Very Powerful Rapid Recovery- Miraculous Experience with ME/Chronic Fatigue Syndrome. NO MORE SYMPTOMS The symptoms were: 1. Severe Small Fiber Neuropathy, 2. Constant Fatigue, 3. Not able to stand up and walk more that few steps for almost 2 years, 4. Heart Function was at 20-30% 5. Brain Function was severely affected 6. Two hours of sleep maximum due to sevre constant neuropathy pain 7. Zero stamina to do anything 8. Muscle weakness and pain 9. On the Opiods and Morphene for very long time 10. Infections in Kidney and Pancreas 11. On Gabapentin for 2 years. Finally the Solution Came from a Scientist who has developed Two Novel Nano-BioAcive Oral Capsules - In ONE WEEK most of the above TEN symtoms are GONE. Now walking for 5 miles a day - No fatigue - No Nerve Pain - Brain Function Normal - Heart is recovering - Sleeping for 8 hours or more. Amaging MY LIFE IS BACK.
The world requires us to do much more than we can handle because of constant $ pressures , Its been getting worse for the past 50 years in the US with no end in sight . That equals enough anxiety for all ! 😢
I'm in my late twenties. I had a severe burnout and injured my hands at my previous job from overworking. I'm not sure if the reason why I still feel tired and find my new job difficult (despite being a lot less demanding than my previous one) is because I never fully recovered from my burnout.
To those that have had others create problems in your life. Be happy you are not like that and contribute to the balance of a better world. Give yourself that permission to be happy and it will hopefully give you a calmer clearer mindset and a bit more energy while you try to figure out the rest. I am not talking to the others because i dont care to. It is a bit like having the flu at home in bed vs having the flu at work while running a marathon...There will hopefully be a bit of a healing advantage and faster recovery to being happier. Know that you have invisible friends unknown to you in the world that truly want you to heal...
I've had 2 burnouts so far and I am currently in the 3rd...i caught myself somehow in time before it cost me my carrer and I'm JUST starting it. it's hard...I just want to sleep all day and if I do I beat myself up because I could've been productive instead of sleeping I think that's the saddest part of it all. I'm really belitting myself because I chose to rest? To all of those going through burnout, you are not alone. ❤️🩹
I got CFS badly, people notice as well, i started taking sleeping pills and it didnt fix it. I am not getting energy from nothing, the world sounds too loud everywhere,y eye balls feel like sagg wet socks, i am breathing like i have smoked cigs all day foe years, my hair is turning super white faster, i ran for coffee and chocolate so much that i gag thinking of having it now, i am getting 3 hrs of sleep, staring in space like a robot on stand by is the only time i get any relief from this burn out.
I'm glad she recovered from her burnout, but it's harmful to equate burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome, also known as ME. Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis. If exercise cured her rather than making her worse, she didn't have ME. Please don't take away from this talk that people with ME/CFS haven't tried hard enough and just need better nutrition, walks and yoga. Trust us, we've tried it all.
I've been burnt out since about 9th or 10th grade, maybe even sooner than that. The problem is that we have cancer as a society, and it has gone systemic. That's why seemingly nothing can be done about it. America essentially ended as a nation with a cohesive identity and distinct culture around 2007. The last 15 years has been nothing more than fighting over the scraps, and attempting to prop up the illusion of a growing economy through artificial wealth creation by printing money. This is how civilizations die. We are dying. We have terminal cancer. The smartest and wealthiest people I know are trying to extract whatever wealth they can from the system, and building houses in rural areas because they know what's coming.
thing abot the depression diagnosis is tht sure depressed ppl feel tired but not fatigued, and depressed ppl respond well to exercise wer as ppl suffering frm cfs dont.
It's funny how I fit this so well. I ended up stumbling onto moreplatesmoredates on TH-cam and that's when I realized something was wrong with my hormones and got tested and was told I was fine. Spoilers I wasn't. I did my own research and discovered that the hormone levels were low normal. I went somewhere else and I I qualified there. I improved but regressed again, but not as bad. Btw I was told low hormone levels we okay because I was in range. I wonder how many people here have been misdiagnosed because they are in range but low. Keep pushing, the solution is definitely hidden somewhere in blood work.
I completely burnt out for the 2nd time in mid-2019. I am still struggling to recover 4.5 years later. I have daily chronic exhaustion & quite bad cognition issues with basic functions like concentration & memory. If I don't pace myself by only taking on one very low-stress thing at a time I crash into hypersomnia & can sleep for 16-18 hours a day for up to 3 weeks when my exhaustion is really bad. I'm 38 & have only recently been able to manage daily domestic duties & leaving the house once a fortnight to do errands. If you feel yourself starting to burnout (exhaustion, issues with cognition, cranky/snappy, poor sleep, poor diet, not giving an eff about anything/anyone) do an audit of your life asap & try to cut out, delegate, or share any work or personal tasks/duties you can. If that means you have to go on stress leave from your job or uni &/or look for another job or change degrees, then do it before you get to the point of not being able to get out of bed because your system has shut down.
This is quite damaging. Some people do recover. Saying hot and cold showers, diet and a positive attitude cures m.e. is putting those with severe, unrelenting symptoms in an 'youre not trying hard enough' box.
Absolutely. Insulting talk equating her burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome. Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis.
One of the biggest lessons life thought me is when to step back, and when to rest. It’s okay to feel bad we are humans being what we have to learn is to take care of ourselves. When we need to rest, the recovery of the energy of a chronic fatigue takes so much time to recover and if you have chronic fatigue you have be patient with yourself, small positive steps in order to recover the energy you have to recover. The love that you have for yourself is the reason, the magic 🪄 that is going to push you forward. Helping people feeds your soul, it’s a magical feeling that increases your energy, feeds your soul and helps you to recover the energy that is lost. Be patient, small positive steps with love and understanding your heart and soul makes the inner light to start shining.
Linda Jones' talk on recovering from chronic fatigue is truly inspiring! Her journey from burnout to brilliance offers so much hope and practical advice. Thanks for sharing your story! 🌟🙌
I'm right with this lady. I was a career military officer, pilot, and a very busy go-getter type of person. I was in an exercise in 2019, and got pretty sick during this extremely stressful time. I pushed through for the remaining 3 weeks of the exercise, and just hoped to go home and start to feel better. I got over the virus - whatever it was. But I have never felt the same since. It's an effort to get out of bed everyday. I have a very "fuzzy" head. I get disoriented. I can physically feel my weight, and it just becomes hard to get through the day. Some days, it physically hurts just to move around. But now it's gotten to where I feel like everyday is an absolute struggle to just get through. The worst part of it is that no one seems to believe me. My wife thinks it's all in my head, and thinks we'll go back to being world travelers any day. I cannot even survive the work day. The military diagnosed me with, basically, hypochondria upon retirement, but never looked for a real reason. I KNOW it's not in my head. I have data now too, with my Garmin telling me I have the HRV of an 80 year old. I went from being a high-level officer and flying dignitaries on a weekly basis, to barely able to do school work online at my home. That transition happened in only 4 years.
My decline was gradual too but faster, over 6 months to where I was essentially bedridden. I had to advocate for myself, no doctor would believe me despite 7 trips to ER and an overnight stay for heart issues. Like you they thought I it was all in my head and threw anxiety meds at me. After digging and digging, I discovered adrenal fatigue. I had to do private bloodwork to prove it to Western doctors and finally got the help I needed. Research the DUTCH test bloodwork and consider adding this to your resources. Also look for a functional medicine doctor to support your recovery. I did get better, but am now having fatigue issues again. I may have to go back to getting the test done again. Just know that people out there know what it's like and believe you. Wishing you recovery.
@@hshfyugaewfjkKS I found an allergist that did the Dutch test, and found one of the antibody levels was through the roof. Haven't been able to get it back down yet, but at least there's a goal.
I found that Thorne Niacel helps me a great deal. I think the problem is in the mitochondria of the cell, and this product helps more than anything that I have tried so far. I take two on an empty stomach. I think of energy like a bank account, we only have so much energy like money in the bank. When you overspend your energy, it is like having an overdrawn checking account and there is a crash. This video really doesn' t touch on any solutions. However, we have to be our own doctor and try different things. The medical profession lacks solutions for this condition.
@@josephsacco5716 Thank you for your reply Joseph. You are very knowledgeable about this condition. What sources of information/books have been most helpful to you? I am interested in learning as much as I can. I am seeing a functional medicine doctor. She recently suggested malic acid due to severe post exercise soreness which has been very helpful. Niacel by Thorne was my idea, and that supplement has really helped a great deal. Dr. Teitlebaum recommend D-Ribose, and I didn't feel it did anything. The L-Carnitine is sometimes used in cases of thyroid storm/ high thyroid, hormone, I was afraid to try it thinking that it might block thyroid. The average doctor is really clueless about this condition and you see disturbing comments by people who have completely lost their quality of life. I admire "out of the box thinking" and try different supplements- PQQ may be next. Have you tried that?
13 minutes of hearing what I already know, since I'm going through it but in a flat, monotone voice. And the solution was 'keep going'. Probably one thing that leads to my lethargy is trying to find advice and solutions and coming across videos like this.
What about those of us that were bed bound for 10 years, did the smoothies and walking and got better for a couple of years, then find themselves back in bed thinking it’s a crash. But it has been almost a year now and I feel like I’m right back at step one. Glad she’s better but it felt like a kick in the teeth to me.
All we do is work. Non stop. We have been conditioned to believe wealth comes from material things and in order to do that majority of people just work and party in hopes that one day they will feel fulfilled... Most of the working and middle class drop like flies these days, whether it's some sort of diseases, break down or just simply throwing it all away to go on a different path. We need balance so much. We need to look after our planet and each other.
@@katec9893 its a grace from god that you are able to not work at all for so long without being homeless... xoxox im glad that at least you had that, i am in the same position, but i have to work at least part time to afford food and other basic necessity, luckily i have a roof over my head free of charge. i also wonder how other people do it, its a living nightmare, im glad im not alone
My Aunt has CFS and she's gone to every holistic practitioner, she's done all the diets, all the meditation but it gets worse the more she tries. Rest is the best thing for her, when she has rest she's able to do things like go to the shops once a week, a walk around the block, do light gardening - whenever she's been told to push herself more is when she has a flair up.
Check CFS-health program or the Gupta-program. Those are programs designed by people who experienced the disease by themselves and they understand what they’re doing. They already helped hundreds of people.
I don't agree. I do mantra meditation daily, its at the core of my healing model. Once peace is harnessed, everything else falls into place. Hope this helps someone.
I so identify. Sometimes I'll push for several days, then I KNOW my body will need twice as long to recover. My "recover" means my mind and body r re balanced and I am able to do some things again. I went from a super A personality to the point of physical breakdown w stress and a heart attack. Then to Migraines 24 days per month plus my antibodies fought w my healthy cells. So, I'm taking extra care w my doctors and different treatments. Pleased to say, approx 6 migraines per month now, heart is doing ok, and I manage as much as I comfortably can. Seems to be working pretty good although I must sleep 12+hrs per day. I'm listening to the body now!!!!
Wow aww thankyou So much ☺️ i too' felt the same way of taking my life but if not for my children and friends, I couldn't do that ~ So now it seems like a long walk of learning about chronic fatigue Syndrome, but yes I was also that person too' always on the go & people pleasing too Thanks so much for giving this talk..it really did help me and got me to fully understand 💖 hugs to you 😇 gina 🙋
Same here. I lost 3 years of my youth to CFS. My vision sucked. Everything looked foggy. I couldn't even walk for a block. Ringing in my ears. But we don't give up! Help those who are in need. Bounce back friends!
I wake up in the night with panic attacks and anxiety, even if I adhere to a strict routine / don't use blue light before bed, stay active. I've noticed my reaction to certain work-related triggers are WAY more elevated than they should be. I'm just trying to work out what's wrong with me so I can get better.
Trembling, lightheaded, deep fatigue down to tbe bone, vertigo, eye problems,body pain and weakness etc. It is like someone grabbed all the diseases into one and gave it to us. I do feel like i relate to the poison mentioned here...
@@Neoyorchese I used to be too. You dont need to be. Look up neuroplasticity, DNRS program,or Dr Joe Dispenza. His book Breaking the habit of being yourself. You are not alone and there is a way out of it.
Your symptoms sound similar to mine at my worst. Turns I had had gotten mold toxicity from living in water damaged apartments. Maybe look into it if you haven't... that and Lyme are such big culprits. Dr. Jill Crista's info is very good.
That's great to see Rebecca, I am so happy to hear that you have come so far on your healing journey, Linda has a great charity called 'Salus Fatigue Foundation' that may be useful if you need some additional support or would like to speak with like-minded people. Sending you lots of healing x
I have also cronic fatigue syndrome 😔😥😭. It's started when i was 15 years old now i am 18 yrs but no changes . I m facing bad sutitation every day. It's so bad to facing this problem.
@@meenakshigupta3819 how do you know you have cronic fatigue ? If you have any fatigue you should reduce watch screen . dont do any activity that your sporm came out. And sleep enough
Beautiful message. I’m suffering from CFS, anxiety, PTSD, & bulging discs from a car accident. I feel burnt out most of the time because of muscle pain & weakness. My quality of life has suffered and I frequently push myself to complete daily tasks. I hope to recover like this woman so I can accomplish my life goals
Plz add detox green vegetable or herb juice in your day 2 times at least. Eat plenty of fruits atleast 800 gram a day. Eat raw salad vegetable 400-500gram a day. Nuts & seeds at least 40-50 gram each day. Yoga 1 hr a day atleast. Stop non-veg compny pack food oil gluten food etc. 5- 10 month you will reverse your diseases. Your body will replace your old cell blood with new cell which give you healthy life. Plant based diet will heal your body brain to toe. Just belive in it & keep continue.❤❤💐
You can't take away the experience of one person. She recovered and well done!! She also got to tell her story through TEDx a respected medium. But that's not the whole picture. There are many of us who are doing the recovery work, and more, to recover but we are not making the breakthroughs we desire. In storytelling terms, we're not ready to get up on the TED stage and proclaim our story complete with a happy ending.
no reason to go easy and be nice. she did not recover, she learned to lower her expectations and do appropriate exercise. Her model of cfs is one of patient fault. Activities and lifestyle are not consistent across cfs patients and thus falls in with all the other theories of cfs causes. if an actual, real recovery is possible from cfs you won't find out about it through youtube. people will light themselves on fire in public to spread the word and celebrate such an occasion. I will, at the least, be running a marathon with a megaphone in hand.
@@schpoingle I recovered 100%. I addressed my trauma’s and unhealthy coping mechanisms(like she tells in the video; perfectionism, control, living on adrenaline, worrying, rumination etc…) It’s about changing the narrative believing you will recover and forcing your brain to change and stop producing all those bad stress chemicals. Our brain tries to protect us, because it thinks everything is unsafe. If you can let it feel safe, and tell your brain it’s safe to feel, let go of control, let the symptoms just be. It all fades away! It is really hard work but 10000000% worth it. Listen to nicole sachs podcast she explains it very well xxx
Namaste Pranic breathing is a short exercise as below and may improve energy levels Inhale through your nose for six counts. Hold your breath for three counts. Exhale through your nose for six counts. Hold your breath for three counts. This 6-3-6-3 breathing completes one cycle.
I'm a 40 year old male I experienced moderate to severe chronic fatigue syndrome from the time I was 25 to the time I was 35, it's a horrible frustrating disease. Extremely tired, couldn't exercise without feeling worse, vertigo, poor memory, trouble formulating sentences and speaking. I currently take about 15 supplements every day that help me lead a fairly normal life, mostly natural anti-inflammatories, antioxidants, antiviral, and mitochondrial supporting supplements. I'm gluten free, cannot drink anything carbonated, coffee and this includes decaffeinated coffee, pretty sports drinks, and most beers. I'm completely caffeine and nicotine free in fact if I touch caffeine even 10-15 mg it gives me anxiety now makes me feel like I'm going to jump through the roof. And around 30 years old I was taking two 200 mg pills of caffeine everyday to stay awake, that's probably the equivalent of a few large coffees from your favorite gas station. I think the anxiety from caffeine that I currently get is a sign that my body is healthy and now responds to caffeine whereas 10 years ago I could drink a pot of coffee and not feel anything. Don't give up. What I once considered my one good day per month is now what I consider my one bad day a month, most days I feel like I'm 18 again and I never thought that would happen.
@@5599-b3h I'm currently taking Calm Zone Magnesium at bedtime. Zinc, D3, Vitamin C, Ubiquinol, True Niagen, Chlorophyll, Turmeric, Tart Cherry, Decaffeinated Green Tea Extract and Korean Red Ginseng (KRG Prince Gold) I introduced one supplement at a time over several years, probably tried 50 different supplements and these are the ones that made the cut. I avoid caffeine from drinks or chocolate or any other drinks with Ginseng. My body is constantly changing, I can no longer tolerate caffeine, last night I tried to eat a chocolate bar, I was tossing all night and had anxiety this morning after taking my supplements. Most of my supplements are the vitamin shoppe brand.
@@Kentucky-bz6pg Thank you for the info! Do you take all of this every day? I get the same side effects from caffeine, that and a hang over, sometimes during the same day, seems worse with m.e.
@@5599-b3h lately it seems like I have to alternate between turmeric and tart cherry, those two with KRG and Green Tea Extract can make me anxious and then I lean towards a panic attack, which is far from my natural state. The vitamins and minerals have never caused any issues, I love the Ubiquinol. I've also experimented with D Ribose, a very small dose does wonders for my energy but too much can cause anxiety for me, it seems like the D Ribose (I've found other people online mentioning that this can cause anxiety) and Turmeric don't mix well together. I'm constantly playing with dosage, and lately it seems the dosages are going down because my body is responding better.
@@Kentucky-bz6pg Why do you think the tumeric or tart cherry are having that effect? Did u find others also have this issue? Have you noticed if any one supplement helps with energy levels on its own?
Life has a way of pacing you without your consent. There's a whole difference between doing and being and if you're doing too much your body will force you into being restful.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending your aunt lots of healing, there is a great charity founded by Linda called Salus fatigue foundation which is all about pacing and balance.
As a doctor leaving i am happy to see this young lady recover. The goal is to be happy. Stress in any profession is not worth it if you do not love what you do and anyone violated you for doing it. To the military officer and others below, i believe you. Long covid is real. As are many other entities viral and others that require a medical workup before saying it is just nothing.... You have to rest and find happiness in your day and readjust your limits until you get better which is part of a hopeful mindset. I started meditation this year and noticed that has helped with my own mental state a bit. Doctors definitely dont have all the answers. Long Covid is very real though. So is the Singularity and all the other programs going on underneath the surface that will likely affect the bottom 80 to 90 percent of the population and those not in control eventually.
I have been dealing with chronic fatigue for about the last 5-7 years. I finally caved and got treated for adhd and my medication is the only thing that gets me moving. Without it I’m basically useless besides the first 1-2 hours when I first wake up. It’s the only thing that has helped me
I had it bad for about 2 years straight. Slowly I got better, but would have recurring relapses every couple of years at first that lasted about 3 months each. Then the relapses came with less frequency and less severe. Now I'm currently going through a relapse (hince searching things on CFS on TH-cam) and it has been about 8 years since my last relapse. You think you are completely over it then it creeps up on you unexpectedly, reminding you it is still in your system. From experience I know I will pull through this relapse too. I guess I am fortunate to only have mild relapses between years of feeling great because I know so many people never fully recover and feel bad all the time. All I can say is I take care of myself and I tell myself if other people can "recover" from CFS I can too. I try to keep a positive attitude. I hope this helps and pray you long time sufferers will find some relief as well.
@@douglasvancier7683 The ketogenic diet is no carbs and no sugars. Look at Thomas DeLaurer (or my last video). People used to think it was a fad, but it's not. It feeds you energy. It offers great health to millions and the lifestyle is growing.
My CFS was triggered by 2 or 3 years of chronic and unceasing stress, tension and anxiety. This is the fourth year I have been suffering from this condition. I am young; i can’t study or work. Financially I am dependent on my parents. My symptoms include Brain fog, unending fatigue. Besides CFS, i suffer from social anxiety, depression and i get stressed very easily. Life is not fair. At the moment I just don’t know what to do with myself, with my life.
This is a good start Abdul, listen to people that may be experiencing similar issues you are. It’s the first step, you did it! As you listen, try to relax your mind and understand-you are not alone in this. Hope Spring will bring you some sunshiny days so you can feel better.
Did you get checked for nutrient deficiencies? All of them? So many of them can *cause* cfs. Most people dont realize cfs and depression are often symptoms rather then causes themselves
chronic fatigue syndrome and fibromyalgia is caused by pproblem in the production of ATP (adenosine tri phosphate) you see in every cells in our body there is a mitochondria that is the pwer house of the cell which produce energy for maintanance of the structural integrity of the cell, SYNAPTIC SIGNALING PURINERGIC SIGNALING, DNA AND RNA SYNTHESIS , ACTIVE TRANSPORT AND MUSCLE CONTRACTION. THESE ARE ALL IMPORTANT PROCESSES AND FUCTION IN OUR BODY TO MAINTAIN HOMEOSTASIS AND ALL THESE REQUIRES ENERGY IN THE FORM OF ATP IF OUR CELL IN OUR BODY DOES NOT PRODUCE ENOUGH ATP THATS WHERE THE PROBLEM START THATS WHY YOU HAVE NUMEROUS SIGN AND SYMPTOMS THAT CANNOT BE EXPLAIN ,LIKE UNEXPLAINABLE ORTHOSTATIC INTOLERANCE, HYPER ALGESIA AND ALLODYNIA, VERTIGO NUMBNESS AND TINGLING SENSATION ON DIFFERENT PARTS OF YOUR BODY, FROZEN SHOULDER MIGRAINE, ALLERGICAL REACTION THAT HAS NO BASIS,IRRITABLE BOWEL SYNDROME ALL OF THESE ARE BECAUSE OF LACK OF ATP PRODUCTION IN OUR BODY.
You have clearly done your research. You should be the one to give the Ted Talk. Thank you. No 2 cases are the same- of course this goes without needing to be said as well as the path to healing will be the same. This Disorder impacts EVERY system in the body- old Viruses, new Viruses, new infections, inflammatory processes, stress, toxins of all sorts, emotional distress ALL Keep the body from achieving Homeostasis. It's a vicious cycle. When you are trapped in it; the recipe to find a way out is daunting. People need to research and find their own path to try to help THEIR individual situation.
*Was she misdiagnosed with Chronic Fatigue Syndrome?* She specifically says she was able to increase her exercise which is the opposite to the post-exertional malaise that is part of true Chronic Fatigue Syndrome. CFS/ME doesn't manifest in the same ways in everyone who has it, but it does have some consistent criteria and Post-exertional malaise is one of them. I've had this disease since 1976 and with each subsequent illness, car accident, trauma, mold or pesticide exposure, it's gotten worse. I've done all she did because I too am a driven ambitious person like she is, like _most_ people who get CFS/ME are. None of it has helped me; in fact the things that worked for her don't work for most people with CFS/ME. Certainly not graded exercise. For most people, exercise makes it _worse._ So, was she misdiagnosed?
I'm wondering the same. Some forms of depression can have very similar symptoms as CFS. Especially considering she was able to increase her exercise that does not sound like CFS to me. Sounds like she had a major depressive episode and eventually recovered.
I am so sorry to hear of your troubles, that's an interesting view to have. I feel that Linda explains that she cut down to no exercise/movement for many, many years and now when she does say exercise she means more gentle movement. Exercise doesn't have to be running a marathon or lifting weights, it can be gentle yoga or thai chi as well. Thats what I have found helped me a lot. Its all about pacing and listening to your body. Sending you lots of healing, take care.
Im a 33 man, i dont know if its severe depression or chronic fatigue syndrome that i have, all i know is after my heavy burnout 1 year ago after years of taking way to much stimulants, i slept like 14 hours a day for a whole year, and now its down to 10 but i cant work more than 2 days a week, any more and i will spend the whole day after sleeping, luckily my boss and my parents are very understanding, they can see it. any stress is too much, my whole body feels like its shutting down and everytime i try to push myself my whole body shuts down, i have to be in constant dark or i get extremely overwhelmed by the light. Ive lost most of my hair after my burnout. i cant workout too much anymore. i cant do anything i used to do. i was already a pretty depressed person but this feeling is eating me alive, like my whole body is rotting from the inside and its starting to show so much, i dont recognize myself anymore.. i feel like this tired blob of flesh. i hate the way i look, and even worse the way i feel. I feel so heavy, so tired, like a 90 year old, my parents are 70 years old, im only 33 and they are much more active than me. i cant do much , its a mix of extreme fatigue, anxiety, depression, im just suffering all the time, and wish it would just end. im praying for a quick death most days. Its excruciating, and i pray to god everyday to deliver me from this pain, when my parents are not here anymore i will sure put an end to it. i still manage to do a walk everyday and do light therapy and take multivitamins and antidepressants... but i feel completely completely lost.
Check out fasting, glandulars (desiccated bovine glands), herbal tinctures, fruitarian diet, raw carnivore diet. Adrenal glands are involved in CFS. Check out Dr. Robert More’s channel, Robertmorsend. He is a naturopathic doctor.
I had severe fatigue for the first 40 years of my life. I then found out that I had an intolerance to the Corn protein (High Fructose Corn Syrup , Corn Starch , etc.) Many people have a delayed reaction to many of the ingredients in processed foods (Soy , Dairy , Gluten , etc.) Look into Hidden Food Allergies (Intolerances) or talk to a Doctor in Integrative Medicine.
It's amazing to hear about your recovery from where you were. Amazing. Mindfulness and meditation really helped me out. Recognizing negative thought patterns and changing them over to a positive affirmation has been doing wonders for me.
I'm a senior in highschool and for the longest time I've just lived my life feeling incredibly pathetic and empty, and I had a really hard time understanding where this even came from because it felt so sudden. Hearing you talk about the onset made things so much more clear to me. I went through a period of extreme fatigue that got better but never completely left, I lost the energy to keep up with most of my social life, then I started getting sick, one awful cold every single season for the past year and a half, extreme executive dysfunction and constant need for immediate dopamine. I have such a bright future, I have to take the steps to fix this before it's too late
I was the same as you, noticing the uptick in symptoms as a high school student. I was led to believe that "everyone is this tired" to the point where I was devaluing myself, and my motivation, day after day after day. I internalized the idea that if everyone is feeling this poorly but is still functioning on a high level, then the issue is with me. I must be lazy or unwilling to push through. Well, turns out, my fatigue wasn't normal. Not even close... Sadly, I didn't find that out until quite a few years later, and by that time I had done my body in. I had pushed so much that systems were beginning to slow down. To this day, I feel like a car that's almost completely out of gas, that's desperately limping to the gas station. All systems are affected. None are spared. One of my greatest flaws is my smile. I have continued to smile day after day and year after year, making it less than evident that I am extremely unwell. The small amount of time I'm able to be around others, whether it be at church or in the grocery store, I put my all into appearing normal. Why then, am I surprised when almost no one believes my situation when I tell them? I don't wish to look sick, but the reality is that I'm quite sick, and have been for a long time. I don't know what the answer is or where to go from here, especially with no financial resources. For the time being I just try to make it through each day, letting others who are enduring similar circumstances know that they are not alone.
hi I got cfs in highschool and i’m sorry but you can’t “fix” it. you can manage it and hope you are part of the 10% that miraculously get better like this woman clearly was because no amount of walkies and smoothies will fix brain chemistry
Bring it on and years later, I've only realised I was just trying to prove my worth and abilities always with the belief I had to work harder than anyone else.
Yep that's me! My burnout expressed itself with crippling autoimmune Rheumatoid Arthritis. I lost everything became homeless and have tried everything under the sun to heal but I still struggle with the fatigue 7 years later...
Goodness - this resonated with me when you said that your brain shutdown and you couldn’t string a sentence together! I have just experienced that and my memory went and I had to take a month off work to recover! Time to think of me and slow down.
Me too. So tired of all the people saying "but come by anyway, it will be fun and get your mind of your symptoms" or "how about we go for a trip for a week and you can help me take care of my kids, they are so wild you'll have no time to think or feel". I'd rather chew my own leg off than doing that. My dream atm is being able to get out of bed in the morning. People just don't get what this is. They have no clue.
I cured myself of a 10 year chronic fatigue by doing a gut reset course and then going on a keto diet and taking digestive enzymes with Bernadine hydrochloride in.
@Steve James Can you please please share more about your gut reset course, any link or website or how you did it, anything that can help, please share. 🙏
@@harmonic432hz9 at some points yes, I took everything I had to do a weekly food shop. I spent the first year of lockdown in bed more or less, I'm back in construction now and I surf weekends but I can feel when it is too much and I have to rest, now and then it feels like it's coming back but rest and an early night really helps
Thank you for sharing your story. I’m currently totally flatlined and have had to let go life as I know it. Bedridden. No desire or energy to do anything. Full stop
Sooo true. I'm still battling since 2009 from severe Fatigue, Vertigo, Tinnitus, Sleep disorder, Nerve ending disorder and Moderate depression. I'm already addicted to energy boosters. But life must go on... Try to survive each day.
I want those 13mins back please
my left ear enjoyed the speech
I wasted 10 years of my life before getting any medication but still have my ups and down it's awful feeling without any energy
I was hoping for more than “I did it for my kids.”
Very Powerful Rapid Recovery- Miraculous Experience with ME/Chronic Fatigue Syndrome. NO MORE SYMPTOMS
The symptoms were: 1. Severe Small Fiber Neuropathy, 2. Constant Fatigue, 3. Not able to stand up and walk more that few steps for almost 2 years, 4. Heart Function was at 20-30% 5. Brain Function was severely affected 6. Two hours of sleep maximum due to sevre constant neuropathy pain 7. Zero stamina to do anything 8. Muscle weakness and pain 9. On the Opiods and Morphene for very long time 10. Infections in Kidney and Pancreas 11. On Gabapentin for 2 years. Finally the Solution Came from a Scientist who has developed Two Novel Nano-BioAcive Oral Capsules - In ONE WEEK most of the above TEN symtoms are GONE. Now walking for 5 miles a day - No fatigue - No Nerve Pain - Brain Function Normal - Heart is recovering - Sleeping for 8 hours or more. Amaging MY LIFE IS BACK.
The world requires us to do much more than we can handle because of constant $ pressures , Its been getting worse for the past 50 years in the US with no end in sight . That equals enough anxiety for all ! 😢
"At the time I was in my early 30s but I actually felt more like I was 130." I am so feeling that right now.
Me too, but im 29 :(
Sorry about that. What's causing you to feel so old?
@@fitforfreelance Obviously severe fatigue
@@imwatchingonyoutube5024 ok thanks.
me too, 29 and everyone including my uncle who's 85 has 50 times more energy than me.
The key is "What will you change today?"
Root cause that drives patterns is definitely a good start.
I'm in my late twenties. I had a severe burnout and injured my hands at my previous job from overworking. I'm not sure if the reason why I still feel tired and find my new job difficult (despite being a lot less demanding than my previous one) is because I never fully recovered from my burnout.
Thank you I am not just pleasing everyone else any MORE
To those that have had others create problems in your life. Be happy you are not like that and contribute to the balance of a better world. Give yourself that permission to be happy and it will hopefully give you a calmer clearer mindset and a bit more energy while you try to figure out the rest. I am not talking to the others because i dont care to. It is a bit like having the flu at home in bed vs having the flu at work while running a marathon...There will hopefully be a bit of a healing advantage and faster recovery to being happier. Know that you have invisible friends unknown to you in the world that truly want you to heal...
I've had 2 burnouts so far and I am currently in the 3rd...i caught myself somehow in time before it cost me my carrer and I'm JUST starting it. it's hard...I just want to sleep all day and if I do I beat myself up because I could've been productive instead of sleeping I think that's the saddest part of it all. I'm really belitting myself because I chose to rest?
To all of those going through burnout, you are not alone. ❤️🩹
I suffer same!! I am fine one moment another time I become so malaise and weak 😢
Im 3 years in with cfs after covid. .. people get it unless you have experienced it 💯
That's not recovery, that's coping
What a blessing testimony that is. God bless you Sister.
Only Jesus heals, He is our purpose🙌
I got CFS badly, people notice as well, i started taking sleeping pills and it didnt fix it. I am not getting energy from nothing, the world sounds too loud everywhere,y eye balls feel like sagg wet socks, i am breathing like i have smoked cigs all day foe years, my hair is turning super white faster, i ran for coffee and chocolate so much that i gag thinking of having it now, i am getting 3 hrs of sleep, staring in space like a robot on stand by is the only time i get any relief from this burn out.
10 minutes of burning out then yadda yadda yadda got better thanks for coming to my TED talk
I'm glad she recovered from her burnout, but it's harmful to equate burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome, also known as ME.
Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis. If exercise cured her rather than making her worse, she didn't have ME.
Please don't take away from this talk that people with ME/CFS haven't tried hard enough and just need better nutrition, walks and yoga. Trust us, we've tried it all.
Many people have tried all this and then some and have not recovered…
I've been burnt out since about 9th or 10th grade, maybe even sooner than that. The problem is that we have cancer as a society, and it has gone systemic. That's why seemingly nothing can be done about it. America essentially ended as a nation with a cohesive identity and distinct culture around 2007. The last 15 years has been nothing more than fighting over the scraps, and attempting to prop up the illusion of a growing economy through artificial wealth creation by printing money. This is how civilizations die. We are dying. We have terminal cancer. The smartest and wealthiest people I know are trying to extract whatever wealth they can from the system, and building houses in rural areas because they know what's coming.
thing abot the depression diagnosis is tht sure depressed ppl feel tired but not fatigued, and depressed ppl respond well to exercise wer as ppl suffering frm cfs dont.
Good for you
It's funny how I fit this so well. I ended up stumbling onto moreplatesmoredates on TH-cam and that's when I realized something was wrong with my hormones and got tested and was told I was fine. Spoilers I wasn't. I did my own research and discovered that the hormone levels were low normal. I went somewhere else and I I qualified there. I improved but regressed again, but not as bad. Btw I was told low hormone levels we okay because I was in range. I wonder how many people here have been misdiagnosed because they are in range but low. Keep pushing, the solution is definitely hidden somewhere in blood work.
I completely burnt out for the 2nd time in mid-2019. I am still struggling to recover 4.5 years later. I have daily chronic exhaustion & quite bad cognition issues with basic functions like concentration & memory. If I don't pace myself by only taking on one very low-stress thing at a time I crash into hypersomnia & can sleep for 16-18 hours a day for up to 3 weeks when my exhaustion is really bad. I'm 38 & have only recently been able to manage daily domestic duties & leaving the house once a fortnight to do errands.
If you feel yourself starting to burnout (exhaustion, issues with cognition, cranky/snappy, poor sleep, poor diet, not giving an eff about anything/anyone) do an audit of your life asap & try to cut out, delegate, or share any work or personal tasks/duties you can. If that means you have to go on stress leave from your job or uni &/or look for another job or change degrees, then do it before you get to the point of not being able to get out of bed because your system has shut down.
She sounds like the voice from Turok 2
I'm not feeling guilty to take a rest. I'm just too poor to do it.
After fever ..?
P.s will be looking at your foundation to see how it can help me, Thankyou
This is quite damaging. Some people do recover. Saying hot and cold showers, diet and a positive attitude cures m.e. is putting those with severe, unrelenting symptoms in an 'youre not trying hard enough' box.
Absolutely. Insulting talk equating her burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome. Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis.
One of the biggest lessons life thought me is when to step back, and when to rest. It’s okay to feel bad we are humans being what we have to learn is to take care of ourselves. When we need to rest, the recovery of the energy of a chronic fatigue takes so much time to recover and if you have chronic fatigue you have be patient with yourself, small positive steps in order to recover the energy you have to recover. The love that you have for yourself is the reason, the magic 🪄 that is going to push you forward.
Helping people feeds your soul, it’s a magical feeling that increases your energy, feeds your soul and helps you to recover the energy that is lost.
Be patient, small positive steps with love and understanding your heart and soul makes the inner light to start shining.
Excellent talk.❤
Linda Jones' talk on recovering from chronic fatigue is truly inspiring! Her journey from burnout to brilliance offers so much hope and practical advice. Thanks for sharing your story! 🌟🙌
Let's a cure going on this....
I wish I could hear this. I have my volume all the way up and I barely can hear her. I think it is the microphone.
my left ear loves this
You CAN'T recover from ME.
I'm right with this lady. I was a career military officer, pilot, and a very busy go-getter type of person. I was in an exercise in 2019, and got pretty sick during this extremely stressful time. I pushed through for the remaining 3 weeks of the exercise, and just hoped to go home and start to feel better. I got over the virus - whatever it was. But I have never felt the same since. It's an effort to get out of bed everyday. I have a very "fuzzy" head. I get disoriented. I can physically feel my weight, and it just becomes hard to get through the day. Some days, it physically hurts just to move around. But now it's gotten to where I feel like everyday is an absolute struggle to just get through. The worst part of it is that no one seems to believe me. My wife thinks it's all in my head, and thinks we'll go back to being world travelers any day. I cannot even survive the work day. The military diagnosed me with, basically, hypochondria upon retirement, but never looked for a real reason. I KNOW it's not in my head. I have data now too, with my Garmin telling me I have the HRV of an 80 year old. I went from being a high-level officer and flying dignitaries on a weekly basis, to barely able to do school work online at my home. That transition happened in only 4 years.
I’m so sorry. Know that you are not alone. I’m actually scared for my future. God Bless you. 💖🙏
You may have a post viral syndrome. More accepted now after covid, but, this existed before. Wishing you well.
My decline was gradual too but faster, over 6 months to where I was essentially bedridden. I had to advocate for myself, no doctor would believe me despite 7 trips to ER and an overnight stay for heart issues. Like you they thought I it was all in my head and threw anxiety meds at me. After digging and digging, I discovered adrenal fatigue. I had to do private bloodwork to prove it to Western doctors and finally got the help I needed. Research the DUTCH test bloodwork and consider adding this to your resources. Also look for a functional medicine doctor to support your recovery. I did get better, but am now having fatigue issues again. I may have to go back to getting the test done again. Just know that people out there know what it's like and believe you. Wishing you recovery.
@@hshfyugaewfjkKS I found an allergist that did the Dutch test, and found one of the antibody levels was through the roof. Haven't been able to get it back down yet, but at least there's a goal.
@Shaman Of Violence my TSH was high, but T4 was low-normal. T levels were "normal for your age," which means about half of what they should be.
🙏🙏🙏🙏
my right ear is fatigued
i got it when i was 13 it has f'ed over my plans for life 😭
I found that Thorne Niacel helps me a great deal. I think the problem is in the mitochondria of the cell, and this product helps more than anything that I have tried so far. I take two on an empty stomach. I think of energy like a bank account, we only have so much energy like money in the bank. When you overspend your energy, it is like having an overdrawn checking account and there is a crash. This video really doesn' t touch on any solutions. However, we have to be our own doctor and try different things. The medical profession lacks solutions for this condition.
@@josephsacco5716 Thank you for your reply Joseph. You are very knowledgeable about this condition. What sources of information/books have been most helpful to you? I am interested in learning as much as I can. I am seeing a functional medicine doctor. She recently suggested malic acid due to severe post exercise soreness which has been very helpful. Niacel by Thorne was my idea, and that supplement has really helped a great deal. Dr. Teitlebaum recommend D-Ribose, and I didn't feel it did anything. The L-Carnitine is sometimes used in cases of thyroid storm/ high thyroid, hormone, I was afraid to try it thinking that it might block thyroid. The average doctor is really clueless about this condition and you see disturbing comments by people who have completely lost their quality of life. I admire "out of the box thinking" and try different supplements- PQQ may be next. Have you tried that?
cant move today bc couldn't sleep last night, probably bc am on diet? but feel it's such a waste of a day, especially after the bank holiday!
13 minutes of hearing what I already know, since I'm going through it but in a flat, monotone voice. And the solution was 'keep going'. Probably one thing that leads to my lethargy is trying to find advice and solutions and coming across videos like this.
Could not agree more! I hate videos like this. Total waste of time with nothing useful.
What about those of us that were bed bound for 10 years, did the smoothies and walking and got better for a couple of years, then find themselves back in bed thinking it’s a crash. But it has been almost a year now and I feel like I’m right back at step one. Glad she’s better but it felt like a kick in the teeth to me.
7 year's now
All we do is work. Non stop. We have been conditioned to believe wealth comes from material things and in order to do that majority of people just work and party in hopes that one day they will feel fulfilled... Most of the working and middle class drop like flies these days, whether it's some sort of diseases, break down or just simply throwing it all away to go on a different path. We need balance so much. We need to look after our planet and each other.
Frighteningly true.
@@katec9893 its a grace from god that you are able to not work at all for so long without being homeless... xoxox im glad that at least you had that, i am in the same position, but i have to work at least part time to afford food and other basic necessity, luckily i have a roof over my head free of charge. i also wonder how other people do it, its a living nightmare, im glad im not alone
My Aunt has CFS and she's gone to every holistic practitioner, she's done all the diets, all the meditation but it gets worse the more she tries. Rest is the best thing for her, when she has rest she's able to do things like go to the shops once a week, a walk around the block, do light gardening - whenever she's been told to push herself more is when she has a flair up.
I find this exact same thing happens to me.
Check CFS-health program or the Gupta-program. Those are programs designed by people who experienced the disease by themselves and they understand what they’re doing. They already helped hundreds of people.
I don't agree. I do mantra meditation daily, its at the core of my healing model. Once peace is harnessed, everything else falls into place. Hope this helps someone.
Rest is so so neccesary. Has she been evaulated from Lyme and mold toxicity? Check out Dr. Jill Crista
I so identify. Sometimes I'll push for several days, then I KNOW my body will need twice as long to recover. My "recover" means my mind and body r re balanced and I am able to do some things again. I went from a super A personality to the point of physical breakdown w stress and a heart attack. Then to Migraines 24 days per month plus my antibodies fought w my healthy cells. So, I'm taking extra care w my doctors and different treatments. Pleased to say, approx 6 migraines per month now, heart is doing ok, and I manage as much as I comfortably can. Seems to be working pretty good although I must sleep 12+hrs per day. I'm listening to the body now!!!!
TedTalk needs to fix their audio
Started when I was 12, I’m turning 18 soon. 6 long years wasted because I was tired
What about now pls reply ..? how the fatigue started …
Wow aww thankyou So much ☺️ i too' felt the same way of taking my life but if not for my children and friends, I couldn't do that ~ So now it seems like a long walk of learning about chronic fatigue Syndrome, but yes I was also that person too'
always on the go & people pleasing too
Thanks so much for giving this talk..it really did help me and got me to fully understand 💖 hugs to you 😇 gina 🙋
Same here. I lost 3 years of my youth to CFS. My vision sucked. Everything looked foggy. I couldn't even walk for a block. Ringing in my ears. But we don't give up! Help those who are in need. Bounce back friends!
how did you recover
@@samarthpadaki4846 🥲🥲 same question here
How are you now?
How did u recover?
I wake up in the night with panic attacks and anxiety, even if I adhere to a strict routine / don't use blue light before bed, stay active. I've noticed my reaction to certain work-related triggers are WAY more elevated than they should be. I'm just trying to work out what's wrong with me so I can get better.
So important to listen to yourself and your body!
Trembling, lightheaded, deep fatigue down to tbe bone, vertigo, eye problems,body pain and weakness etc. It is like someone grabbed all the diseases into one and gave it to us. I do feel like i relate to the poison mentioned here...
There is a solution to it. Please look up DNRS - neuroplasticity program. Helped and completely cured so many.
@@luciafreitas8529 Thanks for the info. like many, I am desperate.
@@Neoyorchese I used to be too. You dont need to be. Look up neuroplasticity, DNRS program,or Dr Joe Dispenza. His book Breaking the habit of being yourself. You are not alone and there is a way out of it.
I've started DNRS and I can see progress
Your symptoms sound similar to mine at my worst. Turns I had had gotten mold toxicity from living in water damaged apartments. Maybe look into it if you haven't... that and Lyme are such big culprits. Dr. Jill Crista's info is very good.
These comments are really fueling my motivation to do this work. I am doing better now after 7 years and now I want to help others recover too.
That's great to see Rebecca, I am so happy to hear that you have come so far on your healing journey, Linda has a great charity called 'Salus Fatigue Foundation' that may be useful if you need some additional support or would like to speak with like-minded people. Sending you lots of healing x
I was hoping to hear more than “I drank smoothies and went on walks”
lol
Me to...wth?
Same!
me too.. i figured these simple things like listening to your body and pacing really are the only things that help.🙈
Well it’s not a real disease so I don’t know why you were expecting a real cure.
I have also cronic fatigue syndrome 😔😥😭. It's started when i was 15 years old now i am 18 yrs but no changes . I m facing bad sutitation every day. It's so bad to facing this problem.
Same
@@meenakshigupta3819 how do you know you have cronic fatigue ? If you have any fatigue you should reduce watch screen . dont do any activity that your sporm came out. And sleep enough
Beautiful message. I’m suffering from CFS, anxiety, PTSD, & bulging discs from a car accident. I feel burnt out most of the time because of muscle pain & weakness. My quality of life has suffered and I frequently push myself to complete daily tasks. I hope to recover like this woman so I can accomplish my life goals
How r you doing now
Same here, plus loud tinnitus. I hope you recover!
Plz add detox green vegetable or herb juice in your day 2 times at least. Eat plenty of fruits atleast 800 gram a day.
Eat raw salad vegetable 400-500gram a day.
Nuts & seeds at least 40-50 gram each day. Yoga 1 hr a day atleast.
Stop non-veg compny pack food oil gluten food etc.
5- 10 month you will reverse your diseases.
Your body will replace your old cell blood with new cell which give you healthy life. Plant based diet will heal your body brain to toe. Just belive in it & keep continue.❤❤💐
My right ear is lonely. :(
You can't take away the experience of one person. She recovered and well done!! She also got to tell her story through TEDx a respected medium. But that's not the whole picture. There are many of us who are doing the recovery work, and more, to recover but we are not making the breakthroughs we desire. In storytelling terms, we're not ready to get up on the TED stage and proclaim our story complete with a happy ending.
no reason to go easy and be nice. she did not recover, she learned to lower her expectations and do appropriate exercise. Her model of cfs is one of patient fault. Activities and lifestyle are not consistent across cfs patients and thus falls in with all the other theories of cfs causes. if an actual, real recovery is possible from cfs you won't find out about it through youtube. people will light themselves on fire in public to spread the word and celebrate such an occasion. I will, at the least, be running a marathon with a megaphone in hand.
@@schpoingle I recovered 100%. I addressed my trauma’s and unhealthy coping mechanisms(like she tells in the video; perfectionism, control, living on adrenaline, worrying, rumination etc…) It’s about changing the narrative believing you will recover and forcing your brain to change and stop producing all those bad stress chemicals.
Our brain tries to protect us, because it thinks everything is unsafe. If you can let it feel safe, and tell your brain it’s safe to feel, let go of control, let the symptoms just be. It all fades away! It is really hard work but 10000000% worth it. Listen to nicole sachs podcast she explains it very well xxx
@@MelisIliz you guys should alert the mayo clinic! mind over matter! very inspirational.
Mayo Clinic won’t care about a true cure. Only care about treatments and continued inflow of $$$
@@MelisIliz Just reading this comment tricked my brain to calm down and let it go. Thanks for a comment which I was able to relate.
this made me cry this is so me right now ever since I got sick with Covid seems like my fatigue is getting worse day by day
Namaste
Pranic breathing is a short exercise as below and may improve energy levels
Inhale through your nose for six counts.
Hold your breath for three counts.
Exhale through your nose for six counts.
Hold your breath for three counts.
This 6-3-6-3 breathing completes one cycle.
I'm a 40 year old male I experienced moderate to severe chronic fatigue syndrome from the time I was 25 to the time I was 35, it's a horrible frustrating disease. Extremely tired, couldn't exercise without feeling worse, vertigo, poor memory, trouble formulating sentences and speaking.
I currently take about 15 supplements every day that help me lead a fairly normal life, mostly natural anti-inflammatories, antioxidants, antiviral, and mitochondrial supporting supplements. I'm gluten free, cannot drink anything carbonated, coffee and this includes decaffeinated coffee, pretty sports drinks, and most beers. I'm completely caffeine and nicotine free in fact if I touch caffeine even 10-15 mg it gives me anxiety now makes me feel like I'm going to jump through the roof. And around 30 years old I was taking two 200 mg pills of caffeine everyday to stay awake, that's probably the equivalent of a few large coffees from your favorite gas station. I think the anxiety from caffeine that I currently get is a sign that my body is healthy and now responds to caffeine whereas 10 years ago I could drink a pot of coffee and not feel anything. Don't give up. What I once considered my one good day per month is now what I consider my one bad day a month, most days I feel like I'm 18 again and I never thought that would happen.
thanks for sharing, ur quite inspirational. what supplements have you found to be helpful?
@@5599-b3h I'm currently taking Calm Zone Magnesium at bedtime. Zinc, D3, Vitamin C, Ubiquinol, True Niagen, Chlorophyll, Turmeric, Tart Cherry, Decaffeinated Green Tea Extract and Korean Red Ginseng (KRG Prince Gold) I introduced one supplement at a time over several years, probably tried 50 different supplements and these are the ones that made the cut. I avoid caffeine from drinks or chocolate or any other drinks with Ginseng. My body is constantly changing, I can no longer tolerate caffeine, last night I tried to eat a chocolate bar, I was tossing all night and had anxiety this morning after taking my supplements. Most of my supplements are the vitamin shoppe brand.
@@Kentucky-bz6pg Thank you for the info! Do you take all of this every day?
I get the same side effects from caffeine, that and a hang over, sometimes during the same day, seems worse with m.e.
@@5599-b3h lately it seems like I have to alternate between turmeric and tart cherry, those two with KRG and Green Tea Extract can make me anxious and then I lean towards a panic attack, which is far from my natural state. The vitamins and minerals have never caused any issues, I love the Ubiquinol. I've also experimented with D Ribose, a very small dose does wonders for my energy but too much can cause anxiety for me, it seems like the D Ribose (I've found other people online mentioning that this can cause anxiety) and Turmeric don't mix well together. I'm constantly playing with dosage, and lately it seems the dosages are going down because my body is responding better.
@@Kentucky-bz6pg Why do you think the tumeric or tart cherry are having that effect? Did u find others also have this issue?
Have you noticed if any one supplement helps with energy levels on its own?
Life has a way of pacing you without your consent. There's a whole difference between doing and being and if you're doing too much your body will force you into being restful.
This is true, some people continue on even when they are being forced to rest though.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending your aunt lots of healing, there is a great charity founded by Linda called Salus fatigue foundation which is all about pacing and balance.
As a doctor leaving i am happy to see this young lady recover. The goal is to be happy. Stress in any profession is not worth it if you do not love what you do and anyone violated you for doing it. To the military officer and others below, i believe you. Long covid is real. As are many other entities viral and others that require a medical workup before saying it is just nothing.... You have to rest and find happiness in your day and readjust your limits until you get better which is part of a hopeful mindset. I started meditation this year and noticed that has helped with my own mental state a bit. Doctors definitely dont have all the answers. Long Covid is very real though. So is the Singularity and all the other programs going on underneath the surface that will likely affect the bottom 80 to 90 percent of the population and those not in control eventually.
I’m barely making it on stimulants and tons of tea.
Sounds like the regular life of most USA citizens
I have been dealing with chronic fatigue for about the last 5-7 years. I finally caved and got treated for adhd and my medication is the only thing that gets me moving. Without it I’m basically useless besides the first 1-2 hours when I first wake up. It’s the only thing that has helped me
What medication are you on if you don’t mind me asking? I am having the same issues and also have adhd
Thanks for sharing. Not a lot of people admit that their medication helps. It should be accepted and normalized.
This is the weirdest ad for a magic stick.
I had it bad for about 2 years straight. Slowly I got better, but would have recurring relapses every couple of years at first that lasted about 3 months each. Then the relapses came with less frequency and less severe. Now I'm currently going through a relapse (hince searching things on CFS on TH-cam) and it has been about 8 years since my last relapse. You think you are completely over it then it creeps up on you unexpectedly, reminding you it is still in your system. From experience I know I will pull through this relapse too. I guess I am fortunate to only have mild relapses between years of feeling great because I know so many people never fully recover and feel bad all the time. All I can say is I take care of myself and I tell myself if other people can "recover" from CFS I can too. I try to keep a positive attitude. I hope this helps and pray you long time sufferers will find some relief as well.
I'm on keto and I haven't had any bad episodes so far.
@@XeninaCalifornia What the heck is Keto?
@@douglasvancier7683 The ketogenic diet is no carbs and no sugars. Look at Thomas DeLaurer (or my last video). People used to think it was a fad, but it's not. It feeds you energy. It offers great health to millions and the lifestyle is growing.
@@XeninaCalifornia Oh, I follow that naturally. : )
I tried keto twice, each time I get tremendous stomach pain and cramps.
My CFS was triggered by 2 or 3 years of chronic and unceasing stress, tension and anxiety. This is the fourth year I have been suffering from this condition. I am young; i can’t study or work. Financially I am dependent on my parents. My symptoms include Brain fog, unending fatigue. Besides CFS, i suffer from social anxiety, depression and i get stressed very easily. Life is not fair. At the moment I just don’t know what to do with myself, with my life.
This is a good start Abdul, listen to people that may be experiencing similar issues you are. It’s the first step, you did it! As you listen, try to relax your mind and understand-you are not alone in this. Hope Spring will bring you some sunshiny days so you can feel better.
Sounds exactly like me
Did you get checked for nutrient deficiencies? All of them? So many of them can *cause* cfs. Most people dont realize cfs and depression are often symptoms rather then causes themselves
Candina infection could be something worth looking into as well.
TH-cam really be out here deleting comments :/
chronic fatigue syndrome and fibromyalgia is caused by pproblem in the production of ATP (adenosine tri phosphate) you see in every cells in our body there is a mitochondria that is the pwer house of the cell which produce energy for maintanance of the structural integrity of the cell, SYNAPTIC SIGNALING PURINERGIC SIGNALING, DNA AND RNA SYNTHESIS , ACTIVE TRANSPORT AND MUSCLE CONTRACTION. THESE ARE ALL IMPORTANT PROCESSES AND FUCTION IN OUR BODY TO MAINTAIN HOMEOSTASIS AND ALL THESE REQUIRES ENERGY IN THE FORM OF ATP IF OUR CELL IN OUR BODY DOES NOT PRODUCE ENOUGH ATP THATS WHERE THE PROBLEM START THATS WHY YOU HAVE NUMEROUS SIGN AND SYMPTOMS THAT CANNOT BE EXPLAIN ,LIKE UNEXPLAINABLE ORTHOSTATIC INTOLERANCE, HYPER ALGESIA AND ALLODYNIA, VERTIGO NUMBNESS AND TINGLING SENSATION ON DIFFERENT PARTS OF YOUR BODY, FROZEN SHOULDER MIGRAINE, ALLERGICAL REACTION THAT HAS NO BASIS,IRRITABLE BOWEL SYNDROME ALL OF THESE ARE BECAUSE OF LACK OF ATP PRODUCTION IN OUR BODY.
You have clearly done your research. You should be the one to give the Ted Talk. Thank you. No 2 cases are the same- of course this goes without needing to be said as well as the path to healing will be the same. This Disorder impacts EVERY system in the body- old Viruses, new Viruses, new infections, inflammatory processes, stress, toxins of all sorts, emotional distress ALL Keep the body from achieving Homeostasis. It's a vicious cycle. When you are trapped in it; the recipe to find a way out is daunting. People need to research and find their own path to try to help THEIR individual situation.
*Was she misdiagnosed with Chronic Fatigue Syndrome?* She specifically says she was able to increase her exercise which is the opposite to the post-exertional malaise that is part of true Chronic Fatigue Syndrome. CFS/ME doesn't manifest in the same ways in everyone who has it, but it does have some consistent criteria and Post-exertional malaise is one of them.
I've had this disease since 1976 and with each subsequent illness, car accident, trauma, mold or pesticide exposure, it's gotten worse. I've done all she did because I too am a driven ambitious person like she is, like _most_ people who get CFS/ME are. None of it has helped me; in fact the things that worked for her don't work for most people with CFS/ME. Certainly not graded exercise. For most people, exercise makes it _worse._
So, was she misdiagnosed?
Feel the same 😥
Yup agreed. Doesn't sound like she even has M.E.
Yeah I agree. Doesn't fit with the current diagnostic criteria.
I'm wondering the same. Some forms of depression can have very similar symptoms as CFS. Especially considering she was able to increase her exercise that does not sound like CFS to me. Sounds like she had a major depressive episode and eventually recovered.
I am so sorry to hear of your troubles, that's an interesting view to have. I feel that Linda explains that she cut down to no exercise/movement for many, many years and now when she does say exercise she means more gentle movement. Exercise doesn't have to be running a marathon or lifting weights, it can be gentle yoga or thai chi as well. Thats what I have found helped me a lot. Its all about pacing and listening to your body. Sending you lots of healing, take care.
Audio not working on this video any more?
I cant
thank you
Im a 33 man, i dont know if its severe depression or chronic fatigue syndrome that i have, all i know is after my heavy burnout 1 year ago after years of taking way to much stimulants, i slept like 14 hours a day for a whole year, and now its down to 10 but i cant work more than 2 days a week, any more and i will spend the whole day after sleeping, luckily my boss and my parents are very understanding, they can see it. any stress is too much, my whole body feels like its shutting down and everytime i try to push myself my whole body shuts down, i have to be in constant dark or i get extremely overwhelmed by the light. Ive lost most of my hair after my burnout. i cant workout too much anymore. i cant do anything i used to do. i was already a pretty depressed person but this feeling is eating me alive, like my whole body is rotting from the inside and its starting to show so much, i dont recognize myself anymore.. i feel like this tired blob of flesh. i hate the way i look, and even worse the way i feel. I feel so heavy, so tired, like a 90 year old, my parents are 70 years old, im only 33 and they are much more active than me. i cant do much , its a mix of extreme fatigue, anxiety, depression, im just suffering all the time, and wish it would just end. im praying for a quick death most days. Its excruciating, and i pray to god everyday to deliver me from this pain, when my parents are not here anymore i will sure put an end to it. i still manage to do a walk everyday and do light therapy and take multivitamins and antidepressants... but i feel completely completely lost.
Hey Jones. have you you tried alternative mdes like Lions mane mushroon, Baccopa monniera, tukey tail mushroom.?
@@DjImpaq yes
Check out fasting, glandulars (desiccated bovine glands), herbal tinctures, fruitarian diet, raw carnivore diet. Adrenal glands are involved in CFS. Check out Dr. Robert More’s channel, Robertmorsend. He is a naturopathic doctor.
13 minutes wasted with very little help on how to actually recover from chronic fatigue and burn out
Yepp no substance. Just get story.
Chronic fatigue syndrome and fibromyalgia are so hard to live with. No one understands.
I had severe fatigue for the first 40 years of my life. I then found out that I had an intolerance to the Corn protein (High Fructose Corn Syrup , Corn Starch , etc.) Many people have a delayed reaction to many of the ingredients in processed foods (Soy , Dairy , Gluten , etc.) Look into Hidden Food Allergies (Intolerances) or talk to a Doctor in Integrative Medicine.
Bruh!
Going through the worst work burnout I've ever had - all the narcissists and deadlines and excess projects - @#$%* it all and sleep for a year.
When you turn the volume to the max and still can't quite hear ... Am I the only one? :D
Omg I thought my device was broken or sth
I can hear
And only on the left side of the headset
Me too
It’s your device! The video is very loud, I’m watching on min volume
It's amazing to hear about your recovery from where you were. Amazing. Mindfulness and meditation really helped me out. Recognizing negative thought patterns and changing them over to a positive affirmation has been doing wonders for me.
Any app or videos you can tecommend?
I'm a senior in highschool and for the longest time I've just lived my life feeling incredibly pathetic and empty, and I had a really hard time understanding where this even came from because it felt so sudden. Hearing you talk about the onset made things so much more clear to me. I went through a period of extreme fatigue that got better but never completely left, I lost the energy to keep up with most of my social life, then I started getting sick, one awful cold every single season for the past year and a half, extreme executive dysfunction and constant need for immediate dopamine. I have such a bright future, I have to take the steps to fix this before it's too late
I was the same as you, noticing the uptick in symptoms as a high school student. I was led to believe that "everyone is this tired" to the point where I was devaluing myself, and my motivation, day after day after day. I internalized the idea that if everyone is feeling this poorly but is still functioning on a high level, then the issue is with me. I must be lazy or unwilling to push through.
Well, turns out, my fatigue wasn't normal. Not even close...
Sadly, I didn't find that out until quite a few years later, and by that time I had done my body in. I had pushed so much that systems were beginning to slow down. To this day, I feel like a car that's almost completely out of gas, that's desperately limping to the gas station. All systems are affected. None are spared.
One of my greatest flaws is my smile. I have continued to smile day after day and year after year, making it less than evident that I am extremely unwell. The small amount of time I'm able to be around others, whether it be at church or in the grocery store, I put my all into appearing normal.
Why then, am I surprised when almost no one believes my situation when I tell them? I don't wish to look sick, but the reality is that I'm quite sick, and have been for a long time. I don't know what the answer is or where to go from here, especially with no financial resources. For the time being I just try to make it through each day, letting others who are enduring similar circumstances know that they are not alone.
Have things gotten any better for you?
hi I got cfs in highschool and i’m sorry but you can’t “fix” it. you can manage it and hope you are part of the 10% that miraculously get better like this woman clearly was because no amount of walkies and smoothies will fix brain chemistry
Play at 1.5x and save four precious minutes
1.75x is better
So the solution is have children... to be motivated to live again...
Bring it on and years later, I've only realised I was just trying to prove my worth and abilities always with the belief I had to work harder than anyone else.
This sounds like me. Wow. It hurts to know that this happens to so many people
@@jessiej5203 it does for sure.
@@dianaroberts5930 awareness! cool!
I thought it was only me
Yep that's me! My burnout expressed itself with crippling autoimmune Rheumatoid Arthritis. I lost everything became homeless and have tried everything under the sun to heal but I still struggle with the fatigue 7 years later...
Goodness - this resonated with me when you said that your brain shutdown and you couldn’t string a sentence together! I have just experienced that and my memory went and I had to take a month off work to recover! Time to think of me and slow down.
Same happened to me! It was terrible.
My sister thought that I’d had a stroke initially
I SO wish people would understand this damn ilness! Im SO tired of trying to explain and noone understanding it. 😪
Yep yep hopefully it goes away one day
Me too. So tired of all the people saying "but come by anyway, it will be fun and get your mind of your symptoms" or "how about we go for a trip for a week and you can help me take care of my kids, they are so wild you'll have no time to think or feel".
I'd rather chew my own leg off than doing that. My dream atm is being able to get out of bed in the morning. People just don't get what this is. They have no clue.
💞
And then there’s people who don’t think chronic fatigue syndrome exists
After I talked to my Doctor about my symptoms; My GP told me that “it’s all in your head”. Meaning it is not real.
I cured myself of a 10 year chronic fatigue by doing a gut reset course and then going on a keto diet and taking digestive enzymes with Bernadine hydrochloride in.
@Steve James Can you please please share more about your gut reset course, any link or website or how you did it, anything that can help, please share. 🙏
You were House bound?
@@harmonic432hz9 at some points yes, I took everything I had to do a weekly food shop. I spent the first year of lockdown in bed more or less, I'm back in construction now and I surf weekends but I can feel when it is too much and I have to rest, now and then it feels like it's coming back but rest and an early night really helps
@@stevejames9486 awesome👍
My life has been one bad thing after the next… never ends. When I get a tiny amount of joy then something terrible happens. No peace
I’m sorry, Miss Kitty… me too. 😞
I recommend reading Stillness Speaks by Eckhart Tolle
So what's the solution
TW: Mention of suicide
It's okay not to be okay 💯
The fact that we search for such symptoms when it's already a bit late is messed up. You're doing a great job 👏.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Take care x
Thank you for sharing your story. I’m currently totally flatlined and have had to let go life as I know it. Bedridden. No desire or energy to do anything. Full stop
This is me right now so depressing. I wish for a cure.
How are you guys doing now?
Sooo true. I'm still battling since 2009 from severe Fatigue, Vertigo, Tinnitus, Sleep disorder, Nerve ending disorder and Moderate depression. I'm already addicted to energy boosters. But life must go on... Try to survive each day.
How r you doing now
Same here… vyvanse and constant tea… if not tea, coffee or cocoa, or sugar…. Rest doesn’t help. Slowly burning aelf down
empty words
Exactly.