Well done!!! I held my breath for a moment before watching this... I thought "finally!" then I prepared myself for another video of misunderstood opinions stated like facts. My daughter has Level 2 Autism (PDD prior to 2013) which sometimes is seen as high functioning autism, but she has cognitive development disabilities as well. Your info was spot on. Thank you for not being careless when you have a platform to educate.
Yes, her info was spot on despite the functioning labels. And not to jump on this if I am wrong but is your name - blue8ify - a nod to light it up blue or in anyway associated with autism speaks because as an autistic person I try to advice people who do not know to learn that they are not a good company to support autistic people. Idk, I hate to do this and hopeI do not come off as rude.
Thanks for another spot-on video Kati. Its exciting that the current generations of young people with ASD are more likely to be diagnosed and treated than my generation. I am 52 and got diagnosed and even had some support for my dyslexia. But Hanz Asperger had not published his work when I was growing up. So it has only been in the last decade that I have come to discover that I am autistic. I now have autistic friends. Before I moved, I joined a group for very high functioning autists. One was intellectually brilliant, with multiple docorates, an internationally cellebrated career as a biologist and wildlife photographer and a marriage. But like me, he still comes accross as socially odd and a little child-like. One friend has selective mutism and learning difficulties. But he has come right out of his shell since our friendship has developed. So relationships are really important to me, but I find social settings very tiring. I like to live with other people and have them in my routine. But I work for myself as a gardener so I can enjoy long stretches in my own company. I can also adjust my workload according to how I am coping with life. My marriage failed after 23 years and two adult children. This was due largely to my poor mental health and self-oriented behaviour. But I am still very close to my 25 yr old son. And the break up has braught me really close to my brother and sisters. For me my faith, family and friends gave meaning and support in the last 4 years when I went through an extreme trauma. I was carried through by God's love and some amazing professional help. The behaviour that has always tripped me up and still causes me problems is when I make a commitment that I feel overwhelmed by and become anxious. My tendency is still to forget that all I need to do is communicate with the relevant people. I have very high standards for myself and often just need to make an adjustment to my schedule and my anxieties subside. But because of my dyspraxia I find scheduling quite difficult. I still am vulnerable to relapsing into avoidant and addictive behaviours as a coping mechanism. My message to everyone affected by autism is always simple: C O M M U N I C A T E!!! I know your default setting when stressed is to withdraw. But there comes a point when you must reach out for help. Dont get isolated. The longer you leave it the more difficult life gets. But feeling trapped is only a feeling. Its an illusion . YOU ARE NOT ALONE! You may feel like an alien, but you re not the only one. Even neuro-typical people feel like they re the odd one out sometimes. We just feel like it most of the time. Look online or ask your doctor for local support groups.
Kei Hill blue8ify is in in NO way related to Autism. It has always been my favorite color and 8 is my favorite number. I am 40+ yrs old and that color/number is consistant in my usernames. Also, I do believe she addressed the label due to it being so common. She is very specific as she explains that is is not a legitimate medical term. I am not a fan of categorizing with "high/low functioning" especially since my own daughter falls into both of those and the labels have hindered her in many ways.
My mom was telling me about my childhood and she said that I always seemed really uncomfortable and honestly just uninterested in other children. Which. Makes sense. She also used to have to physically hold me and hide my face from people when they came over because being perceived at all in any way was painful. Speaking to people was also mentally painful for me. My mom says I was just shy but this past weekend she said that I was “almost like an autistic child” cuz of how I was socially. Now that I’m 22, this weekend with my mom we had family over and I found myself getting really overwhelmed and irritated by how loud it was outside. It was kind of sudden feeling but I really just wanted to cover my ears. But I didn’t want to seem weird so I left the room. But then I felt rude cuz people think it’s rude to leave a room full of people just cuz you’re uncomfortable. But I was feeling so irritable and I could have a much better time if I could cool off in the quiet for a bit.
@@haylee7951 Gen X did a horrible job socializing their children. I assume you are Gen Z... It is your parents job to make sure you are socialized before you began school and should not use school to socialize you. I was already making friends before school as well as being taught at home by my mother... Gen Z has some of the worst parents out there as Gen X is a horrible generation. I can only assume you were not really introduced to other kids too often and when you get home from school you do so to an empty house. Your parents then get home and there is no real family interaction.... This is what is causing your social issues not autism. If you had autism chances are you would not be in the comments section here posting anything as you would not even feel the social need for any sort of validation. Jus sayin...
@@zadekeys2194 as an adult in social situations - I find I tend to speak a bit too much because of the uncomfortableness of socializing and being with others. I’m 39 and I find most socializing to be strange and I simply don’t enjoy it yet it’s something that must be done occasionally.
As someone who has high functioning autism, i can confirm i get anxious when I'm at social gatherings. I feel like everyone is judging me and when people look at me and then go back to talking with others, i feel like they're talking about how horrible i look or about how shy i am. That's why i love being alone, because nobody can judge anything i do and my cats understand what i say and it feels like they're listening.
How did you react when he told you? I am afraid to tell people (in person) that I'm autistic out of fear that they'll reject me instantly (and this is just with platonic friendships, I've never dated). What should I expect if I told someone?
@Electro Power no need to react I’m autistic and I found her comment very helpful and it increased my self confidence knowing that I can be loved and accepted despite my shortcomings
I have ASD and I’ve found it’s easier to communicate with others on the spectrum than neurotypical people. So it seems it’s not that we don’t communicate well, it’s that we communicate differently.
*NO! MELTDOWNS ARENT TANTRUMS!* THEY ARE VERY SIMILAR TO PANIC ATTACKS. Parents, if your autistic child is having a meltdown do not punish them for it. Refer to these tips that will help. TIPS: - Don’t touch them. - Don’t yell at them. - Take them to a quiet room if possible. - If they are unable to move, politely ask, and if they want it then give them their noise cancelling headphones. - If your child likes weighted blankets, politely ask, if they want it then put it on their lap. - Allow them to stim if they are doing it, loud hands help them calm down. - Again, don’t touch or yell at them, they are overloaded and extra stimulation will make them feel worse. - Give them their comfort item. - Remember that they cannot control this. - Reassure that they are going to be alright. - Don’t try to get a verbal response out of them, they don’t want to speak right now. - Optional: Make them their favorite food or same-food when it’s over. Though sometimes they may lose their appetite from the meltdown. *It is always safe to ask.*
One thing I hate is people who associate autism with stupidity. Just because some need different coping skills and methods to help make their lives easier does not mean they're stupid. I have ASD as well and I also have a friend who is on the spectrum a little more than I am. But she's so sweet and so smart and passionate about her interests. She just gets nervous when she has to make decisions or trying to start a conversation. She does have a bit of trouble fully pronouncing some words, but she truly is an amazing person. And I'm so glad I met her.
I hate that it’s labeled a disorder. Everything is labeled a disorder. And these labels are given out after one session. How does a professional label someone as bipolar, autistic, depressed, anxious, etc after 40 minutes? It really bothers me that a child is labeled autistic. Because of social cues or because of eye contact? Or focused on a certain way of playing? Who comes up with this stuff?
We're usually smarter than "normal" neurotypical people. The masses of the 99% are usually illogical and predictable in their behaviors and mentalities. I no longer believe it is possible nor even desirable to make ourselves "acceptable" by their terms. The best thing for us Aspies to do is to recognize that we will NEVER be like them. Aside from neurotypical people who genuinely love and/or care at all about us (that number will be very small), we will NEVER be able to conform to their emotionally driven, illogical and animalistic way of life. If you are an Aspie, accept this. Hone your intellectual acumen knowing full well that it won't be understood by the others. When we persist in our efforts through discipline and focus, we can usually surpass the "normal" people in virtually any endeavor.
@@MariaMoleEpicbut autism Is a disorder! I mean, it has hampered my life in so many ways .. what would you want it to be called? A personality style? True autism is disabling in many ways
Ive always known I was autistic. I was misdiagnosed as not autistic due to a faulty test done as a child. Even after I was told I wasn't autistic, I fully knew that was wrong. I still have never been properly diagnosed meaning I have never gotten proper help. I have never been allowed to stim and any issues ive had have been met with anger and frustration. Ive always been told to just get over it. It seems to be getting worse yet I'm expected to be an adult now.
@@quindixie6867 It seems that not only the doctor who has done the test, your parents doesn't like the word "autism" to you. Which that is like giving a Tylenol to treat bacterial infection to the mouth.
True. Like understanding others emotions, small talk skills, how they come across others, knowing what to say, self independent skills. Most emotional issues comes from loneliness & conflicts with others.
How did you do it? I've suspected something all my life but have been detached from everyone so much that an conversation about it never happened. It's been about not being homeless all mu life.
Speaking as someone on the Autism Spectrum. I've always thought of High Functioning Autism as a label assigned to those of us who are able to hide our day to day struggles from others with a view to trying to fit in.
High functioning, like "can talk" it's really a poor description of what is going on. I'm like severe math savant, I can talk but it's not pleb English, it's wonky and loaded with swearing.
and some people with autism are better than 'normal' in something, and worse than 'normal' in other things, im only worse in things, i haven't yet found something im better in than 'normal' people.
my problem with autism is that everybody talks about it as if there is ONLY children in the spectrum. Edit: Not necessarily this case. I'm just a bit bitter LOL
I did try to mention adults and offer treatments that can work for both children and adults. But if you have any specific questions about adults with ASD let me know. i am more than happy to keep talking about it. xox
anyway, it would love to see you talk about more specifically about adults, though. It's just that it is really hard to see people write/speak about adults in the spectrum, so its inevitable that kids would totally be mentioned much more. Plus, its the early developmental stage of a person and the sooner they get help, the sooner they'll lern how to deal with certain situation. I'm probably just a little bitter I didn't get the diagnosis earlier in life :P
Autistic adults are coming into the light more and more, so while you don't see a lot on them now compared to autistic children, you certainly see and hear from and about them far more now than you did even a few years ago. It would be nice to have more help and treatments targeted towards adults though as most interventions are only targeting early intervention. While early intervention is great for those with an early diagnosis, it's of little help to those if us with an adult diagnosis.
Agree 100% there. As someone diagnosed at age 35, I've had no help what so ever. I'm at a point where I'm barely surviving day to day. It's very frustrating when people tell me to get help, when no help exists. I've been offered counselling but cannot talk about my problems as i have a problem with selective mutism so its utterly useless. I did try, but the person didn't know anything about ASD so no effective communication occurred. It's so bad i couldn't communicate on a recent PIP assessment and have now lost my DLA. I was stable before, had a car to travel, could get to see family, travel to places ect. Now I'm stuck starving to death, hardly able to go out, have become mentally unstable ect and have no idea how I'm going to survive. And I'm told even IF i win the appeal, they will reassess me in a couple of years. The whole assessment process is mental torture to me. This so called help is now nearly killing me, and may well do before its solved. It's so bad i now need a social worker to assess me, I'm on anti depressants, or at least will be when they figure out which i can take which doesn't leave me needing hospital, I'm on anti anxiety meds, anti migraine meds, meds for my stomach all because i cannot communicate, and so called professionals who are supposed to help just don't know what the fuck their talking about.
I'm grateful for this video. I'm 41 and last week was diagnosed with adhd and she mentioned high functioning autism. It was actually a breath of fresh air. Life makes so much more sense now. I always knew I was different just didn't know why.
You have hit the nail right on the head with this at timecode 3:10... I have found it so hard and demoralizing being in a situation where I'm not severe enough to warrant treatment but not being normal either. I feel like I live in a bubble, I can see what's going on and interact with people but at the same time I feel so isolated and and detached from people. So thank you so much for saying it, its like somebody finally understands.
I also worked with a women who was commonly referred to as “high functioning” and it lead to a lot of miscommunication. Because of how well spoken she is, people commonly overlooked her diagnosis and didn’t realize how much she misunderstood emotional dialog and metaphoric phrases. It lead to a lot of misunderstanding and unnecessary conflicts.
ASL Anissa exactly. I would be consider high functioning because I don't look disable (even if I look really awkward and werid), I can talk and I have a high IQ, but right now I'm so dysfunctional I haven't gone to college in months, I hardly eat, I hardly shower or do anything really. So I don't see myself as high functioning at all
Mikel Montoya it’s not a real thing. Which is why a lot of therapists like myself that work with ASD cringe at the use of it. It’s an unnecessary segregation of one diagnosis. I’d encourage seeing a counselor or looking into different types of therapy or therapeutic activities. I am a music therapist and sometimes creating music or art can be extremely grounding. It takes all your attention which can be grounding when your brain is used to managing a thousand things at once.
Yeah, I'm considered high functioning because I have no outward signs at all (not awkward, not "weird", no problems with verbal language - I struggle to speak sometimes, but people just say I'm shy), but I'm completely unable to live on my own, and I've tried for 10 years now (I have a lot of problems with organization and memory, and trying to deal with society demands on my own is overwhelming).
ASL Anissa yeah, I've started going to a therapist a few weeks ago, but I don't have the diagnosis yet and the process of getting it seems soooooo slow (everybody is so skeptical about me having ASD just because I'm 18 yo...) and I need it soon or otherwise I don't know what I'll tell my parents when they find out I've failed almost every subject in college (they'll be very angry and will tell me how ungrateful and lazy I am and how I'm wasting all my potential), I don't want them to send me back home, I like living in a big city (and I think I could manage living on my own here if I had the accomodations that as an autistic person I need...), but I'm so scared to tell them that I have ASD without a diagnosis to prove it... so yeah, my life is complicated 😂
zeldahime living on your own as an autistic person is sooo difficult, I didn't know I was so impaired until these year when I left home for college. It's because we usually have really bad executive function skills (in my case I really think I completely lack them honestly, I'm so clueless)
I think the hardest part about being an adult with high functioning autism is being able to make a living. It's so frustrating trying to find work that we can handle, especially if you're the type of person that has extreme social anxiety. The only job really that I've ever been able to hold is dishwashing jobs, and even those are hard for me depending on the place. I have to be somewhere where I'm all but by myself the whole time, and I can't carry dishes to the kitchen for the cooks because I can't bring myself to give verbal warnings when I'm behind people. That and cooks and servers tend to be on edge if it's a busy restaurant. And everyone just seems to think you can get over it and act normal. People really don't realize that it's not that simple for us.
This is the most exhausting social situation for me. At every job I've held. And the extra pressure from our capitalistic system to perform and be productive, and follow all the rules and policies, but also follow all the expectations of the hierarchies and workplace culture in place, and be the exact same robotically normal worker every day who never has period flu or meltdowns or depressive episodes or panic attacks or even gets an actual cold, it feels so scary and inhuman, it makes the anxiety about work harder. I have always felt like I need to "mentally prepare" and "suit up" before work, whether a shift or a salaried job, no matter what time of day I work.
@@MysticRhythmsYogait makes the entire work experience exhausting. You work 6 days a week and get a day or two off to recharge but that’s never enough - then you you start the next week. Rinse and repeat - it’s not a life I want to live
Fortunately I landed a job in a main frame computer center back in 1969 when they couldn’t find anyone for the job because no one knew what a main frame was. 36 years later, I ended my intimate relationship with main frame computers. Only after that, did I find out that I had autism. I also out that working with computers is perfect For an aspie
I am really suspecting that I'm on the spectrum. As a child I nearly fit all the criteria for diagnosis on a test designed for boys. Today, I work in marketing, sales and studied psychology. I can skillfully profile and analyse others, seeming to have a deep understanding for them through years of obsessive research. I appear bubbly, outgoing and socially skilled but when I get home the mask drops. I become crabby, lonely and selfish in my demands for conversations about what I want to talk about. When you get to my core, I struggle to maintain relationships, I push peoples boundaries and can be egocentric. Its hard because I understand how Im supposed to behave. Maintaining the facade is just tiring. I used to have severe sensory sensitivities, poor posture and eye contact trouble. I no longer have these but Im still very clumsy.
I don't know. My relatives often were angry on me because I often refused to respond on their questions and didn't involve in their toppic. At the beggining. And I was struggling because I undertood their feelings but couldn't help. I just value my life time and I can't waste it on stupid toppic or on toppic I am not ready to share(like privat like etc). I just even can't fokuss on uninteresting for me - my brain and eyes go away automatically and I hate to pretend I am listening when I am not. But - I am able to do that when I am ready for that by my choice. Then I can listen anything. So to be short I don't see its a illness or ego - it is something absolutely different. Different vision. For me - other people should realise how their behaviour, demands, jokes etc. abuse other feelings, steel their time without asking permission etc. And iff You don't want to listen - they think You are egocentric?:-)) but in truth they are because they ignore Your needs and force you to accept their needs immediately now. Anyway I said to my relatives. Well thats me. Take it or leave it. I love You but I will speak , do or involve in any other people needs only when I will be ready for it. No force. And now we have great relationship.
Clumsy isn't the right word. Your brain getting distracted from your current time and place is an entirely different thing than poor motor skills or hand eye coordination.
It may just be dyspraxia, a type of learning disability, it's related to autism but isn't. If you're having relationship troubles it might be related to borderline personality disorder. Just a few suggestions
@@KAHHHH8548 ummm WOAH! Do not EVER EVER EVER diagnose someone online the way you just did. You clearly have no knowledge of what BPD is. And someone having relationship troubles does not warrant such a diagnosis. True BPD is rare, and true BPD is marked by extreme highs and lows of feelings towards someone all within a very short timeframe. You clearly don't have a PhD in psychology, because you wouldn't be making online diagnoses. If you said that to the wrong person that could really mess with their head.
@@sammymakeitmakecents you're clearly talking shit. Yes I definitely do have knowledge of borderline personality disorder, you don't even know me or what my knowledge is
This is so encouraging. I was diagnosed with ASD two years ago, when I was 32! My whole life I felt like I didn't belong anywhere. I struggled to form relationships, I cannot cope with having a job and I couldn't cope with large crowds and noises. My whole life I resented myself for not being able to cope with day to day situations the way other people do. I felt like I was failing in life. But now I understand that my brain works differently, I'm super creative, and although I have always been teased about not being able to catch a joke, I can actually be funny at times! I have now come to embrace my weirdness and awkwardness. And it's so true what you said, ASD will not get better with time, and it's NOT something that needs to be cured! Thank you for this!!
I was 23 when diagnosed, but now at almost 33, I still feel like life is a total joke that's mostly full of struggles... I learned a lot, but you can not change the way people prejudge you or, as said in the video, say things like: you don't look/act like someone with autism...
Leslie Berner what made you think you should get checked out? I question if my closest child who might. brilant but has some thing that are off ... 1 % education wise.
If you don't believe thats true your most likely dealing with people deep on the spectrum where it's much harder to see past the barrier most of us put up I've certainly found that people on the spectrum can be very loyal and have advance interest in whatever their area of expertise are, believe what you want but some people on the spectrum are smarter than those that are not and vis-versa.
I was labeled a shy child in my youth and now an introvert into adulthood. As a child I would routinely pretend I was sick to get out of school because of the terror I felt being surrounded by other students, which in retrospect shows my ability to adapt to change was something foreign to me. I always felt comfortable at home, in my surroundings, a safe haven where I was familiarized with everything and without change. After all change was scary even with no initial threat for some reason. I knew since I was a child that something was different about me and went far beyond what you label as just traditionally "shy". Part of me believes that my parents were in denial that there was something wrong but how I would adapt to change, my inability to connect with others, and my unwillingness to put myself in any social situations or activities gave me insight into that I may just be a high functioning autistic. I've never been professionally diagnosed to this day but I know I am.... I still find myself withdrawn from social events or parties, my inability to communicate with others while stumbling on my words, severe anxiety when put in crowded areas, upset with sudden change from routine, and an inability to make eye contact when communicating with others. At one point I relied on alcohol to help cope with these feelings, as we all know alcohol lowers your inhibitions and with that could help bring some sort of "normality" within my life. I would communicate better, I could make eye contact while conversing, I felt confident, my anxiety was gone, and I wouldn't question the things that terrified me so much. Of course this all ended up being a temporary crutch that lead me down a deeper rabbit hole of dependency, health problems, and an enhanced feeling of my autistic tendencies when I was hungover only to delve right back into drinking again. I now have acceptance and an understanding for who I am now. I stopped drinking and have decided to force myself to get out there to try and overcome some of these more debilitating feelings I have as a form of therapy. Everyday is a struggle but I've noticed that even with some of the baby steps I've taken over the past couple years that I do have the ability to make things more bearable to where I can achieve a new level of happiness while feeling a form of achievement all with a sober mind. Keep fighting the good fight for those who struggle the same as I.
I have never read a paragraph that’s described my experience of life more😂 I have social plans later today with literal family and have been considering drinking before we get there so I can be semi normal. Hope your coping through life okay, your comment made my day
I got diagnosed yesterday at 26 years old. I don't honestly know how to process it yet but I found your video while looking for information and haven't heard anyone articulate how stressful insight into your condition can be. Thank you for making this video, I shared it on my facebook wall so my friends could get informed too
27 and I just got the bomb dropped on me too. Not really sure what to do with this information. I’ve gone so long masking and imitating other people am I allowed to stop now?
@@jetson_try getting diagnosed at 38 - it’s a whole other thing.. there are others diagnosed in their 50s. It’s daunting to look back and realize you have been acting the entire time. Like what now? More masking? Why ? Oh man
I'm 31 years old and I have Asperger's Syndrome. I was able to get my driver's license and I've been working for over two years now. It was a very good video too.
I was recently diagnosed with autism/Asperger's and when my mom told me about it I was shocked yet relieved because it explains everything I've been through and the events that happened in my life.
I used this doc herbs for my son and now my son is completely free, his speaking and behavior is ok. His herbs is 100% working on ASD. I met Dr Oyalo on channel and I’m happy to share my experience about it
I work with ASD as a music therapist and I cringe at the term “high functioning”. And I’m so happy with how to explained everything in this video! Labeling a child with a nonexistent standard can hurt them. I use Sign Language and PEC with some nonverbal clients and have found that being nonverbal is NO indicator of comprehension or intelligence. And I’m glad you mentions ABA. I know there are some that completely reject the idea. And I know why. I’ve seen how abusive it can be when used inappropriately. But when used appropriately, understanding what the clients needs to develop autonomy, it can be extremely helpful. And I use Floor time! I use it all the time in sessions! When you add musical instruments, floor time can be an amazing experience for both the therapist and client.
Yeah I know the term "high functioning" can be used in bad ways.. but I am glad you felt I explained it well. Since so many go without the care and support they need, I am just hoping that more people become aware of that entire spectrum and that everyone deserves support. xoxo
I personally like the term "high functioning", but only in reference to the Asperger's part of the spectrum. A high IQ is very common in those who have ASD or ADHD. There's a definite link between the two. Those with ASD shouldn't be underestimated.
cetkat I see what you’re saying... the problem is, you can’t separate ASD into high and low functioning AND not underestimate them. By separating the singular diagnosis, you are both underestimating all people labels “low functioning” and possibly over estimating (or ignoring the diagnosis) for people labeled “high functioning”. Someone labeled “high functioning” still has ASD and may need accommodations, but won’t get them because they are labeled “high functioning” and dont SEEM to need them. And vice versa, some labeled “low functioning” are looked over and sometimes left unassisted because it is assumed that they simply can’t do things. The labels hurt more than they help.
ASL Anissa I do believe that in terms of others assigning labels to kids and using that to dictate help and expectations is wrong. It is a spectum and there are other factors like IQ and learning disabilities & styles that further complicates things. You can't just make two categories and treat everyone in them the same. I believe in individualized IEPs. Autism itself is a label though. You wouldn't want to just lump it into a more generalized developmental disability category either. So, although labels can be used negativity, I don't consider them inherently bad. However, I'm thinking more along the lines of adults and using labels in positive ways, for increased clarity, understanding of needs, and creating connections with others who face similar difficulties. In that regard, I see being able to break down the overall Autism label into sub-labels/groupings as helpful.
cetkat I agree! But there is a difference between a label and a diagnosis. If using the term to help distinguish need, I’d use different terms. I (and many others) hate the phrasing. A person has their own functioning level. There is no standard for functioning in life. Would you tell someone in a wheelchair that they are low-functioning? Or someone who is deaf or blind? No. So who is to tell them that they aren’t functioning well? It’s a weird phrasing that’s kinda offensive. So in my practice I use phrases like “neuro-typical” and “neuro-diverse”. We all know autism is really just the brain working differently. So someone who behaving in a more typical way, I would say is a little more neuro-typical. Their brain works in a way we understand. I hope that makes sense. ☺️
I am Autistic, “high-functioning” and 19. I’ve known for 5 years. You’ll probably never see this. but I just want to express how beautifully well done I find this video to be. Almost everything hit the nail on the head and even helped me to understand why I do some of the things I do. My little sister is unaware I have ASD (I’ve been putting off telling her 😬). I have been trying to figure out how to explain my situation in a way that helps her understand I’m not “disabled” or “slow” or any other connotations/misconceptions she might get from hearing my diagnosis. I think this video might just be it. Thank you! ❤
I’m pretty sure I’m autistic high functioning and my dad thinks I am but my mom doesn’t so he says you don’t need the diagnosis even though my mom always says I’m so weird. I don’t make eye contact. I’m afraid of live noises or sounds. I have sensory issues I stim a lot, but I think I may try to see if I’m actually autistic by trying to get eye diagnosis
My daughter was diagnosed with aspergers syndrome at age 7. It's been hard, but she's 14 now and doing great. I hate that she struggles with peers, has joined friends, but she is truely a unique amazing girl.
I'm 43 years old. I recently started counseling for depression. My wife and I go through counseling as well. Both professionals have suggested I'm on the autism spectrum. It would make much more sense why I was bullied as a kid. And had a hard time finding friends.
This is absolutely amazing. I’m 19 years old, and there have been certain, what I thought of as “quirks,” I noticed that I did that made me different from other people growing up. I’ve tried for years trying to understood why I was the way I was, as my parents have no knowledge or even respect for the existence of neorlogical related disorders. Unfortunately they peg those people as making a decision to be how they are. One day I stumbled upon this concept mentioned in this video, and suddenly it all made sense. I’ve come to terms with how I am now. It’s amazing the impact raising awareness can make.
i'm high functioning autistic it makes me happy seeing that so many people accept it as it is and don't degrade people who have it i used to get heavily bullied until my best friend from 3rd grade saw me getting bullied and stood up for me and the kids then left me alone :) she's an amazing person and i couldn't ask for anyone better
I’m coming terms with this Now for the first time in my life, at 29. Several years ago my friend became a teacher for autistic children and told me she thought I may have highly functional autism because of my mannerisms. Years later people joked about it then I became friends with someone who was very similar to me who was diagnosed when she was a child. It actually gives me relief in knowing that I always felt different because I am literally wired differently. It’s like the missing piece of the puzzle I never came to terms with until now and it’s honestly shaking up my word. It also explains why I’ve been bullied and hated so much by those who misunderstand me. It’s almost as if most people think I’m purposely playing dumb my whole life.
I’ve always shown symptoms of Aspergers when I was younger, it was so severe when I was younger, because of this I got bullied heavily and I learned how to mask it. I became so good at hiding it, that even my gp and school didn’t believe me. It’s caused my anxiety, and I’ve never had an older female role model who I knew to be autistic. So this made me both happy and cry, thankyou so much for this 😭
Just recently I was diagnosed. I'm 22, graduated college, have a job and rent a house on my own. I talked with my psychiatrist about symptoms I had written down and concerns my mother had when I was younger. He seemed impressed and confirmed that I have mild ASD (or, as it would be ten years ago, Aspergers). All of these treatment options sounded very interesting and I may just do some looking around to see what is available for me. Thank you for educating people and myself!
Kati - Do Not use the word "tantrum" to describe a sensory overload meltdown. It gives the general public the idea that it is a choice. (I am an aspie, the daughter of someone on the spectrum, and I have multiple kids on the spectrum.)
A tantrum = making a fuss to get your own way A meltdown = overloaded by sensory sensitives and multiple stresses Things really went downhill when neurotypicals appropriated our word. Just thought I'd add to your post.
@@cityguard4847 As an autistic person myself I strongly disagree! A tantrum can lead to/develop into a meltdown - but a meltdown IS NOT a tantrum! Just as Shanti 'Sanjay' Roy explained above!
What? Nothing wrong with that word. I don't get the idea that it's by choice, I get the idea of the opposite... Any kind of outrage or whatever is associated with less control.
I recently found out I am on the autism spectrum. This video was amazing thank you for making it. Not being able to communicate the way I want makes it so much harder to explain how autism feels to the people around me and having this video to show them makes it so much easier for me. Thank you for being the voice for people who can't get their point across.
Although I am uncomfortable with the term “high functioning” I’m very happy to see this video. I did not know I was autistic until age 45! This automatically puts me in the “high functioning” category. I can tell you now, much of my life has been anything but that! After years of abusive relationships, lost jobs, substance abuse and friendships disintegrating…. ASD diagnosis was a huge aha moment followed by a lot of tears. If any of these therapies had been a possibility for me then maybe high functioning could have been achieved much sooner. On a good note, I’ve found my way and am now in a beautiful marriage with an autistic man and a career that works well for me so it is possible but man did I go about it the hard way! Anyway, back to my point. Thank you! Thank you for making a clear video and pushing that NT people need to ASK the needs of their autistic person directly. We are all just people too and have very different needs and personalities.
What career path did you choose? I’m wondering because I’m struggling really hard at 22 after having a major traumatic event just kind of push all ability to mask away
I have higher functioning autism and I just started my second year of university despite being told by teachers at school I wouldnt ever reach uni because of my GCSE grades. I feel over the years my autism has gotten better thanks to my mum who drilled it into me how to act around people and how to socialise properly and also teaching myself body language and stuff like that by reading books and reasearching it. there is hope for people with ASD and we can achieve so much Im studying a subject I am passionate about to get the career I want and Im with a partner who understands my autism. great video kati keep it up 😊
I'm getting assessed again soon. Saw a doctor when I was 7 due to me showing a multitude of symptoms but my parents were told I was fine, just needed alone time occasionally. I'm 14 now and everything's just getting harder as I'm getting older.
I’m 26 and I always knew that I was “off” or “weird” to other people throughout my life. I always did this crazy face and wiggling of my fingers to my face when I was alone as a form of stimming. I was never diagnosed but I see many signs in my son who is 2. My therapist told me that I might be on the spectrum and honestly, everything that you’re describing here fits so much with my everyday life. Everything is starting to make sense now. I’m planning to get formally diagnosed but I strongly believe that I am on the spectrum.
I think that we're just another race. We get on fine within our own group. We're better in relationships with our own. I am normal, my brain just functions differently. I don't need treatment.
Something about you saying "another race" doesn't sit right with me. For some reason, it makes me think autistic people function as a hive-mind. I find that a little disturbing. I'm not saying you shouldn't have said that- it's just a personal opinion. (Disclaimer: I'm autistic)
Precisely. It’s not that the mind has an issue. It’s like trying to cure the mind of a different species just because it works differently. Everything about every mind is perfect.
I don't think I'm autistic but I do have a mental disability but it's less severe as I've gotten older. It took me 29 years just to make one real friend. Most people are fake better off with few friends or none.
Ultimately what heals is the experience of being seen, met with presence interest and love, respect, accepted, understood, appreciated, in how we are right now... Someone supporting us in being our most authentic selves, both autonomously and intimately, the sense of healthy connection, which our current relationships and society in general cannot give us. Regardless of "diagnosis" or "disorder". It's not primarily the goal, strategies etc that helps. It comes down to every single one, people are emotionally hurt into these disabilities whether its in this life or past lifes, our "baggage and personality". The only thing that "heals" more is the experience of our essential unblocked being. To meet people where they are isn't about meeting them as "autistic" etc, but to meet them in their actual emotions and memories while seeing their essential being.
Teachers in all district school boards should actually be teaching kids about this kind of stuff like OCD, High Functioning Autism, Anxiety, and Depression and so on, y'know? Instead of things we'll all probably forget about when we all get home from school.
Yeah, our current systems of academia are majorly outdated for the 21st century. Technology and many other facets of society have progressed exponentially, but schooling has mostly remained the same for centuries.
Teachers also need to be taught how to deal with kids with asd 1 instead of sending pissed off emails to the parents because a kid responded in a negative way when they scolded them in front of the class. (Currently dealing with this)
I kept asking the schools to help me figure out what was wrong with my child. All they would say is he gets good grades. It took 8yrs before we found out he has Autism and Adhd . I wish just one teacher or counselor had giving me suggestions to look into
Thank you, Kati!! As you know my son has ASD. His first dx was ADHD, OCD and anxiety. Finally, at the age of 6 a psychiatrist diagnosed him w/h ASD. We then had ADOS testing done for an official dx. He has been with his therapist since he was 5 & participated in social group for a couple of years. He is also seeing a feeding interventionist for food sensory issues. We used the PECS system when he was younger & this really helped with scheduling as well. As a parent I can say the best thing you can do is educated yourself with as much information as you can, be an advocate and don't give up. There will be days you just want to scream and there will days when all you do is smile & laugh! Join support groups, talk to others that ASD & parents, & having your own therapist can be an amazing tool as well.
I'm an adult mid 30s with a late diagnosis. I had all the other labels (ODD, ADD, Bipolar, OCD, etc) and was misdiagnosed but because I have been high functioning my whole life they never figured it out. Social-zing is still hard, but I am excellent at masking. I spoke to my grandma and she saw it but said they couldn't go against the diagnosis. I thought at least I would have gotten the support I needed and not put on psychosis meds. Finally figuring it alll out a little too late
I got diagnosed with aspergers syndrome after 2013, but I live in Sweden and here some professionals use the ICD, and not the DSM. So the ICD still has Aspergers syndrome I guess.
Thank you, this video have showed me that i have had this disability all these years and never knew it i always had questions in my mind but i never thought that it was something strange. This have now unlocked a piece of a puzzle in my body and i am eternally grateful for this to have showed up on my TH-cam recommended list. And also Kati Morton, Thank you for spending you own time to research and providing it to everyone else who have access to the internet. I am about to turn 24 this year (actually in 2 days) and i am about to make some major differences in my life.
After 18 years of struggling and no one listening, my daughter has just been told that they think that she has Autism. Something that her family have been aware of for years but not one Dr would help. The relief from just knowing she will get help at the age of nearly 22 years old l cannot put into words. Love the video
Thank you for explaining this, I’ve been told by 3 doctors that I’m a highly functioning autistic person. When I was a kid I told was diagnosed with adhd but a lot of the feelings you described were on point. Especially on the feeling overwhelmed and exhausted as well as really anxious.
YESSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSS, is that too many sssss's, you should also work with How to ADHD
I have ASD. I was a youth worker for 9 years. Have a BA in Psychology, Bachelor of Criminology and Criminal Justice, Masters in Forensic Psychology. I find it easy to talk to people. Regulating my emotions is an issue for me. Music is a huge help for me it calms me down. I'm 56. I have never had any therapy or help. I was diagnosed at 50. I felt so angry cause I showed all the symptoms as a child. 53 years ago they only looked at the male brain. So many woman are being diagnosed late in life.
I got rejected a diagnosis because "im too socially aware" but I'm just smart. I have learnt to recognize sarcasm jokes through vocal tone and facial awareness, but if these arent available then I just don't understand. There are so many flags throughout my childhood, that me, my family and even people who knew me have recognized but I still got diagnosed. Just because I want to be social and have friends doesn't mean its not hard. I just hope that when I'm older and move away I can see a different psychiatrist and get diagnosed.
Past 4 months I’ve been taking my 3yr old daughter to a Speech therapist and OT she is delayed in her speech, toe walking still. And does not like to get messy although she is very particular She will be evaluated for autism some time this year we are on a wait list. This video was so helpful, and took a lot of stress off my heart. This is an awesome outlet to help educate not only parents but the entire world 👏🏽🧠
Okay, so I have ASD and a lot of autistic people are trying really hard to get rid of functioning labels so while I appreciate this video it hurt a little bit to me for someone I admire so much who does research was still using functioning labels. Everything you said was very true though. And I do appreciate that. I experience SO, and I also have Auditory Processing Disorder due to ASD and C-PTSD. But yes. I would have "high functioning" autism overall but some things I do and happen would mean I am "low functioning" autistic because I am incon, and find it hard to drive/get a drivers license. Which is why functioning labels dont work. And yeah. I just. I dont what to think of this. I also noted you used a lot of person first language, while some autistic folks like it most of us do prefer disorder first language - which you used sometimes. Thank you again for this video but I noted when you said you did research you didnt say you spoke to Autistic people but to parent blogs and a lot of parents of autistic kids do not do well. Therapies are awesome and I am actually looking into aquatic therapy! (And I am training to be a music therapy) Thank you for not mentioning autism speaks though because they are AWFUL and need to be shut down as soon as possible... Im sorry uf this is all over the place. I just didnt know how to feel. I love your videos Kati and i hope that as you learn more about ASD you discuss more.
I'm diagnosed ADHD but suspect I might be on the autism spectrum as well. I've been trying to get educated and been reading a lot of blogs by autistic people. From everything I've learned so far, I totally agree with your comment and was also disappointed with some aspects of the video.
L Leitenperger it wasn't that bad, Kati's always being a bit reluctant about talking about ASD, and she's always said that she didn't really know that much about it, but I think a lot of her followers have ASD (I do too) and a lot of us requested her to talk about the topic. I honestly thought that when she finally spoke about it, it was gonna be worse than this, but it was actually pretty good
I noted the parent blogs but lack of autistic adult and teen blogs, too. And i am right there with ya on the rest of your insights. I love Kati and her videos, though, and don't hold this against her as I'm sure she just isn't aware of these topics that are discussed widely within the autism community, but unknown outside of it. Kati, if you see this, check out the Autistic Self Advocacy Network. Many self advocates have blogs!
I am sure she just didn't know, but I feel if she wanted to know about autism she should go to autistic people first. But I still love her and support her.
Thank you for opening the video with an explanation making it clear the High functioning doesnt mean you live with no issues. Here in the UK Asperger's doesn't exist at all and is more often a slur than a diagnosis. Thank you for highlighting the fatigue, depression, OCD and anxiety that is often Comorbid
Yes normal. But it is not an excuse. Have to find out ways to let out anger and confusion in unabusive way. Like boxing bag in room, tredmil, walks, meditation, whatever.
I was diagnosed with ASD (HFA) when I was 17. Along side those i suffer from depression, OCD and anxiety. And this is just like, omg it's me. So strange. And you're totally right about the 'tantrums' ect when we have sensory overloads. THEY ARE AWFUL. I appreciate you understanding our struggle, and I see my autism as a trait of mine. Not a problem or disease. It's the best way to look at it. You cant put autism in a box. I didnt speak until the age of four, I only knew BSL (sign language) and yet at 16 I graduated with an a* in english literature. Dont underestimate us and dont undermine us
Today I had a huge melt down, I was overwhelmed about the internship. Other people may find it easy to solve but for me, it was hard. I couldn't absorb all of them at once. My family noticed I seem different because I'm throwing my phone and I have a distorted face. When they shoutingly asked me what was wrong, my emotions starts to flood. My thoughts are all over the place that I couldn't speak clearly. They kept saying "WHAT?! WHAT?!" Shouting at my face as if I did something bad or I'm guilty about something. I felt pressure about it that I started ugly crying like a child. My parents got mad at me and they started to say that I need to grow up, change blablahblaI that I have bad attitude, I'm just acting out or being bratty. They even mocked and ridiculed me because I'm being immature for my age.I wish I could control what I feel, I wish they feel what I actually feel. Instead, all I hear is being compared to other kids. They think if they told me hurtful words it will help me toughen up. Thanks to that I feel worse, I feel horrible, I feel miserable. They're not a bad parents, I really love them but I don't appreciate what they did to me. I just hope them to be MORE understanding. Here I am confiding in social media because I have nowhere to talk to. I'm sorry for the long comment whoever will sees this. I'm struggling, I'm a mess and my thoughts right now is not really good. I just wish to be better but I don't know how. I know there's something wrong about me, I'm very much aware about it but I don't have the courage to get help even if I needed it.
I didn't talk until I was 3, I lined objects up for hours, and I was always lost in my own world. I never got diagnosed with anything - but as an adult, I relate to so much of this. My social skills are pretty good though. I'm shy but easy to talk to (though I have to remind myself to make eye contact - over time eye contact doesn't feel awkward anymore).
Wow, this was really good. I haven’t been able to find many videos that present so clearly and accurately without trying to push down or pump up symptoms and people with ASD. I think they will find that many who go undiagnosed and cannot find resources end up with PTSD as well...like me. Also, you said something about symptoms showing differently between male and female, but there’s also intersex people and sex is literally a chromosome and hormone spectrum as well so the symptoms I would beg to differ are also presented on a spectrum that can very frequently cross any type of sex boundary someone is trying to present. Much of the difference is also that females and males weren’t cared for the same and if they are, the symptoms will present themselves more similarly too. Thank you also for recognizing that Aspergers is an outdated term. You taught me that there’s actually a link between the serotonin production and the OCD/ASD. I didn’t realize there was actually something truly found scientifically and have felt guilty for years about my depression. Jokes and sarcasm I never understood fully as a child. I I had to learn to laugh when others were laughing. Things were so busy I could hardly understand all the words people were saying. When I got older, people thought my real questions were sarcasm and I rarely got answers to many things. Now any sarcasm and joking when I’m upset only overwhelms me and confuses me more. My mind, once so ready to explore and create, becomes paralyzed. YES! You got it. I will not grow out of it and don’t want to be and can’t be cured. And you’re right, people often look at me and automatically say I don’t need help or don’t look like I need help. I can tell people over and over exactly what I need help with and they pretend I’m not saying a word. Things get worse and then everything compounds. I’ve got more, but I’ll save it, heh. Thank you for this though.
Girlfriend, why am I just now finding you?! OMG but I'm glad I finally did! I am 57 year old woman diagnosed at 4 years old, my mom beat me up at two years old because I couldn't speak yet. Which was the start of my PTSD and schizophrenia. Glad I found you! God bless, sweetheart.
So I like my job because it doesn’t require much in person communication. I tend to prefer staying at home then going out. I don’t mind speaking in public but I have to know what I’m going to say first, spontaneous conversation/ small talk is uncomfortable. I remember in a highschool English class 15% of our grade was class reading discussion participation. I never participated because by the time I figured out what I wanted to say, we were on to the next topic and I felt stupid going back. So then midterms came about and we had to read a banded book and do a in class report. That I was able to do. The teacher later saw me and told me he was surprised and that he was worried I wouldn’t show up for it. But while he was talking I felt anxious, I wanted to run but then I also didn’t want to attract attention. I’ve just figured I’m an introvert and socially awkward. But then I think of times like this and wonder if it’s something else. But then it’s not really interfering. Well maybe at least not daily. I didn’t attend my moms funeral because I was terrified of what I would say or how to respond to things people said to me. I also felt awkward because everyone would be crying and I couldn’t find a reason to. To me she wasn’t suffering anymore so I didn’t think her death was something to cry about. I wasn’t celebrating it either. It just was what it was. So anyways long story short I’ve always just thought I had social anxiety but is that different from not knowing how to take part in social situations.
One problem I am having and most of us Autistic adults have is that some insurance companies like Blue Cross Blue Shield of Nebraska believe that basically all of us with autism disappear or are no longer affected at the age of 21.
I just found this. A very nice summary of Level 1 Autism. I personally don’t have an issue with people using Asperger’s, Level 1 and associated terms. “High functioning” is problematic because as a late diagnosed level 1 autistic person, I didn’t fully appreciate how exhausted I was trying to mask for neurotypicals until my diagnosis was refined. High functioning to me is better described as “over functioning.” After diagnosis I found myself much more comfortable simple being autistic, including not suppressing some behaviors. That took a lot of pressure off me. Once diagnosed I could honestly tell my supervisors, “Look I have autism. I am not coming to the meeting in person but I will be on Teams and I will listen to everything said and make written comments that you can deliberate.” Every one of them was extremely understanding. So, yes “high functioning” is awkward, but the neurotypical world is a lot bigger than the neurodivergent and sometimes we have to accommodate them as a way of showing we care about them. Lastly, ABA, is very controversial. My psychologist doesn’t like it. I realize that for 50 years I was doing it to myself and so it allowed me to have a very successful career in a neurotypical world. So I am objective about it. No matter what, if ABA is used it should be done with consultation with a skilled behavioral health specialist in autism. For folks really interested, Marshall University in Huntington WV has a well recognized Autism Center that is a great resource for questions. Marshall is also highly accommodating of autistic college students. Again, great synopsis and overview. Very clear and well produced.
Thank you so much for this video, and I really can't wait for your video on Autism and gender differences! I've noticed that there is currently a trend toward women (like me!) in their mid to late- 30's and older being diagnosed with ASD, after years of struggling with misdiagnoses, overmedication, depression, anxiety, and frustration. I know that I don't present as Autistic, but that seems to be common among the female population - we've been socialised into being world class actresses, in order to simply seem normal, or as close to normal as possible, while we feel utterly broken inside. I was also a very gifted child, with high verbal skills, and back in the 80's a verbally advanced, gifted girl was exacly what the professionals would say was the antithesis of an Autistic child. Actually, most of the time I was in a state of panic or sensory overload, and hiding either in a book, a drawing, or my own brain in order to escape the outside world. Though I've lived a varied and independent life for a few decades now (including a Fine Art degree, and long term relationships, the best of which was with a fellow Aspie;), I'm currently on Disabillity, renting the parental basement and attempting to regroup and make some long term plans. Just the recognition and validation of this diagnosis has made my life, if not easier, make more sense. Again, thank you for doing this vid, and I'm looking forward to more on the topic!
We’re going to look into those classes for our nine year old son. Right now with covid it’s tough but I want to try it . He’s pretty fluid around his close family members but around strangers he’s a completely different person (asd-1)
Best treatment is to stop worry and stop try to change. Find yourself. Find your inner peace. Find who you are, what you like, what inspires you and work in that dirrection. Theere is a son behind the clouds. Meditations are great for that. People (any)are stressed in wrong area so find which area is yours.
I have spent my whole life on sensory overload until the last 3 years! My whole personality has changed for I can tell I am not as hurried or stressed. Don't let yourself get to busy folks and make time for alone time. And sleep your heart out!! Oh and let go of the perfectionism .....if ya can. That is a hard one.
What makes me angry about Aspergers is that when people hear that you have it, it's like they have the reaction of, "I'm so sorry." And basically a lot of people treat you as unwanted, like your life is over. I'm trying to get into the mindset that what I have doesn't bother people if I don't brood over it. I actually do have a good job and I'm making good passive income on the side. When it comes to relationships though, it's very hard. I work at home. And as such, I barely need to deal with anyone.
True Its better to keep that info to yourself. Try and build more confidence if you believe in what ur saying or doing without worrying about anyone eles things will get better for you
Asperger's isn't a thing...what you are describing is high functioning autism....which I have btw. Asperger's is a posh way of saying a child is not autistic. X
@@MrWeAllAreOne It's not posh... You might want to watch the video again. Asperger's was a commonly used term used until 2013 by the WHO. It is still used commonly now, and is a diagnosis in some countries... It said it in the video you are commenting on. How did you come up with this?
I’m on the autism spectrum. I was diagnosed with non verbal learning disorder, ADHD, Dysgraphia, and “symptoms of bipolar”. I sometimes get extremely manically hyper and my mood does go up and down. I wasn’t diagnosed with OCD but I’m pretty sure I do have that too. The social party is such a struggle honestly. I tried occupational therapy for my handwriting when I was younger (I’m 27 now) and it didn’t help at all. Thank god for my bf who helps me out with the social aspect of things 😊
I am on the spectrum and very intense too. I wonder how much of that is having grown up without accomodations and having a lot of comorbid issues like social anxiety. I also read that chronic pain or sensory overwhelm can cause of over excitability... Imagine a person who is very anxious, right before a panic attack ...they often speak faster, start to pace, and so on. I think the anxiety and the overwhelm leads to physical and mental intensity which can be a way to push back against anxiety by physical distraction, mental distraction or as a sign of anxiety itself. I am much calmer when alone. I exhibit most of this intensity when socializing. I feel you.
I have Asperger’s and thanks for the information. I’m 38. I have a college degree and I have a wonderful job. I sill have troubles with social skills and making new friends. I’m still not married and I do have motor skill problems. I struggled playing sports in school
In regards to ABA therapy, it really depends on the goal. If the aim is to make life easier for caregivers/teachers, then it's likely to be traumatising and lead to further issues down the line. If it's aimed at helping the child gain skills and independence, then it can be great. The child's best interests should always be the focus, as in most things like this, but that wasn't the case in the early days of ABA, and sometimes isn't the case nowadays.
This this this this this. It's just a teaching tool. My autistic sister was able to learn because of it and I, person who might be hf autistic myself, had it done to me and it just seemed like a type of behaviorism teaching that didn't allow me to space out or slack off without even trying (I have severe ADHD for sure!) which is good, I hate accidentally daydreaming or drifting.
ABA by nature should be focused on the individual and his/her needs. Functional communication is essentially one of the most important skills to teach, this way the person can communicate wants and needs without having to engage in maladaptive behaviors.
I’ve sent this comment on another video about music and autism but i want to repost it here because i think its the most elaborate way i have ever explained what it’s like to have autism for me: I feel like music is a life saver for people with autism. Mainly because its a portable media platform that can have simple stimulating or soothing beats/rhythms or even complex poetic lyrics that can be enjoyed without a specific technique/pace expected to be appreciated by the listener. These genres, volumes, sounds and even bpms can be chosen at full control to the listener and can be skipped or played on repeat to their desire. This is a huge contrast to living in a normative social space where you’re expected to listen to people and respond in “acceptable” rules to hold a conversation and be charming or appropriate. As someone with ASD myself, to neurotypical people i would describe social interactions and social masking like “speaking to people with an annoying static radio playing at medium volume in the background that only you can hear. (At least for my level of ASD,) It’s not impossible to tune out this static noise to concentrate on your conversation with people but its pretty frikken distracting/exhausting and requires a LOT of energy to do when it’s something you cant control or turn off.” And sometimes the only way to drown out that static, is with music. It’s not that autistic people dont want to talk to people or dont like people, it’s just that it’s VERY frustrating to talk to people and speak as “normally” as you’d like with this distracting stimulation thats in your head. As for stimming, If you have ever been frustrated to the point where you want to hit something or whatever, that’s basically the feeling autistic people get when they need to stim. Stimming is like unloading all that frustrated energy into a soothing physical outlet in a way that isn’t violent or destructive.
We don’t use the term “high functioning” in our autistic community. The danger of using “high functioning” is that it makes it harder for us to get help because apparently if we’re high functioning, we don’t need help. We’re no less autistic than any “low functioning” autistic people. We just show different traits. We need help just as much as they do and these days we are suffering more because this label of “high functioning” is making it harder to get the help we need as people assume we aren’t in need of any help within every day life. Trust me, we need it. However, we only need it when we ask. Don’t just assume.
What do high functioning autistic people need help with and how do you argue that high functioning autistic need help just as much as low functioning autists?
i was diagnosed at a very young age and I never thought to get help for myself. thank you. i cried during this video. my sister is an aba therapist. thank you for your video
As a “high functioning” autist that’s now unmasking after being trained to act human from 2 years old, all the concepts you’re talking about are really thought provoking about even just conversations I need to have with myself But I will say, the term high functioning has caused me a lot of pain because I had absolutely zero accommodation for most of my teen years, it’s kind of a label of “you’re not so inconvenient we don’t need to worry about you” AT LEAST in my community at the time And I learned very early that being convenient meant being loved which is only just now unraveling Like previous diagnosis with outdated terms, don’t shame someone for using the term, but I’d rather not spread the usage of it
I knew that there was always something “different “ about me.. it was very difficult for me to make connections and social interactions. I get overwhelmed just thinking about talking to people. And usually it’s just surface stuff small talk when I do have to. I’m on the Inside looking out. Seeing everyone laugh and joke and relate. But me.. Also I have a very hard time with comprehension. It’s just hard.
Yeah, it was horrible when I always felt I was different to those around me, but didn’t know why or what it was exactly.. It wasn’t until I was an adult when I had somebody approach me and give me awareness for this, and only then could I give my feeling of feeling different a title....Right now I’m hoping to someday get a diagnosis and the recognition that I’ve waited a long time for...
Yesterday was Autism Awareness Day! I have High Functioning Autism. I can tell you there are many challenges, but also many rewards. I get overwhelmed in the blink of an eye; especially in any loud environment. Some of this also came from a slow development in social skills. A great example of this would be a wedding dance with loud music and lots of people. I'm very much a creature of habit. Many of you may hear that those with autism are often highly intelligent. I’m a big believer in this being true. I have a high intelligence in tv, movies, and books. Although it is only the ones I'm interested in. Growing up, I would repetitively watch the same movie THREE TIMES per day for at least A MONTH. I'd lose himself in the movie to the point of him becoming one of the characters from that particular movie.
This explained why I was so scared of fireworks. Some people say I am dog-like and I am not normal, but I am autistic and experienced a traumatic event back in 2010: a sudden blast of fireworks by an ASU game after a touchdown. I was in Tempe Beach Park that night. That is why my mom couldn't take me to places like Disneyland or 4th of July celebrations.
This describes my son right now. His hearing is fine, but he plugs his ears when things are loud. He cries a lot, too. He also watches the same movies and listens to the same songs over and over. He just got diagnosed with stereotypes (like stemming) so we’ll be following up with our pediatrician.
This is hard to word, but: ASD absolutely is a real challenge but, in a perculiar way, it would actually be quite helpful if society acknowledged the areas where neurotypicals struggle and autistic people sometimes don't. ASD presents serious challenges but society failing to be clear about where people without mental illness make systematic errors can lead to a view that having ASD is worse in every way than not having it. I think it's difficult to communicate how difficult having ASD can be AND explain why most people with ASD wouldn't want to "trade" and become neurotypical. I think it helps to be clear that just as the neurological differences present challenges for those with ASD the very same social areas of the brain can lead neurotypical people to make poor and even self-detremental decisions. It's a mixed bag that really does cut both ways. Navigating a social environment is difficult enough with ASD, navigating it when most people assume that they are inherently better functioning and perhaps even superior in some way can be virtually impossible! Just as people with ASD need to figure out how to work around their problems I think it's important to stress that neurotypicals sometimes have just as much work to do and it needs to be a two way street and not simply the job of people with ASD to handle it all by themselves. Sometimes those without ASD need to adapt their behaviour as well. Not instead of, but as well as, people with ASD being expected to do so.
As someone on the spectrum, I believe that there isn't a level of "severity", as many people say there is. ( i.e. High and Low-Functioning Autism. ) I think of it more like a pizza with different toppings. We all deal with different things individually, rather than autism being a couple easy-to-pinpoint things. As an example, while I may struggle with social cues, a sensitivity to sudden loud noises and have a horrid time breaking routine, another may be non-verbal. Does that mean he's worse off than me? In some situations, yes, but in others, no. Does that make his experience is any more or less valid than mine? Absolutely not. People experience autism differently, and it's hard for people not on the spectrum to really understand how it feels, and how it really is to be on the spectrum. As much as behavioural therapists and doctors may study us... They can't really understand what it's like to be someone with autism, because not only are they not in our shoes, the experience is so different amongst each and every one of us.
as someone with severe autism i disagree! my life is hell and i'm forced to live a horrible existence in poverty! yes my situation is much worse than yours.
I understand where you're coming from, I still disagree. If you don't think autism is more severe in someone than others, than what you're really saying is that that 'someone' could cope better which sounds unfair to me. Even if what you're saying is true, changing your behaviour is easier as a child than as an adult. So someone who didn't get the right treatment as a child still has it harder than someone who did. But then we are blaming the caregivers.
I made a comment to my boyfriend as I spiraled the other day when we went out with our friends at a bar and I had to run outside.. I said “when i go out, its like im literally in a game. the person that is the REAL me is playing me in the bar and they aren’t very good at it like the rest of the players are. I feel like I have to cover myself up and try to move perfectly BUT ITS JUST TO ACT NORMAL IN A PUBLIC SETTING with FRIENDS that KNOW ME. I had to run out because I couldnt play the game right and i started having a panic attack because i had no clue what was going on..” I am not diagnosed but just started going to therapy last uear for BPD. I started diving into myself and how Ive always been, really relfecting and Ive never really been right. Im always able to look normal for the most sight but on the inside its another ball game. Busted in tears watching this video.. thank you..
Functioning labels are really harmful tho, and ABA “therapy” has been shown to traumatize many autistic people. Please communicate with #ActuallyAutistic people on these matters. Avoid Autism Speaks, try reaching out to Autism Self Advocacy Network or Autism Women’s Network.
I felt a bit weird when Kati said she read a lot of parent blogs but didn't mention much in terms of talking to autistic people. Parenting blogs are good for finding out how many parents think about Autism, but it doesn't really tell you much about Us. They can be really harmful and discuss things that we could feel to be considered traumatic.
I don't think it's unreasonable for people to be upset at not feeling like they have been listened to or communicated with -- one of the biggest issues we struggle with. 'Nothing About Us Without Us' is a common saying that I feel applies really strongly here. It is very important for someone seen as an authoritative figure on psychology (by fans) to be providing accurate information that represents those being discussed. I feel it is fair to want to have our community and views represented, especially as we are often spoken over by NTs. This isn't really deep of complex knowledge -- going into (eg) a FB group for those on the spectrum will pretty quickly provide you with what's been said in the comments here -- there's also (afaik) a lot of YTers on the spectrum who will readily discuss their experiences and thoughts. As for lashing out -- maybe a couple of comments have been harsh, but most of the ones I see here are polite and make an attempt to educate on the subject. I would also hope that Kati might understand why someone could feel very hurt and might be impolite when they feel misrepresented and are seeing trauma-related subjects (eg. ABA, functioning labels) discussed in a way that they do not feel is correct.
I have heard more testimonies from autistic people having ptsd from ABA than I have ever heard of people getting results that are anything other than 'hide that your autistic'.
This is odd. I am 66 years old and within the last couple of years as a result of semi-retiring from a graphic design career I lost my creative outlet that I had become so accustomed to and became a bit depressed. While seeing a therapist he recommended a test and it turned out that I have autistic tendencies. This news wasn't a shock, in fact it felt good. I finally understood why I was different. It also explains why, as a child, that I was protected by everyone in the family, but I wish someone has said something. Things about me that is part of this. I have remained child-like (not childish) which is a wonderful thing. I also remember very little about growing up even into my sixties. Events just don't seem to stick in my memory. The caveat to this was a 10 year period of Porsche racing that I did from age 42 to 52. Not only did the ASD give me a heightened ability to maintain concentration but I can almost remember every corner I raced. Although I am married now I spent a good portion of my life living alone, in fact, it is what I prefer most. I am not very good at relationships although I am caring. In recent years there has been much introspection about my life and things I could have done better but in the end I am glad to have been made this way. Thanks for you video.
This really helped me understand myself. I find myself everyday feeling different just because of things I do such as stimming, repeated actions (such as obsessively fixing my hair), abnormal speech patterns, and constantly cowering away from new people.
For the longest time, I wondered why I could not work a "typical" morning job and only trived working a third shift, quiet job. I thought I was just antisocial, but it's more than that. When I worked during the day, I would come home drained from all the social interactions, I would be irritated and just want to sit in silence. I was being so overstimulated from everythingg in the environment without being able to pull myself away from the stimulents. I love the routine of my third shift (mostly just cleaning and doing tasks by myself.) I also love the silence, not having to interact or have expectations of how I look to others. I can also stem by bringing a small soft thing to hold and squish while I'm working, which is how I like to calm my mind.
As a parent of a high functioning child on the ASD, this was so helpful because the only therapy options presented to me where ABA therapy and Speech, totally disregarding his sensory seeking and avoiding behavoirs.. which induce meltdowns! The only other thing that I would ad, which I saw somewhere else is, High Functioning Autism does not mean "easy autism" for all of those who have felt invalidated by someone who doesn't get " it."
Well done!!! I held my breath for a moment before watching this... I thought "finally!" then I prepared myself for another video of misunderstood opinions stated like facts. My daughter has Level 2 Autism (PDD prior to 2013) which sometimes is seen as high functioning autism, but she has cognitive development disabilities as well. Your info was spot on. Thank you for not being careless when you have a platform to educate.
Yes, her info was spot on despite the functioning labels.
And not to jump on this if I am wrong but is your name - blue8ify - a nod to light it up blue or in anyway associated with autism speaks because as an autistic person I try to advice people who do not know to learn that they are not a good company to support autistic people.
Idk, I hate to do this and hopeI do not come off as rude.
Awe I am so glad it was helpful.. and factual! I have waited a long time to create this because I wanted to make sure it was true and good :) xoxo
Thanks for another spot-on video Kati. Its exciting that the current generations of young people with ASD are more likely to be diagnosed and treated than my generation. I am 52 and got diagnosed and even had some support for my dyslexia. But Hanz Asperger had not published his work when I was growing up.
So it has only been in the last decade that I have come to discover that I am autistic. I now have autistic friends. Before I moved, I joined a group for very high functioning autists. One was intellectually brilliant, with multiple docorates, an internationally cellebrated career as a biologist and wildlife photographer and a marriage. But like me, he still comes accross as socially odd and a little child-like. One friend has selective mutism and learning difficulties. But he has come right out of his shell since our friendship has developed.
So relationships are really important to me, but I find social settings very tiring. I like to live with other people and have them in my routine. But I work for myself as a gardener so I can enjoy long stretches in my own company. I can also adjust my workload according to how I am coping with life.
My marriage failed after 23 years and two adult children. This was due largely to my poor mental health and self-oriented behaviour. But I am still very close to my 25 yr old son. And the break up has braught me really close to my brother and sisters.
For me my faith, family and friends gave meaning and support in the last 4 years when I went through an extreme trauma. I was carried through by God's love and some amazing professional help.
The behaviour that has always tripped me up and still causes me problems is when I make a commitment that I feel overwhelmed by and become anxious. My tendency is still to forget that all I need to do is communicate with the relevant people. I have very high standards for myself and often just need to make an adjustment to my schedule and my anxieties subside. But because of my dyspraxia I find scheduling quite difficult. I still am vulnerable to relapsing into avoidant and addictive behaviours as a coping mechanism.
My message to everyone affected by autism is always simple:
C O M M U N I C A T E!!!
I know your default setting when stressed is to withdraw. But there comes a point when you must reach out for help. Dont get isolated. The longer you leave it the more difficult life gets. But feeling trapped is only a feeling. Its an illusion . YOU ARE NOT ALONE! You may feel like an alien, but you re not the only one.
Even neuro-typical people feel like they re the odd one out sometimes. We just feel like it most of the time. Look online or ask your doctor for local support groups.
Hi katie
Kei Hill blue8ify is in in NO way related to Autism. It has always been my favorite color and 8 is my favorite number. I am 40+ yrs old and that color/number is consistant in my usernames. Also, I do believe she addressed the label due to it being so common. She is very specific as she explains that is is not a legitimate medical term. I am not a fan of categorizing with "high/low functioning" especially since my own daughter falls into both of those and the labels have hindered her in many ways.
"they might seem mature for their age, but they are really just uncomfortable..." Is such a ruthlessly accurate statement ...
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
My mom was telling me about my childhood and she said that I always seemed really uncomfortable and honestly just uninterested in other children. Which. Makes sense. She also used to have to physically hold me and hide my face from people when they came over because being perceived at all in any way was painful. Speaking to people was also mentally painful for me.
My mom says I was just shy but this past weekend she said that I was “almost like an autistic child” cuz of how I was socially.
Now that I’m 22, this weekend with my mom we had family over and I found myself getting really overwhelmed and irritated by how loud it was outside. It was kind of sudden feeling but I really just wanted to cover my ears. But I didn’t want to seem weird so I left the room. But then I felt rude cuz people think it’s rude to leave a room full of people just cuz you’re uncomfortable. But I was feeling so irritable and I could have a much better time if I could cool off in the quiet for a bit.
@@haylee7951 Gen X did a horrible job socializing their children.
I assume you are Gen Z...
It is your parents job to make sure you are socialized before you began school and should not use school to socialize you.
I was already making friends before school as well as being taught at home by my mother...
Gen Z has some of the worst parents out there as Gen X is a horrible generation. I can only assume you were not really introduced to other kids too often and when you get home from school you do so to an empty house. Your parents then get home and there is no real family interaction....
This is what is causing your social issues not autism. If you had autism chances are you would not be in the comments section here posting anything as you would not even feel the social need for any sort of validation.
Jus sayin...
Agreed. As a kid/teen I was often told I was mature, meanwhile I either spoke too much or not at all, due to feeling so uncomfortable.
@@zadekeys2194 as an adult in social situations - I find I tend to speak a bit too much because of the uncomfortableness of socializing and being with others. I’m 39 and I find most socializing to be strange and I simply don’t enjoy it yet it’s something that must be done occasionally.
As someone who has high functioning autism, i can confirm i get anxious when I'm at social gatherings. I feel like everyone is judging me and when people look at me and then go back to talking with others, i feel like they're talking about how horrible i look or about how shy i am. That's why i love being alone, because nobody can judge anything i do and my cats understand what i say and it feels like they're listening.
Yeah!!
I know exactly what you mean.
Im literally playing with my cats while reading this comment lol
I 100% agree with you. It's the anxiety that makes it worse. Thing is I was carefree till I was made aware of it. Thanks for sharing.
Omg sound just like me and my kids. I honestly thought it was normal..isn't it?? Gahhhhh!!!
my husband has high functioning autism. i love him so much, he is the absolute sweetest person ive ever met.
How did you react when he told you? I am afraid to tell people (in person) that I'm autistic out of fear that they'll reject me instantly (and this is just with platonic friendships, I've never dated). What should I expect if I told someone?
@Electro Power rude much?
@Electro Power no need to react I’m autistic and I found her comment very helpful and it increased my self confidence knowing that I can be loved and accepted despite my shortcomings
@Jack Lampin dude when is the pill coming out? I'm 24 with aspergers and I'm happy to take anything that'll fix it lmao
aaw. thats so cute. i wish you guys the best
I have ASD and I’ve found it’s easier to communicate with others on the spectrum than neurotypical people. So it seems it’s not that we don’t communicate well, it’s that we communicate differently.
@YnnyY&nne OilRyser hey not all neurotypical people are jack asses man.
@YnnyY&nne OilRyser who hurt you?
Same
Why Bother I have met some people with autism that is mean and everything else you wrote sooo
Definitely! All of my close friends are either autistic or have ADHD.
*NO! MELTDOWNS ARENT TANTRUMS!* THEY ARE VERY SIMILAR TO PANIC ATTACKS.
Parents, if your autistic child is having a meltdown do not punish them for it. Refer to these tips that will help.
TIPS:
- Don’t touch them.
- Don’t yell at them.
- Take them to a quiet room if possible.
- If they are unable to move, politely ask, and if they want it then give them their noise cancelling headphones.
- If your child likes weighted blankets, politely ask, if they want it then put it on their lap.
- Allow them to stim if they are doing it, loud hands help them calm down.
- Again, don’t touch or yell at them, they are overloaded and extra stimulation will make them feel worse.
- Give them their comfort item.
- Remember that they cannot control this.
- Reassure that they are going to be alright.
- Don’t try to get a verbal response out of them, they don’t want to speak right now.
- Optional: Make them their favorite food or same-food when it’s over. Though sometimes they may lose their appetite from the meltdown. *It is always safe to ask.*
ALL PARENTS should know this, it could avoided me so much pain.
I try to tell my mom to stop yelling at me & when I have meltdown’s she thinks I’m crazy. Also my siblings don’t understand ASD at all
Thank you 🙏🏽 love and patience always wins
Thank you! I'm grateful for this info my awesome nephew has autism. Thank you for taking the time to educate us 🙂♥️
@@AvESNPR show them this post and tell them you want family therapy/support 💗
One thing I hate is people who associate autism with stupidity. Just because some need different coping skills and methods to help make their lives easier does not mean they're stupid. I have ASD as well and I also have a friend who is on the spectrum a little more than I am. But she's so sweet and so smart and passionate about her interests. She just gets nervous when she has to make decisions or trying to start a conversation. She does have a bit of trouble fully pronouncing some words, but she truly is an amazing person. And I'm so glad I met her.
I hate that it’s labeled a disorder. Everything is labeled a disorder. And these labels are given out after one session. How does a professional label someone as bipolar, autistic, depressed, anxious, etc after 40 minutes?
It really bothers me that a child is labeled autistic. Because of social cues or because of eye contact? Or focused on a certain way of playing? Who comes up with this stuff?
Autism has nothing to do with intelligence, but it has EVERYTHING to do with behavior.
We're usually smarter than "normal" neurotypical people. The masses of the 99% are usually illogical and predictable in their behaviors and mentalities. I no longer believe it is possible nor even desirable to make ourselves "acceptable" by their terms. The best thing for us Aspies to do is to recognize that we will NEVER be like them. Aside from neurotypical people who genuinely love and/or care at all about us (that number will be very small), we will NEVER be able to conform to their emotionally driven, illogical and animalistic way of life. If you are an Aspie, accept this. Hone your intellectual acumen knowing full well that it won't be understood by the others. When we persist in our efforts through discipline and focus, we can usually surpass the "normal" people in virtually any endeavor.
@@MariaMoleEpicbut autism
Is a disorder! I mean, it has hampered my life in so many ways .. what would you want it to be called? A personality style? True autism is disabling in many ways
Fr. Einstein and Elon also have high functioning autism and they are some of the smartest people that have ever lived
Never been one to self diagnose. But...I cried watching this and seeing my life described before me. Just saying.
Ive always known I was autistic. I was misdiagnosed as not autistic due to a faulty test done as a child. Even after I was told I wasn't autistic, I fully knew that was wrong. I still have never been properly diagnosed meaning I have never gotten proper help. I have never been allowed to stim and any issues ive had have been met with anger and frustration. Ive always been told to just get over it. It seems to be getting worse yet I'm expected to be an adult now.
@@quindixie6867 It seems that not only the doctor who has done the test, your parents doesn't like the word "autism" to you. Which that is like giving a Tylenol to treat bacterial infection to the mouth.
Same
Sir Dime SAME
me too. im literally sobbing rn this made everything click for me
There should be social skill classes for adults with autism too
I also am diagnosed with high functioning autism
I could definitely use some of those lol
True. Like understanding others emotions, small talk skills, how they come across others, knowing what to say, self independent skills. Most emotional issues comes from loneliness & conflicts with others.
I learned a lot of social skills from high school. Mainly bc I'd didn't talk and just watched how other ppl interacted.
Yeah I agree there is fuck all here in England or the right support to get stability
I was diagnosed as an adult . Just knowing why I was so different made a huge difference in my life.
How did you do it? I've suspected something all my life but have been detached from everyone so much that an conversation about it never happened. It's been about not being homeless all mu life.
Me too just recently I found out a year ago but this type
Me too
Speaking as someone on the Autism Spectrum. I've always thought of High Functioning Autism as a label assigned to those of us who are able to hide our day to day struggles from others with a view to trying to fit in.
SciFi Pulse yeah, functioning labels are trash (i’m also autistic)
Cool. There's up and downsides to labels. I'm more conflicted about them than anything else.
High functioning, like "can talk" it's really a poor description of what is going on. I'm like severe math savant, I can talk but it's not pleb English, it's wonky and loaded with swearing.
and some people with autism are better than 'normal' in something, and worse than 'normal' in other things, im only worse in things, i haven't yet found something im better in than 'normal' people.
Yup.
my problem with autism is that everybody talks about it as if there is ONLY children in the spectrum. Edit: Not necessarily this case. I'm just a bit bitter LOL
I did try to mention adults and offer treatments that can work for both children and adults. But if you have any specific questions about adults with ASD let me know. i am more than happy to keep talking about it. xox
I'm sorry if it looked(sounded) harsh! I love your vids! And you did mention adults and work environment and stuff! Didn't mean to diss!
anyway, it would love to see you talk about more specifically about adults, though. It's just that it is really hard to see people write/speak about adults in the spectrum, so its inevitable that kids would totally be mentioned much more.
Plus, its the early developmental stage of a person and the sooner they get help, the sooner they'll lern how to deal with certain situation.
I'm probably just a little bitter I didn't get the diagnosis earlier in life :P
Autistic adults are coming into the light more and more, so while you don't see a lot on them now compared to autistic children, you certainly see and hear from and about them far more now than you did even a few years ago.
It would be nice to have more help and treatments targeted towards adults though as most interventions are only targeting early intervention. While early intervention is great for those with an early diagnosis, it's of little help to those if us with an adult diagnosis.
Agree 100% there. As someone diagnosed at age 35, I've had no help what so ever. I'm at a point where I'm barely surviving day to day. It's very frustrating when people tell me to get help, when no help exists. I've been offered counselling but cannot talk about my problems as i have a problem with selective mutism so its utterly useless. I did try, but the person didn't know anything about ASD so no effective communication occurred. It's so bad i couldn't communicate on a recent PIP assessment and have now lost my DLA. I was stable before, had a car to travel, could get to see family, travel to places ect. Now I'm stuck starving to death, hardly able to go out, have become mentally unstable ect and have no idea how I'm going to survive. And I'm told even IF i win the appeal, they will reassess me in a couple of years. The whole assessment process is mental torture to me. This so called help is now nearly killing me, and may well do before its solved. It's so bad i now need a social worker to assess me, I'm on anti depressants, or at least will be when they figure out which i can take which doesn't leave me needing hospital, I'm on anti anxiety meds, anti migraine meds, meds for my stomach all because i cannot communicate, and so called professionals who are supposed to help just don't know what the fuck their talking about.
I'm grateful for this video. I'm 41 and last week was diagnosed with adhd and she mentioned high functioning autism. It was actually a breath of fresh air. Life makes so much more sense now. I always knew I was different just didn't know why.
You have hit the nail right on the head with this at timecode 3:10... I have found it so hard and demoralizing being in a situation where I'm not severe enough to warrant treatment but not being normal either. I feel like I live in a bubble, I can see what's going on and interact with people but at the same time I feel so isolated and and detached from people. So thank you so much for saying it, its like somebody finally understands.
I feel you bro. I'm 39 and i just learned so much about myself.
I'm 42, I feel the anxiety is getting worse, I see no solutions
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
Same 😔😔😔
I hate how much I understand this, hope you're doing okay
I also worked with a women who was commonly referred to as “high functioning” and it lead to a lot of miscommunication. Because of how well spoken she is, people commonly overlooked her diagnosis and didn’t realize how much she misunderstood emotional dialog and metaphoric phrases. It lead to a lot of misunderstanding and unnecessary conflicts.
ASL Anissa exactly. I would be consider high functioning because I don't look disable (even if I look really awkward and werid), I can talk and I have a high IQ, but right now I'm so dysfunctional I haven't gone to college in months, I hardly eat, I hardly shower or do anything really. So I don't see myself as high functioning at all
Mikel Montoya it’s not a real thing. Which is why a lot of therapists like myself that work with ASD cringe at the use of it. It’s an unnecessary segregation of one diagnosis. I’d encourage seeing a counselor or looking into different types of therapy or therapeutic activities. I am a music therapist and sometimes creating music or art can be extremely grounding. It takes all your attention which can be grounding when your brain is used to managing a thousand things at once.
Yeah, I'm considered high functioning because I have no outward signs at all (not awkward, not "weird", no problems with verbal language - I struggle to speak sometimes, but people just say I'm shy), but I'm completely unable to live on my own, and I've tried for 10 years now (I have a lot of problems with organization and memory, and trying to deal with society demands on my own is overwhelming).
ASL Anissa yeah, I've started going to a therapist a few weeks ago, but I don't have the diagnosis yet and the process of getting it seems soooooo slow (everybody is so skeptical about me having ASD just because I'm 18 yo...) and I need it soon or otherwise I don't know what I'll tell my parents when they find out I've failed almost every subject in college (they'll be very angry and will tell me how ungrateful and lazy I am and how I'm wasting all my potential), I don't want them to send me back home, I like living in a big city (and I think I could manage living on my own here if I had the accomodations that as an autistic person I need...), but I'm so scared to tell them that I have ASD without a diagnosis to prove it... so yeah, my life is complicated 😂
zeldahime living on your own as an autistic person is sooo difficult, I didn't know I was so impaired until these year when I left home for college. It's because we usually have really bad executive function skills (in my case I really think I completely lack them honestly, I'm so clueless)
I think the hardest part about being an adult with high functioning autism is being able to make a living. It's so frustrating trying to find work that we can handle, especially if you're the type of person that has extreme social anxiety. The only job really that I've ever been able to hold is dishwashing jobs, and even those are hard for me depending on the place. I have to be somewhere where I'm all but by myself the whole time, and I can't carry dishes to the kitchen for the cooks because I can't bring myself to give verbal warnings when I'm behind people. That and cooks and servers tend to be on edge if it's a busy restaurant. And everyone just seems to think you can get over it and act normal. People really don't realize that it's not that simple for us.
This is the most exhausting social situation for me. At every job I've held. And the extra pressure from our capitalistic system to perform and be productive, and follow all the rules and policies, but also follow all the expectations of the hierarchies and workplace culture in place, and be the exact same robotically normal worker every day who never has period flu or meltdowns or depressive episodes or panic attacks or even gets an actual cold, it feels so scary and inhuman, it makes the anxiety about work harder. I have always felt like I need to "mentally prepare" and "suit up" before work, whether a shift or a salaried job, no matter what time of day I work.
@@MysticRhythmsYogait makes the entire work experience exhausting. You work 6 days a week and get a day or two off to recharge but that’s never enough - then you you start the next week. Rinse and repeat - it’s not a life I want to live
I have worked from home all my life and never had a boss. I guess I'm lucky.
God i relate when u said a place where ur all by urselr
Fortunately I landed a job in a main frame computer center back in 1969 when they couldn’t find anyone for the job because no one knew what a main frame was. 36 years later, I ended my intimate relationship with main frame computers. Only after that, did I find out that I had autism. I also out that working with computers is perfect For an aspie
I'm crying. So much. You just described ME, like every characteristic about me, Tysm.
I care, brother. Better to find out now then never.
All of this information is exactly what I go through! It is an absolute shame that nobody cares or takes me seriously.
Same here. I’m a woman so I was able to mask better. I’m happy for you.:)
Stop crying Jeff and release overwatch 2
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
I am really suspecting that I'm on the spectrum. As a child I nearly fit all the criteria for diagnosis on a test designed for boys. Today, I work in marketing, sales and studied psychology. I can skillfully profile and analyse others, seeming to have a deep understanding for them through years of obsessive research. I appear bubbly, outgoing and socially skilled but when I get home the mask drops. I become crabby, lonely and selfish in my demands for conversations about what I want to talk about.
When you get to my core, I struggle to maintain relationships, I push peoples boundaries and can be egocentric. Its hard because I understand how Im supposed to behave. Maintaining the facade is just tiring.
I used to have severe sensory sensitivities, poor posture and eye contact trouble. I no longer have these but Im still very clumsy.
I don't know. My relatives often were angry on me because I often refused to respond on their questions and didn't involve in their toppic. At the beggining. And I was struggling because I undertood their feelings but couldn't help. I just value my life time and I can't waste it on stupid toppic or on toppic I am not ready to share(like privat like etc). I just even can't fokuss on uninteresting for me - my brain and eyes go away automatically and I hate to pretend I am listening when I am not.
But - I am able to do that when I am ready for that by my choice. Then I can listen anything.
So to be short I don't see its a illness or ego - it is something absolutely different.
Different vision.
For me - other people should realise how their behaviour, demands, jokes etc. abuse other feelings, steel their time without asking permission etc. And iff You don't want to listen - they think You are egocentric?:-)) but in truth they are because they ignore Your needs and force you to accept their needs immediately now.
Anyway I said to my relatives. Well thats me. Take it or leave it. I love You but I will speak , do or involve in any other people needs only when I will be ready for it. No force.
And now we have great relationship.
Clumsy isn't the right word. Your brain getting distracted from your current time and place is an entirely different thing than poor motor skills or hand eye coordination.
It may just be dyspraxia, a type of learning disability, it's related to autism but isn't. If you're having relationship troubles it might be related to borderline personality disorder. Just a few suggestions
@@KAHHHH8548 ummm WOAH! Do not EVER EVER EVER diagnose someone online the way you just did. You clearly have no knowledge of what BPD is. And someone having relationship troubles does not warrant such a diagnosis. True BPD is rare, and true BPD is marked by extreme highs and lows of feelings towards someone all within a very short timeframe. You clearly don't have a PhD in psychology, because you wouldn't be making online diagnoses. If you said that to the wrong person that could really mess with their head.
@@sammymakeitmakecents you're clearly talking shit. Yes I definitely do have knowledge of borderline personality disorder, you don't even know me or what my knowledge is
You literally explained my whole existence in 10 minutes.
Do you feel acknowledged?
This is so encouraging. I was diagnosed with ASD two years ago, when I was 32! My whole life I felt like I didn't belong anywhere. I struggled to form relationships, I cannot cope with having a job and I couldn't cope with large crowds and noises. My whole life I resented myself for not being able to cope with day to day situations the way other people do. I felt like I was failing in life. But now I understand that my brain works differently, I'm super creative, and although I have always been teased about not being able to catch a joke, I can actually be funny at times! I have now come to embrace my weirdness and awkwardness. And it's so true what you said, ASD will not get better with time, and it's NOT something that needs to be cured! Thank you for this!!
Hugs. I know adults on the spectrum. I have seen this play out.
I was 23 when diagnosed, but now at almost 33, I still feel like life is a total joke that's mostly full of struggles... I learned a lot, but you can not change the way people prejudge you or, as said in the video, say things like: you don't look/act like someone with autism...
Glossy Bubble exactly this, they will say that's rude, or that's a funny comment, but I just said the truth at the time
Leslie Berner what made you think you should get checked out? I question if my closest child who might. brilant but has some thing that are off ... 1 % education wise.
Amber Green Hi. My son was diagnosed, and then I was.
I have high-functioning autism. Although it has its quirks, it had its benefits (ex.) Enhanced vocabulary, observance, loyalty etc etc ETC!
If you don't believe thats true your most likely dealing with people deep on the spectrum where it's much harder to see past the barrier most of us put up I've certainly found that people on the spectrum can be very loyal and have advance interest in whatever their area of expertise are, believe what you want but some people on the spectrum are smarter than those that are not and vis-versa.
@@ziquaftynny9285 what's that suppose to mean??
@@ziquaftynny9285 OML if you feel superior for being normal you are sadly mistaken
Ziquafty Nny poor soul
until you want relationship with the opposite sex or people want to rip you off
I was labeled a shy child in my youth and now an introvert into adulthood. As a child I would routinely pretend I was sick to get out of school because of the terror I felt being surrounded by other students, which in retrospect shows my ability to adapt to change was something foreign to me. I always felt comfortable at home, in my surroundings, a safe haven where I was familiarized with everything and without change. After all change was scary even with no initial threat for some reason. I knew since I was a child that something was different about me and went far beyond what you label as just traditionally "shy". Part of me believes that my parents were in denial that there was something wrong but how I would adapt to change, my inability to connect with others, and my unwillingness to put myself in any social situations or activities gave me insight into that I may just be a high functioning autistic. I've never been professionally diagnosed to this day but I know I am.... I still find myself withdrawn from social events or parties, my inability to communicate with others while stumbling on my words, severe anxiety when put in crowded areas, upset with sudden change from routine, and an inability to make eye contact when communicating with others. At one point I relied on alcohol to help cope with these feelings, as we all know alcohol lowers your inhibitions and with that could help bring some sort of "normality" within my life. I would communicate better, I could make eye contact while conversing, I felt confident, my anxiety was gone, and I wouldn't question the things that terrified me so much. Of course this all ended up being a temporary crutch that lead me down a deeper rabbit hole of dependency, health problems, and an enhanced feeling of my autistic tendencies when I was hungover only to delve right back into drinking again. I now have acceptance and an understanding for who I am now. I stopped drinking and have decided to force myself to get out there to try and overcome some of these more debilitating feelings I have as a form of therapy. Everyday is a struggle but I've noticed that even with some of the baby steps I've taken over the past couple years that I do have the ability to make things more bearable to where I can achieve a new level of happiness while feeling a form of achievement all with a sober mind. Keep fighting the good fight for those who struggle the same as I.
I have never read a paragraph that’s described my experience of life more😂 I have social plans later today with literal family and have been considering drinking before we get there so I can be semi normal. Hope your coping through life okay, your comment made my day
@lilylaura6955 what’s your herbs? Had a google couldn’t find anything
I got diagnosed yesterday at 26 years old.
I don't honestly know how to process it yet but I found your video while looking for information and haven't heard anyone articulate how stressful insight into your condition can be.
Thank you for making this video, I shared it on my facebook wall so my friends could get informed too
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
27 and I just got the bomb dropped on me too. Not really sure what to do with this information. I’ve gone so long masking and imitating other people am I allowed to stop now?
@@jetson_try getting diagnosed at 38 - it’s a whole other thing.. there are others diagnosed in their 50s. It’s daunting to look back and realize you have been acting the entire time. Like what now? More masking? Why ? Oh man
How did you go about getting it diagnosed? My 30 year old has it im afraid but i need it to be official
I'm 31 years old and I have Asperger's Syndrome. I was able to get my driver's license and I've been working for over two years now. It was a very good video too.
I was recently diagnosed with autism/Asperger's and when my mom told me about it I was shocked yet relieved because it explains everything I've been through and the events that happened in my life.
very good you know it now!
I used this doc herbs for my son and now my son is completely free, his speaking and behavior is ok. His herbs is 100% working on ASD. I met Dr Oyalo on channel and I’m happy to share my experience about it
@@bolinhong2598
Thats not how autism works....?
It cant be cured though.
@lilylaura6955
Thats not how autism works.
If your son is autistic, hes autistic.
The only thing that can done is help improve certain skills.
I work with ASD as a music therapist and I cringe at the term “high functioning”. And I’m so happy with how to explained everything in this video! Labeling a child with a nonexistent standard can hurt them. I use Sign Language and PEC with some nonverbal clients and have found that being nonverbal is NO indicator of comprehension or intelligence.
And I’m glad you mentions ABA. I know there are some that completely reject the idea. And I know why. I’ve seen how abusive it can be when used inappropriately. But when used appropriately, understanding what the clients needs to develop autonomy, it can be extremely helpful.
And I use Floor time! I use it all the time in sessions! When you add musical instruments, floor time can be an amazing experience for both the therapist and client.
Yeah I know the term "high functioning" can be used in bad ways.. but I am glad you felt I explained it well. Since so many go without the care and support they need, I am just hoping that more people become aware of that entire spectrum and that everyone deserves support. xoxo
I personally like the term "high functioning", but only in reference to the Asperger's part of the spectrum.
A high IQ is very common in those who have ASD or ADHD. There's a definite link between the two. Those with ASD shouldn't be underestimated.
cetkat I see what you’re saying... the problem is, you can’t separate ASD into high and low functioning AND not underestimate them. By separating the singular diagnosis, you are both underestimating all people labels “low functioning” and possibly over estimating (or ignoring the diagnosis) for people labeled “high functioning”. Someone labeled “high functioning” still has ASD and may need accommodations, but won’t get them because they are labeled “high functioning” and dont SEEM to need them. And vice versa, some labeled “low functioning” are looked over and sometimes left unassisted because it is assumed that they simply can’t do things. The labels hurt more than they help.
ASL Anissa I do believe that in terms of others assigning labels to kids and using that to dictate help and expectations is wrong. It is a spectum and there are other factors like IQ and learning disabilities & styles that further complicates things. You can't just make two categories and treat everyone in them the same. I believe in individualized IEPs. Autism itself is a label though. You wouldn't want to just lump it into a more generalized developmental disability category either. So, although labels can be used negativity, I don't consider them inherently bad.
However, I'm thinking more along the lines of adults and using labels in positive ways, for increased clarity, understanding of needs, and creating connections with others who face similar difficulties. In that regard, I see being able to break down the overall Autism label into sub-labels/groupings as helpful.
cetkat I agree! But there is a difference between a label and a diagnosis. If using the term to help distinguish need, I’d use different terms.
I (and many others) hate the phrasing. A person has their own functioning level. There is no standard for functioning in life. Would you tell someone in a wheelchair that they are low-functioning? Or someone who is deaf or blind? No. So who is to tell them that they aren’t functioning well? It’s a weird phrasing that’s kinda offensive. So in my practice I use phrases like “neuro-typical” and “neuro-diverse”. We all know autism is really just the brain working differently. So someone who behaving in a more typical way, I would say is a little more neuro-typical. Their brain works in a way we understand. I hope that makes sense. ☺️
I cried when I found out because all of this describes me to a T and I know I won’t ever get better but it feels good to know what it is
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
I am Autistic, “high-functioning” and 19. I’ve known for 5 years. You’ll probably never see this. but I just want to express how beautifully well done I find this video to be. Almost everything hit the nail on the head and even helped me to understand why I do some of the things I do.
My little sister is unaware I have ASD (I’ve been putting off telling her 😬). I have been trying to figure out how to explain my situation in a way that helps her understand I’m not “disabled” or “slow” or any other connotations/misconceptions she might get from hearing my diagnosis. I think this video might just be it. Thank you! ❤
I’m pretty sure I’m autistic high functioning and my dad thinks I am but my mom doesn’t so he says you don’t need the diagnosis even though my mom always says I’m so weird. I don’t make eye contact. I’m afraid of live noises or sounds. I have sensory issues I stim a lot, but I think I may try to see if I’m actually autistic by trying to get eye diagnosis
My daughter was diagnosed with aspergers syndrome at age 7. It's been hard, but she's 14 now and doing great. I hate that she struggles with peers, has joined friends, but she is truely a unique amazing girl.
I'm 43 years old. I recently started counseling for depression. My wife and I go through counseling as well. Both professionals have suggested I'm on the autism spectrum.
It would make much more sense why I was bullied as a kid. And had a hard time finding friends.
This is absolutely amazing. I’m 19 years old, and there have been certain, what I thought of as “quirks,” I noticed that I did that made me different from other people growing up. I’ve tried for years trying to understood why I was the way I was, as my parents have no knowledge or even respect for the existence of neorlogical related disorders. Unfortunately they peg those people as making a decision to be how they are. One day I stumbled upon this concept mentioned in this video, and suddenly it all made sense. I’ve come to terms with how I am now. It’s amazing the impact raising awareness can make.
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
i'm high functioning autistic it makes me happy seeing that so many people accept it as it is and don't degrade people who have it i used to get heavily bullied until my best friend from 3rd grade saw me getting bullied and stood up for me and the kids then left me alone :) she's an amazing person and i couldn't ask for anyone better
im glad autism is more acceptable in modern society. no one asked to be born the way they were we all deserve love n happiness
I’m coming terms with this
Now for the first time in my life, at 29. Several years ago my friend became a teacher for autistic children and told me she thought I may have highly functional autism because of my mannerisms. Years later people joked about it then I became friends with someone who was very similar to me who was diagnosed when she was a child. It actually gives me relief in knowing that I always felt different because I am literally wired differently. It’s like the missing piece of the puzzle I never came to terms with until now and it’s honestly shaking up my word. It also explains why I’ve been bullied and hated so much by those who misunderstand me. It’s almost as if most people think I’m purposely playing dumb my whole life.
I’ve always shown symptoms of Aspergers when I was younger, it was so severe when I was younger, because of this I got bullied heavily and I learned how to mask it. I became so good at hiding it, that even my gp and school didn’t believe me. It’s caused my anxiety, and I’ve never had an older female role model who I knew to be autistic. So this made me both happy and cry, thankyou so much for this 😭
the way she says "welcome" always makes me so happy idk why
Just recently I was diagnosed. I'm 22, graduated college, have a job and rent a house on my own. I talked with my psychiatrist about symptoms I had written down and concerns my mother had when I was younger. He seemed impressed and confirmed that I have mild ASD (or, as it would be ten years ago, Aspergers). All of these treatment options sounded very interesting and I may just do some looking around to see what is available for me. Thank you for educating people and myself!
Kati - Do Not use the word "tantrum" to describe a sensory overload meltdown. It gives the general public the idea that it is a choice. (I am an aspie, the daughter of someone on the spectrum, and I have multiple kids on the spectrum.)
A tantrum = making a fuss to get your own way
A meltdown = overloaded by sensory sensitives and multiple stresses
Things really went downhill when neurotypicals appropriated our word.
Just thought I'd add to your post.
Tracy well let’s be completely fair here, in some cases, it is.
That’s only in some cases though. Otherwise it’s overload.
@@cityguard4847 As an autistic person myself I strongly disagree!
A tantrum can lead to/develop into a meltdown - but a meltdown IS NOT a tantrum!
Just as Shanti 'Sanjay' Roy explained above!
Yes, I agree that meltdowns can be wrongly mistaken for tantrums! thank you for mentioning this!
What? Nothing wrong with that word. I don't get the idea that it's by choice, I get the idea of the opposite... Any kind of outrage or whatever is associated with less control.
I recently found out I am on the autism spectrum. This video was amazing thank you for making it. Not being able to communicate the way I want makes it so much harder to explain how autism feels to the people around me and having this video to show them makes it so much easier for me. Thank you for being the voice for people who can't get their point across.
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
consider diet change
Although I am uncomfortable with the term “high functioning” I’m very happy to see this video. I did not know I was autistic until age 45! This automatically puts me in the “high functioning” category. I can tell you now, much of my life has been anything but that! After years of abusive relationships, lost jobs, substance abuse and friendships disintegrating…. ASD diagnosis was a huge aha moment followed by a lot of tears. If any of these therapies had been a possibility for me then maybe high functioning could have been achieved much sooner. On a good note, I’ve found my way and am now in a beautiful marriage with an autistic man and a career that works well for me so it is possible but man did I go about it the hard way! Anyway, back to my point. Thank you! Thank you for making a clear video and pushing that NT people need to ASK the needs of their autistic person directly. We are all just people too and have very different needs and personalities.
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
thank you for sharing, I totally relate. I wish I had known earlier in life and that there were high functioning groups in which to make friends.
What career path did you choose? I’m wondering because I’m struggling really hard at 22 after having a major traumatic event just kind of push all ability to mask away
I have higher functioning autism and I just started my second year of university despite being told by teachers at school I wouldnt ever reach uni because of my GCSE grades. I feel over the years my autism has gotten better thanks to my mum who drilled it into me how to act around people and how to socialise properly and also teaching myself body language and stuff like that by reading books and reasearching it. there is hope for people with ASD and we can achieve so much Im studying a subject I am passionate about to get the career I want and Im with a partner who understands my autism. great video kati keep it up 😊
16 years old and I was just diagnosed. My whole life we missed the signs.
I'm getting assessed again soon. Saw a doctor when I was 7 due to me showing a multitude of symptoms but my parents were told I was fine, just needed alone time occasionally.
I'm 14 now and everything's just getting harder as I'm getting older.
Me too, i got diagnosed when i was 10 or 11 and I'm 13 now.
Same
28 and getting my assessment now
I got diagnosed at 16 as well, and now I'm 20 and still having difficulty to cope with pressure, specifically peer pressure.
I’m 26 and I always knew that I was “off” or “weird” to other people throughout my life. I always did this crazy face and wiggling of my fingers to my face when I was alone as a form of stimming. I was never diagnosed but I see many signs in my son who is 2. My therapist told me that I might be on the spectrum and honestly, everything that you’re describing here fits so much with my everyday life. Everything is starting to make sense now. I’m planning to get formally diagnosed but I strongly believe that I am on the spectrum.
I think that we're just another race. We get on fine within our own group. We're better in relationships with our own. I am normal, my brain just functions differently. I don't need treatment.
Yep. “Some can even have jobs!” Felt so demeaning. Of course I have a job. There’s nothing wrong with me.
I accept you as you are ❤️
Something about you saying "another race" doesn't sit right with me.
For some reason, it makes me think autistic people function as a hive-mind. I find that a little disturbing.
I'm not saying you shouldn't have said that- it's just a personal opinion.
(Disclaimer: I'm autistic)
Legit, my theory is they will find autistic people to have denisovan dna
Precisely. It’s not that the mind has an issue. It’s like trying to cure the mind of a different species just because it works differently. Everything about every mind is perfect.
I just gave up on "friends"
Sparky me too.
Sparky don’t give up because of the ignorance of the general population. There are plenty of people out there that would make great friends
Cortez Films no they wont
Refer to them as acqaintences
I don't think I'm autistic but I do have a mental disability but it's less severe as I've gotten older. It took me 29 years just to make one real friend. Most people are fake better off with few friends or none.
Ultimately what heals is the experience of being seen, met with presence interest and love, respect, accepted, understood, appreciated, in how we are right now... Someone supporting us in being our most authentic selves, both autonomously and intimately, the sense of healthy connection, which our current relationships and society in general cannot give us. Regardless of "diagnosis" or "disorder". It's not primarily the goal, strategies etc that helps. It comes down to every single one, people are emotionally hurt into these disabilities whether its in this life or past lifes, our "baggage and personality". The only thing that "heals" more is the experience of our essential unblocked being. To meet people where they are isn't about meeting them as "autistic" etc, but to meet them in their actual emotions and memories while seeing their essential being.
Teachers in all district school boards should actually be teaching kids about this kind of stuff like OCD, High Functioning Autism, Anxiety, and Depression and so on, y'know? Instead of things we'll all probably forget about when we all get home from school.
Yeah, our current systems of academia are majorly outdated for the 21st century. Technology and many other facets of society have progressed exponentially, but schooling has mostly remained the same for centuries.
They just want workers they don't want us too actually think for ourselves
Teachers also need to be taught how to deal with kids with asd 1 instead of sending pissed off emails to the parents because a kid responded in a negative way when they scolded them in front of the class. (Currently dealing with this)
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
I kept asking the schools to help me figure out what was wrong with my child. All they would say is he gets good grades. It took 8yrs before we found out he has Autism and Adhd . I wish just one teacher or counselor had giving me suggestions to look into
Thank you, Kati!! As you know my son has ASD. His first dx was ADHD, OCD and anxiety. Finally, at the age of 6 a psychiatrist diagnosed him w/h ASD. We then had ADOS testing done for an official dx. He has been with his therapist since he was 5 & participated in social group for a couple of years. He is also seeing a feeding interventionist for food sensory issues. We used the PECS system when he was younger & this really helped with scheduling as well. As a parent I can say the best thing you can do is educated yourself with as much information as you can, be an advocate and don't give up. There will be days you just want to scream and there will days when all you do is smile & laugh! Join support groups, talk to others that ASD & parents, & having your own therapist can be an amazing tool as well.
Thank you so much for sharing your story and what has worked for you and your son :) I am glad you liked the video too.. I was nervous. xoxo
You did great!!!
I'm an adult mid 30s with a late diagnosis. I had all the other labels (ODD, ADD, Bipolar, OCD, etc) and was misdiagnosed but because I have been high functioning my whole life they never figured it out. Social-zing is still hard, but I am excellent at masking.
I spoke to my grandma and she saw it but said they couldn't go against the diagnosis. I thought at least I would have gotten the support I needed and not put on psychosis meds. Finally figuring it alll out a little too late
I got diagnosed with aspergers syndrome after 2013, but I live in Sweden and here some professionals use the ICD, and not the DSM. So the ICD still has Aspergers syndrome I guess.
Lisa Gren the next update of the ICD (ICD-11) won't have Asperger's Syndrome anymore as a diagnosis either. It will just say ASD too
Oh that's very possible.. every country has different diagnosis and manuals they use. xoxo
same here. got diagnosed last year, i live in Denmark.
:D hi neighbour
Heey im swedish too!!
Thank you, this video have showed me that i have had this disability all these years and never knew it i always had questions in my mind but i never thought that it was something strange. This have now unlocked a piece of a puzzle in my body and i am eternally grateful for this to have showed up on my TH-cam recommended list.
And also Kati Morton, Thank you for spending you own time to research and providing it to everyone else who have access to the internet.
I am about to turn 24 this year (actually in 2 days) and i am about to make some major differences in my life.
After 18 years of struggling and no one listening, my daughter has just been told that they think that she has Autism. Something that her family have been aware of for years but not one Dr would help. The relief from just knowing she will get help at the age of nearly 22 years old l cannot put into words. Love the video
My son is nine and was diagnosed , the neurologist was incredible! She sat with us for three hours going over the results and where we need to go next
Thank you for explaining this, I’ve been told by 3 doctors that I’m a highly functioning autistic person. When I was a kid I told was diagnosed with adhd but a lot of the feelings you described were on point. Especially on the feeling overwhelmed and exhausted as well as really anxious.
We should collab...
YESSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSS, is that too many sssss's, you should also work with How to ADHD
I definitely would watch I find both of you very informative
That'd be great!
The Aspie World YAS PLEASE
Nick Lane strait to the point huh aspie? Just trying to get a pretty autistic girls attention 😉
I have ASD. I was a youth worker for 9 years. Have a BA in Psychology, Bachelor of Criminology and Criminal Justice, Masters in Forensic Psychology. I find it easy to talk to people. Regulating my emotions is an issue for me. Music is a huge help for me it calms me down. I'm 56. I have never had any therapy or help. I was diagnosed at 50. I felt so angry cause I showed all the symptoms as a child. 53 years ago they only looked at the male brain. So many woman are being diagnosed late in life.
I got rejected a diagnosis because "im too socially aware" but I'm just smart. I have learnt to recognize sarcasm jokes through vocal tone and facial awareness, but if these arent available then I just don't understand. There are so many flags throughout my childhood, that me, my family and even people who knew me have recognized but I still got diagnosed. Just because I want to be social and have friends doesn't mean its not hard. I just hope that when I'm older and move away I can see a different psychiatrist and get diagnosed.
Past 4 months I’ve been taking my 3yr old daughter to a Speech therapist and OT she is delayed in her speech, toe walking still. And does not like to get messy although she is very particular
She will be evaluated for autism some time this year we are on a wait list.
This video was so helpful, and took a lot of stress off my heart. This is an awesome outlet to help educate not only parents but the entire world 👏🏽🧠
Okay, so I have ASD and a lot of autistic people are trying really hard to get rid of functioning labels so while I appreciate this video it hurt a little bit to me for someone I admire so much who does research was still using functioning labels.
Everything you said was very true though. And I do appreciate that.
I experience SO, and I also have Auditory Processing Disorder due to ASD and C-PTSD.
But yes. I would have "high functioning" autism overall but some things I do and happen would mean I am "low functioning" autistic because I am incon, and find it hard to drive/get a drivers license.
Which is why functioning labels dont work.
And yeah.
I just. I dont what to think of this.
I also noted you used a lot of person first language, while some autistic folks like it most of us do prefer disorder first language - which you used sometimes.
Thank you again for this video but I noted when you said you did research you didnt say you spoke to Autistic people but to parent blogs and a lot of parents of autistic kids do not do well.
Therapies are awesome and I am actually looking into aquatic therapy!
(And I am training to be a music therapy)
Thank you for not mentioning autism speaks though because they are AWFUL and need to be shut down as soon as possible...
Im sorry uf this is all over the place. I just didnt know how to feel.
I love your videos Kati and i hope that as you learn more about ASD you discuss more.
Kei Hill I agree 100% with you i everything you've said in this comment ❤️
I'm diagnosed ADHD but suspect I might be on the autism spectrum as well. I've been trying to get educated and been reading a lot of blogs by autistic people. From everything I've learned so far, I totally agree with your comment and was also disappointed with some aspects of the video.
L Leitenperger it wasn't that bad, Kati's always being a bit reluctant about talking about ASD, and she's always said that she didn't really know that much about it, but I think a lot of her followers have ASD (I do too) and a lot of us requested her to talk about the topic. I honestly thought that when she finally spoke about it, it was gonna be worse than this, but it was actually pretty good
I noted the parent blogs but lack of autistic adult and teen blogs, too. And i am right there with ya on the rest of your insights. I love Kati and her videos, though, and don't hold this against her as I'm sure she just isn't aware of these topics that are discussed widely within the autism community, but unknown outside of it.
Kati, if you see this, check out the Autistic Self Advocacy Network. Many self advocates have blogs!
I am sure she just didn't know, but I feel if she wanted to know about autism she should go to autistic people first. But I still love her and support her.
Thank you for opening the video with an explanation making it clear the High functioning doesnt mean you live with no issues. Here in the UK Asperger's doesn't exist at all and is more often a slur than a diagnosis.
Thank you for highlighting the fatigue, depression, OCD and anxiety that is often Comorbid
Breakdowns when extremely stressed isn’t normal?
Bryce right lol??
It depends on what "extremely stressed" means to a person.
@@kasandramullins9890 I would hate you too
Yes normal. But it is not an excuse. Have to find out ways to let out anger and confusion in unabusive way. Like boxing bag in room, tredmil, walks, meditation, whatever.
@@chancewindham1718 TF?
I was diagnosed with ASD (HFA) when I was 17. Along side those i suffer from depression, OCD and anxiety. And this is just like, omg it's me. So strange. And you're totally right about the 'tantrums' ect when we have sensory overloads. THEY ARE AWFUL. I appreciate you understanding our struggle, and I see my autism as a trait of mine. Not a problem or disease. It's the best way to look at it. You cant put autism in a box. I didnt speak until the age of four, I only knew BSL (sign language) and yet at 16 I graduated with an a* in english literature. Dont underestimate us and dont undermine us
I swear same I was diagnosed at like 7 and was always the smartest kid with straight As and I have 2 jobs
Today I had a huge melt down, I was overwhelmed about the internship. Other people may find it easy to solve but for me, it was hard. I couldn't absorb all of them at once. My family noticed I seem different because I'm throwing my phone and I have a distorted face. When they shoutingly asked me what was wrong, my emotions starts to flood. My thoughts are all over the place that I couldn't speak clearly. They kept saying "WHAT?! WHAT?!" Shouting at my face as if I did something bad or I'm guilty about something. I felt pressure about it that I started ugly crying like a child. My parents got mad at me and they started to say that I need to grow up, change blablahblaI that I have bad attitude, I'm just acting out or being bratty. They even mocked and ridiculed me because I'm being immature for my age.I wish I could control what I feel, I wish they feel what I actually feel. Instead, all I hear is being compared to other kids. They think if they told me hurtful words it will help me toughen up. Thanks to that I feel worse, I feel horrible, I feel miserable. They're not a bad parents, I really love them but I don't appreciate what they did to me. I just hope them to be MORE understanding.
Here I am confiding in social media because I have nowhere to talk to. I'm sorry for the long comment whoever will sees this. I'm struggling, I'm a mess and my thoughts right now is not really good. I just wish to be better but I don't know how. I know there's something wrong about me, I'm very much aware about it but I don't have the courage to get help even if I needed it.
I didn't talk until I was 3, I lined objects up for hours, and I was always lost in my own world. I never got diagnosed with anything - but as an adult, I relate to so much of this. My social skills are pretty good though. I'm shy but easy to talk to (though I have to remind myself to make eye contact - over time eye contact doesn't feel awkward anymore).
Wow, this was really good. I haven’t been able to find many videos that present so clearly and accurately without trying to push down or pump up symptoms and people with ASD. I think they will find that many who go undiagnosed and cannot find resources end up with PTSD as well...like me.
Also, you said something about symptoms showing differently between male and female, but there’s also intersex people and sex is literally a chromosome and hormone spectrum as well so the symptoms I would beg to differ are also presented on a spectrum that can very frequently cross any type of sex boundary someone is trying to present. Much of the difference is also that females and males weren’t cared for the same and if they are, the symptoms will present themselves more similarly too.
Thank you also for recognizing that Aspergers is an outdated term. You taught me that there’s actually a link between the serotonin production and the OCD/ASD. I didn’t realize there was actually something truly found scientifically and have felt guilty for years about my depression.
Jokes and sarcasm I never understood fully as a child. I I had to learn to laugh when others were laughing. Things were so busy I could hardly understand all the words people were saying. When I got older, people thought my real questions were sarcasm and I rarely got answers to many things. Now any sarcasm and joking when I’m upset only overwhelms me and confuses me more. My mind, once so ready to explore and create, becomes paralyzed.
YES! You got it. I will not grow out of it and don’t want to be and can’t be cured. And you’re right, people often look at me and automatically say I don’t need help or don’t look like I need help. I can tell people over and over exactly what I need help with and they pretend I’m not saying a word. Things get worse and then everything compounds.
I’ve got more, but I’ll save it, heh. Thank you for this though.
Sorry but your need for social validation in the comments section leads me to believe you are in no way shape or form autistic.
Girlfriend, why am I just now finding you?! OMG but I'm glad I finally did! I am 57 year old woman diagnosed at 4 years old, my mom beat me up at two years old because I couldn't speak yet. Which was the start of my PTSD and schizophrenia. Glad I found you! God bless, sweetheart.
So I like my job because it doesn’t require much in person communication. I tend to prefer staying at home then going out. I don’t mind speaking in public but I have to know what I’m going to say first, spontaneous conversation/ small talk is uncomfortable. I remember in a highschool English class 15% of our grade was class reading discussion participation. I never participated because by the time I figured out what I wanted to say, we were on to the next topic and I felt stupid going back. So then midterms came about and we had to read a banded book and do a in class report. That I was able to do. The teacher later saw me and told me he was surprised and that he was worried I wouldn’t show up for it. But while he was talking I felt anxious, I wanted to run but then I also didn’t want to attract attention. I’ve just figured I’m an introvert and socially awkward. But then I think of times like this and wonder if it’s something else. But then it’s not really interfering. Well maybe at least not daily. I didn’t attend my moms funeral because I was terrified of what I would say or how to respond to things people said to me. I also felt awkward because everyone would be crying and I couldn’t find a reason to. To me she wasn’t suffering anymore so I didn’t think her death was something to cry about. I wasn’t celebrating it either. It just was what it was. So anyways long story short I’ve always just thought I had social anxiety but is that different from not knowing how to take part in social situations.
One problem I am having and most of us Autistic adults have is that some insurance companies like Blue Cross Blue Shield of Nebraska believe that basically all of us with autism disappear or are no longer affected at the age of 21.
Ugh!! That is so frustrating!!! hopefully by talking about it more we can change and improve peoples access to care for their entire lives. xox o
🤦🏼♀️ my son had to get rediagnoised every year because they think his ASD will disappear as well. I understand the struggle.
I’m from Nebraska too and I agree
I just found this. A very nice summary of Level 1 Autism. I personally don’t have an issue with people using Asperger’s, Level 1 and associated terms. “High functioning” is problematic because as a late diagnosed level 1 autistic person, I didn’t fully appreciate how exhausted I was trying to mask for neurotypicals until my diagnosis was refined. High functioning to me is better described as “over functioning.” After diagnosis I found myself much more comfortable simple being autistic, including not suppressing some behaviors. That took a lot of pressure off me. Once diagnosed I could honestly tell my supervisors, “Look I have autism. I am not coming to the meeting in person but I will be on Teams and I will listen to everything said and make written comments that you can deliberate.” Every one of them was extremely understanding. So, yes “high functioning” is awkward, but the neurotypical world is a lot bigger than the neurodivergent and sometimes we have to accommodate them as a way of showing we care about them. Lastly, ABA, is very controversial. My psychologist doesn’t like it. I realize that for 50 years I was doing it to myself and so it allowed me to have a very successful career in a neurotypical world. So I am objective about it. No matter what, if ABA is used it should be done with consultation with a skilled behavioral health specialist in autism. For folks really interested, Marshall University in Huntington WV has a well recognized Autism Center that is a great resource for questions. Marshall is also highly accommodating of autistic college students. Again, great synopsis and overview. Very clear and well produced.
Thank you so much for this video, and I really can't wait for your video on Autism and gender differences! I've noticed that there is currently a trend toward women (like me!) in their mid to late- 30's and older being diagnosed with ASD, after years of struggling with misdiagnoses, overmedication, depression, anxiety, and frustration. I know that I don't present as Autistic, but that seems to be common among the female population - we've been socialised into being world class actresses, in order to simply seem normal, or as close to normal as possible, while we feel utterly broken inside. I was also a very gifted child, with high verbal skills, and back in the 80's a verbally advanced, gifted girl was exacly what the professionals would say was the antithesis of an Autistic child. Actually, most of the time I was in a state of panic or sensory overload, and hiding either in a book, a drawing, or my own brain in order to escape the outside world. Though I've lived a varied and independent life for a few decades now (including a Fine Art degree, and long term relationships, the best of which was with a fellow Aspie;), I'm currently on Disabillity, renting the parental basement and attempting to regroup and make some long term plans. Just the recognition and validation of this diagnosis has made my life, if not easier, make more sense. Again, thank you for doing this vid, and I'm looking forward to more on the topic!
I like how u explain things & the weather is nice
I'm 38. This video had me in tears in how much I relate. I turned to alcohol & self-isolation to cope. Idk how to escape this prison within a prison.
Explains my life in 10 minutes
I have high functioning autism and I think this video is very accurate, Good job!
When I give up on life. Videos like this give me hope that I might just, get help I need. Than I remember I don't know how.
I went to Social Skill Classes and it was so helpful to me, before that I barely had friends but now I have connected more with a whole group. :)
That's great :)
We’re going to look into those classes for our nine year old son. Right now with covid it’s tough but I want to try it . He’s pretty fluid around his close family members but around strangers he’s a completely different person (asd-1)
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
Would be nice to hear more treatments for adults
Best treatment is to stop worry and stop try to change. Find yourself. Find your inner peace. Find who you are, what you like, what inspires you and work in that dirrection. Theere is a son behind the clouds.
Meditations are great for that.
People (any)are stressed in wrong area so find which area is yours.
I have spent my whole life on sensory overload until the last 3 years! My whole personality has changed for I can tell I am not as hurried or stressed. Don't let yourself get to busy folks and make time for alone time. And sleep your heart out!! Oh and let go of the perfectionism .....if ya can. That is a hard one.
What makes me angry about Aspergers is that when people hear that you have it, it's like they have the reaction of, "I'm so sorry." And basically a lot of people treat you as unwanted, like your life is over. I'm trying to get into the mindset that what I have doesn't bother people if I don't brood over it. I actually do have a good job and I'm making good passive income on the side. When it comes to relationships though, it's very hard. I work at home. And as such, I barely need to deal with anyone.
What's your business and how long have you been working?
True Its better to keep that info to yourself. Try and build more confidence if you believe in what ur saying or doing without worrying about anyone eles things will get better for you
Asperger's isn't a thing...what you are describing is high functioning autism....which I have btw.
Asperger's is a posh way of saying a child is not autistic.
X
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
@@MrWeAllAreOne It's not posh... You might want to watch the video again. Asperger's was a commonly used term used until 2013 by the WHO. It is still used commonly now, and is a diagnosis in some countries... It said it in the video you are commenting on. How did you come up with this?
I found out today. I don't know what that means for the rest of my life, but it explains everything up until now
I’m on the autism spectrum. I was diagnosed with non verbal learning disorder, ADHD, Dysgraphia, and “symptoms of bipolar”. I sometimes get extremely manically hyper and my mood does go up and down. I wasn’t diagnosed with OCD but I’m pretty sure I do have that too. The social party is such a struggle honestly. I tried occupational therapy for my handwriting when I was younger (I’m 27 now) and it didn’t help at all. Thank god for my bf who helps me out with the social aspect of things 😊
I am on the spectrum and very intense too. I wonder how much of that is having grown up without accomodations and having a lot of comorbid issues like social anxiety. I also read that chronic pain or sensory overwhelm can cause of over excitability... Imagine a person who is very anxious, right before a panic attack ...they often speak faster, start to pace, and so on. I think the anxiety and the overwhelm leads to physical and mental intensity which can be a way to push back against anxiety by physical distraction, mental distraction or as a sign of anxiety itself. I am much calmer when alone. I exhibit most of this intensity when socializing. I feel you.
I have Asperger’s and thanks for the information. I’m 38. I have a college degree and I have a wonderful job. I sill have troubles with social skills and making new friends. I’m still not married and I do have motor skill problems. I struggled playing sports in school
In regards to ABA therapy, it really depends on the goal. If the aim is to make life easier for caregivers/teachers, then it's likely to be traumatising and lead to further issues down the line. If it's aimed at helping the child gain skills and independence, then it can be great. The child's best interests should always be the focus, as in most things like this, but that wasn't the case in the early days of ABA, and sometimes isn't the case nowadays.
This this this this this. It's just a teaching tool. My autistic sister was able to learn because of it and I, person who might be hf autistic myself, had it done to me and it just seemed like a type of behaviorism teaching that didn't allow me to space out or slack off without even trying (I have severe ADHD for sure!) which is good, I hate accidentally daydreaming or drifting.
ABA by nature should be focused on the individual and his/her needs. Functional communication is essentially one of the most important skills to teach, this way the person can communicate wants and needs without having to engage in maladaptive behaviors.
I’ve sent this comment on another video about music and autism but i want to repost it here because i think its the most elaborate way i have ever explained what it’s like to have autism for me:
I feel like music is a life saver for people with autism. Mainly because its a portable media platform that can have simple stimulating or soothing beats/rhythms or even complex poetic lyrics that can be enjoyed without a specific technique/pace expected to be appreciated by the listener. These genres, volumes, sounds and even bpms can be chosen at full control to the listener and can be skipped or played on repeat to their desire. This is a huge contrast to living in a normative social space where you’re expected to listen to people and respond in “acceptable” rules to hold a conversation and be charming or appropriate. As someone with ASD myself, to neurotypical people i would describe social interactions and social masking like “speaking to people with an annoying static radio playing at medium volume in the background that only you can hear. (At least for my level of ASD,) It’s not impossible to tune out this static noise to concentrate on your conversation with people but its pretty frikken distracting/exhausting and requires a LOT of energy to do when it’s something you cant control or turn off.” And sometimes the only way to drown out that static, is with music. It’s not that autistic people dont want to talk to people or dont like people, it’s just that it’s VERY frustrating to talk to people and speak as “normally” as you’d like with this distracting stimulation thats in your head. As for stimming, If you have ever been frustrated to the point where you want to hit something or whatever, that’s basically the feeling autistic people get when they need to stim. Stimming is like unloading all that frustrated energy into a soothing physical outlet in a way that isn’t violent or destructive.
We don’t use the term “high functioning” in our autistic community. The danger of using “high functioning” is that it makes it harder for us to get help because apparently if we’re high functioning, we don’t need help. We’re no less autistic than any “low functioning” autistic people. We just show different traits. We need help just as much as they do and these days we are suffering more because this label of “high functioning” is making it harder to get the help we need as people assume we aren’t in need of any help within every day life. Trust me, we need it. However, we only need it when we ask. Don’t just assume.
Thank you !
What do high functioning autistic people need help with and how do you argue that high functioning autistic need help just as much as low functioning autists?
This is such a great video so far. This is helping me understand and accept myself so much. Thank you for posting this!
i was diagnosed at a very young age and I never thought to get help for myself. thank you. i cried during this video. my sister is an aba therapist. thank you for your video
CBD changed my life in the whole social anxiety department
If you don’t mind me asking, how many milligrams?
@@WhatAnActress varies person to person but I get the best affects at around 1500mg
These things don't last forever; once you develop a higher tolerance, you will find no difference than having not done it at all.
@@AlmostLeroy you can say the same thing about medications too. Pretty much anything. Whatever works. Works homie
@Damian Green I usually just grab some CBD gummies and they work like a charm
This helped me understand why I'm always anxious, depressed, and ocd at the same time (or often switching between them).
As a “high functioning” autist that’s now unmasking after being trained to act human from 2 years old, all the concepts you’re talking about are really thought provoking about even just conversations I need to have with myself
But I will say, the term high functioning has caused me a lot of pain because I had absolutely zero accommodation for most of my teen years, it’s kind of a label of “you’re not so inconvenient we don’t need to worry about you” AT LEAST in my community at the time
And I learned very early that being convenient meant being loved which is only just now unraveling
Like previous diagnosis with outdated terms, don’t shame someone for using the term, but I’d rather not spread the usage of it
I have it too and I often find myself being frustrated with myself at work and in everyday life😩
Same
It sucks because i am more toxic online but I try not to be
I knew that there was always something “different “ about me.. it was very difficult for me to make connections and social interactions. I get overwhelmed just thinking about talking to people. And usually it’s just surface stuff small talk when I do have to. I’m on the Inside looking out. Seeing everyone laugh and joke and relate. But me.. Also I have a very hard time with comprehension. It’s just hard.
X seeds 3 we ed
Yeah, it was horrible when I always felt I was different to those around me, but didn’t know why or what it was exactly.. It wasn’t until I was an adult when I had somebody approach me and give me awareness for this, and only then could I give my feeling of feeling different a title....Right now I’m hoping to someday get a diagnosis and the recognition that I’ve waited a long time for...
Me too
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
Big same here. Also, has anyone told you that you deeply resemble Tiffany Amber Theisen? (Not sure of the spelling. Kelly from Saved by the Bell lol)
Yesterday was Autism Awareness Day! I have High Functioning Autism. I can tell you there are many challenges, but also many rewards.
I get overwhelmed in the blink of an eye; especially in any loud environment. Some of this also came from a slow development in social skills. A great example of this would be a wedding dance with loud music and lots of people. I'm very much a creature of habit.
Many of you may hear that those with autism are often highly intelligent. I’m a big believer in this being true. I have a high intelligence in tv, movies, and books. Although it is only the ones I'm interested in. Growing up, I would repetitively watch the same movie THREE TIMES per day for at least A MONTH. I'd lose himself in the movie to the point of him becoming one of the characters from that particular movie.
This explained why I was so scared of fireworks. Some people say I am dog-like and I am not normal, but I am autistic and experienced a traumatic event back in 2010: a sudden blast of fireworks by an ASU game after a touchdown. I was in Tempe Beach Park that night. That is why my mom couldn't take me to places like Disneyland or 4th of July celebrations.
This describes my son right now. His hearing is fine, but he plugs his ears when things are loud. He cries a lot, too. He also watches the same movies and listens to the same songs over and over. He just got diagnosed with stereotypes (like stemming) so we’ll be following up with our pediatrician.
@@VictiniMujigaetraumatic event?
This is hard to word, but: ASD absolutely is a real challenge but, in a perculiar way, it would actually be quite helpful if society acknowledged the areas where neurotypicals struggle and autistic people sometimes don't. ASD presents serious challenges but society failing to be clear about where people without mental illness make systematic errors can lead to a view that having ASD is worse in every way than not having it.
I think it's difficult to communicate how difficult having ASD can be AND explain why most people with ASD wouldn't want to "trade" and become neurotypical.
I think it helps to be clear that just as the neurological differences present challenges for those with ASD the very same social areas of the brain can lead neurotypical people to make poor and even self-detremental decisions. It's a mixed bag that really does cut both ways.
Navigating a social environment is difficult enough with ASD, navigating it when most people assume that they are inherently better functioning and perhaps even superior in some way can be virtually impossible! Just as people with ASD need to figure out how to work around their problems I think it's important to stress that neurotypicals sometimes have just as much work to do and it needs to be a two way street and not simply the job of people with ASD to handle it all by themselves.
Sometimes those without ASD need to adapt their behaviour as well. Not instead of, but as well as, people with ASD being expected to do so.
If I could like this a 100 times I would.
Amen 🙏
As someone on the spectrum, I believe that there isn't a level of "severity", as many people say there is. ( i.e. High and Low-Functioning Autism. ) I think of it more like a pizza with different toppings. We all deal with different things individually, rather than autism being a couple easy-to-pinpoint things.
As an example, while I may struggle with social cues, a sensitivity to sudden loud noises and have a horrid time breaking routine, another may be non-verbal. Does that mean he's worse off than me? In some situations, yes, but in others, no. Does that make his experience is any more or less valid than mine? Absolutely not.
People experience autism differently, and it's hard for people not on the spectrum to really understand how it feels, and how it really is to be on the spectrum. As much as behavioural therapists and doctors may study us... They can't really understand what it's like to be someone with autism, because not only are they not in our shoes, the experience is so different amongst each and every one of us.
as someone with severe autism i disagree! my life is hell and i'm forced to live a horrible existence in poverty! yes my situation is much worse than yours.
I understand where you're coming from, I still disagree. If you don't think autism is more severe in someone than others, than what you're really saying is that that 'someone' could cope better which sounds unfair to me. Even if what you're saying is true, changing your behaviour is easier as a child than as an adult. So someone who didn't get the right treatment as a child still has it harder than someone who did. But then we are blaming the caregivers.
#cherrypop I have Aspergers I do agree my life is hell
#damedsmontagnes I’m close to not being able it myself I do self harm and yes I have Aspergers sad
I made a comment to my boyfriend as I spiraled the other day when we went out with our friends at a bar and I had to run outside..
I said “when i go out, its like im literally in a game. the person that is the REAL me is playing me in the bar and they aren’t very good at it like the rest of the players are. I feel like I have to cover myself up and try to move perfectly BUT ITS JUST TO ACT NORMAL IN A PUBLIC SETTING with FRIENDS that KNOW ME. I had to run out because I couldnt play the game right and i started having a panic attack because i had no clue what was going on..”
I am not diagnosed but just started going to therapy last uear for BPD. I started diving into myself and how Ive always been, really relfecting and Ive never really been right. Im always able to look normal for the most sight but on the inside its another ball game. Busted in tears watching this video.. thank you..
Functioning labels are really harmful tho, and ABA “therapy” has been shown to traumatize many autistic people. Please communicate with #ActuallyAutistic people on these matters. Avoid Autism Speaks, try reaching out to Autism Self Advocacy Network or Autism Women’s Network.
Thank you! I don’t know why Kati read parenting blogs but didn’t bother learning what actually autistic people say thenselves.
I felt a bit weird when Kati said she read a lot of parent blogs but didn't mention much in terms of talking to autistic people. Parenting blogs are good for finding out how many parents think about Autism, but it doesn't really tell you much about Us. They can be really harmful and discuss things that we could feel to be considered traumatic.
I don't think it's unreasonable for people to be upset at not feeling like they have been listened to or communicated with -- one of the biggest issues we struggle with. 'Nothing About Us Without Us' is a common saying that I feel applies really strongly here. It is very important for someone seen as an authoritative figure on psychology (by fans) to be providing accurate information that represents those being discussed. I feel it is fair to want to have our community and views represented, especially as we are often spoken over by NTs. This isn't really deep of complex knowledge -- going into (eg) a FB group for those on the spectrum will pretty quickly provide you with what's been said in the comments here -- there's also (afaik) a lot of YTers on the spectrum who will readily discuss their experiences and thoughts.
As for lashing out -- maybe a couple of comments have been harsh, but most of the ones I see here are polite and make an attempt to educate on the subject. I would also hope that Kati might understand why someone could feel very hurt and might be impolite when they feel misrepresented and are seeing trauma-related subjects (eg. ABA, functioning labels) discussed in a way that they do not feel is correct.
I have heard more testimonies from autistic people having ptsd from ABA than I have ever heard of people getting results that are anything other than 'hide that your autistic'.
Drustan preachhh
I have HFA a high-functioning autism but when I tell people I have autism they don't believe me because I don't look or show it
@ you have it too
@ yes I am not disabled
@@devenn4605 i mean, allegedly. i have my doubts but thats what some doctor 20 years ago said. and its gotten me discriminated against ever since.
Same
@@alycimjau glad I'm not the only one
This is odd. I am 66 years old and within the last couple of years as a result of semi-retiring from a graphic design career I lost my creative outlet that I had become so accustomed to and became a bit depressed. While seeing a therapist he recommended a test and it turned out that I have autistic tendencies. This news wasn't a shock, in fact it felt good. I finally understood why I was different. It also explains why, as a child, that I was protected by everyone in the family, but I wish someone has said something.
Things about me that is part of this. I have remained child-like (not childish) which is a wonderful thing. I also remember very little about growing up even into my sixties. Events just don't seem to stick in my memory. The caveat to this was a 10 year period of Porsche racing that I did from age 42 to 52. Not only did the ASD give me a heightened ability to maintain concentration but I can almost remember every corner I raced. Although I am married now I spent a good portion of my life living alone, in fact, it is what I prefer most. I am not very good at relationships although I am caring. In recent years there has been much introspection about my life and things I could have done better but in the end I am glad to have been made this way. Thanks for you video.
This really helped me understand myself. I find myself everyday feeling different just because of things I do such as stimming, repeated actions (such as obsessively fixing my hair), abnormal speech patterns, and constantly cowering away from new people.
Reach out to Dr Oyalo on TH-cam channel for herbal and complete autism cure for kids. his herbs helped my son he is verbal and autism free now
YAYYY FINALLY!!! Thank you so much for this video!!!
Oh good!! Yay! So glad you liked it :) xoxo
For the longest time, I wondered why I could not work a "typical" morning job and only trived working a third shift, quiet job. I thought I was just antisocial, but it's more than that. When I worked during the day, I would come home drained from all the social interactions, I would be irritated and just want to sit in silence. I was being so overstimulated from everythingg in the environment without being able to pull myself away from the stimulents. I love the routine of my third shift (mostly just cleaning and doing tasks by myself.) I also love the silence, not having to interact or have expectations of how I look to others. I can also stem by bringing a small soft thing to hold and squish while I'm working, which is how I like to calm my mind.
As a parent of a high functioning child on the ASD, this was so helpful because the only therapy options presented to me where ABA therapy and Speech, totally disregarding his sensory seeking and avoiding behavoirs.. which induce meltdowns! The only other thing that I would ad, which I saw somewhere else is, High Functioning Autism does not mean "easy autism" for all of those who have felt invalidated by someone who doesn't get " it."
Thank you so much for sharing!! xoxo