Epidermolysis Bullosa (Year of the Zebra)

What is Epidermolysis Bullosa? Epidermolysis bullosa is a group of inherited disorders that cause the skin or mucous membranes to become fragile and blister easily.
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[@XavierAway]

just one the most awful conditions, my heart breaks for children with this

[@jimbaker9616]

Several years ago, one of my college students had a daughter with the worst type of EB. She looked like the worst case of child abuse you've ever seen. She was always wrapped in loose gauze material and she was missing large areas of skin all over her body. She was constantly in and out of Children's Hospital with skin infections. The little girl wasn't expected to live beyond 14-16 and I haven't heard if she's still with us or not.

[@RensTop40Playlists]

I just read that acupuncture helps create natural collagen in the body...

[@francrnjac2784]

@@RensTop40Playlistsyeah man, that doesnt help at all with this.

[@edwardheaney3641]

@@RensTop40Playlists You want to stick needles into a child with fragile skin and chronic wound infections?

[@teeba76alaa98]

phynetion can used in treated this disease?

[@TondraTondra-sb8td]

Please help me,my doughter with worst type of EB

[@tezero8607]

please help. can this go away as you age?

[@GadgetsPhoneHub]

Yes it can go away, there is gene therapy that can completely cure this, I believe it’s legal in Japan and other countries, DONT GIVE UP !!!

[@GadgetsPhoneHub]

@AlyssaHughes-kp8bhboooo! How dare you !?

[@GadgetsPhoneHub]

Don’t give up hope !

[@drmariamshiraz23]

😍😍😍💞💞thanks

[@MewKunii]

lol I habe this

[@asmodeus1946]

Me too

[@AndreiNToma]

i'm bipolar mixt

[@soso90r73]

😍😍👍

[@americanandproudmurica3703]

I would not want to live with this

[@MewKunii]

Hehe yes it’s poop having it

[@asmodeus1946]

Yea, you dont.