Had symptoms about 4 weeks ago: drop foot, tingling, numbness. Getting an MRI tomorrow followed by an EMG test for nerves. Doctors suspect MS but are doing tests to be sure. When I woke up with the "drop foot" I immediately grabbed my rubber exercise band and started dorsiflexion exercises. A week later, the leg completely gave out as I was taking a step onto my balcony and I had a terrific fall resulting in an ankle roll. As soon as I was over the shock and could put weight on the foot I applied a compression wrap to stabilize the ankle, grabbed my Nordic walking sticks and walked around my apartment. In bed that night I used the rubber band in ROM exercises for my ankles. A week later and I regained about 90% dorsiflexion in the affected ankle! Exercise, determination to remain mobile, and lots of thankful prayer has been my prescription. Will see what the MRI finds, but will continue what I am currently doing.
Diagnosed in 1988 at age 44 with RRMS, now at 80 as far as I know, no neurologist wants to deal with me in any way. In 1988 there were no DMT but in 1994 I was started on Beta Seron. I used Avonex for a year, for a total of 19 years I was using those two DMT’s, I became weak at 19 years of use and stopped it and became stronger and stronger. At this time I cannot walk and am able to transfer only and do chair exercises to keep up the strength to transfer, which I am thankful to be able to do. My age is against me as far as DMT’s go, so it is most important to keep up the exercises. I am enjoying them more and more I am happy to say.
Heck Ya. It's part of my daily routine. My motivation is simple. Exercise, go to PT, work my bum off or rapidly decline. Thanks for another great video.
Another excellent video incorporating science and data. Thank you for doing the research and sharing the sources with your audience. Your videos are THE BEST.
This highlights a difference between the Australian health system and the US. I was diagnosed in 1995, so heading towards 30 years. However, I have been supported by the National Disability Insurance Scheme since 2021. This is universal funding for people living with disabilities. My Plan includes both exercise physiology and physiotherapy. I exercise in the gym twice weekly with my EP, plus independent hydrotherapy in the warm water pool twice a week. I have physiotherapy in my home weekly. All of this is funded by the government.
That does not happen equally around the world. I wish it did but it does not too many times policy is made to cut funding which means people losing connection, and access to opportunity and possibility for living with MS. Ontario, Canada disability program on the provicial level is $1,368 a month. It does not cover massage, PT or OT, speech therapist. prescriptions, average rent for Ontario is now $3,000 a month. Poverty in MS is talked about once in a decade. and there are no follow ups of people in those studies.
I do PT twice a week, 1h each day. I start with cardio (10min stationary bike) and move on to strength, balance and mobility exercises. Im currently not walking our dogs because the spasticity and foot drop on my right leg, associated with my hip tendinopathy, mean I have a very bad hip situation, with severe balance issues - for now! And I do the ocasional stretching exercises at home.
@@bibamakes “for now” that speaks volumes to your dedication, determination, and optimism! Keep going! I look forward to hearing about future dog walks!
US patients: DX of MS requires 2x week physical therapy to prevent worsening If you don’t drive you can have home therapy The broad evaluations for decreased cognition and physical function are flawed at best-but doctors need a baseline If you are moving better and of clear mind don’t be defined by the test outcomes The best exercise is something you will do everyday w/no day off Keep moving for cognition, better balance, stronger muscles and bones, and most importantly to be happier
Much thanks for the Jerusalem Senior CitiZoom program, active since the Corona pandemic. At least 2 30 minute chair exercise classes daily, all types, amongst other therapies. Blessings from war torn Israel. 🇮🇱
Great video Vickie, thank you! 🌷 For exercise I follow group classes at my work gym: yoga, tai chi, aerobic exercise, zumba. I also enjoy walking, cycling and I visit my PT weekly. I have monthly appointments with an occupational therapist. Both are extremely helpful in regaining my fitness and full function in my arms!
Nix that! Sharing with care team to come up with plan. Interesting part of chart. I range from 7 - 8 EDDS and it states care taker training is essential, but I don’t have a care taker and am taking care of my 4 sons while my husband works.
@@erinnicolefranco6807 Hooray!! I love that you are sharing it with your care team. I hope they can come up with a plan that is beneficial so you can continue to care for your sons! Keep me post.
"1984, really? Gee, what a surprise! Life is full of unexpected things, just like John Denver said 'Life ain't nothing but a funny funny riddle'. MS is just like that - a funny funny riddle." P. S: my recent adopted cat keeps me sleep deprived on a daily basis and it shows in my energy reserves that have declined seriously on top of the ever present heat intolerance in this never ending summer,.
@@GenerationX_GR thanks so much for the super thanks! Contributions help so much so I can continue to make content. A new cat sounds fun but exhausting. I hope they settle in soon and let you sleep. We had a really hot summer too but things are starting to cool down a bit where I am thankful. Stay cool!
@@EvenSoItIsWell How about country's music line dancing as an MS exercise? It would require several things to work together all for it to work from core balance to memory to mention a few.
Excellent question. Dr. Gretchen Hawley has several videos on foot drop that you might find helpful. Here is one th-cam.com/video/dmg3gyfVcGk/w-d-xo.htmlsi=jChEszNz6DT_kKCm
![[LIVE] : ONE ลุมพินี 88 | คู่เอก "ป้อมเพชร vs อัสลามจอน"](http://i.ytimg.com/vi/1ZqTVVbMgbo/mqdefault.jpg)
What will you do to increase or change the way you exercise with MS?
I'll try what is researched and shown to give results in mobility.
@@gr33neyes1000 excellent!
I started weight lifting and calisthenics early in my diagnosis.I can say that it has been my biggest challenge but biggest strength fighting MS!
Thanks for watching. It can be so challenging but so worth it!
Had symptoms about 4 weeks ago: drop foot, tingling, numbness. Getting an MRI tomorrow followed by an EMG test for nerves. Doctors suspect MS but are doing tests to be sure.
When I woke up with the "drop foot" I immediately grabbed my rubber exercise band and started dorsiflexion exercises. A week later, the leg completely gave out as I was taking a step onto my balcony and I had a terrific fall resulting in an ankle roll. As soon as I was over the shock and could put weight on the foot I applied a compression wrap to stabilize the ankle, grabbed my Nordic walking sticks and walked around my apartment. In bed that night I used the rubber band in ROM exercises for my ankles.
A week later and I regained about 90% dorsiflexion in the affected ankle!
Exercise, determination to remain mobile, and lots of thankful prayer has been my prescription.
Will see what the MRI finds, but will continue what I am currently doing.
Thanks for watching. So glad you are on the mend. Definitely keep doing what you are doing! Good luck with the MRI. Keep me posted on how it goes!
Diagnosed in 1988 at age 44 with RRMS, now at 80 as far as I know, no neurologist wants to deal with me in any way. In 1988 there were no DMT but in 1994 I was started on Beta Seron. I used Avonex for a year, for a total of 19 years I was using those two DMT’s, I became weak at 19 years of use and stopped it and became stronger and stronger. At this time I cannot walk and am able to transfer only and do chair exercises to keep up the strength to transfer, which I am thankful to be able to do.
My age is against me as far as DMT’s go, so it is most important to keep up the exercises. I am enjoying them more and more I am happy to say.
@@maryanngames9353 thank you so much for watching and sharing your story. I am glad you find the exercises helpful!
Heck Ya. It's part of my daily routine. My motivation is simple. Exercise, go to PT, work my bum off or rapidly decline. Thanks for another great video.
I love this so much! When we work our bums off it pays off! 😍
Another excellent video incorporating science and data. Thank you for doing the research and sharing the sources with your audience. Your videos are THE BEST.
@@anngiuli thanks Ann! I appreciate you!
This highlights a difference between the Australian health system and the US. I was diagnosed in 1995, so heading towards 30 years. However, I have been supported by the National Disability Insurance Scheme since 2021. This is universal funding for people living with disabilities. My Plan includes both exercise physiology and physiotherapy. I exercise in the gym twice weekly with my EP, plus independent hydrotherapy in the warm water pool twice a week. I have physiotherapy in my home weekly. All of this is funded by the government.
Thanks for sharing Yvette! It sounds like you are supported so well by your healthcare there!
That does not happen equally around the world. I wish it did but it does not too many times policy is made to cut funding which means people losing connection, and access to opportunity and possibility for living with MS.
Ontario, Canada disability program on the provicial level is $1,368 a month. It does not cover massage, PT or OT, speech therapist. prescriptions, average rent for Ontario is now $3,000 a month.
Poverty in MS is talked about once in a decade. and there are no follow ups of people in those studies.
I do PT twice a week, 1h each day. I start with cardio (10min stationary bike) and move on to strength, balance and mobility exercises. Im currently not walking our dogs because the spasticity and foot drop on my right leg, associated with my hip tendinopathy, mean I have a very bad hip situation, with severe balance issues - for now! And I do the ocasional stretching exercises at home.
@@bibamakes “for now” that speaks volumes to your dedication, determination, and optimism! Keep going! I look forward to hearing about future dog walks!
@@EvenSoItIsWell so do I!!!
US patients:
DX of MS requires 2x week physical therapy to prevent worsening If you don’t drive you can have home therapy
The broad evaluations for decreased cognition and physical function are flawed at best-but doctors need a baseline If you are moving better and of clear mind don’t be defined by the test outcomes The best exercise is something you will do everyday w/no day off Keep moving for cognition, better balance, stronger muscles and bones, and most importantly to be happier
Thanks so much Myrna! Excellent insights as always. I hope you are well!
Much thanks for the Jerusalem Senior CitiZoom program, active since the Corona pandemic. At least 2 30 minute chair exercise classes daily, all types, amongst other therapies. Blessings from war torn Israel. 🇮🇱
Thanks so much for watching. So glad you are able to exercise daily. I hope the war resolves soon. I can’t imagine living in a war zone.
Thank you Vicki. Excellent video
Thanks so much! I appreciate you watching and the feedback.
Great video Vickie, thank you! 🌷 For exercise I follow group classes at my work gym: yoga, tai chi, aerobic exercise, zumba. I also enjoy walking, cycling and I visit my PT weekly. I have monthly appointments with an occupational therapist. Both are extremely helpful in regaining my fitness and full function in my arms!
I love all of this! Well done! It is amazing how exercising helps us isn’t it?
Yes please! Thanks so much for the chart. I’m screenshotting it and saving it as my phone background
Nix that! Sharing with care team to come up with plan. Interesting part of chart. I range from 7 - 8 EDDS and it states care taker training is essential, but I don’t have a care taker and am taking care of my 4 sons while my husband works.
@@erinnicolefranco6807 Hooray!! I love that you are sharing it with your care team. I hope they can come up with a plan that is beneficial so you can continue to care for your sons! Keep me post.
Hello, Thank you so much.
Thanks for watching.
Heck yes!
@@peggyjones6147 Whoop! Whoop!
👍
Yes, please
Hooray!! What kinds of exercise will you add?
Thanks!
@@kristiwetherington2798 thanks so much for the super thanks! This helps to support the channel so I can continue to make content. 🙂
Heck yeah!!! ❤😊
@@kristiwetherington2798 Whoop! Whoop!
I have been diagnosed. For 1 year and, and just starting exercise
Good on you Roberta! Keep me posted on how it goes.
I would like to exercise but I'm scared to fall MS is not fun .. thank you for the video your awesome
Thanks for watching. I completely understand the fear of falling. Perhaps do some seated exercises or exercise in the pool?
"1984, really? Gee, what a surprise! Life is full of unexpected things, just like John Denver said 'Life ain't nothing but a funny funny riddle'. MS is just like that - a funny funny riddle."
P. S: my recent adopted cat keeps me sleep deprived on a daily basis and it shows in my energy reserves that have declined seriously on top of the ever present heat intolerance in this never ending summer,.
@@GenerationX_GR thanks so much for the super thanks! Contributions help so much so I can continue to make content. A new cat sounds fun but exhausting. I hope they settle in soon and let you sleep. We had a really hot summer too but things are starting to cool down a bit where I am thankful. Stay cool!
@@EvenSoItIsWell How about country's music line dancing as an MS exercise? It would require several things to work together all for it to work from core balance to memory to mention a few.
@@GenerationX_GR that is amazing as exercise! And the benefits of having fun too!
Heck Yeah
@@gr33neyes1000 Whoop! Whoop!
I've a question: what exercises can I do to avoid foot drop?
Excellent question. Dr. Gretchen Hawley has several videos on foot drop that you might find helpful. Here is one th-cam.com/video/dmg3gyfVcGk/w-d-xo.htmlsi=jChEszNz6DT_kKCm