As a care-partner, this is so helpful. It helps for you to share so openly and honestly. I appreciate your bravery. I would love for my husband to be a participant in your group. It is beautiful how you are so supportive of each other!
This is a video everybody should see. It explains the essence of what it’s like to have Parkinson’s. You put into words exactly what I am experiencing. I want to been trying to write a book about but it’s too hard to put into words. I could watch this 10 times. It’s really awesome.
Hi my name is Irene and I enjoy listening to everyone’s story. I love dogs we had one for 17 years, because of my age my husband doesn’t thing it is good thing, the dog would out live me and it’s not fair to the pet.
I was diagnosed last July, I started to watch/listen this meet up since last September, it gave me so much encouragements to face my fears. Thank you very much!
Know you're not alone! Please consider reaching out to one of our amazing Davis Phinney Foundation Ambassadors. davisphinneyfoundation.org/connect/ambassadors/ They are eager to talk with you.
For more information about all aspects of the ambassador program contact communities@dpf.org. Note that not all members of this panel are ambassadors. We develop the panelist group based on a variety of factors.
Yes. She has had DBS. She shares a lot about her experiences in these two interviews: th-cam.com/users/liveYrAAo8FCr48 th-cam.com/users/liveEDh6tV8wlHA
I have a genetic defect preventing me eating sugar in any form, my craving for carbs drives my blood sugar way up and I know that my doctor condemns me. It is like a slow suicide.
I don't feel any shame but I do have quite a bit of fear. Like Davis I am a cyclist and ultra runner. I was diagnosed 11/21 but knowing the symptoms I believe I may have had it for close to 10 years. I am scared to death that what, and how long, my body will fail bad enough that I will not be able to compete. I also don't want to become a burden on my children.
As a care-partner, this is so helpful. It helps for you to share so openly and honestly. I appreciate your bravery. I would love for my husband to be a participant in your group. It is beautiful how you are so supportive of each other!
This is a video everybody should see. It explains the essence of what it’s like to have Parkinson’s. You put into words exactly what I am experiencing. I want to been trying to write a book about but it’s too hard to put into words. I could watch this 10 times. It’s really awesome.
27:30
I have a lot of people(friends)that are uncomfortable around me.
Heather is so wonderful
I love you all! Thank you for your advices
I love you guys!
Hi my name is Irene and I enjoy listening to everyone’s story. I love dogs we had one for 17 years, because of my age my husband doesn’t thing it is good thing, the dog would out live me and it’s not fair to the pet.
Thank you Mel ❤️ this panel saved especially during the pandemic
I was diagnosed last July, I started to watch/listen this meet up since last September, it gave me so much encouragements to face my fears. Thank you very much!
You are so welcome
Thank you all honestly it help 🙏 😊
Well said Robyn - totally agree👍
Likewise- thanks to all you guys, you help me so much with your honesty and openess❤❤ x
So glad!
How do you become one of you? I love the closeness y'all have. I feel i have nobody to communicate with.😊
Know you're not alone! Please consider reaching out to one of our amazing Davis Phinney Foundation Ambassadors. davisphinneyfoundation.org/connect/ambassadors/
They are eager to talk with you.
Thank you! I needed to hear this 💛🌈
I really miss walking freely without aid or help from others. I get frustrated holding a fork. I get tired of people turning their eyes away.
Irene, forgot to tell you I m in Red Deer Albert Canada
How does a person become an ambassador?
For more information about all aspects of the ambassador program contact communities@dpf.org. Note that not all members of this panel are ambassadors. We develop the panelist group based on a variety of factors.
Heather have you had dbs
Yes. She has had DBS. She shares a lot about her experiences in these two interviews:
th-cam.com/users/liveYrAAo8FCr48
th-cam.com/users/liveEDh6tV8wlHA
Oh no - is Mel leaving DPF? She is great at mediating and directing these webinars
Thank you, Sharon. I appreciate your kind words so much! I am leaving, but I hope to remain connected. See you in July!
Not making light of a serious topic but I love the Shed comment 😂😂😂
I have a genetic defect preventing me eating sugar in any form, my craving for carbs drives my blood sugar way up and I know that my
doctor condemns me. It is like a slow suicide.
Helloooo
I don't feel any shame but I do have quite a bit of fear. Like Davis I am a cyclist and ultra runner. I was diagnosed 11/21 but knowing the symptoms I believe I may have had it for close to 10 years. I am scared to death that what, and how long, my body will fail bad enough that I will not be able to compete. I also don't want to become a burden on my children.