Living With Parkinson's Meetup: September 2023 -Disability and Changes of Ability in Parkinson’s

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  • เผยแพร่เมื่อ 14 ต.ค. 2024

ความคิดเห็น • 20

  • @maryannclark2386
    @maryannclark2386 หลายเดือนก่อน

    Thank you.

  • @traceypeel2176
    @traceypeel2176 20 วันที่ผ่านมา

    Thank u soo much Kevin and kat ❤

  • @traceypeel2176
    @traceypeel2176 20 วันที่ผ่านมา

    You all have helped me so much
    Finally diagnosed FND and Parkinson’s

  • @angelakindon9839
    @angelakindon9839 ปีที่แล้ว +1

    You all help so much!

    • @davisphinneyfdn
      @davisphinneyfdn  ปีที่แล้ว

      Thanks for your comment and for watching the recording. We are glad to have you with us!

  • @juliet-m31
    @juliet-m31 ปีที่แล้ว +4

    Omg! Using our handicap parking.... I don't feel bad anymore using that. I have to think I may be okay going in someplace, but I don't know how I will be coming out!? 😢

  • @DannyCockrell-g5d
    @DannyCockrell-g5d 6 หลายเดือนก่อน

    I would like to talk with someone at DP. This his March 21 2024.

    • @davisphinneyfdn
      @davisphinneyfdn  6 หลายเดือนก่อน

      Thanks for reaching out. We can be reached by phone at 1-866-358-0285 or by email at contact@dpf.org.

  • @nanelgonowon5448
    @nanelgonowon5448 ปีที่แล้ว +1

    I have a super power every time i take my meds Levodepa carbidopa my tremors gone and i can do what ever i want even my kitchen i paint it. I can do
    my household chores.

  • @izzysoman2902
    @izzysoman2902 ปีที่แล้ว +2

    I can walk but I found that any stress puts me over the edge and my feet start to curl and move on their own then i have to hop and feel like i'm going to fall over. I take the wheelchair all the time now.

    • @davisphinneyfdn
      @davisphinneyfdn  ปีที่แล้ว

      Thanks for your comment. As some of the panelists say in the recording: it can be hard, but it is often better to take advantage of the extra support when it's available. It's often impossible to predict when a stressful situation may make symptoms worsen.

  • @TheOriginalKilamanjaro
    @TheOriginalKilamanjaro ปีที่แล้ว

    I know I have noticed last month or so my eyes twitch, fingers & toes twitch. Had to add another carbolevadopa To my day. Haven't noticed it helping yet. Stress is causing it to really mess up lately.

    • @davisphinneyfdn
      @davisphinneyfdn  ปีที่แล้ว

      Sometimes the process of adjusting medications can take some time. It can be hard to have patience, though, and we hope you find relief and improvement soon!

  • @martyyochumcasey6621
    @martyyochumcasey6621 ปีที่แล้ว

    how many of you are on ssdi?

    • @davisphinneyfdn
      @davisphinneyfdn  ปีที่แล้ว

      Approximately half of the Meetup panelists are on SSDI.