My Tourette’s Journey to Diagnosis
ฝัง
- เผยแพร่เมื่อ 5 ก.ย. 2024
- hey everyone💙
it’s officially Tourettes Awareness Month 15th May- 15th June so i’m starting it off with a video about when my tics started, why it took so long to be diagnosed and how they developed into what i now live with everyday.
hope you like this video and it’s not boring?☹️
much love as always💙💙
instagram: @eviemeg
tiktok: thistrippyhippie
🌈🌈🌈🌈🌈🌈🌈🌈🌈
My life won't be complete without Evie. We need more of her.
Your amazing and so strong!❤️💪
So true :)
frrr
Evie is one of those ultra rare human beings, a genuinely interesting and thoughtful person in the TH-cam universe that's mostly filled with shallow non entity's.
Maybe you have OCD and tourete’s sorry if that is not correct spelling☹️
Is it just me or has Evie gotten even prettier since she started her channel? Her fashion has always been spot on, too.
aw☺️☺️💗💗
I love her sense of fashion. It's so breezy and dream-like
Quite
She is a pleasure to look at and to listen too.
Her fashion is really good! I love her fashion.
This is an appreciation comment for Evie’s top😌
my whistle tic was "competing" with yours and it was pretty funny cuz if you would whistle mine would try to be louder
Aww I love thatt
I can’t whistle but I saw a photo of my fiancé looking so cute 😭 and my tics adapted by starting a humming version of the classic cat call whistle 😂
@@yukidooks911 i have the cat call whistle and it is pretty bad when im around people
@a_possible_human Mine did the same thing since today was a bad tic day so specifically my whistles were active. it was also quite funny!
wolf anime do you ever feel antsy when it’s a bad tic day? For me I feel like a kid in the back seat of a longgggg car ride and I gotta move
The description🥺 nothing you ever post could be boring, I’d sit here for hours and listen to you talk trust me!💜
Same
“It’s important for me to explain beans” best thing ever evie
Pls don't comment her tics, it can cause her (who reads comments) to go into a tic attack..
@@gacharse1534 I under stand but I was just trying to help make her tics more fun that’s all
@@gacharse1534 she actually likes most of them and it’s mainly on her livestreams where she can get tic attacks
@@gracepeachey324 There's nothing funny about tics when you have them
@@gacharse1534 please stfu 🤫 and don’t tell people what to do or say, k thannnnnkkkksss 💅🏻
“I literally feel so beautiful” as u should ❤️❤️
You talking about your hiccup tics was IMMENSELY helpful to me, as I have had "hiccups" my entire life. When you noted the difference between the tic hiccups and the real hiccups, I realized my hiccups were just tics, because I also sometimes get real hiccups, and it explains all my other involuntary movements and sounds. Hoping to find out where my tics come from soon.
you’re not boring, it’s very interesting to learn about :) and I’m proud of you for having the courage to post this, it was a great video! I’m so proud of you Evie xx
I’ve had selective mutism since I was 3 (I’m now almost 22) and it’d definitely be interesting to hear about your experiences with that! 💖💖
Omg, I've also had selective mutism since I was 3, now I'm 17
Just a question (I know what selective mutism is) but does it feel different to post a comment that hundreds of people can see than just talking to someone that you only sort of know
@@Rosa123h if I’m not in person and no one is staring at me it is so much easier for me to do stuff.
@@ARGHHHHHHHH oh ok
you don’t talk? :0
Evie you are an inspiration hon I am a Mom of a newly diagnosed daughter with tourrettes. I started watching you and your sweet Mom a while before this happened and so was she. Because of watching you guys once she started exhibiting symptoms we didn't ignore it and got her in to her pediatrician and then to her neurologist. I felt the same feelings you did, so many mixed emotions. She is still her upbeat silly self and I give you and other tourrette suffering TH-camrs she follow for helping her through this. Thank you for your beautiful face for helping so many like my daughter and I.
I love how calm she is all the time
whoop whoop, 100 likes on your comment :3
Also when you said you tap the poles twice it could be tourettic ocd which is quite common in tourette’s. Also POTS because that could also bring ocd tendencies and lots of people with it have tourette’s (I know you have FND but that’s what it reminded me of). And great video❤️💜
Evie, you also said you lined up pencils didn't you... That's another thing that sounds like OCD, I think.
@@londonwestman1 I agree sounds like ocd, but ocd has to have a compulsion/ Brian thinks something bad will happen if the obsession is not done. and then the obsession that satisfies it. She didn’t go into detail but it just sounds like it was a out of a blue thing. And now she does it so much it just a habit now ( like closing your closet door before going to bed) Like I have things that I HAVE to do. But I don’t think something bad will happen if I don’t do it, just is a bit funny feeling if I don’t. I hope that makes sense. Again she didn’t go into detail so if she wants to correct me please do!
@@alexjackowski1329 that does make sense. when i started at my job at a clothing store, part of my training was showing me how to clean the store after we close. they had me do it like twice or something but i kept volunteering to do it. after 8ish months of doing all the cleaning every time i worked, a new girl joined and they had to train her on a day i was working. so i couldnt do any of the cleaning. i went into full manic mode (as i call it) i thought something terrible was going to happen if the new girl didnt clean the store the right way because when i clean, it’s like a mf ritual. every step is the same each time and if it doesn’t happen like that, something bad will happen
@@alexjackowski1329 hi :) I have ocd too and some of my compulsions have really obvious fears behind them, but some were subconscious due to particular stresses and repressed trauma, and it took a while to figure them out. So sometimes people have compulsions and don't realise there's a fear behind it but there's that sense of dread or panic without being aware of the "bad thing" if you know what I mean? I just felt I had to do the thing, especially in school (as an adult those don't happen so much for me).
@Officiallyy Dead for tourettic ocd the actions are caused by premonitory urges, not intrusive thoughts
You are never boring, and the reason your clothes are beautiful is because you are, love you Evie, tell your mom hey. She'll know what you mean.
This video was hard to watch,being sm1 who has Tourette’s and how long it took to get a final diagnosis 💚thank you for spreading alight on this 🎗
My budgie loves your channel cause he thinks you're whistling at him
You constantly amaze me how strong and positive you are. I can't imagine how difficult it has been for you but you are obviously a fighter. Keep up the awareness work and I wish you all the love and happiness you deserve
I'm just here for my daily dose of "Beans" and that wonderful smile!!! Your the best E !!!!!!!
Don’t comment her tics
@@sarahfanti807 Don't tell me what to do!
@@Firemandave911 there just trying to help evie she reads the comments and she asked not to comment her tics because it can trigger them
My granddaughter is named Evie, after a legend! Also my Son has tourette's too, along with Autism, ADHD and a mood disorder. You are amazing x
Awwww thats a really long journey for a correct diagnose 🙁 This top is wonderful it really fits you :)
It was actually interesting hearing the chronological order in which things happened. I hate that you have to go through this but you're still an amazing person. You should feel beautiful Evie because you are and you don't need a shirt for it, but I understand it. I never find you boring, always interesting. Much love from NJ, USA. ❤❤❤
I'm waiting for a diagnosis too, it's been 6 years since my tics started (I'm turning 20 in 3 months) and it's really hard to get a diagnosis in my country and city. It's gotten a lot worse this past year 2020, it was almost like a bomb exploding and all these new verbal and physical tics came. We always thought it was because of my ADHD and or anxiety and stress, because that was what the doctors told us when my tics were milder. Now we've realized it's not tics that comes from anxiety and ADHD, and hopefully I can get some answers soon.
And you're definitely not boring!
Take care 😊💛
evie is just so amazing she’s the cherry on top of this world. love you evie
I love your outfit in this video! This video was very inspiring and i'm so happy you got a diagnosis and are sharing your journey with us.
You're so brave!! I got diagnosed when I was in 2nd grade! I love everything you do and you're always in a positive mood! love ya! ❤️
I have grown up with a friend with Tourette's and I was always too shy to ask about it cause I didn't want to make him feel bad, this has really helped me understand his Tourette's. Thank you Evie 💜💜💜💜💜
I have recently been diagnosed with Tourette’s and I really find your videos on TikTok and TH-cam really helpful, it has also helped me explain to my friends and random people in my school why I am ticing and it has helped me to describe them and I am learning so much about myself and what it is like for other people like me with Tourette’s and how their tics are similar and how they are different. Having Tourette’s has made me make a lot more friends at school and it does have an impact on day to day life but it is also a pain as well especially when you are trying to talk and your tics interrupt the whole conversation (been in that situation many times). But all I want to say is thank you :)
I’ve seen a lot of your TikToks and I also have Tourette’s and you really make me realize that it’s okay to be yourself. I’m glad I found you. You’re amazing Evie!! Keep raising awareness for people like us!!
“Wait a minute ~beans~” it was worth the wait😂😂😂😂
Please don't comment her tics, it can cause her, and other people who have tics who see this comment, to go in ti a tic attack.
@@gacharse1534 I actually have tics and I meant it in a nice way, not mean or anything but I see what you mean but really anything can cause a tic attack from my understanding. Even watching the video can so I'm not really sure how commenting them is any different? If you could explain that'd be very helpful
@@Brokebitchlol when reading a comment, you have to use your voice (between actually talking or reading it in your head). No matter what, reading a tic of your's can put you in a tic attack.
@@gacharse1534 but it's also no different than hearing it, no? If they watch the video they're gonna hear it which can also cause a tic attack and she edits her videos so she hears it again while editing the video so I don't see how commenting a tic is bad?
@@gacharse1534 I think it’s more when Evie does livestreams that it’s really annoying when people comment her tics because that’s when it’s the most triggering💜
Not boring at all and I love how you leave everything in. It’s so educational and you’re stronger than you could ever imagine ❤️
What a gift on a rainy Monday! Thank you for your candour and warmth, as always!
Hey Evie!! You inspired me to make you my inspired artist in my art for your mandala drawing! I'm drawing a mandala as I'm watching right now
We super really love you, seriously.
You have an army here.
I’ve started to notice how tics have progressed over my lifetime from childhood to young adulthood (present), and your channel has really been a blessing. You’ve allowed me to really consider this part of me and I love hearing your experience. Please share more, you’re helping your audience in ways you’ll never know. I’m very curious about your mutism episodes. All my love, Evie. All my support❤️
Evie you're so strong I have learned alot about tourettes and love how positive you are all of the time while filming you are so sweet and kind I hope one day to be as amazing as you are🥰🥰
your voice is so soothing, I could watch you for hours and your videos would help me feel better because you’re so much positivity x I can seehow frustrating it is for you to have to deal with your tics :( you‘re amazing and you‘re doing a great deal educating us on this. thank you for sharing your story x
Well, I don‘t think you‘re boring. As someone who‘s about to geht their Tourette’s diagnosis this video came just in time for me. Thank you so much for sharing!🖤
I like these kind of "formal" educational videos! It gives us an inside look to your life!!! Love you girl!!!
I have ticks and when I go out in public people look at me but watching your videos lets me know I'm not alone so thank you😊
Also that Crochet blanket is so nice!
Awww, “isn’t this top the prettiest…like I just feel so beautiful…”…that was so wholesome and endearing 💕💕🤗
How could you ever be boring? You are so amazing. We should thank you for what you are doing. You are rising awareness on Tourette all over the world. Maybe it would be helpful to also talk about your other experiences (like mutism). If you are comfortable talking about those.
I have ADHD and you're one of the *very* few things that can always keep my attention. I don't think anything that's remotely boring could ever do that. Love you to bits 💖
Evie, Never apologize for who you are! You're an amazing person, not boring at all!! I didn't even seen the video and I liked it already. Respect, Love, love, love!
Never think you're boring Evie, with all the followers you have, I'm sure You help so many people with your knowledge, plus entertainment, you can tell your not faking, some of your tics look really painful, I and many others admire you, keep up the good work, xx
I’m so proud of you and how far you’ve come! Much love
Evie, you are never boring. I always find these videos interesting to watch and learn about it! Thanks for spreading awareness
This was very calming to watch Before I Go to Sleep. Your voice is very calming in your personality is so bubbly and adorable Thank you for existing
Your videos are actually why I now know I have tics caused from my BPD. I watched some of your videos and realized I do so many of the same tics you do, so I was able to look into it. Now watching your videos and how you live your life with them makes me feel a bit more confident when I go out even with my vocal and motor tics. When I have a bad tic or seizure day, I watch your videos and how strong you are. You're amazing! Also, sometimes my tics will reply to what you say which is kind of funny.
You are such an inspiration and my idol I hope you are doing well queen! 💅❤️
U will NEVER be boring, yr vids r ALWAYS enlightening n educational...mainly coz yr such a beautiful person underneath it all
You're not boring! I love listening to you! Thank you so much for sharing your story! You're incredibly strong and you can be so proud of yourself.
Thanks for sharing this Evie. It can't have been an easy video to make but it's invaluable in raising awareness of tourettes syndrome. Respect for not editing anything out as well. Keep up the good work 👍
The hard blinking was my first tic. Love the video; I should make a video like this.
I would love to hear more about your selective mutism story. When I was 3 to the time I was 9 I struggled with selective mutism. Looking back now I view having selective mutism as a blessing and not a curse because it has taught me so much. Your such an inspiration evie and I love hearing about your story!💗🥰
I love when Evie posts!! She really brightens my day. The fact that she is so open and forthcoming is nice. Keep sharing your journey. Much love to you!!
I can truly never thank you enough for making the content you do! Over the past half year I have rapidly developed tics (both motor and vocal) and I had never known anyone with tics before I was completely terrified. Your content has helped so, so much as I have struggled to adjust to this, and like I said I can never thank you enough. You don't have to make the content that you do, but it really does help so many of us!
Also I love this video, and while I enjoy all of your videos, I love the sit down ones!
Yay new Trippyhippy video! You do so much good work, I’ve learnt so much about Tourettes, seizures & FND from you & since I want to work in healthcare I’m sure I’ll be able to put this information to good use 💜
You're not boring at all! Don't even think that... also, this was a very interesting video 'cause it might help people with similar symptoms to know what may be happening to them or just to encourage them to seek help. Your story can help others get an earlier diagnosis and treatment.
You're very educational and important in this (and others) platforms❤
"wait a minute, BEANS!"
I love your vids evie❤❤ you are such an amazing person and i love how you try your best to spread awareness about Tourettes! keep up your AMAZING work!!
This is the first time I've watched this video, and literally at 7:37 I had the exact same tic as you😭 I genuinely shocked it was so in sync
Beautiful story, not boring at all! And you’re right that is a gorgeous top 😊 you have sooooo much patience it’s amazing! Wishing you the best
You’re not boring you are educational and everyone loves how’s you educate people that don’t know about your conditions. You’re an inspiration to everyone .
wait a minute, B E A N S !
0:25
i'm sorry that was my favorite part ilysm-
I would just like to say I loved this video. You are not boring to watch and I love that you still put in the seizures because people don’t realize you don’t have to shake for it to be a seizure
i hope your optometrist appointment goes well❤️
Ahh Evie it’s not boring at all! It’s so good that you’re educating us on this. It’s really helpful to understand what you’ve been through. Thank you for making this video!
Your the best! We all love you! And thank you for the awareness you spread. Your stories are so loving and thoughtful. It just makes me so happy to see that you were able to know what you have. You have a wonderful day! And we will all see you in the next video❤️🧡😊🥰 (also you are never boring) XOXOXOXO
Currently waiting for a neurologist to investigate my migraines.. I was discharged last year but they've kept getting worse and I've already been living with them for over a decade. Medical issues are a nightmare but listening to people talk about their story always helps with not feeling so alone ❤️
Wish you best of luck 💕
The pole tapping really sounds like TOCD (Tourettic Obsessive Compulsive Disorder) which most with Tourette’s have
This is NOT boring. These videos are actually very insightful. As a teacher, and hopefully for you a fellow teacher soon, getting to know about some of the stuff you go through is very useful. Not only because I could always have a student dealing with something similar but also because on a human level it's a good thing to be able to broaden the spectrum of people you connect with and get a glimpse of how they see and navigate the world around them. So, thank you for this video and keep'em coming!
"Yeah I suddenly been having DOUBLE FUCKING VISION for days and it really hurts like hell"
"Oh sorry if you didn't really care about that I just needed to vent a lil bit"
Oh Jesus fucking Christ ......
Been worrying about that leg-situation too.. One that she was having a shoe made for. Anyway wish you all the best you my fav much love.
You said you think you’re boring in this video. Honestly, you’re one of the most interesting people in my opinion. I’ve learned so much about Tourette’s and seizures from you, and I think it will make me a better health care professional because of it. I’ve witnessed my patients having seizures (I’m an mri tech) and it’s very scary to be on the other side of the window and worrying that my patient could get hurt while seizing before I can get to them.
I would be interested in hearing more about your selective mutism. My daughter has TS and Im always interested in learning more and seeing how others experience them
I felt similar to the way you felt when you finally got your diagnosis. I searched for answers for years and finally in 2020 was told I have fibromyalgia. It’s upsetting because I’ll have it my whole life but now I can get the help that I need to live with it. We are warriors 🥰
for the tapping a post twice thing it could be OCD, one of my OCD things that I've gotta do it tap a tables corner twice. it could be a tic but it's also something that happens with me OCD
Mine is obsessive thoughts, or sentences repeat in my head all the time. Or when knocking on a door, it has to be 5 times
Your story is strikingly similar to mine, I’ve had strange “hiccups” for so long and my head would tilt up to the side very quickly, I brushed these off until I had about four seizures back to back that were all pretty severe compared to my usual seizures. After coming out of my seizures I was *listing my tics here if this is a trigger please skip* shaking my head side to side, hitting myself, and making high pitched penguin sounds and beeping, etc. After that incident now every night I try to fall asleep the tics start up all over again. The four seizures and more frequent tics started a few weeks ago, so this video really helped me feel less alone in all of this. Thank you so much for speaking, btw you’re not boring in the slightest;)
First
I love you so much 🥂✨
Its not about being first. Its about getting to know about this. Not trying to argue. Just letting you know.
DO NOT EVER THINK THAT YOU ARE BORING! I am a few years older than you, have had my first stroke at 18, second one less than a month after turning 19 which turned me into a handicapped person. Life is extremely difficult and hard after that. But I want to thank you so much! You are a true inspiration to me! I cannot find enough words to describe how much you brighten up my day, make me happy and simply motivate me! YOU ARE EVERYTHING BUT BORING! YOU ARE AN ANGEL SENT FROM HEAVEN TO EARTH! 👼❤️
Thank you for being yourself, for making my days, my life. For bringing so much joy to everyone's life who is watching you!! And also, THANK YOU SO MUCH FOR EDUCATING US!! And also, I can't tell you how much I admire you in every way!! We need more people like you! You go, gorgeous and courageous gurl! 💪🏻🥰😍❤️😘
23:28
Best "BEANS" yet.
Please don't mention her tics in the comments as it can act as a trigger which would be cruel
@@markcadby Oh thanks, I'll delete the comment.
You are an amazing person and inspirational. I have had tics since I was 5 years old and finally got diagnosed 2 weeks ago at the age of 37 with Tourette’s syndrome and severe ADHD. I’m still learning about Tourette’s and ADHD and the more I learn the more I remember how badly I have struggled all this time. I love watching your videos and they are helping me to understand myself so much more. Many many thanks. Love and respect to you..
so, I'm 12 and seeing a neurologist for tourettes. when i was younger every year I'd have like one new tic and it would only be one, like a sniff, and a cough. but now I have like 20, I'm confused on what neurologists do. I'm kinda scared of doctors, can you please explain what they do to help?
You're a bright light that shines out amongst us. What a brave young lady you are..
How you did piercings with such ticks? It really looks amazing but i can't imagine you sitting still o_o
Tics*
And maybe she got them before she got diagnosed with tics?
@@gacharse1534 she’s had them for a while but maybe
pretty sure she got them before her tics became worse
@@schnuds that would make sense
watched a bunch evie,you are awesome and handle it well. Your parents also!!! The fact that you are fun and a jokester makes it great. Good Job!!! Good job Mum!
You werent boring. I appreciate you being brave enough to share with us. I learned a lot thank you and that is a lovely top its gorgeous. Love your necklace
Evie, I have so much empathy for you, I’m 67 and recently diagnosed with autism. Had I known this years earlier it might have saved my marriage to a woman I still love. It might have also saved me from reinventing three different careers for myself, along with being unable to understand friendships. The biggest regret I have is I didn’t use my intelligence to become a working artist. Evie, at your young age you are an inspiration of acceptance and how to move forward. Thank you.
This has helped me so much to learn about myself with tics and it makes me so happy to know that you have FND because I do too! And I have tics similar to yours so I love the representation!
Dearest E x x I am a married, 50 year old guy and you bring me to tears. I wish you could find a way to get rid of your tics. I am amazed how you keep smiling and keep going through what you do. I so wish that medicine can do something, soon. x x you are an inspiration and the way you selflessly show you, the real you, unedited to educate and share knowledge of tourettes. You have helped me to understand the condition and help some of my customers from a position of understanding. I really admire your strength of character . you are never boring and don't be afraid to just be you to us. We understand thanks to you. x x
Evie is so rare she's genuinely interesting and thoughtful that's so rare on you tube I could listen to anything you post and not get bored
Yes your top is gorgeous I was staring at it literally the whole video🥺
How cute❤btw i love when you clarify something,like ts or fnd,thanks evie💫
This channel is awesome. I never realised how Ill informed I was on tourette's syndrome. Whenever I've come across a person suffering with the condition I never know how to handle it. I always (to my shame) tried to avoid the person/situation. I never knew it was ok to interact and laugh with the person aslong as they haven't hurt themselve. Thank you Evie (The Trippy Hippie) your an absolute inspiration to people with and without Tourette's. I'll be ordering your book. All my love, support and prayers from Wales 🏴.
honestly i'm glad i found out about you, evie. i didn't know about tourette syndrome or you until i saw your tiktok of you playing "who am i" with your family. i'm so glad i learned about this mainly because you're such a wonderful person and i love that you're spreading so much awareness; the world really needs it. thank you, evie.
I find your videos to not only be educational , but entertaining. You yourself (not just your tics) are entertaining and very sweet. Much support!
You should be super proud for being able to make such an informative video which easily explained your journey whilst having tics and seizures! I love your videos, you have such a bubbly personality that brings a smile to my face 😊
You’re such a beautiful girl! I love to watch your video’s. You speak so calm even tho your tics get in the way of the story. Don’t be insecure you’re doing amazing telling people your story and showing what it is like to have tourettes!
Am so proud of you. You bring so much awareness to not just people with tics but other disability also. You have given me the confidence to talk to people more about it and talk to people in general. Thank you do much.
Always a pleasure to see a new upload Evie! Nothing you post is boring ❤️