***** Thanks, you're sweet! :) Ya know I don't mind if you share my videos ;) LOL thank you for subscribing and I hope to see you more in the comments!
I have just discovered this video and I also have the same condition as you and this makes me feel a lot better mowing that someone else noes how i see and what it is like I will defiantly watch more of your videos👍
Hi thank you for this video. My son is 10 years old and has ocular albinism. I have just started showing him some videos like yours so he knows he's not alone, and can see happiness and success achieved by others like him. Thanks so much!
Catherine Flores have a look at my other video, Living With Blindness. Other voices are featured in it. I'm always here as a resource if either of you have any questions. :) thanks for watching!
Hi! I just discovered this video, it explains albinism in a perfect way. I have albinism and I'm from Italy. I'm the only one in my family like this. Great video!
Great video and channel! I developed Iritis when I was 14 it caused visual impairment and light sensitivity. The treatment which was immunosuppressents and steroids caused me many more health problems. A local healer recommended cannabis and that healed my eyes! Still working on healing the affects of the medication though. I hope you don't have to use eye drops some can have terrible side effects.
I have albinism. It effects my hair eyes and skin. I am also legally blind. I also have nystagmus. I find it really cool to see someone else with albinism because it is not very common in the USA or at least where I'm from. When it is time for me to live on my own I wonder about the basic things like driving or cooking.
Just posted a video about my albinism but didn't go into to much detail about the condition. So I put up a link to your video since you did a great job at explaining OCA.
Thank you for making this video. Very informative. It's interesting that cloudy days are worst than clear sky/sunny days, as you said. How about your response to ambient temperature relative to your pigmented peers. Have you noticed anything in particular in terms of coping with cold or hot weather, sweating, fever? I realize that one thing is how and what you feel/sense heat and another is the actual body temperature. Thanks and congratulations for your channel. All the best.
I actually was thought to have this condition when I was younger by my parents! compared to my twin sister, I was noticeably paler and blonder than her. I also am colorblind and have a prescription of 6.25 and 6.5 with a double astigmatism that cause my eyes to move sometimes. Obviously these qualities don't meet the symptoms of albinism, but when I was younger I was sent to a doctor to make sure =P Insightful video man!
Jeremy White Depending on the size of an object, the sharpness will vary. If I'm reading signs sometimes I can read them if their BOLD and the letters are distinctive. Other times I can SEE signs but cannot read them because the words aren't clear enough. Most of the time though i people begin to recognize logos and such. So I most likely CAN'T read the words 'SubWay" but because of the design of the branding I can tell what it is.
+jahnoah furbert hey there! So, depending on which country you live in, there are various "standards" of visual acuity to deem a person recognized as visually disabled. That's what "legally" blind means. :) sorry I took a while to respond!
Awesome! I have the same albinism as you, except it’s very mild because I have plenty of pigment in my skin! :) BTW being sensitive to the sun is a part of albinism called Photophobia. Just wanted to let you know.
can you see things sharp up close? how close do things have to be? just found your video. it's great btw. also, did you say that light hurts your eyes?
+Viviane Belladona reading distance with size 16 font to size 12 would be comfortable for me at about 4 inches from my face. Things are sharper when they are closer. And yes glare hurts.
I found your video really interesting as I am writing a book where the main character has Albinism, and your video really helped give me some insight into the problems that people with the condition face, with their vision. I have a question for you too: Do you find it hard to read and write, or is it not so much of a problem? Thanks again for the video :) And oh, and by the way I love your artwork, especially the kanji hope sign in the background. I think you have a great talent there!
+Wolf and Raven for reading yes it can be difficult to read normal print books because my eyes tend to fatigue easy. Electronic books are what I love. But reading papers for my job isn't that bad with normal sized print. Writing has really never been an issue for me. I'm an artist. :)
Thanks for replying :) You really helped answer my question ^^ Yes, I love your artwork and think it's really pretty and decorative, especially for someone with limited eyesight. You don't let anything stop you doing what you love! Thanks again :)
Puerto Rico has the highest rate of albinism. The most prevalent type of albinism in Puerto Rico is the Hermansky-Pudlak syndrome (HPS). HPS was observed in five of every six albinos in Puerto Rico. www.huckmagazine.com/art-and-culture/photography-2/pictures-albinism-puerto-rico-world-capital/
JD Dalton cool! Is it because you’re just gonna keep it exciting and interesting? Like not knowing the sex of the baby before born? How do you measure your improvement? Thx
I hate you 😐 making me do math trying to figure out what 4 4ths works out to 🤓 Also, talk more about how your tribe/family reacted and if you faced any discrimination so close to home.
![⭐ฮิตในTikTok!! ( หมูเด้ง MooDeng ) Ver. แดนซ์โจ๊ะๆ ReMix BY [ ดีเจกิต รีมิกซ์ ]](http://i.ytimg.com/vi/3krsyfWUeHU/mqdefault.jpg)
I am an albino and never heard an explanation of my condition so eloquently. Thank you
Good video
George west Thanks for the compliment! Be sure to check out my other videos about living with a visual impairment! Hope all is well! :)
160 subscribers ?! You deserve way more keep it up !
***** Thanks, you're sweet! :) Ya know I don't mind if you share my videos ;) LOL thank you for subscribing and I hope to see you more in the comments!
I have just discovered this video and I also have the same condition as you and this makes me feel a lot better mowing that someone else noes how i see and what it is like I will defiantly watch more of your videos👍
if you want certain topics discussed or questions answered please send them my way or leave a comment! thank you for watching!
Hi thank you for this video. My son is 10 years old and has ocular albinism. I have just started showing him some videos like yours so he knows he's not alone, and can see happiness and success achieved by others like him. Thanks so much!
Catherine Flores have a look at my other video, Living With Blindness. Other voices are featured in it. I'm always here as a resource if either of you have any questions. :) thanks for watching!
You are such an inspiration. Thanks for all you do.
Thank you so much for subscribing
Hi! I just discovered this video, it explains albinism in a perfect way. I have albinism and I'm from Italy. I'm the only one in my family like this. Great video!
+Agnese Marchesini going to Italy next summer with my partner!
Agnese Marchesini SAMMMEEEEEEEEE
Agnese Marchesini my family is from Italy and im the only one in my family ass well
So genuine, so fascinating. Thank you :-)
Great video and channel! I developed Iritis when I was 14 it caused visual impairment and light sensitivity. The treatment which was immunosuppressents and steroids caused me many more health problems. A local healer recommended cannabis and that healed my eyes! Still working on healing the affects of the medication though. I hope you don't have to use eye drops some can have terrible side effects.
I just wear shades
Nice video and you make beautiful art!
Awesome man cool video! Keep it up!!
I have albinism. It effects my hair eyes and skin. I am also legally blind. I also have nystagmus. I find it really cool to see someone else with albinism because it is not very common in the USA or at least where I'm from. When it is time for me to live on my own I wonder about the basic things like driving or cooking.
+Kaitlyn Sabec I don't drive
Just posted a video about my albinism but didn't go into to much detail about the condition. So I put up a link to your video since you did a great job at explaining OCA.
+The suicide journal thank you!
Thank you for making this video. Very informative. It's interesting that cloudy days are worst than clear sky/sunny days, as you said. How about your response to ambient temperature relative to your pigmented peers. Have you noticed anything in particular in terms of coping with cold or hot weather, sweating, fever? I realize that one thing is how and what you feel/sense heat and another is the actual body temperature. Thanks and congratulations for your channel. All the best.
I actually was thought to have this condition when I was younger by my parents!
compared to my twin sister, I was noticeably paler and blonder than her. I also am colorblind and have a prescription of 6.25 and 6.5 with a double astigmatism that cause my eyes to move sometimes.
Obviously these qualities don't meet the symptoms of albinism, but when I was younger I was sent to a doctor to make sure =P
Insightful video man!
Thanks for sharing the link! Loved your response to Ashley's video too!
Aha no problem!
Thanks man!
Nice video I like your art I hope you have kept it up and also thx for keeping this video up.
I have albanism, and I’m from the Philippines 🇵🇭 ^...^
So u CAN see things but u can't see things from far away. Like u can read things up close but not far away?!
Jeremy White Depending on the size of an object, the sharpness will vary. If I'm reading signs sometimes I can read them if their BOLD and the letters are distinctive. Other times I can SEE signs but cannot read them because the words aren't clear enough. Most of the time though i people begin to recognize logos and such. So I most likely CAN'T read the words 'SubWay" but because of the design of the branding I can tell what it is.
What exactly does legally blind mean?? I've heard of it I just don't know what it is.?.?.
+jahnoah furbert hey there! So, depending on which country you live in, there are various "standards" of visual acuity to deem a person recognized as visually disabled. That's what "legally" blind means. :) sorry I took a while to respond!
Awesome! I have the same albinism as you, except it’s very mild because I have plenty of pigment in my skin! :)
BTW being sensitive to the sun is a part of albinism called Photophobia. Just wanted to let you know.
Do you know what OCA you have ? I am an OCA6 and my son a OCA3
I have a question
how many types of albinism is there
albinism
Your awesome keep It up
Janaeshia Dopson sorry for this late reply. Thank you so much for watching! :) I am sure you're just as awesome!
Thanks and don't let negative comments bring you down
For a person that can hardly see, your room is really heavily decorated
i mean, i get that you can see some, but what would the point of decorating your room so much be if you have to be really close to see it
I'm an artist! :) Have you seen my current decor???
+JD Dalton (Samivaya) thats cool, but is all of the art and stuff in your house yours? just curious, some of it looks pretty cool
The HOPE canvases are mine.
+JD Dalton (Samivaya) well, well done, they look good, thanks for replying
can you see things sharp up close? how close do things have to be? just found your video. it's great btw.
also, did you say that light hurts your eyes?
+Viviane Belladona reading distance with size 16 font to size 12 would be comfortable for me at about 4 inches from my face. Things are sharper when they are closer. And yes glare hurts.
Sorry if I question this but do you have eyebrows? I'm really sorry
Yes lol just really light ones
Love your artwork:)
Hi JD nice explanation on Albinism keep it up
I found your video really interesting as I am writing a book where the main character has Albinism, and your video really helped give me some insight into the problems that people with the condition face, with their vision. I have a question for you too: Do you find it hard to read and write, or is it not so much of a problem? Thanks again for the video :)
And oh, and by the way I love your artwork, especially the kanji hope sign in the background. I think you have a great talent there!
+Wolf and Raven for reading yes it can be difficult to read normal print books because my eyes tend to fatigue easy. Electronic books are what I love. But reading papers for my job isn't that bad with normal sized print. Writing has really never been an issue for me. I'm an artist. :)
Thanks for replying :) You really helped answer my question ^^ Yes, I love your artwork and think it's really pretty and decorative, especially for someone with limited eyesight. You don't let anything stop you doing what you love! Thanks again :)
Puerto Rico has the highest rate of albinism. The most prevalent type of albinism in Puerto Rico is the Hermansky-Pudlak syndrome (HPS). HPS was observed in five of every six albinos in Puerto Rico. www.huckmagazine.com/art-and-culture/photography-2/pictures-albinism-puerto-rico-world-capital/
what type of Oculocutaneous are you OCA1a. or OCA1b.
whyyy? lml
Bro can you review TV Max glasses aur binocular f
I have nystagmus too
Hey man I got Albinism too and I am African American
Howdy! What is your visual acuity?
Ya, no I don't have the actual numbers.
JD Dalton cool! Is it because you’re just gonna keep it exciting and interesting? Like not knowing the sex of the baby before born? How do you measure your improvement? Thx
you're awesome! ^-^
U ar the one n only
I'm sure you are just as awesome :)
great viedo
Omg i have oculocatosis albonysom
I don't know how to spell it I am the same as you
Dang I feel sooo bad
Hey
😊 oh thx u
my whole family is blind
Jane The Killer if everyone is blind how did you type this
I'm pretty sure now that trump has albinp
Aryan with Nystagmus~!
whatzup!
I hate you 😐 making me do math trying to figure out what 4 4ths works out to 🤓
Also, talk more about how your tribe/family reacted and if you faced any discrimination so close to home.