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- เผยแพร่เมื่อ 29 เม.ย. 2018
- Recovery from vestibular neuritis / vestibular hypofuntion / vestibular disorder is real, does, and can happen! This is my recovery story and I'm sharing in hopes that it will serve as a source of encouragement for those struggling with this disorder!
Dear God please come into my problem. You are the controller of everything including the inner ear. Help me recover or manage this condition. Give me my spirit back.
And me too :( Ameen
I totally get it 😢
Amen
Amen! To all!! 🙏❤
What is your situation now? I need hope. This is awful.
I feel like I finally found someone who understands! I’ve been struggling with this for 7 weeks. All my tests have been normal. I walk like a drunkard! Very grateful for this video.
It will get better! It is a bumpy road and has small gains, but you will get there.
Are you getting physical therapy for it?
@@EE-ie9gm After several tests they told me I was normal and did not have this condition. It made no sense to me because it matches so perfectly with what I'm experiencing! I don't believe everything doctors say any more. At any rate, I did not get professional physical therapy but I did exercises on my own that helped. Anything having to do with symmetrical movements (such as tossing a tennis ball from one hand to the other) seems to help with the balance issues.
@@JenniferPrescott how are you now
@@JenniferPrescott hii how are you now plz reply
I'm so glad that you are recovering. I have had chronic VN for the past 10 years. I am a still very active 70 year old and have learnt to live with it. It put me in hospital for 5 days after coming out of nowhere. I had extensive rehabilitation exercises for the first 9 months and still continue with some of the exercises. Good luck with your full recovery. Tony Penver, Cape Town, South Africa.
Hi I am John 70 year old who has been suffering with stuff for three years before I recently found have PPPD, I thought I was going mad, I thought I was dying. I have just started exercises and reading. I am retired and have a lovely wife who is very pleased I have found out what is wrong with me. Thank you so much for your story. John
I hope you’re feeling better ! I’ve recently been diagnosed with PPPD too . Doing a lot of vestibular exercises and meditations / somatic tracking and it seems to be helping
Do VRT exercise regularly, each person takes time depends on the vestibular adaptation, check for b12 vitamins, that helps, do all the exercises that include bending, stretching, playing with the ball. Do all those exercise that makes you dizzy. Do meditation to calm your senses and confusion. Be calm, when the right time will.come, you will be back to normal life, Hare Krishna Hare Ram.
Based on my experience, I confirm the same trend. I am 4 and a half months into this nightmare and things seem to be significantly improving. I still have balance issues here and there, but I am learning how to cope with them. Because of anxiety, pure fear and recurrent panic attacks, I had to quit coffee after 20 years of daily usage... yesterday, I have finally had my first coffee in 3 months! Anxiety is still there, but I have managed to take back control on my life (for the first three months, this wasn't the case). This condition triggered so many seemingly unrelated issues all other the body: leg and harm weakness, consistent neck pain, leg pain, palpitations, chest pain or constriction... I can go on listing for an hour! Moreover, my symptoms increase any time I feel stressed about something, like an endless spiral: symptoms cause fear and fear causes more symptoms. It's so easy to feel hopeless, especially when you are misdiagnosed... thank you for your encouraging story!
How do you feel now ?
Hi , how era ypu feel now ? I hope you are ok , i'm on two months ago , same sintoms , same condicion , it is horrible .
How are you now?
Oh my goodness! EVERY SINGLE symptom you mention I've had since waking up from a coma 19 1/2 years ago. A brain injury and broken neck vertebrae from a car accident. The swaying feeling, the noise sensitivity pain, the confusion, weird vision, wobbly legs, etc, etc! I also hiked previous to the accident but have used a walker almost 2 decades to keep my balance and that horrible imbalance is there 24/7 all these years. Can't wait to call my doctor in a.m. 😧
love this. thanks lindsey
Thank you so much for your video. Very helpful.
Thank you, really appreciated what you shared. Positive and encouraging.
Thanks for sharing this!
Thank you so much for sharing. I've been struggling with VN for over two months now. I am a law student and am taking a reduced load this semester but it still feels near impossible because of my symptoms. It is nice to hear a positive story. The majority of the stories on the internet can be disheartening.
Thank you for this video! Yes we need positive recovery stories. I’ve been struggling with this July - Sept of last year & it returned late January of this year. I’m recovering now.
I'm on exactly 4months since symptoms started. I had Covid in May and started feeling dizziness June 1st. It took me over a month to get a proper diagnosis after seeing neurologist and ENT. I have 41% weakness in my left ear. It's been apsolute hell and took a month off work. Here is a list of areas I made progress in and a list of continuing symptoms. I've also been in PT for 2.5 months. My ENT also gave me steroids and a steroid shot in my ear. As of 10.1.22
No shaking
Able to eat
Way less nausea
Ear no longer hurts
Ear no longer full
Eyes no longer heavy
Eye no longer twitching
Balance is much better
Carpet doesn't bother me
Lights are manageable
Decrease in feeling like tipping over
Sitting still is better
Tolerate grocery stores better
Goals...
Decrease dizziness feeling
Decrease brain fog
Decrease eye strain
Decrease anxiety
Increase activities and exercise
Never give up!
Hello michell have you recovered from tinnitus?
So good to listen to you talk about your recovery journey. It's such a scary unknown recovery time. Thank you for this as my usual positive outlook is waning and I'm quite scared, good to hear Your story.X
Thank you for your experience. Each day I am feeling Better. It's a terrible illness. We must fight it. Our family and friends must help us
So good to listen to you talk about your recovery journey. It's such a scary unknown recovery time. Thank you for this as my usual positive outlook is waning and I'm quite scared, good to hear Your story. X must keep positive 💚
Thanks for sharing information and your own story. I am on day two of this journey. Thank you for helping me in my effort to find a path that works best for my own recovery.
Hello how are you ?
Yes ! I have all of these ! And also I have visual tracking problems.
thank you for giving recovery a voice. I can't wait to see what you do with your post vestibular illness life. Love the message. So important. IT GETS BETTER :)
Hey Sharon, how are you doing ? Have you recovered completely from vestibular Neurities ?
Thanks for sharing your story. I was just diagnosed with Vestibular neuritis last week after struggling for 15 months. My doctors have run all kinds of tests over the past year after initially ruling out BPPV. I have done 2 MRIs, 2 CT scans, an echocardiogram and physiotherapy with a vertigo specialist and finally I saw a neurologist who ordered the vestibular testing. I have right side vestibular neuritis (46% decline in the caloric test) and I also have left side peripheral vestibular issues. They think it is 2 separate issues caused by 2 separate things - a viral infection on the right side and a concussion from a car accident on the left. On to more physiotherapy and hopefully improvement!
This a true blessing to hear your symptoms as they are exactly what mine are. The only difference is I'm 60 and feel like something is wrong with my heart even though I have spent lots of money testing to show my heart is fine. Every detail you describe is me to a tee... thank you sweetie.❤
im so glad to have found your video. doctors have put me in antimigraine medications and they dont seem to help. and i have this terrible neck tightness, palpitations and inability to focus. hopefully i will get better in time.
Best wishes to you. Time helps! continue to narrow down what you have so you can then assist the healing process with the best therapies!
great video....you are a natural .
Same happens to me now. Tinnitus with dizziness. Thanks for this good sharing.
Thankyou very much for your video series, it is of great benefit and comfort.
Your explanation is almost identical to my symptoms, even the stress and anxiety which I have not experienced in life before.
Have a great 2021!
I had an AMAZING 2021, thank you! I hiked and biked all over the West. Thanks for the well wishes. Here's to hoping a year later you are feeling next to new.
Thank you so much for sharing your story and providing hope! This is a long journey but I believe deep down there is hope for a full recovery!
i feel 100% normal, recovery is real
Hiii Lindsey when u saw the proper improvement coz I’m at 5 months and I feel off balance too much it feels like some thing inside my brain
Thank you for your videos! Very helpful and encouraging.
4 weeks now and still a daily battle. Every morning I’m feeling very noxious followed by a day of lightheaded wandering around. I’ve been in the hospital for 3 days and started working again 5 days after I was dismissed and believe me if I say that was much too early...You have to keep moving around but I firmly believe that resting is as important! Nevertheless I was very happy watching the video: the feeling that you’re not struggling alone is very comforting, thank you!
Totally agree with you! It is just as important to rest!! I would go walk for an hour and then come home and lay down for an hour in the beginning. Anything active I did was followed by something to recoup. I also was getting like 12 hours of sleep every night! I was exhausted. What I mean by be as active as you can be is to push to do something active everyday- but once you reach your limit, rest until you feel "stable."
I’m just over 4 months in and I just want to say thank you !
It was this video that helped me so much I’m 20 years older than you but my story is so similar to yours.
I’m feeling better and like you want to share my thoughts that you can recover from this scary experience.
God Bless
you're welcome!! so glad I could help.
Thank you so much for your Informations, like you told i searched for positive Moments which give you Hope and reduce Anxiety, and i saw all of your Videos about Vestibular Neuritis Recovery, they give me the best Medicine and calm me down within Minutes. I deal with it for 5 Weeks and some Days are good and other more complicated.
I also have a active lifestyle and i think my fitness and my healthy lifestyle help alot.
The biggest help for me are the colder temperatures at night, i mean we have summer here in Germany and it cooling down to 10 degrees this helps alot and for the mentality your videos are the gamechanger, so thank you very much!!
Thank you for this video!!! I am recovering from this as well. I agree, it was difficult for me as well. I am now better!!! So encouraging!!!
Hii how are you now
Please reply
Thank you for sharing your story. All your symptoms are exactly what I’m going through for the last 2 months. I came to find support but it was all so negative (years of symptoms) and it was making my anxiety worse! My next step is asking for a caloric test and asking for vestibular PT. Well wishes and thank you for the positivity!
Michelle P I totally understand that. And for further encouragement, I'm at 7 months now and living my life fully as if I didn't have this. I may still have an odd sensation here and there, but it's hardly noticeable! Good luck!
have you recovered from tinnitus?
So happy to hear you have gotten better! I am 3 months into my vestibular neuritis journey and just started seeing some improvements. This is truly one of the scariest disorders!!!! Prayers prayers prayers God fully heals us all ✝️ listening to others positive stories is what keeps me going. This disorder gets dark very quickly and knowing there is light even if it’s faint at the end of the tunnel is what helps me stay strong. With God all things are possible
Buy a foam mat on Amazon and do vrt exercises . Look on TH-cam for vestibular balance exercises. The mat is important to use for recovery
How are you doing. Are you fully recovered
Thank you. I’m in my 2nd month. Crying all the time. I needed the positivity.
Hello I’m 4 weeks
I’m and I can relate … it’s so scary / my life as I knew it is on hold … ringing in ears / my dizziness comes
And my legs are so weak and won’t hold
Me ( feels like I’m dying )
Then the anxiety 😥
And derealisation …. Shaky
Have lost my confidence and won’t go far from home ! Hearing this story gives me hope !
@@janegordon9222have you recovered from tinnitus?
Thanks for sharing your story, really inspiring
How do you feel now?
I’m almost 8 weeks. This is so encouraging thank you! The symptoms are so bizarre it’s hard to get anyone to understand what you are going through. It’s so helpful to hear your relatable story. I had an acute attack at onset and it was intense. Then 2-3 weeks sort of just lived life with weird sensations but week 4 things escalated a lot and I had to stay home and not drive. My PT started week 6 and it was baby steps. I’m anxious to be able to drive again especially. I’ll hold out for this coming for another 1-2 months hearing your story.
You will recover Danielle !
Hey, thanks so much for this. It is so nice to hear success stories during this hard time. Have you seen yourself backslide in vestibular therapy through the process? We see it and it is discouraging
thanks, i'm on process to recover but is hard, i feel better to know your experience and this is a light for many people like me, thanks a lot 🙏 from Colombia
Hola como estas ahora , yo vivo en argentina y recien empiezo este terrible camino , estoy buscanso informacion pues los profesionales solo se encargan de darte las pautas clinicas y estadisticas , dicen que deberia durar unos pocos meses pero que saben ellos ? Nunca han sido pacientes solo ven a travez de sus conocimientos tecnicos y algunos no estan actualizados , no tengo diagnostico aun estoy atravezando todo un programa de pruebas y examenes , pero estoy casi seguro que puede ser neuritis o laberintitis pues todo empezo luego del covid ahora en 2024 , aparce una otitis media y luego se desencadena el vertigo , aunque el mio fue leve de apenas segundos , pero vasto para dejar bastante daño pues se presento tambien cervicalgia , y tinitus en ambos oidos y luego lo que ya sabemos la enorme cantidad de sintomas que son tan dificiles de explicar a quienes estan a nuestro rededor , en mi trabajo no me creian y constantemente choco con una persona porque parece convencida de que mis sintomas son una pavada , y sus chistes y actitud me molestan .
@@cristhiandiaz1149 animo amigo yo ya me cure, tuve neuritis vestibular por descuidos mio, me asuste mucho y pensé de todo, animo, se puede hacer algo, y por demás con terapia te puedes curar. Mantén actitud positiva, reduce el stress, concentrate en sanarte. Mente cuerpo juntos lo hacen posible.
Thank you so very much
Your story is exactly like mine, thank you for sharing. I’m 5 1/2 months and have the same stuff. I need to possibly get on anxiety meds because I have been struggling with that!
th-cam.com/video/wnrNcCWWAws/w-d-xo.html. A vestibular physical therapist to help you.
Do you think Covid Vaccine did this?
So glad I have found this I’ve been experience everything you have said for 5/6 months as waiting for a MRI BRAIN & EAR scan which I am praying is ok because everything I feeling is in this video. Thank you so much for posting this 😫💜🙏🏼
Did you head feel heavy for your body I’d that makes sense xx
@@chesneymunyard7283 yep! I felt like my head was too heavy for my neck to support.
@@chesneymunyard7283 i think i have this and i feel super light like detached to my body
@@teenina6829 hi did u recoverm
It's a full on thing. I'm currently in my 2nd week of it. I was hospitalised for the first week,home now.
It's a life altering that's for sure.
Each day I focus on my physio exercises, eat well,listen to your body and rest when you need too.
Push through the dizziness a bit with normal day to day routines but ask for help when you need it and don't rush ,it is what it is for now.
how are you now?
now you've got to make some videos- that's some positive energy. hope youre seeing big improvements now
LINDSEY!!!! THANK YOU SO MUCH FOR THIS VIDEO! IM CRYING AT HOW YOUR EXPERIENCE EXACTLY MATCHES MINE! LIKE TO A TEE! I appreciate you so much for this! I'm so glad to here this. going to continue following this as I recover!
awwwwwww. so happy to help! chin up! You've got this.
Great video. VN took me down suddenly in July of 2014. Intense spinning, could not open my eyes without vomiting, ambulance ride to hospital where I spent 4 days on IVs, had a kidney injury from the dehydration. Finally discharged and spent 2 weeks more mostly in bed. Hubby had to help me onto the toilet for 2 weeks (TMI, but that's how severe it was). Got myself to physical therapy to learn the exercises and did them 4 or more times a day. If an activity really made me dizzy, I did that activity over and over until I wasn't. I went to stores with a cart for support and walked up and down the aisles, to get used to the visual stimulation. The nausea lasted about 4 months. It took 2 years before I could walk a straight line and get back on my horse. Driving was a challenge and for 3 years I had "right lane days", in case I had to pull over suddenly from vertigo. I had a constant floating sensation for 3 years. It's now been 4 years and I consider myself fully recovered. I have very loud ringing in my right ear and some hearing loss, but all other symptoms are GONE. My advice is to MOVE, do those exercises faithfully and be patient. It's a long and slow recovery, but don't give up. Do not let VN win, it can be overcome! Move, move, move!
Hey, thanks for your response! You're journey sounds so intense!! I'm at about 10 months now and have days where I feel completely and entirely normal. I still have days where little symptoms come up, but for the most part, I am living my life fully and as if I did not have this disorder. It can still get disheartening, even though I am doing so well. It's easy to think you're as "healed" as you'll ever be and will just have to cope with the little symptom flare ups...but when I hear stories about people dealing with symptoms for years and improving, then I remember there is STILL ROOM for MORE improvement!
I think your video is SO important. Like you said, all I could find too were horror stories of people never recovering. The only residual now is walking through a crowded restaurant of all things, not sure why. What helps is concentrating on my feet and where I'm placing them, weird, but so is this illness. lol. Keep moving and you'll get there! All the best in your recovery!
Thank you. I get the floating sensation too. I hope that goes. I am following your words. Thank you for sharing you experience strength and hope. It is helping .
Interesting about the kidney issue. I was actually admitted into the hospital for low blood sodium because I was drinking too much fluid (virus perhaps made me extremely thirsty) and two of my medications which I stopped (cymbalta & gabapentin) also made me thirsty. Nephrologist told me to get off cymbalta. I was still dizzy after sodium was normal and 2 1/2 months later, a VNG test ordered by an ENT revealed 30% weakness in left ear. I did vestibular therapy and kept moving as much as possible but that triggered anxiety and acid reflux (I am very lucky I haven't vomited). I'm 3 1/2 months into this and still feel dizzy most of the time, sinus and head pressure and pain, tight muscles and neck. Follow ups with nephrologist revealed kidneys are fine. The virus or whatever triggered the VN, is also inflaming my eustachian tubes which finally opened after an allergist and an urgent care doctor prescribed prednisone. The ENT totally dropped the ball in this respect eventhough I saw him first and told him how my ears, throat and allergies were inflamed but I wasn't sneezing at all nor did I have a sinus infection. He actually scared me more because he told me I had vestibular migranes. Two good things he did: 1. Ordered vestibular therapy and 2) ordered the VNG test finally done on 9/18/2019. Because the eustachian tubes closed, a PA at the ENT practice made a small hole in my left eardrum and that helped with crazy pressure and dizzines. The hole closed and in 3 weeks they will put an ear tube. The intensity of the dizziness, anxiety and spinning got worse when the little hole closed. I have had to take some xanax, bonine and meclizine here and there to see what can help the most (Dr. said it's better not to take anything but that's easier said than done when having panic attacks). God bless you all and keep moving as much as you can.
Same I was also feeling thirsty all that time of attack..
I thought it is dehydration problem... after all the test including MRI was done last test was ENG test where dr found I have vestibular lesion in left ear...now maximum symptoms has gone...still dr told to do vrt for three months...I am scared will this nightmare come in my life again...can the problem come again and again...pls ans if anyone know
thx Lindsey:)
For anyone reading in similar situation or that is just starting out on this journey, I had this happen completely out the blue around 6 months ago, July 2020. The world started spinning out of nowhere when I was watching tv, it felt like I was very drunk without any of the fun, constant tinnitus, sore/ stiff neck, headaches, nausea and general vertigo. I had a CT, MRI and all clear, so expected Labyrinthitis. It took me about 4 weeks to regain my balance properly, but was easily tired out if i went out, sensory overload, but I always tried to do what I could to stay active. I had two further relapses of vertigo and balance set backs in September, not as bad, but recovery was also slower. It's now January 2021 and just last week I feel that my balance is fully restored. Before that the lingering thing was if I looked up to the sky too quickly I would fall to the right. The tinnitus remains constant, but I'm feeling much better, running 5 and 10k's, no longer any balance issues when I quickly move my head. My sleep has not been good since July, I think the tinnitus keeps my brain always active, but hopefully in time this will also improve and I will make a full recovery. It's not pleasant, but I felt getting the scan and knowing it was nothing life threatening was an important first step. It let me accept it, try to understand it more and do as much as I could without the fear of what else it could be. Stay active, eat well, exercise, get out and about and try to stay positive. Although it's frightening at first and quite tiresome and limiting at times, there are worse things that happen to many people every day, so be grateful for what you CAN do, and hopefully you will recover in time. Namaste
Now you are ok and your tinnitus is recover.
Hii Aj how are you now.... Plzz reply
How long lasted each and every of your relapses?
did your buzz go away?
@@anupriyarajak6550did your buzz go away?
Hi. I’ve been going through this for 9 months now. I was diagnosed with vestibular neuritis and vestibular migraines. Double whamy. I’m glad I found your video as I also have twitching of my body (which was worrying me) and most of the other symptoms you had. It’s taking a bit longer to heal but I’m sure I’ll get there. Hope all is well with you. Thanks.
How are you doing now? I was diagnosed 4 days ago with VN
Thank you! I'm glad my video was able to help some. I've been doing really well. Hope you are seeing big improvements!
Thank u for ur tips I’m going through now also getting better is been 3 month is hearing getting better
Thankful to find your videos. Sept 2 2022 I got taken down. I'm 49, I travel lots, bake full time, always on the go. I had 4 weeks of acute symptoms puking 5 to 6 times a day. 3 emerg trips, 2 iv treatments. Ent diagnosed me with VN. I've been doing VT once a week for 7 weeks. My eyes feel tight, mostly right side. Anxiety was through the roof. My hubby had to come home to let dogs out.
Now I can take them out. I managed to decorate 60 cookies on Friday. The weekend I felt off and more bouncy, wobbly and trying not to let myself worked up about it. I went grocery shopping for the first time in 63 days. I'm nit driving. Today will be 2 weeks without puking at all.
Woof, I remember the days like that!! You are already improving. It sucks. It's a slog. But you can get better. Do whatever it takes to calm the anxiety, that will make the healing process a lot better. I'm 5 years post VN and doing well. Totally myself and VN is a distance memory. Best of luck, hopefully no more puking.
@@lindsey8081 thank you..I've made it 5 weeks today without puking so I think thats gone. I'm at every 2 weeks for VT. Now on Balance exercises, standing with eyes closed, turning head side to side up and down. Changing feet from heel to toe. Thankfully I got rid of the bobblehead. This week my balance is really off. I'm hoping it's because of the fight between using my eyes for balance and retraining my brain. Does it often get worse (balance) before better? I am 3 months yesterday since this started. And I know I've came a very long way already..I was hoping to be well enough to take my 50th bday trip to Aruba Jan 4th but not looking likely 😕
Yes, I found the path to wellness wasn't just a steady and even progression, it was filled with ups and downs. There were weeks or days when I felt Amazing and saw a lot of progress that were then followed by days of feeling like I took a step backwards. Don't let that worry you.
Thanks for sharing...I am 2 months into this and it's so good to hear positive news as this is not fun by any means and can be very scary.Certainly look forward to "normal"again.
Super scary! I wish you well and a speedy recovery!
feeling normal is FANTASTIC! I feel normal most days now. It's been almost 9 months. I get small little flair ups of odd feelings, but they don't scare me and they don't prevent me from living a very full and active life. Stay as positive as you can and stay active! Best of luck.
Glynis how are you feeling
@@mistyrodriguez2476 how are you feeling
@@lindsey8081
Dear Lindsey
Thank you for giving hope and info.
Im 7 months suffering😢
How long did you take SSRI?
After stopping it did the symptoms come again?
Thanks
I'm 23 and have been dealing with this for 3 months . All the symptoms and situations you described. Just saw and ENT and hes going to test my balance and hearing next week. Really hoping I have the same outcome and quick recovery .
I hope the same for you! Keep as active as you can and gets lots of rest. Be kind to yourself and best of luck!
Hi Christian espinoza did u have symptoms of muscle twitching extremely fatigue and visual disturbance beside feeling dizzy and imbalance?
@@cheriemicki yes exactly. I've had lots of symtoms and they always seem to be changing but I've had sparks in vision, muscle twitches, ear fullness, muffled hearing , lightheadness and ear ringing
@@chriszolanski thanks for responding.. I m having the same dizziness and imbalance.. hope that you can get back to normal soon.. hang on there!!!
@@chriszolanski How are you feeling now?
Hey! It’s so encouraging to hear success stories.
I’m 7 weeks in. I’m doing therapy and feeling worse. I started lexapro 2 days ago.
Did you find that lexapro helped with the recovery? How so? I’ve heard that anxiety can prohibit recovery, so I definitely want to get it under control.
Thank you!
I think of lexapro as my little happy pill. Anxiety can prohibit recovery. It's hard to force yourself to do the things you need to do to allow your brain to compensate for your damaged vestibular system when you are afraid to leave the house and having panic attacks all of the time! Before lexapro, if I started to feel dizzy or I was having a bad vestibular day, my nerves and anxiety would spike and I would feel even worse. After lexapro, if I started to feel off or dizzy, I could still go about my day doing what I was doing because I wasn't afraid, I wasn't having panic attacks, I wasn't obsessively worrying about everything I was feeling. It was a game changer for me.
I massively seen a great improvement after a couple of weeks when I did a blood test for food allergies and cut out those foods, I also cut out wheat and dairy and only eat natural sugars in foods, the biggest one for me is cutting out histamine foods as well as toxic smells from perfume, air fresheners, toxic household cleaners to even as far as turning my head to avoid petrol fumes when filling. Sleep is very important too. Fasting helped massively as well during Ramadan eating only after Sun down, dry fasted, it reduced my symptoms by 30% before I figured it out, all the above alongside the VRT exercises and I was out walking and then back in the gym and gradually doing circuits within weeks after building up my confidence, when I don't sleep well, smoke loads or eat wrong foods (as I tend to have the occasional blow out to let of steam) it comes back with a vengeance, but now I know what the cure is for me (and hopefully everyone else) I go from vertigo non stop and anxiety to being back in the gym after 2 days of sticking to my routine. l've spent thousands on different doctors and tests from MD's to naturopathic doctors and my diagnosis jumped from vestibular neuritis to labyrinthitis (based of a hearing test from 10 years ago which is not really good data). When I first got it couldn't walk further than the toilet or kitchen for a couple of months and laid in bed all day spinning out, and my anxiety was so bad not knowing what's happening I started questioning my own sanity, until I found out what the problem was and read loads and understood it. Bottom line no matter how bad it is it will get better providing you change your lifestyle, diet, mental and emotional health (with faith in god, that's helped massively with the mental and emotional side, I studied the meaning to 'Tawakallah' to be precise), I'm 43 and it took me 4 years from the date it happened, to figure out how to cure me, with all the above approach, keep a log and you'll soon figure out what makes you feel worse or better and you'll cut out the bad. Being VRT exercises then diligently stick to it or diet (eating to my metabolic type - Aryuvadic dosha type) then trust me guys be disciplined and you got this 100% I promise, have faith in yourself god and the process
Thankyou so much for your vlog I'm four months in this too. I can relate to all you have said. It's hard but I'm feeling like I'm improving even tho i have so much weird sensations sometimes through my body. Can i ask do you have or have you had ear fullness??
I have a CT scan next week to check my prestoris bone in my ear. Subscribed.
I'm sorry I missed this comment and didn't get to reply to you sooner. I did have ear fullness for the first few months, yes. My MRI did not show anything abnormal and at this point 9 months later, the fullness isn't there like it was. I do have problems with my Eustachian tubes feeling sticky, but nothing to be too upset about.
Thank you for doing this video....was diet a factor for your recovry?
GUYS it does get better but it takes time and work.
I’m close to 2 years and I can tell you that when I flare up a little or have a bad few days it’s because of ANXIETY.
It’s hard to tell yourself it is just you being anxious and I don’t have all the answers but my anxiety medication has helped.
Keep fighting
Thanks for sharing! I agree with you!
HI! month 6 and i just feel DP DR from anxiety and heavy head and sometimes a floaty feeling or a slight falling sensation in my head that gets worse after a workout. my symptoms would often leave at night and still do so now im a night owL! I worry about my slight smoking habit that i started, just a couple ciggies a day if that but then I found it made the anxiety much worse so I stopped. Ive made alot of progress but still worry that smoking may have stalled or may keep me in this :( Im sure there are alot of smokers that got VN and then had to smoke and still recovered . I had quit smoking about 3 months before I got sick. picked it back up because i got depressed. glad your ok now! Im doing the same exact things your doing. I was afraid I had done too much in the beginning of this.
Hey Lindsey, did you deal with any 24-7 dissociative, spaced out feelings… almost like your in a dream, derealization early on and if so when did they disappear. I’m almost 4 months and have slight motion sensitivity and spaced out is all I have left. Thanks for your help. Your videos have gotten me through some rough days.
I’m glad you’re getting better. I'm 4 months in with labyrinthitis/vestibular neuritis. The first 40 days or so, I felt I was floating most of the time. I also have constant buzzing in my ears (mostly the left ear). The past one month, I haven't experienced any floating sensation and my balance is perfect. Currently, it's just the constant tightness of muscles around my ears (temple), in my jaw and neck as well as heaviness of eyes and forehead that bother me the most. I wonder if you also have experienced the muscle tightness and eye/head heaviness without any dizziness?
Yeah, Id' say yes to that. I was getting acupuncture and massage on a regular basis to try and help with that. Also, yay to getting better!
Hello have you recovered from tinnitus?
Exactly what I’m going through. Only I have been diagnosed with this first, and then vestibular migraines. Has anyone mentioned vestibular migraines to you? ?
Hi Lindsay, thank you for posting this video I am exactly at the same stage 4 and half months and getting better hopefully. VRT started 2 weeks back and I am experiencing more problems... same thing doc said that I will feel this initially and gradually it will decrease ... but your video is very hopeful and I feel little bit relaxed now... let me know if you have any suggestions for me.
Regards
Rishi
Trust the process and try not to let your anxiety get the best of you! It is true, you will probably feel worse before you feel better- but that is the only way to get better! You've got to repeatedly do the things that make you feel terrible in order to help your brain understand it's new normal.
Hii rishi ab tum kaise ho
Bilkul normal??
Thank you for posting these videos, I haven't been officially diagnosed, but I know this is what I have...it's been 9 days of hell, so scary, anxiety is an understatement...I notice that walking outside with my dog makes me feel better so I just keep doing that but I hope you stay good and never have to feel like that again....just one question, what SSRI did they give you? I was given Paxil...thank you
Walking is one of the best things you can do! Good for you. I was given lexapro. Worked great for me.
I am over 8 months in Australia and only just properly diagnosed. 8 months if hell and doctor telling me it was BPPV.. which I have had in n off for 25 years. I did tell him this was similar but different. He never listened. Get to a Vestibular Therapist under an ENT or Nuerologist I beg you. I am in a World of Hell from misdiagnosis. Have been in vestibular suppressants. Serc..and VT has said has stopped Brain Compensatating.
@@debramilner5791 How are you now?
Been exploring over a year.. Finally diag vestibular neuritis in L cochlea.. very similar journey.. getting better! Still get very fatigued ! Toprol made me paranoid of getting😮 12:59 in shower. Do physical therapy.. yoga. Walk at gym trying pilates
I stop and rest if I need . Take pressure and reflux and Olly sleep gummies. Did stop wheat and sugar and one coffee per day
Only dealing with fatigue. Dont stay long in big stores, some unstable motion feelings but encouraged! Do the work!
Currently on month 4 with no relief. I have 50% loss on left side. I’ve had to leave my nursing career, I cannot drive and am barely able to get out of bed. Thankfully, I do not have the nausea but I have lost 30 pounds due to lack of appetite. My local ENT has scheduled me with a specialist and I’m hoping for some answers. VNG show peripheral and central dysfunction. MRI was clear. It’s so frustrating. Glad you are recovering I needed some encouragement.
My videos are a few years old- update- I'm fully back to normal. I'd say recovered. Get up and move as often as you can even when it totally sucks.
How are you feeling these days? Hope you’re doing better.
@reneasissom8611
How are you?
I hope that you have recovered
I am 7 months in VN
Hi Lyndsey, if there any information or video which describes, which exercises you have performed starting VRT, how many repetitions and have you had CT scan to confirm it was that? Also what tests you had done to confirm it was v.neuritis?
Not sure if you even monitor this channel, but any information would be appreciated. Our teenage son has got same symptoms as you had it and cant get out of this for 4 months now so glad to see there is a way out.
You just made 5 years recently, would you do a quick update, pretty please? 😊
I'm just getting over a decompensation myself and your videos were the most helpful of all tobme
I will be making my own video soon.
How are u ?
I’m delighted that you’re feeling better. I’m on week 13. Did you experience any chest pains or pains in the left arm?
Only at first, but I think that was because my anxiety was through the roof. So scared.
Yes! Same thing with the sharp chest pains.
Very glad seeing this video..one month into this now can say 50 percent better but still kind of dizzy ..my doctor doesnt recommend vrt ..just says to rest etc ..what are your views on it ..can one get better without vrt....and in your case after 3 months did u start becoming better ...just like that??
From what I've read you can get better without vrt but vrt can exponentially speed up the process of getting better. I did vrt and am glad I did.
Dont give up guys. I legit got this just over a week ago. Massive dizzy spell, knocked to the ground. followed by weakness and and anxiety constantly with strange feelings in and around my head and further dizzy spells and panic attacks at random times that just destroyed me. I went to the doctors ASAP and found out I most likely had Labrynthitis I was prescribed STEMETIL(A MASSIVE LIFE SAVER) for the dizziness and nausea also helped greatly with the anxiety and panic attacks too. After looking online about this condition I think im one of the lucky ones, just 8 days in and I feel like I am getting better so I thought I better share my story. STEMETIL WAS A LIFE SAVER also when I could I did as much walking around as possible and looking at a spot on the wall and focusing while moving my head at all angles. Literally all I did was take stemetil and try to go on walks and the wall focus exercise. I might have just been very lucky but give it a go and dont give up. I am a 30yo male perfect health but was very stressed at the time when I got it.
Did taking Stemetil Fix and cure your issues of feeling unbalanced and nauseous? Are you finally off the drug? How long did it take… I’ve been struggling for 3 weeks with nausea and unbalance.
@@jasonn2284 hey Jason. I feel like the stemetil actually made things worse in the end (possible overuse and reliance on it) not long after having these attacks I ended up getting pretty severe anxiety and slight depression not sure how it all relates. I realised the only thing I could do was literally everything. (Changed my whole diet, cut out a lot of salt and sugar and other things. Started excercising and making sure I kept meals and water intake as stable as possible throughout the day) definitely when I commented here was early days. I still have problems from time to time but it is greatly reduced. Keep your chin up and watch that diet and make sure your salt, sugar or water intake doesn't fluctuate too much through the day and you will get better!
@@Nick-di4jp I’ve been prescribed betahistine. It seems to be working! my balance is fixed. Google states : Betahistine is a medicine used to treat the symptoms of Ménière's disease. These symptoms include: feeling dizzy and a spinning sensation (vertigo) ringing in the ears (tinnitus). None the less thanks for the quick reply. I will slowly try to ease off the drug in 2 weeks - 3 weeks time so I’m not so dependent on drugs. I really hate being on drugs but i rather take it than feel the nausea and unbalance on a daily basis. Thanks for the salt and sugar advise.
@@jasonn2284 great to hear you're feeling better already! Just remember there will be many ups and downs and you just have to really appreciate the good days 🙏 in time we learn more about meneres and how to manage it, we grow stronger and more prepared to deal with future flare ups! I wish for you what I wish for myself 😁💪
Exactly what I’m going through. Only I have been diagnosed with this first, and then vestibular migraines. Has anyone mentioned vestibular migraines to you?
@Sophie what are your Symtoms oft vestibular migräne?
Takes 6 mths to get tests in.England its Ridiculous such a joke so Glad your getting better x
kathryn walker Why six months. I’m in Scotland. I was diagnosed very quickly.
Thank you for posting this. I am on month 3 1/2 and the struggle of this awful diagnosis is terrible. It's physically and mentally debilitating. Im currently doing vestibular therapy 3x a week and walking at home on the treadmill. The vestibular eye exercises help alot with jumping vision. Thank you for being my inspiration ❤️. I listen to this video at least 5 to 6 times a day to remind myself I WILL HEAL. I also watch your 9 month and 12 month update and I can't wait to get there. Hope all is well with you and your family and you are out living your best life ❤❤.
We’re about the same in terms of when this started. A little over 4 months in now and it’s just awful, so I absolutely understand your struggle. I always come back to this video and her other ones with updates just hoping and wishing I can get back to normal. One day…
Hang in there. We’ve got this.
@@Monicablackard ❤
@@Monicablackard th-cam.com/video/wnrNcCWWAws/w-d-xo.html. This vestibular physical therapist on TH-cam has 5 videos to help you recover. She demonstrates exercises for dizziness and balance.
@@Monicablackard do you have that bouncy sensation when you walk
@@sherinecraig9663 Yes for the past 5 months. It’s gotten a little better but I still feel it everyday
I'm hoping my ent can figure out if this is what I'm going through I've had the same symptoms for a long time and thought it was just anxiety but it started getting worse now I've lost my job so I'm hoping I get better like you and I'm happy that you are doing well
th-cam.com/video/wnrNcCWWAws/w-d-xo.html. A vestibular physical therapist on TH-cam, she has 6 videos to help you recover. Eye exercises make sure you don't ever go any faster than her directions, otherwise if you turn your head super fast you will never recover from the dizziness Do all her eye exercises,not just one. Spread them out. The vestibular ocular reflex only will go so fast while turning the head,/ eye,/ head motion. Also buy a foam mat on Amazon for statics balance exercises. And walking,heel to toe while turning your head up and down and side to side for dynamic balance exercises. Must do both kinds of exercises, not just one. Static vestibular balance exercises are standing on a foam mat with feet together turning head,then eyes closed standing still. Then progress to one foot in front of the other on foam mat, turning head up and down then side to side and eyes closed turning head and standing still without any movement. Make sure on TH-cam the balance exercises are vestibular balance exercises only. Walk across a room with your eyes closed. Do a lot of eyes closed vestibular exercises. Examples sit to stand vestibular exercise , first eyes open then eyes closed, then same but turn around and then sit back down. Don't use your arms to sit back up . This is another dynamic balance exercise. Moving both feet is a dynamic balance exercise, and feet staying still while the upper body moves, for example the head or arms is a static balance exercise. And standing still. Walking up stairs is a dynamic balance exercise.
i put my ear crystal out 3 half yrs ago. had 2 episodes and still coming and going. valium today
Thanks for this video, more of us who recovered need to let people know. I had it for almost a full year but I HAD to work full time through it which didn't help. Onset was June 2017 and it was 100% gone by May 2018, also I was having BAD days as late as Feb 2018 so it went away suddenly rather than gradually
how did u get cured??
jonathan ortega Just time my man and also I think cleaning up my diet helped. If you can put your mind at rest that it WILL pass and try live your best life in the meantime thats the best way to go.
@@Infern0121 Wow 2 years...so you have no symptoms at all right? Like it disappeared completely and never came back? I hope so:)
@@ali.s21 Yes it has not returned since, if you have it now try to keep stress now, almost try to forget about it as it will eventually pass
@@Infern0121 thank you so much this makes me feel much better!
Hi lindsay, thank you so much for this. Just wondering if you had a cold or any infection prior to VN? Because mine just came on suddenly. ENT suspected BPPV but my physiotherapist said it could be VN. Mine was triggered when I pushed my earwax too far into the canal. But no infection or inflammation . I’m 5 months in. Thanks so much .
I did have a sinus infection the month prior. Who knows, that could have been the culprit. I have this idea that I have a virus that made itself at home in my inner ear- on the vestibular nerve, and if I am really really sick, it can wake up and cause some damage to the nerve. I did a lot of reading about causes when I found out what I had and it was the one thing that made sense to me. Now, if I start to get a bad sinus infection, I immediately go to urgent care and get a round of steriods and take an anti-viral just in case (twice in the past 3 years).
What did you do to heal from that?
Thank you for these great videos. I have 2 questions: How long did you experience muscle twitching? Also did you ever have sore muscles ( legs) as well.
I had muscle twitching for at least 4 months. After I started taking an SSRI it calmed down. My legs were not sore, but walking felt exhausting and the first month I could not move fast.
@@lindsey8081 ..same problem I have experienced...now I am better
@@pallabidutta525 hii Ab aap kaisi ho
I have the muscle twitching and tingling does that get better?
Thanks for taking the time to post your story. I'm going for an MRI next week to see whats going on. I think my Doctor thought I was nuts, hell I thought I was nuts until I found a video yesterday describing vestibular neuritis.
R G
The doctor you need is a nuro physio, no meds just rehab . I recovered after 3 years ! Hang in stay positive it’s a long road
Thank you for sharing your story! I have this problem 4 day now. Got medicine prochlorperazine, feel bit less dizzy. I hope i will be ok soon. Is it possible to have only a mild form of VN or maybe I suffer from something else? They did not send me to any special examonation...
From what I've gathered, many people get over vestibular neuritis in days or weeks. If it last more than a few weeks it is considered chronic. At that point docs start to send you in for more tests. I think it's one of those things that happen with docs... No need to spend money on more tests when the symptoms typically clear up in a couple of weeks.
@Lindsay thanks for your Video die you have a complete damage inner ear or only a Prozent from the Nerv? What exercises die you a day ?
Thank you for this, I am nearly 6 weeks into it and it is a daily battle
I'm in for past 9 months but no improvement what I do and where to go 😥
@@gowthamjilla go and see somebody at a vestibular clinic & a good physio and chiro- that are fully educated in vestibular neuritis. Good luck! ❤
@@loveconquersall143 Tq so much 🤗
@@gowthamjilla My absolute pleasure. Let me know how you go! 💞
@@loveconquersall143 Ya treatment was going well .... 😊
I got diagnosed with the damaged vestibular nerve in the ear my physiotherapist gave me a Head exercise to do 3 times a day she told me you have to get dizzy to get better which sucks because I have to try slowly move around more because of that nerve in my ear to get better
Hi Lindsey, I feel like I have this. dizziness, blurry vision, did you have that too?? i got some new glasses and I was fine before. legs feel weak, balance issues, ringing ears, ear fullness and hyperacusis sensitivity to sound after a noise trauma, then another one 6 weeks later. Lights seem to me now sensitive and pc screen So scared I've got vestibular nerve damage and will never heal. Any hope for me? Fragile right now
I've dealt with minimum dizziness until I have a trigger like patterns, lights, darkness, but still have it after 3 years. Physical therapy does help though
I had Vestibular Neuritis and it took about a year to recover about 95%. Now everything is well 100% and I noticed sitting in the sun for long hours helped me so much and I dont know why...Thanks for your video and good luck to all.
What did you do to recover? any help/advice/tips much appreciated!
@@nattygeorgina1137 You should go see an upper cervical doctor ASAP. Make sure your neck is well aligned . Make sure the doctor is for upper cervical and he will let you know what you need to do.
@@momoe1974 Thank you for this advice. I also read you said sitting in the sun was good. I read that Vitamin D is great for these kind of issues so maybe that also helped you. I'm taking Vitamin D supplements now 2000iu a day as I was severely deficient in a blood test I had.
@@nattygeorgina1137 Sitting in the sun is good for your nervous system and helps calm your Vagus nerve which can cause tinnitus but if it is an upper cervical issue, then you must check with a doctor. You can do a search on youtube for Tinnitus and upper cervical to find out more info. Best luck
vitamin D does wonders for our health! I'm sure sitting in the sun also was good for calming your nerves and giving your body the rest it needed.
Hi everyone. This might be me but unsure. All started with a sudden acute episode of vertigo while sitting at desk looking straight ahead. Lasted just a second. Felt like my brain was scrambled. Then I was fine. Fast forward a 6 weeks or so and I’ve had roughly 7 of these startling episodes! Feel slightly dizzy while sitting now all the time. BPPV ruled out. This sounds the closest to what I’ve experienced. Good luck everyone xo
try getting yourself in for a VNG, or at least a caloric test, to test your inner ear and see if there are any deficiencies coming up. Best of luck
What did you do to recovery? What was the treatment?
Can you tell why you got it? Did you have like a cold or a flu a few weeks prior? I've read that that is usually the case.
Could you please point out (summarize) the duration between onset and back to job ?
Carol Rumble onset began mid Dec of 2017 and I was back to work full time by mid May 2018. I was working 2 days a week at a former food service job by mid April even though I still had some off days.
What did they say you had after the caloric testing? Also did you ever have trouble focusing with your eyes? Like I can feel my heart pulsate in my eyes, difficulty focusing too
Ford Ackers
I have recovered from vis.. n ! It took 3 years . I was extremely unbalanced first year . Took no meds as they don’t help . I go into a pool and practice balance, moving. And stay away from sugar and coffee! Drink heaps of water and stay positive as it takes a long long time but you do heal if you try..
God bless
Hi! I’m 4 months in and my ent thinks I have migraines because of my light sensitivity and sound sensitivity. Did you experience this too?
Thank you so much for sharing. After 3 months you said you started vestibular therapy. At that point, was your ears still full? Did you hear your ear pulsate? Did you get wobbly throughout the day? And if so, did you still feel worse before you got better?
I started PT after 5 weeks. Yes, my ears felt full, pulsed, was wobbly, and just generally exhausted.
Lindsey McKelvey Thanks! You said you restarted PT at 3 months? Were you feeling the same way right before then? Did you wait for the ENG/test results before restarting PT?
I started PT at 5 weeks when I was first diagnosed by an ENT and continued to do PT exercises up until about 5 months and saw a few different docs for PT along the way. I had testing done in the midst of PT to confirm my diagnosis and never stopped the exercises during that process.
@@lindsey8081 what kind of exercises did they make you do? Did u do anything specific for eye strain/focusing?
Ford Ackers
Pool exercise is great .. it’s visually challenging! Balance gets a great work out and you will improve quickly as you can push yourself with out fear of a falling injury. I had v n for 3 years I recovered by not eating much sugar and stopped drinking coffee
did you feel hot in your forehead randomly?. what kind of exercises did they make you do for recovery? im about 2 weeks in now and because of the virus.. i cant see an ent until next month!. I pray it goes away this week so I dont have to deal with it for long term. How can I even work for example? theres no way
HI lindsey, about 2 mos ago i message you with your video, thanks alot with this video, My neurologist finally diagnosed me with Vestibular Migraine, they have proved with the VNG i have left ear hypofunction. Now my question is, what meds are you taking and supplements? and did you go to physical therapy frequently? thanks in advance again
I went to physical therapy once a week for a couple of months and then conitued to do exercises for a while after not going in to see a therapist. At this point, 9 months into the ordeal. I'm not taking as many supplements. I have magniesum daily, vitamin B and C, and then take lexapro and gabapentin. That's great that you have gotten some answers. It's easier to move through this once you have confirmation on what's going on. Good luck to you
@@lindsey8081 Hi Lindsey! thanks for sharing your story. I was prescribed gabapentin but I am nervous to take it... its an alternative for Xanax.. how do you like it?
@@heathermott3950 I took gabapentin for about 6 months with taking lexapro. I continued the lexapro and stopped the gaba. Didn't feel like I needed it anymore. It worked for me. Helped calm me down instantly.
Hi! Ive been suffering for about a year. I really thought it was just anxiety/ or that I was going crazy, early on. Until I had a balance test. I want to know if you had any pain in your ears, neck or back? Aside from feeling weird almost all day I’m really struggling with that pain right now. I just started Neuro/balance therapy.
Hi hun. Sorry you had to deal with feeling crazy for so long. I only thought I was losing it for a couple of months until I fully believed I had VN. My ears hurt because there was a lot of pressure. My neck was killing me. I went to a chiropractor and had acupuncture for 3 months to help remedy the neck pain. My jaw hurt and my head hurt all of the time. Lots of pain.
I have the same thing 😢
lindsey, all of your symptoms are just like mine. even down to the random twitching etc. my anxiety is still high but getting better. neuro diagnosed VN after rigorous testing. however my ear testing was normal at ent but i have mild hearing loss in my right ear.
I hope you start feeling g better soon!!
Hello have you recovered from tinnitus?
I have visual tracking, balance problems. And get so exhausted by the brain having to adjust to this.
Lindley how long was it until your anxiety symptoms started after the initial VN event and when did you feel that the lexapro had an effect?
id say immediately felt anxious and it got worse and worse each passing week until i treated it. started to feel less anxious after just a few days on meds. felt really good after a couple of weeks.
Hi there, How long did you have VN for? Im almost 5 months in.. I feel like I’m getting better but I have this constant woozy feeling… I’m eating really healthy, sleeping 8/9 hours, and drinking lots of water. Did you have any flare ups on your recovery journey? Thank you for shedding light to us all that are battling with his horrible disorder.
Do you take any supplements? I've just started taking ginkgo biloba, lion's mane, D3... I hope it will help me but it's too soon to tell. I'd love to hear what others take to combat VN.
Monica, How are you now?
I’ve been going through this for 7 months now. It’s not as bad as it was in the beginning thank God, but every now and then I feel like I have a set back. The dizziness will become increased and stay that way for a week, then fade back down again. Is that something you went through too? Is that part of progress?
yes. It wasn't a steady or smooth recovery. There were little set backs along the way through out the first year.
@@lindsey8081 thank you for your reply! I sure hope this gets easier soon for me. It's so debilitating.
@@Coastiestevie how are u now