Carly's Café - Experience Autism Through Carly's Eyes
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- เผยแพร่เมื่อ 23 พ.ค. 2012
- This experience is viewed through the eyes of Carly Fleischmann, a 17 year old girl living with non-verbal Autism.
Based on an excerpt from the book Carly's Voice: Breaking through Autism, it explores how, for someone with autism, a simple act like going for a coffee can descend into chaos.
Carly's Café was developed as an interactive video that allows the user to experience Autism from the inside-out, visit carlyscafe.com to enjoy the full experience.
PRODUCTION CREDITS
Director - Miles Jay
Editor - Chris Murphy
DOP - Chris Mably
Colourist - Wade Odlum
VFX Artist - Sean Cochrane
Executive Producer - Harland Weiss
Executive Producer - Donovan Boden
Line Producer - Dennis Beier
Audio Director - Stephanie Pigott
Phantom Tech - Brent J. Craig
Composer - Rob Simonsen
Casting - Michael Stephenson
Logo Design - Jan Avendano
AGENCY CREDITS
Creative Directors - Angus Tucker, Stephen Jurisic
Creative Team - Kelly Uman, Marie Richer
Producer - Ryan O'Hagan
Technologist - Marc Cattapan
I was a care buddy for a girl with Autism for 11 years. I looked after her at school, during classes and things. You really get your eyes opened to their world. The girl I cared for was so incredibly smart but everyone ignored that and instead looked at her output reactions instead. Nobody saw her potential back then but now she's a cake designer and is able to produce the most amazing designs in icing. I'm so proud of her and I felt so privileged to be able to know her.
Sounds just like me lol, but instead of cakes, it's computers, I also have autism and my main focus where I get good at is, riding motorbikes and tech :P I would say this vid is a little over exaduated personally, but does give a view of what it can be like!
Good for you. You will be rewarded greatly in life because of your sacrifice
That's wonderful 😊
@@thatguyjimmie "your sacrifice?!" Your ableism is showing. Don't pity us. We are different, not less.
@@ReversedTech does she have a page or something? My daughter is autistic and actually wants to be a baker when she’s older it would be great to show her someone like her
Had to come back and watch after all this years. Today my son age 13 nonverbal after having a very painful meltdown made me understand somehow that he wanted coffee too. I poured him some and told him to hold with both hands and he gently walked to the table with the biggest smile and teary eyes. He came back and hugged me so hard.
It must be so damn hard to live in a verbal society but not a part of it. I got teary eyes to.
I'm so sorry to hear that :(
🥹🥹
I have Asperger's. I find coffee shops really difficult, even though I love coffee. This video is the most accurate portrayal of my sensory overload issues. I have always struggled to try and explain what it's like to people and failed. You have now done it for me. Thank you from the bottom of my heart x
I also have Asperger Syndrome, too, and I'm also very sensitive to sensory input. But I'm ok in coffee shops. I do ok in pretty much any kind of restaurant.
When I was in mid elementary and early middle school, I preferred to sit in the back of the bus, but it wasn't for the same reasons most kids prefer the back (ok, it was for some of the same reasons, but not all). It was mainly because I COULD NOT STAND the noise from the engine at the front! I also liked the bumps (this is one of the reasons a lot of kids like the back seats on the school bus). A lot of kids prefer the back just so they can misbehave or talk about inappropriate stuff, but I was never really into doing stuff like that.
As I got better with my sensory issues, and learned more ways to deal with them, I just started sitting wherever I could find a seat on the school bus. If the first seat I found was in the front, I would sit in the front. If the first seat I found was in the back, I would sit back there. If the first seat I found was more towards the middle, I would sit there. But when we went on a field trip, I would usually try to sit wherever my classmates were sitting, so I could feel like a part of the group. If they were all sitting in the back, I would try to sit near the back. If they were all sitting towards the front, I would try to sit there. If they were all sitting in the middle, I would try to get a seat toward the middle, too.
+Leanne Strong i get that sitting in a room filled of people it just sounds like a constant drone of murmurs. carly is really good looking and what she is doing is great i hope she goes far
I usually avoid busy crowded places and I hate going out for meals with my family
So true! I can't stay in places like Wal-Mart for very long because I get them. I often have to wear earplugs too. I feel for Carly, since I'm autistic myself.
This is literally the exact same for me. I can't stand being around more then 5 people at a time, more and there is a possibility i may break down. The only thing that keeps me up through the day is knowing i'll get home, and finally be alone.
Please make more videos like these. Neurotypical parents have such a hard time understanding what life is like for their spectrum kids, and the kids have a hard time describing it in terms the parents can understand. I applaud your courage Carly-never never quit.
This is exactly what I see because of my autism. When it comes to public places like this, the noise and stuff is overwhelming and so it drives insane. Since I can talk, life is easier for me but it's still a challenge.
I am so glad that we live in a technological age where autism has a voice. Also I'm definitely not crying why would you even say that
Autistic people don’t have a voice. We are still trying to fit into society
Yep I cried. This is awesome. Bringing awareness to not only autism but other mental disorders as well. Having bouts of severe anxiety I get moments where I am completely overloaded by, it seems, every single internal/external stimulus plus my thoughts and emotions go haywire. It's scary and while it's nowhere near as intense as an autistic episode I can understand and imagine how difficult it must be for those with this type of sensitivity. Keep pressing forward Carly! =)
It is great but too much of exposure of anything can be detrimental to a cause and make a mockery of it and others resentful like SJWs, feminist, fakers on Tumblr, special snowflakes, professional victims, politically correctards have done with everything under the sun. They have made people including myself an individual with Spina Bifida and LBKA skeptical of those online coming forward with real issues. Utterly sad, disgusting, and vile they are. Most with disabilities want to be seen as equals not above beneath or anything else and certainly not defined by our disability or coddled for it. It seems there is an entire generation budding that is thriving off that alone which is an utterly crippling mind set to have if truely "disabled" hopefully most of them are fakers and will grow up, seek professional psychological help or move on to the next trend.
+BlinkinFirefly It is what it feels like when you have GAD and/or suffer from panic attacks and nobody bothers to listen to you or you are young and have not developed the language skills to describe how you are feeling and to assert yourself. It is only because of on and off years of counselling and reading self help and psychology books I can put those words into feelings and come up with clever replies. Also sometimes because of the pitch and volume of my voice people cannot hear it or pretend not to hear it as my voice is too soft. It's like I speak a completely different dialect to them and they are only aware of the dialect they speak.
+BlinkinFirefly I thought I was the only one
+BlinkinFirefly A poet, that lived in our town some 50 years ago had a severely autistic daughter. At those times, it was customary and even advised to put anyone abnormal into an isolated institution, so he was viewed as a weirdo for keeping her at home and trying to teach her. He just said he could see her mind and soul trapped in a body she can't control. He was SO right to never give her up!
+BlinkinFirefly you tried any drugs like cannabis or shrooms?
I wanted to cry watching this....for all the children with autism, including my 2 grandkids I see their frustrations.
Carly, you are informing so many out there that you each have a voice that wants to be heard! Don't stop Carly! You are an amazing woman! 👏🏼👏🏼👏🏼
I always treat anybody with a disability just like I would any other person. Everyone tends to treat you like a baby and I don't think its fair. I always get mad when I see people treating the disabled kids in my grade like babies. I just talk to them like normal human beings instead of saying things like, "Hi there!! How are you today??" in a voice like you are talking to a fucking baby or a dog or something.
As someone with Autism, that hacks me off too. The fact that someone specifically talks to you in a different manner because of their false preconceptions about how you think. What's rather worrying is I see this behaviour across so called autism "experts" as well. That just goes to show you how poorly understood Autism is to the general population.
flames1000000 I can also assure you that almost every single autistic person I have ever met has been genuinely smarter than those people who talk to them like babies. Temple Grandin (I don't know if you know her but she's an extremely famous autistic woman) was actually my when I first heard about her. My mom showed me the film back in 2010 when I was maybe 10 I think and I desperately wanted to be as smart as her. I never understood why people treated them any different. I don't have autism but I do have ADHD (completely different), but nonetheless, the second my teachers found out, they began to treat me differently. Even with my 4.0 GPA, they wanted to put me in "Special Study" groups even though I didn't need them. I simply asked them to accommodate some of my needs, like I may take extra time on tests or whatever. But they still treated me like a five year old. I am in high school I made sure that freshman year, I would not tell faculty because I am tired of this "baby" shit.
oh god you're right
I hate it when people talk to me like I'm some alien species or something! For goodness sake I'm autistic not something from a U.F.O!!!!
+Linda Bauman Actually the way People talk to there dogs(especially the wealthy ones) is like this: Who's a cutie?Huh?WHO'S a little cutie?!? YOU are!!!Oh yes You ARE a little cutie You little cutie!!!
I felt my heart beat out of my chest when I saw the girls come in. This is a perfect analogy of a sensory overload and an anxiety attack, it’s completely uncontrollable and it’s worse when those around you don’t understand. Thank you for this.
I'm glad the father and sister were shown as normal and loving, keeping the focus on Carly's situation and not their mistreatment of her.
Carly, you are brilliant. I love this video, it really brings awareness to those that don't know what it feels like.
I like how they showed that she can make her own decisions.
Well I just cried. So amazing she is doing better and making things happen for her and her causes.
This video touches my heart. I am a mildly autistic person, and this is how I feel sometimes when too many people are around. This has opened so many eyes and there’s so much positive feedback on this vid, and it makes me so happy. Thank you for this, Carly, thank you so much!
I relate
As someone who has a much milder form of autism, I can say this is pretty friggin' accurate.
Granted, I'm able to control myself enough to avoid having a meltdown, but still.
Right there with you.
Me too, when I was younger that was me & it was so frustrating. I was lucky enough to get help right away.
W
same
Living with autism and ADHD I totally understand this. Being in different places sometimes can give me severe anxiety/panic attacks. And just socially interacting with ppl can be a great struggle for me... I tend not to go to big conventions because of this thing I have and it is really pissing me off. Like really bad.
Living with a neurological disorder I often have hard time communicating with people, it takes so much energy from me that I get real exhausted... I get really angry when no one understands my problems but as my psychologist said. '' no one can't see that the foot is broken without it's cast. Which basically means that it's hard for people to understand because my disability is invisible... So people think I'm straight up normal when that is not the case...
I often think of how it would be better if I just could have a visible disability because then people would understand and don't have any expectations on me... But I mean, viable disabilities has its downsides too
+Aisha Sed As an adult Aspie I know exactly how you feel. It can be overwhelming and people don't really get why I look normal but get tweaked out by what they think shouldn't bother me.
+One piece queen I get that and I'm very happy that you commented saying that you feel the same, it is reliving that I'm not alone with this!
I have talked to many people with lack of understanding of my situation, I tend to explain that I'm just normal with different personality traits such as shyness at an extreme level. Just because you are shy doesn't mean that you suffer from social anxiety, we all have our difficulties in life but it's not until they get extreme we need help.
I also explain with difficulty with concentration, that all the input goes in with the same relevance, like I myself have to pick out the things that are relevant. I don't have a filter.
People tend to get what I'm saying, and they are very accepting, but the lack of understanding is a problem.
And how society has such high expectations on employees that it's really hard to get a job. School is unbearable sometimes and I'm constantly tired...
If you want to talk, feel free to text me on kik: aaaishased
yeah thats true, i wish you all the best! and good luck at becoming a better you because thats what we all are striving for? ;)
Alicia Claesson there are whole online communities of people like this the secret is to find them. 1 in every 68 individuals are on the spectrum and the ratio males to females is more like 1:1 so world wide there are millions of us
Shes such a beautiful smart girl. I can't even imagine what it must be like to live this way but im so proud of her for getting this far.
thank you so much for speaking out. my sister has autism and it breaks my heart all the time because as much as I think I do, I have no idea what she thinks or feels. with your videos I can try to understand more, I know each and every person is different, but this video has been a huge insight. I cannot thank you enough for this. :-)
I find this so incredibly moving. The pain of not being able to communicate what you want and needing the people who are closest to you to hear your voice. The overwhelm of all that sensory input flooding in with your emotional frustration of not being able to communicate to your family and friends that you want coffee and not hot chocolate. The most moving part being when you come out and state how you persevered through this pain and found a way for people to hear your voice. You are so strong, and I am so happy I came across this. Thank you for sharing your story. I teach children with autism, and this inspires me to continue to help them find their voice, and not give up trying. It also makes me so happy you found a way to communicate and express yourself. Thanks again.
I'm high functioning Autistic (Asperger Syndrome), and I do ok in restaurants and stores. I can even handle going to the mall for a couple of hours. When I was younger, however, I preferred the back seat on the school bus because I couldn't stand the noise from the engine at the front.
+Leanne Strong (High/low functioning labels are actually very harmful and damaging. I can't control you, but it would be much appreciated f you didn't use these terms. Thank you.)
+Ashton Theodore a lot of people think of people with Autism as not being able to talk
+Ashton Theodore I'm sorry if I have hurt your (or anyone else's) feelings. But the reason why I use those terms is because I want people to understand that I have pretty normal verbal skills, and am able to do pretty much everything most people without disabilities can do. A lot of people who don't have disabilities think of people with Autism as being non-verbal, weird, either really smart or very low IQ, and not being able to do things most people without disabilities can do. I don' mean to hurt anybody's feelings or make anybody feel less than they really are. I think some people are just being a little too over sensitive. My comment was not intended to hurt anybody.
I have Aspergers too. I'm 13 and I can't articulate to others very well what I feel. I usually just keep my emotions to myself and when people are shouting I get scared so I put my hands over my ears and shut my eyes. Other people in my year just think I'm weird but I just get used to it
I have a 14 year old son on the spectrum...functioning labels are rather a moot point.
Yes, he CAN talk but can't communicate effectively...people can't seem to distinguish the difference. There is far more to communication than the ability to speak. He requires constant verbal prompting to get through a day, to complete any given task...yet because he has the verbal ability to speak, he is considered high functioning?
THIS YOUNG LADI GIVES ME SO MUCH HOPE FOR MY AUTISTIC DAUGHTER. SHE IS CONSIDERED HIGH FUNCTIONING AND VERBAL,BUT SHE HAS MANY BEHAVIORS. AND ONE DAY I HOPE SHE IS ABLE TO EXPRESS WHAT SHE WANTS THE WAY CARLY HAS.
Thank you for being a voice for us! I've been trying to explain this to so many people for so many years! And yes, these are tears of joy! I can't thank you enough Carly, God bless!
Just over two minutes but these images and the message will be with me forever. Thank you Carly for finding a way to get your voice heard even a little bit, it speaks volumes. I'm trying to write a story about a young girl who has non-verbal autism and your story is helping to inspire me to find what I need to properly share her story. Thank you.
My twin sister also has autism. she had the same diagnosis. she's actually able to anything I'm capable of doing. Every autism diagnosis is different, but you can always help them get heard and feel better about themselves.
I have a twin sis with Autism too.
This is a really good representation of how a meltdown feels. Add to that bugs crawling on your neck and and a match held under your palms and that's how mine feel.
Carley you are a beautiful soul! Thank you for sharing your experience and giving us an understanding of autism from within. I am incredibly inspired by you and your light. Keep doing what you do cause your impact is greater than you realize. Like a ripple in the ocean that turns into a wave. 💗
Scarily accurate and explains how people misunderstanding wants and desires when us on the spectrum are adamant at what we want can cause us a lot of stress within, very well made video!
This is absolutely amazing. I am in teacher's college right now in Hamilton Ontario, Canada. I have studied Autism before at Brock University and I have fallen in love with learning about it. Your videos are so inspiring and help with my education. I love working with different children on the spectrum. So far I have worked with a total of 7 at different times and different classifications of Autism. Your videos help me be a better teacher. I already knew to never give up on a child but this just makes it more encouraging that everything I do will be appreciated and somehow will help them. I will continue to work harder at understanding my students and finding new ways to reach out to them as well as helping encourage their inner voice to speak out. Thank you so much!
That was the shortest most interesting movie I ever watched in my life. Was biting my bottom lip so hard, I nearly swallowed it! :) Thanks for the inspiration Carly! and the cinematography of this piece blew my mind. So good!
I am training to be a SPED teacher and when i got into the field; we learned everything in the books, the theories, the symptoms. Everything. For my training, I have worked with kids who were diagnosed with ASD and only now can I fully understand what they are going through when they experience sensory overload. This was very enlightening. and humbling too. Thank you.
Thank You Carly, Awareness is the key to understanding.We have a 12 yr. old autistic son who is higher on the spectrum but, never the less, my wife and I had to be trained on things that we took for granted just so we could understand how to make it work for him. Now, we all do our daily routine without thinking about it much.Thanks again Carly, you're beautiful and always remember to Believe in Yourself! Now, I'm going to pop over to your website. :-)
This video made me cry but now I understand what my son goes through. Thank You! God bless.
This made me cry...because I'm so ignorant...we all are.
Who knew..
Carly did..
✨💕😔💕✨
YES I have autism fuck you
@@zetazieta2061 YAAAAS WE SHALL RULE THE WORLD SOME DAY
lolol
OH man Carly! How frustrating. All you want is blasted cup of coffee and everyone looks at you funny. I'd swipe that blasted hot chocolate off the table too. Thank you so much for sharing all of this, it helps to understand those who suffer with autism.
Carly, I saw a video of you three years ago and just watched again. In the past I have worked with people with special needs as well as have family with autism and have always wondered what it was like to be in their shoes. Thank you for allowing the world to glimpse into your everyday life. You are an amazing young woman which such astounding talents!
This really touched me, the mother of a 16 years old child with autism. I shed tears while watching this video, while enriching myself. thank you
I just saw your story that was on 20/20 in a facebook post. My life has not been affected by autism, but I am very inspired by your story! I love it when good happens in the world! Thank you for sharing! Also, as a father, I admire yours. He is a great example of fatherhood! Would you please tell him for me? Thank You
Carly.... you have such a beautiful soul within... I hope your story can help other parents whose child suffered the same affliction - you have given them hope.
.....and in that moment...when all at once, he was confronted with the reality of her, there came the burgeoning of a tear ....But this was no tear of pity nor shame....for such things are ill-befitting and beneath a spirit such as hers .....it was simply a tear of sheer admiration and utter humility in the face of true strength....and true beauty....if such a thing or moment can be seen as "simple". He will never be the same.
Thank you for that moment.
Carly,
I think you are absolutely amazing!!! I am so sorry for the pain you feel physically, and I can only imagine the emotional pain that has come along with feeling misunderstood. I just watched a video that shows what life was like up until the point where you started typing; I am elated your parents did not give up on you, they held on to what they believed they saw in you, and you were able to find a way to finally communicate what life is like to you, in hopes to help people understand autism better. You are going to make some really big changes for this world!!!
Carly, thank you for raising awareness of what it's like to have autism. I believe it will help a lot of people who are unable to communicate as well as you can.
So few of us understand about being locked up inside one's own body. I am glad for this series of Carly's experiences. I know a little boy I now understand better. Thank you Carly and thank you Mr. Fleischmann for the opportunity you gave so I can be of assistance to Killian my 5 year old friend with a bent for science.
Carly, we can all learn from your story. Thank you for sharing this with the world. Much love from a mother of a 13 year old autistic girl who is the light of my life. You give me so much hope!
Thank you for your insightful video Carly! I work in a school for children with Autism and their needs and abilities vary considerably. I felt like I already had as good an idea as I could have of how my boys (I work in a class of 6 boys) experience the world but you have just put it into a visual and sensory video that really helps me understand! Thank you, and best of luck to you with raising awareness of what Autism is really like for many people!
BEAUTIFUL short film.
This is a truly amazing young girl, who has overcome some very tough obstacles and found a way to be heard. For all of you that have the nerve to leave such rude and horrific comments, shame on you. What if this was your daughter, niece, or sister, would it be funny then? Better yet what if it was you, what if tomorrow on your way to work you get in a terrible accident that paralyzes you and destroys larynx and you can no longer speak. You have to live the rest of your life fully aware of everything around you but unable to communicate or express your emotions to anyone. I honestly fear for the future of our country with such a disgusting inhumane society. Maybe instead of spending hours of your day leaving genuinely hurtful comments to videos no one made you watch but you, for the sole purpose of being mean at the end, you should spend that time helping the less fortunate in your local community so that you can see that the people you look down upon and judge, are people born a different, it wasn't a choice. Try having some compassion in life, it will get you a lot further.
great job Carly ! Thanks for sharing this. Your comprehension of yourself is extraordinairy. My son is autistic and has learned to speak very well, yet he does not not comprehend his difference as he cannot appreciate that other people do not perceive the world the way he does. Please continue to share your perception of the world with us, it is very helpful and enriching !
Carly, I'm so glad I met you! What an amazing gift you are to the world. I wanted to say, too, that it's not just autistic people who have sensory issues. I have them too. Especially sound. So much that I wear ear plugs 24/7 and it mostly helps. I cannot imagine though how hard it has been for you to cope. I am SO glad that you found your voice. What a wonderful, magical gift you are.
Damn... Autism seems as if someone's experiencing drug ODs, but this time it's permanent, and the person can't do anything. Holy fuck do I feel sympathy those sufferers :(
+Fatal_Taco Actually, it's not always like this. This was what we would experience in a crowded place, lots of noise, lots of different things going on, ect. But in a calm environment with some nice music going and a nice fidget in our hands, we can be very relaxed and calm! The thing with autism is we get very overstimulated easily. But replace those bad feelings with good sensory ones, and we're happy! Most people don't understand this, which is too bad.
+Fatal_Taco Check out how Cranial Osteopathy helps with autism: clinicaltrials.gov/ct2/show/NCT01676389
Wow, you see that too??
I thought the same thing. That I have been on a 'binge' before where, toward the end of it, I had much trouble being in a public place because of soooo many voices and a lot of commotion. I was trying to take it all in and it made me feel like Dr. Charles Xavier with his device Cerebro (X-men)...and NO, this was NOT 'cool'. At all.
I could hear everyone all at the same time which meant that I could hear NO ONE individually. I could not carry-on a one-on-one conversation, even with those closest to me (the ones that I loved so dearly). It was pretty horrible. I don't do drugs anymore and I feel fine now.
I experience that, too, the thing where you can't separate voices from one another. People accuse me of eavesdropping, but it's really because I can't not listen. If that makes sense.
***** Same here.
Wow, this is pretty amazing... I have Asperger's Syndrome, and I experience sensory overload, and though it's not to this extent, it's pretty close. It's difficult to pay attention to what I'm supposed to pay attention to when everything seems to be yelling at me.
Thank you Carly, some of this is what I feel/see/hear in public ♡ I am so proud of you and am inspired to go through the process of diagnosis for my child (I believe she has ADHD and is austistic) and for myself, as an undiagnosed autistic adult. I hope you are doing well and continue to share your beautiful voice 💙
This was beautifully done.
I watched a documentary which involved non verbal individuals, but as soon as they got to a computer, they started typing the most beautiful words.♡
I'm currently trying to get a job at a place that works with those whom have autism and I wish to make a career out of it.
Love this video, very beautiful, Carly~
Damn imagine that for 11 years...
I would go absolutely insane without coffee.
(Jk, this video really well made and Carly seems like a real trooper. Can't wait to see more interview video's on the other channel!)
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mark jonkman coffee energises and actually relaxes me it’s wonderful to combat the horrendous anxiety. I’ve actually found that doing drama is actually the best way to improve your social and communication skills.
Someone once told me that I was too empathetic. This video proved that person right. It hurts me to know just how autistic people have it in life. Wanting to think but everything around you is too much stimuli? Damn that must be really rough.
I have never been an ass to someone with autism or any similar condition, but now I feel bad because I didn't take the extra steps or effort to actually help or assist them, as we all should because it's our duty to understand people like them.
+TerrifiedTam I don't think that there is any such thing as being too empathetic. And besides, a whole hell of a lot more empathy is exactly what this World needs according to My observations. But then of course My observations would differ from those that do not have Autism.
TerrifiedTam the other thing I hate is when neurotypicals accuse us of having no empathy bollocks we have an over abundance of it. We are generous, kind hearted sweet individuals who are super sensitive and empathetic
Some days I go nonverbal. And the noises overwhelm me on those days the worst. Seeing someone feel the same pain, seeing correct interpretation, just made me bawl my eyes out just now. Thank you. I love you Carly, and your father. I love this.
what a break through!!! Imagine all that we will be able to learn from her, when banging her head and playing up, people just thought that she was acting up, but for her to tell it herself, and say it feels as if ants are crawling up her arms and being in pain, is such a big break through. THINK ABOUT ALL THE TIME WHEN KIDS LIKE HER WERE SUFFERING AND CARERS ASSUMED THEY WERE BEING A NUISANCE,,.......THEY UNDERSTAND EVERYTHING BUT ARE UNABLE TO COMMUNICATE BACK!................watching this has really made me feel emotional................love you carley XXXxxx
***** The point of having her hair and clothes messed up is to show that she had a real breakdown - you see her spilling the coffee, hearing lots of jumbled sounds - the mess at the end shows that she was physically flailing, screaming, hitting her hands because she looses control of her body when she has a breakdown. It's a fiction film based on reality and that art direction was done purposefully. When she's actually out in public or being filmed she looks just fine.
i cried watching this,an amazing video. go carly!!!!
I work in the field...residential now, but have also been an employment specialist/job coach, recreational specialist and personal care attendant. I want to thank you for your input, your strength in the storm. Thank you for educating so many.
I totally get where you are coming from. I understand the isolation you must feel. You must thank God for the great parents you have. I can't wait to watch your other videos! Thanks for sharing your intimate feelings with the world. It opens the eyes of so many. Me included. Big hugs
This. Is. Gorgeous. So proud to be on the same spectrum as Carly.
+Hieifireshadow We just keep running into each other on TH-cam! 8D Super impressed with whoever thought of how to represent everything, a lot of times stuff like this isn't really creative, but yowzah-- love how all the colors are so wiped out like the light's eating away at everything.
HomeStarRunnerTron xD
OmG.
that made me so sad to watch. she just wanted coffee and to do what she wanted... but the message at the end was happy :)
I'm sitting at Starbucks and almost switched videos because I thought it was a commercial, but This video was done beautifully and poetically. I understood when the narrator said, "I want a coffee". I actually felt the frustration, and feeling of being trapped. Helplessness and despair can be overwhelming. I'm so glad you have a voice and can express yourself. So many people that lead "ordinary" lives and are considered successful don't even seem to have the ability to express themselves so well.
It's really heart-warming to read all these comments showing so much empathy and compassion.
Whenever I see people act like morons in public, or driving down the road, or whatever... I can come here to this video and have my faith restored in humanity by people with soul and heart.
Thank you, gang. You rock.
I love this cause its feels and sounds like a chapter from Life Is Strange
Who's the author?
+Nickel M i think she's talking about the game
+Evelyn Allen I figured afterwards. It was just them saying 'chapter' as I am unfamiliar with the game.
+Nickel M um if im not wrong i think the game is played in chapters also so yeah
+Evelyn Allen Yeah, that's what I figured, just not when I first asked. It's not the most common way games are played (not to say there aren't many played in chapters). And I think you can agree if you first hear 'chapter' then you'll think of a book. Sorry if I wasn't clear.
I'm 17 and autistic and I can assure you this is exactly how my typical day goes
Tony Bullard LOL actually this is sarcastic, this looks more like smoking meth and cocaine combined or something
Caity Cat
i think you misunderstand whats being presented as literal experience. one doesnt zoom in to things, or experience slow motion. the video is trying to express the sensation that is felt when one becomes overwhelmed with a situation and one's mind overloads with stimuli. the mind races, the 'ADD' in full force, cycling through observable elements already pre-cached in the mind, new observations of developing realities, sounds and other medium that catches the senses, etc., and all thoughts that are involved with this mass mixture of overwhelming experience.
a video cannot truly convey the experience that one has in such a situation, with the kind of mind Carly, or anyone similar, has. when you can never communicate what you are thinking or feeling, life is very frustrating and overwhelming. you are trapped within your own mind.
dAc I'm autistic, I know all of this, I have experienced sensory overload, thanks for playing though.
Heulwen Sault-Jones How about you apparently allistic people quit talking down to me? My first comment wasn't fully serious and I don't even know why exactly I'm being targeted over the tons of other people saying saying this looks like someone on drugs, including the other autie I was speaking to. I know how severe sensory processing issues can be and on top of it I have misophonia too, so if you lot would kindly screw off with your "education" that'd be great. It's actually kind of funny how I'm being yelled at because I must not know how she's suffering if I don't "get" this video yet here you are talking to me as if you know anything about what I go through.
Caity Cat i see what your saying, but maybe this is spot on to other people. this kinda reminds me of how my brother would react to the enviornment when he was younger. i could see the sensory overload was pretty chaotic to him. he would scream and run away! and the only people that could calm him down was my mom or me. and if you still disagree that this video isnt accurate, can you explain why? cause id legit like some insight
Carly is truly one of the most beautiful and courageous people I've ever seen. I have been touched deeply by her story and it helps me understand what others like her are going through.
This an incredible video that really shows someone what it is like to have the sensory issues that are a part of autism. My sensory issues aren't quite as intense as this, but I have my moments. Stay strong Carly. You are an inspiration.
Shame that those saying cruel things about individuals with autism. I wonder if any of you have a heart? And I also wonder if any of you heartless individuals have children of your own. Move to another video if you have nothing to say. Until it happens to your child ....folks like yourselves will always say such heartless comments. I thank God for my child regardless of his condition!
Let's make him a big brother.
+Lizette Rocha
Who is god?
+Lizette Rocha , those folkes are just a buncj of idiots, dont get upset!!!
+PCGamingMaster Race Read The Bible, truth
021500HD
Why should I read the bible and how do you know it's truth? Is all of it truth?
almost seems like they are permanently going through a bad psychedelic trip or something.. the way this vid seems to emphasize the internal anxiety and random focusing on external stimuli that such a state of mind would bring about..
James Livingston *challenging trip
Simply beautiful. I just subscribed. Although I don't know anyone with Autism I can imagine how many lives you're changing. You are an incredibly strong human being with a beautiful soul.
You are the most brave person I've ever seen, I really admire your perseverance, your intelligence, your carisma, basically you. People like you should be in every corner of this world, to teach us to be good people and to enjoy life
A lot of this video relates to everyone on the spectrum. To some degree we all have this experience. I have aspergers and can relate to the sensory issues and distractions. I have control over my body but it seems to require a lot of effort.
The way I think in my head is completely different to how I will say something. It seems like a lot of it gets censored out before it reaches the mouth or worse, the wrong words come out and replace the ones I am actually thinking off. I only know when this happens when the other person laughs or tells me what I have just said.
For this reason I tend not to speak much as I have to put even more effort into hearing my own words without losing my train of thought.
+DizzyIzzy
Not being able to talk at all, is a rare occurance for me. However, it has happened in the past, usually when I tried to initiate a conversation with a woman I was attracted to while single. In such circumstances, I totally block.
+Tzimnewman3 what you say fits me to a tee....I like to write because writing allows me to communicate what I mean more clearly, plus allows for revision until I get it right. It seems like I can know what I want to say and 3 words into what I am saying things derail and/or I take the long route of lengthy explanation to say something simple ....I don't know how to do simple. It's very frustrating because I am smart in a lot of areas and look normal and was taught how to be congenial when I was young but still don't have social stuff mastered and at the worst times I seem to make matters worse. I have grown a lot thru cognitive behavior treatment but I will never be smooth like lots of people. I always feel out of place and uneasy. The sensory overload thing intensifies even more when a situation or a time in life is more stressful. When things get too stressful I resort to selective mutism because it's safe.
I can definitely relate to stressful situations causing sensory issues to increase. I can sort of deal with it for a short time before I need to get out of the situation. Even if it's for 5 or 10 minutes. It's like the energy to do anything just goes completely down. I find myself often revising my words too, I know exactly what I need to say in my head but by the time it comes to speaking it out to someone it gets all jumbled up or takes me longer to explain something that should be simple to explain. I agree, it's very frustrating. Even more frustrating when people use that against you to make judgements. Sometimes people assume I am an idiot and they can get away with treating me like dirt. Other times people know I have intelligence and treat me like I am a con artist or criminal. They avoid speaking with me or they are constantly questioning everything I am saying which only makes communication more difficult for me.
I am always uneasy around people too. Never knowing what they are thinking or what intentions they could have leaves me feeling very vulnerable. There has been a few times in my life where I have retreated into myself under stressful situations and if I am in the workplace and many people are giving me problems I tend not to speak with anyone. This comes across negative for me but I just can't help it. When I was growing up I used to wonder if I belonged in a different time period because everyone around me was just so alien to me. The way they think, their expectations and their behaviour makes me feel like I am alien sometimes.
sweetcindylouwho theatre studies are the best for teaching social skills, communication and how to read non verbal signals and emotions
Fiona coyne!!! This is so heart warming
I work for skills of central pa and had a training today. I was moved and happy to have been shown this as part of the autism training. You are an inspiration!! 💖
Thank you so much for sharing this with the world! I am a mother of a 3yr old boy with Autism... You are an inspiration & you open eyes & help us to better understand!! :)
that is exactly what its like for me. Not quite as extreme but similar. except for good music on a top hifi system.. or the sound of nicely tuned v-engines.. they are different for some reason... but thanks, this will help those that want to understand.
thank you, now i can show people what being me feels like and give a reason why i cant eat with others
I can't help but think of the Rosetta Stone. With Carly's voice, millions of others can now be heard and understood. You are here for a reason and I am truly grateful to know people are still able to make a better world and make the best of their own hardships. You're awesome!
Beautiful, authentic, and wonderfully creative. Thank you, Carly, for bringing people into your experience and making the world a more empathetic place.
I'm pretty sure autism doesn't mean you can't talk. This is not how a typical person with autism will act.
It depends, some have non verbal autism
So they literally are mute?
Mark Green Yes. Many people that are non verbal will use SGD's to talk (Speech Generating Devices).
Mark Green Its a spectrum what we go through, sometimes it can even change on a day to day basis... Autism can affect so much of our lives, and that last bit really got to me "How can I help"...
When that is a sincere offer, you have no idea just how much of a relief and blessing that can be for people like me!
Many people with Autism can not talk. Autism affects three things: Language, flexibility of thought and social/emotional understanding.
Those with lower functioning autism are unable to speak, their language is too impaired. The ones who act a bit kooky but are otherwise normal are probably Aspergers sufferers; a higher functioning autism.
I think it is interesting how there are so many similarities when it comes to different brain malfunctions. I have schizoaffective disorder and when I am understress, my ability to filter sensory information does not work AT ALL. Suddenly hearing my typing, the cars driving by, the ticking of a watch in the dresser, the twitter of birds outside and the chatter of those around me (including the apartment upstairs, downstairs and to either side of me) and the TV show that my family is watching all comes in at the same loudness. It is really difficult to sort out people's conversations and focus on what is being said. It's just like what you protray in this movie Carly.
I don't go to Starbucks because whenever I did, it was because someone had invited me to study or dicuss something business related and with all the noise of the machines, people ordering, cash registers beeping, counting change, talking and tapping on laptops and tablets. When I get like that, if I have the presense of mind, I pop in my wax ear plugs, they dull the noise and make it easier to think. I'm working on saving my money so that I can get some of those really cool motorcycle earplugs that protect my ears from the noise.
Christmas time is especially difficult with all the twinkling lights, carrolers, crouds in malls, more twinkling lights, more music, heaters going, excited family members . . . oh and did I mention the Christmas lights? They make me dizzy.
In my chart, it says that when I had my first psychotic break at aage 22, I was repeatedly banging my head on the wall. I bet it was for the same reason. Just trying to distract myself from the voices in my head.
I don't have Autism, but my brain disorder is one that people are scared of. I'm no longer scared of it and have really enjoyed the past 5 years. Things will get easier Carly, as you continue to learn to adapt to the world around you, just as I have.
Thank you. I'm going to share it with my friends and family so the can better understand me too.
I think when they get a cure for one they will have the cure for all. Unfortunately I do not feel that humanity will make it that far. I think for us to really excel and to evolve into a futuristic disease curing, space touring species, we need to get through the next fifty years. And it just isn't going to happen. Even if every single person in the world changed today. The damage is already done.
Gee, I'm sorry you feel that way. I think that we "can be the change [we] want to see in the world."
Sarah P. Hancock if there’s too much noise we just can’t process oral communication it can make us seem like we are deaf but we actually aren’t
Carly, this is amazing! I have known so many people who couldn't share the beautiful things inside them, but you have found a way. You give so much hope!
Thank you for sharing your life and helping us to understand those in our lives who live with Autism
People are so mean. You go Carly.
Hello beautiful... u know its amazing that u have conquered your disability and have learned to bring out your true talent.
I think autistic people are extremely gifted people, who r considered as outcast because the society is unable to see the true potential in these people...
may God bless u and make u his way to let like u be understood and appriciated...
Lots of love :* :*
Anisha Sharma this warmed up my heart, thank you. (i'm autistic)
Arceus The God .... m glad if I made u feel good in anyway... :)
Anisha Sharma =D i love having autism, it makes me good at creative things
Arceus The God for me it really helps in sucking up information
Alex Cain cool!
You are stunning and revolutionary! Thank you for finding a way to help us understand and interact with autism in a more informed and positive way.
This is so enlightening Carly, God Bless you & your family... I am glad we can understand autism through your own eyes.
I have autism an severe senvorey Iusse this is what it like
On the outside, we had no idea what you were going through on the inside..
Know we do... And I'm going to Internet invisible hug you..hope you feel it in your heart since I can't be there in real to do it..
✨🤗✨
unless you don't like contact in which case I'll try and sit quietly next to you
A hug from me as well, take care stranger
+CzamyMlot Actually some People with Autism hate being hugged. I have a form of Autism called Asperger's syndrome and am one of those People. When People try to hug Me it just makes Me want to scream!
stephen lang Haha xD Sorry then. Warm wishes then?
It's appalling to see the ignorance in the comments here. People questioning the validity of the video, making jokes. Some people have to live this. Too busy debating the video to take in the message. If there was ever any question about the fate of humanity, it has been answered. The world is full of self serving bastards. It needs a purge. If you still question it, just wait for the slough of comments that are sure to come.
Binerexis You just made my point.
Honestly, it's youtube. What did you expect? The worst kind of people have been given the ability to almost anonymously comment.
hueseph Wah, wah, bitch, bitch. Lighten the fuck up.
Floreum
Yeah. I have to agree. Doesn't make it excusable though.
Trolls everywhere
My daughter is 18 with autism. Since you been making videos and helping my wife and I truly have a better understanding. I want to say thanks so much
This made me cry, my son is non verbal autistic and it just hit home as to why he freaks out in places like that 😔 thank you for showing what you experience ❤️
so living with autism is basically like being a dramatic/thriller movie 24/7? Interesting.
it is just how the world is to us. there is a form ADD and OCD that goes along with autism and they make your thoughts disjointed. I have to be careful not to stare at people. I don't intend to I just become fascinated with them for that moment like I am studying them to mimic later so I can fit in better. This is to me is better at taking someone that is neurotypical and showing them images that make them uncomfortable. yes this is life, to use life is scarry. Neurotypicals see this and become un easy. Think that in reverse for us. Us real life scarry like this imagery is to you.
Brave soul.
this video is such a relief!!! finally something i can show people instead of having to talk to them about it. It's not like this all the time, and everyone is different, but as an autistic, this is scarilly accurate to what goes on when you're nonverbal/have sensory processing disorder and anxiety
I just want to say thank you for having so much strength of character. You are helping people who cannot tell their story.. Keep up the good work!
Well Carly, that was very well caried out and produced! Long ago I was born with a fully cooperative body, but a mind that overlaps sencory and can turn around perceptions, and complicate understanding, due to instant cross-referencing what is heard with something sounding nearly the same. Lot's of folks come with some faulty equipment. Not realy much of a challenge compared to yours. You've done very well. PS ingnore the trolls.
A bully 'diagnosed' me with this.
Yikes...:(
cuz ur fucking autistic m8
Good. Autistic people mostly are much more observant and more capable of logical thinking than normal people. So, in a way, he called you smart.
I was just ranting to my friend earlier about how it pisses me off that people throw the word autistic around as an insult. Lots of autistic people are super smart and super gifted!!
Diagnose your bully with two broken arms. Fight back. Or don't. In my experience it doesn't matter. I was a strong kid who could beat up most bullies but it didn't matter because I got punished for fighting back, believe it or not. Anyone else experienced this?
this almost made me cry and it's not even the half of her situation. now i find her story so inspiring, cause it proves that everyone can! i mean can you imagine how many times she felt like giving up? like it wasn't getting any better? like there was no way out? but still she kept fighting. i really hope her dreams come true, because she totally deserves it
Thank you so much for this video ! I worked with a young autist in a school, it was a great experience... And one of my friends has a child who's autist. This video teaches us more than how to respect people who have autism : they teach us that EVERY one should be respected and loved, and that we should never give up to comunicate with someone just because we don't understand him/her easily... This message has to be spread !