Local family shares experience with rare Angelman Syndrome

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  • เผยแพร่เมื่อ 14 ก.พ. 2023
  • February 15th is Angelman Syndrome Day in Minnesota, and a local family shares what it’s like for their 5-year-old daughter Rose who was diagnosed with the rare genetic disorder.
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ความคิดเห็น • 19

  • @brianlawson363
    @brianlawson363 ปีที่แล้ว +14

    The beauty and joy that Rose gives is a gift for those of us who are not aware that we let sadness control our lives.

  • @tanzilaleeya
    @tanzilaleeya 7 หลายเดือนก่อน +11

    I'm a single mum raising two little girls. My baby has angelman syndrome 😢

    • @Sophiesticateduhhuh
      @Sophiesticateduhhuh 6 หลายเดือนก่อน +4

      You will be ok mama, I promise ❤️‍🩹

    • @OpinionatedEmpath
      @OpinionatedEmpath 5 หลายเดือนก่อน

      I wanted to learn more about the syndrome and subhanAllah I saw this comment from you 😢

    • @くらく
      @くらく 7 วันที่ผ่านมา

      god bless you , my big brother has the same... he's 20 years old now..trust me it gets better with time..they really deserve care and love ❤️

  • @gusruckus
    @gusruckus 5 หลายเดือนก่อน +1

    Sad to share that this little girl passed away in her mothers arms this fall. Lots of love to the famiy💔💔💔
    -Gus

    • @rickyanthony
      @rickyanthony 5 หลายเดือนก่อน

      Who are you, how do you know?

    • @gusruckus
      @gusruckus 4 หลายเดือนก่อน

      @@rickyanthony I'd like you to respect my privacy during this time.
      -Gus

    • @rickyanthony
      @rickyanthony 4 หลายเดือนก่อน +1

      @@gusruckus You might well be a troll, you are sharing information many will find very sad and you are not family. No privacy concern here, do the girl justice by letting us know it is reliable info.

    • @gusruckus
      @gusruckus 4 หลายเดือนก่อน +1

      @@rickyanthony You probably don't realize the grief you are causing here. It's not funny to me, and this isn't a hoax. We miss her. If you cared enough to do any amount of research here, you would know that AS can come with a number of complications. Also there is in fact a privacy concern. Please move on with your life and let this family grieve in peace.
      -Gus

    • @anonymous_dot_com2326
      @anonymous_dot_com2326 4 หลายเดือนก่อน

      Gustavo?

  • @Chad-Giga.
    @Chad-Giga. 10 หลายเดือนก่อน +4

    It's a chromosome disorder actually

  • @That1SonOfGodIam
    @That1SonOfGodIam ปีที่แล้ว +5

    👑👑👑👑👑👑

  • @onetwocue
    @onetwocue 7 หลายเดือนก่อน +2

    Joker had this right?

    • @Sophiesticateduhhuh
      @Sophiesticateduhhuh 6 หลายเดือนก่อน

      Bro what

    • @MrX-lk3ij
      @MrX-lk3ij 5 หลายเดือนก่อน

      Nope. That's pseudobulbar affect. Very different from this.