Omg! Using our handicap parking.... I don't feel bad anymore using that. I have to think I may be okay going in someplace, but I don't know how I will be coming out!? 😢
I have a super power every time i take my meds Levodepa carbidopa my tremors gone and i can do what ever i want even my kitchen i paint it. I can do my household chores.
I can walk but I found that any stress puts me over the edge and my feet start to curl and move on their own then i have to hop and feel like i'm going to fall over. I take the wheelchair all the time now.
Thanks for your comment. As some of the panelists say in the recording: it can be hard, but it is often better to take advantage of the extra support when it's available. It's often impossible to predict when a stressful situation may make symptoms worsen.
I know I have noticed last month or so my eyes twitch, fingers & toes twitch. Had to add another carbolevadopa To my day. Haven't noticed it helping yet. Stress is causing it to really mess up lately.
Sometimes the process of adjusting medications can take some time. It can be hard to have patience, though, and we hope you find relief and improvement soon!
Thank you.
Thank u soo much Kevin and kat ❤
You all have helped me so much
Finally diagnosed FND and Parkinson’s
We are here for you!
You all help so much!
Thanks for your comment and for watching the recording. We are glad to have you with us!
Omg! Using our handicap parking.... I don't feel bad anymore using that. I have to think I may be okay going in someplace, but I don't know how I will be coming out!? 😢
Thanks for adding your voice on this!
I agreed with you 💯 👌
I would like to talk with someone at DP. This his March 21 2024.
Thanks for reaching out. We can be reached by phone at 1-866-358-0285 or by email at contact@dpf.org.
I have a super power every time i take my meds Levodepa carbidopa my tremors gone and i can do what ever i want even my kitchen i paint it. I can do
my household chores.
lucky!
Thanks for your comment. We're glad your treatment is working well for you!
I can walk but I found that any stress puts me over the edge and my feet start to curl and move on their own then i have to hop and feel like i'm going to fall over. I take the wheelchair all the time now.
Thanks for your comment. As some of the panelists say in the recording: it can be hard, but it is often better to take advantage of the extra support when it's available. It's often impossible to predict when a stressful situation may make symptoms worsen.
I know I have noticed last month or so my eyes twitch, fingers & toes twitch. Had to add another carbolevadopa To my day. Haven't noticed it helping yet. Stress is causing it to really mess up lately.
Sometimes the process of adjusting medications can take some time. It can be hard to have patience, though, and we hope you find relief and improvement soon!
how many of you are on ssdi?
Approximately half of the Meetup panelists are on SSDI.