Don’t we love doctors who actually listen to our concerns and make adjustments?! You are such a good advocate for Freya. The best thing about both Sebastian and Freya is that they are such happy little kids and that is all because of their loving families and their main care givers/moms, of course! ❤️🇨🇦
Oh, my goodness. You're dealing with so many complex issues due to Freya's syndrome and you're doing such an amazing job. I wish you and your sweet family the best of luck and much happiness in the future. The amazingly adorable Freya could not have been born to a more perfect family. ❤
I think you are a very good mum and you have to focus on Freya because of her needs, but you always have an eye on your other babies and I see that you are doing well and they are not neglected at all. You take one other child with you when Freya has got an appointment. You really are doing a great job with all your kids, and your husband also. He has to work hard to provide for his family. And you also have the garden, the greenhouse, the 🐤🐔🐤🐓 and you try hard to save money, cook your own marmelade, your tomato sauce, you make adorable birthday cakes for your family and so on..I don't know how you can do all this in only 24 hours a day...I say: thumbs up for you...💐
I'm so glad the anesthesia went well for Freya. She's such a sweetheart. I can imagine how stressful it is. But you're such a great Mom and you let the doctors know your concerns. I'm like you but so many people are afraid to speak up. You will always be your kids best advocate! And you'll always do what's in their best interest! ❤
I love Freya! You are an incredible momma! I love watching Freya grow and learn. She is a little stinker. So much fun to watch! PS, I love your family!!
Hi Marci, I’m watching the replay. I’m sad I missed your live. Very happy Freya did well and the procedures went well. Freya just melts my heart. Her smile and giggle just makes me smile. Marci never underestimate you and Chris ‘ parenting; I think you do amazing and all of your children look very happy and loved. and it’s great to see when the kids are playing and interacting with Freya. This was a great video.
While Freya is remarkable, she’s not the one that has me most impressed. You my dear, are not the average momma! You have several balls in the air, yet you are able to thoughtfully and calmly respond to a situation appropriately, when most of us would be diving under our covers. Your assessment skills, especially being a layman, are right on. Natural ability to reach conclusions after careful consideration from every angle. I pride myself in all of the aforementioned skills but honestly you have me beat hands down. That was the good news. Now, you are sorely lacking in one area and the most important. the self love category- be kind to yourself, show yourself some grace, be selfish sometimes. You show each family member tenderness, yet not for yourself! (in my opinion.). Don’t think you are alone in this journey. When something is upsetting you, it upsets us all! You are someone we all should admire- As a mommy, a wife but mostly as a person just trying to do the right thing.
That is so so kind. I do have a tendency to put myself last. My sister and I were talking about this just today. It definitely is from how we were raised. We are both working on speaking up and putting ourselves first.
My older brother was both physically and mentally challenged. And my sister and younger brother learned the best lesson which is acceptance. And we, sister and younger brother and I dearly loved being with him and taking care of him and spoiling him rotten until he passed away a few ago. But I wouldn’t change anything about my childhood. My mom also had 4 kids, I never felt ignored or left out. I hope your kids learn the same lesson as I did a long time ago. Please know that I think you are incredible and doing everything right!!
I am so glad that you were able to get so many tests done! My adult son has had progressive sensorineural hearing loss, plus autism and intellectual disability. He has fought hearing aids every step of the way. He does use sign and Mayer Johnson pictures. He has also gone blind, unfortunately, but using a tablet for communication would have been good for him. This may be something that would help Freya.
I'm glad it is over so you can just enjoy some summer. My kids are all typical, but my stress levels each time one has had a minor surgery was off the charts. When it is over and all went well, you can just breathe and basically recuperate your own nerves lol. I wish people would stop comparing Freya and Sebastian, and you and Stephanie. In general, all humans vary so very much so absurd to compare one against the other.
Little Freya has a good Mum and Dad plus a good medical team. She is such a sweetheart, from where I am in the UK sending love, thank you for sharing, I really hope her ears are going to get better. I’m amassed how tolerant her team is for her. X
Hi Marci, I think you are a great mom. My kids are grown and I am a grandma. I wish I had a role model when my kids were growing up that exhibited patience and understanding like you do with your children. ❤️
I totally agree. I wish I had Marci as a role model. Too late for me but there is hope for the world with Liam, Fiona and Jesse. All three have Marci as a great mom so they will be just like her, a great parent. Thank God for Marci.
OMG..it is so much to do with a kid with a condition..I think many other parents don't konw what you all are going throug..I'm happy Freya is okay after sedation. I know that it can be cery difficult for kids with cdls..Sebastian also had a hard time when he sedated..and all the medical stuff goes on and on all along the livetime..and these kids have to work soo hard to reach milestones..I think you and your whole family will take good care of Freya..you are doing so amazing wirh her..❤
Thanks for taking the time to share all of this information with us. I missed the live as it was at 2 am here in Australia. I am a teacher and learned about a child needing surgery for only 20% hearing. Rare condition but hopefully he will get great results. So glad that the doctors were so informative about Freya’s conditions and the anaesthesiologist sounds fabulous. Always hard with someone you love has surgery. ❤
Sorry I missed you live. Sure sounds like overall Freya is healthy. Have you noticed a possible hearing loss prior to her test? Must admit Marci, you look tired and I don’t blame you. I hope the summer settles in and you can breathe. I know you worry, but my untrained eyes have seen Freya advance exponentially since I joined about a year ago. She is physically stronger, seems more steady on her feet when she stands and she is trying to feed herself like a big girl. She has a way to go but you have her off to a great start!!! I notice she is more advanced physically than Sebastian. Poor thing doesn’t have great neck control yet but they go at their own pace. There is a little Portuguese boy from Brazil named Gustavo who sits up more on his own, stands more and smiles at his mama more. Very heartwarming to watch him grow too! Please take care asf yourself!!!
I’m so disappointed I missed your live, but grateful you could limit it to subscribers. I want to mention that Freya’s hearing loss may explain why she likes loud toys, etc. I agree with someone who commented on your older children having no resentment toward Freya due to the extra attention she needs. You have included them in her care, so they feel like she is their “baby,” too.
Hi ya Marcy how you all doing and yep checking in to see how Freya went with the procedure ,all of it waking up from the procedure bless her sweet heart .little cutie .hope everything went well and Freya is recovering ok after .and also with her hearing etc ..CDLS go threw alot alot of surgeries 🤞🙏 for her being ok . Must be stressful you and Chris to .anyway lots of people luv your family so leave you to it .🤞🤞for Freya .❤
You are so brave. Thank you for sharing all this. Much love and prayers to you and your family for sure. I know that growing up. I had a lot of ear problems and I did have three sets of ear tubes. My ears were so small that one time I had a doctor that put a size too big in so they wouldn’t fall out but then later on, I had a hole in my eardrum and had to get the ear tube removed because one did not fall out and that was pretty painful surgery. However, getting ear tubes with not as difficult as a surgery although, I think anytime you get surgery is still difficult either way. Just comparing those two together. Also, I have a very hard time waking up With anesthesia so I can totally relate. I think that you’re doing all the right things for sure and I can definitely say that as hard as it is, probably a hearing test down the road would be good because I know that after getting your tubes, your hearing can change good or slightly worse just wanted to be honest about it. Although, getting the tubes do help with fluid and that’s what I had to get those as well so they definitely did all the right things. It’s so hard until seeing your babies like this, but it’s also can be rewarding in the end because they’re so strong. You’re so strong and the Lord is faithful and every situation.
My youngest, Ginger, had ashama and she kept clearing her throat. She was stared on the purple pill and wouldn't have to be on it long, but it helped her for long periods of time. Then she would start the clearing again and the dr would give it to her again for like a month and she would clear up for like 6 to 9 months. She grew out of it.😊
I watch Stephane and Sebastian have done for years same with you and your family. I used to be remembered as Flossy Flue, I got a new tablet and couldn’t get on utube so had to make a new account. Sebastian is very also very cute. My grandson was taught him sign language. We cannot shut him up now! X Love from me and my guide dog Jester X
My hearing aids are very light. What bothers me is them coming out of the canal so I'm always pushing them in. Anyway you might try getting her use to one at a time.
Love your entire family. Missed this live, but that ok, I'm watching it now. I don't think ads run when you are live, but do run once uploaded to TH-cam. And you don't get ads if you have a subscription with TH-cam.
I know it's not the same situation or these kids I saw on this video dnt have CDLS ,but these kids couldn't see and eventually when they were 2yrs or 3 yrs they had these special glasses made like goggles and were irritated at first ,but when they wore them for a bit they were happy as they could see their parents,see alot of things .it's was amazing , emotional and just the kids were such happy little kids .👍
@@Freyasluckyarm I appreciate you educating me on Freya and prompt reply to my questions. I have hydrocephalus and have often been treated like I am subnormal even though I am high functioning and live independently. I also advocate for my niece, who has Level 3 autism.
Aww I hate that I missed the live. Is there a way to give her melatonin or some type of sleep aid for her sleep hearing test next time? Would that be safe? You need to tell Steph how to do subscribers only. She is getting a lot of trolls. Chris was cute, we love visiting with all of you. It would be awesome if you and Steph and the families could meet up and spend time together. I think Freya will pick up her wheelchair quickly, especially since she moved it right away❤ But her moving around on the is so cute and a lot of exercise. My mom also has MS.I watch a cute TH-cam channel called Beth & Coop/ Parenting + Inclusion Advocate, Her son was born deaf and wears Cochlear’s. It is a really sweet channel you should check it out
Well Marcy you and Chris from what everyone has seen in your videos are truly amazing parents ,so you'll do what's the best for Freya whatever you do obviously so hey .plenty of time to decide later .
And it's so lovely seeing all your other kids how they get on so well and how much love they have for eachother and Freya they are so sweet ,kind , funny and such happy kids .
I have a chromosome 18 p- I had I had a Baja but it did not work for me. The where did you hook it to your ear it didn’t really work. I had infection from it that they had to take it out the hook the metal rod. I have Bradley and aids now, but I hardly wear them, I wear them once in a while but I’m not used to wearing them so it takes me time to get used to them but mango in the air and I’m going the same way too. I don’t like contained in my ear either so I’m kind of the same but I’m putting my stuff in the left ear and this in a lot of right hearing as well, I had a lot of surgeries when I was younger with my ears eyes should you know it’s younger because my eyes lit up a my eyes were droopy I also to have a very small opening in my mouth, my message small so when they do is like an upper G.I. test, they have to press push. They put me in a different position where it’s easier for the doctor can get the scope down the throat when I’m asleep, and I asked to have a hard time waking them in the sleeping medicine, sometimes to
Just an FYI-I can see your live but I’m not a subscriber. This actually is the first time I’ve seen your channel, so please double check on the sub only live.
@@Freyasluckyarm ok, must be a glitch on my end. Love your video's Freya is so cute, I work with special needs kids and watching helps me know special needs for them.
It will help her communicate her needs and wants and specially as she has special needs. If she can't hear that could make it more difficult for her in school too. And communication is important for human beings. Of course there are ways to support her to communicate other ways too and she's as love able no matter what.
So she's hard if hearing ,but can you get tiny hearing aids possibly anyway so she can get to hear a little bit .ah right let her ears heal first .shame it's alot on her little body .
![ภาพนี้ก็ฮาเหมือนกันนะเนี้ย #2 SS8 [ พากย์นรก MEME.EXE ] | easy boy](http://i.ytimg.com/vi/RMhUgxxD49Q/mqdefault.jpg)
Freya is a beautiful child. I'm so glad you found an audiologist who is working with her.
Us too! She really was great
Don’t we love doctors who actually listen to our concerns and make adjustments?! You are such a good advocate for Freya. The best thing about both Sebastian and Freya is that they are such happy little kids and that is all because of their loving families and their main care givers/moms, of course! ❤️🇨🇦
I agree
Oh, my goodness. You're dealing with so many complex issues due to Freya's syndrome and you're doing such an amazing job. I wish you and your sweet family the best of luck and much happiness in the future. The amazingly adorable Freya could not have been born to a more perfect family. ❤
Thank you so much
It’s true Marci
I wish her well with all her test. I hope she can hear better somehow in the future❤ She is soo sweet😊
Freya is so adorable
I think you are a very good mum and you have to focus on Freya because of her needs, but you always have an eye on your other babies and I see that you are doing well and they are not neglected at all. You take one other child with you when Freya has got an appointment. You really are doing a great job with all your kids, and your husband also. He has to work hard to provide for his family. And you also have the garden, the greenhouse, the 🐤🐔🐤🐓 and you try hard to save money, cook your own marmelade, your tomato sauce, you make adorable birthday cakes for your family and so on..I don't know how you can do all this in only 24 hours a day...I say: thumbs up for you...💐
I'm so glad the anesthesia went well for Freya. She's such a sweetheart. I can imagine how stressful it is. But you're such a great Mom and you let the doctors know your concerns. I'm like you but so many people are afraid to speak up. You will always be your kids best advocate! And you'll always do what's in their best interest! ❤
I'm sorry I missed your live 😔
Such a Cutie Pie, Freya looks so much like her Beautiful Mommy🤗
I love Freya! You are an incredible momma! I love watching Freya grow and learn. She is a little stinker. So much fun to watch! PS, I love your family!!
I agree with you so much, these are my favourite videos,
Thank you so much!!
Hi Marci, I’m watching the replay. I’m sad I missed your live. Very happy Freya did well and the procedures went well. Freya just melts my heart. Her smile and giggle just makes me smile. Marci never underestimate you and Chris ‘ parenting; I think you do amazing and all of your children look very happy and loved. and it’s great to see when the kids are playing and interacting with Freya. This was a great video.
I love your comment. So well said. I will just say I agree with you completely.
While Freya is remarkable, she’s not the one that has me most impressed. You my dear, are not the average momma! You have several balls in the air, yet you are able to thoughtfully and calmly respond to a situation appropriately, when most of us would be diving under our covers. Your assessment skills, especially being a layman, are right on. Natural ability to reach conclusions after careful consideration from every angle. I pride myself in all of the aforementioned skills but honestly you have me beat hands down. That was the good news. Now, you are sorely lacking in one area and the most important. the self love category- be kind to yourself, show yourself some grace, be selfish sometimes. You show each family member tenderness, yet not for yourself! (in my opinion.). Don’t think you are alone in this journey. When something is upsetting you, it upsets us all! You are someone we all should admire- As a mommy, a wife but mostly as a person just trying to do the right thing.
That is so so kind. I do have a tendency to put myself last. My sister and I were talking about this just today. It definitely is from how we were raised. We are both working on speaking up and putting ourselves first.
My older brother was both physically and mentally challenged. And my sister and younger brother learned the best lesson which is acceptance. And we, sister and younger brother and I dearly loved being with him and taking care of him and spoiling him rotten until he passed away a few ago. But I wouldn’t change anything about my childhood. My mom also had 4 kids, I never felt ignored or left out. I hope your kids learn the same lesson as I did a long time ago. Please know that I think you are incredible and doing everything right!!
Thank you so much.
I am so glad that you were able to get so many tests done! My adult son has had progressive sensorineural hearing loss, plus autism and intellectual disability.
He has fought hearing aids every step of the way. He does use sign and Mayer Johnson pictures. He has also gone blind, unfortunately, but using a tablet for communication would have been good for him. This may be something that would help Freya.
Yes we are working with the school to get one and also on a waitlist to get one through insurance.
Hi enjoy your channel very much! Thank you
Freya and your entire family are amazing
I'm glad it is over so you can just enjoy some summer. My kids are all typical, but my stress levels each time one has had a minor surgery was off the charts. When it is over and all went well, you can just breathe and basically recuperate your own nerves lol. I wish people would stop comparing Freya and Sebastian, and you and Stephanie. In general, all humans vary so very much so absurd to compare one against the other.
Little Freya has a good Mum and Dad plus a good medical team. She is such a sweetheart, from where I am in the UK sending love, thank you for sharing, I really hope her ears are going to get better. I’m amassed how tolerant her team is for her. X
Hi Marci, I think you are a great mom. My kids are grown and I am a grandma. I wish I had a role model when my kids were growing up that exhibited patience and understanding like you do with your children. ❤️
Thank you so much!
I totally agree. I wish I had Marci as a role model. Too late for me but there is hope for the world with Liam, Fiona and Jesse. All three have Marci as a great mom so they will be just like her, a great parent. Thank God for Marci.
OMG..it is so much to do with a kid with a condition..I think many other parents don't konw what you all are going throug..I'm happy Freya is okay after sedation. I know that it can be cery difficult for kids with cdls..Sebastian also had a hard time when he sedated..and all the medical stuff goes on and on all along the livetime..and these kids have to work soo hard to reach milestones..I think you and your whole family will take good care of Freya..you are doing so amazing wirh her..❤
I commend you ❤ You have a lot on your plate and handling everything so well Marci. God bless and keep helping y'all. Stay well ❤🙏🙏🙏🙏
Thanks so much
No need to worry , one day at a time🙏🏽
All your kids are great. You're one of the best mom's I've ever known. Keep up the good work momma.
#fanforlife❤
Marcie , is the best mom. She is amazing. Always doing the best for Freya. Keeping her in PT and Ot is why I think she has progressed so well.
God bless all of you. Can't imagine what you go through during these times. So glad everything went well n an Angel of an anesthologist😂
Before Freya was born did you know she was going to have this condition. Such a wonderful family .
No we knew about her limb difference but that is ot
Thanks for taking the time to share all of this information with us. I missed the live as it was at 2 am here in Australia. I am a teacher and learned about a child needing surgery for only 20% hearing. Rare condition but hopefully he will get great results. So glad that the doctors were so informative about Freya’s conditions and the anaesthesiologist sounds fabulous. Always hard with someone you love has surgery. ❤
congratulations to 10k subscribers 🎉
Thank you so much 😀
Thank you for all the information we will continue to send love and prays.
Sorry I missed you live. Sure sounds like overall Freya is healthy. Have you noticed a possible hearing loss prior to her test? Must admit Marci, you look tired and I don’t blame you. I hope the summer settles in and you can breathe. I know you worry, but my untrained eyes have seen Freya advance exponentially since I joined about a year ago. She is physically stronger, seems more steady on her feet when she stands and she is trying to feed herself like a big girl. She has a way to go but you have her off to a great start!!! I notice she is more advanced physically than Sebastian. Poor thing doesn’t have great neck control yet but they go at their own pace. There is a little Portuguese boy from Brazil named Gustavo who sits up more on his own, stands more and smiles at his mama more. Very heartwarming to watch him grow too! Please take care asf yourself!!!
T-shirts would be good also as I live in Florida and would use it more of the year.Great news on Freya.
I’m so disappointed I missed your live, but grateful you could limit it to subscribers. I want to mention that Freya’s hearing loss may explain why she likes loud toys, etc. I agree with someone who commented on your older children having no resentment toward Freya due to the extra attention she needs. You have included them in her care, so they feel like she is their “baby,” too.
Hi Marci hope you have a wonderful day!!!!! The children and Mr. Too
I love your daughter 🎉
Thank you
Thanks for the stream 💗💗💗💗
So glad it seems all went well
God bless to you and to your family.god sent you a special angel ❤ Richelle from Canada
Hi ya Marcy how you all doing and yep checking in to see how Freya went with the procedure ,all of it waking up from the procedure bless her sweet heart .little cutie .hope everything went well and Freya is recovering ok after .and also with her hearing etc ..CDLS go threw alot alot of surgeries 🤞🙏 for her being ok . Must be stressful you and Chris to .anyway lots of people luv your family so leave you to it .🤞🤞for Freya .❤
You are so brave. Thank you for sharing all this. Much love and prayers to you and your family for sure. I know that growing up. I had a lot of ear problems and I did have three sets of ear tubes. My ears were so small that one time I had a doctor that put a size too big in so they wouldn’t fall out but then later on, I had a hole in my eardrum and had to get the ear tube removed because one did not fall out and that was pretty painful surgery. However, getting ear tubes with not as difficult as a surgery although, I think anytime you get surgery is still difficult either way. Just comparing those two together. Also, I have a very hard time waking up With anesthesia so I can totally relate. I think that you’re doing all the right things for sure and I can definitely say that as hard as it is, probably a hearing test down the road would be good because I know that after getting your tubes, your hearing can change good or slightly worse just wanted to be honest about it. Although, getting the tubes do help with fluid and that’s what I had to get those as well so they definitely did all the right things. It’s so hard until seeing your babies like this, but it’s also can be rewarding in the end because they’re so strong. You’re so strong and the Lord is faithful and every situation.
Good afternoon hope your day and the kids and hubby also God bless you and your family 🙏❤️🙏❤️
My youngest, Ginger, had ashama and she kept clearing her throat. She was stared on the purple pill and wouldn't have to be on it long, but it helped her for long periods of time. Then she would start the clearing again and the dr would give it to her again for like a month and she would clear up for like 6 to 9 months. She grew out of it.😊
Thank you we did treat for asthma and it did not help
Hey glad the procedure went well!GINA FROM ALABAMA
I watch Stephane and Sebastian have done for years same with you and your family. I used to be remembered as Flossy Flue, I got a new tablet and couldn’t get on utube so had to make a new account. Sebastian is very also very cute. My grandson was taught him sign language. We cannot shut him up now! X Love from me and my guide dog Jester X
Oh yes hi!
❤❤
Just have to take it one day at a time, sending prayerst to you and your family ❤
,
Hard to difficult. You’re tired mama😂
Always 😂
Are doing okay. Gayle
My hearing aids are very light. What bothers me is them coming out of the canal so I'm always pushing them in. Anyway you might try getting her use to one at a time.
That’s a great idea
Love your entire family. Missed this live, but that ok, I'm watching it now. I don't think ads run when you are live, but do run once uploaded to TH-cam. And you don't get ads if you have a subscription with TH-cam.
Hi marci i love to watch your videos pls post more on you cooking if u share
I know it's not the same situation or these kids I saw on this video dnt have CDLS ,but these kids couldn't see and eventually when they were 2yrs or 3 yrs they had these special glasses made like goggles and were irritated at first ,but when they wore them for a bit they were happy as they could see their parents,see alot of things .it's was amazing , emotional and just the kids were such happy little kids .👍
Everything go well
It did
I understand that I have special need and I did having hard of hearing too I have my small ears to
I do
Omg! Will it ever end?
Marci, did your sister live in Parker, CO? One of my daughters did who now lives in Aurora. The boys loved the water park!
Yes parker
That's a good idea because I'd probably buy I don't know make a tank top for women a sweatshirt and a T-shirt and I buy all three of them
We are you from?
Iam from Indiana
Here in the UK we have something called the 100 day cough...my grandson...my daughter and a friend have had it,,,the cough is horrendous
That must be what it is.
Can I a question?
From Spain with ❤ to all you guys
specially to
beatiful Freya🎉🥳
🤗💕💝💯
Are the chickens ok in the summer heat?
They are doing well surprisingly. We have their run covered so they are shaded most of the day. One of our babies laid her first egg today.
Did you and Stephanie talk about those cool vest?
I haven’t talked to her about them yet
@@Freyasluckyarm oh ok
Hi Marcie..
For communication, could Freya learn to use an iPad with apps, such as TD Snap, or PEC system?
We are working on this with both her preschool and outpatient through insurance
@@Freyasluckyarm I appreciate you educating me on Freya and prompt reply to my questions. I have hydrocephalus and have often been treated like I am subnormal even though I am high functioning and live independently. I also advocate for my niece, who has Level 3 autism.
I would love a sweatshirt. Has Freya any eyesight issues?they must miss so much with hearing loss.
She had her vision checked at 1 years old old and they said she had perfect eye sight.
Hi how you doing
Prayers can if possible do an implant like cochlear
No her hearing is not bad enough for a cochlear
I would buy a sweater with Freya lucky arm.richelle from Canada, Ontario
Nahida is my Name
Aww I hate that I missed the live. Is there a way to give her melatonin or some type of sleep aid for her sleep hearing test next time? Would that be safe? You need to tell Steph how to do subscribers only. She is getting a lot of trolls. Chris was cute, we love visiting with all of you. It would be awesome if you and Steph and the families could meet up and spend time together. I think Freya will pick up her wheelchair quickly, especially since she moved it right away❤ But her moving around on the is so cute and a lot of exercise. My mom also has MS.I watch a cute TH-cam channel called Beth & Coop/ Parenting + Inclusion Advocate, Her son was born deaf and wears Cochlear’s. It is a really sweet channel you should check it out
I used to follow them on Instagram. They are 😊
What happens in feeding therapy?
We have a video of it if you are interested. But they basically present her with different foods and try to teach her how to chew
@@Freyasluckyarm thanks, can you direct me to the video please? Hello from Australia.
@@andreacarlile-thompson2511 th-cam.com/video/g0LSTBtLvMQ/w-d-xo.htmlsi=RFCwXH0YeNucMjIA
Yeah I guess if Freya wouldnt like anything like hearing aids then maybe wouldn't be fair on her.maybe later .
Yeah it’s just a hard thing to know what to do.
Well Marcy you and Chris from what everyone has seen in your videos are truly amazing parents ,so you'll do what's the best for Freya whatever you do obviously so hey .plenty of time to decide later .
And it's so lovely seeing all your other kids how they get on so well and how much love they have for eachother and Freya they are so sweet ,kind , funny and such happy kids .
Brain anchor hearing device
Also i like to share pls pray for my son he to has been diagnosed with crohens its been a tough journey
I will.
Have a question?
I have a chromosome 18 p- I had I had a Baja but it did not work for me. The where did you hook it to your ear it didn’t really work. I had infection from it that they had to take it out the hook the metal rod. I have Bradley and aids now, but I hardly wear them, I wear them once in a while but I’m not used to wearing them so it takes me time to get used to them but mango in the air and I’m going the same way too. I don’t like contained in my ear either so I’m kind of the same but I’m putting my stuff in the left ear and this in a lot of right hearing as well, I had a lot of surgeries when I was younger with my ears eyes should you know it’s younger because my eyes lit up a my eyes were droopy I also to have a very small opening in my mouth, my message small so when they do is like an upper G.I. test, they have to press push. They put me in a different position where it’s easier for the doctor can get the scope down the throat when I’m asleep, and I asked to have a hard time waking them in the sleeping medicine, sometimes to
Pls teach me how to make bone broth when u have s free time pls my sons not well i need it pls your videos are inspiring
th-cam.com/video/LiZNcB-JGAM/w-d-xo.htmlsi=xWmgcTtyHt7BXQGN
That’s a link to my favorite homesteader making bone broth
@@Freyasluckyarm thnx pls also make us another video on portion control on meals diferent this time thnx
Just an FYI-I can see your live but I’m not a subscriber. This actually is the first time I’ve seen your channel, so please double check on the sub only live.
Anyone can see it only subscribers can comment
I got tubes
Marcie
Hi I got a question for you?
Just ask your question in the comments. You don't ask if you can ask a question.
Hi, Marci. Did you get my message about Lisa Leonard Designs? Her son has CDLS and she designed a necklace for it.
We love Lisa. She is amazing and I love seeing the steps she is taking with David now.
She is such a wonderful lady!
Hey there freya and mom
I am subscribed but couldn't post anything, is this the pay subscribe live chat?
No I set it to subrscribed for at least 20 minutes
@@Freyasluckyarm ok, must be a glitch on my end.
Love your video's Freya is so cute, I work with special needs kids and watching helps me know special needs for them.
@@Catlady1966 thank you for caring to learn.
Do you have any I could send you letter or card
Hey Freya
Is it really all that important that you're precious little girl is able to hear everything? She will adapt.
Hearing helps with speech but not it’s not make or break. We will let her lead the way
Hearing is really important to help anyone communicate.
It will help her communicate her needs and wants and specially as she has special needs. If she can't hear that could make it more difficult for her in school too. And communication is important for human beings. Of course there are ways to support her to communicate other ways too and she's as love able no matter what.
Hey there
Hi got questions?
Hi
So she's hard if hearing ,but can you get tiny hearing aids possibly anyway so she can get to hear a little bit .ah right let her ears heal first .shame it's alot on her little body .
Can you please awsner me?
ASK THE QUESTION!!!!!
Do you have an address for me?
Marci dunning
351 w university blvd
P.O. Box 9434
Cedar city ut 84720
Hi Indian
No
Can you please read mind
Hey there
Hi