I sincerely hope your health improves, your pain buggers off forever and that your beautiful spirit & humor continue through this journey. It's really a pain in the bum, so to speak, but try and keep your spirits up. You're amazing ❤❤
Bless you Jenny. Congratulations on being a fellow survivor! Hope you live a very long and healthy life. Thank you for your support. Hugs back your way 🤗❤️
It makes me mad that good people have these issues..why can't the evil people of the world get inflicted with the diseases?!?! I really hope things get better, there's nothing worse than digestive problems! Sending hugs from Washington State🤗
My heart absolutely breaks for you!! I completely understand the going to the bathroom 100 times a week. I was diagnosed with Crohn’s disease at age 23 I’m fixing to turn 50 in Just a few days. I have had 28 surgeries during all this time. I had two fistulas as well. One was six inches deep into my left butt cheek the other one was around my anus. I put up with trying to heal my fistulas for over two years and i finally decided for a permanent colostomy bag. So I had my anus and most of my colon removed and I had already lost some of my small intestines due to having resections for the Crohn’s disease there as well. I have been on the keto diet for over a year to help my liver and my Crohn’s. I’m lactose intolerant, gluten sensitive and the only thing that has helped has been changing my diet. I still have a lot of diarrhea but it’s not as severe as it was. I’m still working on my diet to cut things that trigger the diarrhea. I cut out all sugar and all carbohydrates. I’m dealing with having a load of kidney stones at this time. I’ve never had them this bad before. You are definitely in my thoughts & prayers & I’m so glad I found your channel ❤🙏🏻✝️
Oh Melissa! You poor thing. You have had such a terrible time. Crohn's is just a horrible disease and it must be so debilitating for you. It puts my own situation into perspective. So many other kind people like yourself send me messages of support when their own problems are far more challenging. I do hope you are able to find that balance of diet/medication etc which makes good days outnumber the bad ones. Hang in there Melissa! I'm delighted you found my channel. I'm sending you a big virtual hug 🤗❤️
I feel your pain, Bill. I have metastatic breast ca, stage 4. I'm on a drug called Verzenio which causes diarrhea. It gets better then it reappears out of the blue. I can't have anything spicy and even eggs seem to set off the toilet visits. Argh. I just drink more water and eat Immodium to slow it down. Praying for you and hope you get past all the bad stuff and start recovering well. Take care and stay strong.
I'm sorry you are suffering Lane. I do hope things improve for you. I am sure you are going through far worse than I am. I'm sending you a virtual hug 🤗❤️
Prayers for you and Bill both. Hope you're using probiotics, too. They help with diarrhea plus get the "good guys" back to correct numbers, in your gut. I use them for lactose intolerance, great results.
The toilet becomes our new besties huh?! We have to laugh or else we would cry 😭 🤣 I hope you aren't feeling too unwell. Loads of love and solidarity from the UK 🇬🇧
My toilet and I are certainly getting very well known to each other! Just checked your channel. So sorry you are going through all this. You are a strong lady and you have a great attitude. Your birthday is also on my wedding anniversary! I think you look great without hair too, although I'm probably a bit biased 🤣. Stay strong and positive 🤗❤️
Would cannabis help harden up this man's stools or relieve any of his symptoms? Hang in there. My cousin is currently fighting cancer he's 51. Same problem. Toilet 20 times a day. Made worse by the fact he's had 8" of intestine removed very close to his rectum. They said he got CDiff in the hospital? Google CDiff terrible. My mom got CDiff from a dental antibiotic. Everyone must beware of this possibility. If anyone has a latent colony of Cdiff...this particular antibiotic will kill all the good bacteria in your digestive tract leaving you with a nasty CDiff infection.
@king kong Sorry to hear about your cousin. In my case I am now cancer free as I have completed all my treatments. I have been much improved over the past week and really hoping I have finally turned a corner and am now back to relative normality again. 👍
New sub here, from Ohio in the US. Bill, I love your attitude! I am going to add your “we are the champions” arm exercise to my usual toilet exercises….I swing my legs back and forth while I’m sitting there!! 😂 I won’t be able to do arm and leg exercises at the same time, though b/c I’m afraid I might fall off!😂😂
Hi Songbirds! I'm delighted you found my channel. So many kind people from USA supporting me. I am a little disappointed to find I wasn't the first to do toilet exercises after all! I shall have to cancel my workout video now. 🤣
Dear Bill, sorry to hear about your continuing pain...it's impacting your quality of life....Give those Dr's an S.O.S and insist on some sort of resolution..Family the very best tonic for smiles. Hugs to you both 🤗
Yes Ren. I will get back on to the hospital team this week if things don't improve. You're right about family. Lots to be thankful for. Hugs to you 🤗 ❤️ x
You are awesome. No one else is talking about this stuff. And I am going to tell everyone I know about Bill's Workout. For what it's worth- Butt Paste really works.
I totally feel your journey. I love how you explained the issue ( made me giggle, you not wanting to “wake a sleeping bum and your exercising technics/exercise)you for sharing your story. I hope you feel better 🔜
Bill, I’m not sure how you popped up in my recommended but I’m glad I found you! I will be following your progress and journey. Bless you and I am proud of you!
How horrible. I have had that happen to me, too. Pull the pants up and nope, pants back down and back on the toilet. And, yeah, if it weren't for the pain it wouldn't be so bad. Pain has made me cry, too. I pray it all gets all better soon. 💞🙏
My bidet attachment is the best thing I've bought for ages. Everyone should have one. I only wish the water was a bit warmer in the winter! Best wishes to you Chuck 😊
I sympathise - I have a J-pouch following losing my colon to cancer in 2009 and I'm still going to the loo up to 15 times a day, never less than 8. The effect on my sleep has been devastating. There used to be a fantastic tablet called lomotil that worked so well for me but it stopped being purchased by the NHS about 8 yrs ago.
You poor thing. I do hope your life gets better. It's so miserable when you can't get good sleep. Such a shame that the medication which worked so well for you is no longer available.
@@alinafelenca3090 I'm sorry you are having such a miserable time Alina. Is it too late to have the bag back? I agonised over whether to reverse or not because I coped pretty well with the ileostomy, but I would have had t have it changed to a colostomy anyway and it would have meant all the chemoradiation was pointless as I could have had surgery as soon as I got my diagnosis. I also thought that I would always egret not trying as it could have worked out so much better. I am still hopeful life will improve and don't yet regret it.
@@billrogersburp it's not too late but after three surgeries I'm so scared of another one, even the recovery was smooth and quick from each one. And maybe deep down I still keep the hope that someday things will get better. I dont know. Sorry for my english, I havent used it in a while.
Here's a tip... get a bottle of Vaseline Intensive Care moisturizer (or whatever) and use some on your toilet paper. The harsh paper wont be harsh and the moisturizer will be lubricating and much nicer than plain paper.
@@billrogersburp as a ulcerative colitis sufferer you have to prepare the skin before if there is an actual before with either Vaseline or a good thick barrier cream and use it ever time after wiping to help the skin. I hate going to the toilet, every time I eat it starts peristaltic movements and I have to go without even finishing eating. I am really thinking of you.
@Susan Brown I have family that suffer with UC and it is a horrible condition. I'm sorry you have this condition. It must be so debilitating. I do think that a colostomy bag would be a better option for many as all the problems disappear. Of course having a bag presents its own issues but after a year with a temporary one I coped pretty well. Sending you a virtual hug Susan. Thank you for your support 🤗❤️
@@billrogersburp thankyou, I am now paraplegic and incontinent with lesions on my spine and brain. Been bed bound for 10 months. Thankyou for keeping me company. I really miss my Dad and you remind me of him. He passed away at 54 of bone , lung and lymph cancer after a 3 month diagnosis. I was 23. Thankyou for your channel and I pray for you every night. Bless you. Keep on keeping on, and keep the humour, it's all we can do sometimes to not cry, hugs to you.
@@susanbrown4137 Oh Susan. You poor thing. I'm so sorry for you. What can I say to that? I do hope you are able to get some light in your life. Something good that makes you happy. Life is so unfair sometimes. I wish I could give you a real hug now. I am so pleased you find my videos watchable and I'm delighted I remind you of your poor dad. I bet he was a troooper like you and I only hope his dad-jokes were less cringe-worthy than mine! Hang in there Susan. Bless you ❤x
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!!!
Bill don’t put up with this you need to go back to your surgeon and say what’s going on this can’t be right be very careful you don’t get dehydrated xx
I'm drinking lots of fluid Sandra. I don't actually have diarrhoea. The consistency is OK. It just never seems to stop! I'm having a good day today though and I'm not even typing this on the loo! 🤣❤️xx
You seem to be getting to the bottom of your symptoms. Glad the loperamide is helping. I know you've still got issues but overall this was a very positive vlog. Glad the fissure seems to be healing finally. I wonder if the constant toilet visits is dietary? I suppose it will be quite a long process of elimination. Anyway chin up Bill and hope to see you soon xxx
Hi Christine. Don't know why I don't see your comments as notifications. I only find them when I scroll down through the others. So sorry if I am often slow to respond (there are a couple of others who are the same...must be a glitch or a settings issue). Anyway, yes you are right that things are definitely better than they were and I am still hopeful it will be alright on the night (especially 'in' the night 😳). Lots of love Bill ❤️ xx
Hello Bill, I'm from Spain and I don't write very well in English sorry. My son was born with a desease and his entire colon was removed so he went to the bathroom many times a day, I recommend The ILEX Skin Protectant cream if you haven't already used it. I wish you the best
Hi Sheyla. Your English is perfect. I'm sorry that your son had such a dreadful disease. I do hope he is OK now. My colorectal nurse did recommend Ilex as a barrier cream so I bought some...but it is SO expensive! The problem is though that the burning sensation I get seems to be inside rather than on the outer skin so I don't think it helps me much. I might give it another try though as you have mentioned it. Thank you for your advice and I am grateful for your support ❤️
@@billrogersburp What they recommended to my son NOT to eat is: onion, garlic fine-skinned fruits (pear, apple, ..) raspberry, watermelon, dairy almond, never eat legumes. Those foods irritate your intestine and make your bile work harder and your poop become more acidic.
Hi Bill I am new to your channel and think you are amazing - so humorous- you are helping a lot of people with your informative, honest and funny blogs. Just a quick question - what has caused the red mark on your face? Is it a permanent birthmark or a result of radiotherapy? All best to you
@@fransa6 Hi Sarah! I'm delighted you found my channel and I'm very grateful for your kind words. If you watch my latest Vlog #92 I start with an explanation about the red mark which caused confusion to everyone. It is red chalk and I was making out it was a rash from the stoma bag I had stuck on my face. 😂
I was just being silly Julie. It's just red chalk on my face. At the start I was thinking of patenting my idea of a bag in the nose. My last comment is about cancelling a patent (because of the 'rash'). I need some better material! 😉
Don't take a lighter into the loo when you're doing the queen tune. One puff of escaped wind and you'll blow the doors off! Keep on keeping on, Bill. You're a trooper!
Bill, I am so sorry to hear that this condition is not getting better. What does your Doctor say? I don’t think he should have you depending on the pills. Praying you get right soon. I have to do a colonoscopy soon and I am afraid to do it. I can’t imagine what you are going through. And keep the bum asleep. Lol!
Thank you Joan. I haven't been to my doctor about this. I am only relying on the colorectal nurse specialists who liaise with the surgeon. I know people do have to live on Loperamide to control themselves. It's apparently not harmful. I'm still hoping things will calm down though. Good luck with the colonoscopy Joan. 💪❤️x
Hi Deb! It's no fun having a sore botty - that's for sure. It's funny though because over the past few days I have started adding things to my diet which I suspected were causing me trouble before but have not been any worse. I'm starting to wonder if its not diet at all. I'm having good days at the moment and just waiting for the dam to burst again! I do hope you find what works best for you and your life improves quickly. 😬❤
Your pharmacist is probably right about the hand..I have OCD and wash my hands loaddsss during the day and thats how they start to look..at first, my dominant hand looks much worse, I think I focus on it more when I'm washing, whether I realize I am or not. So if you're right handed, I'd say it's a good guess as to what's happening unless something changes..❤
Maybe you already have this, but a loved one of mine had a bidet attachment added to the toilet (inexpensive and easy to attach). The water cleansing after each toilet use was very helpful for healing and comfort. I also want to add that your body is obviously detoxifying by way of this unpleasant process (that is also the cause of the rash). It is your body's way of getting rid of what makes you ill, and is completely necessary. My family member experienced tha same thing. The detoxing eventually stops once the body is free of the toxins that it is working so hard to remove but it takes a long time. Best wishes to you. You will get well.
Hi Bill, Fun fact: Tongans Indians and Japanese poop 2 pounds a day. They must be in the bathroom a lot. British and Americans average 3 ounces. Seriously, I have hemorrhoids and on and off severe pain which I’m not comparing to yours of course but I’ve had it for many years so I do know a little bit about what you’re experiencing in the way of burning. Sending you healing vibes from Hawaii. Aloha
Hi Bill, new to your channel. I’m Celiac (an autoimmune disease), basically the body cant digest the protein in gluten. Gluten is added to many foods as a bulking or thickening agent. Its also in quite a few grains, wheat, spelt, etc. Its a hereditary disease but can skip several generations. It can also (sometimes) lay dorment, activating later in life. Chances are this is not the cause of your problems but worth checking out just to be sure. Best wishes.
Hi! Is it Ara? Delighted you found me. Thank you for the tip. We did wonder if it might be a gluten issue. I love bread and have always eaten tonnes of it but it might be worth cutting it out for a while to see what happens. 👍
@@billrogersburp Hi Bill, its Arabella, Ara for short. Anyway, I suggest firstly cutting out wheat and just seeing if that makes a difference. If it does not then ( start eating wheat again &) get tested for celiac’s disease before you cut out gluten completely. Wheat is a common allergy, the protein within wheat is gluten which is contained within many other grains. People with celiacs disease are unable to digest the protein in gluten. Once you have cut out gluten from your diet the gut repairs itself and there is no way of telling if you have celiac’s disease or not . The first test is a blood test, I think for antibodies, after which you then have a biopsy of the colon for confirmation of the disease. I suffered from extreme diarrhoea, allergies and skin rashes before, late in life, a family member mentioned that we had relatives with celiac’s disease. For years I wasn’t tested because I was unaware it ran in my family. Hope you find the answer to your problems, best wishes, Arabella
@@oilfreeara277 Thank you Arabella. That's a lovely name. I am experimenting with food types and I did a food intolerance test as well. Sadly I love my bread and that may be a factor as you say. 🤔
Hi there I've just tuned in from Melbourne 🦘 I'm sorry to hear about your troubles my lovely man.....I really have to ask why is there a red area around your eye and nose area .....sending love and cheers 🙏🍀
Hi Jan! I'm delighted tyou found my channel. I'm always amazed at how many lovely people there are around the world that are interested in watching my videos. I am afraid my schoolboy sense of humour failed miserably this time. I caused a lot of confusion with my red face. It is chalk and it was supposed to be a rash caused by the stoma bag which I was demonstrating as a way to catch your nose drips when you have hayfever. I'm going to have to explain it in the next Vlog! Very grateful for your support 😁❤️
Hi Bill this is so not right. You will get so weak if this isn't sorted. Surely something can be done more to find out why this is continuing? The tablets are obviously not doing much but you shouldn't even have to keep taking them. Can more investigations be done to find out exactly what's going on? I am so sorry you are suffering so much with this. To make things worse there's your face! That another story!!! Bags are obviously causing an allergic reaction!!! Personal question Bill, but, does Helen find the face bags take the romance out of kissing?!!!! 💋Lol Take care Bill and I do hope you can soon feel heaps better soon love x❤🙏🤗🤗🤗
Hi Kris. I am hoping for another signoidoscopy to see what is going on up there. The colorectal nurses will speak to my surgeon but I think he is on leave at the moment. Many would say the facemask is an improvement! I actually can't get the red chalk off my nose. Helen is very amused by that 🤣❤️x
@@billrogersburp I do hope the procedure can happen soon Bill . I think you are amazing how you are doing your best to cope with the situation. No wonder you have days of feeling so rough. I think it's about time you got a break. It must be really exhausting for you. Do look after yourself lv x 🙏🤗🤗🤗🤗🤗🤗🤗
Hey Bill, still here. I hope it’s okay I’m leaving a comment here for you. I’ve been following you since the beginning and I am still following. I also had rectal cancer, stage 3. And I feel your frustration over life after cancer. If you’d ever like to discuss what life with an ileostomy is like, reach out to me. Might not be something you’re entertaining, but if you are, I’m living with one. It’s actually good. Hate that you’re in pain. But also not pitying you. I hated pity during my journey. I get it. That’s all I wanted to say. Hope you see this comment. 🙂
Hi Susan. Great to hear from you. I remember you had almost the same issue as me. I think you were a few months ahead of me in the process. So glad you are doing so well! I did have an ileostomy for a year before the reversal in January, so I know what it's like. I agree with you - it really wasn't so bad. I coped pretty well with it and often thought it was so much more efficient than our normal way of emptying out! I was able to eat and drink whatever I liked. I was really in two minds whether to opt for the reversal or to have keep the bag because I had heard nightmare stories about reversals. But my surgeon said I would have to have a colostomy anyway, which would mean surgery to switch the bag to the left side, and that would be complicated by the scar tissue from the original work. Even though I am having some ups and downs, I think I made the right decision to reverse. If my pain issues continue I suppose they might offer me the baga again, so that will be a big decision to make. Anyway, thank you for reaching out to me and thank you for following my vlogs all this time. 😊❤️
It’s so good to hear from you! I just want to extend my support since I can relate to just about everything you say. Keep on keeping on, friend. And I hope you get all of this sorted out and get back to doing all the things you love! I’ve shared your vlogs with my friends I made during my cancer journey. Everyone thinks you’re great. Thanks for being a bright spot for us all here on TH-cam! I’ll be watching. 🙂
Thankfully Gary I am cancer-free now, so the treatment worked for me. I am just suffering the after-effects now. You are so right about taking a day at a time though.
There are prescriptions better and stronger than Imodium. I think Imodium is great, but only to a point. There is one or two that's a control med, still, iT works. Are there reasons the Dr would not give something else? Lovely Rosacea Bill, the Nordic in you, oops, Irish? Eucerin Lotion/Cream (s) would help u alot for dryness.
I haven't been reviewed yet ar the surgeon's clinic. Perhaps that will be the time when some tweaks to medication will be made. I have several moisturising creams which help to some extent on my hands but it's not too bad. My facial blemish is red chalk! Sadly I think I scrubbed too hard trying to getvitvoff and now I have a red nose. Helen finds it very funny 🤣
Shit Bill that completely sucks, it literally sucks the life out of you or me anyway!!!! I’ve actually also been suffering a lot since yesterday 🤯 I also wouldn’t have been able to get through Easter without loperamide. I’m just curious if you’ve ever tried a day with only potatoes, rice and plain chicken or fish and literally nothing else just to get through a very bad day. It’s is difficult but sometimes the discomfort of eating like that is better than the pain of not 🙏🏻🤞and Botox injections messed me up but it was in a different area so not sure if the same would be true for you❤️🙏🏻🤞🤞🤞
So sorry you are suffering Becky. I am pretty much eating that kind of bland diet at the moment. Does seem to help. I really want to avoid the Botox. Thankfully the ointment does seem to be working so hopefully it won't be necessary. Hang in there Becky! Bug hug flying your way 🤗 ❤️x
Thank you. It was supposed to be from the mask on my face which scuppered my idea for patenting it. I caused a lot of confusion with this very poor attempt at humour. I will try harder! There is the option to have the stoma back and this is something I hope to discuss with the surgeon when I get a follow up appointment.
@@billrogersburp ah gotcha! Yea given how much pain and life disruption you are going through it seems like a stoma might really help you? I’ve seen other YT folks talk about them and they all seem to say that they work quite well and are pretty easy (you’ve already had one so you would know either way I guess). Good luck!
Haha! I am hoping for a sigmoidoscopy to see what is going on up there but the surgeon has been away. We also have all the strikes going on at the moment which is probably slowing everything down. ☹
I am experimenting with food and finding what affects me. Someone else suggested fasting too. I do think things are improving the past few days anyway so maybe I'v turned a corner now... 🤞
@@billrogersburp Please watch Dr Eric Berg's videos, he interviewed some cancer patients (stage 4) that have recovered fully through fasting/keto protocols. good luck brother!
No...but having Googled the symptoms I don't think I have that. For a start I don't have diarrhoea. I just go a lot..normal consistency. I did mention this to the colorectal nurse a while ago and they also said it was not causing my symptoms.
@@billrogersburp I didn't think bum issues from using too much toilet paper were actually shown on face..😉(sorry for my bad sense of humour..I'm swedish) Any way, sorry for your bum issues, you're handling it all with such a good spirit though, humour is a lifeline when times are rough.👍Hope it soon will calm down for you! Take care.🌸
@@ildikoparker920 Aww Ildiko! My face has gone red again (and it's not the silly chalk this time!). You are very kind. I will certainly keep the updates coming. I have a meeting tomorrow with my surgeon so hope to have a new Vlog out after that with news ❤x
@@ildikoparker920 Hi Ildiko...have you seen Vlog #92 & 93? That's the latest. Basically, had a sigmoidoscopy on Sunday and waiting for biopsy results, but all looked fine . Been pretty good lately! Thanks for asking 😊❤
It was supposed to be from the mask on my face which scuppered my idea for patenting it. I caused a lot of confusion with this very poor attempt at humour. I will try harder!
Your comments were turn off on your latest video so that is why I am posting this here. Hi Bill. I came across your Vlog and saw where you were trying to come up with some ideas on how to get some better nutrition into your body in the form of vitamins and nutrients. When I was really sick, I used a product called Maximum Vibrance. It contains all of the nutrients that your body needs and is healthy, unlike sugary Ensure. I will admit it’s not the most best tasting, but it does come in a couple of flavors. I used to mix mine in a plant-based vanilla flavored protein powder with some avocado to give it a thickness. Another thing that you can also look into that would help with your immune system is beta glucan. Many patients who go through cancer have benefited from using beta glucan because it does not interfere with most cancer treatments but of course I would discuss this with your doctor first. The best brand that I have found out there to use is by a company called Better Way Health. And finally I’m not sure if your doctor is wanting you to get more good gut bacteria into your system. If so there is a product called VSL #3. They have a grade that you can order that is below prescription strength or you can talk to your doctor and see if your doctor can get you a prescription for it. Just make sure the order directly from the company because they know how to pack it proper because it needs to stay cold so that the bacteria that you will need to use will stay alive. I hope these suggestions help and I hope you feel better soon so you can get out there and do the things that you enjoy doing. 🙏🏻🙂
Hi Normandy. What a lovely name you have. Thank you for taking the time to send me such a helpful message. It's great advice and I will do some research on the products you mentioned. I just checked into your profile and can see you are a well-established author and I viewed a few of your video links to TV interviews etc on bullying. I don't know your story yet but I'm intrigued to find out more so I will dip into more of your videos. I saw that you were a victim of bullying and how emotionally destructive that experience was for you. To have become the strong, successful person you are today is to your huge credit, so well done! Thank you again for your kind support 😊❤️
I sincerely hope your health improves, your pain buggers off forever and that your beautiful spirit & humor continue through this journey. It's really a pain in the bum, so to speak, but try and keep your spirits up. You're amazing ❤❤
Haha! Indeed it is a pain in the bum. I appreciate your kind words (and I like the name Sew What 🤣) ❤️
@@billrogersburp God bless you sir and may the good lord Jesus christ heal you completely don't lose the faith.❤
@silver fox Thank you and bless you for your kind words 😊❤️
Virtual hugs to you from a cancer survivor patient…you are in my prayers 🙏
Bless you Jenny. Congratulations on being a fellow survivor! Hope you live a very long and healthy life. Thank you for your support. Hugs back your way 🤗❤️
You are such a genuine and amazing person. God bless you sir ❤
What a lovely thing to say. Thank you and God bless you too 😊❤️
Bless your heart, I'm sending you much love and healing prayers 🙏
Aww thank you Hollie. Much appreciated ☺❤
It makes me mad that good people have these issues..why can't the evil people of the world get inflicted with the diseases?!?! I really hope things get better, there's nothing worse than digestive problems! Sending hugs from Washington State🤗
Oh, I've taken more than 8 Loperamide A day with no problem.
Aww bless you Trish. Thank you for your kindness ❤️
they are affected by diseases
You Are 💯 Right 👍
My heart absolutely breaks for you!! I completely understand the going to the bathroom 100 times a week. I was diagnosed with Crohn’s disease at age 23 I’m fixing to turn 50 in Just a few days. I have had 28 surgeries during all this time. I had two fistulas as well. One was six inches deep into my left butt cheek the other one was around my anus. I put up with trying to heal my fistulas for over two years and i finally decided for a permanent colostomy bag. So I had my anus and most of my colon removed and I had already lost some of my small intestines due to having resections for the Crohn’s disease there as well. I have been on the keto diet for over a year to help my liver and my Crohn’s. I’m lactose intolerant, gluten sensitive and the only thing that has helped has been changing my diet. I still have a lot of diarrhea but it’s not as severe as it was. I’m still working on my diet to cut things that trigger the diarrhea. I cut out all sugar and all carbohydrates. I’m dealing with having a load of kidney stones at this time. I’ve never had them this bad before.
You are definitely in my thoughts & prayers & I’m so glad I found your channel ❤🙏🏻✝️
Oh Melissa! You poor thing. You have had such a terrible time. Crohn's is just a horrible disease and it must be so debilitating for you. It puts my own situation into perspective. So many other kind people like yourself send me messages of support when their own problems are far more challenging. I do hope you are able to find that balance of diet/medication etc which makes good days outnumber the bad ones. Hang in there Melissa! I'm delighted you found my channel. I'm sending you a big virtual hug 🤗❤️
Sending hugs Bill, hopefully good days are headed your way ❤😊
Thank you Tracy. Hope so too ❤️🤗
I feel your pain, Bill. I have metastatic breast ca, stage 4. I'm on a drug called Verzenio which causes diarrhea. It gets better then it reappears out of the blue. I can't have anything spicy and even eggs seem to set off the toilet visits. Argh. I just drink more water and eat Immodium to slow it down. Praying for you and hope you get past all the bad stuff and start recovering well. Take care and stay strong.
I'm sorry you are suffering Lane. I do hope things improve for you. I am sure you are going through far worse than I am. I'm sending you a virtual hug 🤗❤️
Prayers for you. 🙏💜🙏
@@eileenlester4342 🙏❤
Prayers for you and Bill both. Hope you're using probiotics, too. They help with diarrhea plus get the "good guys" back to correct numbers, in your gut. I use them for lactose intolerance, great results.
Lane can u ask UR Dr for a prescription? Imodium only goes so far.
Any relief from your Cancer w/treatments?
Haven't commented in a long time, I hope things get better for you Bill. God bless you
Hi JoJo. Good to hear from you. Thank you. Hope all is well with you 🙏 ❤️
The toilet becomes our new besties huh?! We have to laugh or else we would cry 😭 🤣
I hope you aren't feeling too unwell.
Loads of love and solidarity from the UK 🇬🇧
My toilet and I are certainly getting very well known to each other! Just checked your channel. So sorry you are going through all this. You are a strong lady and you have a great attitude. Your birthday is also on my wedding anniversary! I think you look great without hair too, although I'm probably a bit biased 🤣. Stay strong and positive 🤗❤️
Would cannabis help harden up this man's stools or relieve any of his symptoms?
Hang in there.
My cousin is currently fighting cancer he's 51.
Same problem.
Toilet 20 times a day.
Made worse by the fact he's had 8" of intestine removed very close to his rectum.
They said he got CDiff in the hospital?
Google CDiff terrible.
My mom got CDiff from a dental antibiotic.
Everyone must beware of this possibility.
If anyone has a latent colony of Cdiff...this particular antibiotic will kill all the good bacteria in your digestive tract
leaving you with a nasty CDiff infection.
@king kong Sorry to hear about your cousin. In my case I am now cancer free as I have completed all my treatments. I have been much improved over the past week and really hoping I have finally turned a corner and am now back to relative normality again. 👍
New sub here, from Ohio in the US. Bill, I love your attitude! I am going to add your “we are the champions” arm exercise to my usual toilet exercises….I swing my legs back and forth while I’m sitting there!! 😂 I won’t be able to do arm and leg exercises at the same time, though b/c I’m afraid I might fall off!😂😂
Hi Songbirds! I'm delighted you found my channel. So many kind people from USA supporting me. I am a little disappointed to find I wasn't the first to do toilet exercises after all! I shall have to cancel my workout video now. 🤣
@@billrogersburp 😂😂
Dear Bill, sorry to hear about your continuing pain...it's impacting your quality of life....Give those Dr's an S.O.S and insist on some sort of resolution..Family the very best tonic for smiles. Hugs to you both 🤗
Yes Ren. I will get back on to the hospital team this week if things don't improve. You're right about family. Lots to be thankful for. Hugs to you 🤗 ❤️ x
Healing prayers continue 🙏 🙏💜
❤🙏
You are awesome. No one else is talking about this stuff. And I am going to tell everyone I know about Bill's Workout. For what it's worth- Butt Paste really works.
Aww thank you Fran! Perhaps a workout video released in time for Christmas? 😁❤️
I totally feel your journey. I love how you explained the issue ( made me giggle, you not wanting to “wake a sleeping bum and your exercising technics/exercise)you for sharing your story. I hope you feel better 🔜
That's very kind of you Tracy. Thank you for your support 😊
Love and healing sent your way
Thank you ❤️
Bill, I’m not sure how you popped up in my recommended but I’m glad I found you! I will be following your progress and journey. Bless you and I am proud of you!
Hi Nikki. Well I'm delighted you found me on here. It's great to have your support. Thank you for your kind words 😊❤️
I'm praying for you, Bill. Your positive attitude is an inspiration. God Bless from America.
Thank you Duane. Very kind of you. 😊❤️
How horrible. I have had that happen to me, too. Pull the pants up and nope, pants back down and back on the toilet. And, yeah, if it weren't for the pain it wouldn't be so bad. Pain has made me cry, too. I pray it all gets all better soon. 💞🙏
I'm way better now Jenny. You will be too. Hang in there ❤️
Your channel just popped in my feed. So glad it did. I am subbed, you are lovely and adding you to my prayer list!
Aww LizaJane! I'm delighted you found me. Thank you so much ❤
❤ Hi Bill ❤ glad to see you🎉
I installed a bidet and use wet wipes. I feel your pain, stay strong.
My bidet attachment is the best thing I've bought for ages. Everyone should have one. I only wish the water was a bit warmer in the winter! Best wishes to you Chuck 😊
Heal well Bill- Im a cancer survivor and i live on Loperamide and Pepto. Take Electrolytes !!!
Oh my! prayers from me, the cricket🙏🤲stay strong!💪🦗🗡⚔🦗
Thank you very much for your support 😊
bill you are hilarious! I always look forward to your vlogs. Thank you for sharing. PS I have colitis & I can relate to the darn frequency thingy!
Thank you Jesse. I am sorry you are suffering too. Hope your good times outweigh the bad 🙏❤
@@billrogersburp Yes they do! And anyway we can do hard things can't we :)
Sending hugs all the way from Texas! 💪🏾💗
Hi Priscilla! Another lovely American sending me support. Very much appreciated. Thank you! 🤗❤
I sympathise - I have a J-pouch following losing my colon to cancer in 2009 and I'm still going to the loo up to 15 times a day, never less than 8. The effect on my sleep has been devastating. There used to be a fantastic tablet called lomotil that worked so well for me but it stopped being purchased by the NHS about 8 yrs ago.
You poor thing. I do hope your life gets better. It's so miserable when you can't get good sleep. Such a shame that the medication which worked so well for you is no longer available.
I would bet you could get it easily online. I know it is freely available in the USA.
Whoops I commented in an older video slot (3 weeks ago); all the best to you and I hope you feel better.😊 New subscriber here.
Hi again! Welcome and thank you for your kind comments 🙂👍
Hearing your story is making me cherish my Husband's surgeon who told him it's not worth it to get the reversal.
Yes Sianne. Life was better in many ways with the bag. Difficult times indeed.
I had reversal surgery back in May 2021. I regret it every single day. Life was much easier with my bag.
@@alinafelenca3090 I'm sorry you are having such a miserable time Alina. Is it too late to have the bag back? I agonised over whether to reverse or not because I coped pretty well with the ileostomy, but I would have had t have it changed to a colostomy anyway and it would have meant all the chemoradiation was pointless as I could have had surgery as soon as I got my diagnosis. I also thought that I would always egret not trying as it could have worked out so much better. I am still hopeful life will improve and don't yet regret it.
@@billrogersburp it's not too late but after three surgeries I'm so scared of another one, even the recovery was smooth and quick from each one. And maybe deep down I still keep the hope that someday things will get better. I dont know. Sorry for my english, I havent used it in a while.
@@alinafelenca3090 ❤️🤞
It does get better. Fiber is not your friend. I eat an apple a day. I eat a salad only few times a week. Hang in there.
That's good to hear! As long as I know it will improve I can wait. I think my expectations were a bit unrealistic. 🤔
Here's a tip... get a bottle of Vaseline Intensive Care moisturizer (or whatever) and use some on your toilet paper. The harsh paper wont be harsh and the moisturizer will be lubricating and much nicer than plain paper.
Yes Brama. I'd be lost without my Bidet attachment! Got some moist wipes too for the worst times! Good advice. Thank you ❤️ 😊
@@billrogersburp as a ulcerative colitis sufferer you have to prepare the skin before if there is an actual before with either Vaseline or a good thick barrier cream and use it ever time after wiping to help the skin. I hate going to the toilet, every time I eat it starts peristaltic movements and I have to go without even finishing eating. I am really thinking of you.
@Susan Brown I have family that suffer with UC and it is a horrible condition. I'm sorry you have this condition. It must be so debilitating. I do think that a colostomy bag would be a better option for many as all the problems disappear. Of course having a bag presents its own issues but after a year with a temporary one I coped pretty well. Sending you a virtual hug Susan. Thank you for your support 🤗❤️
@@billrogersburp thankyou, I am now paraplegic and incontinent with lesions on my spine and brain. Been bed bound for 10 months. Thankyou for keeping me company. I really miss my Dad and you remind me of him. He passed away at 54 of bone , lung and lymph cancer after a 3 month diagnosis. I was 23. Thankyou for your channel and I pray for you every night. Bless you. Keep on keeping on, and keep the humour, it's all we can do sometimes to not cry, hugs to you.
@@susanbrown4137 Oh Susan. You poor thing. I'm so sorry for you. What can I say to that? I do hope you are able to get some light in your life. Something good that makes you happy. Life is so unfair sometimes. I wish I could give you a real hug now. I am so pleased you find my videos watchable and I'm delighted I remind you of your poor dad. I bet he was a troooper like you and I only hope his dad-jokes were less cringe-worthy than mine! Hang in there Susan. Bless you ❤x
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!!!
Thank you Liam. I'll do some research as you say 👍
@@billrogersburp you’re certainly welcome my friend!
You are so darn cute!😊
Theresa! Thank you! Made my day. Helen! HELEN! HELEN!! I've been called cute! 😂❤️
Bill don’t put up with this you need to go back to your surgeon and say what’s going on this can’t be right be very careful you don’t get dehydrated xx
I'm drinking lots of fluid Sandra. I don't actually have diarrhoea. The consistency is OK. It just never seems to stop! I'm having a good day today though and I'm not even typing this on the loo! 🤣❤️xx
You seem to be getting to the bottom of your symptoms. Glad the loperamide is helping. I know you've still got issues but overall this was a very positive vlog. Glad the fissure seems to be healing finally. I wonder if the constant toilet visits is dietary? I suppose it will be quite a long process of elimination. Anyway chin up Bill and hope to see you soon xxx
Hi Christine. Don't know why I don't see your comments as notifications. I only find them when I scroll down through the others. So sorry if I am often slow to respond (there are a couple of others who are the same...must be a glitch or a settings issue). Anyway, yes you are right that things are definitely better than they were and I am still hopeful it will be alright on the night (especially 'in' the night 😳). Lots of love Bill ❤️ xx
Hello Bill, I'm from Spain and I don't write very well in English sorry. My son was born with a desease and his entire colon was removed so he went to the bathroom many times a day, I recommend The ILEX Skin Protectant cream if you haven't already used it. I wish you the best
Hi Sheyla. Your English is perfect. I'm sorry that your son had such a dreadful disease. I do hope he is OK now. My colorectal nurse did recommend Ilex as a barrier cream so I bought some...but it is SO expensive! The problem is though that the burning sensation I get seems to be inside rather than on the outer skin so I don't think it helps me much. I might give it another try though as you have mentioned it. Thank you for your advice and I am grateful for your support ❤️
@@billrogersburp What they recommended to my son NOT to eat is: onion, garlic fine-skinned fruits (pear, apple, ..) raspberry, watermelon, dairy almond, never eat legumes. Those foods irritate your intestine and make your bile work harder and your poop become more acidic.
@sheyla leal Thank you. Yes I am having a very bland diet. Good tips 👍
Hi Bill I am new to your channel and think you are amazing - so humorous- you are helping a lot of people with your informative, honest and funny blogs. Just a quick question - what has caused the red mark on your face? Is it a permanent birthmark or a result of radiotherapy? All best to you
@@fransa6 Hi Sarah! I'm delighted you found my channel and I'm very grateful for your kind words. If you watch my latest Vlog #92 I start with an explanation about the red mark which caused confusion to everyone. It is red chalk and I was making out it was a rash from the stoma bag I had stuck on my face. 😂
My Mom Had Too Different Types Of Cancer Back In 1988 And She's Still Going Strong Now At 84 You Will Come Though This You Are Strong 🙏👍✌️
Hi Greg. Your Mom sound like a trooper! They were made of strong stuff back then. Well done her!! And thank you for your support 😊🙏
@@billrogersburp 🙏👍
God Bless You
God bless you too Jacquelyn 😊❤️
if you were explaining your face during the last 10 seconds-
i could not understand and CC also did not know
I was just being silly Julie. It's just red chalk on my face. At the start I was thinking of patenting my idea of a bag in the nose. My last comment is about cancelling a patent (because of the 'rash'). I need some better material! 😉
Bless you I know this toilet issue its awful xxxxxxxxxx
Thank you. It's not much fun! 😊x
Don't take a lighter into the loo when you're doing the queen tune.
One puff of escaped wind and you'll blow the doors off!
Keep on keeping on, Bill.
You're a trooper!
Haha! Good point Maxine 🤣
Bill, I am so sorry to hear that this condition is not getting better. What does your Doctor say? I don’t think he should have you depending on the pills. Praying you get right soon. I have to do a colonoscopy soon and I am afraid to do it. I can’t imagine what you are going through. And keep the bum asleep. Lol!
Thank you Joan. I haven't been to my doctor about this. I am only relying on the colorectal nurse specialists who liaise with the surgeon. I know people do have to live on Loperamide to control themselves. It's apparently not harmful. I'm still hoping things will calm down though. Good luck with the colonoscopy Joan. 💪❤️x
@@billrogersburp Thank you Bill. Well that sounds good about the medication. Even though it all you give us a good laugh 😂. Be well.
I feel for you !!! I'm suffering the same bathroom visits. I believe it is diet too...Vasaline on my bottom helps the burn and raw feeling.
Hi Deb! It's no fun having a sore botty - that's for sure. It's funny though because over the past few days I have started adding things to my diet which I suspected were causing me trouble before but have not been any worse. I'm starting to wonder if its not diet at all. I'm having good days at the moment and just waiting for the dam to burst again! I do hope you find what works best for you and your life improves quickly. 😬❤
Awww, I feel so awful for you. I hope they sort your bum out soon!
Thank you. Me too! 🤞❤️
Your pharmacist is probably right about the hand..I have OCD and wash my hands loaddsss during the day and thats how they start to look..at first, my dominant hand looks much worse, I think I focus on it more when I'm washing, whether I realize I am or not. So if you're right handed, I'd say it's a good guess as to what's happening unless something changes..❤
Thank you. Yes - that is a good point about handwashing. I feel for you if you have to wash so often. It must be very debilitating. ❤
Praying for your complete healing sir. 🙏 Hope you'll get better soon. Jesus Christ is our Lord and Saviour. Trust in His plans. God bless you, sir. 🙏
That's very kind of you. I'm very much better now. Hoping my next vlog update will be full of good news. I'm grateful for your support 😊❤️
God bless u.prayers for u..I have Multiple Sclerosis and have on and off bladder issue going pee every ten minutes😮❤😅
Oh Nicole. You poor thing. That must be just awful for you. I hope you are able to enjoy some good times too. Bless you ❤️
Thank you so much Bill..Praying for you to feel well soon and wishing you a great summer
@@nicolearakelian6909 You too Nicole ❤
🙏🏻🙏🏻🙏🏻
Maybe you already have this, but a loved one of mine had a bidet attachment added to the toilet (inexpensive and easy to attach). The water cleansing after each toilet use was very helpful for healing and comfort.
I also want to add that your body is obviously detoxifying by way of this unpleasant process (that is also the cause of the rash). It is your body's way of getting rid of what makes you ill, and is completely necessary. My family member experienced tha same thing. The detoxing eventually stops once the body is free of the toxins that it is working so hard to remove but it takes a long time.
Best wishes to you. You will get well.
I want to add do NOT do the BOTOX. It would harm you, and add to your toxin load that your body is trying to remove.
I want to add do NOT do the BOTOX. It would harm you, and add to your toxin load that your body is trying to remove.
Thank you Silvie. Yes - the bidet attachment is brilliant. Vlog #22 has a review when I fitted ours 😂
I'm not keen on the Botox idea either. Hopefully it won't be needed anyway.
So sorry really takes s lot out of you..Hope it slow up some soon.
Thank you. Having a good day today 🙂👍
Hi Bill, Fun fact: Tongans Indians and Japanese poop 2 pounds a day. They must be in the bathroom a lot. British and Americans average 3 ounces.
Seriously, I have hemorrhoids and on and off severe pain which I’m not comparing to yours of course but I’ve had it for many years so I do know a little bit about what you’re experiencing in the way of burning. Sending you healing vibes from Hawaii. Aloha
Crikey Marilyn! No wonder the Japanese invented those fancy toilets! 😂 Piles are blooming miserable. Us humans are not designed well ❤️x
Hi Bill, new to your channel. I’m Celiac (an autoimmune disease), basically the body cant digest the protein in gluten. Gluten is added to many foods as a bulking or thickening agent. Its also in quite a few grains, wheat, spelt, etc. Its a hereditary disease but can skip several generations. It can also (sometimes) lay dorment, activating later in life. Chances are this is not the cause of your problems but worth checking out just to be sure. Best wishes.
Hi! Is it Ara? Delighted you found me. Thank you for the tip. We did wonder if it might be a gluten issue. I love bread and have always eaten tonnes of it but it might be worth cutting it out for a while to see what happens. 👍
@@billrogersburp Hi Bill, its Arabella, Ara for short. Anyway, I suggest firstly cutting out wheat and just seeing if that makes a difference. If it does not then ( start eating wheat again &) get tested for celiac’s disease before you cut out gluten completely. Wheat is a common allergy, the protein within wheat is gluten which is contained within many other grains. People with celiacs disease are unable to digest the protein in gluten. Once you have cut out gluten from your diet the gut repairs itself and there is no way of telling if you have celiac’s disease or not . The first test is a blood test, I think for antibodies, after which you then have a biopsy of the colon for confirmation of the disease. I suffered from extreme diarrhoea, allergies and skin rashes before, late in life, a family member mentioned that we had relatives with celiac’s disease. For years I wasn’t tested because I was unaware it ran in my family. Hope you find the answer to your problems, best wishes, Arabella
@@oilfreeara277 Thank you Arabella. That's a lovely name. I am experimenting with food types and I did a food intolerance test as well. Sadly I love my bread and that may be a factor as you say. 🤔
Hi there I've just tuned in from Melbourne 🦘 I'm sorry to hear about your troubles my lovely man.....I really have to ask why is there a red area around your eye and nose area .....sending love and cheers 🙏🍀
Hi Jan! I'm delighted tyou found my channel. I'm always amazed at how many lovely people there are around the world that are interested in watching my videos. I am afraid my schoolboy sense of humour failed miserably this time. I caused a lot of confusion with my red face. It is chalk and it was supposed to be a rash caused by the stoma bag which I was demonstrating as a way to catch your nose drips when you have hayfever. I'm going to have to explain it in the next Vlog! Very grateful for your support 😁❤️
@@billrogersburp oh you ....I thought it was from chemo or something lol....
🙏👏🤣
What if you fast for a while. Doesn't it stop when your stomach us empty?
Yes Bob. What goes in comes out so that is an option I may well try
Hi Bill this is so not right. You will get so weak if this isn't sorted. Surely something can be done more to find out why this is continuing? The tablets are obviously not doing much but you shouldn't even have to keep taking them. Can more investigations be done to find out exactly what's going on? I am so sorry you are suffering so much with this. To make things worse there's your face! That another story!!! Bags are obviously causing an allergic reaction!!! Personal question Bill, but, does Helen find the face bags take the romance out of kissing?!!!! 💋Lol Take care Bill and I do hope you can soon feel heaps better soon love x❤🙏🤗🤗🤗
Hi Kris. I am hoping for another signoidoscopy to see what is going on up there. The colorectal nurses will speak to my surgeon but I think he is on leave at the moment. Many would say the facemask is an improvement! I actually can't get the red chalk off my nose. Helen is very amused by that 🤣❤️x
@@billrogersburp I do hope the procedure can happen soon Bill . I think you are amazing how you are doing your best to cope with the situation. No wonder you have days of feeling so rough. I think it's about time you got a break. It must be really exhausting for you. Do look after yourself lv x 🙏🤗🤗🤗🤗🤗🤗🤗
Get a bidet bro, one of those tushy things online. I've never looked back.
Got one Scott! They are brilliant aren't they? My vlog #22 has a review of when I bought it last year 😊👍
Hey Bill, still here. I hope it’s okay I’m leaving a comment here for you. I’ve been following you since the beginning and I am still following.
I also had rectal cancer, stage 3.
And I feel your frustration over life after cancer. If you’d ever like to discuss what life with an ileostomy is like, reach out to me. Might not be something you’re entertaining, but if you are, I’m living with one. It’s actually good.
Hate that you’re in pain. But also not pitying you. I hated pity during my journey.
I get it.
That’s all I wanted to say. Hope you see this comment. 🙂
Hi Susan. Great to hear from you. I remember you had almost the same issue as me. I think you were a few months ahead of me in the process. So glad you are doing so well! I did have an ileostomy for a year before the reversal in January, so I know what it's like. I agree with you - it really wasn't so bad. I coped pretty well with it and often thought it was so much more efficient than our normal way of emptying out! I was able to eat and drink whatever I liked. I was really in two minds whether to opt for the reversal or to have keep the bag because I had heard nightmare stories about reversals. But my surgeon said I would have to have a colostomy anyway, which would mean surgery to switch the bag to the left side, and that would be complicated by the scar tissue from the original work. Even though I am having some ups and downs, I think I made the right decision to reverse. If my pain issues continue I suppose they might offer me the baga again, so that will be a big decision to make. Anyway, thank you for reaching out to me and thank you for following my vlogs all this time. 😊❤️
It’s so good to hear from you! I just want to extend my support since I can relate to just about everything you say. Keep on keeping on, friend. And I hope you get all of this sorted out and get back to doing all the things you love!
I’ve shared your vlogs with my friends I made during my cancer journey. Everyone thinks you’re great. Thanks for being a bright spot for us all here on TH-cam! I’ll be watching.
🙂
Sorry to hear your still struggling Bill, but now I know that your reply will be when your sat on the loo 🤣🤣🤣🤣🤣
Haha! I'm afraid you are correct Jonathan! 🤣
Living with an incurable disease is so hard, but you just have to live life day by day as it goes by (Cancer sucks)...
@Mark Reeves wow, how can i get in touch with her? this healer, does she cure other sickness
@Mark Reeves wow, found her website, thank you very much for this.
Thankfully Gary I am cancer-free now, so the treatment worked for me. I am just suffering the after-effects now. You are so right about taking a day at a time though.
I'm delighted for you David! Congratulations🎉
🙏💜💜
There are prescriptions better and stronger than Imodium. I think Imodium is great, but only to a point. There is one or two that's a control med, still, iT works. Are there reasons the Dr would not give something else?
Lovely Rosacea Bill, the Nordic in you, oops, Irish?
Eucerin Lotion/Cream (s) would help u alot for dryness.
I haven't been reviewed yet ar the surgeon's clinic. Perhaps that will be the time when some tweaks to medication will be made. I have several moisturising creams which help to some extent on my hands but it's not too bad. My facial blemish is red chalk! Sadly I think I scrubbed too hard trying to getvitvoff and now I have a red nose. Helen finds it very funny 🤣
Yes, I was joking about it being Rosacea.
Pretty darn cool mask actuallly, u just need a Cape😉.
@@oneseeker2 😂👍
Shit Bill that completely sucks, it literally sucks the life out of you or me anyway!!!! I’ve actually also been suffering a lot since yesterday 🤯 I also wouldn’t have been able to get through Easter without loperamide. I’m just curious if you’ve ever tried a day with only potatoes, rice and plain chicken or fish and literally nothing else just to get through a very bad day. It’s is difficult but sometimes the discomfort of eating like that is better than the pain of not 🙏🏻🤞and Botox injections messed me up but it was in a different area so not sure if the same would be true for you❤️🙏🏻🤞🤞🤞
Happy Easter and good luck✌️
So sorry you are suffering Becky. I am pretty much eating that kind of bland diet at the moment. Does seem to help. I really want to avoid the Botox. Thankfully the ointment does seem to be working so hopefully it won't be necessary. Hang in there Becky! Bug hug flying your way 🤗 ❤️x
Did I miss why you have the red face mask around the eyes? Hope you feel better Bill - can you get the stoma back ?
Thank you. It was supposed to be from the mask on my face which scuppered my idea for patenting it. I caused a lot of confusion with this very poor attempt at humour. I will try harder! There is the option to have the stoma back and this is something I hope to discuss with the surgeon when I get a follow up appointment.
@@billrogersburp ah gotcha! Yea given how much pain and life disruption you are going through it seems like a stoma might really help you? I’ve seen other YT folks talk about them and they all seem to say that they work quite well and are pretty easy (you’ve already had one so you would know either way I guess). Good luck!
Feel so bad for you. Can your consultant do anything else to help? This seems to be running on too long (no pun)
Haha! I am hoping for a sigmoidoscopy to see what is going on up there but the surgeon has been away. We also have all the strikes going on at the moment which is probably slowing everything down. ☹
Tried fasting?
I am experimenting with food and finding what affects me. Someone else suggested fasting too. I do think things are improving the past few days anyway so maybe I'v turned a corner now... 🤞
@@billrogersburp Please watch Dr Eric Berg's videos, he interviewed some cancer patients (stage 4) that have recovered fully through fasting/keto protocols. good luck brother!
Have you been checked for C diff?
No...but having Googled the symptoms I don't think I have that. For a start I don't have diarrhoea. I just go a lot..normal consistency. I did mention this to the colorectal nurse a while ago and they also said it was not causing my symptoms.
Why is Bills face red?
Just being silly. It was a poor joke that has just caused a lot of confusion. It was supposed to be from the bag stuck on my face 🤔
@@billrogersburp oh I see haha, thanks Bill, that's even funnier because it was terrible 🤣
@@billrogersburp I didn't think bum issues from using too much toilet paper were actually shown on face..😉(sorry for my bad sense of humour..I'm swedish) Any way, sorry for your bum issues, you're handling it all with such a good spirit though, humour is a lifeline when times are rough.👍Hope it soon will calm down for you! Take care.🌸
@Ann Svensson 🤣 Thank You Ann! Swedish people understand English better than we do! 😊❤️
what happen to face? odear
700calorie Keto diet may help.ask doctor... instead of chemo
Thank you for the tip Chris but I've already done all the chemo and radiotherapy last year
~~❊💚❊~~
❤
🌷🌷🌷🌷🌷🌷🌷🌷💐🌈
🙏❤️x
How can the Dr's help. This is awful one can't live like this
Hi Ildiko. It's not good at the moment butvI have an appointment on Monday with my surgeon so hoping to get some help then. 🤞❤️
@@billrogersburp please let us know what the outcome is you need quality of life for you and your family. You're a good looking man.
@@ildikoparker920 Aww Ildiko! My face has gone red again (and it's not the silly chalk this time!). You are very kind. I will certainly keep the updates coming. I have a meeting tomorrow with my surgeon so hope to have a new Vlog out after that with news ❤x
@@billrogersburp hey Bill what's your news
@@ildikoparker920 Hi Ildiko...have you seen Vlog #92 & 93? That's the latest. Basically, had a sigmoidoscopy on Sunday and waiting for biopsy results, but all looked fine . Been pretty good lately! Thanks for asking 😊❤
Try not having butter, milk or sugar😩
I'm experimenting with food. I also did a food intolerance test to help.
Praying for a healing for him amen try cannabis oil and thc for cancer and worm medicine for pigs or dogs to kill cancer amen
Well thank you Debbie. I am grateful for the advice and for your prayers 🙏
What happened to your face?
It was supposed to be from the mask on my face which scuppered my idea for patenting it. I caused a lot of confusion with this very poor attempt at humour. I will try harder!
Oh ok I missed that about the mask. It almost looks lie a sun burn.
Your comments were turn off on your latest video so that is why I am posting this here. Hi Bill. I came across your Vlog and saw where you were trying to come up with some ideas on how to get some better nutrition into your body in the form of vitamins and nutrients. When I was really sick, I used a product called Maximum Vibrance. It contains all of the nutrients that your body needs and is healthy, unlike sugary Ensure. I will admit it’s not the most best tasting, but it does come in a couple of flavors. I used to mix mine in a plant-based vanilla flavored protein powder with some avocado to give it a thickness.
Another thing that you can also look into that would help with your immune system is beta glucan. Many patients who go through cancer have benefited from using beta glucan because it does not interfere with most cancer treatments but of course I would discuss this with your doctor first. The best brand that I have found out there to use is by a company called Better Way Health.
And finally I’m not sure if your doctor is wanting you to get more good gut bacteria into your system. If so there is a product called VSL #3. They have a grade that you can order that is below prescription strength or you can talk to your doctor and see if your doctor can get you a prescription for it. Just make sure the order directly from the company because they know how to pack it proper because it needs to stay cold so that the bacteria that you will need to use will stay alive. I hope these suggestions help and I hope you feel better soon so you can get out there and do the things that you enjoy doing. 🙏🏻🙂
Hi Normandy. What a lovely name you have. Thank you for taking the time to send me such a helpful message. It's great advice and I will do some research on the products you mentioned. I just checked into your profile and can see you are a well-established author and I viewed a few of your video links to TV interviews etc on bullying. I don't know your story yet but I'm intrigued to find out more so I will dip into more of your videos. I saw that you were a victim of bullying and how emotionally destructive that experience was for you. To have become the strong, successful person you are today is to your huge credit, so well done! Thank you again for your kind support 😊❤️
Huh
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Sorry Bill. I did not know and was unaware of what was going on..therefore the huh
@@rickhenk8363 That's OK Rick. I just didn't know how to reply to you 😊