If you are constantly feeling the symptoms she describes (plus even worse) this could easily be vestibular migraine in a CHRONIC form. When vestibular migraine presents in a chronic form, where you are having attacks so frequently the symptoms never calm down, you will feel dizzy, blurred vision, “off,” light/sound sensitivity, derealization like you are in a dream like state, tinnitus, headache and many others. The difference in you feel these symptoms wax and wane constantly - this means chronic vestibular migraine pattern and not episodic as she is primarily referring to here. The treatment though is similar I just wanted to share this in case someone watching this thinks “oh my dizziness or condition is much worse than 20 mins of vertigo, it must not be vestibular migraine.” If you have ruled out BPPV and have a history of vertigo episodes with other features it is most likely vestibular migraine. Find a doctor that really knows about it as many do not.
I have this thing ..this is a very weird condition at time we are ok and all of sudden that dizziness comes from nowhere..im feared of that dizziness and anxiety more than headache and balance issues
I dropped out of a world top 20 university because of this. For over two years, doctors insisted that my vertigo was stress-related because of the intense nature of my studies. I had my doubts, but I still went through psychiatry and psychotherapy because I thought they knew best. Now that my maximum candidature period has passed, I am finally diagnosed with vestibular migraine because I started having tinnitus together with the vertigo even while being stress-free at home. 😭
do you actually feel dizzy while it happens? Because i have all of these symptoms but i dont see any auras, and i dont actually feel dizzy just unsteady and wobbly. Dr keeps saying its anxiety, it is not. I cant walk straight and throw up everyday, i strongly feel like its a vestibular migraine or brain leak .
@@wizyfactory6303 dizziness happens less than half the time for me. I most usually feel very nauseous, unsteady and a sort of continuous ''zooming on a rollercoaster''-type of feeling. Sodium valproate has done wonders for me. I wish you all the best and hope you get an accurate diagnosis soon! In my case, an ENT surgeon was the one who figured it out and referred me to a neurologist.
Sometimes it wipes me out for a day. I get so exhausted when recovering from one of these migraines sometimes I go to sleep with the headache because I can't stand the pain anymore and wake up with just the pain and dizziness the next day. It isn't all the time but the best way I can describe it is like being drunk.
I've complained about vertigo problems before but my doctor told me I didn't have it and that it was just something from anxiety. But it's only getting worst 😭
That's funny. I described it the exact same way to my Dr. I told her I feel like I'm drunk but no spinning accompanied by dull headache, tinnitus, confusion, anxiety. Beta blockers have worked for me.
@@CC-hd7bp I actually go to specialists for this, stress/ anxiety is related to vestibular migraines, but your vertigo is obviously not just anxiety 🙄 doctors that arent good listeners are the worst thing to have to deal with.
Great video. I have headaches that last all day everyday and constantly dizziness. I spend most of my time laying down and can only manage to get up and move around for short periods. After a trip out to the Dr I'm usually exhaustion followed by what seems like a 24hr migraine.
I feel you so much! This is exactly what I go through, I just have been gaslighting my illness to myself, my doctor diagnosed me with migraine last year and yes I can totally understand what you go through because this is exactly how I feel, Take care
I had undiagnosed vestibular migraine throughout much of my early childhood and fell into a deep state of anxiety because of it. I would have dizziness for upward of 24 hours and it was incredibly debilitating. I was prescribed amitryptaline around 6 years ago and haven’t had an episode since - an absolute life changer. If anyone is suffering from this disorder, I would highly recommend!
I have vestibular migraine but also 24/7 mid level vertigo and imbalance. My migraines are caused by visual movement, so I can’t avoid my triggers. I also have all the symptoms of vestibular and proprioception processing disorder. After speaking to other migraine sufferers with processing disorders, I believe I had a severe migraine from stress that made the processing disorder symptoms worse. I also now have myoclonic epilepsy, also triggered by visual stimulation.
I just recently got diagnosed with this migraine and I would say its less of a spinning/vertigo feeling and more of a light headedness. I had an "almost fainting" moment twice while driving 2 days in a row and that's when I decided to get a check up. It was tunnel vision, light headedness and nausea, it lasted a few seconds but then the drunk feeling lasted for a few days, like I'm not in my body and living in autopilot. I have a history of migraines but not often only when I'm stressed or lacking in sleep. The vestibular migraine began because I was over working myself, lack of sleep, and excessive drinking all in one. I believe this was the trigger, now whenever I go on a drinking binge, I have to expect the next day will be migraine filled. I cannot tell the difference between my hangover and the migraine symptoms, its odd. I checked in ear, cardio and neuro drs and the neuro dr diagnosed me. the headaches come and go but its mainly light headedness and nausea. Im a 21 year old and its been debilitating.
and today i started seeing stuff move on the side of my eyes, I'm on amitripline and thankfully its been helping, its just my drinking is what triggers it, I should really consider cutting it out of my life ahahaha
We're sorry to hear about your experience. If we can be of any assistance with information, support resources or a doctor referral please contact us at 800-837-8428 or info@vestibular.org
I have been diagnosed with vestibular migraines my main issue being dizziness weather i am walking sat down or move my head constantly throughtout the day some days it can be awful and i feel like i can barely walk aswell as awful ear pain
In the last year I’ve had 3 bad episodes of vestibular migraines. Just had one this weekend. Omg I was nausea and dizzy for 5 days. The last two days I couldn’t stand straight, one point I ask roommate to help me up the stairs. All this hassle I had to get through just to get the medication I wanted. I’ve been tested lots of times and mri it was fine but yet I still had to be tested at the hospital 😂. I just needed some medication to stop this vertigo. The headaches there’s nothing you can do but sleep.
How did you finally get your diagnosis? What did they do, a patch. I had a spinal tap and developed acute pain and wasn't even able to lift my head. At the hospital, they did a patch and I was better immediately.
For those too lazy to copy and paste to google; The most common symptoms of a spinal CSF leak are: Positional headaches, which feel worse when sitting upright and better when lying down; caused by intracranial hypotension. Nausea and vomiting. Neck pain or stiffness.
I had noticed some sort of balance problems.First I consulted an ENT doctor because I thought that I feel this because the many be any variation in my ear balancing.Then the doctor recommended as to do some testings(about 3 test) and he referred a neurologist and this doctor(neurologist) find that I'm suffering from this migraine.(By mri scan and somany other test).I am doing my treatment right now.All of you please pray for me for curing me From this.🙏🙏
I am on day 8 of this and I'm terrified I'm never going to feel normal again. I feel like I've been on a rocking boat, the room warps and I see black dots. GPs haven't helped me with anything.
I've been dizzy every day for 2 years and no medication has worked for me. I get eye sensitivity and tinnitus and its causing me to have severe anxiety as I never feel "normal".
I used to have vertigo, the room was spinning. But now just migraines that last for days and I am very light sensitive. I am 77 and pretty healthy otherwise. I take Immitrex, 100mcg sometimes just half works.
@@mickgray6836 Hey Mick, I did some self therapy, and just not really worry about it. One major thing I did was: Stop stressing Excercise Practice vestibular therapy sessions And just chill 😌 haha Thank you, I really appreciate your concern.
@@Mrrobot9991 what are vestibular therapy sessions? I’ve just been diagnosed with this a few days ago and just started on meds. I’m looking into therapy resources so any suggestions would be great.
My ENT prescribed me this Medicine for my Vestibular Migraine. He said it would take 2 weeks for my Vertigo that I had had for 6 month's to go away. I took one pill at 10am. By Noon it was 80% gone. Cool......At 2am the next morning I woke up with a blinding headache. Since I don't suffer from Headaches I thought..I better check my Blood Pressure. Yeah 197/121. Off to the ER I went. Just a heads up if you don't want to stroke out.
I have 3 main symptoms. Dizzyness, nausea and the classic migraine headache. I may only get one of these sympotms, a combination of two or all three. What appalled me was the suddenness of the attacks. I would be walking along and suddenly I'd be on the ground with my head spinning wildly or I'd instantly be nauseous for no reason. In my worst attack I was in bed for 3 days, unable to move or eat and the room had to be as dark as I could get it. I had some eye training to try and alleviate the problem but that had no effect. I still get bouts but they're much less severe now.
I have ocular migraines that last for about 25 minutes like the Doctor talks about in the video. I also have what I think are vestibular migraines with dizziness, nausea and vertigo. The vertigo only occurs at the peak of the episode and lasts one to two days of an about 4 day total.
I have vertigo and also get these blinding and sharp stabbing headaches right between my eyes and the middle of my forehead and the intensity of the pain will not go away unless I lay flat on my back for about twenty minutes. Lots of times as soon as I feel a little better laying down the pain will immediately start back up the moment I stand up
HI Jorge-Have you seen a healthcare provider about your symptoms? We have a provider directory on our site at vestibular.org or you can email us at info@vestibular.org for a referral.
i drive for a living. SO I DID AN EXPERIMENT I TOOK 4 MONTHS OF WORK FOR XMAS and saw great improvement just recently went back on the job and guess what. yes the condition came back. what can i do stop my work? not an option .im in a sorry position! driving is my biggest trigger its like feeling like a elevator all the time!
I can see where it would be difficult to avoid a trigger that is your livelihood. Have you seen a vestibular healthcare provider to get a specific diagnosis? Have you tried vestibular rehabilitation therapy? Please contact our patient support coordinator at info@vestibular.org if you would like more information and help.
I'm afraid we can't recommend any medications (only your doctor can do that), especially because it's different for every person. Typically, patients try multiple medications before finding one that works for them. Are you under the care of a neurologist?
Hey I have pulsating or say throbbing pain in my left temple and it covers my left face too like upper lip area and have tinnitus. Is this related to vestibular migraine?? Pls reply
Thank you for sharing this! i don't have that much of headache but i always feel my right head side is on pressure and the dizziness is 24/7 is that vestibular migraine? Thank you
Mohammed Albraik Salam halaykom, va consulté ma chaîne j’ai un truc contre la migraine elle disparaît a vie en 5minute, oublie de t’abonner à ma chaîne, choukrane 😊
I have VM, was diagnosed by my neuro last year. Ive been on elavil since then 10 mg a day, until this past tuesday when i had 3 dizzy,spells,in 2 hours, she upped my dosage to 20mg. Since tuesday i have felt, heavy, light headed, pressure on top of my head, felt faint, almost feels like im on benadryl, is this normally associated with VMs?? How long can this feeling last? Im miserable and scared and it takes my dr forever to get back to me
Something to look into have had migraines and vertigo and visual distortion s .oo. Scary but explain s some my symptoms when blood sugar normal but not feeling quite right dizzy and headache crap but only thing is w my like in cycles not everything happens simultaneously
I have vestibular migraines that usually come at night when I’m sleeping and I wake up with my eyes spinning and then I have to throw up for about half a day while feeling nauseous. Luckily I only have these episodes a couple times a year nowadays.
I'm sorry to hear that you suffer from vestibular migraine. If you haven't ready VeDA's article on VM yet, check it out: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/. Also, feel free to contact VeDA directly at info@vestibular.org for one-on-one support.
@Sarah Labbett i’ve never met anyone with these symptoms either! Nice to meet someone who goes through the same hell every once in a while. I hope you are doing well
I have similar experiences. It's hard when you don't know anyone with the same symptom profile. Other migraine sufferers I know have a very different experience (visual aura followed by banging headache), which is more commonly known about, so when I try to explain what my migraines feel like it never quite feels like other people understand
That's not what she said, she said it was associated with anxiety if untreated (ie it causes anxiety when you feel this awful and no one knows what's wrong with you because you don't get headaches so it can't be migraine), and that anxiety makes it worse. Anxiety/stress makes pretty much any physical health condition worse, as it does a number on our nervous, digestive, immune and endocrine systems. Yes many of us have been told so many times it's all in our head (actually now I think about it, it is kind of all in our heads, but that's not quite what they mean). That isn't a reason to dismiss doing things to reduce stress or anxiety as she advises which can be massively beneficial to our overall health.
I have vestibular migraines, and get severe vertigo. Sometimes lasting hours and sometimes lasting multiple days on end. They also hit me out of the blue.
I have chronic migraines. In July, I went to the ER due to vertigo with horizontal nystagmus. The nystagmus lasted 7 days, the vertigo lasted 7 weeks. I still have issues with balance. My left ear was deaf for 6 weeks. I was dx with BPPV, but things just don't add up.
@Jennifer Vestibular Disorders Association thank you. My neurologist has now referred me to a neuro-otologist. Today, I had a short episode if nystagmus. Thank you so much.
I've had one for months. It's getting worse. When it's bad bad words actually buzz zig zag and shadow. Every few days it actually becomes painful. I lose words. Say random things instead of the actual word. I'm highly stressed. I also have derma melanocytosis in one eye. I need help. I can't live like this but because of covid I'm avoiding getting help. Any advice would be greatly appreciated.
I'm so sorry for what you're going through. Here is VeDA's article on vestibular migraine, in case you haven't read it yet, and here is our provider directory so you can look for a neurologist or neurotologist near you: vestibular.org/healthcare-directory/. Please contact VeDA directly for one-on-one support (info@vestibular.org/800.837.8428).
I had one today. Headache Monday, exhaustion Tuesday, bad headache Wednesday, boom migraine Thursday. It felt like my brain was squelching side to side and I was rocking side to side and spinning. I've never had that with my migraines before so it was quite alarming, also joined by muscle weakness, numbness in my face and aura. No triggers out of the ordinary. How can I make sure I don't keep getting them? My head felt better for about an hour but now I can feel a migraine starting on the other side of my head. 😥 I can't even go to the doctor for pain relief because of the lockdown.
Hi!I really been having a type of "dizziness" for 2 months now after we got out of quarantine in my country,idk if its just my brain having anxienty,I always get kinda dizzy and idk if I can name it lightheadness when I go to places with many people,some restaurants,when I try to eat with many people,in clothe shops or supermarkets and I always feel it mostly when I think about it but sometimes it comes out of nowhere, I really dont know what kind of dizziness I have and Im actually a little bit "scared" to go to the doctor, if you could help me with my symptoms to tell me if thats a vestibular dizziness or just my mind playing with me :(
Hi Allen Sixx, I'm so sorry to hear what you have been experiencing. VeDA does not have healthcare professionals on staff but please email us at info@vestibular.org or call 800-837-8428 for support, information and healthcare referrals.
I been having some issues... im 35 years old and last summer I was diagnosed with a vitamin D deficiency also I had low testosterone, and vertigo...Well I also would have these episodes of really foggy, drunk, high anxiety feelings.. I'm really active person, I exercise and stay busy... the past few months I still get off balance, mostly when walking in a Walmart, or a store with fluorescent lights.... also I noticed I'm getting sensitive to caffeine, I get almost like that weird head foggy feeling, then I feel little off balance rest of the day.... could that be part of a silent migraine? And certain foods, and lights are triggering these symptoms?
@@jonathanchadwickartsandadv712 I have this imbalance problem and it makes me dizzy all day. It's hard to go to hospital for checkup today due to spreading virus.
@@ronnel3956 yeah I hear ya!.. I'm ready to get normal again! I do ok if I'm not in those stores to long.. or not at all... so idk?! Been doing better since I stopped drinking caffeine!
@@flashcleanllcflashcleanllc5936 the symptoms stopped... doctors didn't help me... so I started taking vitamin D with k2... I stopped drinking caffeinated coffee, msg type foods... I'm planning to go back to the dr. To check my vitamin D and testosterone again... but I wanted to do it naturally first... but I'm ok now... I think the biggest cause was low vitamin D... of course testosterone works with Vitamin d..
can you have the symtoms for about 5 days in a row 24/7? . asking because I have physical headaches but also slight dizziness 24/7 ( constantly) for about 5 days every month.. or so... ongoing for nearly a whole year now
@@tina3111 ive been going through the same for over a year with extreme anxiety... I seen just about every doctor and physical therapy and nothing works
@@loretta5330 i was recently referred to a ENT doctor from my GP, because they think it might be something in the ear causing this like infection or imbalance. Mention that to the doctor if they haven’t tried that already
I was tired of my vertigo and migraine attacks then I saw th-cam.com/video/6snFi_EJWFc/w-d-xo.html i started following the remedies explained immediately within few days I could experience a lot of change in my symptoms I’ve done my panchakarma with Jyovis and then the medications which has permanently relieved me and I feel so much lighter since then
I was tired of my vertigo and migraine attacks then I saw th-cam.com/video/6snFi_EJWFc/w-d-xo.html i started following the remedies explained immediately within few days I could experience a lot of change in my symptoms I’ve done my panchakarma with Jyovis and then the medications which has permanently relieved me and I feel so much lighter since then.
I struggled with bvvp a few years ago and I just layer down on my back and went really dizzy. Just laying flat on my back looking up at the ceiling.. wtf
I'm so sorry to hear that you suffer from vestibular migraines! Are you receiving treatment for them? Feel free to contact VeDA if we can be of assistance (info@vestibular.org).
This is often easily correctable by an upper cervical chiropractor. Less than 2% specialize in this field but they can often be related to a misalignment at the very top bone in the neck. I see cases like this every day in practice. People respond amazingly Hey baby since when does bone is my slime blocks cerebrospinal fluid flow and blood flow. When we carefully correct the misalignment all of it normalizes. Obviously there are more than one cause but this is a big one
Cervicgenic dizziness (vestibular.org/cervicogenic-dizziness) can be treated with upper cervical alignment. However, this is not a treatment for vestibular migraine, which is managed with diet, medication, and lifestyle changes. It is important to get an accurate diagnosis so you can get effective treatment for that condition.
I find your video to be let’s say...about 50% misleading and 50% true. You give the impression that a person with vestibular migraine can adapt to a normal life - that is not possible. A person with VM has to go to a modified “normal” life planned to avoid triggers. A life with trigger avoidance is NOT a “normal” life. You don’t avoid the triggers and you go back to misery, and I don’t care what level of retraining relying on “neuroplasticity”. In fact it is not even possible to be 100% symptom free ever, I don’t care what medication you take, what trigger avoidance you do or what type of retraining you do, there is always a residual of symptom that stays as a baseline. I don’t undermine your proposal as an effective way to treat this disgraceful condition, but CAREFUL with setting the wrong expectations - becoming a “normal” person, if you were born with VM, is just not possible.
I had a severe severe traumatic brain injury about a year ago and a couple of months later I started seeing double and experiencing vertigo and these horrible headaches if anybody had an experience similar to mine please let me know if you were able to treat it
I have all this symptoms pressure in my head,, tingling in legs or in my back and imbalance makes me dizzy everyday can't even sleep at night due pulse in my head. How long have you suffer this symptoms ?
i get all of the dizzieness and visuals and ear issues but i font get any headache symptoms or pain in that sense also do you know how often or usuall it is to be diagnosed with vestibular migrains in your teens because from what ive read it is usually in older people?
@Andree Vestibular Disorders Association thanks so much, my doctor said today he thinks I get vestibular migraines so I haven’t had too much time to research it 😅
Ways to Increase Neuroplasticity Get enough magnesium and choline (and maybe supplement with specific forms). Sleep. Eat fish, and turmeric (or use curcumin). th-cam.com/video/Ftc_gXgCCus/w-d-xo.html&feature=emb_logo
Hello! So heres what happens with me, during my period days, weather changes, crying or stressed, i start getting weird symptoms sometimes a headache that comes for 2 seconds and goes, i see little colored dot that comes.for 2 seconds also, tinnitus, cant tolerate brightness, extreme motion sickness, even when i tilt my head i feel very sick, when im laying and stand up i feel pressure in my head, severe nausea and sweating, spinning sensations inside my head like im on a boat, very loud noises seem to get inside my brain, this is just to horrible to handle, its chronic, could this be vestibular migraine?
Hi Miss Nadine, Here is an article on Vestibular Migraine from our website: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/ Contact us for a referral to a healthcare provider that can do vestibular testing at info@vestibular.org or 800-837-8428
i feel some time's walking imbalance and headache with dizziness and my leg muscles weakness When there is pain on the head, the light of the eyes also decreases. , And sometimes burning in my head , I also got acidity with that, had fungal infection before then after this Please help me mam what is the problem
I am so sorry to hear about the symptoms you are dealing with right now! Please feel free to contact our patient support coordinator at info@vestibular.org to request more information or assistance finding a vestibular professional in your area.
@@nikhillaxmi708 how did you get rid of walking imbalance/dizziness ? I have this problem also, can't stand or walk properly and can't even sleep at night because I have pulse back in my head.
Omg.. 6 month before I removed my gallbladder from that I started getting migraine acidity indigestion heart palpation eye irritating... Know I'm taking medicine for all this it's hurting... Some times it's ok but times my life is ruining
I'm sorry that you are struggling with vestibular issues. I'm afraid we do not have any providers in Suriname. Here is our provider directory: vestibular.org/finding-help-support/provider-directory. Please feel free to email us at info@vestibular.org and our Patient Support Coordinator will try to help you. Include information about your symptoms.
I’ve been diagnosed with migraines from a neurologist, tried a lot of different medication but none has seem to make any difference, some days I wake up like there’s nothing wrong, but 90% of the time I wake up feeling a constant head pressure and dizziness, also have visual disturbance such as things moving and twisting and a strobe light effect when I’m looking at things. I’ve tried changing diet and taking supplements to see if it makes any difference. The headaches are always a lot worse in the morning and it makes my whole body feel weak and tired. I’ve tried exercising but it makes me feel extremely lightheaded and need to lie down afterward. Is there anything else I could try to make me feel a bit better?
Dizziness and visual disturbance are common in people with vestibular migraine. Here is an article that describes this in more detail: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/. Medications are a trial and error game (vestibular.org/article/diagnosis-treatment/treatments/medication/). Diet can also help (vestibular.org/article/coping-support/dietary-considerations/). Please contact VeDA for one-on-one support (info@vestibular.org).
@@loretta5330 still not much better, the doctors seem to think it’s linked to my mental health and stress and I don’t really seem to feel stressed that often. The only thing that’s stressing me out is the fact I feel crap almost everyday. I tried taking diazepam and it made a huge difference but the doctors are reluctant to prescribe me them as they can be addictive and it’s easy to see why as the first time I took one I actually felt normal for the first time in well over a year.
I am 61 and I have had this condition since I was 16. it is manageable but like the experts say medication, diet and exercise have to become a part of your lifestyle. For many years I would make sure I had some aspirin on me and at the onset of the migraine I would take one and within an hour it would mitigate my symptoms.
Sorry but what do you mean neuroplascity? I understand what it is, but how the hell do we rewire our vestibular system? I've had this hell for 18 years and I'm so fed up of it. Been prescribed pregabalin but don't want to be on drugs fir life. I'd be so grateful of your help
The brain can be rewired through repetition. That's why so much vestibular rehabilitation therapy is about repeating exercises. Eventually the brain gets used to the new input and expects it, so it doesn't set off warning signals because the vestibular system isn't functioning as it should be, which cause you to be dizzy.
I have vestibular migraines and I have all the symptoms all the time I don’t have them for just a few hours or a couple of days they’ve been constant all day every day for 18 months and none of the medications that they’ve tried me on have worked the only thing that helps is phenergan
How long can they last because i go through this like 3 weeks, very dizzy my eyes don't focus i feel nauseous then it goes away then a a couple months later it comes back. Sooooo soooo miserable idk if it's this or something else. I've been diagnosed with this but if they don't last that long then idk
Vestibular migraine can last several days, with residual symptoms lingering for weeks or months. Learning coping strategies can help, e.g. dietary changes, managing stress, supplements, etc. Here's an article that may provide more info: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/. Feel free to contact VeDA directly for one-on-one support (info@vestibular.org).
There are many different causes of dizziness, some of which are vestibular-related while others are not. Here is some information that may help you better understand vestibular disorders so you can determine if what your daughter is going through is vestibular-related: vestibular.org/article/what-is-vestibular/. Also, here is some info on pediatric vestibular disorders: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/pediatric-vestibular-disorders/. Please contact VeDA directly for one-on-one support: info@vestibular.org.
I see a lot of people keep on speaking about this t.co/aZoJ5oJUN1 . But I'm not sure if it's good. Have you ever tried using this popular Vertigo remedy
If you are constantly feeling the symptoms she describes (plus even worse) this could easily be vestibular migraine in a CHRONIC form. When vestibular migraine presents in a chronic form, where you are having attacks so frequently the symptoms never calm down, you will feel dizzy, blurred vision, “off,” light/sound sensitivity, derealization like you are in a dream like state, tinnitus, headache and many others. The difference in you feel these symptoms wax and wane constantly - this means chronic vestibular migraine pattern and not episodic as she is primarily referring to here. The treatment though is similar I just wanted to share this in case someone watching this thinks “oh my dizziness or condition is much worse than 20 mins of vertigo, it must not be vestibular migraine.” If you have ruled out BPPV and have a history of vertigo episodes with other features it is most likely vestibular migraine. Find a doctor that really knows about it as many do not.
Completely agree with all you’ve said. I have SCDS and the vestibular migraines are frankly crippling physically and emotionally ✌️➕❤️🌟⭐️✨
I have this and it's been awhile....today I had another silent migraine :(
Anmd the back of my neck gats real fatigued.
I have this thing ..this is a very weird condition at time we are ok and all of sudden that dizziness comes from nowhere..im feared of that dizziness and anxiety more than headache and balance issues
This is exactly how i feel- omg - I’ve been freaking out for months
I dropped out of a world top 20 university because of this. For over two years, doctors insisted that my vertigo was stress-related because of the intense nature of my studies. I had my doubts, but I still went through psychiatry and psychotherapy because I thought they knew best. Now that my maximum candidature period has passed, I am finally diagnosed with vestibular migraine because I started having tinnitus together with the vertigo even while being stress-free at home. 😭
Everything will get better for you I promise
do you actually feel dizzy while it happens? Because i have all of these symptoms but i dont see any auras, and i dont actually feel dizzy just unsteady and wobbly. Dr keeps saying its anxiety, it is not. I cant walk straight and throw up everyday, i strongly feel like its a vestibular migraine or brain leak .
@@wizyfactory6303 dizziness happens less than half the time for me. I most usually feel very nauseous, unsteady and a sort of continuous ''zooming on a rollercoaster''-type of feeling. Sodium valproate has done wonders for me. I wish you all the best and hope you get an accurate diagnosis soon! In my case, an ENT surgeon was the one who figured it out and referred me to a neurologist.
@@ZakiRoamsAround r u still on medication sodium valproate ?
@@wizyfactory6303same here… have you gotten any better?
Sometimes it wipes me out for a day. I get so exhausted when recovering from one of these migraines sometimes I go to sleep with the headache because I can't stand the pain anymore and wake up with just the pain and dizziness the next day. It isn't all the time but the best way I can describe it is like being drunk.
I've complained about vertigo problems before but my doctor told me I didn't have it and that it was just something from anxiety. But it's only getting worst 😭
That's funny. I described it the exact same way to my Dr. I told her I feel like I'm drunk but no spinning accompanied by dull headache, tinnitus, confusion, anxiety. Beta blockers have worked for me.
It’s curable?
@@CC-hd7bp are you ok now ? I have this problem also pain and dizziness, it won't let me sleep at night
@@CC-hd7bp I actually go to specialists for this, stress/ anxiety is related to vestibular migraines, but your vertigo is obviously not just anxiety 🙄 doctors that arent good listeners are the worst thing to have to deal with.
Great video. I have headaches that last all day everyday and constantly dizziness. I spend most of my time laying down and can only manage to get up and move around for short periods. After a trip out to the Dr I'm usually exhaustion followed by what seems like a 24hr migraine.
I feel you so much! This is exactly what I go through, I just have been gaslighting my illness to myself, my doctor diagnosed me with migraine last year and yes I can totally understand what you go through because this is exactly how I feel, Take care
I had undiagnosed vestibular migraine throughout much of my early childhood and fell into a deep state of anxiety because of it. I would have dizziness for upward of 24 hours and it was incredibly debilitating. I was prescribed amitryptaline around 6 years ago and haven’t had an episode since - an absolute life changer. If anyone is suffering from this disorder, I would highly recommend!
Hey there
How did that medicine help you?
The medicine also helped me. But it made me gain weight so I couldn’t do it no more
But do you have balance disorder ? Like unbalances?
@@kalvincan1270
Me?
@@ceyciemateo9411 yes what do you feel with vestibular migraines? What feelings ?
I have vestibular migraine but also 24/7 mid level vertigo and imbalance. My migraines are caused by visual movement, so I can’t avoid my triggers. I also have all the symptoms of vestibular and proprioception processing disorder. After speaking to other migraine sufferers with processing disorders, I believe I had a severe migraine from stress that made the processing disorder symptoms worse. I also now have myoclonic epilepsy, also triggered by visual stimulation.
I am learning so much from watching your videos. Thank you so much for sharing this amazing source of information. This one is quite helpful.
I just recently got diagnosed with this migraine and I would say its less of a spinning/vertigo feeling and more of a light headedness. I had an "almost fainting" moment twice while driving 2 days in a row and that's when I decided to get a check up. It was tunnel vision, light headedness and nausea, it lasted a few seconds but then the drunk feeling lasted for a few days, like I'm not in my body and living in autopilot. I have a history of migraines but not often only when I'm stressed or lacking in sleep. The vestibular migraine began because I was over working myself, lack of sleep, and excessive drinking all in one. I believe this was the trigger, now whenever I go on a drinking binge, I have to expect the next day will be migraine filled. I cannot tell the difference between my hangover and the migraine symptoms, its odd. I checked in ear, cardio and neuro drs and the neuro dr diagnosed me. the headaches come and go but its mainly light headedness and nausea. Im a 21 year old and its been debilitating.
and today i started seeing stuff move on the side of my eyes, I'm on amitripline and thankfully its been helping, its just my drinking is what triggers it, I should really consider cutting it out of my life ahahaha
We're sorry to hear about your experience. If we can be of any assistance with information, support resources or a doctor referral please contact us at 800-837-8428 or info@vestibular.org
Hey :) what treatment did you receive for this?
I have been diagnosed with vestibular migraines my main issue being dizziness weather i am walking sat down or move my head constantly throughtout the day some days it can be awful and i feel like i can barely walk aswell as awful ear pain
In the last year I’ve had 3 bad episodes of vestibular migraines. Just had one this weekend. Omg I was nausea and dizzy for 5 days. The last two days I couldn’t stand straight, one point I ask roommate to help me up the stairs. All this hassle I had to get through just to get the medication I wanted. I’ve been tested lots of times and mri it was fine but yet I still had to be tested at the hospital 😂. I just needed some medication to stop this vertigo. The headaches there’s nothing you can do but sleep.
Such a great educational video for vestibular migraines. Thank you VEDA!
I was diagnosed with this for nine years, but it turned out to be a spinal CSF leak also known as spontaneous intracranial hypotension.
Do you mind explaining your symptoms ? Please .?
Robin Hosking wow!!
How did you finally get your diagnosis? What did they do, a patch. I had a spinal tap and developed acute pain and wasn't even able to lift my head. At the hospital, they did a patch and I was better immediately.
For those too lazy to copy and paste to google;
The most common symptoms of a spinal CSF leak are: Positional headaches, which feel worse when sitting upright and better when lying down; caused by intracranial hypotension. Nausea and vomiting. Neck pain or stiffness.
I had noticed some sort of balance problems.First I consulted an ENT doctor because I thought that I feel this because the many be any variation in my ear balancing.Then the doctor recommended as to do some testings(about 3 test) and he referred a neurologist and this doctor(neurologist) find that I'm suffering from this migraine.(By mri scan and somany other test).I am doing my treatment right now.All of you please pray for me for curing me
From this.🙏🙏
I am on day 8 of this and I'm terrified I'm never going to feel normal again. I feel like I've been on a rocking boat, the room warps and I see black dots. GPs haven't helped me with anything.
SS, I'm very sorry to hear about your experience. Please email us at info@vestibular.org for assistance and a possible healthcare referral.
I have something similar happen to me as well 😭
It gets better, I promise!
I've been dizzy every day for 2 years and no medication has worked for me. I get eye sensitivity and tinnitus and its causing me to have severe anxiety as I never feel "normal".
Hi Kate, Have you tried vestibular rehabilitation therapy? Contact us at info@vestibular.org for a referral.
I used to have vertigo, the room was spinning. But now just migraines that last for days and I am very light sensitive. I am 77 and pretty healthy otherwise. I take Immitrex, 100mcg sometimes just half works.
I get a lot of Ear pain, and suddenly feel disoriented a lot. Scary feeling actually. I get migraines every day. Is this related to Vestibular issues?
@@mickgray6836 Hey Mick, I did some self therapy, and just not really worry about it. One major thing I did was:
Stop stressing
Excercise
Practice vestibular therapy sessions
And just chill 😌 haha
Thank you, I really appreciate your concern.
@@Mrrobot9991 what are vestibular therapy sessions? I’ve just been diagnosed with this a few days ago and just started on meds. I’m looking into therapy resources so any suggestions would be great.
My ENT prescribed me this Medicine for my Vestibular Migraine. He said it would take 2 weeks for my Vertigo that I had had for 6 month's to go away. I took one pill at 10am. By Noon it was 80% gone. Cool......At 2am the next morning I woke up with a blinding headache. Since I don't suffer from Headaches I thought..I better check my Blood Pressure. Yeah 197/121. Off to the ER I went. Just a heads up if you don't want to stroke out.
I have 3 main symptoms. Dizzyness, nausea and the classic migraine headache. I may only get one of these sympotms, a combination of two or all three. What appalled me was the suddenness of the attacks. I would be walking along and suddenly I'd be on the ground with my head spinning wildly or I'd instantly be nauseous for no reason. In my worst attack I was in bed for 3 days, unable to move or eat and the room had to be as dark as I could get it. I had some eye training to try and alleviate the problem but that had no effect. I still get bouts but they're much less severe now.
Worse in pre-rain type weather 😢. Does feel like Intercranial hypertension
I have ocular migraines that last for about 25 minutes like the Doctor talks about in the video. I also have what I think are vestibular migraines with dizziness, nausea and vertigo. The vertigo only occurs at the peak of the episode and lasts one to two days of an about 4 day total.
I have vertigo and also get these blinding and sharp stabbing headaches right between my eyes and the middle of my forehead and the intensity of the pain will not go away unless I lay flat on my back for about twenty minutes. Lots of times as soon as I feel a little better laying down the pain will immediately start back up the moment I stand up
HI Jorge-Have you seen a healthcare provider about your symptoms? We have a provider directory on our site at vestibular.org or you can email us at info@vestibular.org for a referral.
Great video
i drive for a living. SO I DID AN EXPERIMENT I TOOK 4 MONTHS OF WORK FOR XMAS and saw great improvement just recently went back on the job and guess what. yes the condition came back. what can i do stop my work? not an option .im in a sorry position! driving is my biggest trigger its like feeling like a elevator all the time!
I can see where it would be difficult to avoid a trigger that is your livelihood. Have you seen a vestibular healthcare provider to get a specific diagnosis? Have you tried vestibular rehabilitation therapy? Please contact our patient support coordinator at info@vestibular.org if you would like more information and help.
Thanks for the video.
Would you recommend any medications?
I'm afraid we can't recommend any medications (only your doctor can do that), especially because it's different for every person. Typically, patients try multiple medications before finding one that works for them. Are you under the care of a neurologist?
Hey I have pulsating or say throbbing pain in my left temple and it covers my left face too like upper lip area and have tinnitus. Is this related to vestibular migraine?? Pls reply
Thank you for sharing this! i don't have that much of headache but i always feel my right head side is on pressure and the dizziness is 24/7 is that vestibular migraine? Thank you
Mohammed Albraik Salam halaykom, va consulté ma chaîne j’ai un truc contre la migraine elle disparaît a vie en 5minute, oublie de t’abonner à ma chaîne, choukrane 😊
I have VM, was diagnosed by my neuro last year. Ive been on elavil since then 10 mg a day, until this past tuesday when i had 3 dizzy,spells,in 2 hours, she upped my dosage to 20mg. Since tuesday i have felt, heavy, light headed, pressure on top of my head, felt faint, almost feels like im on benadryl, is this normally associated with VMs?? How long can this feeling last? Im miserable and scared and it takes my dr forever to get back to me
Something to look into have had migraines and vertigo and visual distortion s .oo. Scary but explain s some my symptoms when blood sugar normal but not feeling quite right dizzy and headache crap but only thing is w my like in cycles not everything happens simultaneously
I have vestibular migraines that usually come at night when I’m sleeping and I wake up with my eyes spinning and then I have to throw up for about half a day while feeling nauseous. Luckily I only have these episodes a couple times a year nowadays.
I'm sorry to hear that you suffer from vestibular migraine. If you haven't ready VeDA's article on VM yet, check it out: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/. Also, feel free to contact VeDA directly at info@vestibular.org for one-on-one support.
What helped you?
@Sarah Labbett i’ve never met anyone with these symptoms either! Nice to meet someone who goes through the same hell every once in a while. I hope you are doing well
I have similar experiences. It's hard when you don't know anyone with the same symptom profile. Other migraine sufferers I know have a very different experience (visual aura followed by banging headache), which is more commonly known about, so when I try to explain what my migraines feel like it never quite feels like other people understand
Ah. Its anxiety then!!!. Thanks for the video. Im going for my balance test soon
That's not what she said, she said it was associated with anxiety if untreated (ie it causes anxiety when you feel this awful and no one knows what's wrong with you because you don't get headaches so it can't be migraine), and that anxiety makes it worse. Anxiety/stress makes pretty much any physical health condition worse, as it does a number on our nervous, digestive, immune and endocrine systems.
Yes many of us have been told so many times it's all in our head (actually now I think about it, it is kind of all in our heads, but that's not quite what they mean). That isn't a reason to dismiss doing things to reduce stress or anxiety as she advises which can be massively beneficial to our overall health.
I have vestibular migraines, and get severe vertigo. Sometimes lasting hours and sometimes lasting multiple days on end. They also hit me out of the blue.
Do you have labyrinths?
I don't. We have found that I also get vertigo from sounds at specific decibels and frequencies. For example the sound of a lawn mower engine or a
Or a air compressor. Those will immediately send me into a vertigo bout.
@@jessums321 okay, I had labyrinth since childhood
@@jessums321yours is different from me.
I have chronic migraines. In July, I went to the ER due to vertigo with horizontal nystagmus. The nystagmus lasted 7 days, the vertigo lasted 7 weeks. I still have issues with balance. My left ear was deaf for 6 weeks. I was dx with BPPV, but things just don't add up.
@Jennifer Vestibular Disorders Association thank you. My neurologist has now referred me to a neuro-otologist. Today, I had a short episode if nystagmus. Thank you so much.
Could this be from too much fluid in middle ear due to maybe high estrogen?
I've had one for months. It's getting worse. When it's bad bad words actually buzz zig zag and shadow. Every few days it actually becomes painful. I lose words. Say random things instead of the actual word. I'm highly stressed. I also have derma melanocytosis in one eye. I need help. I can't live like this but because of covid I'm avoiding getting help. Any advice would be greatly appreciated.
I'm so sorry for what you're going through. Here is VeDA's article on vestibular migraine, in case you haven't read it yet, and here is our provider directory so you can look for a neurologist or neurotologist near you: vestibular.org/healthcare-directory/. Please contact VeDA directly for one-on-one support (info@vestibular.org/800.837.8428).
I had one today. Headache Monday, exhaustion Tuesday, bad headache Wednesday, boom migraine Thursday. It felt like my brain was squelching side to side and I was rocking side to side and spinning. I've never had that with my migraines before so it was quite alarming, also joined by muscle weakness, numbness in my face and aura. No triggers out of the ordinary. How can I make sure I don't keep getting them? My head felt better for about an hour but now I can feel a migraine starting on the other side of my head. 😥 I can't even go to the doctor for pain relief because of the lockdown.
@Andi Vestibular Disorders Association thank you so much
Hi!I really been having a type of "dizziness" for 2 months now after we got out of quarantine in my country,idk if its just my brain having anxienty,I always get kinda dizzy and idk if I can name it lightheadness when I go to places with many people,some restaurants,when I try to eat with many people,in clothe shops or supermarkets and I always feel it mostly when I think about it but sometimes it comes out of nowhere, I really dont know what kind of dizziness I have and Im actually a little bit "scared" to go to the doctor, if you could help me with my symptoms to tell me if thats a vestibular dizziness or just my mind playing with me :(
Hi Allen Sixx, I'm so sorry to hear what you have been experiencing. VeDA does not have healthcare professionals on staff but please email us at info@vestibular.org or call 800-837-8428 for support, information and healthcare referrals.
We're on the same page .. sensitive to light .sound , dizziness, brainfog
I been having some issues... im 35 years old and last summer I was diagnosed with a vitamin D deficiency also I had low testosterone, and vertigo...Well I also would have these episodes of really foggy, drunk, high anxiety feelings.. I'm really active person, I exercise and stay busy... the past few months I still get off balance, mostly when walking in a Walmart, or a store with fluorescent lights.... also I noticed I'm getting sensitive to caffeine, I get almost like that weird head foggy feeling, then I feel little off balance rest of the day.... could that be part of a silent migraine? And certain foods, and lights are triggering these symptoms?
Thank you!
@@jonathanchadwickartsandadv712 I have this imbalance problem and it makes me dizzy all day. It's hard to go to hospital for checkup today due to spreading virus.
@@ronnel3956 yeah I hear ya!.. I'm ready to get normal again! I do ok if I'm not in those stores to long.. or not at all... so idk?! Been doing better since I stopped drinking caffeine!
@@jonathanchadwickartsandadv712 did you ever figure it out? I'm having the same symptoms as you and the doctors have not been helpful at all.
@@flashcleanllcflashcleanllc5936 the symptoms stopped... doctors didn't help me... so I started taking vitamin D with k2... I stopped drinking caffeinated coffee, msg type foods... I'm planning to go back to the dr. To check my vitamin D and testosterone again... but I wanted to do it naturally first... but I'm ok now... I think the biggest cause was low vitamin D... of course testosterone works with Vitamin d..
I just don't understand how you're supposed to know what your body needs or what your body is trying to tell you per say?
can you have the symtoms for about 5 days in a row 24/7? . asking because I have physical headaches but also slight dizziness 24/7 ( constantly) for about 5 days every month.. or so... ongoing for nearly a whole year now
@Andree Vestibular Disorders Association thank you
@@tina3111 ive been going through the same for over a year with extreme anxiety... I seen just about every doctor and physical therapy and nothing works
@@loretta5330 i was recently referred to a ENT doctor from my GP, because they think it might be something in the ear causing this like infection or imbalance. Mention that to the doctor if they haven’t tried that already
I was tired of my vertigo and migraine attacks then I saw th-cam.com/video/6snFi_EJWFc/w-d-xo.html i started following the remedies explained immediately within few days I could experience a lot of change in my symptoms I’ve done my panchakarma with Jyovis and then the medications which has permanently relieved me and I feel so much lighter since then
I was tired of my vertigo and migraine attacks then I saw th-cam.com/video/6snFi_EJWFc/w-d-xo.html i started following the remedies explained immediately within few days I could experience a lot of change in my symptoms I’ve done my panchakarma with Jyovis and then the medications which has permanently relieved me and I feel so much lighter since then.
I struggled with bvvp a few years ago and I just layer down on my back and went really dizzy. Just laying flat on my back looking up at the ceiling.. wtf
Is tinnitus common in vestibular migraine?
Not usually. Here is our article on vestibular migraine: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/
I have this and gave been out half the day with this
I have headaches time to time and when the headaches start my eyes pains and hear sound in my ear . Can this be migraine?
I’m 13 and have had Vestibular Migraines for quite a few years. My ‘attacks’ always seem to last at least a week 🙄🙄
I'm so sorry to hear that you suffer from vestibular migraines! Are you receiving treatment for them? Feel free to contact VeDA if we can be of assistance (info@vestibular.org).
Vestibular Disorders Association Yes I am. Thank you for your advice 😊
Mine too😭🤕 it’s the dizziness for me and headaches
Breanna Blackwell yes same here! Nice to know I’m not alone x 💗
Alice Kinsey -allergy adventures- I hope we get through this
This is often easily correctable by an upper cervical chiropractor. Less than 2% specialize in this field but they can often be related to a misalignment at the very top bone in the neck. I see cases like this every day in practice. People respond amazingly Hey baby since when does bone is my slime blocks cerebrospinal fluid flow and blood flow. When we carefully correct the misalignment all of it normalizes. Obviously there are more than one cause but this is a big one
Cervicgenic dizziness (vestibular.org/cervicogenic-dizziness) can be treated with upper cervical alignment. However, this is not a treatment for vestibular migraine, which is managed with diet, medication, and lifestyle changes. It is important to get an accurate diagnosis so you can get effective treatment for that condition.
20, 30 minutes or one hour?! I get these for four days at a time. I wish it was only an hour.
I'm the same way. 30 minutes or an hour would be spectacular compared to 4, 5, 6 days straight.
I find your video to be let’s say...about 50% misleading and 50% true. You give the impression that a person with vestibular migraine can adapt to a normal life - that is not possible. A person with VM has to go to a modified “normal” life planned to avoid triggers. A life with trigger avoidance is NOT a “normal” life. You don’t avoid the triggers and you go back to misery, and I don’t care what level of retraining relying on “neuroplasticity”. In fact it is not even possible to be 100% symptom free ever, I don’t care what medication you take, what trigger avoidance you do or what type of retraining you do, there is always a residual of symptom that stays as a baseline. I don’t undermine your proposal as an effective way to treat this disgraceful condition, but CAREFUL with setting the wrong expectations - becoming a “normal” person, if you were born with VM, is just not possible.
I had a severe severe traumatic brain injury about a year ago and a couple of months later I started seeing double and experiencing vertigo and these horrible headaches if anybody had an experience similar to mine please let me know if you were able to treat it
HI Jorge, Please contact us for a potential healthcare referral at 800-837-8428 or at info@vestibular.org
I want to ask few things, does VD gives head pressure front n back, make off balance, dizzy , gives hand face legs tingling ?
I have all this symptoms pressure in my head,, tingling in legs or in my back and imbalance makes me dizzy everyday can't even sleep at night due pulse in my head. How long have you suffer this symptoms ?
@@ronnel3956 same and i have tinnitus almost 8 months now
i get all of the dizzieness and visuals and ear issues but i font get any headache symptoms or pain in that sense
also do you know how often or usuall it is to be diagnosed with vestibular migrains in your teens because from what ive read it is usually in older people?
@Andree Vestibular Disorders Association thanks so much, my doctor said today he thinks I get vestibular migraines so I haven’t had too much time to research it 😅
so many words, no concrete suggestion...
Ways to Increase Neuroplasticity
Get enough magnesium and choline (and maybe supplement with specific forms).
Sleep. Eat fish, and turmeric (or use curcumin).
th-cam.com/video/Ftc_gXgCCus/w-d-xo.html&feature=emb_logo
She does this in purpose. She’s trying to push you to buy her $2k “self help course”
Hello! So heres what happens with me, during my period days, weather changes, crying or stressed, i start getting weird symptoms sometimes a headache that comes for 2 seconds and goes, i see little colored dot that comes.for 2 seconds also, tinnitus, cant tolerate brightness, extreme motion sickness, even when i tilt my head i feel very sick, when im laying and stand up i feel pressure in my head, severe nausea and sweating, spinning sensations inside my head like im on a boat, very loud noises seem to get inside my brain, this is just to horrible to handle, its chronic, could this be vestibular migraine?
Hi Miss Nadine, Here is an article on Vestibular Migraine from our website: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/
Contact us for a referral to a healthcare provider that can do vestibular testing at info@vestibular.org or 800-837-8428
Do u feel constantly nauseous?
@@zoyabattol754 yeah
@@NadineMoussaTuber94 even still are you suffering from dizziness and nauseous?
@@zoyabattol754 from time to time yes :(
i feel some time's walking imbalance and headache with dizziness and my leg muscles weakness When there is pain on the head, the light of the eyes also decreases. , And sometimes burning in my head , I also got acidity with that, had fungal infection before then after this
Please help me mam what is the problem
I am so sorry to hear about the symptoms you are dealing with right now! Please feel free to contact our patient support coordinator at info@vestibular.org to request more information or assistance finding a vestibular professional in your area.
How do you feel now
I'm fine before but sometimes the breath increases , even one side pain of head and little walk in weaknesses the muscles
@@nikhillaxmi708 how did you get rid of walking imbalance/dizziness ? I have this problem also, can't stand or walk properly and can't even sleep at night because I have pulse back in my head.
Omg.. 6 month before I removed my gallbladder from that I started getting migraine acidity indigestion heart palpation eye irritating... Know I'm taking medicine for all this it's hurting... Some times it's ok but times my life is ruining
Where can i make contact for diagnose about my held im live in south america suriname please im look for help
I'm sorry that you are struggling with vestibular issues. I'm afraid we do not have any providers in Suriname. Here is our provider directory: vestibular.org/finding-help-support/provider-directory. Please feel free to email us at info@vestibular.org and our Patient Support Coordinator will try to help you. Include information about your symptoms.
20 or 30 minutes 😅😅😅 more like all day. Omg i wish it was only 30 minutes. Mine are triggered by barometric pressure changes.
I’ve been diagnosed with migraines from a neurologist, tried a lot of different medication but none has seem to make any difference, some days I wake up like there’s nothing wrong, but 90% of the time I wake up feeling a constant head pressure and dizziness, also have visual disturbance such as things moving and twisting and a strobe light effect when I’m looking at things. I’ve tried changing diet and taking supplements to see if it makes any difference. The headaches are always a lot worse in the morning and it makes my whole body feel weak and tired. I’ve tried exercising but it makes me feel extremely lightheaded and need to lie down afterward. Is there anything else I could try to make me feel a bit better?
Dizziness and visual disturbance are common in people with vestibular migraine. Here is an article that describes this in more detail: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/. Medications are a trial and error game (vestibular.org/article/diagnosis-treatment/treatments/medication/). Diet can also help (vestibular.org/article/coping-support/dietary-considerations/). Please contact VeDA for one-on-one support (info@vestibular.org).
Im in the same situation for about over a year with anxiety, and nothing at all works for me 😭 I hate this so much..... How are you doing now?
@@loretta5330 still not much better, the doctors seem to think it’s linked to my mental health and stress and I don’t really seem to feel stressed that often. The only thing that’s stressing me out is the fact I feel crap almost everyday. I tried taking diazepam and it made a huge difference but the doctors are reluctant to prescribe me them as they can be addictive and it’s easy to see why as the first time I took one I actually felt normal for the first time in well over a year.
This sounds just like me. It's been two years and it's been difficult.
Get a sleep study. It might be sleep apnea. Not enough oxygen when sleeping
Thank you for the video, VM is really hard in every way, is there a cure? or just treatments to be funtional?
There is no cure. The main treatments are diet and medication. Many vestibular patients can return to almost 100% functionality.
I am 61 and I have had this condition since I was 16. it is manageable but like the experts say medication, diet and exercise have to become a part of your lifestyle. For many years I would make sure I had some aspirin on me and at the onset of the migraine I would take one and within an hour it would mitigate my symptoms.
I was diagnosed last december 2019, and it also hurts whenever i sleep a lot. Is that normal?
Yes I’m like that too could we communicate?
Sorry but what do you mean neuroplascity? I understand what it is, but how the hell do we rewire our vestibular system? I've had this hell for 18 years and I'm so fed up of it. Been prescribed pregabalin but don't want to be on drugs fir life. I'd be so grateful of your help
The brain can be rewired through repetition. That's why so much vestibular rehabilitation therapy is about repeating exercises. Eventually the brain gets used to the new input and expects it, so it doesn't set off warning signals because the vestibular system isn't functioning as it should be, which cause you to be dizzy.
I have vestibular migraines and I have all the symptoms all the time I don’t have them for just a few hours or a couple of days they’ve been constant all day every day for 18 months and none of the medications that they’ve tried me on have worked the only thing that helps is phenergan
I’m 3 months into this 24/7
How long can they last because i go through this like 3 weeks, very dizzy my eyes don't focus i feel nauseous then it goes away then a a couple months later it comes back. Sooooo soooo miserable idk if it's this or something else. I've been diagnosed with this but if they don't last that long then idk
Vestibular migraine can last several days, with residual symptoms lingering for weeks or months. Learning coping strategies can help, e.g. dietary changes, managing stress, supplements, etc. Here's an article that may provide more info: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/vestibular-migraine/. Feel free to contact VeDA directly for one-on-one support (info@vestibular.org).
@@VestibularVeDA thank you 😊
@@jamiebluemel3186how are you now?
Can you experience vertigo headaches like everyday after for weeks ??
My daughter has Ehlers Danlos Syndrome, Dysautonomia, CFS/ myalgic encephalomyelitis. She can be spinning every day over a month at a time
She has many different types of migraines, this is the most debilitating of them all. She gets the as she sleeps, wakes up with them.
There are many different causes of dizziness, some of which are vestibular-related while others are not. Here is some information that may help you better understand vestibular disorders so you can determine if what your daughter is going through is vestibular-related: vestibular.org/article/what-is-vestibular/. Also, here is some info on pediatric vestibular disorders: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/pediatric-vestibular-disorders/. Please contact VeDA directly for one-on-one support: info@vestibular.org.
Is vestibular migraine, falls to a ADA condition
I've had this shit for 3 years and no so called doctor has a clue
Leah, We are so sorry, that sounds so frustrating. Let us know if we can help. 800-837-8428 or info@vestibular.org
I'm either dying or I got these
Balance is affected as well.
It Runs in m'y Family : mother, me, daughter, son, brother. Aspegic helps. 500 or 1000.
Same as I have a problem..🙂
I see a lot of people keep on speaking about this t.co/aZoJ5oJUN1 . But I'm not sure if it's good. Have you ever tried using this popular Vertigo remedy
What i do.
Vitamin B2 gets rid of this.
Not for everyone. Didn't for me.
@@meganhenry5795 Me either 🥴😖
Horrible starting sound