Thank you for your words..You described my life for the last 4 months. I requested my Primary Care Dr. send me to ENT a month ago who did a VNG test, a CT Scan and diagnosed with VN earlier this week. I use Flonase in am and pm , Claratin and Tylenol Arthritis for anti inflammatory. It is 95% better , only a brief woozie when I lay on one side,but your words give me hope . When you described going into stores..I shouted YES, someone knows how I feel. I am much older but felt insecure watching my grandchildren so I give you props for your mom skills with this condition. I also have osteoarthritis is my neck with bones spurs..chiropractic adjustment helps too I pray that since this you are fully recovered...gives me hope 💓
Thank you so much for sharing your experience, strength & hope! I got VN out of the blue so bad my husband thought I was having a stroke & now have been like this for 48 days. My name is Sara, please add me to your prayers. I must believe we can get better b/c living like this is so overwhelmingly hard. Thank you.
Hi! My wife sent this video to me, telling me I was going through the same thing you've been through. I am a month in with the symptoms, most probably due to stress, anxiety attacks and expectations of being a first time parent/dad. I developed tinnitus last September, but my ringing in the ears have improved a lot, from an 8-10 to a soft 2-3, sometimes a faint 1 for the whole day. I also went to 12+ doctors now and none of them helped me at all. I am also a Christian, and I believe it is only God who can totally heal me from this ordeal. If it is not too much for you, please pray for me as I go through the road of recovery. God gave me so many verses and personal words of encouragement, saying that He is going to heal and restore me (Isaiah 53:5, Matthew 21:22-23). Thank you so much and God bless! Happy to hear you're almost a hundred percent. Believing for total healing with you! Be blessed!
I just wanted to say thanks for your story. Many doctors didn't take me seriously, it took a physio therapist to diagnose me with this to finally get somewhere. People truly don't know what's it's like but now I'm a lot better I still feel a bit here and there but I'm currently doing vestibular rehabilitation. It's crazy how your ears can do this to you.
Dear Cat, I am sitting here with tears in my eyes because I have had this problem off and on for years and no one offered help. I am currently dealing with it again for the last year. Like you I have been to every doctor and had all the tests. You described it perfectly. I am a portrait artist and I couldn't complete a commission because my eyes would dance back and forth, I have lost ten pounds and fight to stay active and happy. It was one of my student that heard me describe my symptoms and told me that it sounded like vestibular neuritis. I found you and realized that it was what I had. Thank you for your video .
My story for the past year and a half. I'm also a believer in Christ! I know he heals and I'm claiming it in the name of Jesus! What a wonderful testimony! I'm so happy for you!
Jesus was a Messenger of god as he described him self. He said not my will but the will of the father(god). Jesus was not allknowing like the father so please don’t make jesus as a god he is a beloved prophet true messernger of god. And he said he can’t do anything without the willing of god
I been dealing with it 2years now and I cry and cry I'm scared this has taken over my life it seems like I'm never gonna get better I have 2 daughters to live for I trust God and I pray I just don't know what too do I can't work it's hard to stand long periods of time it's like your in a sinkhole and can't come from it please pray for me😊
@@amandas.8809 okay i have a appointment next week with the therapist they say this should fix the problem after one or two visits i pray it does i dont wish this on my enemy!!! Blessings on yours i pray it works for you..
Guys, please give this a try: th-cam.com/video/SkUNL0evxqE/w-d-xo.html Joey has answers to a lot of the symptoms and how to heal. Best of luck everyone!
I am still struggling through this. Thank you so much for sharing your story. It gives me hope for healing. I would appreciate prayers as I continue to navigate through this. I feel about 60 percent better, but keep persisting.
I've been dealing with this for 5 months now it's a little better than before but I often have unexpected bouts of dizziness sometimes I feel like fainting😢 I notoriously watches video where people come out of it and there is hope for me too💪🏼🤞
Thank you for sharing your story. My VN started approximately 2 months ago. I am starting to feel hopeless, my anxiety caused my blood pressure to elevate and suffered a minor stroke. I was hospitalized for a week and sent home with a walker. I really don’t have a support system which I truly believe is important. I would love if you could pray for me. Thank you and God bless!
I’m sorry you had to go through that Valerie. I know exactly what you’re going through, and I know how it feels to feel hopeless but just don’t give up. You will recover and you will heal. Make it your daily job and goal to get better! Even if it means putting yourself in situations you don’t feel comfortable in. As long as it’s safe anyways. But you will get better I promise! I will add you to my prayer list!
Omg this is me for the last 14 months,I've had test after test,and have seen many different doctors,I think we all know that we feel like we are the only ones that have this ,I myself have been so broken from this its very had to see the light at the end and some days I just want it to go so bad but to wake up day after day and its still there,I'm still doing the head and eye exercises every day , thankyou very much for your video ,I wish everyone that has this problem , strength and faith that we will all get better soon.
Me too. Dx’d and went through VRT is like physical therapy. It helps a lot. MRI first. I have these symptoms still but it’s getting easier. I have not given up. Kept up with the VRT visual stabilization exercises, calming nervous system. The VRT exercises may make you feel WORSE at first which for anyone reading this please do not give up. It gets better. I cannot guarantee you will be completely normal but it will get better.
I am 2 months into this. Even typing this is a chore! I went to the ER at first, then to the ENT, same tests, then onto the hospital because they thought I was having a stroke. Finally after being diagnosed with Lyme Disease they let me go with antibiotics and Diazepam. Left Florida for a week and got into the Cleveland Clinic for a day. Avascular Neuritis. And its not over yet! I asked to be made stronger, and God gave me exactly that. I'm gonna grab my cane, and go for walk! Thank You!!! Thanks be to God, and a loving "confused" family.
watching videos like this is what gives me hope, ive also seen many doctors no one can tell me what i have, it is absolutely horrific beyond words! but if you could get better I believe we all can! please pray for me! my name is "eliett alcantara" I will pray for everyone suffering from this condition too!! sending my best energies towards you and everyone suffering from it!
So nice to hear all of your stories. Dealing with this has been pure hell. Im 8 months in. My best day I might be 90% but haven't gone back to normal. Working has been hard. Some days just standing is hard feeling like I'm going to fall over. I wish there was a magic pill to make this all go away
Thank you for making this video. I had VN 6 years ago and it went away after 3.5 extremely difficult months. I had a 30% deficit in my right ear and doing the vestibular rehab exercises helped. Anyway, I was going through a very stressful time just 2 weeks ago and it triggered a relapse (decompensation) where my brain has "forgotten" the adaption it learned. I'm resuming the exercises but it's getting worse (before it gets better, I hope) and it's scary all over again. Just wanted to let you know to always manage your stress well to prevent possible relapses. Also, to please pray for me, Steven, and I will pray for you too! Thank you!
GIRL You sound just like me! May 7 will be one year since mine hit. I have good days but I still have bad days. Dizziness still comes but not super bad. Anxiety is still there though. Hits me out of nowhere at times. Glad you are feeling better!!!
I've had this issue for 30 years. Alot of anxiety and depression with it and I feel helpless as my life never turned out the way I wanted. God Bless to you and your family..
Cat! Thank you so much for this video! I've been experiencing these EXACT same symptoms you just explained, I'm a Christian as well. After not really getting any answers from doctors, I began to do research on my own and have been praying a lot. I do not think this video came up in my feed by coincidence, but because God actually wanted me to hear your story and know that He is always in control and there is hope. Thank you so much for your detailed explanation of everything you went through, you really put a lot of things in perspective for me. Please keep me in your prayers, God bless! 🙏
th-cam.com/video/wnrNcCWWAws/w-d-xo.html. This is a vestibular physical therapist specialist on TH-cam, she has 5 videos on her channel,eye exercises and balance, follow her directions to start with your recovery. Make sure you don't go any faster with her eye exercises for dizziness,that's the max or you won't get better. Also buy a foam mat on Amazon for some static vestibular balance exercises . There are examples online, make sure there for vestibular. Also do dynamic balance exercises to very important examples, heel to toe walking while turning your head side to side and up and down.
thanks for this video. I've been dealing with this 13 months now. Started much as you described, but then I also developed severe neck pain and tinnitus. Still fighting this rollercoaster. I had all the tests and been doing physical therapy for 6 months now. Your right, the doctors mostly don't care and it makes you see the world in a colder way.
I have the same symptoms 🥺 its being 10 years every single day. I just learn to live with it! Still pray to God to heal me i don’t know when but i know one day i will wake up normal again
@@catrose3912 Good evening. Thank you for sharing your story. My journey is so similar. It started 1 months ago. I had an emergency room visit, had CT scan done, had MRI, had CTA. I saw an ophthalmologist, Neurologist and Ent. After 1 month of not knowing what is happening to me, the ENT doctor told me it is Vestibular Neuritis. There is no word to describe the dizziness, I feel like people don't understand what I trying to describe. I am literally here looking at videos to see what exactly this is, and if I am the only person feeling like this. All the symptoms you described are exactly what I am going through. I am trusting God for a break through. Your story gives me hope.
I am so glad that I clicked on you today because you have described my symptoms exactly! I have been struggling with dizziness for about 3 months now. It has been very scary due to the fact that I can not go out and enjoy life without feeling dizziness in open spaces such as department stores and I even felt like I would pass out during my daughter's 5th grade graduation. I has been a nightmare and you are right that Meclizine does not cure vertigo. I took it for a while but my symptoms still persisted and I unable to drive at the moment due to dizziness while operating my vehicle. I too feel numbness and believe that anxiety exacerbates the problem as well. I am about to go and see an ENT in a few days. You have given me hope and now I know that this is not just in my head. Please pray for me as I pray for you in Jesus name. God bless!
hello everyone, like most of you I am also facing this horrible thing.It has been almost one month living with this thing.its really hard to live with it.but it really gives hope to recover & live happily by seeing you u guys talking about this and things to do for get away from this.thanks for video it gives courage to fight against it. I am recovering at good speed . I think medicines are working.
Thank you for sharing your story. I’m going on 7 months with Vestibular Neuritis and just when I thought I was coming to the end, I was triggered and suffering all over again. Hearing your story helped me feel seen and heard, as no one in my family understands, relates or seems to care because it’s a disorder that’s not visible. I often feel alone but your story has really given hope and inspiration to pushback and heal myself. Thank you 💛
th-cam.com/channels/yOtF1JIyNgXZUcnFf-JqUw.html. This is a link to a vestibular physical therapy specialist,she has 6 videos on her channel .She demonstrates the exercises,eye and balance . Hope this can help you .
Doctors have no knowledge about vestibular neuritis. I had it for the first time for 3 straight days and slow recovery after that. 11/07/18 since this day I haven’t driven a car , until recently I decided to drive again. I feel a pressure in my head when I try driving and then anxiety kicks in. Doctors tell me I have to train my brain again. I’m 90% better. Thank you God! I’ve been driving nearby distances. Hair loss like crazy. I’ve been doing yoga and it seems to help. Thank you for your testimony. Ill keep u in my prayers for you to get well soon.
Weird, I've had hair loss as well. I am on day 3 now without any Valium and feeling so good. I almost can't believe it. My ear pain is 90% gone and my migraines are gone as well. I bought Migravent and take about 3 a day. Very low salt intake, no caffeine or chocolate. Getting better but still want and looking forward to answers.
ER didnt know but my family dr called it VN but was not familiar or confident. Took 3 months to get into ENT and he was a moron. That was Dr Melvin in Asheville, NC. He told me I could see someone smarter and I did. Wake Forest Baptist Hospital has a balance and dizziness center. The Department Head is Dr Alan Desmond and knew exactly what was up. He was able to do more testing and determine I had 57% permanent damage to right vestubular nerve. He knew exactly what I was feelung bc a year previous he had the exact same thing happen to him. He recognized the symptoms and recorded his journey and progress for use in teaching his med students. Vestibular Rehabilitation Therapy is really the only thing that helps this condition once permanent damage is done.
You have just spoken my life. The doctors don't have a clue. I only hope I could heal. I'll never give up hope. I just about managed to wash my car the other day and it wiped me out for two nearly two days! Thanks for making this video, it gives me hope that I may heal. God bless to you. x
Hi! Thanks for getting in touch. In some ways, better. A little more life. Generally, slow progress. I'll never give up. I try all the time. Its my hobby. God bless you!
Thank you for this video. I'm in the pit of this right now. Was diagnosed 1 month ago, been suffering mildly a year, seriously for the last month. I too developed really bad anxiety due to not knowing what was wrong with me. Been doing rehabilitation therapy (focusing while shaking my head) but it has been really tough. Ive cried out to God and even doubted him at times. It's inspiring to hear what you have to say about your relationship with God despite what you went through. I'd love prayer. I will pray for you also. How are you feeling these days?
I just want to say you are the BIGGEST BLESSING to me right now. I just sent this video to EVERYBODY who gave up on me because I’ve been dealing with this for 3 months now and the doctors make you think your insane. God is also my ONLY way through this. This devours your ENTIRE LIFE. I feel HOPELESS but I know it will end one day. I’m only 20 and this is stopping me from doing EVERYTHING ... I just pray for myself to be normal again. I FELT this .... so much.
@@Underyourbedeyes Sorry to hear that, this feeling is so uncomfortable and scary because of all the unkown. My anxiety has gone done tremendously knowing that im not alone..But this 24/7 Brian fog and persistent dizzyness is mentally and physically draining.
Literally what and how you explained is what I felt. It’s been over 4 years and I still haven’t reached 100%. I guess I’ve gotten used to having some symptoms and my left ear is still sensitive all the time. It’s almost unreal to hear your testimony because it really feels like I was the only one feeling like this. 🙏🏼
Almost two months in. Felt so hopeless until I found your video! This is such a horrible thing to deal with. It's turned my world upside down. I'm hopeful ill get better soon. I would love more then anything for you to pray for me! It's such a dark and lonely illness that no one understands unless they have it. You start to think that this is your new normal and that you won't ever get better. I've been to the emergency room 8 times thinking I'm having a stroke or a heart attack. I've never in life had panic attacks or anxiety attacks until this illness. It's also brought me closer with God and for that I think that's why he's allowed this to happen to me. He knew I needed him. Thank you for this video!!
Thank you so much for sharing your testimony! I’m going on four months and, if not for the anxiety, I’d be so much better than where I’m at. I know God has given me strength to be where I’m at now, I just have to figure out how to get rid of this last bit of anxiety that continues to linger.
Candace Taylor hi Candace, here’s a great scripture to stand on to help deal with the anxiety. Repeat to yourself constantly, right in on post it notes on your mirrors, fridge anywhere as a constant reminder❤️ Philippians 4: 6-7 6 Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; 7 and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.
I just came across your site I had this for years I am going for therapy but I could do the same at home. I started doing healing meditations with God and the arkangles , starting to finially feel better. It's so true you need to go within. Many blessings than you.
Thank you so much for making this video. I relate so much to it and what I have been going through with everything you mention that goes on with this sickness especially with what you mention at the end with Christ. It has made my relationship with Him so much closer struggling with this on the day to day and depending on Him. This video is a hope giver so thank you.
Please 🙏 for me i am going through severe vertigo n dizziness for 2 months. I too no answers from doctors. Thank God you are better. Blessings for your health. I know exactly how you feel. God Bless.
Thank you for sharing your story. I’ve been living with vestibular neuritis for five years with everyday symptoms of feeling like I’m on a boat. I’ve seen so many specialists but haven’t really had any break-through treatments or therapy. You are right - only the Lord can give us stillness of mind and strength to carry on.
@@pigjones2724 Actually, the dizziness is still the same 24/7 everyday. Went through lot of mental breakdowns… eventually I accept to live with it as part of my life. Life goes on. I get stronger to fight for my fear and try my best to live like normal. Ah! Exercise and meditation help me to ease the dizziness symptoms a bit.
@@pigjones2724No. please keep me updated. I hope you are alright too. There are still many people like us. We might look normal. Doctors might think dizziness is little and not life threatening condition. However, I think we are really suffering mental health … The world seems moving….😱 let’s keep it up. Be strong 💪🏼
This is day 6 of this and I am constantly praying for it to go away. I've been bedridden for these days. The last 2 days I can make my way to the kitchen and bathroom. I was in the hospital for the first 4 days where I was treated for dehydration and anti vomiting medication. I am dizzy and tired from a trip to the kitchen or bathroom . I can't wait for this to go. I've noticed one eye is always moving even while closed and I've been pressing on a point near to my eye to numb it and calm it down. It is kind of in the socket of my left eye. I know weird , but it has been helping today. The worst part was I couldn't even watch anything at first , only listen to videos and such. I'm doing a tad better now, but totally not able to work. I can't wait to be normal again and I am swearing to not be ungrateful about my health or anything like working because I totally did not like it and now I realize I should have been thankful for my job and my health. I want it back so much. I plan to not take life for granted and to show gratitude to God always for my blessings. Godwilling we can be healed quickly. I do not wish this on anyone.
Yes, this. I had seen SO many doctors and was super sensitive to everything! It was 6 months of hell. Going on 9 months, little better than the beginning but awful still. I am encouraged by this. I would say I think I have vestibular migraines, self diagnosed NO thanks to the all the doctors that did not help! I am Christian too. At this point it has challenged my faith. So much that I can understand why people are atheist. Crazy I know. But truly, it is so bad that it's like you don't want to live through anymore. I would love for you to pray for me :)
Listing to your story and its the same as mine. We to the ER I was told it was vertigo it should go away soon. Well 5 months later and I finally have a dr that is listening to me. Just had a vng test can't have an mri I'm claustrophobic, I'm meeting with a neurologist in 2 weeks hope they can give me so hope.
This could be me talking!! The dizziness gives you anxiety. Then you’re hyper vigilant when you take anything. And you literally have to walk close to any walls when you’re out, even walking the dog. And going shopping with bright colored things swirling around you. Sometimes I just stagger out of there to my car in a panic. It is scary. You going and doing those things was a form of vestibular rehab. You pushed yourself. You have to push through.
Thank you for your testimony. I had this for 4 months 2 years ago and I am into it again now close to 5 weeks. I did go to the Mayo Clinic 2 years ago and they diagnosed me with Vestibular Dysfunction. There are exercises online to strengthen your vestibular system. I have had 3 bouts of vertigo in this 5 weeks....but have the heavy feeling in my head, the feeling of falling down all the time, I have tried motion sickness patches, Prednisone, alergy meds, etc....I was given Atavan for the anxiety but do not want to be addicted to this medicine. Your story sounds so very familiar....it is one of the hardest things I have ever been through. I would rather give birth! Anyway....thank you for sharing and yes, please pray for me. I am a believer and have held tight to the nail scared hand! I too have drawn closer to the Lord and thank Him for His mercy and grace!
I'm also believe in Christ and yes I'm going through similar symptoms not rocking Sensations but after vertigo attacks a couple times 6 weeks ago started feeling constant dizziness and disequilibrium feeling like I'm walking tilted and it definitely brought on severe depression and anxiety for first 6 weeks I'm going through vestibular training and visual eye training as well hopefully that will help but most of all my dependence on God and my growth in my relationship with the Lord is key number one and you're right there is no doctors out there that have helped me and I've tried and they are clueless like you said and so are people for that matter they just don't understand so thank you for this video it was very very uplifting knowing that you did get better and there's hope thank you
I delt with this for 5 months and the symptoms were severe and agonizing.Praying to the lord jesus christ helped me so much in understanding that i must be patient through my trials and tribulations there are lessons to learn through are hardships. The lord led me to things that really helped me and other people that i told this to said that these things really helped them also. Ashwaganda for the anxiety, b12 for the energy, Magnesium for the brainfog memory loss + once a day multivitamin, potassium and it was very hard to sleep so i would make a tea before bed made from valerian root and Camomile. Give it some weeks for your body to adjust.
Hi Cat. I feel strengthened watching your video. Most of the symptoms you mentioned about VN are what I'm experiencing right now. I have done MRI and laboratories also but it came back normal. I am in the point of searching testimonies of those who recovered from this illness though I was not diagnosed to have VN yet. I have another appointment for my Physiatrist this week but Im still trying to confirm if the symptoms I have are really the same as those who had this illness. I am just blessed to watch your video because it all points to God, Who He is and What He can do. Please oray for me. This all started after I gave birth to my 1st child. I am a pastor's wife and I am reminded once again about God's power amidst trials. Hope I can hear from you. God bless.
I hope you’re feeling better I met someone who had the same thing and it went away and they sent him to a neurologist and they gave him an anti-depressant call Lexapro It took the dizziness away so I may try that
Same symptoms that u have I am also feeling that now it's 6 months I have going these symptoms lots of anxiety no one listen what is happening to me but I know it's painful feeling that I have please pray for me ......
This is exactly my story too. Except that I’ve been suffering since 7 years and mine gets so worst the sudden massive spin that I fall. Doctor to doctor I’ve given up. I Pray so much too. Wonder how long more for me to go. I’ve fallen in kids school at work so many places. But what you didn’t experience was the sudden 5-10 seconds of rapid spinning where a sensation of being air borne is included. I still need help big time
I had the exact same story as this girl.it also started at the end of august with alergy and it spread to my inner ear etc... and im at my 4 months as im writing.But THERE IS A CURE.Enter vestibular therapy into youtube.U do exercices simillar to yoga with eyes closed.GUYS THE DAY AFTER I FELT BETTER. MY LIFE STOPPED FOR FRIKKING 4 MONTH JEEZ BUT THAT HELPED ME and im almost done thanks to that.Good luck and i hope we all go through this 100 %.
Thank you so much for sharing this video. I am 9 weeks today. Just starting to feel a tad better. I have hope and believe I will get better Only through the power of God.
@@katiealanna I would say I am 90-95% better. Still have a disequilibrium feeling. My vestibular nerve is 100% compensated. Can’t believe it’s been 2 years.
Thank you for sharing what you have been going through, you did a great job describing the feeling of walking on rubber, no one can understand that feeling. How are you doing now? It must be very challenging dealing with all this and looking after your children who need you so much as they are very little. You have probably heard of VEDA a great source of information and they have a listing of physiotherapists who are trained in Vestibular problems. I am about to go that route soon. I hope you are feeling better.
i really feel for you. i started getting symptoms last june and i’m over a year in and it stills feels like i’m walking on a boat. i’ve definitely developed severe anxiety from this as my brain likes to go down the worst case scenario. i believe that there will be an end to this which i hope is soon as i would love to get back into playing volleyball and doing the things i love again.
th-cam.com/channels/yOtF1JIyNgXZUcnFf-JqUw.html. A link to a vestibular physical therapist. She has 6 videos on her TH-cam channel to help you. She shows examples of the eye and balance exercises to do .
Thank you for this video. I am almost 6 months dealing with this. I loved your honesty and everything you are saying is what I've gone through or am going through .... I have good days and bad but I push myself and it is making a difference. It helps to know others have gone through this and have come out.... on the other side finally.
So overjoyed that I saw your video. I am currently dealing with this..and it's been a little over a month. And I am very,...very...slowly getting better. The last two days have been bad,..as the issue can come and go. I noticed that I now feel chest heaviness like the feeling of high blood pressure,..but I think it's part of the anxiety or I might have to watch what I eat. I woke up with a vertigo attack a little over a month ago...and from then on I have lived a life of constant dizziness and headaches...unbalanced and visual issues..plus my left ear keeps feeling somewhat full and heavy at night...with slight pain. I have prayed and cried several times ,..I have also gone to church and light up a candle to our Virgen de Guadalupe. You mentioned that your face got pale ..and that's how I am every day for the best part of the morning. I was tried sleeping on my back,...and not turning side to side in bed,...but it only works when it wants to. ...because since the last two days ,..I've been having chest heaviness and it wakes me up startled. I also force myself to do stuff.....such as walking at night...and on very rare occasions I go to the local casino with my boyfriend....just to make him happy....as he has been my Caregiver si ce this entire ordeal started. He has to keep an eye on me...and he cooks and does the laundry and the dishes. I worked two jobs...a full-time job as a housekeeper for a nurse recruitment agency and a gig two nights a week cleaning offices at night. And as of August 11 I had to quit both of them and requested my primary physician to put me on temporary disability. I am 49 years old and have two adult children..one is 30 and the other is 26. I want and need to get well again so I can go back to work,...because my 30 year old son has slight mental issues and he depends solely on me ,...financially and emotionally. I have come to the conclusion that my life will never be the same again,...and that will eventually loose my home and my vehicle....that I have to return to the dealership. But I. ..really don't care about the material things at this point. I just want to get better and at least be done with the dizziness . I don't mind the unbalanced or the headaches,...I just want the swaying and the constant severe dizziness to stop. I am a single mom...and I need to survive this medical problem to take care of my adult child. I now asked if you can please add me to your prayer list. 🙏 My name is Maria Dolores Nuñez. ⚘
Mine started around August 1st of last year (2018). I was in Chicago and it was like 105 degrees outside and I was in line for the sears tower and I started getting this same thing where I felt like I was moving but it was hard to explain. I thought it was like dehydration because it was so hot out and I started freaking out, which made it worse because there’s like hundreds of people in line. I had to ems called they check my blood sugar and everything and it came back normal. I literally had to leave Chicago and go back to Ohio which was a 5 hour drive and the whole way home I had those symptoms. I was thinking to myself like why am I feeling like this because I had the AC on in the car and I thought it was just dehydration- which I know now obviously wasn’t. I actually play football for my college and I had practice starting soon and the symtoms kind of subsided a little I was glad because camp started August 7th and this happened to me around August 3rd. Someone I don’t know how but I made it through camp which is a 5 am thing till 9pm thing for two weeks. I just pushed through it but like I said the symptoms kind of subsided a little but it was still there. I eventually couldn’t take it anymore when it came to the first game and i felt like I was going to fall over and pass out which I wasn’t going to pass out obviously because it’s an inner ear disorder not because I was dehydrated. I was taken inside the locker room and put in an ice bath because the trainers thought it was heat illness. Of course the bath didnt help and they later said it was just anxiety. At the time I knew it wasn’t anxiety but now looking back it was apart of it because of how this makes you feel. I was also having tingling down my arms and in my legs which on the second day of camp-forgot to mention, that I went to the ER because I was having tingling in my whole body every time I took a foot step. I sat out of course from the first game till about 4 weeks left of the season since my symptoms kind of subsided again and it also wasn’t as hot since It was like late September or early October of 2018 by now. I was still having the vertigo and I was like hopeless. While I sat out of football for 6 weeks I had heart testing and brain MRIs because the doctors thought I could of had MS, which makes sense because when you put the two and two together (tingling and vertigo) it sounds a lot like MS. I somehow made it through the rest of the reason until winter lifting of this year January 2019 when It was just so bad and I was having like internal tremors. It was so weird I felt like my whole body was shaking but you couldn’t see it shaking and it would be hard to sleep at night. I literally thought I had like some type of nervous system issue but I’m starting to realize it’s just Aniety now, which is funny because all my doctors said it was just anxiety and I thought they were crazy because we start to normalize this feeling of anxiety and the feeling just becomes normal when you have this type of inner ear disorder. I had an emg/ nerve conduction study to check for the tingling which I had anxiety leading up to the test watching vids on here about people’s experiences. Of course he test came back normal and I was just like wtf. I kept doing research and I finally came to the conclusion I should call about seeing an ENT which by now I was pretty much hopeless but desperate for an answer. They did a hearing test first before I could see the ent and the test came back normal. I went to the ent and he referred to me a vestibular specialist. This has helped out enourmaously the specialist said it sounded like a viral vestibular neuritis that hasn’t healed all the way and that I should do these exercises for it. I did the exercises everday since March 2019 and now it is July and I still have symptoms. About a month and a half into the exercises the vertigo when about 99% away I thought it was just about gone and the shit CAME BACK. I keep doing my exercises which make me dizzy af at first but your brain is supposed to learn from it and fix it but mine right now just hasn’t been cooperating. It was actually helping for so long up to the past couple days and I just made an appointment today to see the same specialist since they discharged me. I really hope I can figure I out
I cannot believe how similar our stories are. I was also told it was just vertigo, given Meclizine and it made me feel worse. I have been to the doctor three times in two weeks and have also ended up in the ER twice. It is terrifying not to know what is wrong. I also had an MRI come back normal. They gave me Ativan but I do not like to take prescriptions unless I absolutely need them, so I haven’t taken it. I am on my way to my first ENT appointment this week. What an absolute nightmare this is. The anxiety that comes with it is unbearable and this experience has been so isolating. It really teaches you to advocate for yourself and to keep speaking up until the doctors can make sense of your symptoms. I was finally told it was labrynthitis, but I am sure the ENT will give me more information this week. Thank you for giving me hope that this will be gone at some point. It is so depressing not to be able to work or to participate in everyday activities. I hope to be able to leave my house soon without feeling so dizzy and afraid I’m going to faint! They are pretty sure this was caused by a common cold. How scary. I wouldn’t wish this upon anyone!
Hi.. thank you for sharing your story .. so glad you are through the worst and am hopeful you are still experiencing good health.. my mom is struggling with this and I am glad to know your story to help her and share with her..
Yesss i need lots of prayers i just came across this video now looking for answers. Its been 3 months with the same symptoms pressure in my head and ears, dizziness, feeling like i lean to one side and its driving me crazy. My anxiety is really bad. 2 ER visits and nothing. Seen the neurologist and did and MRI results came back good and i dont see my doctor till the end of this month they still cant figure out what's going on with me and i feel horrible. Depression kicks in im not as active as i was its horrible. So glad i saw this video tho. Gives me hope.
alixis padua well I’m sorry you’ve had to deal with such a horrific illness. I will be posting a new update this weekend on where I’m at just a month after posting this video! Miracles can happen is all I can say. Stay tuned! You will be in my prayers!
Hang in there! I've been to the Er, Urgent care, Audiologist, ENT, my main doctor and 2 other doctors when my doctor wasn't available. Now I'm headed to Colorado Springs to see Dr. Joseph Hegarty. General Otolaryngology/ENT Neurotology. They say he is my best bet to figure this out. I know I keep commenting however, Low salt, no caffeine and chocolate will do wonders. I may take time for the effects of the diet to kick in but I recommend Migravent 3 times a day. It's really helped me. I've been off of Valium for 3 days now and I cannot believe how good I feel. XO
Thanks for the video. Reading all the comments below makes you appreciate just how many of us suffer with this illness. Like you say trying to explain just how you are feeling is so difficult and it seems to take so long to get diagnosed.
Hi...I just got diagnosed woth this...I have had it nearly 2 years and only now have I found the answer...Please pray for me I hope my Balance Therapy works :)
How’s everybody feeling nowadays? I have had this for a year now. Trying my best. Please share what’s been working, how everybody got better, and if anybody truly feels like themselves again.
I've been in the hospital for 5 days and getting ready to go to rehabilitate. I'm really struggling getting better I'm in bed can even give a step with out feeling horrible. I need support so I can feel hope, well this did it, thank you so much for sharing this is very helpful. Sad to say I lost my job 😭😭😭 won't be able to drive 😭😭😭 I have a long recovery. God won't leave me nor forsake me ❤❤❤ Yes thank you need prayers in the name a Jesus. Amen
The same like me, I’m 4 and a half months. It is horrible. Constantly dizzy, I lost 10pounds , praying at all time to Jesús. 😢I know God will give me the victory .
I told my wife today I feel like Im walking on a trampoline.... Im going through the same thing with feeling drunk alldayy 24/7 it is horrible. The only other symptom is I get hot in my ears when the dizziness is peaking. I am a pastor so I will pray for you and your family. Thanks for the video and the hope...
I'm so sorry to hear about your struggle with VN! Unfortunately, few ENT's, ER docs, FP's or even Neurologists know how to properly treat this condition. Additionally, I have never met a or heard of a physician who manages VN ever having the pleasure of experiencing an episode. Thus, finding the right help is very difficult. I had my first attack in of VN in 2008 which landed me in the ER and then again in 2009. I have also experienced BPVV and have been misdiagnosed and mismanaged by numerous medical personnel. Again, most just don't understand how to treat. While I have been symptom free since 2009, there is not a day that goes by that I don't address prevention management of VN, which is critical. As a result of my past experience with VN I've learned best practices and I'm happy to share them with you. Please let me know if I can help? Thanks so much and I wish you well!!!
MrCynbob yes I would love your help!! I can’t wait to get to the 100 percent mark I feel so close but i also wonder sometimes how much longer it’ll be!
I’m so sorry this happened to you. I feel like you are telling my story. I haven’t been diagnosed with anything yet, but all of my symptoms are similar. I’m also the same on taking pills. I want to find the most natural way to fix any problem. When you mentioned the anxiety it triggered, I almost cried because I identify as well.
I have this too !! You must stay positive that is the key , it isn’t nice but praying and exercising are the key! Try to get in touch with a Vestibular therapist who will show you the correct exercises. Good luck everyone x
Wow. I am so glad to see this video of yours. I have been struggling for years now. Last year was the peak until this year. I've had check ups with ENT and my 1st doctor was 'useless' he just said there was nothing wrong with me and paid a lot. This year, met a new ent doctor and finally thought I could get some help because, your story says it all. It's driving me nuts. Did an audio test, CT scan and VNG. Doctor suspects Meniere's, BPPV and Vestibular Migraine. Audio test showed abnormal right ear results, CT scan was all normal, VNG showed abnormal right ear results and suggested VN. After that, that's it. My world tore apart when my doctor said it's irreversible. That means, it'll be with me forever. 😭 Since then my anxiety turned depression and I am still coping and trying to accept all these fact. But it seems hard. It's really hard having this condition when nobody understands what we're going through. I never cried about what is happening to me until today when I read comments here where people experience the same thing. Reality striked that there's a chance it will stick with me forever. I just feel like I wasn't diagnosed properly since I have symptoms, such as tinnitus, that for me, doesn't fit into VN. I think it's another condition or maybe more.
@@marioavila9021 hello! Thank you for asking! I was diagnosed with Myasthenia Gravis & after treatment with steroids for several months, my symptoms eased. Thankfully, I think I've leveled off & able to function better than last year! I'm adjusting to my new normal. How are you?
@@marioavila9021 my neuro opthamologist had me on steroids to suppress my immune system & it helped reduce my symptoms. I have occasional balance problems but not as severe as they had been. It appears that my balance issues are more related to MG & orthostatic hypotension rather than a vestibular disorder after all. I'm so glad you're getting better! I hope you continue to improve!
Thank you so much for the video so glad you are better. I currently going threw vestibular damage and vestibular migraine. I've been dealing with this for years now and doctors kept telling me anxiety and panic disorder. So kept going threw different medications and nothing worked and most made it worse so I kept going back and worth to different doctors still not getting anywhere finally a doc said you need to see a therapist. So I went for a couple visits and she told me she deals with anxiety and panic disorder and she thinks mine is due to something that is in my inner ear and said I needed to go to Boston eye and ear and see a ENT so I went and he set up mri and did some testing and everything was fine and I was still having the symptoms so he referred me to a otonenerouligest at Boston eye and ear and they did some hearing test which was perfect. So they did a eng/ vng test and that's where they found out that I had vestibular damage in my left side with. And a thing called vestibular migraine. And now I am going to a vestibular rehab therapist said it'll be awhile before I get better but this should help. I hope this helps anybody. Wish me luck Daniel Bryant I'll be praying for you all also.
Me and my sixteen year old son have this. We do good for months then got covid two months ago and we relapsed. We're getting him into vestibular therapy it's nice to not feel alone and crazy
Thank you for posting this! I got sick at the exact same time you did last year and went through everything you did with er’s and doctors and specialist and calling out of work right down to being scared to take medicine even for headaches. I still suffer with this but did get better for a while and relapsed. I never got as bad as I originally was and I’ve dealt with vertigo off and on for years so I didn’t get nervous at first but after MONTHS I became a devastated. They sent me to VRT but I didn’t like the exercises so now I’m on here looking for different ones. Can you post a video of what you did to recover please?
I have had this horrific problem for several years off and on. I believe it is a seasonal thing. I typically get it twice a year and it can last anywhere from a month to two months. You look fine to family and friends and Dr’s but Inside you are in absolute misery, depression and want to rip your hair out and just want it to stop. Constant brain fog, dizziness, lightheadedness, fullness in ears, panic attack’s, heart palpitations and anxiety attacks. Currently on my second round of Methylprednisolone & Valacyclovir and symptoms have not stopped. Started first week of December and have not subsided yet. I quit smoking and quit drinking and changed my diet entirely and symptoms still have not stopped. Dr’s were little to no help and all the money spent on Dr and medical bills yielded no answers other than “It’s viral and it will go away on its own”. I would not wish these symptoms on my worst enemy and pray God will please take this feeling away from me. I go to bed every night hoping that I will wake up and feel normal tomorrow and I never do. Life can not continue like this otherwise I fear I will have to quit my job and never leave my house again.
I understand and I'm so sorry. I'm going through the same thing. Off and on for years but this is the first year that I realized that it's more serious than I thought. It's been 3 months and every morning I wake up and have to take my Valium and other things. The ear pain is so frustrating and depressing. I've had a MRI, Ear exams, ENT appointments, 3 ER visits, Blood work, Massages, and I go to the Audiologist tomorrow. I've had multiple opinions on my condition and the fact that the valium is providing some relief my main doctor thinks it may be due to post viral inflammation to the vestibular nerve. If I wait to take my valium my vertigo and ear pain hits me like a brick to the head.
I’m sorry you’ve had to deal with this. I know I can be so extremely debilitating but we do NOT have to live this way. If you’re a believer, all I can say is God WILL heal you. I have a new update coming soon on where I am now just a month after this video. Stay tuned and I will be praying for you!
I understand you completely!!!!!! Ive been having that !! I try to explain ppl my husband no one understand it !! I’ve been having this and I just feel like I don’t want to get up in the morning I just want to stay in bed and don’t feel all this dizziness! My ears and head rings all night I can’t sleep ! I cry everyday but I have to stay positive for my 2 year old son ! I’ve only gone to 2 doctors and he put me on Meclizine I stoped taking it because it made me feel like if I was on drugs ! I’m going to this dizziness rehabilitation center ! Because I have that ringing in my ear that it’s annoying I hope they can help me ! I have been doing my own research going crazy trying to figured out what wrong with me and I think now I have an idea ! I have so much anxiety , feeling down it’s awful I don’t wish this to anyone !!! I hope you get full recovery God bless you !!
@@omarbilbao7460 no I haven’t . But all I can say is be kind to yourself do not stress . Everything adapts, we all adapt thank God!! 🙂 I still hear it but does not bother me anymore .
One weekend in and it’s been tough. Looking for positive videos and any support possible at this point. Still scheduled for an MRI but neurologist said I need to keep moving and exercise. It’s hard when you’re constantly dizzy and nauseous and your mind place tricks on you like will this ever stop. Trying to remain positive. Hoping everybody that is going through the same thing. Find some relief soon..
Omg!! I feel this everyday.. Question have you ever felt like you were going crazy? Sometimes I feel like my brain is squeezing.. I don’t feel right when I go outside. I feel like I’m dreaming 😢😢😢.. I’ve lost so much weight had panick attacks.. I’ve lost so much weight.. But this got me closer to God
Monique Jones Omgg I’ve become closer to God and even though I feel the symptoms it’s not as bad as it was. God is my healer and I believe and trust he will continue healing me.. Thank you sooo much for your video...
I have the same thing! 2 months in!😢 Exact same symptoms! The anxiety, the rocking, swaying like on a boat, weakness in my legs. I can't believe it! My neurologist did the epley maneuver, but it didn't help. He said it's bppv, but it's not. The maneuvers don't work. Looking for answers.
Been dealing with this over a year now .. it was so bad at at first with the anxiety attacks , er visits . Every time it seems to get better it comes back .. the anxiety attacks have you thinking your literally going to die .. I can go to work at least for now .. the last few days I’ve felt it getting a little worse ... it does a number on you mentally .& it’s aggravating trying to cope with this on & off
Ive had this for two weeks now. First week i was scared to death because i have never felt this way before, couple of E.R visits and doctors appts and everything came back that i was healthy. Knowing that other people had these symptoms took alot of the anxiety away this week..Have you taken anything that seems to work for you?
Thanks for your video. I’m going thru this now week 5. It’s tough psychologically. Please pray for me. Some days I feel like I’m going backwards in the healing. Thank you. 🙏🏼🙏🏼
Make sure your doing static and dynamic vestibular balance exercises. Static on one leg or tandem stance on a foam mat or throw pillow while turning head then eyes closed , dynamic walking heel to toe is a start and eyes closed. And all the eye/ VOR part 1 and 2 exercises on TH-cam
Hi dear that sounds just like me it is very hard to go through it but with the help of God I am still alive I am taking sibeilium 10mg for one month it helps tell your doctor he might give it a try may the lord bless you and your family.
You should try drinking ginger tea and see of helps. Its a natural remedy. And you could put one soon full of sugar to help it taste nicer. Let me know if it helps, it helped my dad.
Sorry hun! I am the same way. I'm a single mother with 3 children and I feel like I'm going insane. Valium is the only thing that keeps the pain and vertigo at bay. No alcohol, no caffeine and a very low sodium diet helps. I take Migravent for my tension migraines and that helps a ton! 23 minutes into your video really touched me. I've had so many connections recently, something that only God/Spirit can create. An Uber driver said to me the other day, "If there was no God, there would be nothing" Powerful XOXO
I've never had valium , where do u get that ..is it doctor prescribed ...or over the counter. Will it help put things at bay? I'm going crazy out of my mind ..I have noone to take care of as I cant even take care of myself
Anna Sousa The Valium is prescribed by my doctor. Somehow it cuts the brains message to your ear that it is unbalanced or in pain. It’s one of the only things that stopped the vertigo. Oddly enough, today I woke up with some intuition that I was not going to take a Valium. I dropped the kids off at school, came home and slept till 3 o’clock. I’ve had a little bit of pain but nothing compared to how it usually is. I did some yoga and I just feel like I’m in a better mood and thinking more clearly. The Valium, yes it stopped the vertigo and the pain, but the Valium was destroying my mind and my life and making me depressed, unable to focus and many other weird and unstable thoughts. It’s a quick fix for bad days and I’ve been taking at least 3 a day for months now. If you are in pain definitely talk to a doctor and get the Valium.
@@parakeetsparrotsbirds9291 thanks for that information, I am going to see an ENT on Jan 15, so I should wait and if nothing comes out of that appt. I'm going to ask him if he can prescribe me valium. I need relief from this as it is making me so klutzy, and is taking away my walking abilities because I am so dizzy that I have to hold on to the walls in the hallways. This is not vertigo,.its me spinning, as its vestibular neuritis.im going out of mind. I have really let myself go alot from this, I cant go to the gym at much as I want to. This holds me back from everything even going to the grocery store it really makes me so fatigue, that I slur when I talk. I wouldnt wish this on my worst enemy. That's how bad it is.☹
Thank you for your words..You described my life for the last 4 months. I requested my Primary Care Dr. send me to ENT a month ago who did a VNG test, a CT Scan and diagnosed with VN earlier this week. I use Flonase in am and pm , Claratin and Tylenol Arthritis for anti inflammatory. It is 95% better , only a brief woozie when I lay on one side,but your words give me hope . When you described going into stores..I shouted YES, someone knows how I feel.
I am much older but felt insecure watching my grandchildren so I give you props for your mom skills with this condition.
I also have osteoarthritis is my neck with bones spurs..chiropractic adjustment helps too
I pray that since this you are fully recovered...gives me hope 💓
I have your symptoms. Four years in. Doing eye therapy that is helping some. Prayers appreciated! Thanks for encouraging us!
Praying for you
Stay strong
I’m 5 years into symptoms and having tests, they’re pretty sure it’s vestibular, think I’ve lost hope tbh
Nine years for me. They first said MS, then 6th nerve palsy from possible diabetic nerve damage.
Thanks for this amazing video x
Thank you so much for sharing your experience, strength & hope! I got VN out of the blue so bad my husband thought I was having a stroke & now have been like this for 48 days. My name is Sara, please add me to your prayers. I must believe we can get better b/c living like this is so overwhelmingly hard. Thank you.
Hi! My wife sent this video to me, telling me I was going through the same thing you've been through. I am a month in with the symptoms, most probably due to stress, anxiety attacks and expectations of being a first time parent/dad. I developed tinnitus last September, but my ringing in the ears have improved a lot, from an 8-10 to a soft 2-3, sometimes a faint 1 for the whole day. I also went to 12+ doctors now and none of them helped me at all. I am also a Christian, and I believe it is only God who can totally heal me from this ordeal. If it is not too much for you, please pray for me as I go through the road of recovery. God gave me so many verses and personal words of encouragement, saying that He is going to heal and restore me (Isaiah 53:5, Matthew 21:22-23). Thank you so much and God bless! Happy to hear you're almost a hundred percent. Believing for total healing with you! Be blessed!
Hello have you had tinnitus? have you healed?
I just wanted to say thanks for your story. Many doctors didn't take me seriously, it took a physio therapist to diagnose me with this to finally get somewhere. People truly don't know what's it's like but now I'm a lot better I still feel a bit here and there but I'm currently doing vestibular rehabilitation. It's crazy how your ears can do this to you.
Dear Cat, I am sitting here with tears in my eyes because I have had this problem off and on for years and no one offered help.
I am currently dealing with it again for the last year. Like you I have been to every doctor and had all the tests. You described it perfectly. I am a portrait artist and I couldn't complete a commission because my eyes would dance back and forth, I have lost ten pounds and fight to stay active and happy. It was one of my student that heard me describe my symptoms and told me that it sounded like vestibular neuritis. I found you and realized that it was what I had. Thank you for your video .
My story for the past year and a half. I'm also a believer in Christ! I know he heals and I'm claiming it in the name of Jesus! What a wonderful testimony! I'm so happy for you!
Jesus was a Messenger of god as he described him self. He said not my will but the will of the father(god).
Jesus was not allknowing like the father so please don’t make jesus as a god he is a beloved prophet true messernger of god. And he said he can’t do anything without the willing of god
i suffer with this right now, but all i know is that there is always an end on all suffering. thank u for this video.. u gave me strength.
Im sorry you're going through that... How are you feeling now?
I been dealing with it 2years now and I cry and cry I'm scared this has taken over my life it seems like I'm never gonna get better I have 2 daughters to live for I trust God and I pray I just don't know what too do I can't work it's hard to stand long periods of time it's like your in a sinkhole and can't come from it please pray for me😊
Ms Nikiiredd Same. I am in my two years and an ENT just yesterday told me it’s Vestibular Neuritis after a whole 2 years of going to doctors.
@@amandas.8809 wow what did they give you too stop it or are you still going threw it like me? ....
Ms Nikiiredd I am still going through it hun. They are going to refer me to a vestibular rehabilitation clinic to do therapy exercises for it.
@@amandas.8809 okay i have a appointment next week with the therapist they say this should fix the problem after one or two visits i pray it does i dont wish this on my enemy!!! Blessings on yours i pray it works for you..
Guys, please give this a try: th-cam.com/video/SkUNL0evxqE/w-d-xo.html Joey has answers to a lot of the symptoms and how to heal. Best of luck everyone!
I am still struggling through this. Thank you so much for sharing your story. It gives me hope for healing. I would appreciate prayers as I continue to navigate through this. I feel about 60 percent better, but keep persisting.
Deirdre best wishes 🥰 the book Rock steady was very helpful for me
Been struggling with it for 10 months. Thank you for this video, validates and makes me feel like I'm not the only person suffering from it.
I've been dealing with this for 5 months now it's a little better than before but I often have unexpected bouts of dizziness sometimes I feel like fainting😢
I notoriously watches video where people come out of it and there is hope for me too💪🏼🤞
@@mariolapawlak9283keep watching positive videos only !!
Keep moving don’t stop
@@mariolapawlak9283how are you feeling now? Is there anything you did in particular that helped you heal?
Thank you for sharing your story. My VN started approximately 2 months ago. I am starting to feel hopeless, my anxiety caused my blood pressure to elevate and suffered a minor stroke. I was hospitalized for a week and sent home with a walker. I really don’t have a support system which I truly believe is important. I would love if you could pray for me. Thank you and God bless!
I’m sorry you had to go through that Valerie. I know exactly what you’re going through, and I know how it feels to feel hopeless but just don’t give up. You will recover and you will heal. Make it your daily job and goal to get better! Even if it means putting yourself in situations you don’t feel comfortable in. As long as it’s safe anyways. But you will get better I promise! I will add you to my prayer list!
Thank you for your your kind response. I will be praying for you as well 🙏🏼..I look forward to your future videos. God bless!
@@BharusDiaries you poor baby. I feel you. Why did you faint? Sometimes i feel like im light headed.
@@valerielozano5069 have you helead?
Omg this is me for the last 14 months,I've had test after test,and have seen many different doctors,I think we all know that we feel like we are the only ones that have this ,I myself have been so broken from this its very had to see the light at the end and some days I just want it to go so bad but to wake up day after day and its still there,I'm still doing the head and eye exercises every day , thankyou very much for your video ,I wish everyone that has this problem , strength and faith that we will all get better soon.
Me too. Dx’d and went through VRT is like physical therapy. It helps a lot. MRI first. I have these symptoms still but it’s getting easier. I have not given up. Kept up with the VRT visual stabilization exercises, calming nervous system.
The VRT exercises may make you feel WORSE at first which for anyone reading this please do not give up. It gets better. I cannot guarantee you will be completely normal but it will get better.
Shora Harris did u take meds
I am 2 months into this. Even typing this is a chore! I went to the ER at first, then to the ENT, same tests, then onto the hospital because they thought I was having a stroke. Finally after being diagnosed with Lyme Disease they let me go with antibiotics and Diazepam. Left Florida for a week and got into the Cleveland Clinic for a day. Avascular Neuritis. And its not over yet! I asked to be made stronger, and God gave me exactly that.
I'm gonna grab my cane, and go for walk! Thank You!!!
Thanks be to God, and a loving "confused" family.
watching videos like this is what gives me hope, ive also seen many doctors no one can tell me what i have, it is absolutely horrific beyond words! but if you could get better I believe we all can! please pray for me! my name is "eliett alcantara" I will pray for everyone suffering from this condition too!! sending my best energies towards you and everyone suffering from it!
Pray for me too. I pray for you.
So nice to hear all of your stories. Dealing with this has been pure hell. Im 8 months in. My best day I might be 90% but haven't gone back to normal. Working has been hard. Some days just standing is hard feeling like I'm going to fall over. I wish there was a magic pill to make this all go away
Hello Ariana. A year later are you feeling better? Thank you
@@frenchustube yes! All back to normal now. Think the balance therapy helped a bunch.
Hello have you had tinnitus? have you healed?
@@omarbilbao7460 Omar I really recommend reading the book Rock steady
Thank you for making this video. I had VN 6 years ago and it went away after 3.5 extremely difficult months. I had a 30% deficit in my right ear and doing the vestibular rehab exercises helped. Anyway, I was going through a very stressful time just 2 weeks ago and it triggered a relapse (decompensation) where my brain has "forgotten" the adaption it learned. I'm resuming the exercises but it's getting worse (before it gets better, I hope) and it's scary all over again. Just wanted to let you know to always manage your stress well to prevent possible relapses. Also, to please pray for me, Steven, and I will pray for you too! Thank you!
have you had tinnitus? have you healed?
GIRL You sound just like me! May 7 will be one year since mine hit. I have good days but I still have bad days. Dizziness still comes but not super bad. Anxiety is still there though. Hits me out of nowhere at times. Glad you are feeling better!!!
How are you now?
Would like to know as well
have you had tinnitus? have you healed?
I've had this issue for 30 years. Alot of anxiety and depression with it and I feel helpless as my life never turned out the way I wanted. God Bless to you and your family..
Cat! Thank you so much for this video! I've been experiencing these EXACT same symptoms you just explained, I'm a Christian as well. After not really getting any answers from doctors, I began to do research on my own and have been praying a lot. I do not think this video came up in my feed by coincidence, but because God actually wanted me to hear your story and know that He is always in control and there is hope. Thank you so much for your detailed explanation of everything you went through, you really put a lot of things in perspective for me. Please keep me in your prayers, God bless! 🙏
th-cam.com/video/wnrNcCWWAws/w-d-xo.html. This is a vestibular physical therapist specialist on TH-cam, she has 5 videos on her channel,eye exercises and balance, follow her directions to start with your recovery. Make sure you don't go any faster with her eye exercises for dizziness,that's the max or you won't get better. Also buy a foam mat on Amazon for some static vestibular balance exercises . There are examples online, make sure there for vestibular. Also do dynamic balance exercises to very important examples, heel to toe walking while turning your head side to side and up and down.
thanks for this video. I've been dealing with this 13 months now. Started much as you described, but then I also developed severe neck pain and tinnitus. Still fighting this rollercoaster. I had all the tests and been doing physical therapy for 6 months now. Your right, the doctors mostly don't care and it makes you see the world in a colder way.
Go to a chiropractor couple times a week for that neck. Trust me
@@8benzin🙏👍 thanks!
@@dolphinwizard13 neck pain will go away on its own and less anxious
I have the same symptoms 🥺 its being 10 years every single day. I just learn to live with it! Still pray to God to heal me i don’t know when but i know one day i will wake up normal again
janet martinez yes Janet it will happen one day! God’s promises are TRUE!
Have you found anything that works for you?
@@catrose3912 hi hun could you help me please
@@catrose3912 Good evening. Thank you for sharing your story. My journey is so similar. It started 1 months ago. I had an emergency room visit, had CT scan done, had MRI, had CTA. I saw an ophthalmologist, Neurologist and Ent. After 1 month of not knowing what is happening to me, the ENT doctor told me it is Vestibular Neuritis. There is no word to describe the dizziness, I feel like people don't understand what I trying to describe. I am literally here looking at videos to see what exactly this is, and if I am the only person feeling like this. All the symptoms you described are exactly what I am going through. I am trusting God for a break through. Your story gives me hope.
You need do exercises of vestibular recovery every single day.
Thank you so much for this video.
I suffer from this sickness too and pray a lot.
I hope that is will go away and you video helped me a lot.
Thank you
I am so glad that I clicked on you today because you have described my symptoms exactly! I have been struggling with dizziness for about 3 months now. It has been very scary due to the fact that I can not go out and enjoy life without feeling dizziness in open spaces such as department stores and I even felt like I would pass out during my daughter's 5th grade graduation. I has been a nightmare and you are right that Meclizine does not cure vertigo. I took it for a while but my symptoms still persisted and I unable to drive at the moment due to dizziness while operating my vehicle. I too feel numbness and believe that anxiety exacerbates the problem as well. I am about to go and see an ENT in a few days. You have given me hope and now I know that this is not just in my head. Please pray for me as I pray for you in Jesus name. God bless!
Are you ok now ? This sounds like my symptoms. I've had it for two months :(
hello everyone, like most of you I am also facing this horrible thing.It has been almost one month living with this thing.its really hard to live with it.but it really gives hope to recover & live happily by seeing you u guys talking about this and things to do for get away from this.thanks for video it gives courage to fight against it. I am recovering at good speed . I think medicines are working.
Thank you for sharing your story. I’m going on 7 months with Vestibular Neuritis and just when I thought I was coming to the end, I was triggered and suffering all over again. Hearing your story helped me feel seen and heard, as no one in my family understands, relates or seems to care because it’s a disorder that’s not visible. I often feel alone but your story has really given hope and inspiration to pushback and heal myself. Thank you 💛
th-cam.com/channels/yOtF1JIyNgXZUcnFf-JqUw.html. This is a link to a vestibular physical therapy specialist,she has 6 videos on her channel .She demonstrates the exercises,eye and balance . Hope this can help you .
Hey anyea how are you feeling ?
Hello have you had tinnitus? have you healed?
Doctors have no knowledge about vestibular neuritis. I had it for the first time for 3 straight days and slow recovery after that. 11/07/18 since this day I haven’t driven a car , until recently I decided to drive again. I feel a pressure in my head when I try driving and then anxiety kicks in. Doctors tell me I have to train my brain again. I’m 90% better. Thank you God! I’ve been driving nearby distances. Hair loss like crazy. I’ve been doing yoga and it seems to help. Thank you for your testimony. Ill keep u in my prayers for you to get well soon.
Weird, I've had hair loss as well. I am on day 3 now without any Valium and feeling so good. I almost can't believe it. My ear pain is 90% gone and my migraines are gone as well. I bought Migravent and take about 3 a day. Very low salt intake, no caffeine or chocolate. Getting better but still want and looking forward to answers.
@@TJ-rp6wu what kind of ear pain did you encounter?
ER didnt know but my family dr called it VN but was not familiar or confident. Took 3 months to get into ENT and he was a moron. That was Dr Melvin in Asheville, NC. He told me I could see someone smarter and I did. Wake Forest Baptist Hospital has a balance and dizziness center. The Department Head is Dr Alan Desmond and knew exactly what was up. He was able to do more testing and determine I had 57% permanent damage to right vestubular nerve. He knew exactly what I was feelung bc a year previous he had the exact same thing happen to him. He recognized the symptoms and recorded his journey and progress for use in teaching his med students. Vestibular Rehabilitation Therapy is really the only thing that helps this condition once permanent damage is done.
You have just spoken my life. The doctors don't have a clue. I only hope I could heal. I'll never give up hope. I just about managed to wash my car the other day and it wiped me out for two nearly two days! Thanks for making this video, it gives me hope that I may heal. God bless to you. x
Yes never lose hope. I am also feeling better now , still not 100% but better!
David, how are you doing now?
Hi! Thanks for getting in touch.
In some ways, better. A little more life. Generally, slow progress. I'll never give up. I try all the time. Its my hobby.
God bless you!
Thank you for this video. I'm in the pit of this right now. Was diagnosed 1 month ago, been suffering mildly a year, seriously for the last month. I too developed really bad anxiety due to not knowing what was wrong with me. Been doing rehabilitation therapy (focusing while shaking my head) but it has been really tough. Ive cried out to God and even doubted him at times. It's inspiring to hear what you have to say about your relationship with God despite what you went through. I'd love prayer. I will pray for you also. How are you feeling these days?
I just want to say you are the BIGGEST BLESSING to me right now. I just sent this video to EVERYBODY who gave up on me because I’ve been dealing with this for 3 months now and the doctors make you think your insane. God is also my ONLY way through this. This devours your ENTIRE LIFE. I feel HOPELESS but I know it will end one day. I’m only 20 and this is stopping me from doing EVERYTHING ... I just pray for myself to be normal again. I FELT this .... so much.
How are you now? Im going through this now.
@@Underyourbedeyes how are you feeling now? Im only two weeks into mine and just searching the internet for answers.
@@mikemike3514 maybe worse unfortunately. I'm struggling.
@@Underyourbedeyes Sorry to hear that, this feeling is so uncomfortable and scary because of all the unkown. My anxiety has gone done tremendously knowing that im not alone..But this 24/7 Brian fog and persistent dizzyness is mentally and physically draining.
please pray for me, my name is Marclem Soza, thanks you so much for this video.. Only god will heal us.
Literally what and how you explained is what I felt. It’s been over 4 years and I still haven’t reached 100%. I guess I’ve gotten used to having some symptoms and my left ear is still sensitive all the time. It’s almost unreal to hear your testimony because it really feels like I was the only one feeling like this. 🙏🏼
Yes, God gives us the pathway to our healing, Body Soul, Mind, Spirit
Almost two months in. Felt so hopeless until I found your video! This is such a horrible thing to deal with. It's turned my world upside down. I'm hopeful ill get better soon. I would love more then anything for you to pray for me! It's such a dark and lonely illness that no one understands unless they have it. You start to think that this is your new normal and that you won't ever get better. I've been to the emergency room 8 times thinking I'm having a stroke or a heart attack. I've never in life had panic attacks or anxiety attacks until this illness. It's also brought me closer with God and for that I think that's why he's allowed this to happen to me. He knew I needed him. Thank you for this video!!
Currently dealing with this for 7 months! Thank you for this video ❤️
Have you had any success with anything you take or any excercises you do.
Sorry for your suffering. I can relate. So glad you're feeling better! Thanks for your story.
Thank you so much for sharing your testimony! I’m going on four months and, if not for the anxiety, I’d be so much better than where I’m at. I know God has given me strength to be where I’m at now, I just have to figure out how to get rid of this last bit of anxiety that continues to linger.
Candace Taylor hi Candace, here’s a great scripture to stand on to help deal with the anxiety. Repeat to yourself constantly, right in on post it notes on your mirrors, fridge anywhere as a constant reminder❤️ Philippians 4: 6-7
6 Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; 7 and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.
Thank you so much!!!! I will do that!
@@catrose3912 how are u doing now, I have bilateral vestibular weakness.
Thank you so much! I'm a believer and I know I will heal from this. Thank you God Bless you and your family😊
I just came across your site I had this for years I am going for therapy but I could do the same at home. I started doing healing meditations with God and the arkangles , starting to finially feel better. It's so true you need to go within. Many blessings than you.
Thank you so much for making this video. I relate so much to it and what I have been going through with everything you mention that goes on with this sickness especially with what you mention at the end with Christ. It has made my relationship with Him so much closer struggling with this on the day to day and depending on Him. This video is a hope giver so thank you.
Thank you for sharing. This gives me hope. Your video really makes a difference ❤
Oh!!! thank you so much!!!
and for the prayers: my name is andrea.
God bless you!!!
Thank you so much!!!
Please 🙏 for me i am going through severe vertigo n dizziness for 2 months. I too no answers from doctors. Thank God you are better. Blessings for your health. I know exactly how you feel. God Bless.
So it's now Feb 2022. I hope you still monitor your channel, can give us all an update?
Thank you for sharing your story. I’ve been living with vestibular neuritis for five years with everyday symptoms of feeling like I’m on a boat. I’ve seen so many specialists but haven’t really had any break-through treatments or therapy. You are right - only the Lord can give us stillness of mind and strength to carry on.
How r you now , an what did you do to get better
@@pigjones2724 Actually, the dizziness is still the same 24/7 everyday. Went through lot of mental breakdowns… eventually I accept to live with it as part of my life. Life goes on. I get stronger to fight for my fear and try my best to live like normal. Ah! Exercise and meditation help me to ease the dizziness symptoms a bit.
@@allisoncheung1035 Thank you I wish you the best , My pt wants me to try cortisone did you try that
@@pigjones2724No. please keep me updated. I hope you are alright too. There are still many people like us. We might look normal. Doctors might think dizziness is little and not life threatening condition. However, I think we are really suffering mental health … The world seems moving….😱 let’s keep it up. Be strong 💪🏼
@@allisoncheung1035 Is there a reason you haven’t tried it , im not sure if I should .
This is day 6 of this and I am constantly praying for it to go away. I've been bedridden for these days. The last 2 days I can make my way to the kitchen and bathroom. I was in the hospital for the first 4 days where I was treated for dehydration and anti vomiting medication. I am dizzy and tired from a trip to the kitchen or bathroom . I can't wait for this to go. I've noticed one eye is always moving even while closed and I've been pressing on a point near to my eye to numb it and calm it down. It is kind of in the socket of my left eye. I know weird , but it has been helping today. The worst part was I couldn't even watch anything at first , only listen to videos and such. I'm doing a tad better now, but totally not able to work. I can't wait to be normal again and I am swearing to not be ungrateful about my health or anything like working because I totally did not like it and now I realize I should have been thankful for my job and my health. I want it back so much. I plan to not take life for granted and to show gratitude to God always for my blessings. Godwilling we can be healed quickly. I do not wish this on anyone.
have you had tinnitus? have you healed?
I am in it 2.5 years, still fighting! Thank you for your story.
J Lin 13 years for me
18 months and praying
Yes, this. I had seen SO many doctors and was super sensitive to everything! It was 6 months of hell. Going on 9 months, little better than the beginning but awful still. I am encouraged by this. I would say I think I have vestibular migraines, self diagnosed NO thanks to the all the doctors that did not help!
I am Christian too. At this point it has challenged my faith. So much that I can understand why people are atheist. Crazy I know. But truly, it is so bad that it's like you don't want to live through anymore. I would love for you to pray for me :)
I am going through this right now. Thank you very much for uploading this video. It really helps to know about similar stories.
Marcelo do you feel better ?
Listing to your story and its the same as mine. We to the ER I was told it was vertigo it should go away soon. Well 5 months later and I finally have a dr that is listening to me. Just had a vng test can't have an mri I'm claustrophobic, I'm meeting with a neurologist in 2 weeks hope they can give me so hope.
michael caputo Exactly the same thing happened to me. Just had the VNG. Sorry, this sucks....
This could be me talking!! The dizziness gives you anxiety. Then you’re hyper vigilant when you take anything. And you literally have to walk close to any walls when you’re out, even walking the dog. And going shopping with bright colored things swirling around you. Sometimes I just stagger out of there to my car in a panic. It is scary. You going and doing those things was a form of vestibular rehab. You pushed yourself. You have to push through.
Thank you for your testimony. I had this for 4 months 2 years ago and I am into it again now close to 5 weeks. I did go to the Mayo Clinic 2 years ago and they diagnosed me with Vestibular Dysfunction. There are exercises online to strengthen your vestibular system. I have had 3 bouts of vertigo in this 5 weeks....but have the heavy feeling in my head, the feeling of falling down all the time, I have tried motion sickness patches, Prednisone, alergy meds, etc....I was given Atavan for the anxiety but do not want to be addicted to this medicine. Your story sounds so very familiar....it is one of the hardest things I have ever been through. I would rather give birth! Anyway....thank you for sharing and yes, please pray for me. I am a believer and have held tight to the nail scared hand! I too have drawn closer to the Lord and thank Him for His mercy and grace!
I'm also believe in Christ and yes I'm going through similar symptoms not rocking Sensations but after vertigo attacks a couple times 6 weeks ago started feeling constant dizziness and disequilibrium feeling like I'm walking tilted and it definitely brought on severe depression and anxiety for first 6 weeks I'm going through vestibular training and visual eye training as well hopefully that will help but most of all my dependence on God and my growth in my relationship with the Lord is key number one and you're right there is no doctors out there that have helped me and I've tried and they are clueless like you said and so are people for that matter they just don't understand so thank you for this video it was very very uplifting knowing that you did get better and there's hope thank you
I delt with this for 5 months and the symptoms were severe and agonizing.Praying to the lord jesus christ helped me so much in understanding that i must be patient through my trials and tribulations there are lessons to learn through are hardships. The lord led me to things that really helped me and other people that i told this to said that these things really helped them also. Ashwaganda for the anxiety, b12 for the energy, Magnesium for the brainfog memory loss + once a day multivitamin, potassium and it was very hard to sleep so i would make a tea before bed made from valerian root and Camomile. Give it some weeks for your body to adjust.
Hi Cat. I feel strengthened watching your video. Most of the symptoms you mentioned about VN are what I'm experiencing right now. I have done MRI and laboratories also but it came back normal. I am in the point of searching testimonies of those who recovered from this illness though I was not diagnosed to have VN yet. I have another appointment for my Physiatrist this week but Im still trying to confirm if the symptoms I have are really the same as those who had this illness. I am just blessed to watch your video because it all points to God, Who He is and What He can do. Please oray for me. This all started after I gave birth to my 1st child. I am a pastor's wife and I am reminded once again about God's power amidst trials. Hope I can hear from you. God bless.
I hope you’re feeling better I met someone who had the same thing and it went away and they sent him to a neurologist and they gave him an anti-depressant call Lexapro
It took the dizziness away so I may try that
You are awesome. Thank you for making this video.
Same symptoms that u have I am also feeling that now it's 6 months I have going these symptoms lots of anxiety no one listen what is happening to me but I know it's painful feeling that I have please pray for me ......
How are you feeling now? Hope you are better 🤞
This is exactly my story too. Except that I’ve been suffering since 7 years and mine gets so worst the sudden massive spin that I fall. Doctor to doctor I’ve given up. I Pray so much too. Wonder how long more for me to go. I’ve fallen in kids school at work so many places. But what you didn’t experience was the sudden 5-10 seconds of rapid spinning where a sensation of being air borne is included. I still need help big time
I had the exact same story as this girl.it also started at the end of august with alergy and it spread to my inner ear etc... and im at my 4 months as im writing.But THERE IS A CURE.Enter vestibular therapy into youtube.U do exercices simillar to yoga with eyes closed.GUYS THE DAY AFTER I FELT BETTER. MY LIFE STOPPED FOR FRIKKING 4 MONTH JEEZ BUT THAT HELPED ME and im almost done thanks to that.Good luck and i hope we all go through this 100 %.
Thank you so much for sharing this video. I am 9 weeks today. Just starting to feel a tad better. I have hope and believe I will get better Only through the power of God.
How are you doing now? Are you recovered?
@@katiealanna I would say I am 90-95% better. Still have a disequilibrium feeling. My vestibular nerve is 100% compensated. Can’t believe it’s been 2 years.
Thank you for sharing what you have been going through, you did a great job describing the feeling of walking on rubber, no one can understand that feeling. How are you doing now? It must be very challenging dealing with all this and looking after your children who need you so much as they are very little. You have probably heard of VEDA a great source of information and they have a listing of physiotherapists who are trained in Vestibular problems. I am about to go that route soon. I hope you are feeling better.
Thank you for sharing your journey!! I’m currently on the road to recovery going on 2 years. I really need to hear this! Hope you are going well! 🙏🏻
How are you now ?
Hello have you had tinnitus? have you healed?
i really feel for you. i started getting symptoms last june and i’m over a year in and it stills feels like i’m walking on a boat. i’ve definitely developed severe anxiety from this as my brain likes to go down the worst case scenario. i believe that there will be an end to this which i hope is soon as i would love to get back into playing volleyball and doing the things i love again.
Your VOR not compensated can also effect your balance. Make sure your doing the eye stabilization exercises to.
th-cam.com/channels/yOtF1JIyNgXZUcnFf-JqUw.html. A link to a vestibular physical therapist. She has 6 videos on her TH-cam channel to help you. She shows examples of the eye and balance exercises to do .
How are you now an what did you do to get better
Thank you for this video. I am almost 6 months dealing with this. I loved your honesty and everything you are saying is what I've gone through or am going through .... I have good days and bad but I push myself and it is making a difference. It helps to know others have gone through this and have come out.... on the other side finally.
Hello have you had tinnitus? have you healed?
So overjoyed that I saw your video. I am currently dealing with this..and it's been a little over a month. And I am very,...very...slowly getting better. The last two days have been bad,..as the issue can come and go. I noticed that I now feel chest heaviness like the feeling of high blood pressure,..but I think it's part of the anxiety or I might have to watch what I eat. I woke up with a vertigo attack a little over a month ago...and from then on I have lived a life of constant dizziness and headaches...unbalanced and visual issues..plus my left ear keeps feeling somewhat full and heavy at night...with slight pain. I have prayed and cried several times ,..I have also gone to church and light up a candle to our Virgen de Guadalupe. You mentioned that your face got pale ..and that's how I am every day for the best part of the morning. I was tried sleeping on my back,...and not turning side to side in bed,...but it only works when it wants to. ...because since the last two days ,..I've been having chest heaviness and it wakes me up startled. I also force myself to do stuff.....such as walking at night...and on very rare occasions I go to the local casino with my boyfriend....just to make him happy....as he has been my Caregiver si ce this entire ordeal started. He has to keep an eye on me...and he cooks and does the laundry and the dishes. I worked two jobs...a full-time job as a housekeeper for a nurse recruitment agency and a gig two nights a week cleaning offices at night. And as of August 11 I had to quit both of them and requested my primary physician to put me on temporary disability. I am 49 years old and have two adult children..one is 30 and the other is 26. I want and need to get well again so I can go back to work,...because my 30 year old son has slight mental issues and he depends solely on me ,...financially and emotionally. I have come to the conclusion that my life will never be the same again,...and that will eventually loose my home and my vehicle....that I have to return to the dealership. But I. ..really don't care about the material things at this point. I just want to get better and at least be done with the dizziness . I don't mind the unbalanced or the headaches,...I just want the swaying and the constant severe dizziness to stop.
I am a single mom...and I need to survive this medical problem to take care of my adult child.
I now asked if you can please add me to your prayer list. 🙏
My name is Maria Dolores Nuñez. ⚘
Maria how are you doing now?
Mine started around August 1st of last year (2018). I was in Chicago and it was like 105 degrees outside and I was in line for the sears tower and I started getting this same thing where I felt like I was moving but it was hard to explain. I thought it was like dehydration because it was so hot out and I started freaking out, which made it worse because there’s like hundreds of people in line. I had to ems called they check my blood sugar and everything and it came back normal. I literally had to leave Chicago and go back to Ohio which was a 5 hour drive and the whole way home I had those symptoms. I was thinking to myself like why am I feeling like this because I had the AC on in the car and I thought it was just dehydration- which I know now obviously wasn’t. I actually play football for my college and I had practice starting soon and the symtoms kind of subsided a little I was glad because camp started August 7th and this happened to me around August 3rd. Someone I don’t know how but I made it through camp which is a 5 am thing till 9pm thing for two weeks. I just pushed through it but like I said the symptoms kind of subsided a little but it was still there. I eventually couldn’t take it anymore when it came to the first game and i felt like I was going to fall over and pass out which I wasn’t going to pass out obviously because it’s an inner ear disorder not because I was dehydrated. I was taken inside the locker room and put in an ice bath because the trainers thought it was heat illness. Of course the bath didnt help and they later said it was just anxiety. At the time I knew it wasn’t anxiety but now looking back it was apart of it because of how this makes you feel. I was also having tingling down my arms and in my legs which on the second day of camp-forgot to mention, that I went to the ER because I was having tingling in my whole body every time I took a foot step. I sat out of course from the first game till about 4 weeks left of the season since my symptoms kind of subsided again and it also wasn’t as hot since It was like late September or early October of 2018 by now. I was still having the vertigo and I was like hopeless. While I sat out of football for 6 weeks I had heart testing and brain MRIs because the doctors thought I could of had MS, which makes sense because when you put the two and two together (tingling and vertigo) it sounds a lot like MS. I somehow made it through the rest of the reason until winter lifting of this year January 2019 when It was just so bad and I was having like internal tremors. It was so weird I felt like my whole body was shaking but you couldn’t see it shaking and it would be hard to sleep at night. I literally thought I had like some type of nervous system issue but I’m starting to realize it’s just Aniety now, which is funny because all my doctors said it was just anxiety and I thought they were crazy because we start to normalize this feeling of anxiety and the feeling just becomes normal when you have this type of inner ear disorder. I had an emg/ nerve conduction study to check for the tingling which I had anxiety leading up to the test watching vids on here about people’s experiences. Of course he test came back normal and I was just like wtf. I kept doing research and I finally came to the conclusion I should call about seeing an ENT which by now I was pretty much hopeless but desperate for an answer. They did a hearing test first before I could see the ent and the test came back normal. I went to the ent and he referred to me a vestibular specialist. This has helped out enourmaously the specialist said it sounded like a viral vestibular neuritis that hasn’t healed all the way and that I should do these exercises for it. I did the exercises everday since March 2019 and now it is July and I still have symptoms. About a month and a half into the exercises the vertigo when about 99% away I thought it was just about gone and the shit CAME BACK. I keep doing my exercises which make me dizzy af at first but your brain is supposed to learn from it and fix it but mine right now just hasn’t been cooperating. It was actually helping for so long up to the past couple days and I just made an appointment today to see the same specialist since they discharged me. I really hope I can figure I out
Thank you so much for telling your experience. It gives me hope. I’m going exactly through the same. Please pray for me 😞
Hey Ethel how are you doing now ?
I cannot believe how similar our stories are. I was also told it was just vertigo, given Meclizine and it made me feel worse. I have been to the doctor three times in two weeks and have also ended up in the ER twice. It is terrifying not to know what is wrong. I also had an MRI come back normal. They gave me Ativan but I do not like to take prescriptions unless I absolutely need them, so I haven’t taken it. I am on my way to my first ENT appointment this week. What an absolute nightmare this is. The anxiety that comes with it is unbearable and this experience has been so isolating. It really teaches you to advocate for yourself and to keep speaking up until the doctors can make sense of your symptoms. I was finally told it was labrynthitis, but I am sure the ENT will give me more information this week. Thank you for giving me hope that this will be gone at some point. It is so depressing not to be able to work or to participate in everyday activities. I hope to be able to leave my house soon without feeling so dizzy and afraid I’m going to faint! They are pretty sure this was caused by a common cold. How scary. I wouldn’t wish this upon anyone!
Hello Leslie I know it’s been three years. I just wanted to know how you’re feeling now? I’m going through the same thing from COVID-19
@frenchustube me too how long have you had it !
@@ohcamryn I have very mild covid, runny nose and a cough for 2 days, no fever. A month later dizziness started so since august 8.
Thank you so much for your vídeo. Please pray for me my name is Ricardo Ernesto. Blessings for you and all the people with this illness as well!
Hi.. thank you for sharing your story .. so glad you are through the worst and am hopeful you are still experiencing good health.. my mom is struggling with this and I am glad to know your story to help her and share with her..
Yesss i need lots of prayers i just came across this video now looking for answers. Its been 3 months with the same symptoms pressure in my head and ears, dizziness, feeling like i lean to one side and its driving me crazy. My anxiety is really bad. 2 ER visits and nothing. Seen the neurologist and did and MRI results came back good and i dont see my doctor till the end of this month they still cant figure out what's going on with me and i feel horrible. Depression kicks in im not as active as i was its horrible. So glad i saw this video tho. Gives me hope.
alixis padua well I’m sorry you’ve had to deal with such a horrific illness. I will be posting a new update this weekend on where I’m at just a month after posting this video! Miracles can happen is all I can say. Stay tuned! You will be in my prayers!
Hang in there! I've been to the Er, Urgent care, Audiologist, ENT, my main doctor and 2 other doctors when my doctor wasn't available. Now I'm headed to Colorado Springs to see Dr. Joseph Hegarty. General Otolaryngology/ENT
Neurotology. They say he is my best bet to figure this out. I know I keep commenting however, Low salt, no caffeine and chocolate will do wonders. I may take time for the effects of the diet to kick in but I recommend Migravent 3 times a day. It's really helped me. I've been off of Valium for 3 days now and I cannot believe how good I feel. XO
Did your ear hurt inside sometimes?
May the healing power of Jesus give relief from your illness and all subsequent side effects.
Thanks for the video. Reading all the comments below makes you appreciate just how many of us suffer with this illness. Like you say trying to explain just how you are feeling is so difficult and it seems to take so long to get diagnosed.
Hi...I just got diagnosed woth this...I have had it nearly 2 years and only now have I found the answer...Please pray for me I hope my Balance Therapy works :)
How’s everybody feeling nowadays? I have had this for a year now. Trying my best. Please share what’s been working, how everybody got better, and if anybody truly feels like themselves again.
I've been in the hospital for 5 days and getting ready to go to rehabilitate. I'm really struggling getting better I'm in bed can even give a step with out feeling horrible. I need support so I can feel hope, well this did it, thank you so much for sharing this is very helpful. Sad to say I lost my job 😭😭😭 won't be able to drive 😭😭😭 I have a long recovery.
God won't leave me nor forsake me ❤❤❤
Yes thank you need prayers in the name a Jesus. Amen
I hope you ok I'm feeling the same symptoms and the same experiences with doctors god is with us!
The same like me, I’m 4 and a half months. It is horrible. Constantly dizzy, I lost 10pounds , praying at all time to Jesús. 😢I know God will give me the victory .
How are you now?
I told my wife today I feel like Im walking on a trampoline.... Im going through the same thing with feeling drunk alldayy 24/7 it is horrible. The only other symptom is I get hot in my ears when the dizziness is peaking. I am a pastor so I will pray for you and your family. Thanks for the video and the hope...
Please pastor pray for me too. I have been like this for 3 months
And have to go to work every day. It's so hard.
Pray for me too..,.. Just can't bear it.. God help me please..
I'm so sorry to hear about your struggle with VN! Unfortunately, few ENT's, ER docs, FP's or even Neurologists know how to properly treat this condition. Additionally, I have never met a or heard of a physician who manages VN ever having the pleasure of experiencing an episode. Thus, finding the right help is very difficult.
I had my first attack in of VN in 2008 which landed me in the ER and then again in 2009. I have also experienced BPVV and have been misdiagnosed and mismanaged by numerous medical personnel. Again, most just don't understand how to treat. While I have been symptom free since 2009, there is not a day that goes by that I don't address prevention management of VN, which is critical. As a result of my past experience with VN I've learned best practices and I'm happy to share them with you. Please let me know if I can help? Thanks so much and I wish you well!!!
MrCynbob yes I would love your help!! I can’t wait to get to the 100 percent mark I feel so close but i also wonder sometimes how much longer it’ll be!
I would love to hear what you are doing to manage these issues!
Same here!
Could you share what you do to prevent the vertigo?
MRcynbob would like to talk to you , please provide me your contact no. or email id want to connect with you.
I’m so sorry this happened to you. I feel like you are telling my story. I haven’t been diagnosed with anything yet, but all of my symptoms are similar. I’m also the same on taking pills. I want to find the most natural way to fix any problem. When you mentioned the anxiety it triggered, I almost cried because I identify as well.
I have this too !! You must stay positive that is the key , it isn’t nice but praying and exercising are the key! Try to get in touch with a Vestibular therapist who will show you the correct exercises. Good luck everyone x
Wow. I am so glad to see this video of yours. I have been struggling for years now. Last year was the peak until this year. I've had check ups with ENT and my 1st doctor was 'useless' he just said there was nothing wrong with me and paid a lot. This year, met a new ent doctor and finally thought I could get some help because, your story says it all. It's driving me nuts. Did an audio test, CT scan and VNG. Doctor suspects Meniere's, BPPV and Vestibular Migraine. Audio test showed abnormal right ear results, CT scan was all normal, VNG showed abnormal right ear results and suggested VN. After that, that's it. My world tore apart when my doctor said it's irreversible. That means, it'll be with me forever. 😭 Since then my anxiety turned depression and I am still coping and trying to accept all these fact. But it seems hard. It's really hard having this condition when nobody understands what we're going through. I never cried about what is happening to me until today when I read comments here where people experience the same thing. Reality striked that there's a chance it will stick with me forever. I just feel like I wasn't diagnosed properly since I have symptoms, such as tinnitus, that for me, doesn't fit into VN. I think it's another condition or maybe more.
I feel you pain. I was diagnosed with vestibular neuritis in October of last year. It’s now April, and I am just now getting better. It sucks...
Thank you for sharing your story!!! I am waiting for VNG test due to these symptoms plus coordination loss & confusion. Hope you're doing well now!!
Stephanie P how are u feeling
@@marioavila9021 hello! Thank you for asking! I was diagnosed with Myasthenia Gravis & after treatment with steroids for several months, my symptoms eased. Thankfully, I think I've leveled off & able to function better than last year! I'm adjusting to my new normal. How are you?
@@GlimpseInside steroids? Trying to get better
@@marioavila9021 my neuro opthamologist had me on steroids to suppress my immune system & it helped reduce my symptoms. I have occasional balance problems but not as severe as they had been. It appears that my balance issues are more related to MG & orthostatic hypotension rather than a vestibular disorder after all.
I'm so glad you're getting better! I hope you continue to improve!
@@GlimpseInside get better
Thank you so much for the video so glad you are better. I currently going threw vestibular damage and vestibular migraine. I've been dealing with this for years now and doctors kept telling me anxiety and panic disorder. So kept going threw different medications and nothing worked and most made it worse so I kept going back and worth to different doctors still not getting anywhere finally a doc said you need to see a therapist. So I went for a couple visits and she told me she deals with anxiety and panic disorder and she thinks mine is due to something that is in my inner ear and said I needed to go to Boston eye and ear and see a ENT so I went and he set up mri and did some testing and everything was fine and I was still having the symptoms so he referred me to a otonenerouligest at Boston eye and ear and they did some hearing test which was perfect. So they did a eng/ vng test and that's where they found out that I had vestibular damage in my left side with. And a thing called vestibular migraine. And now I am going to a vestibular rehab therapist said it'll be awhile before I get better but this should help. I hope this helps anybody. Wish me luck Daniel Bryant I'll be praying for you all also.
Me and my sixteen year old son have this. We do good for months then got covid two months ago and we relapsed. We're getting him into vestibular therapy it's nice to not feel alone and crazy
Thank you for posting this! I got sick at the exact same time you did last year and went through everything you did with er’s and doctors and specialist and calling out of work right down to being scared to take medicine even for headaches. I still suffer with this but did get better for a while and relapsed. I never got as bad as I originally was and I’ve dealt with vertigo off and on for years so I didn’t get nervous at first but after MONTHS I became a devastated. They sent me to VRT but I didn’t like the exercises so now I’m on here looking for different ones. Can you post a video of what you did to recover please?
I have had this horrific problem for several years off and on. I believe it is a seasonal thing. I typically get it twice a year and it can last anywhere from a month to two months. You look fine to family and friends and Dr’s but Inside you are in absolute misery, depression and want to rip your hair out and just want it to stop. Constant brain fog, dizziness, lightheadedness, fullness in ears, panic attack’s, heart palpitations and anxiety attacks. Currently on my second round of Methylprednisolone & Valacyclovir and symptoms have not stopped. Started first week of December and have not subsided yet. I quit smoking and quit drinking and changed my diet entirely and symptoms still have not stopped. Dr’s were little to no help and all the money spent on Dr and medical bills yielded no answers other than “It’s viral and it will go away on its own”. I would not wish these symptoms on my worst enemy and pray God will please take this feeling away from me. I go to bed every night hoping that I will wake up and feel normal tomorrow and I never do. Life can not continue like this otherwise I fear I will have to quit my job and never leave my house again.
I understand and I'm so sorry. I'm going through the same thing. Off and on for years but this is the first year that I realized that it's more serious than I thought. It's been 3 months and every morning I wake up and have to take my Valium and other things. The ear pain is so frustrating and depressing. I've had a MRI, Ear exams, ENT appointments, 3 ER visits, Blood work, Massages, and I go to the Audiologist tomorrow. I've had multiple opinions on my condition and the fact that the valium is providing some relief my main doctor thinks it may be due to post viral inflammation to the vestibular nerve. If I wait to take my valium my vertigo and ear pain hits me like a brick to the head.
I’m sorry you’ve had to deal with this. I know I can be so extremely debilitating but we do NOT have to live this way. If you’re a believer, all I can say is God WILL heal you. I have a new update coming soon on where I am now just a month after this video. Stay tuned and I will be praying for you!
Hows it going? Has anything helped in your recovery?
@@catrose3912 hey cat rose..are you still feeling well.
Thank you for sharing your story. Struggling with this now, barely able to type this message
I understand you completely!!!!!! Ive been having that !! I try to explain ppl my husband no one understand it !! I’ve been having this and I just feel like I don’t want to get up in the morning I just want to stay in bed and don’t feel all this dizziness! My ears and head rings all night I can’t sleep ! I cry everyday but I have to stay positive for my 2 year old son ! I’ve only gone to 2 doctors and he put me on Meclizine I stoped taking it because it made me feel like if I was on drugs ! I’m going to this dizziness rehabilitation center ! Because I have that ringing in my ear that it’s annoying I hope they can help me ! I have been doing my own research going crazy trying to figured out what wrong with me and I think now I have an idea ! I have so much anxiety , feeling down it’s awful I don’t wish this to anyone !!! I hope you get full recovery God bless you !!
Nancy
please answer me if you have cured the ringing in the ears? (tinnitus)
@@omarbilbao7460 no I haven’t . But all I can say is be kind to yourself do not stress . Everything adapts, we all adapt thank God!! 🙂 I still hear it but does not bother me anymore .
@@nancypineda5226
what diagnosis did you have? Have you cured your dizziness yet?
One weekend in and it’s been tough. Looking for positive videos and any support possible at this point. Still scheduled for an MRI but neurologist said I need to keep moving and exercise. It’s hard when you’re constantly dizzy and nauseous and your mind place tricks on you like will this ever stop. Trying to remain positive. Hoping everybody that is going through the same thing. Find some relief soon..
Omg!! I feel this everyday.. Question have you ever felt like you were going crazy? Sometimes I feel like my brain is squeezing.. I don’t feel right when I go outside. I feel like I’m dreaming 😢😢😢.. I’ve lost so much weight had panick attacks.. I’ve lost so much weight.. But this got me closer to God
I felt the same way. Please be strong I’m praying for you
Monique Jones Omgg I’ve become closer to God and even though I feel the symptoms it’s not as bad as it was. God is my healer and I believe and trust he will continue healing me.. Thank you sooo much for your video...
I have the same thing! 2 months in!😢 Exact same symptoms! The anxiety, the rocking, swaying like on a boat, weakness in my legs. I can't believe it! My neurologist did the epley maneuver, but it didn't help. He said it's bppv, but it's not. The maneuvers don't work. Looking for answers.
check out the steady coach on TH-cam...she had the answers
Been dealing with this over a year now .. it was so bad at at first with the anxiety attacks , er visits . Every time it seems to get better it comes back .. the anxiety attacks have you thinking your literally going to die .. I can go to work at least for now .. the last few days I’ve felt it getting a little worse ... it does a number on you mentally .& it’s aggravating trying to cope with this on & off
Ive had this for two weeks now. First week i was scared to death because i have never felt this way before, couple of E.R visits and doctors appts and everything came back that i was healthy. Knowing that other people had these symptoms took alot of the anxiety away this week..Have you taken anything that seems to work for you?
Henry Henry CBD oil for the anxiety... get into balance/ vision therapy as welll
@@Mr315679 Thanks for the reply ill definitely look into your recommendations.
I have been saying the same thing....something is wrong with my brain! I am like you too...I will not see this thru being drugged.
Thanks for your video. I’m going thru this now week 5. It’s tough psychologically. Please pray for me. Some days I feel like I’m going backwards in the healing. Thank you. 🙏🏼🙏🏼
Make sure your doing static and dynamic vestibular balance exercises. Static on one leg or tandem stance on a foam mat or throw pillow while turning head then eyes closed , dynamic walking heel to toe is a start and eyes closed. And all the eye/ VOR part 1 and 2 exercises on TH-cam
God I feel this. The beginning of last week I thought I was getting better, now I feel like I took a step back. How are you now?
Hi dear that sounds just like me it is very hard to go through it but with the help of God I am still alive I am taking sibeilium 10mg for one month it helps tell your doctor he might give it a try may the lord bless you and your family.
You should try drinking ginger tea and see of helps. Its a natural remedy. And you could put one soon full of sugar to help it taste nicer. Let me know if it helps, it helped my dad.
Hi, did you have ear symptoms? Glad your feeling better. May God bless and heal everyone.
Sorry hun! I am the same way. I'm a single mother with 3 children and I feel like I'm going insane. Valium is the only thing that keeps the pain and vertigo at bay. No alcohol, no caffeine and a very low sodium diet helps. I take Migravent for my tension migraines and that helps a ton! 23 minutes into your video really touched me. I've had so many connections recently, something that only God/Spirit can create. An Uber driver said to me the other day, "If there was no God, there would be nothing" Powerful XOXO
I've never had valium , where do u get that ..is it doctor prescribed ...or over the counter. Will it help put things at bay? I'm going crazy out of my mind ..I have noone to take care of as I cant even take care of myself
Anna Sousa The Valium is prescribed by my doctor. Somehow it cuts the brains message to your ear that it is unbalanced or in pain. It’s one of the only things that stopped the vertigo. Oddly enough, today I woke up with some intuition that I was not going to take a Valium. I dropped the kids off at school, came home and slept till 3 o’clock. I’ve had a little bit of pain but nothing compared to how it usually is. I did some yoga and I just feel like I’m in a better mood and thinking more clearly. The Valium, yes it stopped the vertigo and the pain, but the Valium was destroying my mind and my life and making me depressed, unable to focus and many other weird and unstable thoughts. It’s a quick fix for bad days and I’ve been taking at least 3 a day for months now. If you are in pain definitely talk to a doctor and get the Valium.
Anna Sousa th-cam.com/users/HealthyTeeth
@@parakeetsparrotsbirds9291 thanks for that information, I am going to see an ENT on Jan 15, so I should wait and if nothing comes out of that appt. I'm going to ask him if he can prescribe me valium. I need relief from this as it is making me so klutzy, and is taking away my walking abilities because I am so dizzy that I have to hold on to the walls in the hallways. This is not vertigo,.its me spinning, as its vestibular neuritis.im going out of mind. I have really let myself go alot from this, I cant go to the gym at much as I want to. This holds me back from everything even going to the grocery store it really makes me so fatigue, that I slur when I talk. I wouldnt wish this on my worst enemy. That's how bad it is.☹