As a nurse, I’ve seen this once in a traumatic brain injury patient. I was working one day and this patient was awake but couldn’t talk, couldn’t move but you could see her eyes moving and acknowledging your presence. She was crying but her lips weren’t moving. It’s very devastating to see someone suffer like that.
There was a story on tv about a coma patient who woke up years later and told his family he hated them. He had heard all the horrible things they said about him and him in the coma and how if he died the insurance money could be split. The only one who truly loved him was his baby sister who was only 15 when he went into the coma. The only reason he was alive was because the sister would freak out on them every time they spoke about pulling the plug. I think the ending was he left and never spoke to them again and took the baby sister with him. If that’s true story that’s just sad.
And end-of-life patients in palliative care. Both my parents needed hydromorphone the last couple of days at the end of their lives. We surrounded them with the music they loved, talked to them about happy memories, chatted, and laughed among ourselves in their presence. On the advice of palliative staff, we never discussed their condition, treatment, or prognosis while near them. The staff told us that "hearing is the last sense to go." Both of them passed very peacefully. ❤❤
I'm a nurse, and so many never adress people with coma or people with last stage of Alzheimers. But as being specialized on respirated people: You can see who is there, just by looking on the monitors. You can see whom they love and whom they hate. Or what music they love and what they dislike.
While the mom was happy that her daughter listened to their voice, the dad slowly realized that she was conscious when she was attacked... so heartbreaking...
The mom also realized that when she had talked shit about her daughter and her daughter heard her, I believe saying that she would rather her daughter was dead then in a coma and the fact that she was in a way happy her daughter got assaulted because now she’d have a grandchild because the girl is pregnant
@@braedensullivan9402 I don’t think they ever addressed that part xD, idk My mom watched the show and I only caught bits & pieces but i remember hating the parents in this episode
Locked in syndrome scares the living shit out of me! I watched a story of a woman who had it and was stuck for years when she was a teen. They too thought she was in a coma until a medicine they'd given her to treat something else made it so she could blink and move her eyes in all directions. She fully recovered and became an Olympic gold medalist. I believe in swimming.
I really see the problem is leaving people in coma’s for YEARS!! Like no! That is not living. They are not living. If that is my only life lying there, let me die.
@@perfectlyimperfect2368 "First, God is ONE GOD who can divide himself up into THREE. On that we agree. But, I believe that those three can be called three "persons". On that we don't agree. It's clear to me that the reason you disagree is because YOU define the word "person" as only applying to one single individual. You can do that. Help yourself! Now, you begin by running to the dictionary to do so and make your point. Yet, you don't give the definition of the other word "TRIUNE" in the same dictionary, which states... "TRI'UNE, adjective [Latin tres and unus.] Three in one; an epithet applied to God, to express the unity of the Godhead IN A TRINITY OF PERSONS." Even the DICTIONARY ITSELF says that God (THE GODHEAD) can be a "trinity" of PERSONS (plural). He can be ONE UNION and still can exist in three separate persons! Will you accept THAT dictionary definition? If not, then you can't try to prove your point from the first definition you gave. For you'd be denying another dictionary definition on this very subject, and that, then, would make your argument null and void!!! If you are going to use the dictionary to prove something, you have to use ALL the pertaining definitions to this subject. Will you do that, or IGNORE it? Second, we are made up of three, but yet we are one. You agree on that point. But, we can also have our three parts divided. For example, When I die, my soul goes to heaven. And, someone seeing me there for the first time could say: "Who's that PERSON?" While at the same time here on earth, someone looks in my casket and asks: "Who's that person?" Am I now two completely different Human Beings? Two Robert Breakers? Or am I the same Robert Breaker, but I'm just manifested as two different "Persons" in the eyes of others. One, in the Spirit world, and the other in the Physical World? No, I'm still ONE Robert Breaker. But, in that illustration, I would be manifesting in two different ways, and would be viewed as two separate "persons." My soul and spirit would be in heaven, while my body would be here on earth. How can you not get that??? The Dictionary shows it clearly! The Bible teaches it clearly! God is ONE GOD in three! And, those three are ONE! WE can call them PERSONS, as one is viewed as a FATHER, the other is viewed as a SON, and the other is viewed as the SPIRIT of both. That does NOT make three different gods! That's a ludicrous argument. Third, you quote: "God is no respecter of Persons." Clearly that is speaking about HUMAN BEINGS in the context of slavery and is not referring to God Himself and Him in three persons. You are TWISTING THAT VERSE OUT OF CONTEXT! That can NEVER lead to anything good! So, I suggest you stop following the heretical man you follow and get back into the BIBLE. Otherwise, you're going in a direction that I cannot follow! For you are departing from the SCRIPTURES and what they teach, as well as the DICTIONARY, and as well as what the TRUE CHURCH (not Catholicism) has believed for almost 2000 years. God is ONE GOD. He consists of three PARTS. God made man (Adam) in his image, and we also consist of three parts. We are TRI-PART beings, as is God. But, it's NOT WRONG to say that God can manifest in three separate "persons" and still be ONE GOD. I proved that from the BIBLE, from the DICTIONARY of the English Language, and from History. You can decide to deny ALL THREE if you like. But, I can't go along that path with you! I will be praying for you, though, that God will OPEN YOUR EYES to the truth! Sincerely, Robert Breaker " - He helps a lot to start to understanding the bible, but unless one can agree with him, one must read the whole bible themselves.
I remember a radio interview with a guy who had this condition for a few years and then recovered. He told quite a funny anecdote about how the doctors would do their rounds in the morning and check on him and notice that his eyes were red. For months they tried to work out what was causing it, trying every treatment in the book for every eye condition they could think of, to no avail. What he couldn't tell them was just before their visit every morning, a nurse wiped his face with a soapy washcloth and got soap in his eyes.
My brother heard about locked in syndrome when he was like 13, and from that day on, he randomly reminds us that if he ever gets locked in, he wants someone to just end him. He's suffered with sleep paralysis since he was young and says he couldn't imagine anything worse then being stuck like that. He's 28 now and it's still his biggest fear.
I had back surgery that left me with a spinal cord injury. I was on some pretty strong drugs that worked through my brain to try to help the nerve pain, and I had sleep paralysis. It was horrible so I can sympathize with your brother. After changing meds I no longer have it. I believe that may be what children with night terrors have and they are usually too young to describe it.
My husband had great results with magnesium supplementation for his sleep paralysis. Your brother may find this info useful. He also makes sure to keep a very consistent sleep schedule as changing his sleep schedule too much can trigger an episode.
My grandfather always taught us that you treat unconscious people like they can hear you, because of his experiences when his father was dying...and we treated him that way when he was dying, and at the right moment, he was able to make it clear that he heard us. Always treat unconscious people like they can hear you. It's worth it!
Same thing happened right before my Mom passed away, I was holding her hand and was trying to let go but her hand wouldnt let me. I knew then that she was still there then a couple hours later she wasnt.
Its not magic its Cytokine storm in practice if your body feel it diing it relese everything and im mean everything all parts of imune system activate all at once all glands in your body relese what they have in last ditch efort to save you. Lot of endorfines and hormons and adrenalin is flooded into your body. This kick is in loads of the time enought for even worst cases to wake up for last time before they die. This relese come whit masive cost to your body Cytokine storm is practicali NUKES going on inside your body and since you are already near death when the hormones endorfines and adrenalin worn out it will be enought to overwhelm your already week body. This mechanism evolved over existence of life and if you are healty individual you can even survive black death or any other sicness whit out diing % is small but by relesing everything its lot of the times enought ti kill the infection and if your body can survive the after math you will live.
She wasn’t diagnosed At that hospital. They only took her there when they found out she was pregnant. She was being raped by a staff member at another facility. They were only able to correctly diagnose her when they brought her into that hospital.
@@moonlitskylight5740 woooow, really????? If so...those are some scummy parents. If they wanted another daughter they could have just paid a surrogate.....yikes 😬
Spinal injury is very tricky. I was left for dead on the bed taken off machines. Hearing my brother screaming at the doctor woke me up. The medic looked at me like I was a ghost. I was later in bed paralisis for 9 months then after able to sit and go on weelchair. I only developed strength to use crutches after 18 months. Now I walk unassisted. Every time I had to get an adrinaline super charge to push next stage. Yes stimulus is the only way back from that loophole.
I can’t imagine anything more horrible than being assaulted while being aware of everything but also unable to move, scream or defend yourself. The saddest thing about this is that this has most likely happened to someone with Locked in syndrome somewhere in the world. I feel so incredibly sorry for that person.
I served as a VA Hospital Chaplain for over 20 years. I often visited comatose patients at bedside and would identify myself and then say a prayer. I did this several times a week for patients who I was advised could not respond. One veteran patient I did this for never visibly responded until one day he opened his eyes and spoke. He said, "I remember your voice!" I heard you praying for me!" He tearfully thanked me and told everyone who would listen. He was a WWII veteran and was serving in the Philippians Dec. 7, 1941 when the Japanese bombed his air base. Very cool guy.
My sister in law, has a sister that has been in a coma for the past 8 years from car wreck when she was 17, she has had 9 pregnancies in that time, all at different facilities and none of the rapists have been caught. To say it's infuriating is an understatement. I grew up with her and she was always the sweetest kid in their house. Truly heart breaking. That family has lost 3 of their 7 kids and 2 of their grandchildren in the past 20 years not counting the one in a coma. All but one died in car wrecks.
9 times?! NINE?! Umm. Either the family is putting her in rat hole facilities or they don't care. I'm not trying to be rude, honestly. But 9? This hasn't been made into national news? There has been a few national news stories on 2 or 3 coma patients in the last few years who turned up pregnant ONCE. And not hearing about this case after 9 times?? How is this not global headlines?
My daughter had just turned 17 when she had to have surgery for a growth around her pituitary gland. I won't bore you with the particulars of why she sustained injury and was then went into a coma. What I do want to say is that as she laid in her bed, could she hear my wife and I. She was one who never backed down from anything. When she set her mind to do something she just did it. She joined ROTC because she big brother had done so. She played the clarinet and flute even thou she had asthma (first chair in both). She was only 4 ft. and maybe 85 lbs. But she was a fireball. My younger daughter confided a story from her ROTC days. She was in charge of a squad and someone said "I can't see you". Her response was " you don't need to see me to hear me". That was Rose. weeks passed with no change, my wife and I stayed with her , one of us always at her side. Then one day we were at the cafeteria as the staff wanted to do some tests. As we were waiting a young girl in a wheelchair and her parents came in. The young girl was limp and thou her eyes were open there was no response. I kept watching her and I wanted so badly to ask her parents "can she hear you?' Or is she screaming inside "why can't you hear me?" "Why don't you help me?" I didn't have the courage to ask. That night my wife went to pray at the chapel. I stayed and talked to my daughter. I knew even if she opened her eyes she wouldn't want nothing short of being whole. Would she be able to hear and see me. While she screamed and pounded her hands against an invisible barrier she couldn't break out of. I talked to her and said "what ever you and God have decided it's fine by me. That night I know my daughter heard me, as a tear fell from her left eye. The next day the doctors said her organs were shutting down and hear heart stopped twice. She had taken the burden off of me that night. I never told my wife what had happened until many years later. I authorized her organs for donation if that is the right phrase to use. Her heart, liver, lungs , kidneys and pancreas were donated to others. She may not have lived to have children of her own but she is now the matriarch of her own family. One day my wife and I will meet her again and she will introduce us to her family. Sorry for being so long winded but maybe just maybe someone who benefited from her gifts or was born because of her is reading this. Love you Rose! Love Mom and Dad, big brother and little sister.
I'm sorry for your loss. That must have been really hard to go through. I can't begin to express how much in awe I am that, faced with such difficulties, you still pulled through to make that authorization. You and your daughter both saved so many lives. God bless you and your amazing family.
A CT scan wouldn't show if her brain was still functioning. It wouldn't have told them that she was awake and had locked in syndrome. CT would have only told them that she might have had a stroke.
OMG, the moment when my 'irreparably brain damaged' in a coma son opened one eye and looked at me- the nurses said oh it's just a twitch. He had LOOKED at me. The docs had said he was going to die. Well, 20 years later he is married with his own tech business. Rotten doctors need to realise that they do not know everything.
Sigh. They don't. But I doubt you know what neuroplasticity is. If he was young and badly enough hurt he could have been full vegetable *for a while* while his brain recovered, and twitches would have been twitches until something kicked his brain online. It all depends on the person and how often they test for function and what tests they use. There is a kid walking around with 10% of his brain + hindbrain, fully functional, because that's what he was born with and being neuroplastic his limited tissue could build a functioning brain. Corvids have the functional IQ of a 7 year old child? Why? Because their neurons are 3x denser than ours. Now think about a Pyroraptor with that brain structure but a brain the size of an apes and grasping hands. I'm not defending doctors. They murdered my gran, killed my girlfriend by negligence on her 22nd birthday and misdiagnosed me which is why I'm on cancer #5..
I once worked in a hospital organizing activities for long term patients. There was an old man over 70. He was paralized and couldn't speak. He had had a motorcycle accident at 19 and was put in a mental hospital for life, until they realized, when he was over 60, that he was locked in. So tragical. 😢 All those years without being able to communicate...
If you ask some of the patients that experienced this, the agony is the first few days or weeks or months adjusting to this. You really can’t tell how much time passes when you’re locked in. But after that, there’s no more fight. As in, it’s not agonizing and terrifying anymore. But I don’t think I’d even want to experience a second of it. I’d rather someone pull the cords.
I’ve had sleep paralysis so many times in my life. When I tell you it is the most horrifying and difficult experience waking up only to not be able to do nothing… If I had to go through that for even a few weeks. I’d rather die.
same here. most of the time I feel like someone is watching me, right next to my bed - sometimes itll seem like someone is having full conversations with me. but I can't move or wake up, no matter how hard I try. sometimes the episodes get so bad that I'm scared to sleep, bcuz the sensations are so vivid and it's kinda terrifying.
@@marianneh.1329 I already have Jesus in my life, thank you😊 I do pray when I feel anxious or fearful, and it does help put my mind at ease. it's quite difficult to pray when you're still asleep - so you can't really pray when you're in the middle of an episode🙃
Same!! I remember I struggled with sleep paralysis almost every time I went to sleep in 2013. When I took naps and when I slept at night. My daughter would tell me that she would hear me moaning in my sleep. It got so bad that when I took naps, I took them on the couch; That way she could shake me so I'd wake all the way up. Absolute torture.
The parents are doomed. They want to keep the baby inside their daughter's stomach even saying if she dies giving birth it would be considered as a good death in this situation. Poor woman, she must be disappointed by her parents.
The daughter probably would’ve preferred to be dead than to live her life immobile. Not saying it’s any better but I’m sure she understood that her parents only want what’s best for the situation considering everything.
The patient was brought to this hospital recently, she has not been there for those 5 years, we don't know why nobody noticed in the facility she was in before... maybe nobody was talking to her or paying attention. She was raped in that facility. And seems like she definitely felt everything, that must have been... I don't even have words to describe it
Early in my RN career I treated a almost 18 yr old teenaged car accident victim on his way skiing- after a few days He awoke from a coma speaking fluent russian. He had been adopted at age 4 in Canada to english speaking American/Canadian parents. They spoke no russian. Unbelievably the russian language he had learned by age 4 was still in his brain. And he could speak both languages fluently although it baffled his parents. They had no idea the russian was still in him. He continued to get better ( he had severe leg fractures) and continued to speak both languages. One of the strangest cases I ever treated. Comas are strange.
I'm not fluent but I took French in school for several years. I've also suffered from various mental health issues, including the occasional catatonic state. Once, I was.. partially catatonic? Idk, that's the only thing I can think of. Anyway, I could only speak French. I could think in English, but the only words that would come out of my mouth had to be French. It was really weird
These cases are actually very interesting for linguistics because they give clues on how language works in the brain. I can’t think of the terms right now but I have learned about this in uni
When I was a student nurse in 1982 I had clinical nursing at a local hospital. One beautiful lady in her 90's was in a coma. I was taught that you should believe that a coma patient could here you. I was working in a 2 bed room alongside another student that was caring for another coma patient. I talked to this lady about the weather, my horses etc as I brushed her long black .( Yes natural black hair in her 90's) Well he made the mistake of loudly saying why do you even waste your breath on her she can't hear you! I told him that he was inappropriate and stop talking! I apologized to the patient for his ignorance and I would take care of everything. I left the room called my supervisor and reported the student nurse. He was removed from his duty. I returned to care for this patient after this brushing her letting know how sorry I was for what happened. After telling her this she she'd a single tear. I didn't realize her family was standing behind me as I was so intent on giving care. They were so happy to see this tear! Family and I started crying happy tears. The unprofessional student nurse didn't graduate.
@@msaijay1153 exactly! Either you have it or you don’t. Nursing students are taught to be respectful and treat all people the same. He knew this if he was at clincals already. He chose to be rude & impatient. That does not make a good nurse!
@@helendavies1326 There was no teaching him. He does not need to be in any type of position in the healthcare field. You NEVER do that to coma patients ever.
@@helendavies1326 Perhaps the student learned compassion from experiencing the consequences of his actions and reflecting on them. Obviously, I have no idea what the student may have learned or not learned.Ixm just pointing out a possibility.
The surgeon on this show is absolute favorite character. Hes so goddamn refreshingly professional. No drama he just takes jobs seriously with insight and calm.
I used to work in a subacute nursing home with patients in vegetable states. 100% they are still there, and it’s one of the most heartbreaking things ever. You can talk to them and see in their eyes they’re there, unable to speak back or move. One nurse thought it’d be funny to tell a patient her sister died until tears started coming out her eyes. Don’t ever leave your family in nursing homes.
I take care of a dementia patient who has very similar symptoms due to the late stage of her disease. She can move her eyes, grind her teeth, scratch and she gets these full body shudders but that's all. She was happy when she heard her husband was moving into our facility, but he was very cold to her and wouldn't talk to her or even look at her and it kinda crushed her. It takes a long time to be able to interpret her very limited physical signs but they tell a story who is in a lot of emotional and physical pain.
@@XxEmoGothOutcastxX there could be many reasons. One that instantly sprang to my mind is that maybe it makes it easier for him to deal with the pain he feels when he sees her like that if he shuts her out. It isn't easy seeing the person you once loved and adored like that. You imagine the moments you did everything with them and think about all the things you haven't done with them and now won't ever be able to. He probably had a very different picture of how they would spend their twilight years together.
My older sister suffered cardiac arrest due to a high fever. She’s been in a persistent Vegetative state ever since. I remember crying my eyes out watching this episode.
I’m sorry for the pain this must cause . I can’t even imagine . I’m still grieving from over a year ago, suddenly loosing my older sister to cardiac arrest & I keep wishing I could’ve saved her . But I guess it just depends on how you look at the end result . You might be thankful that in some form she’s still there and not gone completely, ashes in ocean & a name on a grave stone 😢. I hope and pray for strength & who knows maybe a miracle for you . 💞
@@adelatieluszecka2146 my family decided to pull the plug on her tomorrow morning. It hurts but I just want my sister to find some peace and some true rest. Thank you so much for your kind words. I really really appreciate them.
it's ok it's possible that one day you to could get injured and locked in your body the odds of it happening are very low but it can happen you have unlocked the knowledge of this new possibility congratulations
I like to watch these clips to see how much better of a doctor I am in my bedside manner. "I know it sounds terrible, but at least you haven't lost her," is something I wouldn't say in a million years.
its weird, I randomly remembered this series and thought about this scene out of nowhere and looked it up and someone uploaded it YESTERDAY, what a strange coincidence
We are going through this with my brother, I can't believe there is a TV series about this and the doctors didn't believe that he is alive after his brain stem stroke. I am just glad it didn't take us 5 years to fight for him .
A man who had 'locked in syndrome' wrote about it and how he couldn't move and how deadly the nights were at the hospital because he couldn't swallow, so he could breath. That the nurses weren't there to suction out his mucus sitting in his throat at night! Each night he would pray he could hang on until the morning shift came in so he could breath. I think they were going to donate his organs when a doctor came in who suspected locked in syndrome. The doc asked him to move his eyes but he tried and couldn't, then the doc took his hand and told him to squeeze it. The guy tried with everything he had and barely twitched but it was something, and the doc said the guy was in there! I don't recall the whole story but physical therapy was in there to reconnect the motor skill with the brain. It had to be terrifying! Glory to God that he was found out in time!5
This really does happen. The Diving Bell and the Butterfly is a movie about a man who actually had locked-in syndrome. Doctors thought I had another form of this. Turns out I have a rare disease that puts me into periodic paralysis. It's called Hypokalemic Periodic Paralysis. I can tell you that when I collapse it's frightening because you don't know how paramedics, doctors, and nurses are going to handle you... I am fully conscious and know exactly what's going on but I look comatose. It lasts for hours... even days at times. My body will go into a seizure followed by parlaysis. It's not epilepsy, it's the muscles going into shut down as the body jerks about pretty hard. It's still not fully understood by medical people. That's the frightening part. It limits my life in so many ways. I was left undiagnosed for many years until a genious doctor in Sanfrancisco knew instantly what I had. This clip hits a frightening core with me knowing there are people who have locked-in syndrome and medical people don't even realize it. Even worse... how many people have had their life support removed and they knew it was happening. It's horrifying to think about. Medical machines cannot read a person's consciousness... I believe the body can shut down to such a low level that machines cannot properly evaluate the state of a person in a coma. Doctors and even specialists don't know everything. Even with this rare disease, my neuromuscular doctor doesn't fully grasp how this disease affects me because they're not there all the time seeing what happens. I've learned how to live with it and keep myself as safe as I can. To look at me you would never know... until I collapse. I'm glad there is an episode showing this particular condition. It may be very helpful for someone or even medical people to be aware that this could be a possibillity.
I would wear a medical alert bracelet. The kind that forces medical people to consult a record. I would also visit all hospitals where you live and ask them to start a medical file in your name that has that information. I would have a copy of doctor's note stating I have that condition in my wallet too.
@@roberts5539 I do have a bracelet and a card in my wallet explaining my condition and what to do. Unfortunately, paramedics don't always look for it. I do make sure I tell someone quickly if I'm about to collapse so their attention to it. The last episode I had one of the paramedics frightened me. He told the person who was holding my head and cushioning me from being hurt to just leave me to bang about. He handled me in such a way and he hurt me. I don't know what his problem was but he scared me and there was nothing I could do to fight back. It makes me not want to leave my house in case this happens.
@@happycook6737 I actually do. I have a bracelet and a card in my wallet. It has helped a couple of times. Unfortunately, most paramedics don't look for a bracelet. I have to bring it to someones attentin before I collapse or I'm left at the mercy of those around who would not have a clue. Sadly and scary for me, some medical people don't even care. I've been mistreated so many times it's frightening. I can't speak or move. So I don't often leave my house, espeicially in the winter when I'm more vulnerable. The last time I went out I was unstable and I had to be in town. I did collapse and an ambulance came... it was nightmare experience when the one paramedic mistreated me. I felt unsafe. The hospital where I live has a bad reputation in their emergency department. I am frightened everytime I'm sent there by ambulance not knowing who I'll get or how I'll be handled. So I mostly stay home where I'm safe and secure.
Umm, that would be awful! I heard a coma story, perhaps apocryphal... Person went into a coma at a concert, years later, the same song or musician was played, and they awoke! Also, Zolpidem for temporary awakening from coma is amazing!
@Eric Anonymous Registered nurse? Wow. Awesome. Still, regarding Zolpidem and coma, you don't know what you're talking about. Better do some more registering, nurse.
@Eric Anonymous That's right! You're so smart for a Registered Nurse! Never mind the peer reviewed scientific literature and the years of research - including into the effect of N,N-Dimethyl-2-[6-methyl-2-(4-methylphenyl)imidazo[1,2-a]pyridin-3-yl]acetamide hemitartrate on movement disorders - because it's discussed on TH-cam that means it's "true" for idiots like us, and only smart Registered Nurses like you know it's fake. Or a joke. Or a lie. The scientific community may say more research is needed into these areas, dumb TH-camrs like me believe it is a miracle cure for anything, but smart RNs like you know it's all made up! Can you let us know where you are an RN, so we can avoid that place? Thank you, best wishes!
@Eric Anonymous What are you even talking about now? You disputed my original comment about Zolpidem. What I stated is a fact. Got news for you bud, like many of those I've met along my path - either in school to become a nurse, or already a registered nurse - you aren't too bright overall. Don't get me wrong, I'm sure you're great at paperwork!
imagine she was in that hospital all this time and the day she supposed to go to different hospital the doctors suddenly do something, i mean thats how you do bussiness lmao
Lol yeah but in this case she was not in that hospitals all this time she was brought in to that hospital because she was sexually attacked in her long term care facility. She's lucky she's brought to a good hospital with doctors and nurses that cares.
Everyone talking shit about the doctors- the backstory is that she was in a kind of nursing home place being "taken care of" for all those years. She only was transferred to the hospital after her pregnancy was discovered.
About 40 years ago, I experienced two episodes of sleep paralysis in one night. You wake up, but can’t move - at all. It only lasts a few moments, but it feels like an eternity. The first episode was terrifying, as I had never experienced it before. The second time was unsettling, but I knew it would pass, so not so frightening. I’ve never had another episode since. I can’t imagine 5 years in such a state of existence.
I go into a coma like state after I have seizures, sometimes lasts for hours. I can't move my body or open my eyes but I'm fully to semi conscious. Time does feel shorter and things feel hazy but I'm in there. My body gets extremely numb and when it goes on too long I have a hard time remembering my name and things. None of my Dr.s have taken it seriously or helped me. It's awful
Oh, I left a comment above telling of my experience. What you talk about sounds similar to what I deal with. It took decades to get a diagnosis. I will collapse, go into what looks like a seizure, where my body, muscles are jerking about, then my body shuts down into paralysis. I am conscious, but I cannot move. It's frightening. Doctors were baffled and even dismissed it as psychological, which greatly angered me knowing full well it's not! I finally had a genius doctor in Sanfrancisco give me the answer. Hypokalemic Periodic Paralysis. The paralysis will last for hours, and at worse, even days. It's a very rare disease, but there are ways of dealing with it. It is not curable. Look it up and see if it possibly looks like a match for you then ask your doctor to look into it for you. I requested a neuromuscular doctor who did an extensive nerve conduction test... 2 hours of exercising a muscle... it was conclusive. Another test is the yucky glucose drink... which can blow your system out fast... Sugar is bad for this disease bringing on an episode very quickly. There's a lot to know about it, but investigate it. It may be a helpful clue for you. Good luck.
for this show: she came from a different facility of which she was assaulted at so she didn’t originally come in to this hospital so there was no reason for them to check. she was being treated for her pregnancy from the assault i believe.
That's why as a healthcare practitioner, showing empathy is so important. It's better to watch what one says around unconscious patients. They may be able to hear. I remember seeing an unconscious patient who would always move her fingers each time her mum sang a particular song.
My mother was in a coma for a month with brain cancer. Remembered everything when radiation shrunk her tumors for three months before she died. We didn’t believe her but she repeated back jokes we said almost four weeks earlier about the priest who gave last rights.
Locked in Syndrome is real and rare. A famous French fashion editor by the name of Jean-Dominique Bauby had a stroke at 43 and got locked in. There's a bio-pic about him and his experience called the Diving Bell and the Butterfly. Great film and encouraging message.
One of the reasons I believe playing a patient's favorite music around them is a very gracious thing to do, never knowing their condition. If I were trapped in my body, music would be my only mental escape. Maybe some audiobooks too. Wow. Worst possible nightmare.
I’m not a nice fan to you I’m clicking a thumbs down is it happy are you really happy that I press the thumbs down yay I am so happy that I press the thumbs down because like🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕 and my name is my if you don’t know my name my name is Maya
There’s a book turned movie called Divingbell and the butterfly. True story about a man with locked in syndrome who wrote a beautiful, poetic book. Understandably short but amazing. The actor won an Oscar too.
Imagine being awake for five years and you can’t scream for help or do anything about it !!!! The hell she was put through ! I’m glad they found out now rather than never but damn five years is five years to long !
Already had such a patient. Wish him a good morning, and he'd love you for it. Only some nurses realised it, but who listens to some stupid nurses like me? Wishing him a good morning every day, made him really active. Same with another patient. The machines told me he knew, who was here, his breathing changed, his heartbeat changed. When I shaved him, he tried to move his head to comply. I told him, that I think he is awake, and he started to cry. But the docs: He's comatuous. No, he is locked in. A neighbour once was said to be in coma. After waking up, he told the nurses what they had done or said. He just felt like being not in control of his brain, that's how he described it.
I've gone through it, had a nurse notice and was overruled. I fought so hard to move.... it made my body shake cuz I couldn't control the muscles long enough... long enough to tremble though. You need to make the doctors pay attention. Look at all the stories in here, sooo many people. They say as many as 25% are aware. I know I was.
I know what this is like from a very different cause. When I was around 29/30 yrs. old I got red tide poisoning from eating muscles on a beach that had not been posted. I spent several days in the hospital. Red tide poisoning acts like curare. Your mind is clear. You can hear everything going on around you. Every conversation. While they discussed my chances for survival, I heard. You cannot blink. you cannot move ANYTHING. you cannot make a sound. You cannot respond in any way to let them know you are there. Inside my head I was screaming, trying to let them know, but not a twitch. Machines are keeping you breathing (your heart, lungs and other organs can shut down). The third or fourth day (lost track) I started to come back but it took many weeks to control any of my body movements and learn to walk again. Horrible experience. I'm 70 years now and never ever forgot that feeling of helplessness.
Thank you for this part. When I was in a coma, I knew and could hear. I can't explain everything but I tried to tell them it's hurts stop please .. this does indeed happen... prayers for all of you...
As a woman, my biggest fear is the inability to defend myself, to fight. This scenario is it, being completely aware of what is happening but unable to even move an inch, unable to scream, to do something is the worst thing that could happen to anybody. What an awful thing to happen.
My grandmother was in a coma for 3 weeks. Said she could hear everything being said and going on. She couldn't move or open her eyes and was terrified she'd be buried alive. That was in the 1930s
i was with a friend who was comatose for days before he died, but on his last day when i sang his favorite songs to him, he cried. one tear, rolling down his cheek. it was winter solstice, and my husband said, look at the last ray of sunshine setting her hair on fire.
I remember after my knee surgery, my 3rd day post op, I was literally paralyzed from the pain. Nothing compared to this, but I know to some extent what it's like to be trapped in your own body.
I had a colon ruption and was suffering from a heavy sepsis, so I was I put into an induced coma for 20 days. During that time I had extreme halucinations. I also suffered from CIP, where the docs weren't sure if my brain was affected. so when I was woken up, I was paralized from neck down, but I could follow orders to move my eyes, and my tongue. The following days were very hard, because I couldn't move, nor talk, and care takes didn't always check, looking in my face, to see if I was awake or listening. It got better over time, and I almost fully recover. But the time in the ICU left a trauma, which might need years to heal.
i learned about locked-in syndrome in my neuroscience course today. my textbook says that about 90% of patients die within 4 months of onset. they were right about symptoms and treatment, but it’s so sad to know that a family with a similar case could think they have a chance with their loved one, but they don’t :(
@@urthboundmisfit what i’m saying is that this is a fictional tv show that might give a real family hope when there isn’t. it’s just sad to think about
The life expectancies of stable LIS patients may be very long; 83 % of patients live 10 years, and 40 % live 20 years. Also most LIS patients die from withdrawal of life support since most of them can't breathe without ventilators and doctors don't know they're conscious. They choke while being very conscious of everything and while they probably hear their doctors and family talking about donating their organs. Seriously f'ed up. I thought brain scanners would show they are not in a coma, isn't there a difference between a comatose patient's brain activity versus a conscious person's?
@@Ariana-wv4pf There is a difference in the brain scans! Comatose can show zero or minimal activity, while LIS is nearly full brain activity (if I’m remembering correctly!). Obviously take my words with a grain of salt, as I’m not yet a professional in my field! But my data and research in my studies support what my original comment said :) Thank you for your input as well!
When I was intubated, they are supposed to push the sedative/tranq or ketamine in your iv first and the the paralytic (rocoronium) so you are asleep when they temporarily paralyze you (they need your throat muscles totally lax). However if you have obstructive sleep apnea this is very dangerous so they often do it on reverse. None of this was explained to me. For whatever reason, I was awake but paralyzed while they incubated me but it continued. I heard them talking abput me and stuff (nothing inappropriate) but as if I wasn't there. I could not move. I became terrified because I was told I was just being put asleep. I could see and put my whole force into trying to move a toe and it felt I ternary like I moved but I could see it didn't move. I tried to move my eyes in Morse code but no one was looking at me. I did not know if something had gone wrong or if they were going to do things to me that hurt that I should be asleep for. The panic was terrible. Finally I realized I had absolutely no power. I told myself "say your prayers and go to sleep" and I tried to sleep. The next thing I woke up intubated hours later. I at first couldn't tell I wasn't paralyzed anymore because my wrists were tied to bed with foam mitts over my hands and when your on a vent it feels like you cant breathe at first because you actually aren't breathing, you are just getting air. I was able to blink SOS but no one noticed. They stood talking at me and I kept moving my hand. The one female Dr. took mitt off abd I knew the alphabet in ASL so I started to spell. None of the 4 other Dr's surrounding me caught it but she started spelling what I signed. Suddenly the other Dr brought me a pen and paper. I tried to talk abput being locked in during the treatment but they kept telling me it wasn't true. Then suddenly she realized what I meant. "He means from the Rocoronium! For some reason the ketamine didn't work right away even though it was only given seconds later." After that they made sure I was well snowed with opiods and tranks lol until I got of the vent a couple days later. I was awake and somewhat mobile but in hospital for a wk and yet all I could think about was those 5 minutes I was paralyzed. It was all I could talk about and would tell any nurse or staff person who would hear me. Finally one (I think a social worker) explained to me that I was traumatized and probably needed to tell people due to that and that was OK it would probably take up less space in my brain after some time but if it hadn't in 3 mos I should seek help from a psychologist. Even after I got out it was something I talked about for weeks. It seemed like the most significant thing that had happened to me there ; but only to me. I later learned on a internet forum for nurse n Dr anesthesiologists that it was the reversal of order in which protocol drugs are given to patients with sleep apnea. Someone explained a post to studebts saying if they have apnea to do it that way. A student response question was wouldn't it cause psychic trauma? The author replied with math saying the chances were less than 3% there'd be consciousness for a few min and if so the patient would never remember. I wrote a reply saying how it happened to me. I won't suggest they warn people the possibility when they do it,because that might create more fear, but I do think they should say after they think you're out "if you can't hear me don't worry it can take a few minutes for the tranq to hit you you'll be out soon." I mean if they are intentionally pushing the Rocoronium before the Ketamine, they should at least say that. Anyway sorry so long the point being being locked in for 5 min was among the most traumatizing experiences of my life, and I have serious trauma, assaults, childhood abuse; etc that I've later been diagnosed with PTSD for. But just 5 min of this was enough to put it on that level of trauma for months.
I felt like this when I was "put to sleep" for a procedure to relocate bones in my broken leg. I felt awake but I couldn't move. And waking up I was crying because I couldn't move or talk. Tears were falling from my eyes but no movement, no control
That's why I want to leave a note that if I'm in a coma longer than 2 years, just off me. Too many people get attacked, because there's nothing you can do about it, asleep or awake. I remember seeing Kill Bill for the first time as a younger teen, and just learning that this happens to coma patients, and THAT was the one of the most scary and unsettling things in all the Kill Bill movies to me. Just saying.
I had a friend who had a motorcycle wreck and was in a coma for 6 mos. He said the docs were all shocked when h woke up. He even spoke to several groups of people with family members in coma to encourage them and share his experiences.
I remember reading a story in the 1970s of a young woman who had been in a coma for a while, but actually she saw and heard everything, she heard her doctors telling her parents they would advise them switching the machine off, she remembers screaming inside no I’m here. Her parents said no and a nurse saw a tear in her eye. She actually got better after this.
My $0.02: unfortunately even in this time and age, standard measurements taken for EKG are done via electric sensors: these capture electric signals sent throughout the nervous system by the brain and their feedback. In these medical cases the damage to the brain stem and/or cerebellum does not allow for signals to pass through in sufficient meaningful levels if at all, resembling brain death or lack of functions and - to the untrained eye - resemble coma. Only these tests occasionally work (e.g. vertical eye movement, adrenaline/dopamine abrupt level shifts): when locked in gets in thesis or diagnosed usually more invasive yet precise nerve probing follow (e.g, cathodes insertions), eMRIs, Magneto Acousto Electrical Tomography with magnetic induction for conductivity reconstruction related tests to capture and understand the damage and its location and map functional areas amidst the damage. The good news is that lately medicine is advancing rapidly to the point that soon we will be able to shunt and create nervous bypasses, and eventually resume connections that were previously broken actively improving prognosis on locked in/semi paralyzed and paraplegic patients
Even with medical advances: the medical community is locked into standards of operations. There's still plenty that gets missed, ignored, over looked, of fully thrown out.
IN MY VIEW The brain is amazing. I have always believed people whose bodies can't respond, do hear what goes on around them. We tend to "forget" to talk to these patients and go about our own lives leaving medical staff to take care of their medical needs.
If we could communicate telepathically or with our thoughts, no verbal but mentally audible, would you listen to the plea of the one in coma if he or she asks for euthanasia or being let go and pass away....
Same as for people not in come as far as I'm concerned. I would have to evaluate their quality of life, if there is any possibility for improvement, and how much they suffer are they in any pain... For coma patient I would guess they are not in any physical pain, but have very low quality of life. I would therefore investigate if there is any hope for improvement, and if there is none, I would leave that decision to the patient. Ultimatelly - I'm not oposed to help someone to die, coma or no coma, if I see they have terrible time and there is no hope for improvement.
Oh, PS, regardles of coma, I would also evaluate how much time I'm taking from someone. Is it deceades, or are they gonna die in a month regardless what I do.
To clarify - it was not the dad who did it. It’s not officially revealed who but it’s implied early in the episode it was one of the careers in the facility. Also the reason the neurosurgeon took interest was because the previous care facility had clearly not taken good care of her (the assault) so he wanted to double check everything and make sure in the diagnosis she was given by another doctor. It was not him who gave the false diagnosis.
Yes this was a real case. In a Long term care facility. A coma patient got pregnant by a male nurse. All the employees were DNA tested and one came back a match
I think locked-in syndrome is one of the worst things that can happen to a person. It's worse than snapping your spinal chord and being paralyzed from the neck down. As absolutely devastating as that injury is, at least you can speak and communicate. Have you ever had sleep paralysis? If you have, you can probably remember how scary it was, even if it only lasted for a few minutes. Imagine being in that state, for weeks, months or years on end. That's as close to a living nightmare as I can imagine.
This is reminiscent of a book and later film called Johnny Got His Gun. If I remember, Johnny was a soldier who lost his arms, legs, sight, and all movement in combat. He was fully "aware " of what people around him were saying, but couldn't respond in any way.
Yes, that was a haunting story. He managed to somehow communicate with a nurse and begged her to let him die by withdrawing one of the tubes. Then the doctors came in and she couldn't do it.
If I remember correctly he even lost his jaw, and he was able to communicate to the military with Morse after over a year I think, asking to be killed, they flat out refused and left, the nurse tried but was stopped when a doctor came back in, aaand that's the end of the film if I remember correctly
"She heard me saying 'wont you just die, and let us live our lives? You're alive, but you're not living; yet you're killing us! Just die already! DIE! DIE!'?" "Yes ma'm. My years of experience allow me to state, unequivocally, she heard you."
That’s gotta be one of the most terrifying things to ever experience. Add that to my list of medical fears, right next to waking up during an operation… 😢
Don't care what anyone says locked in syndrome has to be the worst thing ever just being trapped like that must be horrible to experience
I don't know compared to alzheimer, feel like you are losing yourself, but it should be pretty close to the top.
@@jaimeduncan6167 With Alzheimer's, you are most likely not aware of it
Alzheimer's eventually becomes a peaceful way to go.
you're practical a vegetable unable to do anything.........its a fate worst then death at least one of em
@@jaimeduncan6167 not even close.
House would have figured this out by himself in three days.
Doesn’t he punch a patient in a coma to see if they are faking ?
🤣🤣🤣🤣🤣🤣
3 hours lol
Yes he would have but she would have died 5 or 6 times during that time !
@@anthonygilbert6878 yeah but it would have been to a lot better soundtrack.
As a nurse, I’ve seen this once in a traumatic brain injury patient. I was working one day and this patient was awake but couldn’t talk, couldn’t move but you could see her eyes moving and acknowledging your presence. She was crying but her lips weren’t moving. It’s very devastating to see someone suffer like that.
This is heartbreaking.
How do you console somebody in this situation? If you don't mind me asking 😥🙏🏻
It makes me wonder how many other people with the same syndrome ended up having the plug pulled on them.
Oh wow 😥
@@bioshawna consistently talking to them might help
As a nurse we are always told to watch what we say around comatose patients.
There was a story on tv about a coma patient who woke up years later and told his family he hated them. He had heard all the horrible things they said about him and him in the coma and how if he died the insurance money could be split. The only one who truly loved him was his baby sister who was only 15 when he went into the coma. The only reason he was alive was because the sister would freak out on them every time they spoke about pulling the plug. I think the ending was he left and never spoke to them again and took the baby sister with him. If that’s true story that’s just sad.
And end-of-life patients in palliative care. Both my parents needed hydromorphone the last couple of days at the end of their lives. We surrounded them with the music they loved, talked to them about happy memories, chatted, and laughed among ourselves in their presence. On the advice of palliative staff, we never discussed their condition, treatment, or prognosis while near them. The staff told us that "hearing is the last sense to go." Both of them passed very peacefully. ❤❤
@@Qui7422 0
Exactly. I always talked to my comatose patients as if they could hear me, and told doctors to speak outside their room.
They do hear you!
I'm a nurse, and so many never adress people with coma or people with last stage of Alzheimers. But as being specialized on respirated people: You can see who is there, just by looking on the monitors. You can see whom they love and whom they hate. Or what music they love and what they dislike.
While the mom was happy that her daughter listened to their voice, the dad slowly realized that she was conscious when she was attacked... so heartbreaking...
Omg whaa????
Damnnnn
The mom also realized that when she had talked shit about her daughter and her daughter heard her, I believe saying that she would rather her daughter was dead then in a coma and the fact that she was in a way happy her daughter got assaulted because now she’d have a grandchild because the girl is pregnant
@@jamie3860 no she was assaulted at a different facility by somebody who worked there, but the parents wanted the keep the child she was pregnant with
@@braedensullivan9402 I don’t think they ever addressed that part xD, idk My mom watched the show and I only caught bits & pieces but i remember hating the parents in this episode
Locked in syndrome scares the living shit out of me! I watched a story of a woman who had it and was stuck for years when she was a teen. They too thought she was in a coma until a medicine they'd given her to treat something else made it so she could blink and move her eyes in all directions. She fully recovered and became an Olympic gold medalist. I believe in swimming.
@Kelly McDaniel Victoria Arlen. She got "locked in" at age 11 and stayed that way for over 4 years. Her story is crazy,terrifying and inspiring!
I really see the problem is leaving people in coma’s for YEARS!! Like no! That is not living. They are not living. If that is my only life lying there, let me die.
@@perfectlyimperfect2368 "First, God is ONE GOD who can divide himself up into THREE. On that we agree. But, I believe that those three can be called three "persons". On that we don't agree. It's clear to me that the reason you disagree is because YOU define the word "person" as only applying to one single individual. You can do that. Help yourself! Now, you begin by running to the dictionary to do so and make your point. Yet, you don't give the definition of the other word "TRIUNE" in the same dictionary, which states... "TRI'UNE, adjective [Latin tres and unus.] Three in one; an epithet applied to God, to express the unity of the Godhead IN A TRINITY OF PERSONS." Even the DICTIONARY ITSELF says that God (THE GODHEAD) can be a "trinity" of PERSONS (plural). He can be ONE UNION and still can exist in three separate persons! Will you accept THAT dictionary definition? If not, then you can't try to prove your point from the first definition you gave. For you'd be denying another dictionary definition on this very subject, and that, then, would make your argument null and void!!! If you are going to use the dictionary to prove something, you have to use ALL the pertaining definitions to this subject. Will you do that, or IGNORE it? Second, we are made up of three, but yet we are one. You agree on that point. But, we can also have our three parts divided. For example, When I die, my soul goes to heaven. And, someone seeing me there for the first time could say: "Who's that PERSON?" While at the same time here on earth, someone looks in my casket and asks: "Who's that person?" Am I now two completely different Human Beings? Two Robert Breakers? Or am I the same Robert Breaker, but I'm just manifested as two different "Persons" in the eyes of others. One, in the Spirit world, and the other in the Physical World? No, I'm still ONE Robert Breaker. But, in that illustration, I would be manifesting in two different ways, and would be viewed as two separate "persons." My soul and spirit would be in heaven, while my body would be here on earth. How can you not get that??? The Dictionary shows it clearly! The Bible teaches it clearly! God is ONE GOD in three! And, those three are ONE! WE can call them PERSONS, as one is viewed as a FATHER, the other is viewed as a SON, and the other is viewed as the SPIRIT of both. That does NOT make three different gods! That's a ludicrous argument. Third, you quote: "God is no respecter of Persons." Clearly that is speaking about HUMAN BEINGS in the context of slavery and is not referring to God Himself and Him in three persons. You are TWISTING THAT VERSE OUT OF CONTEXT! That can NEVER lead to anything good! So, I suggest you stop following the heretical man you follow and get back into the BIBLE. Otherwise, you're going in a direction that I cannot follow! For you are departing from the SCRIPTURES and what they teach, as well as the DICTIONARY, and as well as what the TRUE CHURCH (not Catholicism) has believed for almost 2000 years. God is ONE GOD. He consists of three PARTS. God made man (Adam) in his image, and we also consist of three parts. We are TRI-PART beings, as is God. But, it's NOT WRONG to say that God can manifest in three separate "persons" and still be ONE GOD. I proved that from the BIBLE, from the DICTIONARY of the English Language, and from History. You can decide to deny ALL THREE if you like. But, I can't go along that path with you! I will be praying for you, though, that God will OPEN YOUR EYES to the truth! Sincerely, Robert Breaker " - He helps a lot to start to understanding the bible, but unless one can agree with him, one must read the whole bible themselves.
@@theharshtruthoutthere ummm I think you replied to the wrong person since my post is about locked in syndrome not religion.
@@perfectlyimperfect2368 neither is my comment about religion. ITS ABOUT REALITY.
I remember a radio interview with a guy who had this condition for a few years and then recovered. He told quite a funny anecdote about how the doctors would do their rounds in the morning and check on him and notice that his eyes were red. For months they tried to work out what was causing it, trying every treatment in the book for every eye condition they could think of, to no avail. What he couldn't tell them was just before their visit every morning, a nurse wiped his face with a soapy washcloth and got soap in his eyes.
Hahahah glad he recovered. That story made me laugh. Poor guy tho
Why would they use soap for the face, wtf? Just water is enough for the face, it's not like he is coming back home from a coal mine
@@realglutenfree definitely needs more than water
I’m a nurse aid and they teach us to only wash the face with water, no soap! I always thought it was not enough though
I rarely use soap on my face.
My brother heard about locked in syndrome when he was like 13, and from that day on, he randomly reminds us that if he ever gets locked in, he wants someone to just end him. He's suffered with sleep paralysis since he was young and says he couldn't imagine anything worse then being stuck like that. He's 28 now and it's still his biggest fear.
I had back surgery that left me with a spinal cord injury. I was on some pretty strong drugs that worked through my brain to try to help the nerve pain, and I had sleep paralysis. It was horrible so I can sympathize with your brother. After changing meds I no longer have it. I believe that may be what children with night terrors have and they are usually too young to describe it.
My husband had great results with magnesium supplementation for his sleep paralysis. Your brother may find this info useful. He also makes sure to keep a very consistent sleep schedule as changing his sleep schedule too much can trigger an episode.
I know exactly how he feels! I hope he doesn’t experience that anymore.
I would want that too but sadly you can’t do that. Assisted suicide is illegal.
i´m of the same mind as your brother . being alive and nothing able too do anything is my description of hell.
My grandfather always taught us that you treat unconscious people like they can hear you, because of his experiences when his father was dying...and we treated him that way when he was dying, and at the right moment, he was able to make it clear that he heard us.
Always treat unconscious people like they can hear you. It's worth it!
Same thing happened right before my Mom passed away, I was holding her hand and was trying to let go but her hand wouldnt let me. I knew then that she was still there then a couple hours later she wasnt.
I agree!❤
Its not magic its Cytokine storm in practice if your body feel it diing it relese everything and im mean everything all parts of imune system activate all at once all glands in your body relese what they have in last ditch efort to save you. Lot of endorfines and hormons and adrenalin is flooded into your body.
This kick is in loads of the time enought for even worst cases to wake up for last time before they die.
This relese come whit masive cost to your body Cytokine storm is practicali NUKES going on inside your body and since you are already near death when the hormones endorfines and adrenalin worn out it will be enought to overwhelm your already week body.
This mechanism evolved over existence of life and if you are healty individual you can even survive black death or any other sicness whit out diing % is small but by relesing everything its lot of the times enought ti kill the infection and if your body can survive the after math you will live.
I'm glad they only waited five years to check this. Great work by the doctors.
That what I was thinking . Why they didn't do this test 5 years ago. lol
She wasn’t diagnosed At that hospital. They only took her there when they found out she was pregnant. She was being raped by a staff member at another facility. They were only able to correctly diagnose her when they brought her into that hospital.
From what I've heard, her parents paid someone to rape her so they could have another daughter.
@@moonlitskylight5740 woooow, really????? If so...those are some scummy parents. If they wanted another daughter they could have just paid a surrogate.....yikes 😬
This might be a new result from research.
Spinal injury is very tricky. I was left for dead on the bed taken off machines. Hearing my brother screaming at the doctor woke me up. The medic looked at me like I was a ghost. I was later in bed paralisis for 9 months then after able to sit and go on weelchair. I only developed strength to use crutches after 18 months. Now I walk unassisted. Every time I had to get an adrinaline super charge to push next stage. Yes stimulus is the only way back from that loophole.
I am so sorry that this happened to you! Glad your ok!
That’s crazy!!! Hope your ok from the ordeal
BEST COMMENT EVERRR WOW YOU ARE AMAZINGGGG !!!!!❤️
Glad you’re better xx
What happened to cause this to happen to you ??
I can’t imagine anything more horrible than being assaulted while being aware of everything but also unable to move, scream or defend yourself. The saddest thing about this is that this has most likely happened to someone with Locked in syndrome somewhere in the world. I feel so incredibly sorry for that person.
yeah being sexually assaulted and people thinking your in a coma when your awake and experiencing it all unable to fight back or say stop or no
This is based off a true story. A woman in a 10 year coma suddenly gave birth to a baby. I was shocked when I heard this. So disgusting.
I served as a VA Hospital Chaplain for over 20 years. I often visited comatose patients at bedside and would identify myself and then say a prayer. I did this several times a week for patients who I was advised could not respond. One veteran patient I did this for never visibly responded until one day he opened his eyes and spoke. He said, "I remember your voice!" I heard you praying for me!" He tearfully thanked me and told everyone who would listen. He was a WWII veteran and was serving in the Philippians Dec. 7, 1941 when the Japanese bombed his air base. Very cool guy.
Beautiful story!
It's SO important to care for the mental health of comatose patients. So many are aware.
so cool, an awesome thing to be involved in, for him to know you
Aww. That's actually the best thing one can do for another--to pray for him/her, especially if you do not know each other personally. 🥺❤️
@@herbenevolence_oxo Really??? - That's the best thing you can do? Methinks not.
Didn't realize Locked-in syndrome was a thing until today. New fear unlocked.
I see what you did there😁
@@Poppy_pop Haha! I didn't notice that until you said something! 😄
@@HealthyandLovingLife when you are witty without even trying! Can't relate😅
Ikr lmao
Watch the "Butterfly and the Diving Bell"
My sister in law, has a sister that has been in a coma for the past 8 years from car wreck when she was 17, she has had 9 pregnancies in that time, all at different facilities and none of the rapists have been caught. To say it's infuriating is an understatement. I grew up with her and she was always the sweetest kid in their house. Truly heart breaking. That family has lost 3 of their 7 kids and 2 of their grandchildren in the past 20 years not counting the one in a coma. All but one died in car wrecks.
That is horrible.
The family should put cameras in the room . Really the hospital should of those that can’t communicate or move .
Oh my gosh this is so heart breaking .
9 times?! NINE?! Umm. Either the family is putting her in rat hole facilities or they don't care. I'm not trying to be rude, honestly. But 9? This hasn't been made into national news? There has been a few national news stories on 2 or 3 coma patients in the last few years who turned up pregnant ONCE. And not hearing about this case after 9 times?? How is this not global headlines?
DNA. Shouldn't be hard to find out who did it.
Truly a fate worse than death.
Hiii, i saw this like 2 years ago. But havent seen the episode or continuation. Can you tell where it is?
Literally just commented this as well. I truly believe this.
Happened to my dad, so I confirm that is worse than death indeed.
Honestly that would've been torture
@@taynahibanez9952 omg is he okay??
My daughter had just turned 17 when she had to have surgery for a growth around her pituitary gland. I won't bore you with the particulars of why she sustained injury and was then went into a coma. What I do want to say is that as she laid in her bed, could she hear my wife and I. She was one who never backed down from anything. When she set her mind to do something she just did it. She joined ROTC because she big brother had done so. She played the clarinet and flute even thou she had asthma (first chair in both). She was only 4 ft. and maybe 85 lbs. But she was a fireball. My younger daughter confided a story from her ROTC days. She was in charge of a squad and someone said "I can't see you". Her response was " you don't need to see me to hear me". That was Rose. weeks passed with no change, my wife and I stayed with her , one of us always at her side. Then one day we were at the cafeteria as the staff wanted to do some tests. As we were waiting a young girl in a wheelchair and her parents came in. The young girl was limp and thou her eyes were open there was no response. I kept watching her and I wanted so badly to ask her parents "can she hear you?' Or is she screaming inside "why can't you hear me?" "Why don't you help me?"
I didn't have the courage to ask. That night my wife went to pray at the chapel. I stayed and talked to my daughter. I knew even if she opened her eyes she wouldn't want nothing short of being whole. Would she be able to hear and see me. While she screamed and pounded her hands against an invisible barrier she couldn't break out of. I talked to her and said "what ever you and God have decided it's fine by me.
That night I know my daughter heard me, as a tear fell from her left eye.
The next day the doctors said her organs were shutting down and hear heart stopped twice. She had taken the burden off of me that night.
I never told my wife what had happened until many years later. I authorized her organs for donation if that is the right phrase to use. Her heart, liver, lungs , kidneys and pancreas were donated to others. She may not have lived to have children of her own but she is now the matriarch of her own family. One day my wife and I will meet her again and she will introduce us to her family. Sorry for being so long winded but maybe just maybe someone who benefited from her gifts or was born because of her is reading this. Love you Rose! Love Mom and Dad, big brother and little sister.
She may not have kids but she was the gift God send to you and your wife to bring joy and to learn from her as well!!!
I am sorry :(
Thank you for sharing. Yes, now she is a matriarch of her own family, and one day you’ll meet again.
I'm sorry for your loss. That must have been really hard to go through. I can't begin to express how much in awe I am that, faced with such difficulties, you still pulled through to make that authorization. You and your daughter both saved so many lives. God bless you and your amazing family.
This is very painful :(
I love how the parents experience joy, shock, sadness, relief, anger, and guilt- all in a minute.
I literally gasped when she moved her eyes. 😂 I was shocked to be that emotionally invested off a five minute scripted clip. 😂
Me too. I was crying with the mom.
Same!🤣
and then i just kept watching! lol
@@polyvoreo6687 she was crying out of guilt. She paid a man to have sex with her daughter because she wanted grandkids
@@jucesantos8326 I just watched the entire episode and this is never said.
Great sense of urgency on the doctors part, it only took 5 years to get a CT scan on the head of a coma patient. 10/10
Seemed like she was recently brought to them and was at another facility with other doctors beforehand.. at least these guys caught it.
Yeah, also seems like someone at the previous facility violated her body and made her pregnant…
A CT scan wouldn't show if her brain was still functioning. It wouldn't have told them that she was awake and had locked in syndrome. CT would have only told them that she might have had a stroke.
Ct doesn't show that she has brain activity. An EEG would
Pretty sure it would have to have been an MRI
OMG, the moment when my 'irreparably brain damaged' in a coma son opened one eye and looked at me- the nurses said oh it's just a twitch. He had LOOKED at me. The docs had said he was going to die. Well, 20 years later he is married with his own tech business. Rotten doctors need to realise that they do not know everything.
Omg. I am so hsppy this ended well
Sigh. They don't. But I doubt you know what neuroplasticity is. If he was young and badly enough hurt he could have been full vegetable *for a while* while his brain recovered, and twitches would have been twitches until something kicked his brain online. It all depends on the person and how often they test for function and what tests they use. There is a kid walking around with 10% of his brain + hindbrain, fully functional, because that's what he was born with and being neuroplastic his limited tissue could build a functioning brain.
Corvids have the functional IQ of a 7 year old child? Why? Because their neurons are 3x denser than ours. Now think about a Pyroraptor with that brain structure but a brain the size of an apes and grasping hands.
I'm not defending doctors. They murdered my gran, killed my girlfriend by negligence on her 22nd birthday and misdiagnosed me which is why I'm on cancer #5..
Yeah, those rotten doctors who provided care to your son while he was in a coma, how dare they
@@RH-uc4sd It's their job. Big fucking whoop.
@@juntsmoka and they often do a very poor job tbh
Example: @Chahlie story
I once worked in a hospital organizing activities for long term patients. There was an old man over 70. He was paralized and couldn't speak. He had had a motorcycle accident at 19 and was put in a mental hospital for life, until they realized, when he was over 60, that he was locked in. So tragical. 😢 All those years without being able to communicate...
Oh my god
He's living in hell 😔
Over 50 years that’s torture
That’s horrible
If you ask some of the patients that experienced this, the agony is the first few days or weeks or months adjusting to this. You really can’t tell how much time passes when you’re locked in. But after that, there’s no more fight. As in, it’s not agonizing and terrifying anymore. But I don’t think I’d even want to experience a second of it. I’d rather someone pull the cords.
I’ve had sleep paralysis so many times in my life.
When I tell you it is the most horrifying and difficult experience waking up only to not be able to do nothing…
If I had to go through that for even a few weeks. I’d rather die.
same here. most of the time I feel like someone is watching me, right next to my bed - sometimes itll seem like someone is having full conversations with me. but I can't move or wake up, no matter how hard I try. sometimes the episodes get so bad that I'm scared to sleep, bcuz the sensations are so vivid and it's kinda terrifying.
I agree!!!
@@marianneh.1329 I already have Jesus in my life, thank you😊 I do pray when I feel anxious or fearful, and it does help put my mind at ease. it's quite difficult to pray when you're still asleep - so you can't really pray when you're in the middle of an episode🙃
I'll come and see you tonight..
Same!! I remember I struggled with sleep paralysis almost every time I went to sleep in 2013. When I took naps and when I slept at night. My daughter would tell me that she would hear me moaning in my sleep. It got so bad that when I took naps, I took them on the couch; That way she could shake me so I'd wake all the way up. Absolute torture.
The parents are doomed. They want to keep the baby inside their daughter's stomach even saying if she dies giving birth it would be considered as a good death in this situation. Poor woman, she must be disappointed by her parents.
😅 Not the stomach
The daughter probably would’ve preferred to be dead than to live her life immobile. Not saying it’s any better but I’m sure she understood that her parents only want what’s best for the situation considering everything.
@stonedwalljack9276 They also think the daughter either ate a baby or babies really do grow inside stomachs, so...
@stonedwalljack9276the dad assaulted her
@citrusangel9488 yeah I had the same thought when he brought it up
The actor who played the mother is just brilliant.👏
She's in a number of more supportive roles like this, and she's always really phenomenal.
👌🏻 chef’s kiss lmao
I've seen her on a lot of shows including Law & Order. She's a great actress but I forget her name. 😆 LoL
amazing actress
Dad, too. You could see the slow progression as he realized what she went through
Well, asking someone to move their eyes up and down is a very delicate procedure, so I can see why they waited 5 years before doing it.
The patient was brought to this hospital recently, she has not been there for those 5 years, we don't know why nobody noticed in the facility she was in before... maybe nobody was talking to her or paying attention. She was raped in that facility. And seems like she definitely felt everything, that must have been... I don't even have words to describe it
At least they discovered that the whole "blood letting" thing was a bad idea.
Lmaoo
Biggest question is why they specified from side to side. Like just ask her to move her eyes?!
@@arianebolt1575
The girl could've still moved her eyes however she could. She should've done that.
Early in my RN career I treated a almost 18 yr old teenaged car accident victim on his way skiing- after a few days He awoke from a coma speaking fluent russian. He had been adopted at age 4 in Canada to english speaking American/Canadian parents. They spoke no russian. Unbelievably the russian language he had learned by age 4 was still in his brain. And he could speak both languages fluently although it baffled his parents. They had no idea the russian was still in him. He continued to get better ( he had severe leg fractures) and continued to speak both languages. One of the strangest cases I ever treated. Comas are strange.
I'm not fluent but I took French in school for several years. I've also suffered from various mental health issues, including the occasional catatonic state. Once, I was.. partially catatonic? Idk, that's the only thing I can think of. Anyway, I could only speak French. I could think in English, but the only words that would come out of my mouth had to be French. It was really weird
These cases are actually very interesting for linguistics because they give clues on how language works in the brain. I can’t think of the terms right now but I have learned about this in uni
When I was a student nurse in 1982 I had clinical nursing at a local hospital. One beautiful lady in her 90's was in a coma. I was taught that you should believe that a coma patient could here you.
I was working in a 2 bed room alongside another student that was caring for another coma patient.
I talked to this lady about the weather, my horses etc as I brushed her long black .( Yes natural black hair in her 90's)
Well he made the mistake of loudly saying why do you even waste your breath on her she can't hear you!
I told him that he was inappropriate and stop talking! I apologized to the patient for his ignorance and I would take care of everything.
I left the room called my supervisor and reported the student nurse. He was removed from his duty.
I returned to care for this patient after this brushing her letting know how sorry I was for what happened. After telling her this she she'd a single tear.
I didn't realize her family was standing behind me as I was so intent on giving care. They were so happy to see this tear! Family and I started crying happy tears.
The unprofessional student nurse didn't graduate.
perhaps you missed an opportunity to teach that student nurse.
@@helendavies1326 how do you teach compassion?
@@msaijay1153 exactly! Either you have it or you don’t. Nursing students are taught to be respectful and treat all people the same. He knew this if he was at clincals already. He chose to be rude & impatient. That does not make a good nurse!
@@helendavies1326 There was no teaching him. He does not need to be in any type of position in the healthcare field. You NEVER do that to coma patients ever.
@@helendavies1326 Perhaps the student learned compassion from experiencing the consequences of his actions and reflecting on them. Obviously, I have no idea what the student may have learned or not learned.Ixm just pointing out a possibility.
The surgeon on this show is absolute favorite character. Hes so goddamn refreshingly professional. No drama he just takes jobs seriously with insight and calm.
I used to work in a subacute nursing home with patients in vegetable states. 100% they are still there, and it’s one of the most heartbreaking things ever. You can talk to them and see in their eyes they’re there, unable to speak back or move. One nurse thought it’d be funny to tell a patient her sister died until tears started coming out her eyes. Don’t ever leave your family in nursing homes.
that was not funny of them!! that's horrible!
That is pure psychopathic behavior. If you didn't report them, then frankly shame on you.
There are monsters everywhere, believe it. Never leave your family alone .
You’re equally complacent in that evil behavior if you didn’t report the nurse
I hope you reported her
I take care of a dementia patient who has very similar symptoms due to the late stage of her disease. She can move her eyes, grind her teeth, scratch and she gets these full body shudders but that's all. She was happy when she heard her husband was moving into our facility, but he was very cold to her and wouldn't talk to her or even look at her and it kinda crushed her. It takes a long time to be able to interpret her very limited physical signs but they tell a story who is in a lot of emotional and physical pain.
Gabby, I am so grateful for caregivers like you. Thank you!
@@pinkparasollise9646 the hardest part about my job is having to be nice to her awful husband
Why is he cruel to her?
I don't usually feel this way about my residents even the difficult ones and id never mistreat him ofc but this guy...
@@XxEmoGothOutcastxX there could be many reasons. One that instantly sprang to my mind is that maybe it makes it easier for him to deal with the pain he feels when he sees her like that if he shuts her out.
It isn't easy seeing the person you once loved and adored like that.
You imagine the moments you did everything with them and think about all the things you haven't done with them and now won't ever be able to.
He probably had a very different picture of how they would spend their twilight years together.
My older sister suffered cardiac arrest due to a high fever. She’s been in a persistent Vegetative state ever since. I remember crying my eyes out watching this episode.
I’m sorry for the pain this must cause . I can’t even imagine . I’m still grieving from over a year ago, suddenly loosing my older sister to cardiac arrest & I keep wishing I could’ve saved her . But I guess it just depends on how you look at the end result . You might be thankful that in some form she’s still there and not gone completely, ashes in ocean & a name on a grave stone 😢. I hope and pray for strength & who knows maybe a miracle for you . 💞
Wait that can happen!
@@adelatieluszecka2146 my family decided to pull the plug on her tomorrow morning. It hurts but I just want my sister to find some peace and some true rest. Thank you so much for your kind words. I really really appreciate them.
@@truthisreal. I’m truly sorry 😢 May you & your family find the strength to get through this heart wrenching process and heal together. 💞
@@truthisreal. My thoughts are with you and your family.
That's like my worst nightmare. Being trapped in my own body, unable to speak or move, but being fully awake.
it's ok it's possible that one day you to could get injured and locked in your body the odds of it happening are very low but it can happen you have unlocked the knowledge of this new possibility congratulations
This stuff scares me. Especially being under for a surgery but not being given the paid meds so you can see and feel everything.
That has to be a nightmare!!! 5 loooong years being completely paralyzed. Terrifying!!
And someone raping you while you lay there completely unable to move or even speak...
I like to watch these clips to see how much better of a doctor I am in my bedside manner. "I know it sounds terrible, but at least you haven't lost her," is something I wouldn't say in a million years.
I'm sorry if I was locked in my body I'd rather be dead. That is not living that is just existing in a constant state or unending hell.
its weird, I randomly remembered this series and thought about this scene out of nowhere and looked it up and someone uploaded it YESTERDAY, what a strange coincidence
There is no such thing as a coincidence
@@oneleoreairabevior582 sure there is.
Considering that this channel uploads clips regularly, it's not much of a coincidence.
@@WouldntULikeToKnow. no there really isn't.
We are going through this with my brother, I can't believe there is a TV series about this and the doctors didn't believe that he is alive after his brain stem stroke. I am just glad it didn't take us 5 years to fight for him .
Wow...imagine the tragedy of being locked in your own body for years and no one knows and you can't call for help....
A man who had 'locked in syndrome' wrote about it and how he couldn't move and how deadly the nights were at the hospital because he couldn't swallow, so he could breath. That the nurses weren't there to suction out his mucus sitting in his throat at night! Each night he would pray he could hang on until the morning shift came in so he could breath. I think they were going to donate his organs when a doctor came in who suspected locked in syndrome. The doc asked him to move his eyes but he tried and couldn't, then the doc took his hand and told him to squeeze it. The guy tried with everything he had and barely twitched but it was something, and the doc said the guy was in there! I don't recall the whole story but physical therapy was in there to reconnect the motor skill with the brain. It had to be terrifying!
Glory to God that he was found out in time!5
This exact thing happened to my son when he was 18. Found him in the bathroom floor a week before Christmas in 2011. He was in a coma for 3 weeks.
_In_ the bathroom floor? Some sort of teleportation experiment gone wrong?
This really does happen. The Diving Bell and the Butterfly is a movie about a man who actually had locked-in syndrome. Doctors thought I had another form of this. Turns out I have a rare disease that puts me into periodic paralysis. It's called Hypokalemic Periodic Paralysis. I can tell you that when I collapse it's frightening because you don't know how paramedics, doctors, and nurses are going to handle you... I am fully conscious and know exactly what's going on but I look comatose. It lasts for hours... even days at times. My body will go into a seizure followed by parlaysis. It's not epilepsy, it's the muscles going into shut down as the body jerks about pretty hard. It's still not fully understood by medical people. That's the frightening part. It limits my life in so many ways. I was left undiagnosed for many years until a genious doctor in Sanfrancisco knew instantly what I had. This clip hits a frightening core with me knowing there are people who have locked-in syndrome and medical people don't even realize it. Even worse... how many people have had their life support removed and they knew it was happening. It's horrifying to think about. Medical machines cannot read a person's consciousness... I believe the body can shut down to such a low level that machines cannot properly evaluate the state of a person in a coma. Doctors and even specialists don't know everything. Even with this rare disease, my neuromuscular doctor doesn't fully grasp how this disease affects me because they're not there all the time seeing what happens. I've learned how to live with it and keep myself as safe as I can. To look at me you would never know... until I collapse. I'm glad there is an episode showing this particular condition. It may be very helpful for someone or even medical people to be aware that this could be a possibillity.
i hope you have one of those bracelets explaining your condition. day to day life must be scary.
I would wear a medical alert bracelet. The kind that forces medical people to consult a record. I would also visit all hospitals where you live and ask them to start a medical file in your name that has that information. I would have a copy of doctor's note stating I have that condition in my wallet too.
@@roberts5539 I do have a bracelet and a card in my wallet explaining my condition and what to do. Unfortunately, paramedics don't always look for it. I do make sure I tell someone quickly if I'm about to collapse so their attention to it. The last episode I had one of the paramedics frightened me. He told the person who was holding my head and cushioning me from being hurt to just leave me to bang about. He handled me in such a way and he hurt me. I don't know what his problem was but he scared me and there was nothing I could do to fight back. It makes me not want to leave my house in case this happens.
@@happycook6737 I actually do. I have a bracelet and a card in my wallet. It has helped a couple of times. Unfortunately, most paramedics don't look for a bracelet. I have to bring it to someones attentin before I collapse or I'm left at the mercy of those around who would not have a clue. Sadly and scary for me, some medical people don't even care. I've been mistreated so many times it's frightening. I can't speak or move. So I don't often leave my house, espeicially in the winter when I'm more vulnerable. The last time I went out I was unstable and I had to be in town. I did collapse and an ambulance came... it was nightmare experience when the one paramedic mistreated me. I felt unsafe. The hospital where I live has a bad reputation in their emergency department. I am frightened everytime I'm sent there by ambulance not knowing who I'll get or how I'll be handled. So I mostly stay home where I'm safe and secure.
Excellent book and movie!
wait, so she didn’t move her eyes AT ALL because they DIDN’T ask her to move them up and down? 🤦♀️🤦♀️
U had to open her eyelids
She was awake nocturnally ..they probably asked her during those tests only in the daytime when she was in actual fact , sleeping.
If the goal is to try to follow the doctor's orders it may not occur to you try attempting something else.
She spent years waiting for the right questions like a waitress who won't tell you what's on special until you ask. 🤪
😆 like buying a parrot that talks but it dies because it never said "I'm hungry." 😆
The look of relief in the parents. I bet they are going to talk to their daughter for hours
Umm, that would be awful! I heard a coma story, perhaps apocryphal... Person went into a coma at a concert, years later, the same song or musician was played, and they awoke! Also, Zolpidem for temporary awakening from coma is amazing!
@Eric Anonymous k
@Eric Anonymous Registered nurse? Wow. Awesome. Still, regarding Zolpidem and coma, you don't know what you're talking about. Better do some more registering, nurse.
@Eric Anonymous That's right! You're so smart for a Registered Nurse! Never mind the peer reviewed scientific literature and the years of research - including into the effect of N,N-Dimethyl-2-[6-methyl-2-(4-methylphenyl)imidazo[1,2-a]pyridin-3-yl]acetamide hemitartrate on movement disorders - because it's discussed on TH-cam that means it's "true" for idiots like us, and only smart Registered Nurses like you know it's fake. Or a joke. Or a lie. The scientific community may say more research is needed into these areas, dumb TH-camrs like me believe it is a miracle cure for anything, but smart RNs like you know it's all made up! Can you let us know where you are an RN, so we can avoid that place? Thank you, best wishes!
@Eric Anonymous What are you even talking about now? You disputed my original comment about Zolpidem. What I stated is a fact. Got news for you bud, like many of those I've met along my path - either in school to become a nurse, or already a registered nurse - you aren't too bright overall. Don't get me wrong, I'm sure you're great at paperwork!
Sounds like Nurse who will cuss at you for being dumb.
If my understanding is correct; isn't that basically like having sleep paralyses for five years straight? 😥
Or like being on edibles for five years straight
Hiii, i saw this like 2 years ago. But havent seen the episode or continuation. Can you tell where it is?
Yes, a fate worse than death 🥺
@@emmaelson6770 ahhhhhh lmao that made my day!!
@@emmaelson6770 😂😂😂😂😂😂😂
I wish they had a longer ending like her getting better and communicating with her parents.
imagine she was in that hospital all this time and the day she supposed to go to different hospital the doctors suddenly do something, i mean thats how you do bussiness lmao
Lol yeah but in this case she was not in that hospitals all this time she was brought in to that hospital because she was sexually attacked in her long term care facility. She's lucky she's brought to a good hospital with doctors and nurses that cares.
Another mushroom with no comprehension skills.
Everyone talking shit about the doctors- the backstory is that she was in a kind of nursing home place being "taken care of" for all those years. She only was transferred to the hospital after her pregnancy was discovered.
People with very poor comprehenson skills.
About 40 years ago, I experienced two episodes of sleep paralysis in one night. You wake up, but can’t move - at all. It only lasts a few moments, but it feels like an eternity. The first episode was terrifying, as I had never experienced it before. The second time was unsettling, but I knew it would pass, so not so frightening. I’ve never had another episode since. I can’t imagine 5 years in such a state of existence.
I go into a coma like state after I have seizures, sometimes lasts for hours. I can't move my body or open my eyes but I'm fully to semi conscious. Time does feel shorter and things feel hazy but I'm in there. My body gets extremely numb and when it goes on too long I have a hard time remembering my name and things. None of my Dr.s have taken it seriously or helped me. It's awful
Oh, I left a comment above telling of my experience. What you talk about sounds similar to what I deal with. It took decades to get a diagnosis. I will collapse, go into what looks like a seizure, where my body, muscles are jerking about, then my body shuts down into paralysis. I am conscious, but I cannot move. It's frightening. Doctors were baffled and even dismissed it as psychological, which greatly angered me knowing full well it's not! I finally had a genius doctor in Sanfrancisco give me the answer. Hypokalemic Periodic Paralysis. The paralysis will last for hours, and at worse, even days. It's a very rare disease, but there are ways of dealing with it. It is not curable. Look it up and see if it possibly looks like a match for you then ask your doctor to look into it for you. I requested a neuromuscular doctor who did an extensive nerve conduction test... 2 hours of exercising a muscle... it was conclusive. Another test is the yucky glucose drink... which can blow your system out fast... Sugar is bad for this disease bringing on an episode very quickly. There's a lot to know about it, but investigate it. It may be a helpful clue for you. Good luck.
Find new doctors, please.
See a neurologist. Sounds serious.
As you seek help, receive healing in Jesus name
Arrrrgghhh Holy SHeeeeeet! That is so awfull feel for you!
I've experienced sleep paralysis several times, but this.... how could neurologists have not realized this?
for this show: she came from a different facility of which she was assaulted at so she didn’t originally come in to this hospital so there was no reason for them to check. she was being treated for her pregnancy from the assault i believe.
That's why as a healthcare practitioner, showing empathy is so important. It's better to watch what one says around unconscious patients. They may be able to hear. I remember seeing an unconscious patient who would always move her fingers each time her mum sang a particular song.
My mother was in a coma for a month with brain cancer. Remembered everything when radiation shrunk her tumors for three months before she died. We didn’t believe her but she repeated back jokes we said almost four weeks earlier about the priest who gave last rights.
Loved the detail on how the doctor sanitized his hands before touching the patients eyes
Locked in Syndrome is real and rare. A famous French fashion editor by the name of Jean-Dominique Bauby had a stroke at 43 and got locked in. There's a bio-pic about him and his experience called the Diving Bell and the Butterfly. Great film and encouraging message.
Similar to one of Daniel Day Lewis's first movies about an Irishman who could only use his left foot. It had the imaginitive title, My Left Foot.
One of the reasons I believe playing a patient's favorite music around them is a very gracious thing to do, never knowing their condition. If I were trapped in my body, music would be my only mental escape. Maybe some audiobooks too. Wow. Worst possible nightmare.
That's a beautiful thought.
I’m not a nice fan to you I’m clicking a thumbs down is it happy are you really happy that I press the thumbs down yay I am so happy that I press the thumbs down because like🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕🖕 and my name is my if you don’t know my name my name is Maya
There’s a book turned movie called Divingbell and the butterfly. True story about a man with locked in syndrome who wrote a beautiful, poetic book. Understandably short but amazing. The actor won an Oscar too.
I had a gunshot wound patient like this. You could see everything in his eyes, it was heartbreaking.
Well I just discovered a new fear.
you learned about locked in syndrome new fear unlocked
Imagine being awake for five years and you can’t scream for help or do anything about it !!!! The hell she was put through ! I’m glad they found out now rather than never but damn five years is five years to long !
Already had such a patient. Wish him a good morning, and he'd love you for it. Only some nurses realised it, but who listens to some stupid nurses like me? Wishing him a good morning every day, made him really active. Same with another patient. The machines told me he knew, who was here, his breathing changed, his heartbeat changed. When I shaved him, he tried to move his head to comply. I told him, that I think he is awake, and he started to cry. But the docs: He's comatuous. No, he is locked in. A neighbour once was said to be in coma. After waking up, he told the nurses what they had done or said. He just felt like being not in control of his brain, that's how he described it.
Don't give up on advocating for pts like that. If it wasn't for nurses who advocated for me, I wouldn't be where I am today.
I've gone through it, had a nurse notice and was overruled. I fought so hard to move.... it made my body shake cuz I couldn't control the muscles long enough... long enough to tremble though. You need to make the doctors pay attention. Look at all the stories in here, sooo many people. They say as many as 25% are aware. I know I was.
I know what this is like from a very different cause. When I was around 29/30 yrs. old I got red tide poisoning from eating muscles on a beach that had not been posted. I spent several days in the hospital. Red tide poisoning acts like curare. Your mind is clear. You can hear everything going on around you. Every conversation. While they discussed my chances for survival, I heard. You cannot blink. you cannot move ANYTHING. you cannot make a sound. You cannot respond in any way to let them know you are there. Inside my head I was screaming, trying to let them know, but not a twitch. Machines are keeping you breathing (your heart, lungs and other organs can shut down). The third or fourth day (lost track) I started to come back but it took many weeks to control any of my body movements and learn to walk again. Horrible experience. I'm 70 years now and never ever forgot that feeling of helplessness.
Dang, dude! Sounds like a Stephen King short story.
Thank you for this part. When I was in a coma, I knew and could hear. I can't explain everything but I tried to tell them it's hurts stop please .. this does indeed happen... prayers for all of you...
Every time I see this clip... it's terrifying and heartbreaking to think about someone going through this
Kind of sounds like the worst drug trip humanly possible
That's possilbly the biggest nightmare when this happens to people in real life.
"We'll need more testing but also here's a bunch of promises" - peak fiction.
To be a doctor must be like quiz game. Most of the time many doctors only guess, and hope.
As a woman, my biggest fear is the inability to defend myself, to fight. This scenario is it, being completely aware of what is happening but unable to even move an inch, unable to scream, to do something is the worst thing that could happen to anybody. What an awful thing to happen.
When I was in coma, I COULD STILL HEAR!!!!
How long were you in a coma?
3:38 Looks like a medical malpractice sue coming very soon...
My grandmother was in a coma for 3 weeks. Said she could hear everything being said and going on. She couldn't move or open her eyes and was terrified she'd be buried alive. That was in the 1930s
i was with a friend who was comatose for days before he died, but on his last day when i sang his favorite songs to him, he cried. one tear, rolling down his cheek. it was winter solstice, and my husband said, look at the last ray of sunshine setting her hair on fire.
My wife was totally locked in, laying in a hospital bed in our living room. Our tween children and I cared for her for months until she died.
Bless ❤❤
Love how the doctors say it is just what happens when it is probably them trying to let you know that they are hearing them.
This is actually scary af imagine being conscious for 5 years but not being able to tell anyone smh
Man that would drive someone insane living like that for years.
I remember after my knee surgery, my 3rd day post op, I was literally paralyzed from the pain. Nothing compared to this, but I know to some extent what it's like to be trapped in your own body.
I had a colon ruption and was suffering from a heavy sepsis, so I was I put into an induced coma for 20 days. During that time I had extreme halucinations. I also suffered from CIP, where the docs weren't sure if my brain was affected. so when I was woken up, I was paralized from neck down, but I could follow orders to move my eyes, and my tongue. The following days were very hard, because I couldn't move, nor talk, and care takes didn't always check, looking in my face, to see if I was awake or listening. It got better over time, and I almost fully recover. But the time in the ICU left a trauma, which might need years to heal.
After all this time this is still one of my fave eps, so good!
Hiii, i saw this like 2 years ago. But havent seen the episode or continuation. Can you tell where it is?
Does she end up having the baby?
@@puterjess no like there isnt a continuation
@@ramsaycobbler8499 just google watchseries chicago med
@@zoeknap9777 and thered a continuation?
i learned about locked-in syndrome in my neuroscience course today. my textbook says that about 90% of patients die within 4 months of onset. they were right about symptoms and treatment, but it’s so sad to know that a family with a similar case could think they have a chance with their loved one, but they don’t :(
She lasted five years. And based on what the doc said there might be a chance in her case.
@@urthboundmisfit what i’m saying is that this is a fictional tv show that might give a real family hope when there isn’t. it’s just sad to think about
The life expectancies of stable LIS patients may be very long; 83 % of patients live 10 years, and 40 % live 20 years.
Also most LIS patients die from withdrawal of life support since most of them can't breathe without ventilators and doctors don't know they're conscious. They choke while being very conscious of everything and while they probably hear their doctors and family talking about donating their organs.
Seriously f'ed up.
I thought brain scanners would show they are not in a coma, isn't there a difference between a comatose patient's brain activity versus a conscious person's?
@@Ariana-wv4pf There is a difference in the brain scans! Comatose can show zero or minimal activity, while LIS is nearly full brain activity (if I’m remembering correctly!). Obviously take my words with a grain of salt, as I’m not yet a professional in my field! But my data and research in my studies support what my original comment said :) Thank you for your input as well!
When I was intubated, they are supposed to push the sedative/tranq or ketamine in your iv first and the the paralytic (rocoronium) so you are asleep when they temporarily paralyze you (they need your throat muscles totally lax). However if you have obstructive sleep apnea this is very dangerous so they often do it on reverse. None of this was explained to me. For whatever reason, I was awake but paralyzed while they incubated me but it continued. I heard them talking abput me and stuff (nothing inappropriate) but as if I wasn't there. I could not move. I became terrified because I was told I was just being put asleep. I could see and put my whole force into trying to move a toe and it felt I ternary like I moved but I could see it didn't move. I tried to move my eyes in Morse code but no one was looking at me. I did not know if something had gone wrong or if they were going to do things to me that hurt that I should be asleep for. The panic was terrible. Finally I realized I had absolutely no power. I told myself "say your prayers and go to sleep" and I tried to sleep.
The next thing I woke up intubated hours later. I at first couldn't tell I wasn't paralyzed anymore because my wrists were tied to bed with foam mitts over my hands and when your on a vent it feels like you cant breathe at first because you actually aren't breathing, you are just getting air. I was able to blink SOS but no one noticed. They stood talking at me and I kept moving my hand. The one female Dr. took mitt off abd I knew the alphabet in ASL so I started to spell. None of the 4 other Dr's surrounding me caught it but she started spelling what I signed. Suddenly the other Dr brought me a pen and paper.
I tried to talk abput being locked in during the treatment but they kept telling me it wasn't true. Then suddenly she realized what I meant. "He means from the Rocoronium! For some reason the ketamine didn't work right away even though it was only given seconds later."
After that they made sure I was well snowed with opiods and tranks lol until I got of the vent a couple days later.
I was awake and somewhat mobile but in hospital for a wk and yet all I could think about was those 5 minutes I was paralyzed. It was all I could talk about and would tell any nurse or staff person who would hear me. Finally one (I think a social worker) explained to me that I was traumatized and probably needed to tell people due to that and that was OK it would probably take up less space in my brain after some time but if it hadn't in 3 mos I should seek help from a psychologist.
Even after I got out it was something I talked about for weeks. It seemed like the most significant thing that had happened to me there ; but only to me.
I later learned on a internet forum for nurse n Dr anesthesiologists that it was the reversal of order in which protocol drugs are given to patients with sleep apnea. Someone explained a post to studebts saying if they have apnea to do it that way. A student response question was wouldn't it cause psychic trauma? The author replied with math saying the chances were less than 3% there'd be consciousness for a few min and if so the patient would never remember.
I wrote a reply saying how it happened to me.
I won't suggest they warn people the possibility when they do it,because that might create more fear, but I do think they should say after they think you're out "if you can't hear me don't worry it can take a few minutes for the tranq to hit you you'll be out soon." I mean if they are intentionally pushing the Rocoronium before the Ketamine, they should at least say that.
Anyway sorry so long the point being being locked in for 5 min was among the most traumatizing experiences of my life, and I have serious trauma, assaults, childhood abuse; etc that I've later been diagnosed with PTSD for. But just 5 min of this was enough to put it on that level of trauma for months.
I felt like this when I was "put to sleep" for a procedure to relocate bones in my broken leg.
I felt awake but I couldn't move. And waking up I was crying because I couldn't move or talk. Tears were falling from my eyes but no movement, no control
Kudos to this actress, who never gave up on a STEM career.
That's why I want to leave a note that if I'm in a coma longer than 2 years, just off me. Too many people get attacked, because there's nothing you can do about it, asleep or awake. I remember seeing Kill Bill for the first time as a younger teen, and just learning that this happens to coma patients, and THAT was the one of the most scary and unsettling things in all the Kill Bill movies to me. Just saying.
You can do this with a living will or advance directive and make it legally binding
I was literally just had the flashback of the kill bill scene
I had a friend who had a motorcycle wreck and was in a coma for 6 mos. He said the docs were all shocked when h woke up. He even spoke to several groups of people with family members in coma to encourage them and share his experiences.
Imagine if she had just moved her eyes at any other question
I remember reading a story in the 1970s of a young woman who had been in a coma for a while, but actually she saw and heard everything, she heard her doctors telling her parents they would advise them switching the machine off, she remembers screaming inside no I’m here. Her parents said no and a nurse saw a tear in her eye. She actually got better after this.
the mother's acting is phenomenal 💓
Aren't the brain wave readings different for comas and locked in syndrome? You'd think they'd know
My $0.02: unfortunately even in this time and age, standard measurements taken for EKG are done via electric sensors: these capture electric signals sent throughout the nervous system by the brain and their feedback. In these medical cases the damage to the brain stem and/or cerebellum does not allow for signals to pass through in sufficient meaningful levels if at all, resembling brain death or lack of functions and - to the untrained eye - resemble coma. Only these tests occasionally work (e.g. vertical eye movement, adrenaline/dopamine abrupt level shifts): when locked in gets in thesis or diagnosed usually more invasive yet precise nerve probing follow (e.g, cathodes insertions), eMRIs, Magneto Acousto Electrical Tomography with magnetic induction for conductivity reconstruction related tests to capture and understand the damage and its location and map functional areas amidst the damage.
The good news is that lately medicine is advancing rapidly to the point that soon we will be able to shunt and create nervous bypasses, and eventually resume connections that were previously broken actively improving prognosis on locked in/semi paralyzed and paraplegic patients
Doctors are terrifyingly clueless.
Even with medical advances: the medical community is locked into standards of operations.
There's still plenty that gets missed, ignored, over looked, of fully thrown out.
doctors make educated guesses. whatever lines up with the symptoms that's your diagnosis
It really is diagnosed by eye movement.
IN MY VIEW
The brain is amazing. I have always believed people whose bodies can't respond, do hear what goes on around them. We tend to "forget" to talk to these patients and go about our own lives leaving medical staff to take care of their medical needs.
If we could communicate telepathically or with our thoughts, no verbal but mentally audible, would you listen to the plea of the one in coma if he or she asks for euthanasia or being let go and pass away....
Same as for people not in come as far as I'm concerned. I would have to evaluate their quality of life, if there is any possibility for improvement, and how much they suffer are they in any pain... For coma patient I would guess they are not in any physical pain, but have very low quality of life. I would therefore investigate if there is any hope for improvement, and if there is none, I would leave that decision to the patient. Ultimatelly - I'm not oposed to help someone to die, coma or no coma, if I see they have terrible time and there is no hope for improvement.
Oh, PS, regardles of coma, I would also evaluate how much time I'm taking from someone. Is it deceades, or are they gonna die in a month regardless what I do.
To clarify - it was not the dad who did it. It’s not officially revealed who but it’s implied early in the episode it was one of the careers in the facility. Also the reason the neurosurgeon took interest was because the previous care facility had clearly not taken good care of her (the assault) so he wanted to double check everything and make sure in the diagnosis she was given by another doctor. It was not him who gave the false diagnosis.
Yes this was a real case. In a Long term care facility. A coma patient got pregnant by a male nurse. All the employees were DNA tested and one came back a match
I think locked-in syndrome is one of the worst things that can happen to a person. It's worse than snapping your spinal chord and being paralyzed from the neck down. As absolutely devastating as that injury is, at least you can speak and communicate. Have you ever had sleep paralysis? If you have, you can probably remember how scary it was, even if it only lasted for a few minutes. Imagine being in that state, for weeks, months or years on end. That's as close to a living nightmare as I can imagine.
This is reminiscent of a book and later film called Johnny Got His Gun. If I remember, Johnny was a soldier who lost his arms, legs, sight, and all movement in combat. He was fully "aware " of what people around him were saying, but couldn't respond in any way.
Yes, that was a haunting story. He managed to somehow communicate with a nurse and begged her to let him die by withdrawing one of the tubes. Then the doctors came in and she couldn't do it.
If I remember correctly he even lost his jaw, and he was able to communicate to the military with Morse after over a year I think, asking to be killed, they flat out refused and left, the nurse tried but was stopped when a doctor came back in, aaand that's the end of the film if I remember correctly
The song “One” by Metallica made me aware of that film.
"She heard me saying 'wont you just die, and let us live our lives? You're alive, but you're not living; yet you're killing us! Just die already! DIE! DIE!'?"
"Yes ma'm. My years of experience allow me to state, unequivocally, she heard you."
This breaks my heart, but gives me hope for my best friend who is currently in a coma as i type this. 3 weeks tomorrow morninh 💔🥺
That’s gotta be one of the most terrifying things to ever experience. Add that to my list of medical fears, right next to waking up during an operation… 😢