topical steroid withdrawal | experiencing hell on earth...
ฝัง
- เผยแพร่เมื่อ 2 ต.ค. 2024
- hi! in this video, I share my experience with topical steroid withdrawal - aka "hell". yes, my life has been consumed by all things topical steroid withdrawal for the past 7 months now but i'm back. if you're just finding me, welcome to our channel :)
tsw podcast episode:
open.spotify.c...
tsw resource docs that saved me:
decodingtopica...
tswassist.com/...
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☁️ FAQ ☁️
How old are you?
20
Why didn't you go to college?
College isn't for everyone and we as a society should start normalizing it as a valid choice! I'm an actor/ content creator and this field does not require a college degree :)
What is your ethnicity?
Malaysian- Chinese and Black :)
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Disclaimer:
This video is not sponsored. All opinions are my own!
You know it's bad when we get more help from tiktok than doctors
Yeah, MDs are completely useless, seeing how they promote rational thinking but seem to lack it when it comes to stuff like this. they just want to prescribe people more pills
The medical denial is crazy asf. All the healing vibes to you sistar! Thank you for the courage in sharing this with us 🙏🏽💚💫
yeah it’s wild, thank you so much 🥹🫶🏼
I had never heard of TSW until TH-camr Joana Ceddia shared her experience in a video. I find it incredibly negligent that these steroid creams are still prescribed to people with eczema without informing them of the possibility of incredibly painful and debilitating withdrawal. I suffer from chronic recurrent seborrhoeic eczema, but it only affects my scalp and ears when it breaks out. The idea that this eczema could break out all over my skin is almost panic attack inducing. I wish you a lot of strength for this incredibly stressful and painful time and I hope that you can completely conquer TSW very soon!
I agree, our medical system is something else. Thank you for your kind words and support💘
My husband suffers from the same thing, bleach baths and red light has helped more than his prescribed ‘roids
Literally !! Like wtf, my 16 month old is on a cream that was pictured in this video !! I do not put it on him daily but now I’m concerned like why have I never heard of this ?!! Omg
Oh honey, tsw sufferers are the most amazing strong people!! You’ll get through this!! We all will!! Sending lots of love to everyone going through this!! We’ve got this!! 💕
thank you so so much 💘 really need this especially right now going through a difficult flare. yes we’ve got this!
@@Jada I’m so sorry to hear that, remember flares are a sign of healing and they need to happen!! Rest up honey and be kind to yourself, this is not forever!
I dont have tsw but I have crippling depression and anxiety and its so inspiring to watch you commit to something you love despite going through such pain and anguish. Im a new subbie and like to watch the very first video of the persons account then the one that brought me there to see their jounrney and yours is really motivational. Sending all the love, light and positivity to you ❤
I am so so sorry about what your going through, you are healing I can see it these last months. Stay strong…
I managed to heal almost completely from severe eczema. You can do it too. It took me while, yet natural healing is the only way. Good luck.
yes!! only doing natural healing right now, feels good knowing it’ll be over at some point💘
How did you manage to do it?
@@smoothoperator7023 Go natural. When specialist told me there is nothing they can do to help. (I believe they are lot more honest with me since I’m a nurse). I decided to do it on my own. No meds, all natural. Leaky gut diet was the hardest. There are few supplements did amazing.
How did you do that? Thanks🙏🏻
hi, i just want to ask if did u change anything on your diet?
I feel you so much! Nearly 9 months in and I’m still healing.. these past 9 months has been really difficult and each day it becomes harder to imagine myself having clear skin🥺
aww i’ve been following your journey too my love!! it’s so difficult I know but we’re frikin troopers we’ve got this💘
I used Steriod paste and oral taking over 20 yrs, injection over 10 yrs , so crazy..I used 6 years to heal over 90%...we can do that...we need patience.
so so proud of you!! and yes healing is inevitable that’s what we’re made to do!🫶🏼
🥺I used to have TSW from having eczema and psoriasis. I completely understand how you feel and I’m so sorry it hurts so bad. My mom found you and was opening up to me about how much she used to hurt and be so scared because she thought going through TSW would literally kill me. She decided to go holistic when I was 12 after dealing with doctors since I was 2, because she hated how the doctors literally weren’t helping me. I would love to share remedies with you if you’re even looking for any! 😩 above all I just truly pray your mental truly only grows stronger. TSW can make you a shell of who you are but seeing you achieve traveling and being able to eat freely is a blessing. I have really bad food and seasonal allergies (they were worse and More extensive), so I literally didn’t get to eat much and going outside was hell. Whether sweating from running around causing itching, 🙃I was allergic to turf at the time, or just having to stay in because of the season changing and the heat/cold.
Really hope you find what works for you. I feel you deeply and personally. And I’m super proud of you because you’re doing this “alone” as an adult 😭💕💕💕💕💕💕💕
Your bf is such a great human being. A person's indomitable support for us means a world to us... (I'm suffering from eczema, albeit not as serious as your condition, I can feel you.)
he’s seriously wonderful, i’m eternally grateful for him. we suffers need all of the support we can get. sending you love❣️
I can relate to your experience because may 5 2022 I was diagnosed with dermo myositis it's a rare lupus. I CAUGHT THIS FROM GETTING COVID-19 .and its been a journey far as weaknesses and the rashes that cover my body ..but I so greatfyl I came across your account... I just want you to know that GOD HAS THE LAST WORD 💝🙏 KEEP YOUR HEAD UP 💕 FAMILY IS EVERYTHING
I’m so glad you’re posting and I’m glad ur sharing ur story and spreading awareness
Jada - wow. You truly are such an inspiration, I couldn't imagine what the past 7 months have been like, but im in absolute awe of you girl 🤍you are so strong and a representation of seeing the best in all situations and circumstances no matter what. Ive been a follower since early this year and I've followed your journey along the way! So proud of you and happy to see you back🥺sending so much love your way on your healing journey, forever proud!💕💕
ohhh sienna, thank you so much!! messages like these make me feel so grateful, can’t say thank you enough🥹🫶🏼
Im going thru TSW 2 yrs alr too. Keep hanging in there. Its hard and torturous. I know how u feel. Will keep u in prayers.
likewise, we’ve got this!!💕
Jesus. That's terrible. Im glad you are speaking about it ..bc I've never ever heard of this before and i work in healthcare and I've heard about some pretty obscure stuff...so im sure there are a lot of folks that don't know this could happen
Been going through this crazy TSW journey for the past 8 months and I can totally relate 🙏🏼 time patience and love for your body are the best 🤌🏻
Sending love and support from Paris
Aghhh you've got this! Sending so much love and healing energy
Are you finished with tsw?
I wish you nothing, but lots of healing!
thank you so much!!💘
we missed u sm!! wishing u nothing but love & healing 🤍
i’ve missed you!! thank youuu💘
Love you girl! I’m 3 years in 😳 Living my life (kind of) back to normal now, mentally hard but there is a light at the end. so glad your doing better :-)
I love you so much too angel, that makes me so so happy!! I’m glad you’re doing better too so much love to you!💞
5:32 ME TOO! I would be homeless if it wasn't for my sister covering the rent for 2 YEARS until I got approved for disability. And my aunt for giving us great rent in a time of brutal inflation.
I have said it once, I'll say it 1000 times... I could NOT do this without my family!! The guidance and support of my sisters!!!!!
I don't know how anyone does this alone... going through medical turmoil. If anyone out there IS doing it alone, they need to know they are the strongest-willed people on the earth!! If souls had a bench press competition, they'd be benching 1000 lbs for sure!! 💪
How long and how often did you use the topical steroid for? And on how much of your body? Hope you're doing much better now
I’ve experienced eczema throughout my life but not to this degree. I too would never wish that upon anyone… I can imagine that was hell for you. I’m glad you have/will experience some level of recovery.
I have used hydrocortisone but thankfullyyyy I was warned about the steroid from the start and used it sparingly (just when desperately needed). The only thing that has truly helped me keep eczema at bay is cutting out most desserts/sugars (not including fruit) and processed snacks. My doctor doesn’t understand the correlation of course. It’s a pattern I’ve noticed with my own body and I wonder if this could help anyone out there.
Love your share and I see your resilience 💪
I'm so glad to see you back on youtube and that you're feeling healthy enough to come back! my younger sister has bad eczema on her arms and legs and you sharing about tsw in this vid and on ig has been eye opening for me (currently being semi-treated by natural butter oils not medicine creams)
& this video gave me kianna Naomi vibes in the best way (love her) really enjoyed
thank you angel!! i miss your presence in my comment section! and kianna is my girlll what a compliment xoxo🤍
Thank you for advise. I was watching some of your previous videos and didn't realize you are healing so beautifully, praise the lord! Any advise you can give, cause I'm currently suffering from eczema and its been years. I don't go a day without scratching.
Hey welcome back 😊
thank you for sharing your story and being vulnerable. glad to see you back
We do learn about tsw in med school. I dont know if u went for a second opinion if ur doctor didnt know what it was. But it is a known side effect of steroid discontinuation
Thank you Jada for sharing your video! Today marks my 10th month of TSW and I am still going thru everything and just listening to you share your story gives me hope and you encourage me like all other TSW Warriors do. Everyday like they say, is a day towards our healing! And you're right, going thru TSW has made me so humble, thankful for everyone in my family who are supportive and just a different way of thinking now. I appreciate everything and everyone. Blessings to you and to ALL TSW Warriors!
so proud of you!!! aghhh we’ve got this so happy you have a great support system for this difficult journey♥️
How long were you on steroids for?
@@Safarjen About 2 years
I hope you see this, I’m going to pray for you. There is a book called The Perricone Prescription. He is a dermatologist who also uses supplements to help you heal.
The book is old, but good. Doctors weren’t even aware that fish oil was beneficial at that time. I went through it taking oral steroids for years and I mess never told of the side effects. It wasn’t until my skin thinned that the doctor took me off. I am so grateful that I have found healing, it started when I was 14 and I struggled with it until I was 30.
this too shall pass, it is and it will ♡
yes yes yes♥️
Only 1 week in and I already got open wounds and it stinks and sometimes oozes :( If I knew what would befall me, I would have never even touch corticosteroids...
Any improvement ?
@@Dan24. Oh yeah, a lot of improvements. Luckily I didn't use corticos for too long. And the process is like people say: "all over the place". Sometimes it gets all good, and sometimes they just pop up. Often when body is stressed
@@Juznik1389 glad to hear!
Where did you use the steroids ? I used mine on the cheeks because of massive redness and itchiness that was caused by a bad reaction to a moisturizer. I used the cortisone cream in 7 days within 10 days with 3 days where I took a break.
My skin feels tight and uncomfortable. I will stop using them now but I’m worried about getting topical steroid withdrawal.
@@Dan24. Let's say it's a spot close to where the sun don't shine 😅 I used my cream for some months because of a fungal I had.
Yeah, it will feel like that. But just remember that for every hour you put in by not applying any cream, the closer you are to being free.
I have plaque psoriasis and I am so thankful my dermatologist let me know about the dangers of tsw if used too long. They told me i shouldn't use topical steroids longer than 3 weeks because of the strength. They gave me a vitamin d cream to use once the steroid cream reduced the swelling and I dont have to worry about my skin thinning with it.
Also remember most skin conditions are controlled by our emotions. The more stress you're under the more you'll more likely experience these skin flares.
One of your videos just randomly popped on my feed. I also have eczema and was recently prescribed a higher dose of steroid cream. Did it work yes. It said to only use once a day for a week or two. But then my doctor was like i keep using it. I THINK NOT!! I never even heard of this before and see the love to try to give use quick fix with horrible side effects. But anyways im praying for your healing journey. I saw you went to Mexico and being in ocean helped. Im guessing the salt water? I have too watching your videos. But thank you for being brave and showing us your journey.
The system is so broken when they do damage but refuse to help heal that damage!
hate seeing you cry, so proud of you! wishing you fast healing ❤️🩹
🥺thank you so much!!
Love you beautiful you’re literally amazing ❤ you’re doing so great ❤️❤️❤️ much love from NYC 🫶🏼🫶🏼🫶🏼
I love you and miss you so much♥️
i have atopic dermatitis and i was on corticoides since i was a baby, nothing helped, i was getting worse, my skin had infections and i went to so many doctors with wrong diagnosis just making it worse. until i found a good dermatologist, he took the corticoids out, he told me to not apply anything for a week and let my skin heal (it was painful tho) and then gave me three to four different lotions to apply and he found, by a simple blood work that any doctor i went to before could've done, that my eczema was triggered by severe allergies. Back then i wish i had content like this to educate myself and feel like i could still have hope.
I'm 21 years old and 80% of my whole skin is normal, sometimes i get breaks here and there but it doesn't tear, it doesn't hurt, i can move, i can wear clothes, i can finally wear clothes for winter. I hope you heal, sending you all the love ❤
If have anyone has eczema, Here is the secret that help my daughter become she has it. I learn to have food that is avoid certain acid base, food groups, eat healthy. I would give her a bath every month to soak in peppermint ,goats milk , oatmeal vitamin E, breast milk, and avoid anything does have chemical base soap like dove, dial,etc… so start reading your ingredients that helps with eczema and her skin healed over time. It helps her. She loves it and still do it now since she is an adult now.
Stinging pain? Sensitive to touch probably? I like the yellow 💛 walls.
Hey! Jada I am so so so so happy to see you back and I really really missed your vlogs so so much you are my inspiration and I wish you reach 4K Subscribers very very soon!✨☺️❤️
hiii! thank you so much my love🥹💘
Ahhh yes jada I’m so glad you posted, your such a strong person jada you deserve the world
hiii miss seeing you in my comments ily 🥺
So messed up..this is what im saying about these meds they put people / or prescribe
This question is hunting me but, is it possible to heal? I mean this with the most genuine and caring intentions in the hope that it is possible to cure.
So sorry you’re experiencing this 😢
Jada, you are a true light to this world. I wish you nothing but healing, and love as you so much deserve. 🖤
reese ily ily thank you💘
600x THE STRENGTH OF HYDROCORTISONE WHAT?!?!!! I am appalled the doctor even thought about prescribing the medication to you. When my eczema was bad, the doctor refused to give me anything strong (told me some people have it worse and I will develop immunity to the medication, making me NEED higher concentrations)
Did you try the celery juice method from Medical Medium?
Medical negligence in America is unreal. I was prescribed a sleeping pill when I was 14 because I suffer from severe insomnia. Like can go four days without sleeping and still not sleep kind of insomnia. My body was breaking down. I had pneumonia. I needed medicine for sure. However, my doctor prescribed something that is typically given to soldiers returning from war and then for no more than two weeks at a time. I was prescribed it nightly for 7 years before I finally looked into what I was addicted to. Anyway, always double check what you’re being prescribed. Much love ❤.
thankyou so much for telling your story, i’m going thru the exact same thing right now this is inspiring and i understand EVERY single thing your talking about and describing in the process 🙏🙏
this is what keeps me motivated, I want every person suffering to have a safe place 🫶🏼 thank you for watching, i’ve got you
My sons had this. It was devastating. Luckily we finally found a natural solution (a shea butter based cream) from Goodies Organics (it's a small mom and pop brand i think, anyway we have not had to see any dr.s or elidel since. . Blessings to u. Happy to see the healing.
rooting for you girl! you are so beautiful and strong! ❤
I've been diagnosed with Cutaneous T-cell Lymphoma, blood cancer of the skin. I'm 75. My disease affects my skin with lesions, rashes and horrible itching. The cancer medication takes away the itching and some of the lesions but the side effects of the medicine have damaged my organs. I'm sorry you are going through this.
I LOVE YOU SOOO MUCH! You are so strong! Can’t wait for your content! Welcome back❤️
aww I love you so much!🫶🏼
Hi, try getting DMSO cream and also take it internally and MMS. Hope this helps. Peace and healing
You should read the book “breath” by James Nestor. I suffer with eczema and since I fixed my breathing my environmental allergies have dissapeared and as a result my eczema is so much better.
I went through TSW for like 3 years, doing diet changes and everything but nothing seemed to work until I read that book.
I hope you read it and it works for you. Keep up your journey and whatever you follow, I hope it brings you peace from this horrible condition.
aww thank you so so much!! sounds like a great read
I got prescribed topical steroid back in college for these weird bumps on my hands but never used it cause I had heard side effects could be bad, but wow, never realized it could be that bad.
Do you still get them? It could be dishydrotic eczema. You can use OTC hydrocortisone. It isn't strong enough to cause the issues this woman has.
Ik this condition is different but I had really bad eczema growing up and I hope they still sell this shit bc after a few months of using I never had eczema again. It’s neosporain eczema line! It has body wash cream itch cream etc. I just used the lotion and itch cream which was the best! And I used everything even had steroid cream and it just didn’t work for me. It hurts to know ppl struggle with this! And if u get your hands on it plz try it out!!! Bc it changed my life! And I really think it could be if it you!!!
So glad I found your channel, I suffer with a skin condition called lichen planus. The flares are so intense that it shuts my entire life down for several months. I can totally relate with everything you've been experiencing. God bless you, I hope things have gotten better for you 💜🙏🏽😇
Thank you so much for your story & courage & helping us also HEAL OUR body through Steroids.. I’m actually feeling HORRIBLE like death after getting an injection and it dropping me .. anxiety level 9 depleted feeling 10 .. feels like I’m gonna die 10 +… but watching other people’s stories helps calm me down & thank you 🙏🏼 it’s so sad these drugs have such bad drops 😱😭😭😭
I am so so sorry you are going through this. ❤
aww absolutely! thank you for watching warrior, you’ve got this❣️❣️❣️
Nurse Practitioner student here - I barely remember the derm portion of my pharm stuff but they did mention it briefly - I know they said to start low go slow with steroids and they strictly restrict the strong ones. If you got a strong one, they have stages, you prob shouldve been given info on the risks but there also should be protocol for stopping…
Im from CLT as well. I’m sending love, prayer and blessings as a fellow CHARLOTTE NATIVE.
Just seen a random video on Instagram and had no idea what this was. Decided to look it up and found your video. You’re a strong person and good on you for documenting it, it will 100% be helping other sufferers. Hope you heal up well. Sending love from Scotland❤️
mathew! i’m so glad that i’m able to be this source for others and that it’s finally being more talked about. it’s a brutal condition no one should ever have to go through, thank you for the love!! 💘🫶🏼
So if you use a steriod cream again, does it go away?
Omg thank you so much for talking about this. I’m planning to go to the dermatologist because I’m pretty sure I have ezcema. God is good, I hope he will bless you in your healing journey.❤
No one ever told me not to use my steroid so often but eventually (10 years later) I was told to find a routine that didn’t depend on it, luckily I can turn towards a multi step routine, thank you for spreading awareness, this has encouraged me to not use the steroid to simplify my routine
you are so brave. I did share my journey on my insta but never have the courage to share my visual looks etc. I made pictures during the progress but had to remove them from my phone because the trauma and trigger it would bring up. im 10 months in and still heartbroken that the once happy innocent girl is no more. i miss putting on make up and dress nice and dont worry about my skin. seeing your video and hearing your journey gives me courage again. It really helps when you don’t feel alone going through this. you are so positive i envy you. stay positive because depression causing more stress is maybe the hardest part from this. you are already doing a good job. sending prayers and much love❤ stay strong
oh angel you are so strong. I can heavily relate to the trauma of even just seeing photos on your camera roll. it’s an extremely difficult journey that no one really understands unless you go through it. just know you have such a strong community around you and we will soon be able to live happy normal girl lives again, and you’re still beautiful my love this hell will not last forever💘
How long were you on steroids for?
Hi Jada! I'm so sorry to hear what you had to go through these last several months but I am so proud of you for being so strong and deciding to live your life :) thank you for sharing your experience and please take a the time you need to heal , love you so much
thank you so so much, so grateful for you🫶🏼
If i may ask why the heck would anyone ever use the steriods to begin with , exspecially since it only makes it better for a little while. You cant use it forever .
Maybe she wasn’t provided the information or support necessary to make a different decision. 🤷♀️ I don’t know her story fully but I imagine some people got started on the steroid dependency journey from a young age, like when they were a minor.
I am very proud of you and very impressed, you have a great power that is very rare, Keep going
Hi Jada, Im also going through tsw 😞, have been following you on TH-cam and tiktok, how ever I cant seem to find what steriods you have used. I had been using elocon for mainly my hands and wrists my usage was daily when i got pregnant so had been been using about a pea sizs daily then all of the suden started getting little bumps on my face and thats when I found out about TSW through social media. Currently 7 months in.
hiii! i'm so sorry that you're having to go through this as well :( I used triamcinolone and clobetasol. yeah, it's sad that even the pea sized prescribed amounts are causing people to experience tsw. sending healing energy and love your way
Thank you for reply, yes its horrible. I think ive always been addicted since infancy. I wil be praying we make a speedy recovery. God bless!
You are so strong Jada ❤sending you so much love
thank you julia!!💘
😊
I'm so sorry you had to go through with draw it's so painful I pray for you
Welcome back to TH-cam! 🥰 ps. the editing of the intro/voice over part was so good!
thank you queen 🤧
i think im going to have go through tsw soon I hope you heal soon ive been really anxious to start do you an ig to keep up with your journey?
This video reflected how amazing and strong you are ! Will always be here to watch your videos whenever you can upload
so beautiful to see you back on here wishing you more healing and strength to see you shine🫶🏻
lily belle thank youuu🥹💘
I'm only a month in to tsw :( I can barely use my hands and its getting worse everyday :(
Worth the healing tho... also trying nmt, but not 100% sure whats okay and not okay. Any suggestions?
i’m so sorry my love, please try increasing your protein intake by a lot, it really helped me to repair my skin cells quicker as that’s what protein is meant to do!! I hope healing treats you kindly❣️
Hey. I went thru this in 2020 and I know it sucked but it’s reliving to see someone else that’s a POC so I can have someone to relate to. I’d like to swap stories or routines or anything that we can do to help each other.
exactly why I wanted to share, I see a lack of poc peeps represented with this condition so hopefully me sharing opens up some conversation and creates a safe space, sending loveee💘
How long did it last when you stop steriod cream?
Hello from Indonesia! i am an eczema survivor
hi!! welcome, and thanks for watching!!💞
We never heal when we’re alone … it’s a constant battle
Yesterday doctor prescribed me steroid based cream. And its healing. But now i am afriad after some videos of like side effects of it. Should i stop applying it. Olz suggest me
stop while you can!!! there are definitely other ways to heal, i’m so glad you saw this video sending healing vibes to you!!💘
an incredible human.
🥺🫶🏼
Have tried using aloe vera
Did NMT work?
yes! for me it worked wonderfully to heal my body and face :)
@@Jada how long did you do it and did your body get worse at the start then later heal.
Im in Rocky Mount, NC.. we should hang out sometimes.
thank you so so so much for sharing. im not in tsw, but ive had severe eczema on my face for a whole year now and have shared the experience of moving home around age 19 due to it. i appreciate your transparency.
aww sending a lot of healing energy and love your way, thank you for watching💓
So terrible that the medical community doesn't take accountability for the side effects of their prescriptions.. Should be illegal. I'm sending lots of healing and love to you 🩷
I left Africa in 2007 and moved to the UK, few months later I had eczema and my doctor prescribed a topical steroid cream, I could never come off it for even a day my face was unbearable to see or to feel myself too ichy and horrible, I have tried to heal myself natural I couldn't,
Struggled all these years, but to the shocking I started low cab diet and 2 days water fasting weekly for 3 months and OMAD there after, my body cleared and perfectly healed, guys it's a miracle and all took me 4 months to achieve this and I was still using the steroids to continue my daily routine as I could not step outside without it,
I only went on diet to look well, I was not fat or ill and that's the suprise I have got on my birthday Xmas day
Hope you will heal soon as well
Please anyone being trying the withdrawal consider to change your diet and fast fast fast good luck my community ❤️
I’m sorry you have to go through this but I know after this situation you learned so much. I’m going though withdraw Zyrtec, yeah…Zyrtec! I never thought. But I’m on days five and I’m getting better everyday. I know my is not nearly like your but I do understand you. I have intense itchy skin too. A little different than eczema but Similar. I tried dupixen injection 2 times already but I see a lot of people said it works from beginning but stopped. So I think I’m stopping for now and let it heals naturally. Thank you for your video.
oh no i’m so sorry that sucks! sending all of the healing energy💘 thank you for your love❣️
I didn’t know u can get withdrawal from antihistamines? Are the symptoms the same as tsw?
@@estelle8757 ….it not so intense but very uncomfortable. So please be careful.
@@estelle8757It’s mostly with Cetirizine because it’s the strongest antihistamine. When you stop taking it you can get generalized itchiness that resolves in around a week. I took Zyrtec for 4 months and stopped abruptly with no symptoms but it’s very common to get withdrawal symptoms
HI JADA!! So glad you uploaded
💘💘💘
I’ve used them, my son has used them and neither of us have had any such thing. Is this possibly another autoimmune condition? I even had steroids injected into my head, over 100 shots every month for years and no weird withdrawal.
Not everybody gets TSW. It is still unknown why only some people develop TSW, however, it is a known condition that gets taught in medical school by now. Sadly, there's not many studies done, research into TSW is still in its infancy :(
@@fuchsfarben it just seems like an autoimmune reaction. It’s kind of like Stiff Person Syndrome, we know it’s autoimmune by now but still hardly any doctors know about it and people are suffering greatly, some even losing their lives. It’s so very frustrating when you can’t get the help you need.
Heyy babes I’m glad you are doing better ❤
thank u angel!!💘
How long is someone on TopSterCream before they develop the withdrawal when stopping?
Some people only a week. It really does depend. Overall wouldn’t recommend using them to heal :(
@@Jada Sweet Baby Jesus. Please tell me there's not a 6-8 month withdrawal for a week of "good" skin.
Nice premo how are you now I'm in exactly the same situation one week 😢
I'm going through it as well. It will be three years of my TSW journey.
Happy TSW anniversary!! Power to you my love!!
@Jada Jones thank you I appreciate that so much.
Thank you Jada for sharing your story so publicly. You are setting a wonderful example for young people showing that a person can overcome life-altering hard times and while in the midst of it become a stronger person filled with gratitude and the desire to help others. Bravo young lady you are beautiful inside and out, I know your parents must be so very proud of you!
I am a caregiver to a gentleman going through TSW. The suffering is absolutely heart breaking! Doctors didn't understand that it was TSW and prescribed five days of oral prednisone three different times. After the 3rd time of the 5 day dose of prednisone the rash spread to more than 75% of his body. I am so thankful to all the gracious caring people like you who have humbled themselves to share their very personal stories helping others suffering with TSW. I have been documenting everything and I can see that a flare up occurs after eating any processed foods with dyes and preservative especially sulfites, also gluten, peanuts, bananas, too much citrus and tomatoes. If a flare up is coming on take activated charcoal drinking plenty of water all day to flush your system of toxins. I have found that ghee with tumeric in it can stop the itch in less than five minutes. It is like a miracle!! The brand is 4th & Heart with tumeric you can get it on Amazon. This brand is a more creamy consistency, but you can use any brand. Appy as much as necessary, but at least 2x's a day. I read that since it comes from a mammal and we are mammals it is better for our skin. Ghee contains the good omega 3 oil so cook with it too. Went cold turkey beginning of 11/22 and he is healing so much more guickly than the stories I have seen on TH-cam. As long as he eats clean unprocessed food and moisturizes daily with ghee, showering only every other day, he hasn't had a flare up. Praise God for the answer to my prayers!!
this is such a kind message, thank you!! amazing caretakers like you are so essential to our healing process. taking the note about ghee, sounds great!! sending all of my love to you and your warrior♥️♥️♥️
I am so happy to see you here!!!!!
I am so happy to be here!!!🫶🏼
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I want to end it bro I’m so serious I have to go to work with this sht
sending you healing vibes, i’m so sorry, none of us should have to endure this… please stay strong, my dms are always open to chat💘