KBG Awareness Day 2018 - Infancy

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  • เผยแพร่เมื่อ 5 ก.พ. 2025
  • The very distinctive features of KBG Syndrome can be seen clearly in our little ones. Get to know KBG and let our babies make you smile! Happy KBG Awareness Day!

ความคิดเห็น • 4

  • @AnnetteMaughan
    @AnnetteMaughan 4 ปีที่แล้ว +1

    I love this!!!❤️💕❤️💋

  • @karlacattaneo6073
    @karlacattaneo6073 4 ปีที่แล้ว +1

    Minha filha tem kbg, é uma linda!!! Temos um canal contando a nossa história, inclusive nosso sofrimento até saber da síndrome .

    • @GingerRissewijck
      @GingerRissewijck 2 ปีที่แล้ว

      My son also has the kbg syndrome. It was very diffecult for us. From the Day he was born till now its always a big fight for us. Hopefully it will get better soon, i also make video's at my channel. Good you do the same.
      Hope your daughter is doing okey over there and she isnt sick all the time❤️

  • @GingerRissewijck
    @GingerRissewijck 2 ปีที่แล้ว

    Its a shame i dont have Facebook. In 2022 we find out our son has the kbg syndrome. In the netherlands there is still not much information about the syndrome. We know about it for 4 months now i think. I hope to hear more storys from other parents someday. Sometimes i feel so alone, because no one understands the situation with our son. I hope one Day more people will use different platforms to tell their story. Im clad i found this youtube channel.