I had a hernia. I asked a doctor to examine it, and she refused to refer me to a surgeon (I'm in Canada - I'm not allowed to see a specialist until a GP refers me) because "no surgeon would be excited about fixing it." Years later, after the hernia had grown quite a bit, I got to see a surgeon. I told him the GP story and he immediately asked for the name of the first GP so he could report her.
And that's one of the downsides to socialized medicine. My son recently had an issue, I'm a nurse and knew he needed to see an orthopedic surgeon first, then also a neurologist, so I just made the appt and bypassed the GP. I already knew enough to know a GP couldn't help us. He was toe walking all of a sudden, this can be nothing, an ortho issue with tendons or mean serious neuromuscular disease. Thank god we didn't have to rely on a GP that might have told us it's normal for neurodivergent kids to do this, because it is, but I know my kid and knew something bigger was going on, and it was.
@@jennh2096Living in the good ol’ US of getting sick will bankrupt you does Jack squat to prevent incompetent doctors from messing us up, it just guarantees it will cost us twice as much overall! 😒
@@jennh2096 The thing is, what you've just described can be done in places with socialised healthcare via the private healthcare system. There's _always_ a private system available. Most people don't use it though, because they can't afford it.
If I had a drink for every time I've heard a story about doctor saying something to a patient in obvious visible distress that is a variation of "You're fine, stop being a baby" and later on finding out something very serious is going on that is either life threatening or requiring urgent care after the patient either convinces the doctor to take a better look at it or by going to a different doctor, my liver would cease to exist.
And then when you go to the hospital they will tell you that is all in your head. I was diagnosed with bipolar depression because I wasn't obedient enough. Turns out that I was severely abused by my father and doctor and I have autism. Drink and extra drink for me ok. Maybe wine. Cheers from Italy
Here's my worst one: I went to see a new doctor about medication for my depression and he laughed and asked me "haha what's his name?" Yeah no dude I wasn't there because of a breakup. I was happily married and had bloody actual clinically diagnosed depression.
@@neophyte_7777That's the point. Depression is a neurological disability, sometimes there is no clear reason for it. It is caused by chemical imbalances in th le brain and that cant be treated with "happy thoughts"
@SmilingShadow-jl5tr @@psychedelicpunk5031 Apologies, it was a joke. Please know that I am aware that depression comes in different forms. I was only commenting about the oxymoronic nature of it. (A juxtaposition of seemingly opposite words such as "pretty ugly"). I have removed my comment and deeply apologize to anyone offended by my words.
When my mom was a paediatric oncology nurse, one of the “gold star” patients died unexpectedly. She was always the sweetest and most patient, and one night she came in with a fever. It was really busy and none of the regular nurses were available, so the travelling nurse was assigned to her. This nurse complained that the girl was the worst and so mean… turns out that she had sepsis. If any other nurse had been assigned to her case, they probably would’ve caught it
I hear so many stories (especially from women I know) about doctors misdiagnosing them for months and years. Multiple docs, specialists, and still being ignored or dismissed, before finally finding someone who does the right tests to figure out what’s actually wrong. What bothers me the most is this: all those docs and specialists who misdiagnosed them for all those years will never find out they were wrong. There’s no feedback mechanism to alert them that they misdiagnosed this case. How are they supposed to learn from their mistakes and improve their care if they don’t know they made a mistake in the first place?
Perhaps if they didn't dismiss the women in the first place. The times I've been told it's 'due to stress' even though I just said I wasn't experiencing any, I can't even count that on two hands. But all the men in my life have never, NEVER been told their complains were due to stress...
I don't think the path that most doctors take through education, at least in the US, brings in the most caring individuals. They spend all of their time trying to out-compete each other to get into schools...then we wonder why there are so many sharks in the water.
@@NefvilleYuppp, unfortunately. My uncle became a doctor because he liked medicine. He loves medicine. He's orthopedist now. Of course he makes a lot of money where he's at. But that wasn't the main goal and you can actually see it when someone talks about things that has to do with medicine.
1:00 In my struggle to stay healthy, I went from 'morbid obese', to 'obese', and eventually to 'overweight'. Still remember having my doctor walk in to the room, look up from the chart, and say "YAY!!! You're overweight!!!!"
I am overweight, that much is true. I was in urgent care for pain and had been waiting several hours before being seen. It was late afternoon by now, and I hadn't eaten yet that day. My husband asked the nurse whether it was OK for me to have a snack, and she was in the middle of saying, "I don't see why not," when the doctor walked in. "It won't hurt you to skip a meal. In fact, you could skip a few more of them."
I think I was 21 at the time, a junior in college. One day I woke up and found a lump on my breast. I scheduled an appointment with a doc (not my usual doc since I was away for college). When he walked in he acted very annoyed and the first thing he said was "You're too young for breast cancer. Have them schedule you for an ultrasound in a couple of weeks." No one even looked at the lump. Fast forward a week and the lump has grown. It was very red, painful, and even wearing a bra was too much. I went to urgent care. Turns out I had an infected ingrown hair that had gotten really really bad. They started me on antibiotics and by the time the ultrasound came around it was fine. I'll never forget the urgent care doctor, though. He was a funny little German man with a thick accent. He asked me if the other doctor had prescribed any antibiotics already. I told him he didn't even look at the lump. He immediately flew into an angry rant all in German. Then he stopped and said, "You don't speak German do you?" I said no. He nodded and said, "That's for the best. Now let's actually do something about this."
My worst one: I was fourteen suffering with severe depression and having symptoms of psychosis. After a particularly violent instance of self harm, my parents took me to the ER for treatment and to find an inpatient bed somewhere. I somehow ended up in a room alone with two male doctors. They both loomed over the bed and told me that it was a shame I was hurting myself this way because I was "ruining a very attractive young body." I will never forget the absolute shame and disgust I felt in that moment. It still haunts me 20 years later. PS - I am now living a healthy, happy life and haven't self harmed in 17 years. So much love and support to anyone who might be struggling ❤
@@Gr3nadgr3gory yeah I was honestly too terrified in the moment to do anything. I just froze. Other than my husband, I've never told anyone about it. As an adult, and now a parent, I am absolutely furious on that child's behalf...
i had an extremely similar experience when i was 16. very sad it happened to you but also kinda validating to know im not alone in hoping for change. wish stuff like this was talked about more.
@@noelgautreau971 I am so sorry that happened to you. And I know exactly what you mean - there is some comfort in knowing that when others speak out, we're not alone. These conversations are hard, but important. ♥️
My ex called 911 and told them I was suicidal because he was mad at me for dumping him. I was committed and explained the situation, but I was told that I couldn't leave until after being evaluated by the doctor in the morning, despite the fact that I had to start work at a job that I had recently started an hour before the doctor would be in. I looked through my paperwork to see if there was anything I could do and discovered that some of my forms were printed on the other side of another patient's forms, which included her name, address, social security number, and the reasons for her admittance. I quickly memorized some of her information and went back to the office with one of the pages, which I dropped on his desk. I told him that I have the other pages, recited her information, and told him that if I'm not released that night, I would be reporting them for a HIPAA violation. They had me released within the hour, and I still reported them.
As someone with constant stomach pains that’s been simply called “IBS” at the end of most GI visits, I feel this. I’ve had multiple GIs essentially just tell me “sucks to suck man, your stomach hurts and there’s nothing we can do.”
Did you ever get a different diagnosis? Either way I hope you’re doing better by now since 10 months is a long time on top of however long you were experiencing pain before 🤞🤞
Ill never forget when I was in labor and a male OB came in who I didn’t know bc my doctor was delivering a baby. He was insistent on doing a check to see how dialated I was. I told him I was very uncomfortable with cervical exams from males from past trauma and he was OFFENDED. He was like “I’m a doctor. You’re going to have to wait an hour at least if you want a female or you could just let me do it”. I was crying at that point and told him I would wait. He left the room with such an attitude, I ended up filing a complaint against him and he wasn’t allowed in my room again.
The right answer from his side would be to accept it, try to ensure you that you can trust all the doctor's in his facility including him and then give you the rational choice between if you'd rather wait or if you will reconsider.
being an ADHD/autistic adult makes me realize how little medical providers take into account how autistic kids feel. from dog bites to behavioral therapy, nobody’s gentle or informative. and my parents wonder why I tend to shut down during and after a doctors appointment. now that I’m an adult and standards for approaching patients has changed, surgeons are telling me every step of a procedure, therapists are understanding how I feel and not making me blame myself for my struggles, family medicine doctors are *so* communicative with their patients about mental health and finding the right specialist. I wish providers showed me this much compassion when I was younger.
I feel for you friend, i think i have been mostly lucky in that.. In my experience here in Sweden its usually the older doctors and stuff that kinda "Meh" at Adhd and autism
I have Asperger syndrome and I have been lucky to get a family doctor in a private clinic. I live in Canada, so our health system is ok and my doc always ask questions about my autism and my general health. I am saddened by your experience and as for the doctors that say that you don't look autistic, just tell them that you had all of your life to practice masking and that your medication is effecient. trust me, I have the same issue with my clients at work and I'm 27 years old.
I was admitted for heart issues. I suddenly started shaking uncontrollably and my heart monitor went off and the nurses rushed in. One nurse yelled at me to stop shaking. I couldn’t. A doctor came in and asked why I was shaking. The nurse rudely said that she didn’t know and that I was refusing to stop. The doctor was concerned. Made them take a bp reading. It was so low the monitor couldn’t read it. The doctor yelled at the nurse that that was why I was shaking, something was clearly wrong. Turns out I had an undiagnosed kidney infection and had gone into septic shock.
After getting diagnosed with a personality disorder by my therapist, my psychiatrist told me she would no longer be treating me because "you can't be helped by anyone". I still had other issues that medication was doing wonders for, and was told it was just me being "medication seeking". Still reeling from that
DBT! DBT DBT DBT! "Can't be treated," my ass - DBT was a powerful and transformative treatment for me. Sure, it was challenging, but 1000% worth it. If I was seen by a new psych today, I probably wouldn't even qualify for a PD diagnosis anymore. Please look into DBT! It's a type of therapy, not even a drug.
Since I was 13, I've always gotten sick horribly and very often (like if i got a cold I would feel bad for nearly two weeks). After seven years of going to doctors and them all telling me that I'm "just being overdramatic" I finally found a doctor who took a look at the issue seriously. Here we are nearly a year later and I've been diagnosed with a genetic autoimmune condition that has apparently been affecting my family for generations. I cannot stress the importance of finding a doctor who will listen and take you seriously. You know your body best so if something isn't right and you know for a fact it isn't, advocate for yourself.
Which is what I'll be doing tomorrow at my neurologist appointment when asking for an MRI because of long term short term memory loss that has gotten worse. I always try to advocate for myself with health.
I wish I could do better trusting my body, but my anxiety (and “Dr. Google, obviously) made most of my symptoms hard to identify as a warning sign or not. Sometimes I feel like a “Cassandra” if my body really is warning me of something!
is it ehlers danlos syndrome? from the way you described it it sounds like that. i have ehlers danlos syndrome and it's a brutal condition and i hope you are getting the right and best treatment for it
@@cghforever1334 EDS isn't autoimmune. It's an inherrited connective tissue disorder, and no one really knows why it happens, at least in the most common form which is the one I have. People with EDS can have weird immune stuff like MCAS, which is an autoimmune disorder, but EDS itself isn't autoimmune. People with EDS often have lower immune systems, so they often take more time to recover from stuff like colds.
My little sixteen year old sister had lost a lot of weight in a short time (severly underweight, and a telltale sign of cancer), threw up everything she ate, was dizzy, couldn't get out of bed or even walk without a walker. My father begged for an MRI, no luck. They diagnosed her with a diagnosis that basically said it was all in her head (because she was transgender and had gone through some little trauma). Physically nothing was wrong with her. She had a braintumor. They found out three weeks later when she turned blind and the mental health professionals where like no this is definitely not a mental problem. She died a year later. If they had started the right treatment earlier she probably also wouldn't have survived, but the quality of the life would have been significantly better, as she may not have become blind. My father begged for an MRI for months before she got the diagnosis. RIP Jaxz
I am really sorry that happened to you, it sounds like a nightmare for you and your family. I hope you find or have found peace after your sister's passing and turn/have turned out okay. My heartfelt condolences.
Jfc, I`m so sorry that happened. That`s grossly negligent, literally. Sadly, I`m not shocked.. things like this happens way too often. It`s never ever okay, and stories like these SHOULD be shocking and surprising to hear/read about, however, gross medical malpractice has gotten way too normalized, and that`s so not okay, to put it mildly. I`m so sorry about your loss.
This broke my heart, I'm very close to my sister, it's just us - I know if anything untimely happens to her - a piece of me will die too, I am so sorry that your sister passed away, but remember - you carry her heart in your heart, deepest condolences to you and your family x
My medical records were combined with my identical twins bc someone decided we were the same person since our last names and date of birth were the same. Took years to convince my insurance that I actually existed after this and the hospital wouldn’t even speak to me bc of HIPAA since I wasn’t a patient anymore since they combined our charts
I feel bad for twins when it comes to medical records, especially if the first names are similar. Our vaccination records specialist has had to manually untangle records from twins/triplets several times because the automated de-duplication process keeps combining them!
Oof. My dad (who is in his 80s now so different times as well) had the same first and last name and maybe even middle initial as another guy in the same town. I don’t think they ever got medical records tangled but when he was ready to graduate from community college they tried to tell him he didn’t have enough credits and was in academic probation- they had the other guys record. He also had similar issues with the same dang guy at the freaking bank. He started having to carry a birth certificate to prove which of the two same named and similar aged dudes he actually was. Like would have to prove who his parents were to get it all straight.
Here’s one on my list of many: I went to a different GP at my usual practice with cold/sinusitis symptoms. I told her I had a pretty sore throat, so she had a look at my throat. She made sure to tell me that both my throat and tonsils looked fine and non-inflamed. Thing is… I haven’t had tonsils for over 15 years. I left the appointment in shock. 😂
When I was a teenager I got contact lenses and the novelty made me pay attention and I noticed that something was off with one of my eyes. I couldn't exactly describe it. I went to my ophtalmologist and he did a lot of test, including a retinal scan, and said it was just a corneal abrasion that would heal on its own. I came back a couple of times becase I still felt something was wrong, and on the last visit the doctor took my mom to the side and told her "what she needs is a psychiatrist. This is just attention seeking." Luckly for me my mom took me to another doctor for a second opinion. I had to have emergency surgeryto fix an advanced retinal detachment.The surgeon couldn't undertand how the other doctor missed it because it was pretty bad. But my worst experiences with doctors were when I was a relative to the patient, in both cases my parents. The first, my mom had an accident and was declared brain dead on the ER. While we were waiting I left my 80 year old father alone for like 10 min. He was in a bad state and had told the doctors that I was to be the one to make decisions and up to that point the doctors had all spoken to me. But one neurosurgeon waited until he was alone to speak to him to recommend some miracle surgery. When I came back I could see the stars in my dad's eyes, he was so hopeful this was going to save her. I talked to the surgeon because it seemed weird, and he finally admited it was a surgery to remove bone fragments from my mom's brain, and that it would make no difference to her. She still would be brain dead. I guess he just wanted the experience or the money. I'll never forget the look in my dad's face when I explained to him there was no hope. I broke his heart again and it was totally unnecessary. Then with my dad. He woke up with severe abdominal pain. After hours of waiting on the ER a resident barely looked at him and said "he's dehydrated," asked a nurse to give him IV fluids and sent him home. I guess he just looked at some old man who wasn't complaining (he was pretty stoic) and assumed there was nothing wrong. I asked him and other doctors to at least examine him and they all ignored me. A nurse told me to go the staff room where the chief was and make a scene (I guess the doctors ignored her too). The chief came and diagnosed him with a ruptured colon, he needed emergency surgery. The guy called all the residents and screamed at them. Apparently it wasn't the first time they dismised a patient because of their age.
😭 Reminded of me of my grandfather, sadly he passed away on July 22nd due to incompetent care and miscommunications between doctors of different specialities.
Awful stories, especially distressing when there is a known, established work around that nurses know about to get things attended to. Well done on advocating for yourself and your parents though!
I have a lot of stories that compete for worst, but here's the most obvious one. I was on a trip away with my husband and scratched my arm on a wire fence. We found a local doctor and I went in for a tetanus shot. I got it, but was also treated to a lecture about how I need to lose weight. The thing that makes it the worst: my husband and I went on the trip to distract ourselves because I'd recently had a miscarriage. The extra weight was from carrying twins
i keep thinking people cant get any dumber but they keep proving me wrong i dont understand the thought process of how its a good idea to try and lecture someone about a situation they dont know about and also about the fact how its a good idea in the first place that doctor really isnt fit for his job
Went for a very expensive private neurologist after being dismissed by many doctors (mostly male). I had the means to pay for the appointment which is already more than most and I choose a female doctor knowing about gender bias. She made a quick examination and talking to my father instead of me decided I needed to make friends and learn to play a new instrument. Note: I had so much joint pain that most days I couldn’t properly hold a fork to eat. I left the clinic in tears and I still have anxiety crisis every time I have to visit a new doctor. I was later diagnosed with Ehlers-Danlos, a rare genetic disease, mainly because I knew something was very wrong and kept advocating for myself.
I'm sorry for your experience. I have EDS too, and I've been fobbed off for as long as I can remember. On the rare occasion I find a medical professional who treats me like a human being with a painful, complex medical condition and not an attention seeker or pill chaser, I could cry. I've given up searching for experts because even they haven't helped me when I've pinned my hopes on them. These days I just deal with it myself. I wear my braces, tape up my injuries, laugh off the comments about damaging XYZ *again*, and I just trust that those who really know me know I would never ask for this.
This is awful! EDS isn't even so rare that a doctor could reasonably be forgiven for not knowing about it?! I hope you're doing better and getting proper support now!
I'm on a 2 yr waiting list to get to a Dr that handles that. He is the only one my insurance will take... I don't envy you one bit and I know the struggle of self advocating vs dr bias, especially against chronic pain. Rn I'm under the assumption I have fibromyalgia (rheumatologist in my network won't accept my insurance though they technically are covered). I have phases where it's all I can do to get up to go to the restroom and take care of those needs. If I didn't have family as caretakers I'd have starved or died of thirst by now because the pain is so overwhelming at times. That or I'd have outright given up. Yet doctors think the pain is "managed" by the meds I'm on because I hide my pain in public and they don't think anything of the appointments I have to cancel bc I physically cannot get there.
Over a decade ago I was in surgery and, unbeknownst to me, the surgeon struggled with substance abuse. A camera was forced through my aorta and up into my heart. It was horrible. I bled out and a 45 minute surgery went on for about 18 hours, followed by six weeks in a coma and months of physical therapy. I’ve still never gone back to my old work. It was awful.
Here is my worst experience with doctors. When I was 6 years old, I started complaining a lot about pain in my belly. They did a lot of tests, a lot of analyses, but the doctors didn't find anything special. They said it was worms or small infections from what I ate. I took a lot of medication. It got to the point where I was going to the hospital every week, and the doctors started accusing me of pretending that I was in pain, that it was simply a tantrum to not go to school, basically every excuse you could think of. A year and a half later, I stopped eating, I was just vomiting and I couldn't do anything at all. I was admitted and stayed there for a week. I was already pale, I hadn't eaten for over a week and the doctors didn't understand what was happening to me. They told my parents to take me home, that it was better for me to spend my last days in a familiar place. A young doctor doing rounds wanted to take my case, asked for an ultrasound and discovered that my appendix had ruptured. I underwent emergency surgery and it was discovered that the appendix had already ruptured many months before, if not a year before, but constant medication disguised the symptoms. I was severely infected and at death's door because no doctor had ordered an ultrasound to find out where "the small infections from what I ate" came from, as they said so often.
@@aallen6016 I didn't have any damage to other organs, I was very lucky. However, as of now, at age 26, I suffer from endometriosis, adenomyosis and PCOS, it affects my gastrointestinal tract a lot (IBS symptoms) and, therefore, the doctors monitor me much more, taking into account my entire history with the appendix. They think it may be correlated. But there is no certainty. My parents thought of suing for medical malpractice, but in Portugal that is a "crime" that is barely recognized by law, and therefore, nearly impossible to sue and win.
@@ServantOfArRaheem Unfortunately, in Portugal, medical malpractice is a "crime" that is barely recognized by law, and therefore, nearly impossible to sue and win. No one in their right mind will sue, lose money, and lose the case.
My old OBGYN told me that my pain and bleeding after sex was "probably just because you're husband is well endowed." I went back and advocated for myself and turns out I had a cervical polyp! 😑 After that, she removed it in surgery and I made a full recovery but I never went to her again once I was cleared at the post-op appointment.
It amazes me sometimes how doctors who specialise in the female reproductive system can still have so many ridiculous stigmas. Like, you went to school for this right?? Fortunately there are the good ones out there too. So sorry that happened to you.
I had to see 3 different OBGYN providers about my pain before it was taken seriously. First one they were kind of rolling their eyes at me because I was in pain during a procedure that "shouldn't hurt". Next one I went in told them I was in pain and asked if it could be an infection of some kind. Hey did the test and were like "nope, not infected. See you later!" The third one was finally the one who said, "oh, this is a problem for your life! Let's figure it out!" Turns out it would have been easier to fix if it had been found sooner, but I just spent 18 months with unexplained pain and then it took 4-5 months afterwards to get back to normal.
@@errantwinds-up8uu the entire medical field is full of misogyny. look at how they conducted clinical trials for birth control pills. or why they still haven't approved male birth control yet.
A friend of mine in high school overdosed (we went to school in the slums, the kind of place where school nurses have naloxone on hand) and the ER doctor treating her while she was slipping in and out of a coma told her directly that she was making his job more difficult by not "just waking up or dying already".
That is horrible and should never be said to anyone to their face. But I will admit that working late night ER shifts at animal hospitals (I am a vet) I have had this exact thought. Like I said the should always be considerate of people but there is nothing worse than a patient that needs constant babysitting because they might code at any second. You kinda get desensitized to that kind of stuff (you have to for mental health reasons) and its never ok, as long as the doctor is doing their job perfectly, I would just ignore it. Especially for ER since a lot of those shifts are 12 hours minimum but you could end up helping out for 16-24 hours. Hell, I think some resident stay for 48 hours sometimes.
My worst medical experience was when I was living in Indianapolis. During college, I had developed epilepsy which caused seizures. I hadn't had one in a while because I was taking medicine. My doctor advised taking my medication once per day instead of twice to see if it would stabilize things. I had a grand mal seizure in a grocery store, cracked my head on a shelf (had to get eight stitches), and was rushed to the hospital. After I was stitched up, I started to seize again. The nurse ignored it while I slowly turned red, then purple, then blue while foaming at the mouth. My brother yelled for another physician, and they finally cleared my airway and performed CPR to get my heart and lungs working again (I had stopped breathing and was dead for a few seconds). I woke up a few hours later in the worst pain of my life. I now make sure I take my medicine as directed and haven't had a seizure since.
When I was 16 I went to my pcp to talk about birth control because of really terrible chronic ovarian cysts. She gave me a huge lecture and said “If god wants you to get pregnant, who are you to block the path he has for you?” 😳😳😳 Needless to say, after that day I was no longer a patient of hers.
thats so dumb i had a classmate she had significant issues relating her reproductive health and she bled so much during her cycles that she had to be on iron tablets and the doctors wouldnt take her seriously
Went to the doctor after relapsing with anorexia. He told me I was "a little underweight" (I think a grown-ass man weighing 91lbs should cause a bit more concern than that. I was dying.) and CONGRATULATED me on my (dangerously low) blood pressure of 70/40
91lbs? That's scary even if you're not anorexic! I'm so sorry. I have low blood pressure as well (70/40 too!). But, because I'm obese, they think it's a good thing. Yeah doc, collapsing after standing up is great. Having to lay down all the time just to stop the vertigo is fun. Assumptions about weight need to stop. I imagine many congratulate you on your thinness just as much as they blame every symptom on my weight.
@@nollypolly Yeah, my BMI was like 13.5. That's CRAZY they thought blood pressure THAT LOW was "Good" because of your size. Low blood pressure is a serious issue regardless of weight. Being obese isn't gonna stop you experiencing unpleasant side-effects from the hypotension. Yeah, people did. Well, at the low weight I was grotesquely thin so not so much then but when my BMI was like in the 16/17/18 range people (usually young women) would say like "Oh my gosh you're TINY!" and seem really excited about it.
One thing I hate about getting weighed is nurses always say something about how they wish they could be as skinny. Or I say something about how I struggle to maintain even my low weight and they say they wish they had that problem. Like, no. I’m lethargic, shaky, can’t eat large meals, and can’t donate blood. I wish people would stop acting like it’s so great to be underweight.
One time I was getting a pap test & I also had bronchitis. I had a coughing fit that turned into hysterical laughing when the speculum flew out. Luckily my Dr was an excellent catcher... 😂
My brother kept being told he had gout. He kept having the problems over and over. He lost his leg when they realized it was not gout, it was cancer. Two years later, he had passed away right before COVID started hard.
Are you Canadian? My brother went to school in Canada and the doctors inexplicably diagnosed every issue he had while there as gout, including anxiety and a broken toe. It’s become a family joke lol
I can pinpoint the real start of my ED cycle to something an NHS nurse said. I had struggled with my weight my whole life due to mental and physical illness. This one time, I was weighed at a standard checkup. I was overweight but very proud at having lost over 2st in recent months. The nurse practically spat the words "you're overweight". I smiled and said "I know, but I've worked really hard lately, and I've lost X." She responded with the nastiest tone and with a lonnng gaze up and down me, "mhm. Well you're still overweight. You need to lsoe more." To say that I cried after leaving that room is an understatement. I had never been more ashamed of myself in my whole life, and it still makes me emotional today. I've carried various severe EDs for years now, and I'm still terrified of making appointments in case they weigh me and judge me the same way.
Fatphobia in the medical profession is real, it gets incorporated into providers' egos, and it does an incredible amount of damage to patients. This needs to be addressed in medical education. It's never acceptable to treat a patient like this.
I once was at my lung specialist and got a different doctor than usual. He told me that my lungs were "perfect" and in the same breath also told me that I gained some weight over the last year and should diet. I gained weight because I got on anti-depressants. The previous year, when the clinic saw me last, I wanted to kill myself. Thanks doc.
I'm so sorry she was such a b*tch, she had no right to do or say that and I know it's hard but try not to let it affect you too much, for one; she's not worth the distress she's causing in you and for two; you're worth more than that horrible encounter. Remember that not all nurses and doctors on the NHS are the same though; there are some really good ones out there - my GP is the best and has done everything and anything to diagnose my (as yet undiagnosed) chronic pain condition for the last 17 years or so. Unfortunately, there are some horrible people in this world - be they doctors, nurses or presidents (dictators). Sadly there's not a lot we can do about them - except try to ignore whatever BS comes out of their mouths. You are beautiful, you are worth it and you are loved and cared about. Please don't feel ashamed for being you.
I'm so sorry that happened to you, that is never ok! And I'm so sorry that it happened. You are a beautiful person! Don't listen to nurses/doctors who have an ego problem. Just know that their just jealous of your happiness. Sending you love internet stranger ❤❤❤
Here's another but about my aunt. My aunt was in her 50's and was progressively going blind. Her eye doctor was so kind and said he was so sorry that there was no treatment available for this. She'd just be blind. One day she and her husband were at a hospital to see a specialist for him. I the course of the exam he asked her how she had become blind. He told her that he thought it would be a good idea if she had a second opinion and asked her if he could go find his colleague, the eye surgeon to have a look and see if anything could be done. Turns out this doctor had noticed she had cataracts cause when they're big enough to make you blind you can see them just looking at someone. Her hometown eye doctor had been lying to her about her blindness and never even told her it was cataracts. Her husband's back problem saved her sight! The surgeon set her up for surgery the next week and her vision is now 20/20. There are a lot of bad doctors out there who enjoy abusing patients.
It only just occurred to me, but a question I would love for my physicians to ask me about my physical discomfort/pain is "if this were happening to someone else, would you think it was acceptable?" Because I have a high pain tolerance, I tend to downplay things for myself. Might just be my own issues here, but I think it would be a good way of determining when a patient is "sucking it up" especially if they have trauma in their past which makes them displace their own comfort and needs.
I have an extremely high pain tolerance as a result of what turned out to be extremely frequent testicular torsion. That, literally the most pain my nerves can report, is my 5-7. I just learned to always add three, after that issue landed me in the ER.
I'd go to hell for other people when they are in pain. But when I literally felt like screaming standing up and I was just like, "Just another day." I also have a high tolerance. It has been nonstop for years anyway. The fact I tend to just go through the pain is something most doctors don't believe. "It can't be that bad if you can do x or y"
This! With the pain iI'm in right now, it would be unacceptable and I'd be banging down the door of a doctor's office to get results. But they want to tell me it's my depression, anxiety, ptsd, you name it.
Also constantly in pain and had some 8/10 often and they acted as if I was exaggerating. Most help I've gotten so far for it is antidepressant and B12 LOL. Still in pain just as much.
I could tell you plenty of horror stories from going to the VA hospital. I even had a surgical procedure one time and when I came in for a followup the surgeon claimed I did not get the procedure done there, when he was one of the surgeons who performed the surgery. Turned out when they did my surgery, they decided to do a experimental procedure for the surgery without informing me first. Now I have continued problems from that surgery due to them doing it experimentally instead of the way they usually do the surgery. Gotta love the VA.
A piece of advice I heard that came to mind at 7:57 is that with most people you interact with compliments should be limited to the things that person chose (cool shirt, your nails are pretty, I like your shoes, etc.). Compliments on things that aren't a choice (like appearance) are risky, especially in professional relationships.
yes, they are also more meaningful in my opinion because you feel proud of your choices not like “ uh thanks but i didn’t chose this face/body lmao” (even and especially for ‘innocuous’ things like height)
If you're with your loved ones, you truly have to advocate for them. My mom had to have her gallbladder removed because it was gangrenous. After a few days she was sent home and the first night we were back, she was in intense pain. I said screw it, we're going back to the hospital. After hours all they said was "you have a UTI, we're discharging you" I pointed out that her stomach had been swelling severely since we arrived and was dismissed. I made a HUGE stink about it and they begrudgingly said, "Okay, we'll do a CAT Scan, but when it comes back normal, we're discharging her." Yeah, normal it was NOT. They had left pieces of her rotting gallbladder inside her and her stomach was rapidly filling with fluid, they had to rush her back to surgery and remove the pieces and drain the fluid. If I had let them discharge her, she would have died in her bed that night...
My husband recently had his gallbladder removed. Thankfully, he had me to take care of him when he got home, as I understand that many people are released home alone afterwards. I say thankfully, because he was having internal bleeding. My young, healthy husband almost died from a "routine procedure." If he hadn't had me to rush him to the ER, that internal bleeding would have take him out. And actually, I'm glad I didn't listen to his doctors office. I called them to tell them he'd been fainting, and they were like, "Well, since he's asleep, don't wake him up. But if he wakes up and faints again, you might wanna take him to the ER." I called my EMT sister, who was like, "Screw that! Take him now!" It's not like you can see internal bleeding, so yeah, it's a good thing I listened to my sister and not the surgeon's office.
@@laurao3274 I’m so sorry that happened to you and your husband. As loved ones, we know when something is not right. We need to trust our gut like you did and I did to save our loved ones from medical neglect which happens way too frequently.
I almot died having my gallbladder removed in as when they went in with laprascopic surgery they nicked my bowels. They didn't realise and closed me up. Sent me home the next day and I was in quite a lot of pain, went back in for a blood test the day after that and they realised something was wrong. They had to open me up from below my sternum to my bellybutton and clean me out. I didn't see it but they showed my partner a picture and I was completely white inside. I was 26 with a 9-month old baby and if I hadn't come back in I would've died.
I had a doctor reluctantly do a CAT scan after trying to tell me I just had gas because I'd "be in a lot more pain" if it were appendicitis like I thought it was. Turns out I needed to have emergency surgery that night to remove, you guessed it, MY APPENDIX.
Here’s mine: I’ve been described as having a “nervous stomach” for most of my life… disregarding the time where I couldn’t eat, my worsening pain, etc. Slowly, I got better, and could disregard my “nervous stomach.” Then, after about three good years, I suddenly went downhill, and FAST. Guess who turned out to have severe Crohn’s disease, most likely through my entire life, almost got hospitalized and nearly got surgery (though I still might tbh).
My brother has Crohns. Okay for now but it was a really scary two years when he was diagnosed. He had to go on a liquid diet for a while, and was really sick. He's in remission at the moment. I feel you, don't give up ❤
Still waiting for my IBS diagnosis to turn into a Chrones diagnosis. I have a lot of trouble with bowel movements since childhood so I’ve always refused colonoscopies, so I’ve still never had a scope or tests done because the doctors told me if I was refusing a colonoscopy then it couldn’t be that bad.
I had COVID right at the beginning of the pandemic, and as a person with anxiety disorder, I clearly didn't know how to handle that. I went to the hospital a few times and in one of those I felt like I couldn't breathe. Got to the doctor, he ordered an X-ray, told me later it was all good and said that if I wanted the exam results I could go back to the hospital two days later to get them. My mom took the results, brought them back home, and when I opened them the report concluded that my lungs were 50% damaged and I had gotten worse since the first time I had an X-ray. I went MAD, anxiety raised, couldn't breathe. Contacted the hospital to find out I was given the wrong report.
When I was about 12 I went to the doctor for persistent headaches. I had recently been hit in the head pretty hard with a soccer ball, so I mentioned that. He didn't examine me at all but said I could have an aneurysm and that I could die at any moment. The nurse came in, let him know they don't accept our insurance anymore, so the doctor immediately kicked me out. I was freaking out thinking I was going to drop dead. Turns out I had a sinus infection.
My worst experience is when I got a vaginal mycosis for the first time around the age of 20. I did some research before consulting with a gynaecologist, to able to describe my symptoms clearly as I have never experienced that before. When I told him "maybe it could be mycosis", after being asked for the reason of the consultation, he went annoyed and said "how can you know it is?". I was a bit stunned, but moved on. After a very rushed check-up, he confirmed it was indeed mycosis and prescribed me a treatment. I went to a pharmacy nearby with the prescription, and the pharmacist looked at it with worried look, then she said "your gynaecologist prescribed corticosteroids cream to treat your vaginal mycosis, should I really give it to you?". I was ignorant and I asked her if it was a problem. She said yes, it would destroy my mucous instead of healing it. At that time, feminine anti-mycosis cream in France was not available over the counter, so I basically ended up with no treatment and had to see another gynaecologist, this time female. That truly scared me to consult with male gynaecologists, even though I know there are many great ones.
A gynae that doesn't even know how to properly treat thrush? Like one of the most common problems vagina-havers will ever have? Wow, that doc should be struck off. Even the good old yoghurt-soaked-tampon would have been better than his prescription, he should not be practicing.
My sister's healthcare experience has been awful. At one point, she was almost passing out from pain in her lower abdomen. She'd vomited several times and couldn't even really sit. My parents took her to the ER, and they just assumed it was period pain and sent her home. About 30 minutes later, they had to call an ambulance to come and get her. Turns out her appendix was getting ready to rupture. She had to have emergency surgery to get it removed. Then the internal scarring from the surgery ended up forming a band around her intestine, so she had MORE pain, and she couldn't poop. It took months of doctors saying that it was "just period pain" for her to get taken seriously.
Even if it was period pain, it could have been endometriosis, so still a thing that must be adressed?? People don't just pass out from pain and are impeded to sit with no cause wth
@@naolucillerandom5280 people just don't care about endometriosis either... I have just heard some awful stories about women finally making their doctors do the test after years if just basically being called a weakling, and then when their pain is proven valid, the doctor just sitting with their husband like, well, she got it if y'all wanna have babies, better get started.... can you imagine. Looking at someone besides the patient when she is right there in the bed and being like well, better start filling her up with babies cus she'll be useless soon. Ugh. So many things are skipped just because a woman could be having periods pain or going through menopause. No more checking necessary. So frustrating!! I am glad your sister finally got taken care of op!!!!!! Hope it works out better in the future.
I've been fortunate enough in my life to not have to deal with health issues, but watching my sister go through it for the past few years has made me lose faith in the healthcare system. I just don't understand why empathy isn't enforced. @@naolucillerandom5280
A similar thing happened to my mom. Her appendix was going to burst, and she had gullbladder stones and kidney stones all at once. For months the doctors said it was period pain. My mom is in her mid 40's so i think she knows what her own cramps feel like.
I get it. I had celiac’s disease go undiagnosed for 13 years because I “must have just been on my period.” I had years of severe cramping pain, bloating, and constipation.
Here’s my worst one: went to the hospital for excruciating chest pains and shortness of breath. Got given a leaflet on anxiety and sent home. I asked for a CT scan but they wouldn’t do it. Two weeks later, I get hospitalised with pneumonia which led to lung cancer. I was 24. Now I’m one lung down and unfortunately it’s come back for the third time.
I had a full leg cast when I was a kid, and when it was time to remove it I kept telling the tech and my mother that it really, really hurt. The tech insisted that it was just the saw getting hot and I was being a wuss. When he finally got the cast off, I had a series of small cuts up and down my leg that were cauterized from the heat of the saw. 40 years later, those scars are how I remember which leg it was that I broke.
@@AnnabananagrazianoThey can still cause some irritation and burns if they're used long enough and lightly touch the skin. Leg casts get cut down one side and then the other, and they're supposed to keep a finger under the cast to lift it while cutting to minimize any potential of catching the skin, and then the hard outer layer is pushed apart with a separator (which realistically is all that should be cut with the cast saw). BUT if the saw gets pushed hard enough into the skin, it can give some nasty lacerations, including full-thickness ones. This will also depend on the skin. For instance the older you get, the thinner your skin gets, which is why the elderly can deglove their arm simply from falling and hitting something a little too hard with some drag. There's also a method that adds a metal guide that is slid under the cast to both protect the skin and make it easier to place the cut. One study also showed it reduced patient anxiety (patients were age 5+ years, no previous cast experience). So realistically, it's gonna come down to technique and skill, as well as adequate padding under the cast. Basically if the person putting the cast on or taking it off doesn't know wtf they're doing or just isn't good at it, there absolutely could be injury. Anything can hurt you if you try hard enough, and a cast saw certainly isn't any exception X3
@@SteffiHenri1992 Yeah, skin is interesting 😂 mammal skin isn't really connected to anything, so it's fairly easy to get off. The upside is it makes it possible to put it back on! It's also why skin grafts and excisions are so doable. Gotta find the positives sometimes 🤣
My husband (who does not go to the doctor easily) was in so much testicular pain, he was screaming and crying. I'd never seen this man scream and cry before and had him go to urgent care to hopefully avoid an ER bill. The doctor told him he had an infection from an STI (didn't ask about sexual history, didn't run any tests, didn't ask about anything else, didn't evaluate for a torsion, didn't even validate his pain). We ended up going to the ER and it turned out to be a kidney stone. The pain was radiating to the testicle, but nothing was wrong in that area. That was definitely our worst medical experience.
My OB after my first birth was taking a LONG time down there and when I voiced my concern she said I’d had quite a bit of tearing and she was taking her time with the stitches so I’d remain pretty down there. Some people thought it was an odd thing to say but me and my doc had a really comfy relationship. I moved away 10 years ago. I still miss her.
Honestly maybe odd to an outsider, but she probably understood that most women's self confidence PLUMMETS after the changes that come along with pregnancy and didn't want you to deal with that
My worst one is going on currently. I have had collagenous colitis for the 4th time now, and when they called with the results from the latest coloniscopy, they didn't have any of my updated medications and told me to stop taking one of them because it has been correlated to cause this colitis! I had stopped that medication last year when I finally got into see them and they told me the same thing! Make sure you have the updated patient file or you are wasting time going over things that are not applicable docs. I had to wait an entire year just to get into see these doctors, super frustrating!
First time seeing a new endocrinologist he stopped me just after entering the room and said "No. You can't come in. You clearly don't take care of yourself. Come back when you lose 50 pounds". He made his assistant close the door on my face. I cried all the way back to my house.
What a horrible person, I'm sorry. We do the best with what we can and if you're making an effort to go to the doctor then you are trying to care for yourself! That person should be fired.
This is so dumb because an endocrinologist could maybe help shed some light on WHY you are overweight. So if he really wanted you to be healthier, and let's be completely honest, this isn't what it's about with these people, he should've invited you in instead.
I was 24 years old and a nurse. I peed and noticed blood on the toilet paper, but I didn’t have my period. Next time I had to pee I peed into a cup and it looked like straight blood mixed with a little bit of urine. I took a picture and got an appt with a urologist. He’s a middle aged man. First question he asked me after I explained everything was “are you sure you’re not on your period?”
That is BS. It is really hard to get a doctor to see you, and it’s expensive here in the states. I would never waste my or their time if I knew what was happening, and I’m fine. I hope you’re doing better! What did it end up being?
@@clairer342 right!?! And the conversation started with him asking about me and what I do and I told him in a Nurse! Don’t you think as a nurse I wouldn’t come to you unless I thought there was a legit problem?
The worst visit I had with a doctor was back in junior year. I was prescribed Zoloft medication and I lost my appetite which led to losing a lot of weight (a common side effect of Zoloft). However, when I visited the pediatrician, she accused me of having anorexia and threatened me and my parents that she would call CPS so I would be forced into an eating disorder facility. I had no other symptoms of anorexia according to my psychologist (whom I've known for seven years) and told my pediatrician that I didn't fit the criteria for anorexia which led the pediatrician to insult my psychologist. I had to force myself to eat just so I wouldn't get the police involved and when I proved to her that I wasn't anorexic, she never admitted fault. to this day, I'm absolutely terrified of doctors and seeing anyone in the medical field because of that one pediatrician.
People who use the CPS cudgel are the worst. You just know they snitch on everyone then turn around and be the ones stealing drugs from the facility pharmacy
Dont' be afraid of doctors. Just take one moment at a time. Call a few offices to see if they let you do tours due to your anxiety. I was also on Zoloft because doctors were pushing it like candy 20+ yrs ago. I was one of those patients like you because I "missed home" freshman year. It made me wanna end everything instead. I called my mom and told her something was abnormal with this medication and never went back to that doctor and sotpped that medicine cold turkey immediately. even with my depression/anxiety now, i've never felt that low. I'm so glad they found something with that wrong with that medication but sorry so many people lost their lives before they realized it.
This is an absolutely terrible experience. Wow, I'm sorry you had to deal with that. In mine and others experience with eating disorders- most medical professionals are hardly even aware of them, how they may present, the health complications, and especially- what to do if they suspect someone may have an eating disorder. Mine was missed for over a decade, and some behaviors were actually reinforced by medical professionals. Doctors need to be more aware of eating disorders- and they need to be aware that they are complex to diagnose as well. This sounds like a doctor who is wayy undertrained in that area, but may have heard about how serious eating disorders are and went in gung ho when they saw quick weight loss in a patient. Getting incorrectly and aggressively diagnosed can be very traumatic, and that's not okay. Tldr: doctors need way better training on eating disorders. And I'm sorry you went through this ❤
I had an ingrown toenail and went to urgent care. The numbing didn’t set in and when I told the nurse she asked me in a super snarky tone “well can you handle it?”
I used to have chronic pain and no one could figure out what was going on. Eventually I diagnosed and treated myself. Now I’m in medical school and I’ve made a promise to myself i will never be that doctor who says „no idea what’s wrong, guess I’ll just discharge you even though your issue is still there“. There is nothing more frustrating than the people who are supposed to help you leaving you on your own with your pain and with no plan to help you. Like if you can’t help refer me to someone else who might be able to.
I wish I had you as a doc - 17 years of an (as yet) undiagnosed chronic pain condition that no doctor in my entire city (there's a lot of hospitals) can figure out why. (I don't want an internet diagnosis I'm just wishing on stars lol)
It should NOT be "no idea what's wrong, here's your discharge" It should be "no idea what's wrong, so here's my friend David, he is specialized in finding things"
Worst experience I had was actually with a psychiatrist. Our first meeting, despite me having meetings with other MH professionals before that, he asked a lot of very basic questions (not an issue in itself), and just said "Hmm" to anything I said. Eventually "Do you ever think about killing yourself?" "Yes." "Hmm. Well don't." Gee, thanks Doc, would never have thought of that myself...
Damn, didn't realize i can just say "no" to the intrusive thoughts and they can't come in without my consent. I'm sorry this happened to you. My first therapist was kinda similar. I have big anger management issues and it sometimes literally felt like i was watching myself do and say stuff without being able to change anything. Like watching a movie. Therapist said "Of course you know that's not true. You always have full control over yourself" Well, geez, i didn't know i could just...not....flip the overloving f*ck out and ruin all my relationships and my work (literally lost jobs over this) New therapist asks me to try out a certain med. Changed my life. *Saved* my life
Once my sister was going through a hard time (she was really young may be 19) and I went with her to see a psychiatrist (as I recommended her to do). Your story is exactly what happened, and then she (female doctor) just asked my sister if she wanted to say anything else she answer no and we just went home. .
The "professional" advice I received from my couple hundred dollar appointment to get help with my OCD was... "Do you know you're doing them (the compulsions)?" "Yes" "Well stop doing them" I'm gonna gather they didn't have experience in treating OCD and my parents didn't know any better so I got told that for a couple years til we realised that was pointless advice
Every single time with my picking habit (anxiety thing, basically scratching insistently at myself) i have been told so many times to just 'dont'. Like- ah yes, why didnt I think of that one? Or the alternative, 'just do something else'. I dont control the itch, it just happens when im panicking! Why is that a difficult concept!?
In college, I was tired all the time regardless of how much I slept. I started to suspect I might have a sleep disorder, and hypothesized sleep apnea because I knew my dad had it. I was basically told that there was no way a 21 year old, healthy weight female could have sleep apnea, and told it was depression, despite my insistence that I'd had depression for years, I'd had depressive episodes before, and this was different. They did do blood tests that found I had low ferritin (which is associated with restless leg syndrome), and mild hypothyroidism. (Also of note was the phlebotomist who called me "ladybug" while drawing my blood.) Even with those treated, I was still sleeping too much and tired all the time, but the medical professionals seemed to think a sleep study was unnecessary and discouraged it. I guess I eventually accepted the explanation of depression, because THREE YEARS LATER I found myself telling my new psychiatrist that I was having a depressive episode. "What are your symptoms?" "Well, I'm really tired all the time, I'm sleeping a lot..." "Have you lost interest in your activities? "Well, not really, but I've been to tired to do much..." "Do you find yourself crying a lot?" "No." Basically every symptom she asked about, either I wasn't experiencing it, or it was the direct consequence of being too tired to do anything. She then told me that it sounded more like I was describing a sleep disorder than a depressive episode and referred me to a sleep lab. Yeah, turns out I do in fact have sleep apnea. And periodic limb movement disorder. Further testing also added idiopathic hypersomnia to the mix (for those who don't know, that basically means that even with the other issues treated, I still sleep too much and they don't know why). My psychiatrist says she ends up sending a lot of her patients to sleep labs, and I've heard from other psychiatrists that they end up diagnosing sleep disorders a lot, because apparently it takes a psychiatrist to recognize when someone's symptoms *aren't* caused by depression. In retrospect, this does a lot to explain my grades in college, because it turns out that when you sleep instead of going to class, and sleep instead of doing homework, and sleep instead of studying, you don't get very good grades. Granted this wasn't the only factor, ADHD and OCD also played a role, but I do wonder how I would have done if I'd had my CPAP therapy and medication during college.
You can have sleep apnea at any age/size. My son never slept a full night through until we (finally!) got him a referral for a sleep test. Turns out, that indeed, my undersized four year old had sleep apnea. After we had his tonsils/adenoids removed, he finally had his first full night of sleep. Then, I had to get used to him sleeping quietly. It took awhile before I stopped going into his room at night to make sure he was still breathing. 😅
If you're still struggling I would have your doctor check your vitamin b9 and b12 levels, as deficiency commonly coincides with low iron and hypothyroidism and is associated with depression and rls. It's worth ruling out at least. Hopefully you can get some good sleep 💤
I went to a neurologist with "maybe it's sleep apnea", and I had a sleep study that came out too perfect... now I am waiting for other exams and maybe a repeat of the sleep study
I am also concerned about sleep apnea, my watch keeps measuring really low blood oxigen levels at night in spikes that get worse specifically when I can’t breathe from my allergies. My doctor just told me that my watch is wrong. 24 year olds don’t have blood oxigen problems.
Went to the clinic for a problem relating to allergies. Had my ears checked as part of the procedure, and got told they were clear. That same night I had an ear infection that hurt so bad i couldn't sleep. Went back to the clinic the next day, saw a different doctor, got told the situation in my ears was awful and he was shocked to hear the first doctor said it looked fine
I was donating blood one time. This medical intern's friend arrived and they were chatting. The intern got the bright idea to move me in the admist of donating blood to another seat just because they both could chat comfortably. I slipped while getting up which made the blood bag drop to the ground, yanking out the needle from my arm. He offered to put that thing back in my arm, i flipped him off and brought a senior doc and fing reported him. Some people seriously doesn't even deserve to be docs especially when they cant think ahead and goof off
When I was pregnant with my first, one of the first things I discussed with my OBGYN was that I wanted to avoid a c-section at all costs. I already knew about the increased risk of complications, poor outcomes, increased risks with subsequent pregnancies, and I did not want to get on that train. She agreed and reassured me her c-section rate was lower than the state average, and that the bloodthinners I needed to be on could be adjusted so that when I went into spontaneous labor, they would be out of my system by the time I delivered. Fast forward some 27 weeks and she's telling me she wants to schedule an induction. Being that I thought the plan was spontaneous labor, I pushed back, I also knew inductions increased the odds of ending up with a c-section. She actually argued with me, and when I brought my mom in to advocate for me she got very snippy and said "I don't know why you're so upset, most women are happy to be induced." I think she wanted to induce me because my due date was less than a week before Christmas and she wanted to hurry up and go on vacation. When I missed my alarm on the morning of the induction, the hospital told me I could come in anyway but when I got there she told me I was too late and would have to come back in a couple of days (why not the next day? because it was the 13th and heaven forbid anyone deliver a baby on the 13th). I had no say in anything the day of the induction and was contracting for less than 12 hours, bedridden, before she decided I needed a c-section because "I don't want you to deliver on the night shift." I felt so betrayed by an OBGYN who seemed to be on my side for most of my pregnancy and then did nothing but disrespect my wishes and boss me around and pile interventions and surgery on me with no consideration for my feelings, only her own convenience.
@@anainesgonzalez8868 I had to sign consent forms, yeah, but I didn't really have the option not to, you know? I was already in labor, she had broken my water 12 hours ago (AROM also increases c-section rate), what else could I do? even when she wanted to schedule the induction, I was already 37 weeks and on Medicaid, no way would I have been able to find a different doctor in time. the whole experience was traumatizing and led to a lot of increased anxiety around my second pregnancy.
I’ll never forget the first time I talked to my doctor about my anxiety and depression. I was 20 and I’d struggled with depression for as long as I could remember but the anxiety was new since I started college. I said this and he said “oh yeah I’ll write you something for that. Anything else?” Uhh no? He left. I thought it would be more involved. I thought maybe he’d need to know about my decade long history of self harm or ongoing s*icidal ideation. Nope. I filled the script and had no idea what I was in for. Pharmacy didn’t do a consult, didn’t ask if I had any questions. Within a week I tried to jump out of a moving car into traffic. I had never made an attempt before. I don’t remember how I found out that Paxil can worsen anxiety and depression before getting better. I stopped taking it and wrote meds off until this year. I am now 29. I was able to advocated for myself (different doc obvi). This has been the best year of my life for a long long time. I hate that it took me so long to get here but I’m glad I did.
I was at least informed that it was supposed to get worse before it got better. Except it never got worse. Or better. It was supposed to help after a month, but it had no effect. Three months, no effect but let's add a bunch of other pills to the mix. Six months, a dozen pills per day and absolutely no effect. Meanwhile, mental health professionals of varying titles are quitting faster than I can meet them so when it was time to renew my sick leave a doctor I've never met called me on the phone, told me to quit whining and just pull myself together because I'm never gonna get help from anyone anyway. Sorry dude, but the "pulling myself together"-ship sailed like 20 years ago, which you would have known if you had read my journal. I'm still convinced he found his psychiatrist diploma in a cereal box.
My mother-in-law once was very sick. Went to the hospital and the doctor told her she didn't have insurance and how was she going to pay. She told them to worry about fixing her and she would worry about paying. The doctor told her they couldn't help her and she had to leave. My sister-in-law who was with her called a doctor friend and told her the symptoms. The doctor friend told her to go back in through the main entrance and she was calling in the admittance right then. Turns out, my mother-in-law had sepsis.
Here’s my worst one kinda: It was Mother’s Day and I was at church. All of a sudden my eyes started going spastic. I couldn’t control them. Then my face started to twitch. Well I walked out and it got worse. My face was having uncontrollable spasms. Thankfully we had a lady who was a nurse. She told my family that I should probably go to the er. It doesn’t seem like a seizure but just in case we should go. We get there I had to be out in a wheelchair because it moved from my face to my entire body. Well it took about an hour and I’m just sitting there panicking because this has never happened before, but the team there had no care at all. Well we go back and finally see a doctor. He seemed nice at first and was telling me it could just be some of the medicine I’m on. He gave me Benadryl and some pain med for a headache that developed. Well we get home and in his notes he basically put he thought I was faking it and just gave me medicine to try the placebo effect. And that hurt a lot. I’m freaking out and he basically says he thinks I’m faking it in his notes where all my other doctors can see. I was in fact not faking it. I have now been diagnosed with FND and I was having non epileptic seizures. I know how different things almost every week or day and can’t really live life. At least now my other doctors actually care and can admit if they don’t know. That guy just had an ego and didn’t want to admit that he had no idea what was wrong and instead tried to shift it onto me saying I’m faking it.
God... That is awful. It makes me so damn sad to hear that. Doctors sometimes really do have weird perceptions of people who are not already diagnosed with a disorder to begin with, they don't realise it could be a possibility.
I had a late-afternoon appointment with my primary. Got shown to an exam room, vitals taken, etc. Time passes. Eventually someone opens the door without knocking and looks surprised to see me. The lights in the hallway we off. Another half hour later, the doctor enters. Clearly, they were locking up and forgot about me, and I’m sure the doctor was on his way home.
That is close to mine, except ER doesn't close. The ER was busy and full. I had a deep wound from a brake lathe. They put me into a normally unused room. I fell asleep and woke up later, wandered out and asked when I would be seen. They panicked because I hadn't been put on the board, so nobody knew or remembered that I was there. On exam, they told me that I should have had stitches, but now it was too late, cleaned it up and sent me home. I still have the scar as a reminder.
I really wish there were more doctors around my area that were like what you seem to be as a doctor. I'm on my 4th neurologist for my chronic migraines and I feel like I'm just being passed along like a bouncy ball or basketball without a care in the world. I tell em one thing and they hear another. It's exhausting.
Got a pap smear for the first time. It was a very uncomfortable/traumatic experience. Cold, exposed, no history with the doctor, no lube or anything, overall anxious because ive never had one. I dont know if she did it incorrectly but it was very painful. I cried. The doctor stood their aghast at my reaction, no comfort or understanding given. Somehow jumped to the conclusion the only reason for my reaction was I must have been sexually assaulted. "Why didnt you mention your past abuse" I was confused as it wasnt true. So many people act like being undressed and vulnerable isnt a scary thing if youve had sex before. Or they think it shouldn't hurt inserting dry
I can't even get pap smears because the pain is so bad. Last time my Dr tried to do one I tried so hard to deal with the horrible burning pain but he still couldn't get it fully inserted. He was angry with me and just said" well I guess that is that" and left the room. I ached down there for hours after and even bled a little, I let him go far enough to tear something down there before telling him to stop and he just blamed me for being unable to do it and left.
@@SohiHien not to be an internet-diagnostician out here but that sounds a lot like vaginismus to me. basically having a pelvic floor muscle so tight that it closes off your vaginal canal, and pain or anxiety makes it worse. i have vaginismus and "burning" is how i would describe the type of pain i get from trying to insert anything; for my first pap (and only, thank god, because it was the precursor to a hysterectomy) they used literally the smallest speculum they make and it was _still_ a painful, miserable experience trying to get it in there. it is a condition that can be treated, so i think it's probably worth looking into at least.
@@TheGuindo well sadly I have no way to know. I no longer have a family Dr and am on a long waitlist for a new one. You can't get into specialty doctors without a referral from a family Dr. Also went to a gynocologist years ago and she didn't even bring up the pain and failure to have a pap performed as any sort of medical issue. Just said I was probably fine without one and they did an ultrasound to check for polyps which was fine at the time so I was let go from her care. She sucked anyway just like my family Dr did. Hopefully when I someday get a new Dr. they will be better and actually listen to my medical issues and try to help me but it likely will be a few years before I can get a new Dr and this issue is pretty much at the bottom of the list for my problems.
@@SohiHien it's not something you need a doctor to diagnose and treat. i just meant to google it, do some research and see if the symptoms seem to fit your experience. treatment isn't surgery or medication, it's mostly exercises that you can do on your own at home, so online resources can help you if you decide it's something you want to try to fix. i do wish you luck in finding a new doctor, though. that's a tough situation to be in.
I'm sorry that happened. She definitely did it incorrectly. Usually they err on the side of too much lube, and it might be uncomfortable, but should be any sharp pain or anything like that.
I had a UTI that wasn't cleared with two courses of antibiotics. I turned pale, my body felt weak and ached, and I got a really high fever. I called my healthcare center to ask to see a doctor, and had to argue over the phone with a nurse that I was truly unwell. I finally got an appointment, was sent to lab and it turned out I had a severe kidney infection. Another time, I got a really high fever and the worst headache of my life, several days in a row. I couldn't turn my eyes without a head splitting pain. I went to the ER, was sent home with "you just have a bad cold". After a few days and my fever climbing even higher (past 104 F or 40 C), I took a taxi to the ER again, and due to the high fever I was seen to quickly. My doctor went very serious as he told me "I suspect you may have contracted meningitis, and we have to isolate you immediately until we have tested whether it's viral or bacterial, because the bacterial variation is very contagious". I was escorted into an isolation room and left alone until nurses with protective gear entered to hook me up on IV, and to take blood samples, followed by a spinal fluid sample. The moment the doctor drew the spinal fluid sample, the horrible headache disappeared. The tests came back in a few hours, and luckily showed that what I had was not the bacterial variant of meningitis, but appeared to be of viral origin. I'm extremely thankful for how I was treated the second time around, but also horrified that a nurse had sent me back first with such a painful and difficult condition, that could have been deadly if the source was a bacteria.
I will never get over being told that my pain is all in my head and I should meditate - I ended up needing spinal surgery because my spine was so F'ed up, but you know I'm a female. We don't experience pain, we only experience hysteria!
Yeah I don't know how many times I told my doctors I was in pain and they still haven't been able to help me. We females are just so dramatic, we practically dry up and become spinsters without a dashing man to come save us, eh?
@@Emsev100 what my point is that I don't believe the reason they were dismissing her was due to her sex. Especially these days when women are becoming as dominant in the workplace especially in health care.
That ingrown toenail story hurt me just to hear it. I had to have one of my toenails removed once when I was 15 because I stubbed my toe so badly once that I broke the nail inside my toe and while the new nail kept growing it didn't push the broken part out correctly and it started pushing it out through my skin just before my nail bed instead and caused infection to build up. The numbing to have my nail removed hurt SO MUCH. I can only imagine how much someone digging around so stupidly in an already sore area would hurt. Big yikes on that one
around my sixteenth birthday, i became gluten intolerant- but it took me about a year to figure out that was it. i spent the entirety of the eleventh grade progressively getting sicker. i ignored my friends, got low grades, quit the only sport i ever loved, and assumed i was just lazy. when i finally figured out i had an issue, it was after losing weight. it seemed impossible because i was at my lowest level of physical activity ever, and i have two chronic conditions that cause an inability to lose weight! i figured out my problem and saw a doctor about it right after turning 17. when a blood test came back null, we moved on to a colonoscopy and endoscopy. when the results came back also null, my doctor called my parents to inform them that they'd decided i was faking for attention, listing the sole point of reasoning as my age.
the one hospital in my town is awful and almost every person i know who’s been there has had a bad experience - my grandma was MISDIAGNOSED WITH CANCER and they took her kidney out when they didn’t need to, and my sister in law had a tumor in her spine she didn’t know about and when she had her daughter i guess the pressure during labour broke one of her vertebrae and she couldn’t walk or feel her legs and for weeks they said it was normal. my mother had a stroke and because it was christmas eve she had been drinking so they blamed it on her and treated her terribly. she was left in a bed in resus for hours (idk if you have that in america but it’s where all the sickest emergency patients go before they’re admitted) and said “you know there are ACTUAL sick people here, right?”
@@IvyJolene i honestly have no idea. we’re not very litigious in the uk so maybe that has something to do with it? a lot of complaints just get swept under the rug, and the NHS is literally crumbling so malpractice is kind of becoming something to be expected because doctors can’t keep up anymore, especially since covid. it’s been an issue since our current government came into power 12 years ago and is only getting worse. we’re probably going to switch to a privatised system if it carries on.
I had one experience… it was the worst! I was very sick and couldn’t go to work or to the doctor to get a note. At that time I was living alone so I had nobody to take me. When I feel better I finally go to the doctor to get my note. In the consult he started to ask me where am I really from because I’m an immigrant, and also treated me soooo badly. He thought I had COVID, even though I knew I didn’t. He sent me to do a COVID exam and when I ask him to give me a note that said I was sick, he didn’t, and said in a sarcastic voice “I get sick too and they don’t pay me so life is unfair” When I tell you I GOT OUT OF THERE BALLING MY EYES OUT!!! The worst doctor ever!
I am an intersex person. I went to a clinic for treatment for a uti. I wanted antibiotics. What I got was a lecture from the doctor about how irresponsible I was for not getting "corrective" surgery, and did I want to be like "those people who just do it for money" (?!)
Which people who do what for money? Im hoping I don't understand and it's not what I am thinking... please tell me he didn't accuse you of self neglect for sex worker options? Self acceptance+ self worth are never character flaws.
@sarahwithstars The doctor was a woman, but yes, that's exactly what she was suggesting. Offensive on the face of it, no matter how one feels about sex work, but further so for equating the choice not to undergo risky and medically unnecessary surgery to self-neglect (the doctor, not you).
@@xshiromorix I am so sorry. That is truly horrific. There is a huge disconnect between holding values and opinions for your own life and then imposing your opinion on others, passing judgement on their values without evidence. It reminds me of an interview I read about acquired disability and how many people try to show sympathy or support with the comment "you are so strong, if I was going through that, I would have killed myself." It's not admiration of strength, it is reflecting what they see as a worthwhile or fulfilling existence. It would be much kinder to say "I admire your outlook and hope I can learn to be as resilient as you are" or "I'm sorry it has been necessary for you to be so strong but I'm proud of you"... But if you do not have functional impairment for the life you wish to be living, there should be zero other 'opinions' involved- her role is to present you with options and respect your path. I'm hoping you know this already, and don't find this patronizing, but I'm thrilled you can embrace yourself as you are, regardless of the 'typical' body in your doctor's text books.
i have chronic pain (probably fibro), and around the time it first started (i think i was 19) i went to a orthopedist and he completely refused to check me, saying i was "too young" to need to see him, and telling me to go to a rheumatologist, when the closest appointment was in half a year. it was extremely debilitating, and being just completely dismissed like that was honestly just as painful as the pain i was there for
I also have chronic pain as well! And was told I have fibro but most of my symptoms don’t even match up with true fibro. I’ve had so many tests and everything would always come back normal and I just gave up trying after being dismissed many times.
When my mom was pregnant with me back in 1994, she had a black spot on one of her little toes. She never thought anything of it and figured they wouldn't do anything anyway because she was pregnant. When she remembered to look at it again after I was born, it had healed and disappeared. Two years later she was diagnosed with metastatic melanoma. She survived. And 16 years later when I was a senior in high school, she found another teeny tiny mole ON THE SAME TOE. It was biopsied and it was again melanoma. She ended up needing her toe amputated to get a clear edge. But she has been cancer free ever since. So YES. You even have to take off your socks at the dermatologist. And my mom's derm uses her as an example every time someone makes a fuss about taking off their socks. Cancer can appear anywhere. And I'm just so damn fortunate that after all that, I have the most badass fighter for a mom and she's still here today, 72yrs old and strong 💪🏻(yes the math is also correct, I am almost 29 and my mother is 72. She had me at 43yrs old!)
5:04 my mum has had SO much problems with finding the right doctor because of her MS and because of doctors brushing her concerns and pains off. we have since moved so we're hoping to find better care here but I can vouch for this one because I've watched my mum struggle for my whole life. I feel so bad for this redditor's friend.
I’m gonna use your “if I tell you nothing serious is going on, is this still bothering you” method when talking to my doctor from now on. It’s not just pain, either. At this point, my doctor telling me my persistent fatigue, lethargy, and brain fog (among other nonspecific chronic symptoms) is “nothing serious” is FRUSTRATING, not reassuring. It’s keeping me from living my life and making it hard to keep up with my job. I want to know why, and I want to fix it.
If it is affecting your life and job, you need to see someone else and pursue a diagnosis. I have had memory problems for 14 years and no tests have been done by the neurologist that I currently have because of epilepsy that I got a lot later in life than when my memory problems first started. I will be begging for an MRI on 10/13/23. I wish you luck.
if it's affecting your daily life and quality of life - it is serious. look for a new doctor. (if you're in the states or are using medical insurance - the insurance providers have to by law (most countries anyway) allow access to a second opinion aka new doctor). Get a second opinion, and a 3rd and keep going until someone takes you seriously and if they try to complain or act offended point out to them that you wouldn't have to find a 2nd opinion if they just took you seriously in the first place.
I’ve got a couple stories… Broke my ankle when I was 13, months after it healed my knee was hurting. At pediatrician’s office, he tells me, and I quote “you’ve got too much up here (patting stomach) to support down here (pointing at my knee).” I was not overweight. What a way to make a teenager feel really good about herself…Mom then took me to bone/joint doctor who showed me the damage in my knee and actually helped without making me feel awful. During 2nd pregnancy, had AFP test at about 16 weeks. Doctor tells me later that test result was abnormal. Sent me to a genetic specialist that I had to go to for 4 months. I was treated rudely, and the doctor basically accused me of being in an incestuous relationship and tells me my baby would probably be born with spina bifida. I had a terrible time, depression, anxiety, I just shut down. Fast forward to about a month before I was told I was due (early October) and my OB doctor casually mentions that he now doesn’t think I was as far along as he originally thought and the test was done too early. New due date 10/26. I went into labor on 10/27, had a beautiful, healthy baby boy with absolutely no issues. You’d think within that 4 months of constant mental torture and multiple sonograms and tests, they would have discovered their mistake sooner.
Gee, context is out the window I guess. Now, you did mention more than one story, but Lord knows you could at least tell us when one story stops and another starts. I thought you had your second pregnancy around 13 years old.
@@donloder1 Come on, if cannot be that difficult to comprehend context clues and figure things out instead of showing a lack of tact and feigning ignorance.
@@jep9092 Thank you. For the first instance, my mom did bring it to their attention, and was able to find a different office and doctor to help me. As for the 2nd one, my OB doctor retired shortly after, and I didn’t even have the capacity to do anything except to focus on my healing and my kids, (Son weighed 9lbs, and epidural was too late to kick in.) 😱
My dad went to the doctor because he had a lot of pain in his hands, arms, and legs. The doctor said that was normal for someone with rheumatoid arthritis. He didn't know he had that. Turns out his prior doctor got that diagnosis more than a year before, on his last blood test, but somehow never notified him.
It took four years and five doctors to get a PCOS diagnosis and another three years to get an endocrinology referral. Even within all of that, I had been requesting help for pain. Turned out I also had fibromyalgia. I was dismissed by everyone, told to lose weight, sent to counselling (NOT therapy) and told to lay off gluten. I don't know how some doctors are allowed to practice medicine.
I was in the hospital and right after a blood transfusion i started shaking and broke out in welts all over. I told the nurse i was having a transfusion reaction and she insisted it was mosquito bites! When my legs started jumping on the bed she finally believed
While having my yearly exam/pap smear, someone knocked on the door of the exam room. My doctor opened the door, exposing all of my business to anyone in the hallway. I only had the very small paper shirt and sheet covering me. When I told her to change her gloves after touching the doorknob, she acted like I demanded her to give me her firstborn child. 😂
Good for you for noticing, realizing, and saying something. You could have very easily been in too much shock and dismay to have done all of that in mere seconds.
@@jenniferspeers2453 I'm normally a very reserved person and I rarely raise my voice, but I did on that day. It was such a breach of my privacy. I still don't understand why she didn't just wait or cracked the door. I've gotten a lot braver as I've gotten older. I doubt I would have done that twenty years ago.
@@lisalynnn The worst thing about these stories is having to continue to get treatment from people like this. I don't know if you could have left or found a new doctor, but putting you in such an uncomfortable position is fucked up. Now, you must sit through a pap smear with a moody doctor.
Here’s my worst one, I had a terrible asthma attack, I couldn’t breath and could barely function because I had nearly no energy because I was out of breath, the doctors tried to send me home saying I was fine, my whole family knew this was different, my dad told them to test me again, they found out I was having one of the worst asthma attacks they have ever seen. My Dad saved my life that day, I was scared as heck and still think about it to this day
My GI specialist missed my non-functional gallbladder for 10 years. I wasn’t having severe enough for true worry for most of that time… but I also have a crazy high pain tolerance. When it was finally removed, I was double the correct size, twisted up, contained hundreds of stones, and it had *eaten a lymph node!* One of the worst the surgeon had seen.
One of my worst stories is when I went to the hospital with a very high heart rate while sitting and standing immense chest pain and feeling very tight in my chest. When standing up I felt like losing consciousness. EKG and blood pressure where taken immediately but then the doctor came in angry that it wasn't likely that I had a heart attack and borderline made fun of me for coming there not listening to my symptoms after chest pain, interrupting me telling me it was just a muscle ache and told me I was fine and to leave. After I tried to and almost/passed out in the hallway the nice nurse put me back into the bed. After that they made me wait made another scan and got even angrier at me for this also turning out negative. And literally threw me out of the hospital bed (they took the hygiene pad off while I was still laying on it telling me to get out because "I was fine". For everyone curious "nothing wrong" turned out to be severe pots and me/cfs. Nothing unusual to first get misdiagnosis for those or going undiagnosed for a long time but the way I was treated there because they haven't found something was horrible. To make it clear I would not expect them to get the right diagnosis nor believe that they could have done anything in that moment. I just wanted to be treated with dignity and compassion and I don't think that is not to much to ask for.
I have such a good rapport w my primary that whenever I come in outside of med checks and check ups, like I did a couple of weeks ago, it’s “what the hell did you do now?” And it always has me rolling. She’s the best and takes wonderful care of me.
A few years ago, I had an IUD implanted and I was having some complications with it. I went in for an ultrasound so they could see if it was lopsided or lodged into the wall of my uterus or what was up. I get into the room, undress, get under the blanket and wait, and then my gynecologist comes into the room and he says “this machine isn’t working today so we’ll need to move you to a different room.” He took my clothes and shoes as a way to help me I guess ?? but left me naked from the waist down. I was young and non-confrontational, so I wrapped the sheet around my bottom half and hobbled barefoot to the room down the hall where he led me. The biggest issue here though is that the sheet wasn’t long enough to fit around my waist so I was partially uncovered. It was a long walk down that hall. One of the most uncomfortable days of my entire life.
Worst non-hospital encounter as a patient? I went in for an echocardiogram, due to some insurance weirdness I couldn't have it done at my cardiologist's office like I had every other time in my life. I had always had it done by my doctor or one of his, all female staff. I was 25 years old and I have a guy about my age stabbing me in the breast with an ultrasound wand and when he couldn't get the view he wanted, with no warning whatsoever he grabbed me with his hand. I've never felt so violated. The next time they tell me there are no female techs available I'm leaving and rescheduling the appointment. Worst in-Hospital: I was in for a collapsed lung, the doctor went in on the wrong side, collapsed my other lung and I came out of surgery on a respirator. When he talked to my parents he asked them why they were fighting so hard to save me, why not just let me go and try for another child?
Long story short, I was referred to a Palliative Care doc after finally admitting I was depressed after surgery for cancer. It was the best experience with a doctor ever. It was the first time a doctor asked questions and actually listened to the answers. It was totally uplifting. I know most doctors do listen but often they do so while writing on a clipboard which tends to communicate they've heard it before, nothing new here. If you're unhappy with a doctor for any reason, get a new one. It's important.
Second to last sentence is why I keep swapping therapists. If I don't like one I ask for another. It's covered by my Medicaid+Medicare advantage plan so I can do it as many times as I want.
That's so interesting you mentioned the dissecting aortic aneurysm presenting as back pain because that's exact what happened to my mom. No chest pains at all but had back pain to the point where they thought something was wrong with her spine but ended up finding out about the heart issue. Thankfully, she was able to have surgery and is now on blood pressure medication to maintain it.
My ex mother in law went in for breast reduction surgery to help with her back pain and not only did the doctor keep acting like he was disgusted and kept calling her fat but he also sewed her nipple on inside out. It was an outpatient procedure so we didn't know til she got home and went to change the bandages. The breast reduction surgery was necessary cause she was diagnosed with degenerative bone disc disease
@@dietotaku money, power, prestige. Which is why we need to increase the number of doctors, reduce their working hours and reduce their salaries, so that there's less financial incentive and they don't get to sacrifice their whole social life in order to feel superior
That's not the end, when my mother in law tried to sue the doctor, he died before it ever made it to court and she dropped the suit cause she didn't want to sue his estate
I love what you said about advocating for yourself. I feel like where I am from (Quebec) doctors typically do not really accept patient comments or theories, but you should be using a collaborative method like you advocate for on your channel. I wish more doctors took the time to actually listen to their patients.
When I was in basic training, I took a spill down some stairs. My shoulder dislocated really badly. When I went to sick call to get it checked out, the P.A. said it was a minor labral tear. My shoulder kept dislocation over and over and over again to the point that they medically discharged me. When I got home I went to a real ortho doctor and they said it was one of the worst shoulder injuries he had ever seen in someone my age. I ended up having to get a total reverse shoulder replacement at the ripe old age of 26. I'm still fighting with the va to get compensation for my medical bills. Don't get hurt in the army.
Lol I went to the OBGYN, same one my Mom goes to, and a few days after the appt she told my Mom all my test results etc over the phone. Like, I luckily heard and stood next to her and there was nothing wrong or unusual but like??? I was 18 already. You’re not even ALLOWED to tell my Mom anything💀
I had a therapist tell my parents about my session (they sent me when they got divorced). They were completely disgusted and pulled me immediately. I don't know if they reported her tho, it was the 90s.
I have a friend that had a similar migraine story, her neuro brushed her off for YEARS, and refused to order an MRI. I finally convinced her to go see a family friend (also a neuro) and they ordered an MRI immediately, she got in the next day because he felt she absolutely could not wait. Turns out she had a non cancerous bone tumor near her right temple. If she had stuck with her old neuro she could be dead now. She had her surgery and the recovery was hard but shes living her best life now!
Well I was originally going to say that I've been finally getting help for my migraines this year and wow you should see my jaw bone. Imagine how much pain I could have been saved if I had been listened to. But then you got me in the feels with the aortic dissection. Mom passed from that, so yeah, again relating to the no one believing a person didn't feel good theme. I mean, most people just ask new viewers to subscribe. 😅
My old PCP (she retired 😢) was the real life Ms. Frizzle from magic school bus. I have Lupus and go through flares where I'm sick frequently. She always called me her "special" patient. She is the Dr. that diagnosed my Lupus - saved my life.
I feel you so much. Found my magical unicorn when I was like 30 and she was already past retiring age, but she still went on as a doctor because so many people needed her and she wanted to find a team of similiar wonderful doctors who could work there when she left. She did, and this year she went on to retirement. But everyone, doctors and patients, still miss her.
My mum kept going to this one hospital for pain related issues and they kept saying she was fine and sent her home. This happened a few times. She went to another hospital and literally not long later they were removing her gallbladder...
I've had so many bad experiences with doctors that I would rather be on death's door than to go for even a check up, But this guy restores my faith a little bit.
There are good doctors out there who genuinely care about their patients. Don't give up. Keep advocating for yourself until you get the right treatment for whatever conditions you may have. Much love to you, my friend. 😊💙🫶🏻
My first gynecological visit ever, the doctor said I have a great birth canal and birthing babies will be easy for me. It definitely skirts the line of appropriate things to say to a 14 yr old.
Why would that be inappropriate? Whatever your obgyn is saying is a biological fact. It is not like saying that you have a beautiful labia. Saying that luckily you don't seem to have any potential difficulties whenever you get pregnant sounds a perfectly sound remark to make.
@@xantiom It's an inappropriate remark to make as you are talking about a 14 year old in a sexual manner (not entirely, but you do have to have intercourse to have a baby.) In addition to this, the doctor had no way of knowing whether they even wanted to have kids, or if they were uncomfortable with the notion of getting pregnant. I know that I always get terrified when I imagine having a kid. All in all, just not really something you should say unless the patient is older and you're aware that they're trying for a baby.
@@SodaADayKeepsTheSanityAwayI disagree. I think it was only awkward because she was a teenager having a sensitive part of her being under scrutiny by a male stranger. The statement itself is important because you're going to the obgyn in order to learn about that part of your body; what he said is part of his job. The one thing he could have done differently was have said this after the inspection, for the purpose of comfort. But the statement itself is mundane. I guarantee that if it was a female obgyn, it would be seen as such.
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I had a hernia. I asked a doctor to examine it, and she refused to refer me to a surgeon (I'm in Canada - I'm not allowed to see a specialist until a GP refers me) because "no surgeon would be excited about fixing it."
Years later, after the hernia had grown quite a bit, I got to see a surgeon. I told him the GP story and he immediately asked for the name of the first GP so he could report her.
And that's one of the downsides to socialized medicine. My son recently had an issue, I'm a nurse and knew he needed to see an orthopedic surgeon first, then also a neurologist, so I just made the appt and bypassed the GP. I already knew enough to know a GP couldn't help us. He was toe walking all of a sudden, this can be nothing, an ortho issue with tendons or mean serious neuromuscular disease. Thank god we didn't have to rely on a GP that might have told us it's normal for neurodivergent kids to do this, because it is, but I know my kid and knew something bigger was going on, and it was.
im glad you got a good doctor in the end. hope you get better soon!!
@@jennh2096Living in the good ol’ US of getting sick will bankrupt you does Jack squat to prevent incompetent doctors from messing us up, it just guarantees it will cost us twice as much overall! 😒
Again
Misconduct
You're allowed to call the police immediately
@@jennh2096 The thing is, what you've just described can be done in places with socialised healthcare via the private healthcare system. There's _always_ a private system available. Most people don't use it though, because they can't afford it.
If I had a drink for every time I've heard a story about doctor saying something to a patient in obvious visible distress that is a variation of "You're fine, stop being a baby" and later on finding out something very serious is going on that is either life threatening or requiring urgent care after the patient either convinces the doctor to take a better look at it or by going to a different doctor, my liver would cease to exist.
And then when you go to the hospital they will tell you that is all in your head.
I was diagnosed with bipolar depression because I wasn't obedient enough.
Turns out that I was severely abused by my father and doctor and I have autism.
Drink and extra drink for me ok.
Maybe wine.
Cheers from Italy
Here's my worst one: I went to see a new doctor about medication for my depression and he laughed and asked me "haha what's his name?" Yeah no dude I wasn't there because of a breakup. I was happily married and had bloody actual clinically diagnosed depression.
what an ass! as someone also clinically diagnosed with depression im so sorry 🥺
@@neophyte_7777That's the point. Depression is a neurological disability, sometimes there is no clear reason for it. It is caused by chemical imbalances in th le brain and that cant be treated with "happy thoughts"
@SmilingShadow-jl5tr @@psychedelicpunk5031
Apologies, it was a joke. Please know that I am aware that depression comes in different forms. I was only commenting about the oxymoronic nature of it. (A juxtaposition of seemingly opposite words such as "pretty ugly"). I have removed my comment and deeply apologize to anyone offended by my words.
im so sorry, thats so disrespectful, belittling anybody’s struggles no matter what it is-is disgusting anyways, so unprofessional
wow...what a scumbag
When my mom was a paediatric oncology nurse, one of the “gold star” patients died unexpectedly. She was always the sweetest and most patient, and one night she came in with a fever. It was really busy and none of the regular nurses were available, so the travelling nurse was assigned to her. This nurse complained that the girl was the worst and so mean… turns out that she had sepsis. If any other nurse had been assigned to her case, they probably would’ve caught it
Omg that’s so sad!
bless ur family im destroyed hearing that
this is heartbreaking, rest in peace to her
I hear so many stories (especially from women I know) about doctors misdiagnosing them for months and years. Multiple docs, specialists, and still being ignored or dismissed, before finally finding someone who does the right tests to figure out what’s actually wrong. What bothers me the most is this: all those docs and specialists who misdiagnosed them for all those years will never find out they were wrong. There’s no feedback mechanism to alert them that they misdiagnosed this case. How are they supposed to learn from their mistakes and improve their care if they don’t know they made a mistake in the first place?
This is such a good point!!!
I guess the only thing you could do is leave a negative review on their Google Maps page.
This happened to me, I went to 12 doctors until I found out I had bacteria in my stomach
Perhaps if they didn't dismiss the women in the first place. The times I've been told it's 'due to stress' even though I just said I wasn't experiencing any, I can't even count that on two hands.
But all the men in my life have never, NEVER been told their complains were due to stress...
Yes! Happened to me!
It’s fascinating that people become doctors, whose job is to help & not harm, and yet so many of them treat patients terribly.
I don't think the path that most doctors take through education, at least in the US, brings in the most caring individuals. They spend all of their time trying to out-compete each other to get into schools...then we wonder why there are so many sharks in the water.
I think a large contingent of them also become doctors for the $$$$
@@NefvilleYuppp, unfortunately.
My uncle became a doctor because he liked medicine. He loves medicine. He's orthopedist now.
Of course he makes a lot of money where he's at. But that wasn't the main goal and you can actually see it when someone talks about things that has to do with medicine.
Because most people are in it for the pay, not for the good feeling of helping others.
It’s almost like telling people to go into a profession for money brings in people that aren’t especially empathetic
1:00 In my struggle to stay healthy, I went from 'morbid obese', to 'obese', and eventually to 'overweight'. Still remember having my doctor walk in to the room, look up from the chart, and say "YAY!!! You're overweight!!!!"
This is so funny and wholesome at the same time! Congrats on the health journey!
Congrats on making it so far! I'm really proud of you😊
Good for you! Keep it up!
Awesome!!! Great job!!! 💪💪💪
Encouragement like that with a little bit of silliness is just the best
I am overweight, that much is true. I was in urgent care for pain and had been waiting several hours before being seen. It was late afternoon by now, and I hadn't eaten yet that day. My husband asked the nurse whether it was OK for me to have a snack, and she was in the middle of saying, "I don't see why not," when the doctor walked in. "It won't hurt you to skip a meal. In fact, you could skip a few more of them."
please tell me that doctor is reported
I think I was 21 at the time, a junior in college. One day I woke up and found a lump on my breast. I scheduled an appointment with a doc (not my usual doc since I was away for college). When he walked in he acted very annoyed and the first thing he said was "You're too young for breast cancer. Have them schedule you for an ultrasound in a couple of weeks." No one even looked at the lump. Fast forward a week and the lump has grown. It was very red, painful, and even wearing a bra was too much. I went to urgent care. Turns out I had an infected ingrown hair that had gotten really really bad. They started me on antibiotics and by the time the ultrasound came around it was fine. I'll never forget the urgent care doctor, though. He was a funny little German man with a thick accent. He asked me if the other doctor had prescribed any antibiotics already. I told him he didn't even look at the lump. He immediately flew into an angry rant all in German. Then he stopped and said, "You don't speak German do you?" I said no. He nodded and said, "That's for the best. Now let's actually do something about this."
best
doctor
ever
(regarding the german guy)
you got treated by medic tf2
I actually love this story so much. Really sorry that first doctor said that though
He nodded and said, "That's for the best."
I legit LOLed at that. I love that German Doctor for that line alone. XD
whoa
My worst one: I was fourteen suffering with severe depression and having symptoms of psychosis. After a particularly violent instance of self harm, my parents took me to the ER for treatment and to find an inpatient bed somewhere. I somehow ended up in a room alone with two male doctors. They both loomed over the bed and told me that it was a shame I was hurting myself this way because I was "ruining a very attractive young body." I will never forget the absolute shame and disgust I felt in that moment. It still haunts me 20 years later.
PS - I am now living a healthy, happy life and haven't self harmed in 17 years. So much love and support to anyone who might be struggling ❤
Good for you!
I'm surprised you didn't manage to harm the doctors in thar situation.
@@Gr3nadgr3gory yeah I was honestly too terrified in the moment to do anything. I just froze. Other than my husband, I've never told anyone about it. As an adult, and now a parent, I am absolutely furious on that child's behalf...
i had an extremely similar experience when i was 16. very sad it happened to you but also kinda validating to know im not alone in hoping for change. wish stuff like this was talked about more.
@@noelgautreau971 I am so sorry that happened to you. And I know exactly what you mean - there is some comfort in knowing that when others speak out, we're not alone. These conversations are hard, but important. ♥️
My ex called 911 and told them I was suicidal because he was mad at me for dumping him. I was committed and explained the situation, but I was told that I couldn't leave until after being evaluated by the doctor in the morning, despite the fact that I had to start work at a job that I had recently started an hour before the doctor would be in. I looked through my paperwork to see if there was anything I could do and discovered that some of my forms were printed on the other side of another patient's forms, which included her name, address, social security number, and the reasons for her admittance. I quickly memorized some of her information and went back to the office with one of the pages, which I dropped on his desk. I told him that I have the other pages, recited her information, and told him that if I'm not released that night, I would be reporting them for a HIPAA violation. They had me released within the hour, and I still reported them.
Get 'em!
LMAOOO "and I still reported them" As you should!!
Well played
Boss
Good thing you got out of that situation, and I'm sad you had to be in such an abusive relationship that he called 911 and said you were suicidal
As someone with constant stomach pains that’s been simply called “IBS” at the end of most GI visits, I feel this. I’ve had multiple GIs essentially just tell me “sucks to suck man, your stomach hurts and there’s nothing we can do.”
Did you ever get a different diagnosis? Either way I hope you’re doing better by now since 10 months is a long time on top of however long you were experiencing pain before 🤞🤞
Ill never forget when I was in labor and a male OB came in who I didn’t know bc my doctor was delivering a baby. He was insistent on doing a check to see how dialated I was. I told him I was very uncomfortable with cervical exams from males from past trauma and he was OFFENDED. He was like “I’m a doctor. You’re going to have to wait an hour at least if you want a female or you could just let me do it”. I was crying at that point and told him I would wait. He left the room with such an attitude, I ended up filing a complaint against him and he wasn’t allowed in my room again.
I'm so sorry, I'm glad you were able to file a complaint against him
Wow just wow I'm so sorry you had to go through that. I hope he was fired
I'm so sorry and also, excellent job filing a complaint and advocating for not only yourself, but also future patients!
The right answer from his side would be to accept it, try to ensure you that you can trust all the doctor's in his facility including him and then give you the rational choice between if you'd rather wait or if you will reconsider.
@@jep9092for what?
being an ADHD/autistic adult makes me realize how little medical providers take into account how autistic kids feel. from dog bites to behavioral therapy, nobody’s gentle or informative. and my parents wonder why I tend to shut down during and after a doctors appointment. now that I’m an adult and standards for approaching patients has changed, surgeons are telling me every step of a procedure, therapists are understanding how I feel and not making me blame myself for my struggles, family medicine doctors are *so* communicative with their patients about mental health and finding the right specialist. I wish providers showed me this much compassion when I was younger.
They just tell me I don’t seem Autistic and ignore all my concerns 😢
I feel for you friend, i think i have been mostly lucky in that.. In my experience here in Sweden its usually the older doctors and stuff that kinda "Meh" at Adhd and autism
Aaaaay AuDHD represent! I'm late-diagnosed, and I deal with chronic nerve pain. Have had similarly negative experiences, so I feel you.
I still have bad experiences as an autistic adult unfortunately. The demeanor of the doctors change as soon as I mention autism
I have Asperger syndrome and I have been lucky to get a family doctor in a private clinic. I live in Canada, so our health system is ok and my doc always ask questions about my autism and my general health. I am saddened by your experience and as for the doctors that say that you don't look autistic, just tell them that you had all of your life to practice masking and that your medication is effecient. trust me, I have the same issue with my clients at work and I'm 27 years old.
I was admitted for heart issues. I suddenly started shaking uncontrollably and my heart monitor went off and the nurses rushed in. One nurse yelled at me to stop shaking. I couldn’t. A doctor came in and asked why I was shaking. The nurse rudely said that she didn’t know and that I was refusing to stop. The doctor was concerned. Made them take a bp reading. It was so low the monitor couldn’t read it. The doctor yelled at the nurse that that was why I was shaking, something was clearly wrong. Turns out I had an undiagnosed kidney infection and had gone into septic shock.
People like that annoy me. Like, they learn all of this, but then are just like "WaLk It OfF!"
@@oXGoldenHeartXomy mom said to “walk it off” when I broke my finger. I wanna know how tf you walk that off.
@@AveRagePerSonnnnor an overweight person comes in with a broken bone and the doctor just tells them to lose weight
@@yetanothertroll How did these doctors get a degree?! Like they have a broken bone! How you gonna fix a broken bone by telling them to lose weight???
i can’t with “stop shaking”
when do you ever shake on *purpose????”*
After getting diagnosed with a personality disorder by my therapist, my psychiatrist told me she would no longer be treating me because "you can't be helped by anyone". I still had other issues that medication was doing wonders for, and was told it was just me being "medication seeking". Still reeling from that
Ah
Same
It's just wonderful, isn't it?
@@mari_3kyu sure is something
DBT! DBT DBT DBT! "Can't be treated," my ass - DBT was a powerful and transformative treatment for me. Sure, it was challenging, but 1000% worth it. If I was seen by a new psych today, I probably wouldn't even qualify for a PD diagnosis anymore. Please look into DBT! It's a type of therapy, not even a drug.
That's like my grocer telling me that I'm vegetable seeking. Yes, that's why I'm here.
Since I was 13, I've always gotten sick horribly and very often (like if i got a cold I would feel bad for nearly two weeks). After seven years of going to doctors and them all telling me that I'm "just being overdramatic" I finally found a doctor who took a look at the issue seriously. Here we are nearly a year later and I've been diagnosed with a genetic autoimmune condition that has apparently been affecting my family for generations. I cannot stress the importance of finding a doctor who will listen and take you seriously. You know your body best so if something isn't right and you know for a fact it isn't, advocate for yourself.
Which is what I'll be doing tomorrow at my neurologist appointment when asking for an MRI because of long term short term memory loss that has gotten worse. I always try to advocate for myself with health.
I wish I could do better trusting my body, but my anxiety (and “Dr. Google, obviously) made most of my symptoms hard to identify as a warning sign or not. Sometimes I feel like a “Cassandra” if my body really is warning me of something!
@@princesspixel3151😢
SO relatable
Was thinking of changing my name to that 😂
is it ehlers danlos syndrome? from the way you described it it sounds like that. i have ehlers danlos syndrome and it's a brutal condition and i hope you are getting the right and best treatment for it
@@cghforever1334 EDS isn't autoimmune. It's an inherrited connective tissue disorder, and no one really knows why it happens, at least in the most common form which is the one I have. People with EDS can have weird immune stuff like MCAS, which is an autoimmune disorder, but EDS itself isn't autoimmune. People with EDS often have lower immune systems, so they often take more time to recover from stuff like colds.
My little sixteen year old sister had lost a lot of weight in a short time (severly underweight, and a telltale sign of cancer), threw up everything she ate, was dizzy, couldn't get out of bed or even walk without a walker.
My father begged for an MRI, no luck.
They diagnosed her with a diagnosis that basically said it was all in her head (because she was transgender and had gone through some little trauma). Physically nothing was wrong with her.
She had a braintumor. They found out three weeks later when she turned blind and the mental health professionals where like no this is definitely not a mental problem.
She died a year later. If they had started the right treatment earlier she probably also wouldn't have survived, but the quality of the life would have been significantly better, as she may not have become blind. My father begged for an MRI for months before she got the diagnosis.
RIP Jaxz
I am really sorry that happened to you, it sounds like a nightmare for you and your family. I hope you find or have found peace after your sister's passing and turn/have turned out okay. My heartfelt condolences.
I’m so sorry for your loss. I hope you and your family have found peace.
Jfc, I`m so sorry that happened. That`s grossly negligent, literally. Sadly, I`m not shocked.. things like this happens way too often. It`s never ever okay, and stories like these SHOULD be shocking and surprising to hear/read about, however, gross medical malpractice has gotten way too normalized, and that`s so not okay, to put it mildly.
I`m so sorry about your loss.
Well, technically, it WAS in her head. And they certainly should have taken a look! My condolences.
This broke my heart, I'm very close to my sister, it's just us - I know if anything untimely happens to her - a piece of me will die too, I am so sorry that your sister passed away, but remember - you carry her heart in your heart, deepest condolences to you and your family x
My medical records were combined with my identical twins bc someone decided we were the same person since our last names and date of birth were the same. Took years to convince my insurance that I actually existed after this and the hospital wouldn’t even speak to me bc of HIPAA since I wasn’t a patient anymore since they combined our charts
what a nightmare
That's so irritating.
NO WAY. That is actually insane.
I feel bad for twins when it comes to medical records, especially if the first names are similar. Our vaccination records specialist has had to manually untangle records from twins/triplets several times because the automated de-duplication process keeps combining them!
Oof. My dad (who is in his 80s now so different times as well) had the same first and last name and maybe even middle initial as another guy in the same town. I don’t think they ever got medical records tangled but when he was ready to graduate from community college they tried to tell him he didn’t have enough credits and was in academic probation- they had the other guys record. He also had similar issues with the same dang guy at the freaking bank. He started having to carry a birth certificate to prove which of the two same named and similar aged dudes he actually was. Like would have to prove who his parents were to get it all straight.
Here’s one on my list of many: I went to a different GP at my usual practice with cold/sinusitis symptoms. I told her I had a pretty sore throat, so she had a look at my throat. She made sure to tell me that both my throat and tonsils looked fine and non-inflamed. Thing is… I haven’t had tonsils for over 15 years. I left the appointment in shock. 😂
When I was a teenager I got contact lenses and the novelty made me pay attention and I noticed that something was off with one of my eyes. I couldn't exactly describe it. I went to my ophtalmologist and he did a lot of test, including a retinal scan, and said it was just a corneal abrasion that would heal on its own. I came back a couple of times becase I still felt something was wrong, and on the last visit the doctor took my mom to the side and told her "what she needs is a psychiatrist. This is just attention seeking." Luckly for me my mom took me to another doctor for a second opinion. I had to have emergency surgeryto fix an advanced retinal detachment.The surgeon couldn't undertand how the other doctor missed it because it was pretty bad.
But my worst experiences with doctors were when I was a relative to the patient, in both cases my parents. The first, my mom had an accident and was declared brain dead on the ER. While we were waiting I left my 80 year old father alone for like 10 min. He was in a bad state and had told the doctors that I was to be the one to make decisions and up to that point the doctors had all spoken to me. But one neurosurgeon waited until he was alone to speak to him to recommend some miracle surgery. When I came back I could see the stars in my dad's eyes, he was so hopeful this was going to save her. I talked to the surgeon because it seemed weird, and he finally admited it was a surgery to remove bone fragments from my mom's brain, and that it would make no difference to her. She still would be brain dead. I guess he just wanted the experience or the money. I'll never forget the look in my dad's face when I explained to him there was no hope. I broke his heart again and it was totally unnecessary.
Then with my dad. He woke up with severe abdominal pain. After hours of waiting on the ER a resident barely looked at him and said "he's dehydrated," asked a nurse to give him IV fluids and sent him home. I guess he just looked at some old man who wasn't complaining (he was pretty stoic) and assumed there was nothing wrong. I asked him and other doctors to at least examine him and they all ignored me. A nurse told me to go the staff room where the chief was and make a scene (I guess the doctors ignored her too). The chief came and diagnosed him with a ruptured colon, he needed emergency surgery. The guy called all the residents and screamed at them. Apparently it wasn't the first time they dismised a patient because of their age.
Novelty?
Many studies show that elderly people, by and large, receive worse healthcare than younger people. Your experience confirms this. How aweful😢
😭
Reminded of me of my grandfather, sadly he passed away on July 22nd due to incompetent care and miscommunications between doctors of different specialities.
That’s awful, I’m so sorry. And I’m sorry for your loss.
Awful stories, especially distressing when there is a known, established work around that nurses know about to get things attended to.
Well done on advocating for yourself and your parents though!
I have a lot of stories that compete for worst, but here's the most obvious one.
I was on a trip away with my husband and scratched my arm on a wire fence. We found a local doctor and I went in for a tetanus shot. I got it, but was also treated to a lecture about how I need to lose weight.
The thing that makes it the worst: my husband and I went on the trip to distract ourselves because I'd recently had a miscarriage. The extra weight was from carrying twins
That’s horrible! I wish you told the doctor so they can rethink how to speak to their patients.
i keep thinking people cant get any dumber but they keep proving me wrong i dont understand the thought process of how its a good idea to try and lecture someone about a situation they dont know about and also about the fact how its a good idea in the first place that doctor really isnt fit for his job
@xOrionNebula1970 Yeah I was baffled. Did she think skinny people don't get lockjaw?
@@maryjack08 she is the most likely candidate to probably thinks that vaccines give people autism we all know thats not true
if anything having more padding on you would have helped mitigate the injury!
Went for a very expensive private neurologist after being dismissed by many doctors (mostly male). I had the means to pay for the appointment which is already more than most and I choose a female doctor knowing about gender bias. She made a quick examination and talking to my father instead of me decided I needed to make friends and learn to play a new instrument. Note: I had so much joint pain that most days I couldn’t properly hold a fork to eat. I left the clinic in tears and I still have anxiety crisis every time I have to visit a new doctor. I was later diagnosed with Ehlers-Danlos, a rare genetic disease, mainly because I knew something was very wrong and kept advocating for myself.
I'm sorry for your experience. I have EDS too, and I've been fobbed off for as long as I can remember. On the rare occasion I find a medical professional who treats me like a human being with a painful, complex medical condition and not an attention seeker or pill chaser, I could cry. I've given up searching for experts because even they haven't helped me when I've pinned my hopes on them. These days I just deal with it myself. I wear my braces, tape up my injuries, laugh off the comments about damaging XYZ *again*, and I just trust that those who really know me know I would never ask for this.
Being ignored and dismissed is horrible when you're in crippling pain. Good for you for continuing to advocate for yourself 💜
This is awful! EDS isn't even so rare that a doctor could reasonably be forgiven for not knowing about it?! I hope you're doing better and getting proper support now!
I'm on a 2 yr waiting list to get to a Dr that handles that. He is the only one my insurance will take... I don't envy you one bit and I know the struggle of self advocating vs dr bias, especially against chronic pain.
Rn I'm under the assumption I have fibromyalgia (rheumatologist in my network won't accept my insurance though they technically are covered). I have phases where it's all I can do to get up to go to the restroom and take care of those needs. If I didn't have family as caretakers I'd have starved or died of thirst by now because the pain is so overwhelming at times. That or I'd have outright given up.
Yet doctors think the pain is "managed" by the meds I'm on because I hide my pain in public and they don't think anything of the appointments I have to cancel bc I physically cannot get there.
I'm autistic and have been told that EDS is quite common. Never had a dr. check me for it and i've been in pain most of my life.
Over a decade ago I was in surgery and, unbeknownst to me, the surgeon struggled with substance abuse.
A camera was forced through my aorta and up into my heart. It was horrible. I bled out and a 45 minute surgery went on for about 18 hours, followed by six weeks in a coma and months of physical therapy. I’ve still never gone back to my old work. It was awful.
How the heck does that even happen???
@@justafan13 How am I supposed to know?
?
Sue em
Here is my worst experience with doctors. When I was 6 years old, I started complaining a lot about pain in my belly. They did a lot of tests, a lot of analyses, but the doctors didn't find anything special. They said it was worms or small infections from what I ate. I took a lot of medication. It got to the point where I was going to the hospital every week, and the doctors started accusing me of pretending that I was in pain, that it was simply a tantrum to not go to school, basically every excuse you could think of. A year and a half later, I stopped eating, I was just vomiting and I couldn't do anything at all. I was admitted and stayed there for a week. I was already pale, I hadn't eaten for over a week and the doctors didn't understand what was happening to me. They told my parents to take me home, that it was better for me to spend my last days in a familiar place.
A young doctor doing rounds wanted to take my case, asked for an ultrasound and discovered that my appendix had ruptured. I underwent emergency surgery and it was discovered that the appendix had already ruptured many months before, if not a year before, but constant medication disguised the symptoms. I was severely infected and at death's door because no doctor had ordered an ultrasound to find out where "the small infections from what I ate" came from, as they said so often.
What?! Horrific!
Any damage to other organs?
Lawsuit boutta go crazy
@@aallen6016 I didn't have any damage to other organs, I was very lucky. However, as of now, at age 26, I suffer from endometriosis, adenomyosis and PCOS, it affects my gastrointestinal tract a lot (IBS symptoms) and, therefore, the doctors monitor me much more, taking into account my entire history with the appendix. They think it may be correlated. But there is no certainty. My parents thought of suing for medical malpractice, but in Portugal that is a "crime" that is barely recognized by law, and therefore, nearly impossible to sue and win.
@@ServantOfArRaheem Unfortunately, in Portugal, medical malpractice is a "crime" that is barely recognized by law, and therefore, nearly impossible to sue and win. No one in their right mind will sue, lose money, and lose the case.
I really hope you and your parents absolutely destroyed those doctors in a lawsuit because that is just absolutely ridiculous
My old OBGYN told me that my pain and bleeding after sex was "probably just because you're husband is well endowed." I went back and advocated for myself and turns out I had a cervical polyp! 😑 After that, she removed it in surgery and I made a full recovery but I never went to her again once I was cleared at the post-op appointment.
It amazes me sometimes how doctors who specialise in the female reproductive system can still have so many ridiculous stigmas. Like, you went to school for this right?? Fortunately there are the good ones out there too. So sorry that happened to you.
I had to see 3 different OBGYN providers about my pain before it was taken seriously. First one they were kind of rolling their eyes at me because I was in pain during a procedure that "shouldn't hurt". Next one I went in told them I was in pain and asked if it could be an infection of some kind. Hey did the test and were like "nope, not infected. See you later!"
The third one was finally the one who said, "oh, this is a problem for your life! Let's figure it out!" Turns out it would have been easier to fix if it had been found sooner, but I just spent 18 months with unexplained pain and then it took 4-5 months afterwards to get back to normal.
@@errantwinds-up8uu the entire medical field is full of misogyny. look at how they conducted clinical trials for birth control pills. or why they still haven't approved male birth control yet.
A friend of mine in high school overdosed (we went to school in the slums, the kind of place where school nurses have naloxone on hand) and the ER doctor treating her while she was slipping in and out of a coma told her directly that she was making his job more difficult by not "just waking up or dying already".
This doctor needs to be fired.
That is horrible and should never be said to anyone to their face. But I will admit that working late night ER shifts at animal hospitals (I am a vet) I have had this exact thought. Like I said the should always be considerate of people but there is nothing worse than a patient that needs constant babysitting because they might code at any second. You kinda get desensitized to that kind of stuff (you have to for mental health reasons) and its never ok, as long as the doctor is doing their job perfectly, I would just ignore it. Especially for ER since a lot of those shifts are 12 hours minimum but you could end up helping out for 16-24 hours. Hell, I think some resident stay for 48 hours sometimes.
what the hell is wrong with that doctor
My worst medical experience was when I was living in Indianapolis. During college, I had developed epilepsy which caused seizures. I hadn't had one in a while because I was taking medicine. My doctor advised taking my medication once per day instead of twice to see if it would stabilize things. I had a grand mal seizure in a grocery store, cracked my head on a shelf (had to get eight stitches), and was rushed to the hospital. After I was stitched up, I started to seize again. The nurse ignored it while I slowly turned red, then purple, then blue while foaming at the mouth. My brother yelled for another physician, and they finally cleared my airway and performed CPR to get my heart and lungs working again (I had stopped breathing and was dead for a few seconds). I woke up a few hours later in the worst pain of my life. I now make sure I take my medicine as directed and haven't had a seizure since.
Oh my goodness! I’m so sorry. I’m epileptic, as well. You’re not alone
When I was 16 I went to my pcp to talk about birth control because of really terrible chronic ovarian cysts. She gave me a huge lecture and said “If god wants you to get pregnant, who are you to block the path he has for you?” 😳😳😳 Needless to say, after that day I was no longer a patient of hers.
So she just said
“Go raw Jesus is all the protection you need”
@@toby818 this is what "jesus take the wheel" _actually_ means
Well, that was very unprofessional of her! Geez!
thats so dumb i had a classmate she had significant issues relating her reproductive health and she bled so much during her cycles that she had to be on iron tablets and the doctors wouldnt take her seriously
In that logic, no one should ever seek medical care because "If God wants you to be sick, who are you to block the path he has for you?" smh
Went to the doctor after relapsing with anorexia. He told me I was "a little underweight" (I think a grown-ass man weighing 91lbs should cause a bit more concern than that. I was dying.) and CONGRATULATED me on my (dangerously low) blood pressure of 70/40
91lbs? That's scary even if you're not anorexic! I'm so sorry.
I have low blood pressure as well (70/40 too!). But, because I'm obese, they think it's a good thing. Yeah doc, collapsing after standing up is great. Having to lay down all the time just to stop the vertigo is fun.
Assumptions about weight need to stop. I imagine many congratulate you on your thinness just as much as they blame every symptom on my weight.
@@nollypolly Yeah, my BMI was like 13.5. That's CRAZY they thought blood pressure THAT LOW was "Good" because of your size. Low blood pressure is a serious issue regardless of weight. Being obese isn't gonna stop you experiencing unpleasant side-effects from the hypotension.
Yeah, people did. Well, at the low weight I was grotesquely thin so not so much then but when my BMI was like in the 16/17/18 range people (usually young women) would say like "Oh my gosh you're TINY!" and seem really excited about it.
Wow. That’s awful!
One thing I hate about getting weighed is nurses always say something about how they wish they could be as skinny. Or I say something about how I struggle to maintain even my low weight and they say they wish they had that problem.
Like, no. I’m lethargic, shaky, can’t eat large meals, and can’t donate blood. I wish people would stop acting like it’s so great to be underweight.
@@normalhuman9878 YES EXACTLY! Thank you!!
One time I was getting a pap test & I also had bronchitis. I had a coughing fit that turned into hysterical laughing when the speculum flew out. Luckily my Dr was an excellent catcher... 😂
😂😂😂
This is so nice to read after all the heartbreaking stories. Thank you 😊
That is one of the best stories ever
that's hysterical, amazing 😂😂
I didn't cough, but I was really tense because the stretcher was uncomfortable and the speculum got ejected and flew over the doctor's shoulder
My brother kept being told he had gout. He kept having the problems over and over. He lost his leg when they realized it was not gout, it was cancer. Two years later, he had passed away right before COVID started hard.
Are you Canadian? My brother went to school in Canada and the doctors inexplicably diagnosed every issue he had while there as gout, including anxiety and a broken toe. It’s become a family joke lol
I can pinpoint the real start of my ED cycle to something an NHS nurse said. I had struggled with my weight my whole life due to mental and physical illness. This one time, I was weighed at a standard checkup. I was overweight but very proud at having lost over 2st in recent months. The nurse practically spat the words "you're overweight". I smiled and said "I know, but I've worked really hard lately, and I've lost X." She responded with the nastiest tone and with a lonnng gaze up and down me, "mhm. Well you're still overweight. You need to lsoe more."
To say that I cried after leaving that room is an understatement. I had never been more ashamed of myself in my whole life, and it still makes me emotional today. I've carried various severe EDs for years now, and I'm still terrified of making appointments in case they weigh me and judge me the same way.
Fatphobia in the medical profession is real, it gets incorporated into providers' egos, and it does an incredible amount of damage to patients. This needs to be addressed in medical education. It's never acceptable to treat a patient like this.
I once was at my lung specialist and got a different doctor than usual. He told me that my lungs were "perfect" and in the same breath also told me that I gained some weight over the last year and should diet. I gained weight because I got on anti-depressants. The previous year, when the clinic saw me last, I wanted to kill myself. Thanks doc.
I'm so sorry she was such a b*tch, she had no right to do or say that and I know it's hard but try not to let it affect you too much, for one; she's not worth the distress she's causing in you and for two; you're worth more than that horrible encounter.
Remember that not all nurses and doctors on the NHS are the same though; there are some really good ones out there - my GP is the best and has done everything and anything to diagnose my (as yet undiagnosed) chronic pain condition for the last 17 years or so. Unfortunately, there are some horrible people in this world - be they doctors, nurses or presidents (dictators). Sadly there's not a lot we can do about them - except try to ignore whatever BS comes out of their mouths.
You are beautiful, you are worth it and you are loved and cared about. Please don't feel ashamed for being you.
You can say no to being weighed. You dont even need to explain it but if you do want too you can say "it might trigger my eating disorder"
I'm so sorry that happened to you, that is never ok! And I'm so sorry that it happened. You are a beautiful person! Don't listen to nurses/doctors who have an ego problem. Just know that their just jealous of your happiness. Sending you love internet stranger ❤❤❤
Here's another but about my aunt. My aunt was in her 50's and was progressively going blind. Her eye doctor was so kind and said he was so sorry that there was no treatment available for this. She'd just be blind. One day she and her husband were at a hospital to see a specialist for him. I the course of the exam he asked her how she had become blind. He told her that he thought it would be a good idea if she had a second opinion and asked her if he could go find his colleague, the eye surgeon to have a look and see if anything could be done. Turns out this doctor had noticed she had cataracts cause when they're big enough to make you blind you can see them just looking at someone. Her hometown eye doctor had been lying to her about her blindness and never even told her it was cataracts. Her husband's back problem saved her sight! The surgeon set her up for surgery the next week and her vision is now 20/20. There are a lot of bad doctors out there who enjoy abusing patients.
Wow. That's sick. People like that will get what's coming to them. I'm so happy she got that second opinion from a competent person! Bless them.
It only just occurred to me, but a question I would love for my physicians to ask me about my physical discomfort/pain is "if this were happening to someone else, would you think it was acceptable?" Because I have a high pain tolerance, I tend to downplay things for myself. Might just be my own issues here, but I think it would be a good way of determining when a patient is "sucking it up" especially if they have trauma in their past which makes them displace their own comfort and needs.
I have an extremely high pain tolerance as a result of what turned out to be extremely frequent testicular torsion. That, literally the most pain my nerves can report, is my 5-7. I just learned to always add three, after that issue landed me in the ER.
I'd go to hell for other people when they are in pain. But when I literally felt like screaming standing up and I was just like, "Just another day." I also have a high tolerance. It has been nonstop for years anyway. The fact I tend to just go through the pain is something most doctors don't believe. "It can't be that bad if you can do x or y"
This! With the pain iI'm in right now, it would be unacceptable and I'd be banging down the door of a doctor's office to get results. But they want to tell me it's my depression, anxiety, ptsd, you name it.
Also constantly in pain and had some 8/10 often and they acted as if I was exaggerating. Most help I've gotten so far for it is antidepressant and B12 LOL. Still in pain just as much.
I also have a high pain tolerance. I have been told many times that I was not in enough pain to be hurt. Yet, I was hurt every time.
I could tell you plenty of horror stories from going to the VA hospital. I even had a surgical procedure one time and when I came in for a followup the surgeon claimed I did not get the procedure done there, when he was one of the surgeons who performed the surgery. Turned out when they did my surgery, they decided to do a experimental procedure for the surgery without informing me first. Now I have continued problems from that surgery due to them doing it experimentally instead of the way they usually do the surgery. Gotta love the VA.
A piece of advice I heard that came to mind at 7:57 is that with most people you interact with compliments should be limited to the things that person chose (cool shirt, your nails are pretty, I like your shoes, etc.). Compliments on things that aren't a choice (like appearance) are risky, especially in professional relationships.
I've never heard it explained so clearly before, I'll have to remember that!
Good one here
yes, they are also more meaningful in my opinion because you feel proud of your choices not like “ uh thanks but i didn’t chose this face/body lmao” (even and especially for ‘innocuous’ things like height)
Yes exactly! The most I go for appearance is makeup or hair style. Otherwise I mostly compliment outfits, accessories, or personality.
If you're with your loved ones, you truly have to advocate for them. My mom had to have her gallbladder removed because it was gangrenous. After a few days she was sent home and the first night we were back, she was in intense pain. I said screw it, we're going back to the hospital. After hours all they said was "you have a UTI, we're discharging you" I pointed out that her stomach had been swelling severely since we arrived and was dismissed. I made a HUGE stink about it and they begrudgingly said, "Okay, we'll do a CAT Scan, but when it comes back normal, we're discharging her." Yeah, normal it was NOT. They had left pieces of her rotting gallbladder inside her and her stomach was rapidly filling with fluid, they had to rush her back to surgery and remove the pieces and drain the fluid. If I had let them discharge her, she would have died in her bed that night...
My husband recently had his gallbladder removed. Thankfully, he had me to take care of him when he got home, as I understand that many people are released home alone afterwards. I say thankfully, because he was having internal bleeding. My young, healthy husband almost died from a "routine procedure." If he hadn't had me to rush him to the ER, that internal bleeding would have take him out.
And actually, I'm glad I didn't listen to his doctors office. I called them to tell them he'd been fainting, and they were like, "Well, since he's asleep, don't wake him up. But if he wakes up and faints again, you might wanna take him to the ER." I called my EMT sister, who was like, "Screw that! Take him now!" It's not like you can see internal bleeding, so yeah, it's a good thing I listened to my sister and not the surgeon's office.
@@laurao3274 I’m so sorry that happened to you and your husband. As loved ones, we know when something is not right. We need to trust our gut like you did and I did to save our loved ones from medical neglect which happens way too frequently.
BRO THAT IS SO TERRIFYING OMG
I almot died having my gallbladder removed in as when they went in with laprascopic surgery they nicked my bowels. They didn't realise and closed me up. Sent me home the next day and I was in quite a lot of pain, went back in for a blood test the day after that and they realised something was wrong. They had to open me up from below my sternum to my bellybutton and clean me out. I didn't see it but they showed my partner a picture and I was completely white inside. I was 26 with a 9-month old baby and if I hadn't come back in I would've died.
I had a doctor reluctantly do a CAT scan after trying to tell me I just had gas because I'd "be in a lot more pain" if it were appendicitis like I thought it was. Turns out I needed to have emergency surgery that night to remove, you guessed it, MY APPENDIX.
Here’s mine: I’ve been described as having a “nervous stomach” for most of my life… disregarding the time where I couldn’t eat, my worsening pain, etc. Slowly, I got better, and could disregard my “nervous stomach.” Then, after about three good years, I suddenly went downhill, and FAST. Guess who turned out to have severe Crohn’s disease, most likely through my entire life, almost got hospitalized and nearly got surgery (though I still might tbh).
My brother has Crohns. Okay for now but it was a really scary two years when he was diagnosed. He had to go on a liquid diet for a while, and was really sick. He's in remission at the moment.
I feel you, don't give up ❤
Still waiting for my IBS diagnosis to turn into a Chrones diagnosis. I have a lot of trouble with bowel movements since childhood so I’ve always refused colonoscopies, so I’ve still never had a scope or tests done because the doctors told me if I was refusing a colonoscopy then it couldn’t be that bad.
As someone else with Crohn's, I hope things are better for you now!
I had COVID right at the beginning of the pandemic, and as a person with anxiety disorder, I clearly didn't know how to handle that. I went to the hospital a few times and in one of those I felt like I couldn't breathe. Got to the doctor, he ordered an X-ray, told me later it was all good and said that if I wanted the exam results I could go back to the hospital two days later to get them. My mom took the results, brought them back home, and when I opened them the report concluded that my lungs were 50% damaged and I had gotten worse since the first time I had an X-ray. I went MAD, anxiety raised, couldn't breathe. Contacted the hospital to find out I was given the wrong report.
When I was about 12 I went to the doctor for persistent headaches. I had recently been hit in the head pretty hard with a soccer ball, so I mentioned that. He didn't examine me at all but said I could have an aneurysm and that I could die at any moment. The nurse came in, let him know they don't accept our insurance anymore, so the doctor immediately kicked me out. I was freaking out thinking I was going to drop dead. Turns out I had a sinus infection.
Omg! I’m so sorry
Although you didn't get proper medical care from that doctor after the nurse, I hope that prevented a medical bill. If not, 🤬 that medical practice.
My worst experience is when I got a vaginal mycosis for the first time around the age of 20. I did some research before consulting with a gynaecologist, to able to describe my symptoms clearly as I have never experienced that before. When I told him "maybe it could be mycosis", after being asked for the reason of the consultation, he went annoyed and said "how can you know it is?". I was a bit stunned, but moved on. After a very rushed check-up, he confirmed it was indeed mycosis and prescribed me a treatment. I went to a pharmacy nearby with the prescription, and the pharmacist looked at it with worried look, then she said "your gynaecologist prescribed corticosteroids cream to treat your vaginal mycosis, should I really give it to you?". I was ignorant and I asked her if it was a problem. She said yes, it would destroy my mucous instead of healing it. At that time, feminine anti-mycosis cream in France was not available over the counter, so I basically ended up with no treatment and had to see another gynaecologist, this time female. That truly scared me to consult with male gynaecologists, even though I know there are many great ones.
Bro that's horrible!! I hope you're all better now 😭
A gynae that doesn't even know how to properly treat thrush? Like one of the most common problems vagina-havers will ever have? Wow, that doc should be struck off. Even the good old yoghurt-soaked-tampon would have been better than his prescription, he should not be practicing.
Police
Free fire zone
Get him
My sister's healthcare experience has been awful. At one point, she was almost passing out from pain in her lower abdomen. She'd vomited several times and couldn't even really sit. My parents took her to the ER, and they just assumed it was period pain and sent her home. About 30 minutes later, they had to call an ambulance to come and get her. Turns out her appendix was getting ready to rupture. She had to have emergency surgery to get it removed.
Then the internal scarring from the surgery ended up forming a band around her intestine, so she had MORE pain, and she couldn't poop. It took months of doctors saying that it was "just period pain" for her to get taken seriously.
Even if it was period pain, it could have been endometriosis, so still a thing that must be adressed?? People don't just pass out from pain and are impeded to sit with no cause wth
@@naolucillerandom5280 people just don't care about endometriosis either... I have just heard some awful stories about women finally making their doctors do the test after years if just basically being called a weakling, and then when their pain is proven valid, the doctor just sitting with their husband like, well, she got it if y'all wanna have babies, better get started.... can you imagine. Looking at someone besides the patient when she is right there in the bed and being like well, better start filling her up with babies cus she'll be useless soon. Ugh. So many things are skipped just because a woman could be having periods pain or going through menopause. No more checking necessary. So frustrating!! I am glad your sister finally got taken care of op!!!!!! Hope it works out better in the future.
I've been fortunate enough in my life to not have to deal with health issues, but watching my sister go through it for the past few years has made me lose faith in the healthcare system. I just don't understand why empathy isn't enforced.
@@naolucillerandom5280
A similar thing happened to my mom. Her appendix was going to burst, and she had gullbladder stones and kidney stones all at once. For months the doctors said it was period pain. My mom is in her mid 40's so i think she knows what her own cramps feel like.
I get it. I had celiac’s disease go undiagnosed for 13 years because I “must have just been on my period.” I had years of severe cramping pain, bloating, and constipation.
Here’s my worst one: went to the hospital for excruciating chest pains and shortness of breath. Got given a leaflet on anxiety and sent home. I asked for a CT scan but they wouldn’t do it. Two weeks later, I get hospitalised with pneumonia which led to lung cancer. I was 24. Now I’m one lung down and unfortunately it’s come back for the third time.
You ok?
I had a full leg cast when I was a kid, and when it was time to remove it I kept telling the tech and my mother that it really, really hurt. The tech insisted that it was just the saw getting hot and I was being a wuss. When he finally got the cast off, I had a series of small cuts up and down my leg that were cauterized from the heat of the saw. 40 years later, those scars are how I remember which leg it was that I broke.
That’s terrible and they must’ve been using the wrong saw cause the ones they’re supposed to use can’t cut flesh
@@AnnabananagrazianoWho knows what it was like 40 years ago though, maybe the safer ones weren’t as required.
@@AnnabananagrazianoThey can still cause some irritation and burns if they're used long enough and lightly touch the skin. Leg casts get cut down one side and then the other, and they're supposed to keep a finger under the cast to lift it while cutting to minimize any potential of catching the skin, and then the hard outer layer is pushed apart with a separator (which realistically is all that should be cut with the cast saw). BUT if the saw gets pushed hard enough into the skin, it can give some nasty lacerations, including full-thickness ones.
This will also depend on the skin. For instance the older you get, the thinner your skin gets, which is why the elderly can deglove their arm simply from falling and hitting something a little too hard with some drag.
There's also a method that adds a metal guide that is slid under the cast to both protect the skin and make it easier to place the cut. One study also showed it reduced patient anxiety (patients were age 5+ years, no previous cast experience).
So realistically, it's gonna come down to technique and skill, as well as adequate padding under the cast. Basically if the person putting the cast on or taking it off doesn't know wtf they're doing or just isn't good at it, there absolutely could be injury. Anything can hurt you if you try hard enough, and a cast saw certainly isn't any exception X3
@@angellittle1571today I learned about degloving. What a terrible time to be literate. But very interesting!
@@SteffiHenri1992 Yeah, skin is interesting 😂 mammal skin isn't really connected to anything, so it's fairly easy to get off. The upside is it makes it possible to put it back on! It's also why skin grafts and excisions are so doable. Gotta find the positives sometimes 🤣
My husband (who does not go to the doctor easily) was in so much testicular pain, he was screaming and crying. I'd never seen this man scream and cry before and had him go to urgent care to hopefully avoid an ER bill. The doctor told him he had an infection from an STI (didn't ask about sexual history, didn't run any tests, didn't ask about anything else, didn't evaluate for a torsion, didn't even validate his pain). We ended up going to the ER and it turned out to be a kidney stone. The pain was radiating to the testicle, but nothing was wrong in that area. That was definitely our worst medical experience.
It's very easy to tell if someone is truly in pain as the heart rate rises significantly. Honestly that doctor should have his licence revoked
My OB after my first birth was taking a LONG time down there and when I voiced my concern she said I’d had quite a bit of tearing and she was taking her time with the stitches so I’d remain pretty down there. Some people thought it was an odd thing to say but me and my doc had a really comfy relationship. I moved away 10 years ago. I still miss her.
That's really kind that she phrased it like that and took care of you like that. It's always good to hear about good obgyn
Honestly maybe odd to an outsider, but she probably understood that most women's self confidence PLUMMETS after the changes that come along with pregnancy and didn't want you to deal with that
My worst one is going on currently. I have had collagenous colitis for the 4th time now, and when they called with the results from the latest coloniscopy, they didn't have any of my updated medications and told me to stop taking one of them because it has been correlated to cause this colitis! I had stopped that medication last year when I finally got into see them and they told me the same thing! Make sure you have the updated patient file or you are wasting time going over things that are not applicable docs. I had to wait an entire year just to get into see these doctors, super frustrating!
First time seeing a new endocrinologist he stopped me just after entering the room and said "No. You can't come in. You clearly don't take care of yourself. Come back when you lose 50 pounds". He made his assistant close the door on my face. I cried all the way back to my house.
Everyone - but ESPECIALLY doctors - should be able to internalize that overweight people are still human beings and deserve to be treated as such.
What a horrible person, I'm sorry. We do the best with what we can and if you're making an effort to go to the doctor then you are trying to care for yourself! That person should be fired.
This is so dumb because an endocrinologist could maybe help shed some light on WHY you are overweight. So if he really wanted you to be healthier, and let's be completely honest, this isn't what it's about with these people, he should've invited you in instead.
that is a violation of the hippocratic oath. the doctor could get in serious toruble for that
Thathappened.jpg
I was 24 years old and a nurse. I peed and noticed blood on the toilet paper, but I didn’t have my period. Next time I had to pee I peed into a cup and it looked like straight blood mixed with a little bit of urine. I took a picture and got an appt with a urologist. He’s a middle aged man. First question he asked me after I explained everything was “are you sure you’re not on your period?”
That's horrible. I hope you ended up being okay!
That is BS. It is really hard to get a doctor to see you, and it’s expensive here in the states. I would never waste my or their time if I knew what was happening, and I’m fine. I hope you’re doing better! What did it end up being?
to be fair to him, he has probably had people who had a similar situation but were on their period
@@clairer342 right!?! And the conversation started with him asking about me and what I do and I told him in a Nurse! Don’t you think as a nurse I wouldn’t come to you unless I thought there was a legit problem?
@@errantwinds-up8uu couldn’t find anything wrong with me!
The worst visit I had with a doctor was back in junior year. I was prescribed Zoloft medication and I lost my appetite which led to losing a lot of weight (a common side effect of Zoloft). However, when I visited the pediatrician, she accused me of having anorexia and threatened me and my parents that she would call CPS so I would be forced into an eating disorder facility. I had no other symptoms of anorexia according to my psychologist (whom I've known for seven years) and told my pediatrician that I didn't fit the criteria for anorexia which led the pediatrician to insult my psychologist. I had to force myself to eat just so I wouldn't get the police involved and when I proved to her that I wasn't anorexic, she never admitted fault. to this day, I'm absolutely terrified of doctors and seeing anyone in the medical field because of that one pediatrician.
I'm so sorry you had to go through that hopefully they got fired for being total trash
People who use the CPS cudgel are the worst. You just know they snitch on everyone then turn around and be the ones stealing drugs from the facility pharmacy
You shouldn't be afraid. There are good doctors out there
Dont' be afraid of doctors. Just take one moment at a time. Call a few offices to see if they let you do tours due to your anxiety.
I was also on Zoloft because doctors were pushing it like candy 20+ yrs ago. I was one of those patients like you because I "missed home" freshman year. It made me wanna end everything instead. I called my mom and told her something was abnormal with this medication and never went back to that doctor and sotpped that medicine cold turkey immediately. even with my depression/anxiety now, i've never felt that low. I'm so glad they found something with that wrong with that medication but sorry so many people lost their lives before they realized it.
This is an absolutely terrible experience. Wow, I'm sorry you had to deal with that.
In mine and others experience with eating disorders- most medical professionals are hardly even aware of them, how they may present, the health complications, and especially- what to do if they suspect someone may have an eating disorder. Mine was missed for over a decade, and some behaviors were actually reinforced by medical professionals.
Doctors need to be more aware of eating disorders- and they need to be aware that they are complex to diagnose as well.
This sounds like a doctor who is wayy undertrained in that area, but may have heard about how serious eating disorders are and went in gung ho when they saw quick weight loss in a patient. Getting incorrectly and aggressively diagnosed can be very traumatic, and that's not okay.
Tldr: doctors need way better training on eating disorders. And I'm sorry you went through this ❤
I had an ingrown toenail and went to urgent care. The numbing didn’t set in and when I told the nurse she asked me in a super snarky tone “well can you handle it?”
I used to have chronic pain and no one could figure out what was going on. Eventually I diagnosed and treated myself. Now I’m in medical school and I’ve made a promise to myself i will never be that doctor who says „no idea what’s wrong, guess I’ll just discharge you even though your issue is still there“. There is nothing more frustrating than the people who are supposed to help you leaving you on your own with your pain and with no plan to help you. Like if you can’t help refer me to someone else who might be able to.
💗💗💗💗💗 Hero!!! 👍👍👍
Wonderful video
I wish I had you as a doc - 17 years of an (as yet) undiagnosed chronic pain condition that no doctor in my entire city (there's a lot of hospitals) can figure out why. (I don't want an internet diagnosis I'm just wishing on stars lol)
It should NOT be "no idea what's wrong, here's your discharge"
It should be "no idea what's wrong, so here's my friend David, he is specialized in finding things"
Worst experience I had was actually with a psychiatrist. Our first meeting, despite me having meetings with other MH professionals before that, he asked a lot of very basic questions (not an issue in itself), and just said "Hmm" to anything I said.
Eventually "Do you ever think about killing yourself?" "Yes." "Hmm. Well don't."
Gee, thanks Doc, would never have thought of that myself...
Damn, didn't realize i can just say "no" to the intrusive thoughts and they can't come in without my consent.
I'm sorry this happened to you.
My first therapist was kinda similar.
I have big anger management issues and it sometimes literally felt like i was watching myself do and say stuff without being able to change anything. Like watching a movie.
Therapist said "Of course you know that's not true. You always have full control over yourself"
Well, geez, i didn't know i could just...not....flip the overloving f*ck out and ruin all my relationships and my work (literally lost jobs over this)
New therapist asks me to try out a certain med.
Changed my life. *Saved* my life
yeah, like, you have a broken arm? just don't lmao
Once my sister was going through a hard time (she was really young may be 19) and I went with her to see a psychiatrist (as I recommended her to do). Your story is exactly what happened, and then she (female doctor) just asked my sister if she wanted to say anything else she answer no and we just went home.
.
The "professional" advice I received from my couple hundred dollar appointment to get help with my OCD was...
"Do you know you're doing them (the compulsions)?"
"Yes"
"Well stop doing them"
I'm gonna gather they didn't have experience in treating OCD and my parents didn't know any better so I got told that for a couple years til we realised that was pointless advice
Every single time with my picking habit (anxiety thing, basically scratching insistently at myself) i have been told so many times to just 'dont'. Like- ah yes, why didnt I think of that one? Or the alternative, 'just do something else'. I dont control the itch, it just happens when im panicking! Why is that a difficult concept!?
In college, I was tired all the time regardless of how much I slept. I started to suspect I might have a sleep disorder, and hypothesized sleep apnea because I knew my dad had it. I was basically told that there was no way a 21 year old, healthy weight female could have sleep apnea, and told it was depression, despite my insistence that I'd had depression for years, I'd had depressive episodes before, and this was different. They did do blood tests that found I had low ferritin (which is associated with restless leg syndrome), and mild hypothyroidism. (Also of note was the phlebotomist who called me "ladybug" while drawing my blood.) Even with those treated, I was still sleeping too much and tired all the time, but the medical professionals seemed to think a sleep study was unnecessary and discouraged it.
I guess I eventually accepted the explanation of depression, because THREE YEARS LATER I found myself telling my new psychiatrist that I was having a depressive episode.
"What are your symptoms?"
"Well, I'm really tired all the time, I'm sleeping a lot..."
"Have you lost interest in your activities?
"Well, not really, but I've been to tired to do much..."
"Do you find yourself crying a lot?"
"No."
Basically every symptom she asked about, either I wasn't experiencing it, or it was the direct consequence of being too tired to do anything. She then told me that it sounded more like I was describing a sleep disorder than a depressive episode and referred me to a sleep lab. Yeah, turns out I do in fact have sleep apnea. And periodic limb movement disorder. Further testing also added idiopathic hypersomnia to the mix (for those who don't know, that basically means that even with the other issues treated, I still sleep too much and they don't know why). My psychiatrist says she ends up sending a lot of her patients to sleep labs, and I've heard from other psychiatrists that they end up diagnosing sleep disorders a lot, because apparently it takes a psychiatrist to recognize when someone's symptoms *aren't* caused by depression.
In retrospect, this does a lot to explain my grades in college, because it turns out that when you sleep instead of going to class, and sleep instead of doing homework, and sleep instead of studying, you don't get very good grades. Granted this wasn't the only factor, ADHD and OCD also played a role, but I do wonder how I would have done if I'd had my CPAP therapy and medication during college.
You can have sleep apnea at any age/size. My son never slept a full night through until we (finally!) got him a referral for a sleep test. Turns out, that indeed, my undersized four year old had sleep apnea. After we had his tonsils/adenoids removed, he finally had his first full night of sleep. Then, I had to get used to him sleeping quietly. It took awhile before I stopped going into his room at night to make sure he was still breathing. 😅
If you're still struggling I would have your doctor check your vitamin b9 and b12 levels, as deficiency commonly coincides with low iron and hypothyroidism and is associated with depression and rls. It's worth ruling out at least. Hopefully you can get some good sleep 💤
I went to a neurologist with "maybe it's sleep apnea", and I had a sleep study that came out too perfect... now I am waiting for other exams and maybe a repeat of the sleep study
I am also concerned about sleep apnea, my watch keeps measuring really low blood oxigen levels at night in spikes that get worse specifically when I can’t breathe from my allergies. My doctor just told me that my watch is wrong. 24 year olds don’t have blood oxigen problems.
@@teknosbeka I want a watch like that, I just have to rely on family history and how shitty I feel when I wake up
Went to the clinic for a problem relating to allergies. Had my ears checked as part of the procedure, and got told they were clear. That same night I had an ear infection that hurt so bad i couldn't sleep.
Went back to the clinic the next day, saw a different doctor, got told the situation in my ears was awful and he was shocked to hear the first doctor said it looked fine
I was donating blood one time. This medical intern's friend arrived and they were chatting. The intern got the bright idea to move me in the admist of donating blood to another seat just because they both could chat comfortably. I slipped while getting up which made the blood bag drop to the ground, yanking out the needle from my arm. He offered to put that thing back in my arm, i flipped him off and brought a senior doc and fing reported him. Some people seriously doesn't even deserve to be docs especially when they cant think ahead and goof off
It was probably a phlebotomist that was the jerk, no?
that’s really awful and must have caused you to bleed a ton since those are really large gauge needles, but that wasn’t a medical intern…
what!!!
When I was pregnant with my first, one of the first things I discussed with my OBGYN was that I wanted to avoid a c-section at all costs. I already knew about the increased risk of complications, poor outcomes, increased risks with subsequent pregnancies, and I did not want to get on that train. She agreed and reassured me her c-section rate was lower than the state average, and that the bloodthinners I needed to be on could be adjusted so that when I went into spontaneous labor, they would be out of my system by the time I delivered. Fast forward some 27 weeks and she's telling me she wants to schedule an induction. Being that I thought the plan was spontaneous labor, I pushed back, I also knew inductions increased the odds of ending up with a c-section. She actually argued with me, and when I brought my mom in to advocate for me she got very snippy and said "I don't know why you're so upset, most women are happy to be induced." I think she wanted to induce me because my due date was less than a week before Christmas and she wanted to hurry up and go on vacation. When I missed my alarm on the morning of the induction, the hospital told me I could come in anyway but when I got there she told me I was too late and would have to come back in a couple of days (why not the next day? because it was the 13th and heaven forbid anyone deliver a baby on the 13th). I had no say in anything the day of the induction and was contracting for less than 12 hours, bedridden, before she decided I needed a c-section because "I don't want you to deliver on the night shift." I felt so betrayed by an OBGYN who seemed to be on my side for most of my pregnancy and then did nothing but disrespect my wishes and boss me around and pile interventions and surgery on me with no consideration for my feelings, only her own convenience.
Is it legal to proceed with c section without your firm?
This reminds me of how my aunty gave birth.
She had MULTIPLE C-sections.
@@anainesgonzalez8868 I had to sign consent forms, yeah, but I didn't really have the option not to, you know? I was already in labor, she had broken my water 12 hours ago (AROM also increases c-section rate), what else could I do? even when she wanted to schedule the induction, I was already 37 weeks and on Medicaid, no way would I have been able to find a different doctor in time. the whole experience was traumatizing and led to a lot of increased anxiety around my second pregnancy.
I’ll never forget the first time I talked to my doctor about my anxiety and depression. I was 20 and I’d struggled with depression for as long as I could remember but the anxiety was new since I started college. I said this and he said “oh yeah I’ll write you something for that. Anything else?” Uhh no? He left. I thought it would be more involved. I thought maybe he’d need to know about my decade long history of self harm or ongoing s*icidal ideation. Nope. I filled the script and had no idea what I was in for. Pharmacy didn’t do a consult, didn’t ask if I had any questions. Within a week I tried to jump out of a moving car into traffic. I had never made an attempt before. I don’t remember how I found out that Paxil can worsen anxiety and depression before getting better. I stopped taking it and wrote meds off until this year. I am now 29. I was able to advocated for myself (different doc obvi). This has been the best year of my life for a long long time. I hate that it took me so long to get here but I’m glad I did.
I was at least informed that it was supposed to get worse before it got better. Except it never got worse. Or better. It was supposed to help after a month, but it had no effect. Three months, no effect but let's add a bunch of other pills to the mix. Six months, a dozen pills per day and absolutely no effect. Meanwhile, mental health professionals of varying titles are quitting faster than I can meet them so when it was time to renew my sick leave a doctor I've never met called me on the phone, told me to quit whining and just pull myself together because I'm never gonna get help from anyone anyway. Sorry dude, but the "pulling myself together"-ship sailed like 20 years ago, which you would have known if you had read my journal. I'm still convinced he found his psychiatrist diploma in a cereal box.
My mother-in-law once was very sick. Went to the hospital and the doctor told her she didn't have insurance and how was she going to pay. She told them to worry about fixing her and she would worry about paying. The doctor told her they couldn't help her and she had to leave. My sister-in-law who was with her called a doctor friend and told her the symptoms. The doctor friend told her to go back in through the main entrance and she was calling in the admittance right then. Turns out, my mother-in-law had sepsis.
Here’s my worst one kinda: It was Mother’s Day and I was at church. All of a sudden my eyes started going spastic. I couldn’t control them. Then my face started to twitch. Well I walked out and it got worse. My face was having uncontrollable spasms. Thankfully we had a lady who was a nurse. She told my family that I should probably go to the er. It doesn’t seem like a seizure but just in case we should go. We get there I had to be out in a wheelchair because it moved from my face to my entire body. Well it took about an hour and I’m just sitting there panicking because this has never happened before, but the team there had no care at all. Well we go back and finally see a doctor. He seemed nice at first and was telling me it could just be some of the medicine I’m on. He gave me Benadryl and some pain med for a headache that developed. Well we get home and in his notes he basically put he thought I was faking it and just gave me medicine to try the placebo effect. And that hurt a lot. I’m freaking out and he basically says he thinks I’m faking it in his notes where all my other doctors can see. I was in fact not faking it. I have now been diagnosed with FND and I was having non epileptic seizures. I know how different things almost every week or day and can’t really live life. At least now my other doctors actually care and can admit if they don’t know. That guy just had an ego and didn’t want to admit that he had no idea what was wrong and instead tried to shift it onto me saying I’m faking it.
What a jerk
It would be great if you tell us his name. Nobody will go to get treatment from him AND will be able to avoid major issues
God... That is awful. It makes me so damn sad to hear that. Doctors sometimes really do have weird perceptions of people who are not already diagnosed with a disorder to begin with, they don't realise it could be a possibility.
My sister has FND. It is so real. I'm sorry you went through that.
As someone with multiple health issues, the amount of times doctors /specialists have been wrong and damaged or almost killed me is surprising
Oh I believe you. How much doctors don’t listen to me and believe they know better!
I had a late-afternoon appointment with my primary. Got shown to an exam room, vitals taken, etc. Time passes. Eventually someone opens the door without knocking and looks surprised to see me. The lights in the hallway we off. Another half hour later, the doctor enters. Clearly, they were locking up and forgot about me, and I’m sure the doctor was on his way home.
How do you miss a patient checking in and never coming out? 💀
That is close to mine, except ER doesn't close. The ER was busy and full. I had a deep wound from a brake lathe. They put me into a normally unused room. I fell asleep and woke up later, wandered out and asked when I would be seen. They panicked because I hadn't been put on the board, so nobody knew or remembered that I was there. On exam, they told me that I should have had stitches, but now it was too late, cleaned it up and sent me home. I still have the scar as a reminder.
I really wish there were more doctors around my area that were like what you seem to be as a doctor. I'm on my 4th neurologist for my chronic migraines and I feel like I'm just being passed along like a bouncy ball or basketball without a care in the world. I tell em one thing and they hear another. It's exhausting.
Got a pap smear for the first time. It was a very uncomfortable/traumatic experience. Cold, exposed, no history with the doctor, no lube or anything, overall anxious because ive never had one. I dont know if she did it incorrectly but it was very painful. I cried. The doctor stood their aghast at my reaction, no comfort or understanding given. Somehow jumped to the conclusion the only reason for my reaction was I must have been sexually assaulted. "Why didnt you mention your past abuse" I was confused as it wasnt true. So many people act like being undressed and vulnerable isnt a scary thing if youve had sex before. Or they think it shouldn't hurt inserting dry
I can't even get pap smears because the pain is so bad. Last time my Dr tried to do one I tried so hard to deal with the horrible burning pain but he still couldn't get it fully inserted. He was angry with me and just said" well I guess that is that" and left the room. I ached down there for hours after and even bled a little, I let him go far enough to tear something down there before telling him to stop and he just blamed me for being unable to do it and left.
@@SohiHien not to be an internet-diagnostician out here but that sounds a lot like vaginismus to me. basically having a pelvic floor muscle so tight that it closes off your vaginal canal, and pain or anxiety makes it worse. i have vaginismus and "burning" is how i would describe the type of pain i get from trying to insert anything; for my first pap (and only, thank god, because it was the precursor to a hysterectomy) they used literally the smallest speculum they make and it was _still_ a painful, miserable experience trying to get it in there.
it is a condition that can be treated, so i think it's probably worth looking into at least.
@@TheGuindo well sadly I have no way to know. I no longer have a family Dr and am on a long waitlist for a new one. You can't get into specialty doctors without a referral from a family Dr. Also went to a gynocologist years ago and she didn't even bring up the pain and failure to have a pap performed as any sort of medical issue. Just said I was probably fine without one and they did an ultrasound to check for polyps which was fine at the time so I was let go from her care. She sucked anyway just like my family Dr did. Hopefully when I someday get a new Dr. they will be better and actually listen to my medical issues and try to help me but it likely will be a few years before I can get a new Dr and this issue is pretty much at the bottom of the list for my problems.
@@SohiHien it's not something you need a doctor to diagnose and treat. i just meant to google it, do some research and see if the symptoms seem to fit your experience. treatment isn't surgery or medication, it's mostly exercises that you can do on your own at home, so online resources can help you if you decide it's something you want to try to fix.
i do wish you luck in finding a new doctor, though. that's a tough situation to be in.
I'm sorry that happened. She definitely did it incorrectly. Usually they err on the side of too much lube, and it might be uncomfortable, but should be any sharp pain or anything like that.
I had a UTI that wasn't cleared with two courses of antibiotics. I turned pale, my body felt weak and ached, and I got a really high fever. I called my healthcare center to ask to see a doctor, and had to argue over the phone with a nurse that I was truly unwell. I finally got an appointment, was sent to lab and it turned out I had a severe kidney infection.
Another time, I got a really high fever and the worst headache of my life, several days in a row. I couldn't turn my eyes without a head splitting pain. I went to the ER, was sent home with "you just have a bad cold".
After a few days and my fever climbing even higher (past 104 F or 40 C), I took a taxi to the ER again, and due to the high fever I was seen to quickly. My doctor went very serious as he told me "I suspect you may have contracted meningitis, and we have to isolate you immediately until we have tested whether it's viral or bacterial, because the bacterial variation is very contagious". I was escorted into an isolation room and left alone until nurses with protective gear entered to hook me up on IV, and to take blood samples, followed by a spinal fluid sample. The moment the doctor drew the spinal fluid sample, the horrible headache disappeared. The tests came back in a few hours, and luckily showed that what I had was not the bacterial variant of meningitis, but appeared to be of viral origin.
I'm extremely thankful for how I was treated the second time around, but also horrified that a nurse had sent me back first with such a painful and difficult condition, that could have been deadly if the source was a bacteria.
I will never get over being told that my pain is all in my head and I should meditate - I ended up needing spinal surgery because my spine was so F'ed up, but you know I'm a female. We don't experience pain, we only experience hysteria!
Yeah I don't know how many times I told my doctors I was in pain and they still haven't been able to help me. We females are just so dramatic, we practically dry up and become spinsters without a dashing man to come save us, eh?
@@sarahtaylor6081 yeah, absolutely. Hysterical weaklings.
That's sad to hear. But, Idk if it is only women who experiences this.
@@josephdahdouh2725Of course not. Men get mistreated and misdiagnosed/dismissed as well. However, it’s more common amongs women. 🤔
@@Emsev100 what my point is that I don't believe the reason they were dismissing her was due to her sex. Especially these days when women are becoming as dominant in the workplace especially in health care.
That ingrown toenail story hurt me just to hear it. I had to have one of my toenails removed once when I was 15 because I stubbed my toe so badly once that I broke the nail inside my toe and while the new nail kept growing it didn't push the broken part out correctly and it started pushing it out through my skin just before my nail bed instead and caused infection to build up. The numbing to have my nail removed hurt SO MUCH. I can only imagine how much someone digging around so stupidly in an already sore area would hurt. Big yikes on that one
It's definitely good to understand your patients and bond with them if you can that builds trust of course get to know them first for the best results
around my sixteenth birthday, i became gluten intolerant- but it took me about a year to figure out that was it. i spent the entirety of the eleventh grade progressively getting sicker.
i ignored my friends, got low grades, quit the only sport i ever loved, and assumed i was just lazy. when i finally figured out i had an issue, it was after losing weight.
it seemed impossible because i was at my lowest level of physical activity ever, and i have two chronic conditions that cause an inability to lose weight!
i figured out my problem and saw a doctor about it right after turning 17. when a blood test came back null, we moved on to a colonoscopy and endoscopy.
when the results came back also null, my doctor called my parents to inform them that they'd decided i was faking for attention, listing the sole point of reasoning as my age.
That's horrible, I hope you have it figured out now! I absolutely despise people who dismiss problems just because the one having them is young.
the one hospital in my town is awful and almost every person i know who’s been there has had a bad experience - my grandma was MISDIAGNOSED WITH CANCER and they took her kidney out when they didn’t need to, and my sister in law had a tumor in her spine she didn’t know about and when she had her daughter i guess the pressure during labour broke one of her vertebrae and she couldn’t walk or feel her legs and for weeks they said it was normal. my mother had a stroke and because it was christmas eve she had been drinking so they blamed it on her and treated her terribly. she was left in a bed in resus for hours (idk if you have that in america but it’s where all the sickest emergency patients go before they’re admitted) and said “you know there are ACTUAL sick people here, right?”
Wtf, that's insane! Why and how is that hospital still open?
medical misogyny really is wild
@@IvyJolene i honestly have no idea. we’re not very litigious in the uk so maybe that has something to do with it? a lot of complaints just get swept under the rug, and the NHS is literally crumbling so malpractice is kind of becoming something to be expected because doctors can’t keep up anymore, especially since covid. it’s been an issue since our current government came into power 12 years ago and is only getting worse. we’re probably going to switch to a privatised system if it carries on.
I had one experience… it was the worst! I was very sick and couldn’t go to work or to the doctor to get a note. At that time I was living alone so I had nobody to take me. When I feel better I finally go to the doctor to get my note. In the consult he started to ask me where am I really from because I’m an immigrant, and also treated me soooo badly. He thought I had COVID, even though I knew I didn’t. He sent me to do a COVID exam and when I ask him to give me a note that said I was sick, he didn’t, and said in a sarcastic voice “I get sick too and they don’t pay me so life is unfair”
When I tell you I GOT OUT OF THERE BALLING MY EYES OUT!!!
The worst doctor ever!
I am an intersex person. I went to a clinic for treatment for a uti. I wanted antibiotics. What I got was a lecture from the doctor about how irresponsible I was for not getting "corrective" surgery, and did I want to be like "those people who just do it for money" (?!)
I'm not sure whether that's enough to report the doctor, but wow.
"Being a garbage human being" is unfortunately not yet enough to report a "professional" in any field, no. @@cynomain9802
Which people who do what for money? Im hoping I don't understand and it's not what I am thinking... please tell me he didn't accuse you of self neglect for sex worker options? Self acceptance+ self worth are never character flaws.
@sarahwithstars The doctor was a woman, but yes, that's exactly what she was suggesting. Offensive on the face of it, no matter how one feels about sex work, but further so for equating the choice not to undergo risky and medically unnecessary surgery to self-neglect (the doctor, not you).
@@xshiromorix I am so sorry. That is truly horrific. There is a huge disconnect between holding values and opinions for your own life and then imposing your opinion on others, passing judgement on their values without evidence. It reminds me of an interview I read about acquired disability and how many people try to show sympathy or support with the comment "you are so strong, if I was going through that, I would have killed myself." It's not admiration of strength, it is reflecting what they see as a worthwhile or fulfilling existence. It would be much kinder to say "I admire your outlook and hope I can learn to be as resilient as you are" or "I'm sorry it has been necessary for you to be so strong but I'm proud of you"...
But if you do not have functional impairment for the life you wish to be living, there should be zero other 'opinions' involved- her role is to present you with options and respect your path.
I'm hoping you know this already, and don't find this patronizing, but I'm thrilled you can embrace yourself as you are, regardless of the 'typical' body in your doctor's text books.
i have chronic pain (probably fibro), and around the time it first started (i think i was 19) i went to a orthopedist and he completely refused to check me, saying i was "too young" to need to see him, and telling me to go to a rheumatologist, when the closest appointment was in half a year.
it was extremely debilitating, and being just completely dismissed like that was honestly just as painful as the pain i was there for
I also have chronic pain as well! And was told I have fibro but most of my symptoms don’t even match up with true fibro. I’ve had so many tests and everything would always come back normal and I just gave up trying after being dismissed many times.
When my mom was pregnant with me back in 1994, she had a black spot on one of her little toes. She never thought anything of it and figured they wouldn't do anything anyway because she was pregnant. When she remembered to look at it again after I was born, it had healed and disappeared. Two years later she was diagnosed with metastatic melanoma. She survived. And 16 years later when I was a senior in high school, she found another teeny tiny mole ON THE SAME TOE. It was biopsied and it was again melanoma. She ended up needing her toe amputated to get a clear edge. But she has been cancer free ever since. So YES. You even have to take off your socks at the dermatologist. And my mom's derm uses her as an example every time someone makes a fuss about taking off their socks. Cancer can appear anywhere. And I'm just so damn fortunate that after all that, I have the most badass fighter for a mom and she's still here today, 72yrs old and strong 💪🏻(yes the math is also correct, I am almost 29 and my mother is 72. She had me at 43yrs old!)
5:04
my mum has had SO much problems with finding the right doctor because of her MS and because of doctors brushing her concerns and pains off. we have since moved so we're hoping to find better care here but I can vouch for this one because I've watched my mum struggle for my whole life. I feel so bad for this redditor's friend.
I’m gonna use your “if I tell you nothing serious is going on, is this still bothering you” method when talking to my doctor from now on. It’s not just pain, either. At this point, my doctor telling me my persistent fatigue, lethargy, and brain fog (among other nonspecific chronic symptoms) is “nothing serious” is FRUSTRATING, not reassuring. It’s keeping me from living my life and making it hard to keep up with my job. I want to know why, and I want to fix it.
If it is affecting your life and job, you need to see someone else and pursue a diagnosis. I have had memory problems for 14 years and no tests have been done by the neurologist that I currently have because of epilepsy that I got a lot later in life than when my memory problems first started. I will be begging for an MRI on 10/13/23.
I wish you luck.
ME/CFS?
if it's affecting your daily life and quality of life - it is serious. look for a new doctor. (if you're in the states or are using medical insurance - the insurance providers have to by law (most countries anyway) allow access to a second opinion aka new doctor). Get a second opinion, and a 3rd and keep going until someone takes you seriously and if they try to complain or act offended point out to them that you wouldn't have to find a 2nd opinion if they just took you seriously in the first place.
@@cynomain9802Praying over you!
Jesus loves you so so very much!!
I’ve got a couple stories…
Broke my ankle when I was 13, months after it healed my knee was hurting. At pediatrician’s office, he tells me, and I quote “you’ve got too much up here (patting stomach) to support down here (pointing at my knee).” I was not overweight. What a way to make a teenager feel really good about herself…Mom then took me to bone/joint doctor who showed me the damage in my knee and actually helped without making me feel awful.
During 2nd pregnancy, had AFP test at about 16 weeks. Doctor tells me later that test result was abnormal. Sent me to a genetic specialist that I had to go to for 4 months. I was treated rudely, and the doctor basically accused me of being in an incestuous relationship and tells me my baby would probably be born with spina bifida. I had a terrible time, depression, anxiety, I just shut down. Fast forward to about a month before I was told I was due (early October) and my OB doctor casually mentions that he now doesn’t think I was as far along as he originally thought and the test was done too early. New due date 10/26. I went into labor on 10/27, had a beautiful, healthy baby boy with absolutely no issues. You’d think within that 4 months of constant mental torture and multiple sonograms and tests, they would have discovered their mistake sooner.
I'm so sorry you had to go through that hopefully reported them and they all got fired for being terrible
Gee, context is out the window I guess. Now, you did mention more than one story, but Lord knows you could at least tell us when one story stops and another starts. I thought you had your second pregnancy around 13 years old.
@@donloder1 There are paragraphs??
@@donloder1 Come on, if cannot be that difficult to comprehend context clues and figure things out instead of showing a lack of tact and feigning ignorance.
@@jep9092 Thank you. For the first instance, my mom did bring it to their attention, and was able to find a different office and doctor to help me. As for the 2nd one, my OB doctor retired shortly after, and I didn’t even have the capacity to do anything except to focus on my healing and my kids, (Son weighed 9lbs, and epidural was too late to kick in.) 😱
My dad went to the doctor because he had a lot of pain in his hands, arms, and legs. The doctor said that was normal for someone with rheumatoid arthritis. He didn't know he had that. Turns out his prior doctor got that diagnosis more than a year before, on his last blood test, but somehow never notified him.
It took four years and five doctors to get a PCOS diagnosis and another three years to get an endocrinology referral. Even within all of that, I had been requesting help for pain. Turned out I also had fibromyalgia. I was dismissed by everyone, told to lose weight, sent to counselling (NOT therapy) and told to lay off gluten. I don't know how some doctors are allowed to practice medicine.
I was in the hospital and right after a blood transfusion i started shaking and broke out in welts all over. I told the nurse i was having a transfusion reaction and she insisted it was mosquito bites! When my legs started jumping on the bed she finally believed
MISQUITO BITES??? What the hell, man
While having my yearly exam/pap smear, someone knocked on the door of the exam room. My doctor opened the door, exposing all of my business to anyone in the hallway. I only had the very small paper shirt and sheet covering me. When I told her to change her gloves after touching the doorknob, she acted like I demanded her to give me her firstborn child. 😂
Good for you for noticing, realizing, and saying something. You could have very easily been in too much shock and dismay to have done all of that in mere seconds.
@@jenniferspeers2453 I'm normally a very reserved person and I rarely raise my voice, but I did on that day. It was such a breach of my privacy. I still don't understand why she didn't just wait or cracked the door. I've gotten a lot braver as I've gotten older. I doubt I would have done that twenty years ago.
My gynecologist was the same! I changed doctors.
@svetlanaandrasova6086 I did as well. It was so unprofessional and a complete lack of respect for my privacy.
@@lisalynnn The worst thing about these stories is having to continue to get treatment from people like this. I don't know if you could have left or found a new doctor, but putting you in such an uncomfortable position is fucked up. Now, you must sit through a pap smear with a moody doctor.
Here’s my worst one, I had a terrible asthma attack, I couldn’t breath and could barely function because I had nearly no energy because I was out of breath, the doctors tried to send me home saying I was fine, my whole family knew this was different, my dad told them to test me again, they found out I was having one of the worst asthma attacks they have ever seen. My Dad saved my life that day, I was scared as heck and still think about it to this day
My GI specialist missed my non-functional gallbladder for 10 years. I wasn’t having severe enough for true worry for most of that time… but I also have a crazy high pain tolerance.
When it was finally removed, I was double the correct size, twisted up, contained hundreds of stones, and it had *eaten a lymph node!* One of the worst the surgeon had seen.
One of my worst stories is when I went to the hospital with a very high heart rate while sitting and standing immense chest pain and feeling very tight in my chest. When standing up I felt like losing consciousness. EKG and blood pressure where taken immediately but then the doctor came in angry that it wasn't likely that I had a heart attack and borderline made fun of me for coming there not listening to my symptoms after chest pain, interrupting me telling me it was just a muscle ache and told me I was fine and to leave. After I tried to and almost/passed out in the hallway the nice nurse put me back into the bed. After that they made me wait made another scan and got even angrier at me for this also turning out negative. And literally threw me out of the hospital bed (they took the hygiene pad off while I was still laying on it telling me to get out because "I was fine". For everyone curious "nothing wrong" turned out to be severe pots and me/cfs. Nothing unusual to first get misdiagnosis for those or going undiagnosed for a long time but the way I was treated there because they haven't found something was horrible. To make it clear I would not expect them to get the right diagnosis nor believe that they could have done anything in that moment. I just wanted to be treated with dignity and compassion and I don't think that is not to much to ask for.
I have such a good rapport w my primary that whenever I come in outside of med checks and check ups, like I did a couple of weeks ago, it’s “what the hell did you do now?” And it always has me rolling. She’s the best and takes wonderful care of me.
A few years ago, I had an IUD implanted and I was having some complications with it. I went in for an ultrasound so they could see if it was lopsided or lodged into the wall of my uterus or what was up. I get into the room, undress, get under the blanket and wait, and then my gynecologist comes into the room and he says “this machine isn’t working today so we’ll need to move you to a different room.” He took my clothes and shoes as a way to help me I guess ?? but left me naked from the waist down. I was young and non-confrontational, so I wrapped the sheet around my bottom half and hobbled barefoot to the room down the hall where he led me. The biggest issue here though is that the sheet wasn’t long enough to fit around my waist so I was partially uncovered. It was a long walk down that hall. One of the most uncomfortable days of my entire life.
Bruh why wouldn’t he let you get dressed first 😭
😢
🎻🙄
@@MrAlRatswtf? This is a cooked thing for a doctor to do.
that’s fucked
Worst non-hospital encounter as a patient? I went in for an echocardiogram, due to some insurance weirdness I couldn't have it done at my cardiologist's office like I had every other time in my life. I had always had it done by my doctor or one of his, all female staff. I was 25 years old and I have a guy about my age stabbing me in the breast with an ultrasound wand and when he couldn't get the view he wanted, with no warning whatsoever he grabbed me with his hand. I've never felt so violated. The next time they tell me there are no female techs available I'm leaving and rescheduling the appointment.
Worst in-Hospital: I was in for a collapsed lung, the doctor went in on the wrong side, collapsed my other lung and I came out of surgery on a respirator. When he talked to my parents he asked them why they were fighting so hard to save me, why not just let me go and try for another child?
😳
Long story short, I was referred to a Palliative Care doc after finally admitting I was depressed after surgery for cancer. It was the best experience with a doctor ever. It was the first time a doctor asked questions and actually listened to the answers. It was totally uplifting. I know most doctors do listen but often they do so while writing on a clipboard which tends to communicate they've heard it before, nothing new here. If you're unhappy with a doctor for any reason, get a new one. It's important.
Second to last sentence is why I keep swapping therapists. If I don't like one I ask for another. It's covered by my Medicaid+Medicare advantage plan so I can do it as many times as I want.
That's so interesting you mentioned the dissecting aortic aneurysm presenting as back pain because that's exact what happened to my mom. No chest pains at all but had back pain to the point where they thought something was wrong with her spine but ended up finding out about the heart issue. Thankfully, she was able to have surgery and is now on blood pressure medication to maintain it.
My ex mother in law went in for breast reduction surgery to help with her back pain and not only did the doctor keep acting like he was disgusted and kept calling her fat but he also sewed her nipple on inside out. It was an outpatient procedure so we didn't know til she got home and went to change the bandages. The breast reduction surgery was necessary cause she was diagnosed with degenerative bone disc disease
i honestly don't understand why so many people get into healthcare professions when they have so much contempt for human beings.
That’s horrible
@@dietotaku money, power, prestige. Which is why we need to increase the number of doctors, reduce their working hours and reduce their salaries, so that there's less financial incentive and they don't get to sacrifice their whole social life in order to feel superior
@@bacicinvatteneaca it's a nice end goal, but the real question is: how do we get to that point?
That's not the end, when my mother in law tried to sue the doctor, he died before it ever made it to court and she dropped the suit cause she didn't want to sue his estate
I love what you said about advocating for yourself. I feel like where I am from (Quebec) doctors typically do not really accept patient comments or theories, but you should be using a collaborative method like you advocate for on your channel. I wish more doctors took the time to actually listen to their patients.
When I was in basic training, I took a spill down some stairs. My shoulder dislocated really badly. When I went to sick call to get it checked out, the P.A. said it was a minor labral tear. My shoulder kept dislocation over and over and over again to the point that they medically discharged me. When I got home I went to a real ortho doctor and they said it was one of the worst shoulder injuries he had ever seen in someone my age. I ended up having to get a total reverse shoulder replacement at the ripe old age of 26. I'm still fighting with the va to get compensation for my medical bills. Don't get hurt in the army.
Lol I went to the OBGYN, same one my Mom goes to, and a few days after the appt she told my Mom all my test results etc over the phone. Like, I luckily heard and stood next to her and there was nothing wrong or unusual but like??? I was 18 already. You’re not even ALLOWED to tell my Mom anything💀
I had a therapist tell my parents about my session (they sent me when they got divorced). They were completely disgusted and pulled me immediately. I don't know if they reported her tho, it was the 90s.
I have a friend that had a similar migraine story, her neuro brushed her off for YEARS, and refused to order an MRI. I finally convinced her to go see a family friend (also a neuro) and they ordered an MRI immediately, she got in the next day because he felt she absolutely could not wait. Turns out she had a non cancerous bone tumor near her right temple. If she had stuck with her old neuro she could be dead now. She had her surgery and the recovery was hard but shes living her best life now!
Well I was originally going to say that I've been finally getting help for my migraines this year and wow you should see my jaw bone. Imagine how much pain I could have been saved if I had been listened to. But then you got me in the feels with the aortic dissection. Mom passed from that, so yeah, again relating to the no one believing a person didn't feel good theme. I mean, most people just ask new viewers to subscribe. 😅
My old PCP (she retired 😢) was the real life Ms. Frizzle from magic school bus. I have Lupus and go through flares where I'm sick frequently. She always called me her "special" patient. She is the Dr. that diagnosed my Lupus - saved my life.
I feel you so much. Found my magical unicorn when I was like 30 and she was already past retiring age, but she still went on as a doctor because so many people needed her and she wanted to find a team of similiar wonderful doctors who could work there when she left. She did, and this year she went on to retirement. But everyone, doctors and patients, still miss her.
My mum kept going to this one hospital for pain related issues and they kept saying she was fine and sent her home. This happened a few times. She went to another hospital and literally not long later they were removing her gallbladder...
I've had so many bad experiences with doctors that I would rather be on death's door than to go for even a check up, But this guy restores my faith a little bit.
There are good doctors out there who genuinely care about their patients. Don't give up. Keep advocating for yourself until you get the right treatment for whatever conditions you may have. Much love to you, my friend. 😊💙🫶🏻
My first gynecological visit ever, the doctor said I have a great birth canal and birthing babies will be easy for me. It definitely skirts the line of appropriate things to say to a 14 yr old.
Why would that be inappropriate? Whatever your obgyn is saying is a biological fact. It is not like saying that you have a beautiful labia.
Saying that luckily you don't seem to have any potential difficulties whenever you get pregnant sounds a perfectly sound remark to make.
@@xantiom It's an inappropriate remark to make as you are talking about a 14 year old in a sexual manner (not entirely, but you do have to have intercourse to have a baby.) In addition to this, the doctor had no way of knowing whether they even wanted to have kids, or if they were uncomfortable with the notion of getting pregnant. I know that I always get terrified when I imagine having a kid. All in all, just not really something you should say unless the patient is older and you're aware that they're trying for a baby.
@@SodaADayKeepsTheSanityAwayI disagree. I think it was only awkward because she was a teenager having a sensitive part of her being under scrutiny by a male stranger. The statement itself is important because you're going to the obgyn in order to learn about that part of your body; what he said is part of his job. The one thing he could have done differently was have said this after the inspection, for the purpose of comfort. But the statement itself is mundane. I guarantee that if it was a female obgyn, it would be seen as such.
@@shaeby8123 I'm confused, where in the comment is the doctor identified as male?
It's cavernous in there. The baby could ride a quadriga right through.