they end it and lower the pressure. Granted, you have to keep the gum in your mouth for the session which is annoying, but it helped to equalise the pressure in the ears when it was changed. It’s sort of like when the plane takes off and lands and the pressure changes, I usually chew gum then as well. You just lie there and the staff can talk to you via a phone that’s attached.
The traumatic part of all this was of course the deafness, but also how I wasn’t taken seriously. My GP nurse said my ear was okay and I should just use nasal spray. I called the national nurse hotline and they hung up on me and told me I was “fine”. I rushed to the ER after a few days and then the ENT there also said she didn’t see anything, but luckily referred me to a hearing test. And the ENT who was in the next day took me seriously and put me on meds. I’m glad you got a diagnosis and predisolone quickly! I hate when we are just gaslit into thinking nothing is wrong with us. 😭
This is literally what happened to me. I had a fever lasting for two days and the next morning both my ears suddenly went deaf. Now my left ear is significantly worse than my other ear, and sounds appear to not only seem quieter, but it adds this robotic broken radio effect if I were to listen to music/take phone calls using my left ear. Furthermore, I've got constant ringing in both of my ears which apparently is called tinnitus, and loud sounds hurt my ears. I wish I had seek immediate care from my physician at that time, since there is a limited time for people experiencing sudden hearing loss to recover back both of their hearing (say 1-2 weeks). Anyways, I just wanted to say that you're not alone, and hopefully more people are aware that this can happen to anyone at anytime and so please if any of you reading this happens to know someone who is experiencing the same thing as I do, seek immediate help from doctors and book a Hyperbaric oxygen therapy (HBOT) session during the first week, as fast as possible.
I'm sorry to hear how hard this was for you. I just want you to know that this kind of thing isn't caused by listening to loud sounds. So you shouldn't be discouraged from wearing headphones at a reasonable volume.
I don't have this specific ear condition. but I do have tinnitus in my left ear that came on suddenly, and has not gone away. I never went to loud concerts, I don't drink or smoke, was always careful of my hearing. so I can relate to it feeling really unfair to end up like this, when it feels like I did everything right. hopefully everyone else can at-least have a speedy recovery
Hi Lana, I’ve been a subscriber of yours for a very long time. I haven’t gone through that exact health problem but I’ve been through many health problems which have been extremely challenging. I suffer from terrible Chronic Pain 24/7 which started when I was young. My advice, which it’s extremely difficult to do but it’s achievable, don’t stress overthinking or over researching, once you’ve done a thorough research give yourself time to relax to recenter, allow time to take place for the meditation to kick in and take it a day at a time, these things present in our lives to test our resolve and resilience.
Hope you get well soon Lana! Sending you Positive Energy and Prayers in hopes of your speedy recovery :)) Thanks so much for all you do! As a community, I hope that our support and wishes will help you through this ❤✨
Thank you for letting us know of this problem which can really help people hope you get better
I experienced exactly this as a child, down to every symptom. It happened suddenly, too. My mom brought me to an ENT and after multiple exams and appointments, he said I had some fluid behind my eardrum. He suggested surgery at first to drain the fluid, but mentioned it's very high risk and could perforate the eardrum, so he prescribed ear drops to break down the fluid. They helped, thank God. I recovered from it and now at age 21, never had this happen ever since. I only notice my right ear doesn't hear as well from time to time.
Thank you for being so brave in posting this as it is; this is what makes you so special in my view and why I've continued your journey for years. Stay strong! I'm really hoping your condition will get better soon!
Sending you lots of love Lana.
This can be only a temporary situation if that helps any. There may be other people out there that are going through this too who find comfort in your story.❤️
I can only imagine how scared and anxious you are feeling with all the uncertainty. I wish I could help in some way. Stay strong Lana. I'm praying for you.❤🙏
Thank you
Your description of damaged hearing is spot on.
I had forgotten about how things sounded when my hearing was compromised due to a bad ENT infection which I experienced a handful of times when I was younger.
Have you had a blood count done just to check for a hidden infection? I honestly don't know.
But thank you for sharing your story Lana.
Lana, thank you so much for sharing this deeply personal experience with us. I can truly relate to what you're going through. I recently had a surgery-a right tympanomastoidectomy with left myringotomy insertion-after facing hearing issues myself. I remember waking up with one ear feeling blocked and filled with fluid, and struggling to hear clearly. It's such an unsettling feeling, and I completely understand the anxiety and isolation it can bring.
Thankfully, after the surgery, my hearing has improved significantly, and I’m so grateful for that. I know the journey you’re on can be scary and uncertain, but please know that there’s hope and support from all of us who’ve walked similar paths. I’m praying for your recovery and truly wishing you healing and peace during this time. You’re not alone, and your courage in sharing your story is helping others feel the same.
Wishing you all the best during this difficult time. You have a whole community here who want nothing but the best for you.
Dear Lana, that sounds so scary and it’s so vulnerable of you to even share it with us. Stay strong girl, I will pray and hope that it gets better🤍
You’re strong. Whichever way all this goes, you’ll adapt and thrive.
I feel so bad for you right now. Life is always throwing challenges at us, and things like this have to require medical attention. Sometimes I fear about losing something super important to me too as well, and becoming depressed, and more because of it. Stay Safe, We Love You, and Keep on doing what you love Girl! ♥♥
it's crazy how one day you can wake up with your world completely turned around and suddenly poor health. wishing you all the best. you're so strong. don't ever give up ❤
I'm so sorry for what you are experiencing Lana. I've myself lost 50% of my hearing when I was 12 y.o and doctors said it could not be helped with hearing aid so mine was specific I guess. I just learned to live like that ; but your condition seems different, I hope you will find something, and relief. Sending love, you are a gem.
I remember a teacher of mine suffering from sudden deafness and as far as a know she recovered just fine. It's really true: health is not everything but without health everything is nothing. All the best to you, Lana!💗
Wishing you a speedy recovery from this Lana.
Love !
Hey dear Lana 🫂🫂
Thank you for sharing this with the world! It's so important that such amazing people as you share their experiences with such things.
Thank you for being so open and allowing your emotions even in that hard time. You're a wonderful person 🖤🖤
I hope you've gotten better by now and wish you a quick and full recovery and all the best from the bottom of my heart 🍀🫂🫂🖤🖤
All the best to you, Lana! I experienced a sudden hearing loss a about 2 years ago. It was very much related to stress at the time and I know how scary it can be. In my case, every went back to normal after a week or so. Sending love, stay strong!
Lana, first of all, I'm so sorry you're going through this. Secondly, my mother was experiencing something similar and after going to several doctors they figured it was an orthodontics problem, she had a surgery called orthognathic and it's a very drastic one, she is still recovering (after 4 months) but the hearing problem is gone. I hope you find a cure for this or that you can have a good adaptation. wishing you the best ❤
Hey, thank you so much for sharing this and for being so open. I haven’t experienced the same, but I’m also struggling with health issues, which is a huge burden in my life. Even though our experiences aren’t the same, I’m very grateful to hear about yours, and I deeply admire your courage to share it, especially in the form of a video! Recording, watching, and maybe even editing it must have been a lot, having to go through it again and again. So thank you for putting in all that work and for your bravery. You’re an incredible inspiration to me, and I appreciate so much how your openness encourages me to be more open about my own struggles ❤
Did any of you actually watch the video 😭 she DID wake up deaf, she’s experiencing sudden deafness
I know right. I was wondering why a lot of people aren’t freaking out more…..
I watched the video 😭
You put on such a strong face and presence with this video especially when I slowly realised that you are speaking to the camera with these hear difficulties and still able to hear the echoey weird sounds or voice noise. All the best - I have never seen you before but I will send you healing vibes hundredfolds!!
I’m so sorry to hear about what you’re going through. I can only imagine how overwhelming this must feel. It’s a lot to take in, but I’m confident you’ll find strength through this, and we’ll be right here with you every step of the way 🤍
I'm sending you love and light Lana. I'm so grateful for your presence on here and the strength you have given others. I'm praying you find the strength you need
Lana, I’m really sorry you’re going through such a scary moment. I hope you feel better very very soon 💙🫂 Thank you for sharing this
Thank you
@@LanaBlakely The hyperacusis will get better in about 6 months, you'll likely have tinnitus permanently after this, but it will peel away layers in it's complexity over the next couple of years and end up less annoying. I just want to tell you it will never be worse than it is today. I've been through this myself a few years ago.
Everything will be okay, you're a strong person Lana, eat well and connect with your loved ones, you are not alone, we're all here supporting you 🩷🩷
Sending you all my best wishes, and hope you heal soon. Take care of yourself; we're all praying for you ❤❤
You are so brave to make this video. I have experienced sudden changes in health and its so scary and difficult to adjust. Especially when its so rare. You search and try to find answers and they are difficult to find. You are encouraging others by putting your story out there. I hope and pray for your health. God Bless
I also got SHL since I was 7, and then tinnitus at 15. But, I have adapted to those change considering I'm still sane. one of the most human strengths is our adaptability. Good luck!
OMG! You're going through so much! I'm so sorry about your experience, I hope that you'll get better so soon🙏
i just drop some ideas that came into my mind after watching this video:
- acupuncture/chinese medicine
- tibetan medicine to improve blood circulation (padma28)
- breathwork to also improve circulation in the small tissues
omega 3 fatty acids also improve blood circulation and support brain health
Keeping you in my prayers Lana, you'll get through this.
I am so sorry you are going through this, Lana. I didn't know about this condition and I've suffered only mild ear related issues, and those were really annoying and made me worried... So I can only imagine what you are going through. I hope this issue resolves and you can recover your normal hearing. Even if medicine does not seem to help, there is always hope that as sudden it came, it can also go by itself. Trust in your body and its ability to heal.
Wishing you the very best and I hope you remember to take care of yourself and not stress too much over what you can't control. As hard as it may be, peace of mind is really important to heal. ♥
I can not even imagine what you are going through, Lana. I wish you a quick recovery and your hearing going back to normal soon ❤
Sending you lots of love and hope your hearing improves. Thank you for being so vulnerable and sharing your experience
Hi Lana! You are so strong to share this. I’m sure if you ask for help the universe will give you some. I hope you get better soon! It is scary stuff. I admire your bravery.
Your use of silence is a testimony to the degree of vulnerability and seriousness in this video which I don’t think the audience has ever experienced before.
This video is gonna bring you way closer to your audience.
Hope you get better !
Wishing you a healthy and quick recovery Lana! Many prayers to you in finding the answers you need with your hearing. 🙏🏾
I had to self diagnose diplicausis too! My ENT specialist had never heard of it. I get it across both ears. The pre-warning I get is a ringing in my left ear. I worked out that It happens (for me) when my head is positioned leaning to the left. So If I hear the ringing start, I tilt my head to the right and the ringing stops and I avoid the diplicausis starting. Prior to making this realisation I had experienced the audial problems on 4 separate occasions. The first time I woke up with it and I noticed the bathroom sounded weird, then I cleared my voice and it wasn't right, when I spoke it was awful! It was like reverb, like my ear drums were beating twice for every sound, in both ears. Sounds were loud and it made me a bit dizzy and nauseous.
The next time it happened I was listening to a video on my laptop. I had to go to a quiet room, even the sound of the fridge hum was too loud and not right. The 3rd and fourth times happened in bed and that's when I made the connection to the left side positioning of my head.
Diplicausis can be caused by a few things, like an ear infection, meniers disease, or a blockage. I feel like in my case it must be something like a blockage as I'm able to clear it by turning my head the other way, IF I do it before the ringing gets too loud.
It is a horrible thing to experience and made worse by the fact so little is know about it, and that even some professionals in the ear department haven't heard of it! I've been meaning to make my own video talking about my experience with this, as so little is known about it. Seeing the title of your video is what made me wonder if you had this same thing as me, and as soon as you mentioned the double hearing I knew what it was you were going through! I feel for you, and hope you find a kind of solution like I have, with tilting my head the other way, but the cause of yours could be different to mine.