How Low Dose Naltrexone for Fibromyalgia Can Change Your Life
ฝัง
- เผยแพร่เมื่อ 30 ก.ย. 2024
- Low dose naltrexone for fibromyalgia: the four-year update.
It has changed my life!! I cannot wait to share the results of this long experiment with you.
get my LDN ebook payhip.com/b/DNTL
Timestamps
What is LDN 1:30
How does LDN help fibromyalgia 2:10
Research 3:00
Side effects 4:10
Tips for starting 5:00
How I started and my experience 5:45
The benefits I have experienced 7:00
Pain 7:45
Emotional 9:44
Conclusion 11:00
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Links to help you out
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Disclaimer: Yoga includes physical movements as well as an opportunity for relaxation, stress re-education and relief of muscular tension. As is the case with any physical activity, the risk of injury, even serious or disabling, is always present and cannot be entirely eliminated. If you experience any pain or discomfort, listen to your body, discontinue the activity, and ask for support from your medical team. If you engage in this exercise or exercise program, you agree that you do so at your own risk, are voluntarily participating in these activities, assume all risk of injury to yourself, and agree to release and discharge
#lowdosenaltrexone #fibromyalgia #chronicpain #chronicfatigue #LDNforfibromyalgia
Don't forget to check out the blog post with loads of resources to help you out www.melissavsfibromyalgia.com/2021/03/16/low-dose-naltrexone-ldn-for-fibromyalgia-four-year-update/
B
Started on low dose naltrexone a month ago, and I can’t believe it’s actually helped. After nearly
10 years of trying absolutely everything, this is the only thing that seems to be helping. I might not have to suicide after all, thank you God.
Still using? How its going?
I have hEDS, commonly misdiagnosed as fibro, day to day complaints are often very similar. I’ve been on LDN for about 8 weeks now and it is seriously changing my life. All the benefits you described and maybe some more. I can’t believe how much energy and motivation I have overall, that I’ve never had before. The only side effects I have/had were the dreams. I almost NEVER dream historically and when they started happening I would wake up in the morning quite disoriented and confused. It wasn’t bad or scary, just a new and weird thing for me. Those are tapering off and maybe once a week now. I’m kind of upset it took until age 46 to find this stuff.
That is wonderful news!! Yes, the dreams can be strange on LDN. Mine didn't last long though. I hope the improvement continues!
Total game changer. And so different than any other “pain” med I’ve ever had. It doesn’t dull or blunt discomfort or make me not care about hurting. I can still absolutely feel pain, I just hurt FAR less. It’s a phenomenal thing. It’s maybe a taste of what normal people feel like.
That's great I have hypomobilty but I don't dislocate maybe in my knee I have that's great news Ile have to get mine shortly I've been doing oxygen therapy
How are you now hopefully starting soon
@@Truerealism747 : LDN continues to be amazing for me, I highly recommend.
I love your energy. Thank you for posting this. Just yesterday started ldn 4.5mg daily for 8 week trial. Fingers crossed. Suffering my entire adult life. This gives me hope, but then again I have been burned many times...
You're welcome. I hope it's going well so far
How did it go for u? I hope it was positive 🙂
@@bfnew4440 I don't think it does anything for me.
@@edwardk3 sorry to hear that mate
@@edwardk3you start too high dose! You musted start 0,1 or 0,2 mg!
I just ordered aome online. Ive been fighting fybromialgia for 10 years. Praying that this helps. I just cant believe that Ive never heard of this before now!
From where you ordered, what website?
Thank you for sharing! I have this condition too. Dr. is putting me on LDN soon.
Best of luck!!
How r u now
I just started LDN and I’m already sleeping a lot more. In fact, I’m actually extremely tired I’ve been sleeping for days. I think I need to drop the dose but other than that the pain has dropped so much ❤
Wonderful news!! I hope it's going better already
LDN has also restored sleep to 3 hour blocks. I had coldsore flares too for many months. LDN has enabled me to keep up with parenting and working which was so difficult previously with fibro. Prior to starting I was about to give up and quit my job due to the fatigue, pain and depression. I'm at 6 months and I'm hoping one day it helps my Endo and IC too. It hasn't assisted my IBS yet, nor my digestion. Life changing for my fibro!
I was looking at it for Endo and ibs, what is your dose on LDN?
How r u now
Did it ever help your ic ?
Hi ... How's it going?! Is ldn still helping, if so what dose works for you?! .. thxx🌺🙏✨
I developed IC also and Endo carditis after vaccine. Why do people get. Viral issues. Cold sores ??????
My ARNP put me on low-dose Naltrexone a few years ago and it has eased the pain quite a bit. I am now on 5 mg (started at 1 mg) but may need to up it slightly again. I have to obtain it at a compounding pharmacy but it is well worth the extra trouble. (I'm in the U.S. and have had FM/CFS for at least 33 years.)
I looked into this years ago. I wasn't able to verify if LDN would help me. At that time, people were told they would have to be completely off opioids. For me this caused a catch 22. The pain is too great to tolerate without the opioid to calm it down. I am glad others are having success.
I had this fybr and neuropathy since 2007, I hunted for 2 years to get a result for this horrible pain, then I found a nurse that told me what I have, almost 2 years everything went away, then it came back with a vengeance, so she said we would put you on tram idol nothing work's except hydo with codeine. But no one will give it to me, I am suffering so bad, can't sleep, I can hardly walk, my clothes fell like sand paper. I am crying and screaming at everything, no one should ever suffer in 2024,it's medieval. Now if she suffered from this she would be popping this drug, like candy. So what's good for her but not her patients. I truly believe that if all the doctors felt this pain, they would rethink the medicine to give to their patients. I have tried everything to no get better, screaming and suffering comes from my house crying outloud and doctors wonder why some people take their lives for not getting proper treatment.
Unfortunately I am an extremely unlucky individual, I tried naltrexone and ended up with persistent severe anhedonia that is continuing even after stopping the medication. It’s a nightmare.
I have a rheumatologist appointment on Tuesday l. I have been waiting for 8 months for this appointment. I really want to try LDN. I tried Gabapentin and got really messed up from it.
Oh! Best of luck with the appointment! If you're worried about the doctor willing to discuss LDN take some information- the LDN research Trust has some great info broken down by illness :)
@@MelissavsFibromyalgia Thank you, the appointment went well. I am trying Cymbalta. It actually seems like it is helping. It's only been 3 days so far.
@@ksedillo2233 that is great news! May it continue
@@dscrerar1111 I am using Cymbalta and it's working great. I did two months on 20mg and now a month on 30. The only side effects I have is a dry throat.
@@ksedillo2233 is cymbalta still working?!
I just started it yesterday. I hope it helps my chronic post-viral body aches. 🥴
Melissadorn. What dose u start at I have the same
I had some initial positive results, but it gave me insomnia, no matter when i took it. Adenosine Triphosphate helped some.
Changed my life
I have neurological pain fire and needles and numbness in my feet, some numbness in left calve. I cannot walk without pain. I am super physical, yoga, swimming, used to bike 15 miles a day before this onslaught. My lower spine is damaged from radiation treatment/prostate cancer. The marrow is damaged. The L4-5 S-1 is slowly healing from pinched nerve, sending all these nerve/pain signals. I feel fine for several hours after acupuncture. So in a neurological parallel my illness operates like fibromyalgia, do you think LDN will work for me?
Thank you for the video.
I honestly couldn't say! I'd suggest taking some literature from the ldn research Trust to your Dr and asking. In my opinion the likelihood of it working is worth a try, and the side effects are generally negligible. I'd note that dosage should start low and titrated up slowly to find your ideal dose and that you give it at least two months as per Dr Ginevra on her channel here on TH-cam. Also its dependent on whether you rely upon opioids as they are contraindicated. Good luck!
It didn't change mine although I still take it. The dreams it provokes are too vivid, I wake up because of them numerous times. So it's not so good...
Perhaps it's the first time you've had real REM sleep? I experience vivid dreams (nothing too upsetting) and good levels of REM now. Sorry its not been ideal for you
Where is the best place to purchase this, I am based in the UK.. really do appreciate all your help, thank you 🙏🏽 x
It's a medication so your doctor needs to prescribe it. Ldnresearchtrust.org has a list of prescribing doctors. Good luck
What medication were you on before naltrexone?
Only amitriptyline and I have since come off it :)
Thirty years with this disease it took my life showering is like running a marathon
I'm sorry to hear this. Have you tried LDN? Not that I'm suggesting it's a cure all.
When you say showering is like running a marathon can you please explain because I'm having the same problems. PLEASE GET BACK TO ME PLEASE 🙏
Assuming you are a kiwi too 😘💓 what compounding pharmacy do you use?
Yep :) I think there is only one! Compounding pharmaceuticals in the North Shore AK
I've heard of the benefits of LDN for years - but just received shocked responses from GPs who told me patronisingly that it was for "drug addiction" - and not for cfs/fibromyalgia.
How to convince someone to let me try it?
Live in Australia.
Unfortunately they may not be open to it, but take research to them and state why you want to try it. I created this ebook to help your research payhip.com/b/DNTL
If you’re in WA, my rheumatologist has given me a prescription for LDN
I find that the key to LDN is not using it daily and finding the right dose for you!
Then how would you use it?
Am wondering if this would help me
I Will start use ldn. I hope feel healty and enerjic
How r u now
Hello, thanks for this information. I was wondering what recovery factor supplement do you take?
It's called Recovery Factors, its an amino acid supplement. This is my post about it www.melissavsfibromyalgia.com/recovery-factors-my-favourite-supplement-for-fibromyalgia/
I would like to buy several copies of your LDN booklet! How do I do that?
It's an ebook and is available here :)
payhip.com/b/DNTL
I’m hoping to try this soon! I really hope it works! I’m going on 8 years horrible pain.
Oh I really hope so too! Remember to give it time :)
What are your results
Hope this finds you doing better?? 🙏✨.
Thank you
I’m thinking of trying it at a low dose of 1.5 but it’s not covered by health insurance & it’s not cheap in the US
It's not covered here in New Zealand either. I pay $99 for three months and that equates to a high quality supplement and is much more helpful for me
It might be worth importing it from a reputable supplier.
Ageless rx offers it for 35 a month
Thank you so much.
Do you still take and is it still helping?
Yes, I still take, nearing six years! It still is the best help I have ever found :)
Great video mate. I'm glad u found benefit. All the best to u
I just took my 3rd dose
I compounded it myself
Whaaaaat? How??
@@topny516 50mg pill in 50ml of water. I took 0.5 ml the first week and increased by 0.5 ml each week. So at fill amount (5mg) one pill will last 10 days (still mix with 50ml of water and will take 5ml. Let me know if this made no sense and I will try and make it better tomorrow
@@JubileeCreatesSomethingAmazing How r u now
I also self compunding to ldn
3.1mg, 3.25mg and 4.5mg but is is too difficult and take long.
remain medicine useless by water moisturization.
Hello Malissa.
Is this low dose medication still working after 2 years. Thank you
Its been six years and it still works!
@Melissa Reynolds thank you and I am happy for you.
culprit: microwaves, it can last a few years before it disappears
My doc just prescribed me this to try. For the past 5 years though, the only thing that helps breakthrough pain is hydrocodone. Will the low dose cause that not to work when I’m in pain…. I’m very nervous about cold sores too!
I thought I would tell you my experience. I was on low doses of both ldn and hydrocodone 7.5mg. I took ldn at night starting at .25mg and went up to 2mg.
I found that my hydrocodone was losing its euphric effects but gained its pain killing effect.
I was able to titrate off the hydrocodone without any withdrawal.
I had no plans to quit taking hydrocodone but I found ldn worked better.
If you start too high of a dose of ldn on hydrocodone it could put you in a precipitated withdrawal. It is a bit tricky.
@@davidkruse4030 How r u now
How r u now
@@santella.story.healing I am amazed!!! I do not wake up in pain everyday, I only have to take a pain med every few days (it ised to be atleast 2 a day). I am in shock & so thrilled with results! Of course, I am still doing all the needed self care & super clean diet plus I added hyperbaric oxygen treatments. But I def know the difference is from the LDN. After I got used to the dosage, they kept me at 3mg.Honestly-Life changer for me personally!!!!
Thanks for checking on me!
@@jenniegarret9083 aww I’m so glad! I wanna try oxygen chamber. What benefits did u see and how quickly? Also did Ldn help with fatigue? How functional are u?
Hi I've read it can cause Candida but not sure if persons already have it took me long time to get rid Candida what do you think
I doubt it causes candida. In my experience I had a flare if viral stuff and illnesses as I was finding my right dose so I think my immune system was figuring things out
@@MelissavsFibromyalgia thankyou have you done msg gluten free diet
Thank you.
The endorphins are night and day. I was very ill with such a complex illness and I came to LDN vs Reiki. I went with reiki because I was at a point I was sensitive to everything, but I'm confident LDN could have made a huge difference.
How does someone get diagnosed with fibromyalgia?
that's an easy Google search, but the short answer is that usually you will talk to your doctor, they will see your history, order some tests to rule other things out and diagnose it. The general criteria is widespread pain across all four quadrants of your body for more than six months, with fatigue and poor sleep. Good luck with your search
Normally see a rheumatologist or specialist in that field to get diagnosis.
@@afterlife101spirit so how do they diagnose it ? What separates someone with fibromyalgia from someone who doesn't ?
@@johnathanabrams8434 pain day in and day out that fluctuates and can get to debilitating levels and restricts you. Also you can get bad night sweats, bad skin itching in heat. There’s also different severities and some people can do more than others.
@@johnathanabrams8434 they diagnose it by ruling out any other condition it could be. I’d you’ve head widespread burning/aching pain your body for over 3 months, you’ve probably got it. Trauma can trigger, from the death of a loved one, to car accidents or surgical operations. Some people will have to use walking sticks, some wheel cheers if particular sever and some will be lucky and have minimal pain. It’s the myofacial symptom of fibromyalgia that will debilitate you. They are trigger points that run from neck down through body. You will feel bad pain radiating from them if you get this symptom.
I am on LDN for primary Progressive multiple sclerosis, for 8 yrs, now. I had to go to hospital for trauma, wasn't treated with LDN in hospital. I did withdraw. Headaches, stomach ache. Horrible. As soon as I took my LDN, all discomfort expired. You can withdraw. Need to titrate off. 😮
Was it withdrawal from LDN or the meds they gave you that may have reacted to LDN?
@@MelissavsFibromyalgia well considering I wasn't taking the LDN so there was no drug interaction with the pain med I had to take for a shattered elbow. I went off of that drug because I didn't like it the third day in without LDN I told the nurse how I was feeling migraine and stomach ache and she was the one that realized I was withdrawing. Even my doctor who prescribes the LDN who knows a lot about it when he started me on it you start at 0.05 G and build your way up until you find your happy spot
What about if you drink alcohol...do you not feel the effects of a glass of wine, since this is used for people who suffer from addiction to alcohol?
I drink a glass of wine just fine. Some people can tolerate alcohol and some can't. But low dose naltrexone is a much lower dose than what is prescribed for addiction
@@melissanreynolds thank you! I'm about to start taking it for my fibromyalgia, and I don't drink much, but may have a glass of wine.
@@melissamarchelle I tend to have my glass of wine a couple hours before my LDN (at bedtime) in case as I am sensitive to alcohol generally. Good luck!!
@@melissamarchelle How r u now
Thank you Melissa. Can you please tell me how you were able to get the LDN? I have a GP, but I don't know the first thing about getting her to prescribe it for me.
I took research to my gp and they were happy to prescribed. Perhaps you could take some information about your condition and LDN from the ldn research Trust website?
@@MelissavsFibromyalgia
Gee, thanks so much for your expedient response, I think you might have just set a record. 🙂
I'm sick with Lyme for over 15 years, and I've tried just about everything to heal, but nothing moves the needle a bit. My brain fog is off the charts, along with many other symptoms, but I'm hesitant to talk Lyme with doctors anymore. I doubt that they would make the connection between Lyme and LDN, but I suppose it's worth a try.
Again...thank you so much and please stay well.
Can we take it in the am . I’m starting it ... I tried it before and at first it flared me up so bad. I stayed on it a long time and flares got better but didn’t see any improvement, I was also using 6hrs away from the ldn. Now I’m trying it without the ultram .
I have heard of people taking it in the morning. It is best to discuss using LDN with other medicines with your doctor as some do not suit. Best of luck.
@@MelissavsFibromyalgia yes, my doctor has been prescribing since it came out quite a few years ago. Just wondering who has had success taking in the am
@@kaylabryson1932 ah I'd say quite a few :)
@@melissanreynolds great 👍 thank you
@@kaylabryson1932 How r u now
Do you slack.joints
Is LDN pain killer drug ?
Not exactly, I share what it is in the video
Does recovery factors help pain not just fatigue even though it's hand in hand I no
The research suggests so. But they are so entangled it's hard to say. I find it helps sleep and pain therefore ut must help fatigue
@@MelissavsFibromyalgia I could sleep many hours always have done at birth s slept 23 hrs a day.but unsure if stage 4 as rarely deal any different than going to bed.its for pain I want it for though as fatigue I can cope with its pain more nowadays but fatigue dies affect pain Ile have to try it how much effect does is have 20 percent?
It has an effect on Insulin Resistance too, which I believe is part and parcel with fibromyalgia.
I tried LDN but unfortunately I was one of the few people who can't tolerate it, even at microdose levels. I was on less than 0.5mg and it made me feel crazy.
Did anyone ever explain why that was so for you? I too am struggling on 0.1 dose.
@@compasshill No, I've never really been given an explanation but I do have M.E. and it's common to be very sensitive to medications and anaesthetics. I've had severe side effects from numerous different meds even at minimal doses. I have a theory that it's due to nervous system dysregulation as most of the side effects are neurological and psychiatric such as anxiety, depression, balance issues, vertigo, and just feeling very strange and disturbed.
Sorry to hear that, did you manage to feel your normal self after stopping the LDN?
@@ambergordon352 Yes, I was back to normal within a few days (well, as normal as I get 😆 ).
So you say take it at night instead of in the morning? I took it for about a year and didn’t feel like it helped me. It is pricy for me because my insurance doesn’t cover it. I have a lot of sleep issues.
Yes, I take it before bed. I was worried as I have struggled with insomnia for over 15 years but LDN helps me sleep
@@melissanreynolds I struggle with insomnia as well.
Do you have fibromyalgia? If so look into neurofeedback. Neurofeedback eliminates fibro in many cases.
@@radarashwood5397 no it doesn't. It may help but it does not eliminate it
@@melissanreynolds If you haven't done it I would highly recommend that you try it. It's one of the most powerful interventions for fibro out there. There are tons of case studies where fibromyalgia has been eliminated with neurofeedback. I'm sure that the recovery rate isn't 100%, but fibro isn't a neurodegenerative disease which would mean that any gains received through neurofeedback will be permanent.
I find doing exercise such as sea swimming, cycling and being in Nature and sunshine increases Endorphins. There are also other strategies and practices which help to increase Dopamine and reduces Cortisol.
I prefer to use practical methods rather than popping pills if possible. X
If that does enough for you, that's wonderful! LDN helps me more than any of those things and I practice ways to increase endorphins also.
Can't hardly walk without complete exhaustion you must not have it that bad if you can bike and swim. Just took away my life over 25 years
I agree that physical activity is the best way to restore balance on your nervous system, but there are cases out there that nothing works so its better to choose wisely, in case of ldn its not like ssri or srni or benzos which is disastrous in long term with long lasting sexual and mental side effects.
@@marymastandrea2640 yep, me too Mary. Terrible burning pain in neck, shoulders, arms, legs all the time, and when I go to do anything, like walk 1/4 mile or so, I really suffer for it both during and for days after. I was very active before whatever it is struck me- now i have to severely limit my daily activities and even easy things like standing over a sink washing dishes causes the burning pain to increase so much I have to take all pressure off my n3ck to recover from it. Such a horrible way to live.
Hello Melissa,
Thank you for sharing your experience.
I have taken ldn years ago and it has changed my life extremely positive.
I also noticed an effect within a few hours with the first capsule of 1 mg.
That's why I took it sometime in the morning because under all the enegy I couldn't sleep. Now and then I had auxh side effects like accelerated pulse / as if I had drunk too much coffee.
In itself, as I said, it gave me new life.
With currently, however, the effect disappeared. I have then first higher tosidrt on up to 3 mg. This brought no effect. On the contrary I had aif once more pain. Auh. at 1mg . Since I was aware of the effect mechanism, I had the idea to take less, so 0.5 mg. And lo and behold it worked again for a few weeks.
At some point, however, more pain than before.
Now I ask myself do you or someone else know something like that? And should I have dosed higher and or held out longer? That would really help me if someone could tell me something about it and I would be incredibly grateful :)
Ps." I suffer from "Me/ Cfs" after an epstein barr infection 2008
I am sorry you have had such trouble with dosing. I don't know about that. I've heard of people who csn only tolerate lower doses, those who need to go higher, those who find a dose and stay there for years and those for whom they don't feel it works. It's a mixed bag! I hope you find answers
CFS/me from EBV also since 1996 how are you doing. Any more info please
I am in south africa and unable to get this tab
Where can I get this
Here is a list of prescribers ldnresearchtrust.org/LDN_Prescribers
Hi Cookie, try Dischem.
Dr Craige Golding sells it. He is in johannesburg
There are no videos documenting your Fibromyalgia illness before you started the LDN treatment. I can’t take you as credible.
This is my fibromyalgia story th-cam.com/video/fryCnxUKsns/w-d-xo.html
Oh i see, you're just a psycho
I am on this for Hashimoto's and although it doesn't work for everyone, I can tell you that with this drug I feel better than I have done in my entire 44 years as an adult. I am in the UK and pay for it privately from Dicksons chemist in Glasgow , Scotland. I would encourage anyone who fits the right criteria to try it.