I completely burnt out for the 2nd time in mid-2019. I am still struggling to recover 4.5 years later. I have daily chronic exhaustion & quite bad cognition issues with basic functions like concentration & memory. If I don't pace myself by only taking on one very low-stress thing at a time I crash into hypersomnia & can sleep for 16-18 hours a day for up to 3 weeks when my exhaustion is really bad. I'm 38 & have only recently been able to manage daily domestic duties & leaving the house once a fortnight to do errands. If you feel yourself starting to burnout (exhaustion, issues with cognition, cranky/snappy, poor sleep, poor diet, not giving an eff about anything/anyone) do an audit of your life asap & try to cut out, delegate, or share any work or personal tasks/duties you can. If that means you have to go on stress leave from your job or uni &/or look for another job or change degrees, then do it before you get to the point of not being able to get out of bed because your system has shut down.
I'm right with this lady. I was a career military officer, pilot, and a very busy go-getter type of person. I was in an exercise in 2019, and got pretty sick during this extremely stressful time. I pushed through for the remaining 3 weeks of the exercise, and just hoped to go home and start to feel better. I got over the virus - whatever it was. But I have never felt the same since. It's an effort to get out of bed everyday. I have a very "fuzzy" head. I get disoriented. I can physically feel my weight, and it just becomes hard to get through the day. Some days, it physically hurts just to move around. But now it's gotten to where I feel like everyday is an absolute struggle to just get through. The worst part of it is that no one seems to believe me. My wife thinks it's all in my head, and thinks we'll go back to being world travelers any day. I cannot even survive the work day. The military diagnosed me with, basically, hypochondria upon retirement, but never looked for a real reason. I KNOW it's not in my head. I have data now too, with my Garmin telling me I have the HRV of an 80 year old. I went from being a high-level officer and flying dignitaries on a weekly basis, to barely able to do school work online at my home. That transition happened in only 4 years.
My decline was gradual too but faster, over 6 months to where I was essentially bedridden. I had to advocate for myself, no doctor would believe me despite 7 trips to ER and an overnight stay for heart issues. Like you they thought I it was all in my head and threw anxiety meds at me. After digging and digging, I discovered adrenal fatigue. I had to do private bloodwork to prove it to Western doctors and finally got the help I needed. Research the DUTCH test bloodwork and consider adding this to your resources. Also look for a functional medicine doctor to support your recovery. I did get better, but am now having fatigue issues again. I may have to go back to getting the test done again. Just know that people out there know what it's like and believe you. Wishing you recovery.
@@hshfyugaewfjkKS I found an allergist that did the Dutch test, and found one of the antibody levels was through the roof. Haven't been able to get it back down yet, but at least there's a goal.
Beautiful message. I’m suffering from CFS, anxiety, PTSD, & bulging discs from a car accident. I feel burnt out most of the time because of muscle pain & weakness. My quality of life has suffered and I frequently push myself to complete daily tasks. I hope to recover like this woman so I can accomplish my life goals
Plz add detox green vegetable or herb juice in your day 2 times at least. Eat plenty of fruits atleast 800 gram a day. Eat raw salad vegetable 400-500gram a day. Nuts & seeds at least 40-50 gram each day. Yoga 1 hr a day atleast. Stop non-veg compny pack food oil gluten food etc. 5- 10 month you will reverse your diseases. Your body will replace your old cell blood with new cell which give you healthy life. Plant based diet will heal your body brain to toe. Just belive in it & keep continue.❤❤💐
That's great to see Rebecca, I am so happy to hear that you have come so far on your healing journey, Linda has a great charity called 'Salus Fatigue Foundation' that may be useful if you need some additional support or would like to speak with like-minded people. Sending you lots of healing x
My Aunt has CFS and she's gone to every holistic practitioner, she's done all the diets, all the meditation but it gets worse the more she tries. Rest is the best thing for her, when she has rest she's able to do things like go to the shops once a week, a walk around the block, do light gardening - whenever she's been told to push herself more is when she has a flair up.
Check CFS-health program or the Gupta-program. Those are programs designed by people who experienced the disease by themselves and they understand what they’re doing. They already helped hundreds of people.
I don't agree. I do mantra meditation daily, its at the core of my healing model. Once peace is harnessed, everything else falls into place. Hope this helps someone.
I so identify. Sometimes I'll push for several days, then I KNOW my body will need twice as long to recover. My "recover" means my mind and body r re balanced and I am able to do some things again. I went from a super A personality to the point of physical breakdown w stress and a heart attack. Then to Migraines 24 days per month plus my antibodies fought w my healthy cells. So, I'm taking extra care w my doctors and different treatments. Pleased to say, approx 6 migraines per month now, heart is doing ok, and I manage as much as I comfortably can. Seems to be working pretty good although I must sleep 12+hrs per day. I'm listening to the body now!!!!
I'm a 40 year old male I experienced moderate to severe chronic fatigue syndrome from the time I was 25 to the time I was 35, it's a horrible frustrating disease. Extremely tired, couldn't exercise without feeling worse, vertigo, poor memory, trouble formulating sentences and speaking. I currently take about 15 supplements every day that help me lead a fairly normal life, mostly natural anti-inflammatories, antioxidants, antiviral, and mitochondrial supporting supplements. I'm gluten free, cannot drink anything carbonated, coffee and this includes decaffeinated coffee, pretty sports drinks, and most beers. I'm completely caffeine and nicotine free in fact if I touch caffeine even 10-15 mg it gives me anxiety now makes me feel like I'm going to jump through the roof. And around 30 years old I was taking two 200 mg pills of caffeine everyday to stay awake, that's probably the equivalent of a few large coffees from your favorite gas station. I think the anxiety from caffeine that I currently get is a sign that my body is healthy and now responds to caffeine whereas 10 years ago I could drink a pot of coffee and not feel anything. Don't give up. What I once considered my one good day per month is now what I consider my one bad day a month, most days I feel like I'm 18 again and I never thought that would happen.
@@5599-b3h I'm currently taking Calm Zone Magnesium at bedtime. Zinc, D3, Vitamin C, Ubiquinol, True Niagen, Chlorophyll, Turmeric, Tart Cherry, Decaffeinated Green Tea Extract and Korean Red Ginseng (KRG Prince Gold) I introduced one supplement at a time over several years, probably tried 50 different supplements and these are the ones that made the cut. I avoid caffeine from drinks or chocolate or any other drinks with Ginseng. My body is constantly changing, I can no longer tolerate caffeine, last night I tried to eat a chocolate bar, I was tossing all night and had anxiety this morning after taking my supplements. Most of my supplements are the vitamin shoppe brand.
@@Kentucky-bz6pg Thank you for the info! Do you take all of this every day? I get the same side effects from caffeine, that and a hang over, sometimes during the same day, seems worse with m.e.
@@5599-b3h lately it seems like I have to alternate between turmeric and tart cherry, those two with KRG and Green Tea Extract can make me anxious and then I lean towards a panic attack, which is far from my natural state. The vitamins and minerals have never caused any issues, I love the Ubiquinol. I've also experimented with D Ribose, a very small dose does wonders for my energy but too much can cause anxiety for me, it seems like the D Ribose (I've found other people online mentioning that this can cause anxiety) and Turmeric don't mix well together. I'm constantly playing with dosage, and lately it seems the dosages are going down because my body is responding better.
@@Kentucky-bz6pg Why do you think the tumeric or tart cherry are having that effect? Did u find others also have this issue? Have you noticed if any one supplement helps with energy levels on its own?
Trembling, lightheaded, deep fatigue down to tbe bone, vertigo, eye problems,body pain and weakness etc. It is like someone grabbed all the diseases into one and gave it to us. I do feel like i relate to the poison mentioned here...
@@Neoyorchese I used to be too. You dont need to be. Look up neuroplasticity, DNRS program,or Dr Joe Dispenza. His book Breaking the habit of being yourself. You are not alone and there is a way out of it.
Your symptoms sound similar to mine at my worst. Turns I had had gotten mold toxicity from living in water damaged apartments. Maybe look into it if you haven't... that and Lyme are such big culprits. Dr. Jill Crista's info is very good.
Life has a way of pacing you without your consent. There's a whole difference between doing and being and if you're doing too much your body will force you into being restful.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending your aunt lots of healing, there is a great charity founded by Linda called Salus fatigue foundation which is all about pacing and balance.
I had it bad for about 2 years straight. Slowly I got better, but would have recurring relapses every couple of years at first that lasted about 3 months each. Then the relapses came with less frequency and less severe. Now I'm currently going through a relapse (hince searching things on CFS on TH-cam) and it has been about 8 years since my last relapse. You think you are completely over it then it creeps up on you unexpectedly, reminding you it is still in your system. From experience I know I will pull through this relapse too. I guess I am fortunate to only have mild relapses between years of feeling great because I know so many people never fully recover and feel bad all the time. All I can say is I take care of myself and I tell myself if other people can "recover" from CFS I can too. I try to keep a positive attitude. I hope this helps and pray you long time sufferers will find some relief as well.
@@douglasvancier7683 The ketogenic diet is no carbs and no sugars. Look at Thomas DeLaurer (or my last video). People used to think it was a fad, but it's not. It feeds you energy. It offers great health to millions and the lifestyle is growing.
It's amazing to hear about your recovery from where you were. Amazing. Mindfulness and meditation really helped me out. Recognizing negative thought patterns and changing them over to a positive affirmation has been doing wonders for me.
You can't take away the experience of one person. She recovered and well done!! She also got to tell her story through TEDx a respected medium. But that's not the whole picture. There are many of us who are doing the recovery work, and more, to recover but we are not making the breakthroughs we desire. In storytelling terms, we're not ready to get up on the TED stage and proclaim our story complete with a happy ending.
no reason to go easy and be nice. she did not recover, she learned to lower her expectations and do appropriate exercise. Her model of cfs is one of patient fault. Activities and lifestyle are not consistent across cfs patients and thus falls in with all the other theories of cfs causes. if an actual, real recovery is possible from cfs you won't find out about it through youtube. people will light themselves on fire in public to spread the word and celebrate such an occasion. I will, at the least, be running a marathon with a megaphone in hand.
@@schpoingle I recovered 100%. I addressed my trauma’s and unhealthy coping mechanisms(like she tells in the video; perfectionism, control, living on adrenaline, worrying, rumination etc…) It’s about changing the narrative believing you will recover and forcing your brain to change and stop producing all those bad stress chemicals. Our brain tries to protect us, because it thinks everything is unsafe. If you can let it feel safe, and tell your brain it’s safe to feel, let go of control, let the symptoms just be. It all fades away! It is really hard work but 10000000% worth it. Listen to nicole sachs podcast she explains it very well xxx
Linda Jones' talk on recovering from chronic fatigue is truly inspiring! Her journey from burnout to brilliance offers so much hope and practical advice. Thanks for sharing your story! 🌟🙌
I'm a senior in highschool and for the longest time I've just lived my life feeling incredibly pathetic and empty, and I had a really hard time understanding where this even came from because it felt so sudden. Hearing you talk about the onset made things so much more clear to me. I went through a period of extreme fatigue that got better but never completely left, I lost the energy to keep up with most of my social life, then I started getting sick, one awful cold every single season for the past year and a half, extreme executive dysfunction and constant need for immediate dopamine. I have such a bright future, I have to take the steps to fix this before it's too late
I was the same as you, noticing the uptick in symptoms as a high school student. I was led to believe that "everyone is this tired" to the point where I was devaluing myself, and my motivation, day after day after day. I internalized the idea that if everyone is feeling this poorly but is still functioning on a high level, then the issue is with me. I must be lazy or unwilling to push through. Well, turns out, my fatigue wasn't normal. Not even close... Sadly, I didn't find that out until quite a few years later, and by that time I had done my body in. I had pushed so much that systems were beginning to slow down. To this day, I feel like a car that's almost completely out of gas, that's desperately limping to the gas station. All systems are affected. None are spared. One of my greatest flaws is my smile. I have continued to smile day after day and year after year, making it less than evident that I am extremely unwell. The small amount of time I'm able to be around others, whether it be at church or in the grocery store, I put my all into appearing normal. Why then, am I surprised when almost no one believes my situation when I tell them? I don't wish to look sick, but the reality is that I'm quite sick, and have been for a long time. I don't know what the answer is or where to go from here, especially with no financial resources. For the time being I just try to make it through each day, letting others who are enduring similar circumstances know that they are not alone.
hi I got cfs in highschool and i’m sorry but you can’t “fix” it. you can manage it and hope you are part of the 10% that miraculously get better like this woman clearly was because no amount of walkies and smoothies will fix brain chemistry
One of the biggest lessons life thought me is when to step back, and when to rest. It’s okay to feel bad we are humans being what we have to learn is to take care of ourselves. When we need to rest, the recovery of the energy of a chronic fatigue takes so much time to recover and if you have chronic fatigue you have be patient with yourself, small positive steps in order to recover the energy you have to recover. The love that you have for yourself is the reason, the magic 🪄 that is going to push you forward. Helping people feeds your soul, it’s a magical feeling that increases your energy, feeds your soul and helps you to recover the energy that is lost. Be patient, small positive steps with love and understanding your heart and soul makes the inner light to start shining.
I have found this very insightful. As a sufferer myself and have been since 2007 very mildly and progressed to quite severe in 2012 and chronic pain diagnosis in 2015 with a final somewhat diagnosis of it appears to be ME in 2019. I feel it is a determination of the mind that has gotten me through this. the very bad days are few and far between and I have found that I am recovering slowly. I was told I never would. I have learned to pace and rest when I feel an attack coming on and then carry on gently at my own pace. There is light at the end of the tunnel; although I am still battling each day with it and I am not where I would like to be as yet, but better then before. x x
Yes mind came on with a bang in 1988. I had it bad for 2 years, then gradually got better. Now it mostly stays in remission, but I am going through a relapse and it's been like 8 years since my last relapse. You think it is gone forever but it creeps up on you out of nowhere as a reminder it is still in your system. I always keep a positive outlook and from the beginning I have said if other people can recover from this I can too.
I am so sorry to hear of your struggles but it is equally great to hear that you have come so far on your healing journey already, Linda has a great charity called 'Salus Fatigue Foundation' that may be useful if you need some additional support or would like to speak with like-minded people. They have helped me so much on my journey x
Same here. I lost 3 years of my youth to CFS. My vision sucked. Everything looked foggy. I couldn't even walk for a block. Ringing in my ears. But we don't give up! Help those who are in need. Bounce back friends!
Goodness - this resonated with me when you said that your brain shutdown and you couldn’t string a sentence together! I have just experienced that and my memory went and I had to take a month off work to recover! Time to think of me and slow down.
I'm 20 and I had the onset when I was 17. Hearing this talk, your words give all my struggles a real basis, and I am so grateful to you for giving me that single most important belief while I suffer.
My CFS was triggered by 2 or 3 years of chronic and unceasing stress, tension and anxiety. This is the fourth year I have been suffering from this condition. I am young; i can’t study or work. Financially I am dependent on my parents. My symptoms include Brain fog, unending fatigue. Besides CFS, i suffer from social anxiety, depression and i get stressed very easily. Life is not fair. At the moment I just don’t know what to do with myself, with my life.
This is a good start Abdul, listen to people that may be experiencing similar issues you are. It’s the first step, you did it! As you listen, try to relax your mind and understand-you are not alone in this. Hope Spring will bring you some sunshiny days so you can feel better.
Did you get checked for nutrient deficiencies? All of them? So many of them can *cause* cfs. Most people dont realize cfs and depression are often symptoms rather then causes themselves
*Was she misdiagnosed with Chronic Fatigue Syndrome?* She specifically says she was able to increase her exercise which is the opposite to the post-exertional malaise that is part of true Chronic Fatigue Syndrome. CFS/ME doesn't manifest in the same ways in everyone who has it, but it does have some consistent criteria and Post-exertional malaise is one of them. I've had this disease since 1976 and with each subsequent illness, car accident, trauma, mold or pesticide exposure, it's gotten worse. I've done all she did because I too am a driven ambitious person like she is, like _most_ people who get CFS/ME are. None of it has helped me; in fact the things that worked for her don't work for most people with CFS/ME. Certainly not graded exercise. For most people, exercise makes it _worse._ So, was she misdiagnosed?
I'm wondering the same. Some forms of depression can have very similar symptoms as CFS. Especially considering she was able to increase her exercise that does not sound like CFS to me. Sounds like she had a major depressive episode and eventually recovered.
I am so sorry to hear of your troubles, that's an interesting view to have. I feel that Linda explains that she cut down to no exercise/movement for many, many years and now when she does say exercise she means more gentle movement. Exercise doesn't have to be running a marathon or lifting weights, it can be gentle yoga or thai chi as well. Thats what I have found helped me a lot. Its all about pacing and listening to your body. Sending you lots of healing, take care.
She's really quite an awesome speaker hey. I'm not sure about the rest of it, but the way she expresses herself and commands attention is really superb!
What an inspiration Linda is, it can give us all some hope and motivation to do that same. Linda has a charity called Salus Fatigue Foundation, what an inspiration!
Thank you for sharing your story. I’m currently totally flatlined and have had to let go life as I know it. Bedridden. No desire or energy to do anything. Full stop
Just had this happen yesterday, had a pretty good day and then woke up with a pounding migraine and ended up sleeping way later then usual. It was another gut shot one of many since I got sick 4 years ago. That’s why I’m here today, I was so sad and upset that stringing together 2 days is nearly impossible and one day is rare
Thanks for the great talk Linda. Unfortunately there are those of us who are in the 25 percent severe range and any form of exercise is out of the question. If I try to push myself one minute , say walking up and down the driveway for two minutes on a good day, then I will not be able to get out of bed for months on end and be very severely ill. I tried yoga when i was in a very bad flare up, I mean yoga gentle stretches and it nearly killed me. I think we all have different levels of this illness so one's road to recovery does not apply to all. Having said that, I am very happy for you :) Thanks for describing how bad it can get. Oh it can get worse than the flu as I have often been paralyzed on and off etc
Adinas Henry I am so sad to hear you suffering like this Adinas! This must be horrific to live like this. I have it mildly and that’s bad enough with the pain and headaches etc. I really feel for you. Xx
Adinas Henry , I have had severe CFS since 1993, woke up with the worst flu type thing, has never left. Never been the same since. Limbo life, changes hour to hour and the only things Dr's have done is make me so much worse as I am allergic to any and all meds/treatments. I could write so much more. I could of bought a house with the money I have spent to find something/anything that might help. Lost family and friends and so much more in this illness. I am so sorry for us all. Now in my older years, my nervous system has been hit with constant vibrations and pains like a shingles type pain along all my nerves. Possible epstein barr type neuro damage. No one can say. Hugs and love to my fellow CFS brothers and sisters and family members looking for hope!!!
I'm trying to figure out If this I's what I got severe chronic exhaustion where no anount of sleep next day makes me feel I've slept at all could this be it
I have been dealing with chronic fatigue for about the last 5-7 years. I finally caved and got treated for adhd and my medication is the only thing that gets me moving. Without it I’m basically useless besides the first 1-2 hours when I first wake up. It’s the only thing that has helped me
Sooo true. I'm still battling since 2009 from severe Fatigue, Vertigo, Tinnitus, Sleep disorder, Nerve ending disorder and Moderate depression. I'm already addicted to energy boosters. But life must go on... Try to survive each day.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending you lots of healing, there is a great charity founded by Linda called Salus fatigue foundation it may be worth your aunt looking into. Take care x
Charlotte oh god yeah.. i remember this timw without diagnosis as such a dificult time. I hope you find a specialist soon! In Austria where I live there are only 3 in the whole country.. LOL 🙃
This happened to me, almost exactly the same as you. This validates my experience, I still question it sometimes, but I KNOW I was trying everything, and doubting myself is just because I've come so far out of that dark hole. Thank you for sharing
Around 75% of people with ME/CFS only have mild or moderate symptoms like this lady here. They can get by somehow. But there are 25% of pWME who are very ill and are housebound and bedbound. These are the people science and medicine needs to help.
Yeah agreed had mine serve four years. People like us know it's cellular energy problem along with the science and poorly underfund researchers. Not something you can "fix" yourself.
@@lelediamondASMR Hi. Sorry to hear, How do/did you feel when you were so bad? Can you explain as half of us are only moderately affected I think even though that is still bad. Were your muscles affected? I have always thought my muscles worked ok even though they used to twitch especially after using them. That went away over time though. WHat is it that makes you have to stay in bed? I think I felt like that once for a few days. I felt weak. I didn't understand it.
M P pain. Weakness. No strength in any muscle at all. Can’t lift an arm. Dizzy. Tachycardia and low blood pressure if attempt to sit or stand. Talking for more than a few minutes or sometimes words crashes us. If u force yourself to stand up through pain and passing out u will crash that day next day and for weeks after.
This is an interesting story , even though it’s not mine , I can see where this lady break through made a difference to the strain on her previous life style and how it may have cause her burn out . I am grateful to hear she is managing to get her life back after a long struggle . I am looking for my own way back because it is difficult and drain every time you try a new idea. It gets scary because you know the daily systems of your life physically , and your mental state of mind and now you try something new and now it’s more pain , shattering , start over wasn’t on the cards . Have seen this video it was brave to come forward like that to put her self there and tell it like it is , because there are many billions of people who think your just making excuses , and those of us who are experiencing this condition know that her story tells it like it is and I am glad she put her story there because it’s also given me the Will to look for away to help myself and possibility it might help others ,like she has made me feel that I should keep trying to find answer as the alternative stinks . I am going to contact her and see if she can help me , and even if it doesn’t I hope to keep trying because I know like a lot of you how soul destroying this can be and I may find answer or maybe one of you who reads this will . In the mean time , I will send best wishes and lots hope to you all , stay safe and thank you young lady for this video because you are younger than me for sure , may you be bless for your kindness and inspiration ✋🏻🌏😇🤝✊🏻👊🏻🙏🏻
Bring it on and years later, I've only realised I was just trying to prove my worth and abilities always with the belief I had to work harder than anyone else.
Yep that's me! My burnout expressed itself with crippling autoimmune Rheumatoid Arthritis. I lost everything became homeless and have tried everything under the sun to heal but I still struggle with the fatigue 7 years later...
To those that have had others create problems in your life. Be happy you are not like that and contribute to the balance of a better world. Give yourself that permission to be happy and it will hopefully give you a calmer clearer mindset and a bit more energy while you try to figure out the rest. I am not talking to the others because i dont care to. It is a bit like having the flu at home in bed vs having the flu at work while running a marathon...There will hopefully be a bit of a healing advantage and faster recovery to being happier. Know that you have invisible friends unknown to you in the world that truly want you to heal...
I've been suffering from ME for 23 years now and every year it gets worse and worse. Still it seems like nobody understand or even cares but it's great to see that at last the medical research is producing results and that our GP's are starting to take it more seriously. I can remember the bad old days when many doctors were skeptical that it even existed and the NICE guidelines recommended graded exercise, CBT and pacing, well they got one right lol. I can remember the CBT making me feel worse, like as if it was all my fault! and being persuaded to go to the gymnasium which nearly killed me
Try looking up Teal Swan's bit on chronic fatigue here. If you're willing to let hard science rest aside (which currently can't really help in this matter anyway) and are open to other than just strictly medicinal approaches to crack the nut (and willing to work on yourself), you may find relief there. Maybe even more. Good luck fella!
All we do is work. Non stop. We have been conditioned to believe wealth comes from material things and in order to do that majority of people just work and party in hopes that one day they will feel fulfilled... Most of the working and middle class drop like flies these days, whether it's some sort of diseases, break down or just simply throwing it all away to go on a different path. We need balance so much. We need to look after our planet and each other.
@@katec9893 its a grace from god that you are able to not work at all for so long without being homeless... xoxox im glad that at least you had that, i am in the same position, but i have to work at least part time to afford food and other basic necessity, luckily i have a roof over my head free of charge. i also wonder how other people do it, its a living nightmare, im glad im not alone
@@oliverjones2426 i manage because im in a country which still has social housing, free NHS healthcare and disability benefits, as well as disability discounts. Even so, i can only afford to have my heating on for 1.5hrs each day.
13 minutes of hearing what I already know, since I'm going through it but in a flat, monotone voice. And the solution was 'keep going'. Probably one thing that leads to my lethargy is trying to find advice and solutions and coming across videos like this.
I lost 2 1/2 years of my life to this. This is a tiredness that never seemed to go away. Lost 60 pounds just too tired to eat. Healed myself...stopped all prescription meds and smoke marijuana...I was RN for 30 years and never used marijuana before...my son convinced me to try it. It helped me get off all pain meds and everything else I took. Still great today.
My father has had this very badly for 12 years. It's what I grew up to know of my dad for half my life basically. After 12 years we finally convinced him to try thc. Do you think it helped you because he finally agreed the other day saying he'd try anything
@@jordanmason4195 just saw this message. I totally believe the THC healed me. Changed receptors in my brain. Still good today but rarely use THC...occasionally for recreation best of luck to your dad
As a doctor leaving i am happy to see this young lady recover. The goal is to be happy. Stress in any profession is not worth it if you do not love what you do and anyone violated you for doing it. To the military officer and others below, i believe you. Long covid is real. As are many other entities viral and others that require a medical workup before saying it is just nothing.... You have to rest and find happiness in your day and readjust your limits until you get better which is part of a hopeful mindset. I started meditation this year and noticed that has helped with my own mental state a bit. Doctors definitely dont have all the answers. Long Covid is very real though. So is the Singularity and all the other programs going on underneath the surface that will likely affect the bottom 80 to 90 percent of the population and those not in control eventually.
I was always amped, I had boundless energy and would often over train or over work. I was also a very anxious person and felt I could never completely relax. I got covid in July, and the recovery completely burnt me out. I know have what feels like a profound tiredness like no other. Life is telling me to slow down. As hard as it is, it's a life changing experience with some positives and once I recover from this, I'll be a better person for it.
@@angiescorner9549 5 months on and it's much better, but I'm still not back to baseline. I still have massive energy dips through out today. I also feel wrecked after intensive exercise, but on a positive, I have moments where I feel like my old self and I can exercise to a point without crashing, so I'm improving.
Covid didn't phase me. The broken elbow is what got me XD. Three days after surgery and there's no way I can do anything ambitious. I have to say no. Life has officially forced me to slow down and take it easy and I have no choice lol...
@@Olivia-W what’s weird is I had such a mild case of covid but it seemed to hang around in my body and throw balance off I think I became vitamin deficient and dr. Berg was right vitamin b1!!
Covid Recoverers please, I have a question....I was at top physical shape when I got Covid beginning of Feb. I didn't have a very strong form (most common symptoms were, some body aches and fatigue ). I recovered and got back to the gym in about 2-3 weeks, was ok for a couple of weeks , but then started getting muscle/body aches and most recently the fatigue back again...Could this be Covid related still? I am also a health anxiety sufferer and currently driving myself insane that I have something sinister :(
Why is it always the overachiever, the perfectionist, the ‘type A personality’ who doesn’t believe in rest? why the fighting the diagnosis, the endless searching for answers outside of themselves, the resistance to the explanations and help? there seems to be a pattern, and I suspect it lies in our attitudes and our beliefs...
@@gabriellehalette exactly. I was conditioned to feel guilt for taking sick days. Even after my diagnosis and my doctor ordering me to take 1-3 months off (which has now turned into 2+ years), my parents first question was “but what about your job?” ...my parents (and society) conditioned me to put job over my own health my whole life.
@@Sarandib22 it’s an interesting idea, but i disagree. The perfectionism, the striving, the impossible standards- they are an inextricable part of the illness. The “type B” personality, the passive one who takes things in stride, accepts the good enough and doesn’t need to be first doesn’t get chronic fatigue, because they value rest over their achievements, being over doing. Chronic fatigue occurs because the nervous system has hit a threshold, a normal physiologic limit that presents itself to the sufferer as unacceptable. The fatigue is actually not the problem- it is more the denial of perfectly human limitations.
20 months into my battle. I don't feel the differences day by day because it just feels like constant pain, headaches and tiredness, but then I think back to months ago and what I could and couldn't do and the level of pain I experienced then, and I take heart because even though I still don't feel like me, I can feel that I am making slow slow progress. I wish everyone suffering this horrible affliction the best for their future health.
Painkillers and the reason I don't take them. I really believe the pain that impacts my life daily is related to my emotional threshold. It's the upsets, stress, anger, hurt, push, pull, expectation and all the doings of living is what's killing me from the inside. My spirit is dying and day by day I loose the will to live. Until I have a good day, feel like I can participate and then it all just happens again.
Thank you very much, this is a very important message. I also wasted a lot of life on chronic fatigue but still didnt learned how to give myself a rest when I have the energy. I burn it down completley and then wait in numbness when it will come back but lose too much meanwhile
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending you lots of healing, there is a great charity founded by Linda called Salus fatigue foundation it may be worth your aunt looking into. Take care x
I’m shocked by most of the comments here. In Belgium we have a whole department in the hospital that is dedicated to CFS. The therapy of 2-year consists of a changing step by step your life habits (cognitive-behaviroual therapy). 1) avoir des heures de sommeil réguliers, sans ça il est impossible de guérir !! 2) avoir des heures pour manger réguliers 3) faire un tout petit peu d’exercice (2 à 8min) mais dans la limite de ce qui est possible il ne faut surtout pas se sentir épuisé après!! 4) faire une promenade de 3 à 20 min, mais dans le seul but de se promener et apprécier la nature. 5) suivre la règle des 20 minutes quand vous effectuez une tâche, faire une tache 20 minutes maximum puis s’arrêter faire une pause et continuer !! 6) prendre soin de soi quotidiennement
@@xLaurish Translation: "1) have regular hours of sleep, without that it is impossible to heal!! 2) have hours to eat regularly 3) do a little bit of exercise (2 to 8min) but within the limit of what is possible you must not feel exhausted afterwards!! 4) take a walk of 3 to 20 min, but for the sole purpose of walking and enjoying nature. 5) follow the 20 minute rule when doing a task, do a task for 20 minutes maximum then stop take a break and continue!! 6) take care of yourself daily"
Wow aww thankyou So much ☺️ i too' felt the same way of taking my life but if not for my children and friends, I couldn't do that ~ So now it seems like a long walk of learning about chronic fatigue Syndrome, but yes I was also that person too' always on the go & people pleasing too Thanks so much for giving this talk..it really did help me and got me to fully understand 💖 hugs to you 😇 gina 🙋
What helps me is pray and listen to a lot of motivation videos, also trying to visualize my future and it pulls me to do things and forget the pain. When the pain comes I just take a nap. Then put earphones and.listen to motiv and I'm up again. Also helps no eating carbs at all I've noticed it get worst when I eat potatoes or bread or sugar. My 2 cents.
Me too. So tired of all the people saying "but come by anyway, it will be fun and get your mind of your symptoms" or "how about we go for a trip for a week and you can help me take care of my kids, they are so wild you'll have no time to think or feel". I'd rather chew my own leg off than doing that. My dream atm is being able to get out of bed in the morning. People just don't get what this is. They have no clue.
I found this video somewhat self focused and unhelpful. This is the woman's story not any explanation of her method out of a metabolic disease. A hypnotherapist ? What exactly did the naturopath say was causing it and what was that doctors solution that worked so well for you? How do you know you had it....symptoms aside that is? This is a blood plasma disorder caused by infected NK and T cells in the brain which cannot be treated at present with drugs that cannot pass the blood brain barrier. This leaves the brains immune system constantly attacking the infected areas causing hormonal disfunction and CNS inflammation that is measurable. See Stanford studies. The result; the illness causes metabolic dysfunction in the mitochondria. Usually digestive disorders are comorbid and there is some suspicion that the illness may be a dual inflammatory autoimmune disease of the brain and gut. I suspect that genetic predisposition coupled with environmental stressors are the epigenetic trigger that causes the IBS or Celiac which then feeds the unknown coexisting autoimmune of the brain which then causes a digestive disfunction that perpetuates the breakdown until one day your cells aren't making enough energy to operate the brain properly and we then start getting systemic pain, gate problems, sleep problems and cardiac and breathing issues. Eventually the body cant take anymore and cancer comes to take us. There are two labs and two universities in America that are perhaps only months away from being able to provide publicly available testing that is conclusive. The genetics can already be tested for but they developed a special blood testing chip at Stanford. Also there is a new anti viral that they are developing for this illness. I hope I haven't ended my life before it arrives but like the lady in the video said it is pure suffering and pain all the time and zero quality of life.
Fasting and zero carb is something worth trying if one hasn't yet. It might not do anything, but in a few cases could help, especially before the going gets really bad. I got a few warning shots in my life, and a recent surgery is _making_ me slow down, eat nearly pretty much mostly animal products (protein, the more the merrier...) and... it'll be ok. Not great. Maybe never great. But ok.
Thank you, because this video is positive but also almost like saying that ME/CFS is a volitional and or subconscious thing… exactly what has caused so many problems for those seeking the medical system’s help. Thank you for so beautifully summarizing the multiplicity of factors involved in several conditions with similar symptoms due to similar breakdown mechanisms.
Same. I hope I don’t end it before some decent treatment. This is not living, unfulfilled life and no quality of life. I want to live SO BAD. I love life but my body and brain won’t allow it. I HATE this.
It's been almost 10 years. It hit when I was 25. Feels like it happened over the course of just a week or so. But it hit me hard and people who knew me before noticed how suddenly exhausted I looked. It hasn't gone away. There was a moment a few months ago where I felt like my old self again. Just for 1 day. And the interesting thing about that day is that I was EXPLODING with energy. It's like my body knew that there was all of this potential energy that had been caged by something. Maybe that day was just a "glitch," but it got me thinking... Maybe I accidentally hit a solution with no idea what I had done.
Just wonderful, I have been researching "chronic fatigue syndrome wiki" for a while now, and I think this has helped. Ever heard of - Diyadelyn Ziyily Idea - (Have a quick look on google cant remember the place now )? It is a great one of a kind product for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) without the normal expense. Ive heard some extraordinary things about it and my partner got great results with it.
@@hounogsteedsvanjou Isn't it strange? You spend so long being exhausted and you get this moment of "head above water" .... I was thinking ... "Oh... I remember being THIS person. I've really missed this."
@@thinkingoutloud3757 djeezz i feel you. i made a video of myself and watched it back the other day when i was ''the other person'' again. Thats how i call it. Because the person that I am now is not myself because of all the symptoms my personality changed aswell... but then those few hours that i was myself it was AWESOME and i told myself im not getting crazy its not in your head etc
I was burnt out once, it was light but it still kept me out of work for 6 months and i felt the effects for a few years after. Then i got long covid.. Id say that was like my burnout x100 ive never felt such system malfunction before. Im still unable to work 2 years later.
Thank you so much for your inspiring story. So lovely watching and listening to you. Thanks to technology, Tedx and TH-cam, if I can connect with all of you. I am learning a lot, just sitting here in my balcony in the mountain of Trentino Italy. Lovely woman.
Great video content! Apologies for butting in, I would love your initial thoughts. Have you heard about - Dinanlinson Rebooting Health Approach (do a search on google)? It is an awesome one off guide for getting rid of chronic fatigue syndrome without the headache. Ive heard some unbelievable things about it and my close friend Aubrey after many years got amazing results with it.
Excellent video content! Sorry for butting in, I would love your opinion. Have you heard about - Dinanlinson Rebooting Health Approach (erm, check it on google should be there)? It is a good one of a kind product for getting rid of chronic fatigue syndrome without the hard work. Ive heard some incredible things about it and my cooworker got astronomical results with it.
What an inspiration Linda is, it can give us all some hope and motivation to do that same. Linda has a charity called Salus Fatigue Foundation, what an inspiration!
Nice video content! Excuse me for chiming in, I am interested in your thoughts. Have you considered - Dinanlinson Rebooting Health Approach (search on google)? It is a great exclusive product for getting rid of chronic fatigue syndrome minus the headache. Ive heard some extraordinary things about it and my GF got amazing success with it.
I had severe fatigue for the first 40 years of my life. I then found out that I had an intolerance to the Corn protein (High Fructose Corn Syrup , Corn Starch , etc.) Many people have a delayed reaction to many of the ingredients in processed foods (Soy , Dairy , Gluten , etc.) Look into Hidden Food Allergies (Intolerances) or talk to a Doctor in Integrative Medicine.
I've had depression and got manipulated by so many including my parents. School life was the worst ( still in school, last year) those year have been depressing and dark so I wanted to change, I wanted to be something in life I pushed myself so hard I would work all day I would think about studies 24/7. Sleeping for 6 hours was a luxury. This kept going on then one day I couldn't wake up I slept all day this kept going on for 2 months. Then I knew something was wrong with me. It's Still the same I'm healing from it my brain is just exhausted I need hope again and seeing this makes me wanna change my life.
I used to look at it that way, told myself "do something to distract yourself" when I wasn't feeling okay. Until I realized that only makes you stop enjoying things in life, you only care about distractions, not things that you enjoy. So the answer is to do things "to feel better", not to "get distracted"
I fully support her sharing her story - any attention to this crippling illness is a good thing - but unfortunately her experience is not typical of most patients with ME or CFS. Most people get worse not better as time goes on. Telling people you can get better is not true for everyone - at least not where the science and medicine on it stands now. Hopefully they find a cause, treatment, and cure soon. Glad she was one of the lucky few.
It seems that the cause for some is Lyme disease, mold toxicity or some other infection... I always encourage people to try to get tested for these through a functional medicine doctor or ND. Mine turned out to be mold toxicity from living in water damaged apartments
@@harmonic432hz9 Yes! The progress is slow but I'm way better than I used to be. After moving to a low-mold apartment and doing a supportive protocol for mold toxicity
Wow, I thought chronic fatigue was just being tired for a week or two and then getting back on your feet and going about your daily life I had no idea there were no cure for something like this. I really need to start taking better care of myself
What a remarkable woman. I've watched Chronic Fatigue break a few people, regardless of their motivation and determination, they have struggled to see the light at times. Sharing this with a few people in hopes it might help them
I keep hearing the term people pleaser though I think chronic illness has more to do with what your are holding on to, finding it hard to communicate and being honest about how things impact your well being or hurt you. Mostly self protection in some way or not hurting the feelings of those around you.
I watched this video because I feel this same thing. It's been 5 months already and I hate it. I've tried so hard and forcing myself every day but it doesn't work. Every day is the same. Trembling, lightheaded, deep fatigue down to the bone, vertigo, eye problems, body pain, weakness, etc. However, hearing her story gives me hope.
Rest and pacing are key. Don't try to push beyond your energy envelope, because you can make yourself a lot worse and lessen chances for a good recovery.
@@Emma-oz5xp I was recovering fast before then I felt like I was being pulled back but did my best to fight it. Now, I feel much better. Though unlike before, I'm recovering slower. I am not fully okay yet but I know I'm almost there.
Good to hear a local accent from where I was born.. I agree with other comments.. It was more a life story than actual actionable advice and help.. I joined the Facebook group mentioned in thy comments..
This lady is a bit of a force to be reckoned with I dare say. Fabulous talk and she obviously has a lot of resilience, I have never known anyone to be mostly cured from CFS. Amazing.
This is quite damaging. Some people do recover. Saying hot and cold showers, diet and a positive attitude cures m.e. is putting those with severe, unrelenting symptoms in an 'youre not trying hard enough' box.
Absolutely. Insulting talk equating her burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome. Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis.
This Ted talk may not have been for you, but it was really helpful for me. I am at the beginning of healing my own burn out, and hearing her experience and some of the things she did to recover gives me hope.
Im a 33 man, i dont know if its severe depression or chronic fatigue syndrome that i have, all i know is after my heavy burnout 1 year ago after years of taking way to much stimulants, i slept like 14 hours a day for a whole year, and now its down to 10 but i cant work more than 2 days a week, any more and i will spend the whole day after sleeping, luckily my boss and my parents are very understanding, they can see it. any stress is too much, my whole body feels like its shutting down and everytime i try to push myself my whole body shuts down, i have to be in constant dark or i get extremely overwhelmed by the light. Ive lost most of my hair after my burnout. i cant workout too much anymore. i cant do anything i used to do. i was already a pretty depressed person but this feeling is eating me alive, like my whole body is rotting from the inside and its starting to show so much, i dont recognize myself anymore.. i feel like this tired blob of flesh. i hate the way i look, and even worse the way i feel. I feel so heavy, so tired, like a 90 year old, my parents are 70 years old, im only 33 and they are much more active than me. i cant do much , its a mix of extreme fatigue, anxiety, depression, im just suffering all the time, and wish it would just end. im praying for a quick death most days. Its excruciating, and i pray to god everyday to deliver me from this pain, when my parents are not here anymore i will sure put an end to it. i still manage to do a walk everyday and do light therapy and take multivitamins and antidepressants... but i feel completely completely lost.
Check out fasting, glandulars (desiccated bovine glands), herbal tinctures, fruitarian diet, raw carnivore diet. Adrenal glands are involved in CFS. Check out Dr. Robert More’s channel, Robertmorsend. He is a naturopathic doctor.
I'm glad she recovered from her burnout, but it's harmful to equate burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome, also known as ME. Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis. If exercise cured her rather than making her worse, she didn't have ME. Please don't take away from this talk that people with ME/CFS haven't tried hard enough and just need better nutrition, walks and yoga. Trust us, we've tried it all.
I wake up in the night with panic attacks and anxiety, even if I adhere to a strict routine / don't use blue light before bed, stay active. I've noticed my reaction to certain work-related triggers are WAY more elevated than they should be. I'm just trying to work out what's wrong with me so I can get better.
Eleven minutes ten seconds into this self-absorbed woman and there was still nothing that could help people like me that are in pain almost everyday. Is it enough to just know that others are suffering too?
I have also cronic fatigue syndrome 😔😥😭. It's started when i was 15 years old now i am 18 yrs but no changes . I m facing bad sutitation every day. It's so bad to facing this problem.
@@meenakshigupta3819 how do you know you have cronic fatigue ? If you have any fatigue you should reduce watch screen . dont do any activity that your sporm came out. And sleep enough
I want to know: how many other people have sudden attacks of severe fatigue throughout the day that incapacitate them for the rest of the day and possibly into the next day, for me usually after even the most moderate of exercise? I've become very sedentary these past years. I thought my fatigue had improved, but it's likely the lack of exercise that in large part led to the improvements. On a bad day, I'll have these strange aches throughout my body. I'm talking from my feet to my fingers. I'll somehow manage to convince myself all I need is a good rest, but it'll end up taking ages. It's like all of my energy just flows out of my body parts and I'm trembly, so trembly. I'm lucky that it's no longer a daily occurrence anymore. Massaging the aching body parts seems to help, but I feel it again once I stop massaging myself. This sh*t sucks! Big time! To think that there are people affected even worse is depressing.
When I wake up I usually feel pretty normal.. then between 1:30-3:00pm I get an insane narcoleptic wave of fatigue.. it’s like everything shuts down, including my brain- I am totally useless. I try to make sure anything that needs to be done gets done before noon. This all began after having Covid in June.. along with the debilitating fatigue, it feels like I have depression, worse ADD brain than I did before, and much louder tinnitus. It also feels like socializing is stressful, & I have less patience in general. I’m usually someone that gets more done in a day than most average people do in a week, so it’s extremely frustrating & depressing to now only have a short window of time each day where I feel like I’m functioning.
chronic fatigue syndrome and fibromyalgia is caused by pproblem in the production of ATP (adenosine tri phosphate) you see in every cells in our body there is a mitochondria that is the pwer house of the cell which produce energy for maintanance of the structural integrity of the cell, SYNAPTIC SIGNALING PURINERGIC SIGNALING, DNA AND RNA SYNTHESIS , ACTIVE TRANSPORT AND MUSCLE CONTRACTION. THESE ARE ALL IMPORTANT PROCESSES AND FUCTION IN OUR BODY TO MAINTAIN HOMEOSTASIS AND ALL THESE REQUIRES ENERGY IN THE FORM OF ATP IF OUR CELL IN OUR BODY DOES NOT PRODUCE ENOUGH ATP THATS WHERE THE PROBLEM START THATS WHY YOU HAVE NUMEROUS SIGN AND SYMPTOMS THAT CANNOT BE EXPLAIN ,LIKE UNEXPLAINABLE ORTHOSTATIC INTOLERANCE, HYPER ALGESIA AND ALLODYNIA, VERTIGO NUMBNESS AND TINGLING SENSATION ON DIFFERENT PARTS OF YOUR BODY, FROZEN SHOULDER MIGRAINE, ALLERGICAL REACTION THAT HAS NO BASIS,IRRITABLE BOWEL SYNDROME ALL OF THESE ARE BECAUSE OF LACK OF ATP PRODUCTION IN OUR BODY.
You have clearly done your research. You should be the one to give the Ted Talk. Thank you. No 2 cases are the same- of course this goes without needing to be said as well as the path to healing will be the same. This Disorder impacts EVERY system in the body- old Viruses, new Viruses, new infections, inflammatory processes, stress, toxins of all sorts, emotional distress ALL Keep the body from achieving Homeostasis. It's a vicious cycle. When you are trapped in it; the recipe to find a way out is daunting. People need to research and find their own path to try to help THEIR individual situation.
I've been burnt out since about 9th or 10th grade, maybe even sooner than that. The problem is that we have cancer as a society, and it has gone systemic. That's why seemingly nothing can be done about it. America essentially ended as a nation with a cohesive identity and distinct culture around 2007. The last 15 years has been nothing more than fighting over the scraps, and attempting to prop up the illusion of a growing economy through artificial wealth creation by printing money. This is how civilizations die. We are dying. We have terminal cancer. The smartest and wealthiest people I know are trying to extract whatever wealth they can from the system, and building houses in rural areas because they know what's coming.
Sounds like she had a relatively mild version of ME/CFS from which she successfully recovered (about 5% of CFS/ME patients do report complete recovery after a few years). This story certainly does not represent the other 95% of ME/CFS patients. Endorsing graded exercise for recovery just brings back the infamous PACE trial nightmare. It would have been good if she had done more research into the illness and at least acknowledged that exercise can be detrimental to majority of ME/CFS sufferers.
What about those of us that were bed bound for 10 years, did the smoothies and walking and got better for a couple of years, then find themselves back in bed thinking it’s a crash. But it has been almost a year now and I feel like I’m right back at step one. Glad she’s better but it felt like a kick in the teeth to me.
She clearly doesn't understand what this disease is. Smoothies and "gentle walks" aren't going to heal you. Love to know how she has the energy and stamina to open up a business, a non profit is a business.
@@22Purplemist In the description it states she has chronic fatigue syndrome; this is the same as myalgic encephalomyelitis. The disease was initially referred to as chronic fatigue syndrome and only recently had it's name changed to myalgic encephalomyelitis.
@@5599-b3h - I read the description. There is scientific research that proves are two different conditions. I've been very well acquainted with M.E for nearly five decades and it's much more than what she describes
uhhh… isn’t one of the defining characteristics of ME/CFS post-exertion malaise? like, the whole “exercise makes you feel significantly worse for a significant amount of time” and the “rest doesn’t improve symptoms” thing? idk, this might just be a really unique experience but i don’t think this fits the criteria of ME and might be a misdiagnosis. i’m really glad she was able to recover, and hopefully others are able to get something out of this though.
I'm in my late twenties. I had a severe burnout and injured my hands at my previous job from overworking. I'm not sure if the reason why I still feel tired and find my new job difficult (despite being a lot less demanding than my previous one) is because I never fully recovered from my burnout.
What an inspiration Linda is, it can give us all some hope and motivation to do that same. Linda has a charity called Salus Fatigue Foundation, what an inspiration!
I’m going through this at 28 and I don’t know what to do. I’m worried I’ll never achieve my dream of healing the world through music 😭After all the terrible things I’ve been through I’ve still never felt so scared in my life.
You can live your dream. It just may look different and take longer than you expected, but thats okay! Forgive your body, love yourself, keep going and don't give up - but take as much time as you need to rest along the way.
I cured myself of a 10 year chronic fatigue by doing a gut reset course and then going on a keto diet and taking digestive enzymes with Bernadine hydrochloride in.
@Steve James Can you please please share more about your gut reset course, any link or website or how you did it, anything that can help, please share. 🙏
@@harmonic432hz9 at some points yes, I took everything I had to do a weekly food shop. I spent the first year of lockdown in bed more or less, I'm back in construction now and I surf weekends but I can feel when it is too much and I have to rest, now and then it feels like it's coming back but rest and an early night really helps
thing abot the depression diagnosis is tht sure depressed ppl feel tired but not fatigued, and depressed ppl respond well to exercise wer as ppl suffering frm cfs dont.
"At the time I was in my early 30s but I actually felt more like I was 130." I am so feeling that right now.
Me too, but im 29 :(
Sorry about that. What's causing you to feel so old?
@@fitforfreelance Obviously severe fatigue
@@imwatchingonyoutube5024 ok thanks.
me too, 29 and everyone including my uncle who's 85 has 50 times more energy than me.
I completely burnt out for the 2nd time in mid-2019. I am still struggling to recover 4.5 years later. I have daily chronic exhaustion & quite bad cognition issues with basic functions like concentration & memory. If I don't pace myself by only taking on one very low-stress thing at a time I crash into hypersomnia & can sleep for 16-18 hours a day for up to 3 weeks when my exhaustion is really bad. I'm 38 & have only recently been able to manage daily domestic duties & leaving the house once a fortnight to do errands.
If you feel yourself starting to burnout (exhaustion, issues with cognition, cranky/snappy, poor sleep, poor diet, not giving an eff about anything/anyone) do an audit of your life asap & try to cut out, delegate, or share any work or personal tasks/duties you can. If that means you have to go on stress leave from your job or uni &/or look for another job or change degrees, then do it before you get to the point of not being able to get out of bed because your system has shut down.
I'm right with this lady. I was a career military officer, pilot, and a very busy go-getter type of person. I was in an exercise in 2019, and got pretty sick during this extremely stressful time. I pushed through for the remaining 3 weeks of the exercise, and just hoped to go home and start to feel better. I got over the virus - whatever it was. But I have never felt the same since. It's an effort to get out of bed everyday. I have a very "fuzzy" head. I get disoriented. I can physically feel my weight, and it just becomes hard to get through the day. Some days, it physically hurts just to move around. But now it's gotten to where I feel like everyday is an absolute struggle to just get through. The worst part of it is that no one seems to believe me. My wife thinks it's all in my head, and thinks we'll go back to being world travelers any day. I cannot even survive the work day. The military diagnosed me with, basically, hypochondria upon retirement, but never looked for a real reason. I KNOW it's not in my head. I have data now too, with my Garmin telling me I have the HRV of an 80 year old. I went from being a high-level officer and flying dignitaries on a weekly basis, to barely able to do school work online at my home. That transition happened in only 4 years.
I’m so sorry. Know that you are not alone. I’m actually scared for my future. God Bless you. 💖🙏
You may have a post viral syndrome. More accepted now after covid, but, this existed before. Wishing you well.
My decline was gradual too but faster, over 6 months to where I was essentially bedridden. I had to advocate for myself, no doctor would believe me despite 7 trips to ER and an overnight stay for heart issues. Like you they thought I it was all in my head and threw anxiety meds at me. After digging and digging, I discovered adrenal fatigue. I had to do private bloodwork to prove it to Western doctors and finally got the help I needed. Research the DUTCH test bloodwork and consider adding this to your resources. Also look for a functional medicine doctor to support your recovery. I did get better, but am now having fatigue issues again. I may have to go back to getting the test done again. Just know that people out there know what it's like and believe you. Wishing you recovery.
@@hshfyugaewfjkKS I found an allergist that did the Dutch test, and found one of the antibody levels was through the roof. Haven't been able to get it back down yet, but at least there's a goal.
@@DonSamRazYo my TSH was high, but T4 was low-normal. T levels were "normal for your age," which means about half of what they should be.
Beautiful message. I’m suffering from CFS, anxiety, PTSD, & bulging discs from a car accident. I feel burnt out most of the time because of muscle pain & weakness. My quality of life has suffered and I frequently push myself to complete daily tasks. I hope to recover like this woman so I can accomplish my life goals
How r you doing now
Same here, plus loud tinnitus. I hope you recover!
Plz add detox green vegetable or herb juice in your day 2 times at least. Eat plenty of fruits atleast 800 gram a day.
Eat raw salad vegetable 400-500gram a day.
Nuts & seeds at least 40-50 gram each day. Yoga 1 hr a day atleast.
Stop non-veg compny pack food oil gluten food etc.
5- 10 month you will reverse your diseases.
Your body will replace your old cell blood with new cell which give you healthy life. Plant based diet will heal your body brain to toe. Just belive in it & keep continue.❤❤💐
These comments are really fueling my motivation to do this work. I am doing better now after 7 years and now I want to help others recover too.
That's great to see Rebecca, I am so happy to hear that you have come so far on your healing journey, Linda has a great charity called 'Salus Fatigue Foundation' that may be useful if you need some additional support or would like to speak with like-minded people. Sending you lots of healing x
My Aunt has CFS and she's gone to every holistic practitioner, she's done all the diets, all the meditation but it gets worse the more she tries. Rest is the best thing for her, when she has rest she's able to do things like go to the shops once a week, a walk around the block, do light gardening - whenever she's been told to push herself more is when she has a flair up.
I find this exact same thing happens to me.
Check CFS-health program or the Gupta-program. Those are programs designed by people who experienced the disease by themselves and they understand what they’re doing. They already helped hundreds of people.
I don't agree. I do mantra meditation daily, its at the core of my healing model. Once peace is harnessed, everything else falls into place. Hope this helps someone.
Rest is so so neccesary. Has she been evaulated from Lyme and mold toxicity? Check out Dr. Jill Crista
I so identify. Sometimes I'll push for several days, then I KNOW my body will need twice as long to recover. My "recover" means my mind and body r re balanced and I am able to do some things again. I went from a super A personality to the point of physical breakdown w stress and a heart attack. Then to Migraines 24 days per month plus my antibodies fought w my healthy cells. So, I'm taking extra care w my doctors and different treatments. Pleased to say, approx 6 migraines per month now, heart is doing ok, and I manage as much as I comfortably can. Seems to be working pretty good although I must sleep 12+hrs per day. I'm listening to the body now!!!!
I'm a 40 year old male I experienced moderate to severe chronic fatigue syndrome from the time I was 25 to the time I was 35, it's a horrible frustrating disease. Extremely tired, couldn't exercise without feeling worse, vertigo, poor memory, trouble formulating sentences and speaking.
I currently take about 15 supplements every day that help me lead a fairly normal life, mostly natural anti-inflammatories, antioxidants, antiviral, and mitochondrial supporting supplements. I'm gluten free, cannot drink anything carbonated, coffee and this includes decaffeinated coffee, pretty sports drinks, and most beers. I'm completely caffeine and nicotine free in fact if I touch caffeine even 10-15 mg it gives me anxiety now makes me feel like I'm going to jump through the roof. And around 30 years old I was taking two 200 mg pills of caffeine everyday to stay awake, that's probably the equivalent of a few large coffees from your favorite gas station. I think the anxiety from caffeine that I currently get is a sign that my body is healthy and now responds to caffeine whereas 10 years ago I could drink a pot of coffee and not feel anything. Don't give up. What I once considered my one good day per month is now what I consider my one bad day a month, most days I feel like I'm 18 again and I never thought that would happen.
thanks for sharing, ur quite inspirational. what supplements have you found to be helpful?
@@5599-b3h I'm currently taking Calm Zone Magnesium at bedtime. Zinc, D3, Vitamin C, Ubiquinol, True Niagen, Chlorophyll, Turmeric, Tart Cherry, Decaffeinated Green Tea Extract and Korean Red Ginseng (KRG Prince Gold) I introduced one supplement at a time over several years, probably tried 50 different supplements and these are the ones that made the cut. I avoid caffeine from drinks or chocolate or any other drinks with Ginseng. My body is constantly changing, I can no longer tolerate caffeine, last night I tried to eat a chocolate bar, I was tossing all night and had anxiety this morning after taking my supplements. Most of my supplements are the vitamin shoppe brand.
@@Kentucky-bz6pg Thank you for the info! Do you take all of this every day?
I get the same side effects from caffeine, that and a hang over, sometimes during the same day, seems worse with m.e.
@@5599-b3h lately it seems like I have to alternate between turmeric and tart cherry, those two with KRG and Green Tea Extract can make me anxious and then I lean towards a panic attack, which is far from my natural state. The vitamins and minerals have never caused any issues, I love the Ubiquinol. I've also experimented with D Ribose, a very small dose does wonders for my energy but too much can cause anxiety for me, it seems like the D Ribose (I've found other people online mentioning that this can cause anxiety) and Turmeric don't mix well together. I'm constantly playing with dosage, and lately it seems the dosages are going down because my body is responding better.
@@Kentucky-bz6pg Why do you think the tumeric or tart cherry are having that effect? Did u find others also have this issue?
Have you noticed if any one supplement helps with energy levels on its own?
Trembling, lightheaded, deep fatigue down to tbe bone, vertigo, eye problems,body pain and weakness etc. It is like someone grabbed all the diseases into one and gave it to us. I do feel like i relate to the poison mentioned here...
There is a solution to it. Please look up DNRS - neuroplasticity program. Helped and completely cured so many.
@@luciafreitas8529 Thanks for the info. like many, I am desperate.
@@Neoyorchese I used to be too. You dont need to be. Look up neuroplasticity, DNRS program,or Dr Joe Dispenza. His book Breaking the habit of being yourself. You are not alone and there is a way out of it.
I've started DNRS and I can see progress
Your symptoms sound similar to mine at my worst. Turns I had had gotten mold toxicity from living in water damaged apartments. Maybe look into it if you haven't... that and Lyme are such big culprits. Dr. Jill Crista's info is very good.
Life has a way of pacing you without your consent. There's a whole difference between doing and being and if you're doing too much your body will force you into being restful.
This is true, some people continue on even when they are being forced to rest though.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending your aunt lots of healing, there is a great charity founded by Linda called Salus fatigue foundation which is all about pacing and balance.
I was hoping to hear more than “I drank smoothies and went on walks”
lol
Me to...wth?
Same!
me too.. i figured these simple things like listening to your body and pacing really are the only things that help.🙈
Well it’s not a real disease so I don’t know why you were expecting a real cure.
I had it bad for about 2 years straight. Slowly I got better, but would have recurring relapses every couple of years at first that lasted about 3 months each. Then the relapses came with less frequency and less severe. Now I'm currently going through a relapse (hince searching things on CFS on TH-cam) and it has been about 8 years since my last relapse. You think you are completely over it then it creeps up on you unexpectedly, reminding you it is still in your system. From experience I know I will pull through this relapse too. I guess I am fortunate to only have mild relapses between years of feeling great because I know so many people never fully recover and feel bad all the time. All I can say is I take care of myself and I tell myself if other people can "recover" from CFS I can too. I try to keep a positive attitude. I hope this helps and pray you long time sufferers will find some relief as well.
I'm on keto and I haven't had any bad episodes so far.
@@XeninaCalifornia What the heck is Keto?
@@douglasvancier7683 The ketogenic diet is no carbs and no sugars. Look at Thomas DeLaurer (or my last video). People used to think it was a fad, but it's not. It feeds you energy. It offers great health to millions and the lifestyle is growing.
@@XeninaCalifornia Oh, I follow that naturally. : )
I tried keto twice, each time I get tremendous stomach pain and cramps.
It's amazing to hear about your recovery from where you were. Amazing. Mindfulness and meditation really helped me out. Recognizing negative thought patterns and changing them over to a positive affirmation has been doing wonders for me.
Any app or videos you can tecommend?
You can't take away the experience of one person. She recovered and well done!! She also got to tell her story through TEDx a respected medium. But that's not the whole picture. There are many of us who are doing the recovery work, and more, to recover but we are not making the breakthroughs we desire. In storytelling terms, we're not ready to get up on the TED stage and proclaim our story complete with a happy ending.
no reason to go easy and be nice. she did not recover, she learned to lower her expectations and do appropriate exercise. Her model of cfs is one of patient fault. Activities and lifestyle are not consistent across cfs patients and thus falls in with all the other theories of cfs causes. if an actual, real recovery is possible from cfs you won't find out about it through youtube. people will light themselves on fire in public to spread the word and celebrate such an occasion. I will, at the least, be running a marathon with a megaphone in hand.
@@schpoingle I recovered 100%. I addressed my trauma’s and unhealthy coping mechanisms(like she tells in the video; perfectionism, control, living on adrenaline, worrying, rumination etc…) It’s about changing the narrative believing you will recover and forcing your brain to change and stop producing all those bad stress chemicals.
Our brain tries to protect us, because it thinks everything is unsafe. If you can let it feel safe, and tell your brain it’s safe to feel, let go of control, let the symptoms just be. It all fades away! It is really hard work but 10000000% worth it. Listen to nicole sachs podcast she explains it very well xxx
@@MelisIliz you guys should alert the mayo clinic! mind over matter! very inspirational.
Mayo Clinic won’t care about a true cure. Only care about treatments and continued inflow of $$$
@@MelisIliz Just reading this comment tricked my brain to calm down and let it go. Thanks for a comment which I was able to relate.
Linda Jones' talk on recovering from chronic fatigue is truly inspiring! Her journey from burnout to brilliance offers so much hope and practical advice. Thanks for sharing your story! 🌟🙌
I'm a senior in highschool and for the longest time I've just lived my life feeling incredibly pathetic and empty, and I had a really hard time understanding where this even came from because it felt so sudden. Hearing you talk about the onset made things so much more clear to me. I went through a period of extreme fatigue that got better but never completely left, I lost the energy to keep up with most of my social life, then I started getting sick, one awful cold every single season for the past year and a half, extreme executive dysfunction and constant need for immediate dopamine. I have such a bright future, I have to take the steps to fix this before it's too late
I was the same as you, noticing the uptick in symptoms as a high school student. I was led to believe that "everyone is this tired" to the point where I was devaluing myself, and my motivation, day after day after day. I internalized the idea that if everyone is feeling this poorly but is still functioning on a high level, then the issue is with me. I must be lazy or unwilling to push through.
Well, turns out, my fatigue wasn't normal. Not even close...
Sadly, I didn't find that out until quite a few years later, and by that time I had done my body in. I had pushed so much that systems were beginning to slow down. To this day, I feel like a car that's almost completely out of gas, that's desperately limping to the gas station. All systems are affected. None are spared.
One of my greatest flaws is my smile. I have continued to smile day after day and year after year, making it less than evident that I am extremely unwell. The small amount of time I'm able to be around others, whether it be at church or in the grocery store, I put my all into appearing normal.
Why then, am I surprised when almost no one believes my situation when I tell them? I don't wish to look sick, but the reality is that I'm quite sick, and have been for a long time. I don't know what the answer is or where to go from here, especially with no financial resources. For the time being I just try to make it through each day, letting others who are enduring similar circumstances know that they are not alone.
Have things gotten any better for you?
hi I got cfs in highschool and i’m sorry but you can’t “fix” it. you can manage it and hope you are part of the 10% that miraculously get better like this woman clearly was because no amount of walkies and smoothies will fix brain chemistry
One of the biggest lessons life thought me is when to step back, and when to rest. It’s okay to feel bad we are humans being what we have to learn is to take care of ourselves. When we need to rest, the recovery of the energy of a chronic fatigue takes so much time to recover and if you have chronic fatigue you have be patient with yourself, small positive steps in order to recover the energy you have to recover. The love that you have for yourself is the reason, the magic 🪄 that is going to push you forward.
Helping people feeds your soul, it’s a magical feeling that increases your energy, feeds your soul and helps you to recover the energy that is lost.
Be patient, small positive steps with love and understanding your heart and soul makes the inner light to start shining.
I have found this very insightful.
As a sufferer myself and have been since 2007 very mildly and progressed to quite severe in 2012 and chronic pain diagnosis in 2015 with a final somewhat diagnosis of it appears to be ME in 2019.
I feel it is a determination of the mind that has gotten me through this.
the very bad days are few and far between and I have found that I am recovering slowly.
I was told I never would.
I have learned to pace and rest when I feel an attack coming on and then carry on gently at my own pace.
There is light at the end of the tunnel; although I am still battling each day with it and I am not where I would like to be as yet, but better then before. x x
Yes mind came on with a bang in 1988. I had it bad for 2 years, then gradually got better. Now it mostly stays in remission, but I am going through a relapse and it's been like 8 years since my last relapse. You think it is gone forever but it creeps up on you out of nowhere as a reminder it is still in your system. I always keep a positive outlook and from the beginning I have said if other people can recover from this I can too.
I am so sorry to hear of your struggles but it is equally great to hear that you have come so far on your healing journey already, Linda has a great charity called 'Salus Fatigue Foundation' that may be useful if you need some additional support or would like to speak with like-minded people. They have helped me so much on my journey x
Same here. I lost 3 years of my youth to CFS. My vision sucked. Everything looked foggy. I couldn't even walk for a block. Ringing in my ears. But we don't give up! Help those who are in need. Bounce back friends!
how did you recover
@@samarthpadaki4846 🥲🥲 same question here
How are you now?
How did u recover?
Goodness - this resonated with me when you said that your brain shutdown and you couldn’t string a sentence together! I have just experienced that and my memory went and I had to take a month off work to recover! Time to think of me and slow down.
Same happened to me! It was terrible.
My sister thought that I’d had a stroke initially
I'm 20 and I had the onset when I was 17. Hearing this talk, your words give all my struggles a real basis, and I am so grateful to you for giving me that single most important belief while I suffer.
I realize now I have had this longer than I thought.
I feel you, I am too.
And me too!
I had it when I was 18 something and I lost my future and every potential to be something.
it’s happening to me rn and i’m 18. my parents won’t and dont want to believe it
My CFS was triggered by 2 or 3 years of chronic and unceasing stress, tension and anxiety. This is the fourth year I have been suffering from this condition. I am young; i can’t study or work. Financially I am dependent on my parents. My symptoms include Brain fog, unending fatigue. Besides CFS, i suffer from social anxiety, depression and i get stressed very easily. Life is not fair. At the moment I just don’t know what to do with myself, with my life.
This is a good start Abdul, listen to people that may be experiencing similar issues you are. It’s the first step, you did it! As you listen, try to relax your mind and understand-you are not alone in this. Hope Spring will bring you some sunshiny days so you can feel better.
Sounds exactly like me
Did you get checked for nutrient deficiencies? All of them? So many of them can *cause* cfs. Most people dont realize cfs and depression are often symptoms rather then causes themselves
Candina infection could be something worth looking into as well.
TH-cam really be out here deleting comments :/
*Was she misdiagnosed with Chronic Fatigue Syndrome?* She specifically says she was able to increase her exercise which is the opposite to the post-exertional malaise that is part of true Chronic Fatigue Syndrome. CFS/ME doesn't manifest in the same ways in everyone who has it, but it does have some consistent criteria and Post-exertional malaise is one of them.
I've had this disease since 1976 and with each subsequent illness, car accident, trauma, mold or pesticide exposure, it's gotten worse. I've done all she did because I too am a driven ambitious person like she is, like _most_ people who get CFS/ME are. None of it has helped me; in fact the things that worked for her don't work for most people with CFS/ME. Certainly not graded exercise. For most people, exercise makes it _worse._
So, was she misdiagnosed?
Feel the same 😥
Yup agreed. Doesn't sound like she even has M.E.
Yeah I agree. Doesn't fit with the current diagnostic criteria.
I'm wondering the same. Some forms of depression can have very similar symptoms as CFS. Especially considering she was able to increase her exercise that does not sound like CFS to me. Sounds like she had a major depressive episode and eventually recovered.
I am so sorry to hear of your troubles, that's an interesting view to have. I feel that Linda explains that she cut down to no exercise/movement for many, many years and now when she does say exercise she means more gentle movement. Exercise doesn't have to be running a marathon or lifting weights, it can be gentle yoga or thai chi as well. Thats what I have found helped me a lot. Its all about pacing and listening to your body. Sending you lots of healing, take care.
She's really quite an awesome speaker hey. I'm not sure about the rest of it, but the way she expresses herself and commands attention is really superb!
What an inspiration Linda is, it can give us all some hope and motivation to do that same. Linda has a charity called Salus Fatigue Foundation, what an inspiration!
Thank you for sharing your story. I’m currently totally flatlined and have had to let go life as I know it. Bedridden. No desire or energy to do anything. Full stop
This is me right now so depressing. I wish for a cure.
How are you guys doing now?
The flu that last forever and one good day is like a blessing. Welcome to my world.
Do I know this!
I know exactly what you mean about one good day being a huge blessing!
yep yep yep, there now.
and mine too!
Just had this happen yesterday, had a pretty good day and then woke up with a pounding migraine and ended up sleeping way later then usual. It was another gut shot one of many since I got sick 4 years ago. That’s why I’m here today, I was so sad and upset that stringing together 2 days is nearly impossible and one day is rare
Thanks for the great talk Linda. Unfortunately there are those of us who are in the 25 percent severe range and any form of exercise is out of the question. If I try to push myself one minute , say walking up and down the driveway for two minutes on a good day, then I will not be able to get out of bed for months on end and be very severely ill. I tried yoga when i was in a very bad flare up, I mean yoga gentle stretches and it nearly killed me. I think we all have different levels of this illness so one's road to recovery does not apply to all. Having said that, I am very happy for you :) Thanks for describing how bad it can get. Oh it can get worse than the flu as I have often been paralyzed on and off etc
Adinas Henry I am so sad to hear you suffering like this Adinas! This must be horrific to live like this. I have it mildly and that’s bad enough with the pain and headaches etc.
I really feel for you. Xx
Adinas Henry , I have had severe CFS since 1993, woke up with the worst flu type thing, has never left. Never been the same since. Limbo life, changes hour to hour and the only things Dr's have done is make me so much worse as I am allergic to any and all meds/treatments. I could write so much more. I could of bought a house with the money I have spent to find something/anything that might help. Lost family and friends and so much more in this illness. I am so sorry for us all. Now in my older years, my nervous system has been hit with constant vibrations and pains like a shingles type pain along all my nerves. Possible epstein barr type neuro damage. No one can say. Hugs and love to my fellow CFS brothers and sisters and family members looking for hope!!!
Feel for you
I'm trying to figure out If this I's what I got severe chronic exhaustion where no anount of sleep next day makes me feel I've slept at all could this be it
Hi Adinas, I have the same as you 😔
I have been dealing with chronic fatigue for about the last 5-7 years. I finally caved and got treated for adhd and my medication is the only thing that gets me moving. Without it I’m basically useless besides the first 1-2 hours when I first wake up. It’s the only thing that has helped me
What medication are you on if you don’t mind me asking? I am having the same issues and also have adhd
Thanks for sharing. Not a lot of people admit that their medication helps. It should be accepted and normalized.
When you turn the volume to the max and still can't quite hear ... Am I the only one? :D
Omg I thought my device was broken or sth
I can hear
And only on the left side of the headset
Me too
It’s your device! The video is very loud, I’m watching on min volume
Sooo true. I'm still battling since 2009 from severe Fatigue, Vertigo, Tinnitus, Sleep disorder, Nerve ending disorder and Moderate depression. I'm already addicted to energy boosters. But life must go on... Try to survive each day.
How r you doing now
Same here… vyvanse and constant tea… if not tea, coffee or cocoa, or sugar…. Rest doesn’t help. Slowly burning aelf down
This talk is my treasure .from the bottom of my heart , thank you!
Yes mine too
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending you lots of healing, there is a great charity founded by Linda called Salus fatigue foundation it may be worth your aunt looking into. Take care x
I cried cause I'm going through the same thing. No one else understands!😭
Me too😭😭
me too, It‘s so incredible hard 🙃
Me too! My doctor is still trying to test my bloods but I know this is what I have!
Charlotte oh god yeah.. i remember this timw without diagnosis as such a dificult time. I hope you find a specialist soon! In Austria where I live there are only 3 in the whole country.. LOL 🙃
@@simonem4040 thank you! And me too! Here’s to finally getting diagnosed after suffering for the last 12 months 😭
This happened to me, almost exactly the same as you. This validates my experience, I still question it sometimes, but I KNOW I was trying everything, and doubting myself is just because I've come so far out of that dark hole. Thank you for sharing
Around 75% of people with ME/CFS only have mild or moderate symptoms like this lady here. They can get by somehow. But there are 25% of pWME who are very ill and are housebound and bedbound. These are the people science and medicine needs to help.
How about they help everyone?
Yeah agreed had mine serve four years. People like us know it's cellular energy problem along with the science and poorly underfund researchers. Not something you can "fix" yourself.
@@lelediamondASMR Hi. Sorry to hear, How do/did you feel when you were so bad? Can you explain as half of us are only moderately affected I think even though that is still bad. Were your muscles affected? I have always thought my muscles worked ok even though they used to twitch especially after using them. That went away over time though. WHat is it that makes you have to stay in bed? I think I felt like that once for a few days. I felt weak. I didn't understand it.
M P pain. Weakness. No strength in any muscle at all. Can’t lift an arm. Dizzy. Tachycardia and low blood pressure if attempt to sit or stand. Talking for more than a few minutes or sometimes words crashes us. If u force yourself to stand up through pain and passing out u will crash that day next day and for weeks after.
XMRV and the work or Dr. Judy Mikovits; search her.
This is an interesting story , even though it’s not mine , I can see where this lady break through made a difference to the strain on her previous life style and how it may have cause her burn out .
I am grateful to hear she is managing to get her life back after a long struggle .
I am looking for my own way back because it is difficult and drain every time you try a new idea.
It gets scary because you know the daily systems of your life physically , and your mental state of mind and now you try something new and now it’s more pain , shattering , start over wasn’t on the cards .
Have seen this video it was brave to come forward like that to put her self there and tell it like it is ,
because there are many billions of people who think your just making excuses , and those of us who are experiencing this condition know that her story tells it like it is and I am glad she put her story there because it’s also given me the Will to look for away to help myself and possibility it might help others ,like she has made me feel that I should keep trying to find answer as the alternative stinks .
I am going to contact her and see if she can help me , and even if it doesn’t I hope to keep trying because I know like a lot of you how soul destroying this can be and I may find answer or maybe one of you who reads this will .
In the mean time , I will send best wishes and lots hope to you all , stay safe and thank you young lady for this video because you are younger than me for sure , may you be bless for your kindness and inspiration ✋🏻🌏😇🤝✊🏻👊🏻🙏🏻
Look into brain retraining.
Bring it on and years later, I've only realised I was just trying to prove my worth and abilities always with the belief I had to work harder than anyone else.
This sounds like me. Wow. It hurts to know that this happens to so many people
@@jessiej5203 it does for sure.
@@dianaroberts5930 awareness! cool!
I thought it was only me
Yep that's me! My burnout expressed itself with crippling autoimmune Rheumatoid Arthritis. I lost everything became homeless and have tried everything under the sun to heal but I still struggle with the fatigue 7 years later...
To those that have had others create problems in your life. Be happy you are not like that and contribute to the balance of a better world. Give yourself that permission to be happy and it will hopefully give you a calmer clearer mindset and a bit more energy while you try to figure out the rest. I am not talking to the others because i dont care to. It is a bit like having the flu at home in bed vs having the flu at work while running a marathon...There will hopefully be a bit of a healing advantage and faster recovery to being happier. Know that you have invisible friends unknown to you in the world that truly want you to heal...
I've been suffering from ME for 23 years now and every year it gets worse and worse. Still it seems like nobody understand or even cares but it's great to see that at last the medical research is producing results and that our GP's are starting to take it more seriously. I can remember the bad old days when many doctors were skeptical that it even existed and the NICE guidelines recommended graded exercise, CBT and pacing, well they got one right lol. I can remember the CBT making me feel worse, like as if it was all my fault! and being persuaded to go to the gymnasium which nearly killed me
Try looking up Teal Swan's bit on chronic fatigue here. If you're willing to let hard science rest aside (which currently can't really help in this matter anyway) and are open to other than just strictly medicinal approaches to crack the nut (and willing to work on yourself), you may find relief there. Maybe even more. Good luck fella!
Fragmenting our lives from the inside, and often unrecognizable from the outside. Yes this is a thing.
All we do is work. Non stop. We have been conditioned to believe wealth comes from material things and in order to do that majority of people just work and party in hopes that one day they will feel fulfilled... Most of the working and middle class drop like flies these days, whether it's some sort of diseases, break down or just simply throwing it all away to go on a different path. We need balance so much. We need to look after our planet and each other.
Frighteningly true.
@@katec9893 its a grace from god that you are able to not work at all for so long without being homeless... xoxox im glad that at least you had that, i am in the same position, but i have to work at least part time to afford food and other basic necessity, luckily i have a roof over my head free of charge. i also wonder how other people do it, its a living nightmare, im glad im not alone
@@oliverjones2426 i manage because im in a country which still has social housing, free NHS healthcare and disability benefits, as well as disability discounts. Even so, i can only afford to have my heating on for 1.5hrs each day.
13 minutes of hearing what I already know, since I'm going through it but in a flat, monotone voice. And the solution was 'keep going'. Probably one thing that leads to my lethargy is trying to find advice and solutions and coming across videos like this.
Could not agree more! I hate videos like this. Total waste of time with nothing useful.
I lost 2 1/2 years of my life to this. This is a tiredness that never seemed to go away. Lost 60 pounds just too tired to eat. Healed myself...stopped all prescription meds and smoke marijuana...I was RN for 30 years and never used marijuana before...my son convinced me to try it. It helped me get off all pain meds and everything else I took. Still great today.
My father has had this very badly for 12 years. It's what I grew up to know of my dad for half my life basically. After 12 years we finally convinced him to try thc. Do you think it helped you because he finally agreed the other day saying he'd try anything
@@jordanmason4195 seriously or you are joking. People might start using it.
@@jordanmason4195 just saw this message. I totally believe the THC healed me. Changed receptors in my brain. Still good today but rarely use THC...occasionally for recreation best of luck to your dad
I'm going on 20 years. December is my 36th birthday.
@@raindrops1047 Weed can be very therapeutic. It put me into remission
As a doctor leaving i am happy to see this young lady recover. The goal is to be happy. Stress in any profession is not worth it if you do not love what you do and anyone violated you for doing it. To the military officer and others below, i believe you. Long covid is real. As are many other entities viral and others that require a medical workup before saying it is just nothing.... You have to rest and find happiness in your day and readjust your limits until you get better which is part of a hopeful mindset. I started meditation this year and noticed that has helped with my own mental state a bit. Doctors definitely dont have all the answers. Long Covid is very real though. So is the Singularity and all the other programs going on underneath the surface that will likely affect the bottom 80 to 90 percent of the population and those not in control eventually.
I was always amped, I had boundless energy and would often over train or over work. I was also a very anxious person and felt I could never completely relax. I got covid in July, and the recovery completely burnt me out. I know have what feels like a profound tiredness like no other. Life is telling me to slow down. As hard as it is, it's a life changing experience with some positives and once I recover from this, I'll be a better person for it.
How are you feeling now I got covid around the same time and I am also have fatigue so bad
@@angiescorner9549 5 months on and it's much better, but I'm still not back to baseline. I still have massive energy dips through out today. I also feel wrecked after intensive exercise, but on a positive, I have moments where I feel like my old self and I can exercise to a point without crashing, so I'm improving.
Covid didn't phase me.
The broken elbow is what got me XD. Three days after surgery and there's no way I can do anything ambitious. I have to say no.
Life has officially forced me to slow down and take it easy and I have no choice lol...
@@Olivia-W what’s weird is I had such a mild case of covid but it seemed to hang around in my body and throw balance off I think I became vitamin deficient and dr. Berg was right vitamin b1!!
Covid Recoverers please, I have a question....I was at top physical shape when I got Covid beginning of Feb. I didn't have a very strong form (most common symptoms were, some body aches and fatigue ). I recovered and got back to the gym in about 2-3 weeks, was ok for a couple of weeks , but then started getting muscle/body aches and most recently the fatigue back again...Could this be Covid related still? I am also a health anxiety sufferer and currently driving myself insane that I have something sinister :(
Why is it always the overachiever, the perfectionist, the ‘type A personality’ who doesn’t believe in rest? why the fighting the diagnosis, the endless searching for answers outside of themselves, the resistance to the explanations and help? there seems to be a pattern, and I suspect it lies in our attitudes and our beliefs...
I am there right now.
and conditioning! definitely our conditioning.
@@gabriellehalette exactly. I was conditioned to feel guilt for taking sick days. Even after my diagnosis and my doctor ordering me to take 1-3 months off (which has now turned into 2+ years), my parents first question was “but what about your job?” ...my parents (and society) conditioned me to put job over my own health my whole life.
@@twillsJKZ how are you now?
@@Sarandib22 it’s an interesting idea, but i disagree. The perfectionism, the striving, the impossible standards- they are an inextricable part of the illness. The “type B” personality, the passive one who takes things in stride, accepts the good enough and doesn’t need to be first doesn’t get chronic fatigue, because they value rest over their achievements, being over doing. Chronic fatigue occurs because the nervous system has hit a threshold, a normal physiologic limit that presents itself to the sufferer as unacceptable. The fatigue is actually not the problem- it is more the denial of perfectly human limitations.
20 months into my battle. I don't feel the differences day by day because it just feels like constant pain, headaches and tiredness, but then I think back to months ago and what I could and couldn't do and the level of pain I experienced then, and I take heart because even though I still don't feel like me, I can feel that I am making slow slow progress. I wish everyone suffering this horrible affliction the best for their future health.
Hey try changing your diet and try a contrast shower they have helped me hope you all the best how r you feeling now
The fact that we search for such symptoms when it's already a bit late is messed up. You're doing a great job 👏.
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Take care x
Painkillers and the reason I don't take them. I really believe the pain that impacts my life daily is related to my emotional threshold. It's the upsets, stress, anger, hurt, push, pull, expectation and all the doings of living is what's killing me from the inside. My spirit is dying and day by day I loose the will to live. Until I have a good day, feel like I can participate and then it all just happens again.
You must make sure not to push yourself friend! I hope you are okay
Thank you very much, this is a very important message. I also wasted a lot of life on chronic fatigue but still didnt learned how to give myself a rest when I have the energy. I burn it down completley and then wait in numbness when it will come back but lose too much meanwhile
Totally agree, rest is the best thing to let our bodies heal naturally! The mental side is a huge part of recovery. Sending you lots of healing, there is a great charity founded by Linda called Salus fatigue foundation it may be worth your aunt looking into. Take care x
I’m shocked by most of the comments here. In Belgium we have a whole department in the hospital that is dedicated to CFS. The therapy of 2-year consists of a changing step by step your life habits (cognitive-behaviroual therapy). 1) avoir des heures de sommeil réguliers, sans ça il est impossible de guérir !! 2) avoir des heures pour manger réguliers 3) faire un tout petit peu d’exercice (2 à 8min) mais dans la limite de ce qui est possible il ne faut surtout pas se sentir épuisé après!! 4) faire une promenade de 3 à 20 min, mais dans le seul but de se promener et apprécier la nature. 5) suivre la règle des 20 minutes quand vous effectuez une tâche, faire une tache 20 minutes maximum puis s’arrêter faire une pause et continuer !! 6) prendre soin de soi quotidiennement
Dude switched from one language another, lmao
@@tabinb.6984 lol I'm sorry
@@xLaurish Translation: "1) have regular hours of sleep, without that it is impossible to heal!! 2) have hours to eat regularly 3) do a little bit of exercise (2 to 8min) but within the limit of what is possible you must not feel exhausted afterwards!! 4) take a walk of 3 to 20 min, but for the sole purpose of walking and enjoying nature. 5) follow the 20 minute rule when doing a task, do a task for 20 minutes maximum then stop take a break and continue!! 6) take care of yourself daily"
What a blessing testimony that is. God bless you Sister.
Only Jesus heals, He is our purpose🙌
Feeling the same after having covid, thanks for sharing!
this made me cry this is so me right now ever since I got sick with Covid seems like my fatigue is getting worse day by day
Wow aww thankyou So much ☺️ i too' felt the same way of taking my life but if not for my children and friends, I couldn't do that ~ So now it seems like a long walk of learning about chronic fatigue Syndrome, but yes I was also that person too'
always on the go & people pleasing too
Thanks so much for giving this talk..it really did help me and got me to fully understand 💖 hugs to you 😇 gina 🙋
What helps me is pray and listen to a lot of motivation videos, also trying to visualize my future and it pulls me to do things and forget the pain. When the pain comes I just take a nap. Then put earphones and.listen to motiv and I'm up again. Also helps no eating carbs at all I've noticed it get worst when I eat potatoes or bread or sugar. My 2 cents.
God heals! Amen🤗💓
Thank you so much, Linda. I'm so happy that you have recovered. I'm suffering from a burnout right now and this video was helpful
I am 29 in 2 months and have experienced this for 20 years--since age 8 when I was being abused and suffering with (still am) severe C-PTSD.
I'm so sorry to hear this. I hope with all of my heart that you get your life back soon!
I SO wish people would understand this damn ilness! Im SO tired of trying to explain and noone understanding it. 😪
Yep yep hopefully it goes away one day
Me too. So tired of all the people saying "but come by anyway, it will be fun and get your mind of your symptoms" or "how about we go for a trip for a week and you can help me take care of my kids, they are so wild you'll have no time to think or feel".
I'd rather chew my own leg off than doing that. My dream atm is being able to get out of bed in the morning. People just don't get what this is. They have no clue.
💞
And then there’s people who don’t think chronic fatigue syndrome exists
After I talked to my Doctor about my symptoms; My GP told me that “it’s all in your head”. Meaning it is not real.
I found this video somewhat self focused and unhelpful. This is the woman's story not any explanation of her method out of a metabolic disease. A hypnotherapist ? What exactly did the naturopath say was causing it and what was that doctors solution that worked so well for you? How do you know you had it....symptoms aside that is? This is a blood plasma disorder caused by infected NK and T cells in the brain which cannot be treated at present with drugs that cannot pass the blood brain barrier. This leaves the brains immune system constantly attacking the infected areas causing hormonal disfunction and CNS inflammation that is measurable. See Stanford studies. The result; the illness causes metabolic dysfunction in the mitochondria. Usually digestive disorders are comorbid and there is some suspicion that the illness may be a dual inflammatory autoimmune disease of the brain and gut. I suspect that genetic predisposition coupled with environmental stressors are the epigenetic trigger that causes the IBS or Celiac which then feeds the unknown coexisting autoimmune of the brain which then causes a digestive disfunction that perpetuates the breakdown until one day your cells aren't making enough energy to operate the brain properly and we then start getting systemic pain, gate problems, sleep problems and cardiac and breathing issues. Eventually the body cant take anymore and cancer comes to take us. There are two labs and two universities in America that are perhaps only months away from being able to provide publicly available testing that is conclusive. The genetics can already be tested for but they developed a special blood testing chip at Stanford. Also there is a new anti viral that they are developing for this illness. I hope I haven't ended my life before it arrives but like the lady in the video said it is pure suffering and pain all the time and zero quality of life.
james edwards Same 😪🌹
Fasting and zero carb is something worth trying if one hasn't yet. It might not do anything, but in a few cases could help, especially before the going gets really bad.
I got a few warning shots in my life, and a recent surgery is _making_ me slow down, eat nearly pretty much mostly animal products (protein, the more the merrier...) and... it'll be ok. Not great. Maybe never great. But ok.
Thank you, because this video is positive but also almost like saying that ME/CFS is a volitional and or subconscious thing… exactly what has caused so many problems for those seeking the medical system’s help.
Thank you for so beautifully summarizing the multiplicity of factors involved in several conditions with similar symptoms due to similar breakdown mechanisms.
Hey James, how are you doing now?
Same. I hope I don’t end it before some decent treatment. This is not living, unfulfilled life and no quality of life. I want to live SO BAD. I love life but my body and brain won’t allow it. I HATE this.
It's been almost 10 years. It hit when I was 25. Feels like it happened over the course of just a week or so. But it hit me hard and people who knew me before noticed how suddenly exhausted I looked. It hasn't gone away. There was a moment a few months ago where I felt like my old self again. Just for 1 day. And the interesting thing about that day is that I was EXPLODING with energy. It's like my body knew that there was all of this potential energy that had been caged by something. Maybe that day was just a "glitch," but it got me thinking... Maybe I accidentally hit a solution with no idea what I had done.
Just wonderful, I have been researching "chronic fatigue syndrome wiki" for a while now, and I think this has helped. Ever heard of - Diyadelyn Ziyily Idea - (Have a quick look on google cant remember the place now )?
It is a great one of a kind product for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) without the normal expense. Ive heard some extraordinary things about it and my partner got great results with it.
Omg!!!! I had this too!! One day I suddenly was myself for a few hours untill I went back to sleep! Waking up sick again was terrible
@@hounogsteedsvanjou Isn't it strange? You spend so long being exhausted and you get this moment of "head above water" .... I was thinking ... "Oh... I remember being THIS person. I've really missed this."
@@digiwhite6470 DOES THIS REALLY WORK? i literally tried everything...
@@thinkingoutloud3757 djeezz i feel you. i made a video of myself and watched it back the other day when i was ''the other person'' again. Thats how i call it. Because the person that I am now is not myself because of all the symptoms my personality changed aswell... but then those few hours that i was myself it was AWESOME and i told myself im not getting crazy its not in your head etc
I was burnt out once, it was light but it still kept me out of work for 6 months and i felt the effects for a few years after.
Then i got long covid.. Id say that was like my burnout x100 ive never felt such system malfunction before. Im still unable to work 2 years later.
You should look into brain retraining.
@@andrewlorettakish6210 yes ive done that, id recommend it too.
Play at 1.5x and save four precious minutes
1.75x is better
Thank you so much for your inspiring story. So lovely watching and listening to you. Thanks to technology, Tedx and TH-cam, if I can connect with all of you. I am learning a lot, just sitting here in my balcony in the mountain of Trentino Italy. Lovely woman.
Great video content! Apologies for butting in, I would love your initial thoughts. Have you heard about - Dinanlinson Rebooting Health Approach (do a search on google)? It is an awesome one off guide for getting rid of chronic fatigue syndrome without the headache. Ive heard some unbelievable things about it and my close friend Aubrey after many years got amazing results with it.
Excellent video content! Sorry for butting in, I would love your opinion. Have you heard about - Dinanlinson Rebooting Health Approach (erm, check it on google should be there)? It is a good one of a kind product for getting rid of chronic fatigue syndrome without the hard work. Ive heard some incredible things about it and my cooworker got astronomical results with it.
What an inspiration Linda is, it can give us all some hope and motivation to do that same. Linda has a charity called Salus Fatigue Foundation, what an inspiration!
There is a very good documentary on the subject, it is called UNREST.
Nice video content! Excuse me for chiming in, I am interested in your thoughts. Have you considered - Dinanlinson Rebooting Health Approach (search on google)? It is a great exclusive product for getting rid of chronic fatigue syndrome minus the headache. Ive heard some extraordinary things about it and my GF got amazing success with it.
That on u tube
thank you pelikansunlover
I saw that, brilliant!
I had severe fatigue for the first 40 years of my life. I then found out that I had an intolerance to the Corn protein (High Fructose Corn Syrup , Corn Starch , etc.) Many people have a delayed reaction to many of the ingredients in processed foods (Soy , Dairy , Gluten , etc.) Look into Hidden Food Allergies (Intolerances) or talk to a Doctor in Integrative Medicine.
Yes I can relate to this talk. Busy busy busy and just keep filling up the day with things to do.
it never stops does it!
Thank you I am not just pleasing everyone else any MORE
I've had depression and got manipulated by so many including my parents. School life was the worst ( still in school, last year) those year have been depressing and dark so I wanted to change, I wanted to be something in life I pushed myself so hard I would work all day I would think about studies 24/7. Sleeping for 6 hours was a luxury. This kept going on then one day I couldn't wake up I slept all day this kept going on for 2 months. Then I knew something was wrong with me. It's Still the same I'm healing from it my brain is just exhausted I need hope again and seeing this makes me wanna change my life.
I went through the same. This is probably burnout, I already researched about cfs enough. How are you doing today?
Do you have any other symptoms?
@@Zee1998-c4w no. I had a severe depressive episode
Is being busy just a distraction from life, avoiding emotions we don't want to deal with?
For me I think yes it is and now I gotta change that
I used to look at it that way, told myself "do something to distract yourself" when I wasn't feeling okay.
Until I realized that only makes you stop enjoying things in life, you only care about distractions, not things that you enjoy.
So the answer is to do things "to feel better", not to "get distracted"
I fully support her sharing her story - any attention to this crippling illness is a good thing - but unfortunately her experience is not typical of most patients with ME or CFS. Most people get worse not better as time goes on. Telling people you can get better is not true for everyone - at least not where the science and medicine on it stands now. Hopefully they find a cause, treatment, and cure soon. Glad she was one of the lucky few.
I disagree. I dont think most get worse as time goes on. The little research on ME shows that patients improve overtime
It seems that the cause for some is Lyme disease, mold toxicity or some other infection... I always encourage people to try to get tested for these through a functional medicine doctor or ND. Mine turned out to be mold toxicity from living in water damaged apartments
@@annatomlinson1529 are you getting better?
@@harmonic432hz9 Yes! The progress is slow but I'm way better than I used to be. After moving to a low-mold apartment and doing a supportive protocol for mold toxicity
Wow, I thought chronic fatigue was just being tired for a week or two and then getting back on your feet and going about your daily life I had no idea there were no cure for something like this. I really need to start taking better care of myself
What a remarkable woman. I've watched Chronic Fatigue break a few people, regardless of their motivation and determination, they have struggled to see the light at times. Sharing this with a few people in hopes it might help them
Thanks for the share Sammy, going to pass it on to Mum!
@@verymarysalisbury so welcome my friend.
I keep hearing the term people pleaser though I think chronic illness has more to do with what your are holding on to, finding it hard to communicate and being honest about how things impact your well being or hurt you. Mostly self protection in some way or not hurting the feelings of those around you.
being a chronic people pleaser leads to illness
I have chronic fatigue syndrome and all my life i cant stand seeing people upset and put myself second. Interesting
@@Alicia-gj2nl that is biggest illness we face, not caring enough for ourselves.
@@Alicia-gj2nl true yes true
I watched this video because I feel this same thing. It's been 5 months already and I hate it. I've tried so hard and forcing myself every day but it doesn't work. Every day is the same. Trembling, lightheaded, deep fatigue down to the bone, vertigo, eye problems, body pain, weakness, etc. However, hearing her story gives me hope.
I am the same have you had any difference since then?
Rest and pacing are key. Don't try to push beyond your energy envelope, because you can make yourself a lot worse and lessen chances for a good recovery.
@@Lone_Star86 now, after trying my very best. Yes, now it's improving. Fighting!
@@jackienaiditch7965 thanks! That's what I did and gladly it works. I just made sure to atleast do something every day. Now, I have improved a lot.
@@Emma-oz5xp I was recovering fast before then I felt like I was being pulled back but did my best to fight it. Now, I feel much better. Though unlike before, I'm recovering slower. I am not fully okay yet but I know I'm almost there.
Good to hear a local accent from where I was born.. I agree with other comments.. It was more a life story than actual actionable advice and help.. I joined the Facebook group mentioned in thy comments..
This lady is a bit of a force to be reckoned with I dare say. Fabulous talk and she obviously has a lot of resilience, I have never known anyone to be mostly cured from CFS. Amazing.
Check out universe guru mina irfan she cured herself from chronic fatigue and from rhematoid arthritis and burnout
This is quite damaging. Some people do recover. Saying hot and cold showers, diet and a positive attitude cures m.e. is putting those with severe, unrelenting symptoms in an 'youre not trying hard enough' box.
Absolutely. Insulting talk equating her burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome. Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis.
I keep clicking Ted talks hoping there will be useful information but it’s a lot of me me me and dramatic silences.
This Ted talk may not have been for you, but it was really helpful for me. I am at the beginning of healing my own burn out, and hearing her experience and some of the things she did to recover gives me hope.
TedX is not the same as a Ted talk.
Im a 33 man, i dont know if its severe depression or chronic fatigue syndrome that i have, all i know is after my heavy burnout 1 year ago after years of taking way to much stimulants, i slept like 14 hours a day for a whole year, and now its down to 10 but i cant work more than 2 days a week, any more and i will spend the whole day after sleeping, luckily my boss and my parents are very understanding, they can see it. any stress is too much, my whole body feels like its shutting down and everytime i try to push myself my whole body shuts down, i have to be in constant dark or i get extremely overwhelmed by the light. Ive lost most of my hair after my burnout. i cant workout too much anymore. i cant do anything i used to do. i was already a pretty depressed person but this feeling is eating me alive, like my whole body is rotting from the inside and its starting to show so much, i dont recognize myself anymore.. i feel like this tired blob of flesh. i hate the way i look, and even worse the way i feel. I feel so heavy, so tired, like a 90 year old, my parents are 70 years old, im only 33 and they are much more active than me. i cant do much , its a mix of extreme fatigue, anxiety, depression, im just suffering all the time, and wish it would just end. im praying for a quick death most days. Its excruciating, and i pray to god everyday to deliver me from this pain, when my parents are not here anymore i will sure put an end to it. i still manage to do a walk everyday and do light therapy and take multivitamins and antidepressants... but i feel completely completely lost.
Hey Jones. have you you tried alternative mdes like Lions mane mushroon, Baccopa monniera, tukey tail mushroom.?
@@DjImpaq yes
Check out fasting, glandulars (desiccated bovine glands), herbal tinctures, fruitarian diet, raw carnivore diet. Adrenal glands are involved in CFS. Check out Dr. Robert More’s channel, Robertmorsend. He is a naturopathic doctor.
I'm glad she recovered from her burnout, but it's harmful to equate burnout fatigue (which is curable) with ME/CFS (which isn't). Chronic fatigue is not the same as chronic fatigue syndrome, also known as ME.
Doesn't sound like she even had post-exertional malaise, excluding her from an accurate ME/CFS diagnosis. If exercise cured her rather than making her worse, she didn't have ME.
Please don't take away from this talk that people with ME/CFS haven't tried hard enough and just need better nutrition, walks and yoga. Trust us, we've tried it all.
I wake up in the night with panic attacks and anxiety, even if I adhere to a strict routine / don't use blue light before bed, stay active. I've noticed my reaction to certain work-related triggers are WAY more elevated than they should be. I'm just trying to work out what's wrong with me so I can get better.
Eleven minutes ten seconds into this self-absorbed woman and there was still nothing that could help people like me that are in pain almost everyday. Is it enough to just know that others are suffering too?
Thought this was a concise way to self healing but no.
I have also cronic fatigue syndrome 😔😥😭. It's started when i was 15 years old now i am 18 yrs but no changes . I m facing bad sutitation every day. It's so bad to facing this problem.
Same
@@meenakshigupta3819 how do you know you have cronic fatigue ? If you have any fatigue you should reduce watch screen . dont do any activity that your sporm came out. And sleep enough
I want to know: how many other people have sudden attacks of severe fatigue throughout the day that incapacitate them for the rest of the day and possibly into the next day, for me usually after even the most moderate of exercise?
I've become very sedentary these past years. I thought my fatigue had improved, but it's likely the lack of exercise that in large part led to the improvements. On a bad day, I'll have these strange aches throughout my body. I'm talking from my feet to my fingers. I'll somehow manage to convince myself all I need is a good rest, but it'll end up taking ages. It's like all of my energy just flows out of my body parts and I'm trembly, so trembly.
I'm lucky that it's no longer a daily occurrence anymore. Massaging the aching body parts seems to help, but I feel it again once I stop massaging myself. This sh*t sucks! Big time! To think that there are people affected even worse is depressing.
When I wake up I usually feel pretty normal.. then between 1:30-3:00pm I get an insane narcoleptic wave of fatigue.. it’s like everything shuts down, including my brain- I am totally useless. I try to make sure anything that needs to be done gets done before noon. This all began after having Covid in June.. along with the debilitating fatigue, it feels like I have depression, worse ADD brain than I did before, and much louder tinnitus. It also feels like socializing is stressful, & I have less patience in general. I’m usually someone that gets more done in a day than most average people do in a week, so it’s extremely frustrating & depressing to now only have a short window of time each day where I feel like I’m functioning.
chronic fatigue syndrome and fibromyalgia is caused by pproblem in the production of ATP (adenosine tri phosphate) you see in every cells in our body there is a mitochondria that is the pwer house of the cell which produce energy for maintanance of the structural integrity of the cell, SYNAPTIC SIGNALING PURINERGIC SIGNALING, DNA AND RNA SYNTHESIS , ACTIVE TRANSPORT AND MUSCLE CONTRACTION. THESE ARE ALL IMPORTANT PROCESSES AND FUCTION IN OUR BODY TO MAINTAIN HOMEOSTASIS AND ALL THESE REQUIRES ENERGY IN THE FORM OF ATP IF OUR CELL IN OUR BODY DOES NOT PRODUCE ENOUGH ATP THATS WHERE THE PROBLEM START THATS WHY YOU HAVE NUMEROUS SIGN AND SYMPTOMS THAT CANNOT BE EXPLAIN ,LIKE UNEXPLAINABLE ORTHOSTATIC INTOLERANCE, HYPER ALGESIA AND ALLODYNIA, VERTIGO NUMBNESS AND TINGLING SENSATION ON DIFFERENT PARTS OF YOUR BODY, FROZEN SHOULDER MIGRAINE, ALLERGICAL REACTION THAT HAS NO BASIS,IRRITABLE BOWEL SYNDROME ALL OF THESE ARE BECAUSE OF LACK OF ATP PRODUCTION IN OUR BODY.
You have clearly done your research. You should be the one to give the Ted Talk. Thank you. No 2 cases are the same- of course this goes without needing to be said as well as the path to healing will be the same. This Disorder impacts EVERY system in the body- old Viruses, new Viruses, new infections, inflammatory processes, stress, toxins of all sorts, emotional distress ALL Keep the body from achieving Homeostasis. It's a vicious cycle. When you are trapped in it; the recipe to find a way out is daunting. People need to research and find their own path to try to help THEIR individual situation.
I've been burnt out since about 9th or 10th grade, maybe even sooner than that. The problem is that we have cancer as a society, and it has gone systemic. That's why seemingly nothing can be done about it. America essentially ended as a nation with a cohesive identity and distinct culture around 2007. The last 15 years has been nothing more than fighting over the scraps, and attempting to prop up the illusion of a growing economy through artificial wealth creation by printing money. This is how civilizations die. We are dying. We have terminal cancer. The smartest and wealthiest people I know are trying to extract whatever wealth they can from the system, and building houses in rural areas because they know what's coming.
So important to listen to yourself and your body!
Sounds like she had a relatively mild version of ME/CFS from which she successfully recovered (about 5% of CFS/ME patients do report complete recovery after a few years). This story certainly does not represent the other 95% of ME/CFS patients. Endorsing graded exercise for recovery just brings back the infamous PACE trial nightmare. It would have been good if she had done more research into the illness and at least acknowledged that exercise can be detrimental to majority of ME/CFS sufferers.
I wasted 10 years of my life before getting any medication but still have my ups and down it's awful feeling without any energy
What about those of us that were bed bound for 10 years, did the smoothies and walking and got better for a couple of years, then find themselves back in bed thinking it’s a crash. But it has been almost a year now and I feel like I’m right back at step one. Glad she’s better but it felt like a kick in the teeth to me.
She clearly doesn't understand what this disease is. Smoothies and "gentle walks" aren't going to heal you. Love to know how she has the energy and stamina to open up a business, a non profit is a business.
They might if you have chronic fatigue but not if you have M.E.
@@22Purplemist In the description it states she has chronic fatigue syndrome; this is the same as myalgic encephalomyelitis. The disease was initially referred to as chronic fatigue syndrome and only recently had it's name changed to myalgic encephalomyelitis.
@@5599-b3h - I read the description. There is scientific research that proves are two different conditions.
I've been very well acquainted with M.E for nearly five decades and it's much more than what she describes
@@22Purplemist are you saying that cfs and m.e. are two different diseases? not cf but cfs
@@5599-b3h - yes and I'm not alone
Excellent talk.❤
uhhh… isn’t one of the defining characteristics of ME/CFS post-exertion malaise? like, the whole “exercise makes you feel significantly worse for a significant amount of time” and the “rest doesn’t improve symptoms” thing? idk, this might just be a really unique experience but i don’t think this fits the criteria of ME and might be a misdiagnosis. i’m really glad she was able to recover, and hopefully others are able to get something out of this though.
This is not loud enough. Please raise the volume on your end. Mine's all the way up.
No issue with the volume on my phone/ laptop. Maybe you've got the volume low on the TH-cam window itself rather than just system volume
I'm in my late twenties. I had a severe burnout and injured my hands at my previous job from overworking. I'm not sure if the reason why I still feel tired and find my new job difficult (despite being a lot less demanding than my previous one) is because I never fully recovered from my burnout.
Definitely the most inspiring talks I've seen in regards to CFS. Gives me a bit of hope!
What an inspiration Linda is, it can give us all some hope and motivation to do that same. Linda has a charity called Salus Fatigue Foundation, what an inspiration!
10 minutes of burning out then yadda yadda yadda got better thanks for coming to my TED talk
I’m going through this at 28 and I don’t know what to do. I’m worried I’ll never achieve my dream of healing the world through music 😭After all the terrible things I’ve been through I’ve still never felt so scared in my life.
I'm so sorry to hear you are struggling with this too!
@@RebeccaEWebber 🙏🏾🖤 I hope you’re ok and I wish you the greatest of experiences.
You can live your dream. It just may look different and take longer than you expected, but thats okay! Forgive your body, love yourself, keep going and don't give up - but take as much time as you need to rest along the way.
For now, include listening to music as part of your life. Its therapy is for you too
13 minutes wasted with very little help on how to actually recover from chronic fatigue and burn out
Yepp no substance. Just get story.
I cured myself of a 10 year chronic fatigue by doing a gut reset course and then going on a keto diet and taking digestive enzymes with Bernadine hydrochloride in.
@Steve James Can you please please share more about your gut reset course, any link or website or how you did it, anything that can help, please share. 🙏
You were House bound?
@@harmonic432hz9 at some points yes, I took everything I had to do a weekly food shop. I spent the first year of lockdown in bed more or less, I'm back in construction now and I surf weekends but I can feel when it is too much and I have to rest, now and then it feels like it's coming back but rest and an early night really helps
@@stevejames9486 awesome👍
thing abot the depression diagnosis is tht sure depressed ppl feel tired but not fatigued, and depressed ppl respond well to exercise wer as ppl suffering frm cfs dont.