I have what I think you now call PPPD, but was diagnosed with VVM. I tortured myself with vestibular rehab for 10 weeks (only making myself worse). If you cannot calm the fight/flight/freeze response that is part and parcel of these vestibular conditions then no compensation can occur. So first I did yoga teacher training with a group that understood and allowed me to work with the condition. Then I began partner dancing. I started with a Tango style dance called Kizomba (very connected physically to your partner), then on to Salsa and Bachata (both partner but involving more space in the connection and spins). When you do yoga you are essentially working on breathing while balancing - a destressor. When you dance, you have a partner and this other is a support physically and mentally - and it is fun. All of these are destressors. The result is that my VVM is much more managed and dance is a blast!! Same training as the tedious (in your head) VTR but with support and endorphins. I say skip the VRT and go straight to dance or yoga. VRT only ever made my condition worse. Time will teach you your triggers. You will be able to manage this condition. Accept there will be setbacks - rest, recover and try again :)
Hi I was wondering how I can ask questions? I have just been diagnosed two years ago with pppd and vm after suffering with symptoms for the last 12 years I have never conclusively had it determined but it’s believed a virus overnight triggered my symptoms however I had a relapse about 3 years ago so this in my book is questionable. I live in the uk where much less about these conditions is understood and live on a cocktail of medications. Numerous attempts of vestibular physio have not helped me. But skills and tips have been invaluable. I have a great support network so am blessed and love to try and get out do this is my driving force but always suffer for it! I would love to ask more questions the broadcast was so informative and so me. Thank you very much . 😊
Ihave had Bilateral Vestibular hypofunction for 5 years. I am dizzy ALL the time. I have had therapy numerous times. Is there anything to help this dizziness?
This is really helpful thank you for this video. I have been unwell since march 2023 started really bad symptoms then gradually over time is getting better. I’m still stuck with the dizzy feeling and feel like I’m going to pass out but don’t. Nearly 7 months in and I’m weaning off betahistine I was given. I’ve had ct and mri and bloods all fine. Ent consultant thinks maybe it was vestibular neuritis. Do you have any tips on getting back to normal I struggle daily and can’t really go out for longer than 5 mins at the moment. Can’t work and feeling low. I’m only 33 and feel like my life is on hold. Thank you so much🙏🙏
Vous avez compris c était quoi le traitement ? Moi je n ai pas compris, si vous savez m expliquer, pareil que vous même à la maison ça tourne en permanence et vertiges de positions non stop je n en peux plus, et grosse crise quand je suis au plus mal je ne sais plus quoi faire
@@eternityrps8651 Bonjour! Hello! Sorry I do not speak French but I google translated your message. I am sorry you are suffering. Have you spoken to your doctor and had any testing? I have CT scan of brain, MRI of brain and blood work. All came back okay. I’ve been suffering since march nearly 7 months it started with really bad symptoms but is going over time. The best thing to help is something called vestibular rehabilitation therapy, if you have one in your area or if not TH-cam has some. I hope you feel better soon. How long have you been suffering?
I feel your pain greatly, and sorry to hear this. Please ask your doctor/specialist about SCDS (superior canal dehiscence syndrome) I had suffered for most my life with worsening symptoms. It took 4 brain scans and a random TH-cam video to get diagnosed. Jordan Junco was my saviour for this. I watched loads of videos trying to find out what was wrong with me, just being fobbed off by doctors saying I was stressed, turns out I have Bilateral SCDS. I should be having surgery on my left side by late December. I wish you all the very best warrior 🫂❤️
@@jono_young thank you for this! I seem to be healing over time they think it’s vestibular neuritis but I’ve not had a definite answer. I will look up SCDS. I hope you are feeling okay and wishing you well with your surgery and recovery :)
Bonjour que faut il faire pour se sortir de la. Et remarcher normalement sans vertiges. Je garde des vertiges de positions qui ne disparaissent jamais. Je n en peux plus. 4:11
People who have had a stroke may have vestibular symptoms afterwards. Strokes are technically considered cardiovascular but the side effects experienced can be neurological.
I have what I think you now call PPPD, but was diagnosed with VVM. I tortured myself with vestibular rehab for 10 weeks (only making myself worse). If you cannot calm the fight/flight/freeze response that is part and parcel of these vestibular conditions then no compensation can occur. So first I did yoga teacher training with a group that understood and allowed me to work with the condition. Then I began partner dancing. I started with a Tango style dance called Kizomba (very connected physically to your partner), then on to Salsa and Bachata (both partner but involving more space in the connection and spins). When you do yoga you are essentially working on breathing while balancing - a destressor. When you dance, you have a partner and this other is a support physically and mentally - and it is fun. All of these are destressors. The result is that my VVM is much more managed and dance is a blast!! Same training as the tedious (in your head) VTR but with support and endorphins. I say skip the VRT and go straight to dance or yoga. VRT only ever made my condition worse. Time will teach you your triggers. You will be able to manage this condition. Accept there will be setbacks - rest, recover and try again :)
How can I turn the music off on the video?
I would love to hear this information, but with the background music I simply cannot listen to it.
Hi I was wondering how I can ask questions? I have just been diagnosed two years ago with pppd and vm after suffering with symptoms for the last 12 years I have never conclusively had it determined but it’s believed a virus overnight triggered my symptoms however I had a relapse about 3 years ago so this in my book is questionable. I live in the uk where much less about these conditions is understood and live on a cocktail of medications. Numerous attempts of vestibular physio have not helped me. But skills and tips have been invaluable. I have a great support network so am blessed and love to try and get out do this is my driving force but always suffer for it! I would love to ask more questions the broadcast was so informative and so me. Thank you very much . 😊
Ihave had Bilateral Vestibular hypofunction for 5 years. I am dizzy ALL the time. I have had therapy numerous times. Is there anything to help this dizziness?
This is really helpful thank you for this video. I have been unwell since march 2023 started really bad symptoms then gradually over time is getting better. I’m still stuck with the dizzy feeling and feel like I’m going to pass out but don’t. Nearly 7 months in and I’m weaning off betahistine I was given. I’ve had ct and mri and bloods all fine. Ent consultant thinks maybe it was vestibular neuritis. Do you have any tips on getting back to normal I struggle daily and can’t really go out for longer than 5 mins at the moment. Can’t work and feeling low. I’m only 33 and feel like my life is on hold. Thank you so much🙏🙏
Vous avez compris c était quoi le traitement ? Moi je n ai pas compris, si vous savez m expliquer, pareil que vous même à la maison ça tourne en permanence et vertiges de positions non stop je n en peux plus, et grosse crise quand je suis au plus mal je ne sais plus quoi faire
@@eternityrps8651 Bonjour! Hello! Sorry I do not speak French but I google translated your message. I am sorry you are suffering. Have you spoken to your doctor and had any testing? I have CT scan of brain, MRI of brain and blood work. All came back okay. I’ve been suffering since march nearly 7 months it started with really bad symptoms but is going over time. The best thing to help is something called vestibular rehabilitation therapy, if you have one in your area or if not TH-cam has some. I hope you feel better soon. How long have you been suffering?
I feel your pain greatly, and sorry to hear this. Please ask your doctor/specialist about SCDS (superior canal dehiscence syndrome) I had suffered for most my life with worsening symptoms.
It took 4 brain scans and a random TH-cam video to get diagnosed. Jordan Junco was my saviour for this. I watched loads of videos trying to find out what was wrong with me, just being fobbed off by doctors saying I was stressed, turns out I have Bilateral SCDS. I should be having surgery on my left side by late December.
I wish you all the very best warrior 🫂❤️
Thank you doctor ✌️➕❤️
@@jono_young thank you for this! I seem to be healing over time they think it’s vestibular neuritis but I’ve not had a definite answer. I will look up SCDS. I hope you are feeling okay and wishing you well with your surgery and recovery :)
Bonjour que faut il faire pour se sortir de la. Et remarcher normalement sans vertiges. Je garde des vertiges de positions qui ne disparaissent jamais. Je n en peux plus. 4:11
Can any of these be attributed to stroke
People who have had a stroke may have vestibular symptoms afterwards. Strokes are technically considered cardiovascular but the side effects experienced can be neurological.
C est quoi la différence entre migraine basilaire et vestibulaire ?
Very good, but visual aids could really enhance your presentation. It is difficult to maintain attention for a long period of time.
Larry, Ph.D.