- 99
- 38 877
ECMTF European CMT Federation
France
เข้าร่วมเมื่อ 4 พ.ย. 2020
Welcome to the European CMT Federation official youtube channel.
Here you will find videos and news on the Charcot Marie Tooth disease.
For more information on this rare neurological disease, visit the ECMTF website, and follow us on Facebook, Twitter, and Instagram.
Here you will find videos and news on the Charcot Marie Tooth disease.
For more information on this rare neurological disease, visit the ECMTF website, and follow us on Facebook, Twitter, and Instagram.
A Scientist's Perspective
Watch our 5th exclusive webinar with renowned CMT expert Dr. Vincent Timmerman!
Get ready to dive into Charcot-Marie-Tooth (CMT) Disease: A Scientist's Perspective, where Dr. Timmerman will share groundbreaking insights from his decades of research.
Learn about the latest genetic discoveries, advancements in diagnosis, and the future of CMT treatment. Whether you're living with CMT, supporting a loved one, or interested in the science, this is an opportunity to connect with one of the world’s leading minds in CMT research.
Get ready to dive into Charcot-Marie-Tooth (CMT) Disease: A Scientist's Perspective, where Dr. Timmerman will share groundbreaking insights from his decades of research.
Learn about the latest genetic discoveries, advancements in diagnosis, and the future of CMT treatment. Whether you're living with CMT, supporting a loved one, or interested in the science, this is an opportunity to connect with one of the world’s leading minds in CMT research.
มุมมอง: 178
วีดีโอ
ClC-1 inhibition for improvement of muscle function in CMT
มุมมอง 275หลายเดือนก่อน
Join us as we explore innovative treatments for Charcot-Marie-Tooth disease with experts from NMD Pharma, a biotech leader in neuromuscular disorder research. 🌟 🔬 Learn about cutting-edge research aimed at restoring muscle function for CMT patients. Don’t miss this chance to hear from pioneers in neuromuscular disease innovation! 🌍💙
The conclusions of the 1st European Charcot-Marie-Tooth Specialists Conference
มุมมอง 71หลายเดือนก่อน
Hear about the conclusions drawn during the 1st European Charcot-Marie-Tooth Specialists Conference. This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote research. Plenary III Strategies: Creating synergies of three approaches (president: Michaela Auer-Grumbach) Podium: Reports from the working groups Presenters : (00:55) ...
Mobilizing the Patients: Scientists’, Clinicians’ and Therapists’ expectations and advice
มุมมอง 37หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Mobilizing the Patients: Scientists’, Clinicians’ and Therapists’ expectations and advice". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's ...
Data management for CMT: Towards an Integrated European CMT Patient Registry
มุมมอง 51หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Data management for CMT: Towards an Integrated European CMT Patient Registry". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders ...
Cooperation: Establishing a « European CMT Research Association (ECRA)»
มุมมอง 21หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Cooperation: Establishing a « European CMT Research Association (ECRA)»". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and p...
II Plenary session referring the three disciplinary approaches to problem solving
มุมมอง 51หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This plenary session draws the conclusions of the groups work. This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote research.
CMT Therapeutic practice and feedback: Challenges and specific tasks for therapists
มุมมอง 72หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This video is related to the topic "Charcot-Marie-Tooth Therapeutic practice and feedback: Challenges and specific tasks for therapists". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's st...
Clinical diagnosis and treatment of CMT: Potentials of genetic analysis and engineering
มุมมอง 25หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This video is related to the topic "Clinical diagnosis and treatment of Charcot-Marie-Tooth: Potentials of genetic analysis and engineering". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT'...
Bio- and medical sciences: From data (management and analysis) to therapies
มุมมอง 53หลายเดือนก่อน
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This video is related to the topic "Bio- and medical sciences: From data (management and analysis) to therapies". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote r...
1st European CMT Specialists Conference Opening plenary
มุมมอง 18หลายเดือนก่อน
Listen to the Opening plenary of the 1st European Charcot-Marie-Tooth Specialists Conference, led by the ECMTF President Daniel Tanesse and the vicepresident Ingolf Pernice. This conference was organized by the European CMT Federation to bring all the CMT's stakeholders and promote research.
The drug development process Govorestat and the INSPIRE clinical trial for CMT SORD
มุมมอง 213หลายเดือนก่อน
Our speaker Dr. Perfetti, Applied Therapeutics Chief Medical Officer, will drive us through the path of a candidate drug from the lab to the patient, giving us an insight about Govorestat, which aims at being the first drug available on the market for a form of Charcot-Marie-Tooth, CMT SORD. #ECMTF #StepTogether #CMTawareness
Charcot-Marie-Tooth Chronicles: Patients, Art and Research
มุมมอง 292หลายเดือนก่อน
Join us for the second session of our webinar series, Charcot-Marie-Tooth Chronicles, featuring specialists and patients talking about CMT and how to handle it! This session brings together specialists, advocates, and those personally impacted by CMT to foster knowledge, resilience, and connection in the CMT community. #ECMTF #StepTogether #CMTawareness
Seriousness and Early Symptoms of CMT: A User Manual
มุมมอง 3972 หลายเดือนก่อน
Seriousness and Early Symptoms of CMT: A User Manual
Dr Bompart Camus and patient Martine Libany : diagnosing CMT
มุมมอง 782 ปีที่แล้ว
Dr Bompart Camus and patient Martine Libany : diagnosing CMT
Dr Bompart Camus and Martine Libany : about CMT and its symptoms
มุมมอง 442 ปีที่แล้ว
Dr Bompart Camus and Martine Libany : about CMT and its symptoms
Dr Bompart Camus and Mrs Libany discuss life with CMT
มุมมอง 802 ปีที่แล้ว
Dr Bompart Camus and Mrs Libany discuss life with CMT
Dr Véronnique Bompart Camus and Martine Libany : a talk about CMT's progression
มุมมอง 542 ปีที่แล้ว
Dr Véronnique Bompart Camus and Martine Libany : a talk about CMT's progression
CMT expert Nicolae Grecu : advise to healthcare professionals
มุมมอง 282 ปีที่แล้ว
CMT expert Nicolae Grecu : advise to healthcare professionals
Advising CMT patient : a Nicolae Grecu webinar
มุมมอง 142 ปีที่แล้ว
Advising CMT patient : a Nicolae Grecu webinar
CMT expert Nicolae Grecu : symptoms and more
มุมมอง 292 ปีที่แล้ว
CMT expert Nicolae Grecu : symptoms and more
Dr. Nicolae Grecu on Neuropathologies and heredity
มุมมอง 652 ปีที่แล้ว
Dr. Nicolae Grecu on Neuropathologies and heredity
I'm in Canada 🇨🇦 and cmt2cc.....in hopes that this reaches us here ❤
Hello, I hope you are well. I observed your TH-cam Channel(ECMTF European CMT Federation) and analyzed that your content qualities are great but there are many problems, video optimization is very poor, and no SEO score. That's why your channel is not growing properly. If you are interested in solving those problems, don't hesitate to contact me. I am a Digital Marketer and TH-cam SEO Specialist. I will try my best to grow your channel and give you the best results for your channel growth.❤💥
Thank you! It's great to get all the insights from the representative of a company developing the drug!
so important to know!
Vous pouvez traduire en français ?
Salut, il est très coûteux de traduire des vidéos dans chaque langue européenne, nous espérons avoir les ressources tôt ou tard
@@ecmtfeuropeancmtfederation Merci
💃 ᑭᖇOᗰOᔕᗰ