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As parent of a newly diagnosed KBG child every piece of information helps to get a better understanding. Our daughter is 20 months old. So we are just at the beginning of the journey. It’s comforting to hear that KBG grow up and can lead a normal (?) life. Let’s see what her older brother will say then.

Thank you very much for this informative video. It helps in getting a different perspective from a sibling

My Child also has the kbg syndrome he has a New sort no one have in the world, so that makes it really hard for doctors to know what it Will say for the future. For now we really struggeling with his health. Im glad to hear wich way it can turn out. They are going to do a big dna test to see if he only have the kbg syndrome or something next to it. My husband and i dont care kbg syndrome in our dna. Also not in our eggcell or something. Our Son made it by himself in the pregnancy..

Its a shame i dont have Facebook. In 2022 we find out our son has the kbg syndrome. In the netherlands there is still not much information about the syndrome. We know about it for 4 months now i think. I hope to hear more storys from other parents someday. Sometimes i feel so alone, because no one understands the situation with our son. I hope one Day more people will use different platforms to tell their story. Im clad i found this youtube channel.

Minha filha tem kbg, é uma linda!!! Temos um canal contando a nossa história, inclusive nosso sofrimento até saber da síndrome .

I love this!!!❤️💕❤️💋