Local family shares experience with rare Angelman Syndrome
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- เผยแพร่เมื่อ 14 ก.พ. 2023
- February 15th is Angelman Syndrome Day in Minnesota, and a local family shares what it’s like for their 5-year-old daughter Rose who was diagnosed with the rare genetic disorder.
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The beauty and joy that Rose gives is a gift for those of us who are not aware that we let sadness control our lives.
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I'm a single mum raising two little girls. My baby has angelman syndrome 😢
You will be ok mama, I promise ❤️🩹
I wanted to learn more about the syndrome and subhanAllah I saw this comment from you 😢
god bless you , my big brother has the same... he's 20 years old now..trust me it gets better with time..they really deserve care and love ❤️
Sad to share that this little girl passed away in her mothers arms this fall. Lots of love to the famiy💔💔💔
-Gus
Who are you, how do you know?
@@rickyanthony I'd like you to respect my privacy during this time.
-Gus
@@gusruckus You might well be a troll, you are sharing information many will find very sad and you are not family. No privacy concern here, do the girl justice by letting us know it is reliable info.
@@rickyanthony You probably don't realize the grief you are causing here. It's not funny to me, and this isn't a hoax. We miss her. If you cared enough to do any amount of research here, you would know that AS can come with a number of complications. Also there is in fact a privacy concern. Please move on with your life and let this family grieve in peace.
-Gus
Gustavo?
It's a chromosome disorder actually
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Joker had this right?
Bro what
Nope. That's pseudobulbar affect. Very different from this.