Data management for CMT: Towards an Integrated European CMT Patient Registry
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- เผยแพร่เมื่อ 30 ม.ค. 2025
- During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Data management for CMT: Towards an Integrated European CMT Patient Registry".
This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote research.