This is amazing. Well done Joy, Perdita, Tilo and the teams involved. There is hope for early diagnosis and treatment for the PD patient and for their families.
I was diagnosed with PD October 2016. Prior to this my wife could smell a different smell on my bath towel . I could not smell it. Strange thing was that I lost my sense of smell and taste before I was diagnosed if I remember rightly, but not sure exactly when. Best wishes , Peterg
This is the same body area on the upper back/shoulders that the PD sebum I make has caused all of my dark colored T-shirts to fade severely in that area. The rest of the shirt is not faded. I think this detail needs to be known for whatever else it may tell us. Thanks.
Fascinating groundbreaking research. And who wouldn't prefer a swab of their neck to a blood test? Very cool that this could be the future for diagnosing many diseases.
Yes, I've had PD for about 4-5 years and now 50yo and was just told that I am stage 3 in parkinson's. I can smell that smell. That musky smell on me, also I can taste it in my mouth. And it's strong.
@brandonhealy7158 it's hard to explain but it's a strong musky smell and taste of the saliva is just like the smell. Sometimes the saliva is thick and makes me want to vomit. Not nice.
@@ManuduBruxale thank you for sharing this with me. I don’t have a foul smell anywhere on me except from inside my mouth.. I’m wondering if this is a biomarker or if I’m just worrying too much.
Does anyone know if foul smelling saliva might be a symptom of PD? My saliva is constantly smelly 24/7 even though I brush my teeth twice a day. It is difficult to describe the smell, it is like something is rotten? I have ET, I’ve been shaking since I was 15. I’m 22 now and my ET is progressing (I now have gait ataxia etc). My grandmother also had young onset PD, I think she had symptoms as young as her 30’s.
So interesting, I think my partner has this smell around him, the staining on the pillow case and his smell from his sebum left there is so strong. I have always smelt it on him for 10 years only it’s getting strong now every day . How can I get him to accept this idea though. As only I smell it, he gets offended when I notice the odour on him. How can I help him. His physical body is not presenting strong symptoms. His hands twitch, his smell around his neck and back are strong. It stains the pillowcase after a week. His pyjamas smell, the bedroom smells. I must have this hyper smell sense ?? I have not experienced it with other people’s aroma. What can I do to discover if he is presenting early Parkinson’s disease ?? How can I help him ?
Julia Hopkinson check for his writing. Is it small and child like? Was it nice before, now small and tight spaced? Does one arm stay by the side and not swing? When he talks, at times does his word or voice go quiet? These are symptoms as well.
I’ve been noticing a vast difference in my husband’s smell in the last year or so. It’s a tart, yeasty smell that is worse on his neck when he sweats at night. It’s terrible and even bathing more doesn’t stop it. How do I get his sweat tested?
Does anyone else have a strong odd odor behind your ears? My friend and I noticed this a couple years ago so I asked my PCP who said it means nothing. But after watching this and hearing about Joy’s ability, it worries me even more.
I smell it on myself musky wax like not too pleasant . Others can smell me and say I smell different i don’t smell like me! I am told he thinks i have Parkinson’s. I am not yet diagnosed as I’m in early stage i don’t need treatment yet. I am 70 yrs old.
My husband was diagnosed with Parkinson's last year. He's 66 years old. I've been able to smell that musky smell on him. I don't smell it all the time, though. Does it come and go?
This is all very fascinating but for the average person who thinks they have Parkinson's there is no test available that diagnoses it.. I'd be very happy to send a sample of my t-shirt in so somebody can tell me if I have it or not, I think I do. Can you tell me where I can send a piece of my t-shirt or something else so it can be diagnosed?.Otherwise this talk is really kind of useless. I've read many articles about this woman. She has had this ability since something like 2013 it is now 2021. There is still not a test available that definitively diagnosis Parkinson's in 2021.
You can send it to me, give me a message I’m not sure if I’ll be 100% helpful but I know someone who I felt had a strange smell and recently was diagnosed with PD
Musky, sweet sour, yeasty, odor of nuts. Some compared the tones to the ones from a beer factory. Push your doctor to run one of her tests, it’ll help if detected early
Parkinson’s is caused by lifestyle choices. Being on a whole foods plant base diet, getting quality sleep, exercise, correct imbalances/correct posture, and avoid environmental stresses/chemicals
PD is possibly caused by industrial chemicals, such as paraquat and TCE...some still widely in use throughout USA, Australia and elsewhere. Read 'Ending Parkinsons'
![[FULL EP.16] เซียนพาลุย "เผือก-ฟรอยด์" กรี๊ดลั่น จนปูหนี | เฮ็ดอย่างเซียนหรั่ง | One Playground](http://i.ytimg.com/vi/FsqUvwS3b-Y/mqdefault.jpg)
This is amazing. Well done Joy, Perdita, Tilo and the teams involved. There is hope for early diagnosis and treatment for the PD patient and for their families.
I was diagnosed with PD October 2016. Prior to this my wife could smell a different smell on my bath towel . I could not smell it.
Strange thing was that I lost my sense of smell and taste before I was diagnosed if I remember rightly, but not sure exactly when.
Best wishes , Peterg
@@petergrimley8957 you have on
Marvelous coupling of science and basic observation. Great, great job of all in the team
Amazing work Perdita ! Joy is , well an absolute joy to meet !
This is the same body area on the upper back/shoulders that the PD sebum I make has caused all of my dark colored T-shirts to fade severely in that area. The rest of the shirt is not faded. I think this detail needs to be known for whatever else it may tell us. Thanks.
Yes I'd need to know the compound. Maybe it is bleach? Or something with similar ability to fade colour in fabric?
Contact the scientist. It’s not hard
Fascinating groundbreaking research. And who wouldn't prefer a swab of their neck to a blood test? Very cool that this could be the future for diagnosing many diseases.
Is it different from "Old Man's Smell"?
Yes, I've had PD for about 4-5 years and now 50yo and was just told that I am stage 3 in parkinson's. I can smell that smell. That musky smell on me, also I can taste it in my mouth. And it's strong.
Do you still smell it in 2022? Would be really helpful if you let me know
Yes I do. Maybe less often but yes. My progression is faster, my neurologist told me that YOPD progression is often faster.
@@ManuduBruxalewhat is that smell in your mouth like? My saliva is really foul smelling, I have ET and my grandmother had PD)
@brandonhealy7158 it's hard to explain but it's a strong musky smell and taste of the saliva is just like the smell. Sometimes the saliva is thick and makes me want to vomit. Not nice.
@@ManuduBruxale thank you for sharing this with me. I don’t have a foul smell anywhere on me except from inside my mouth.. I’m wondering if this is a biomarker or if I’m just worrying too much.
Does anyone know if foul smelling saliva might be a symptom of PD? My saliva is constantly smelly 24/7 even though I brush my teeth twice a day. It is difficult to describe the smell, it is like something is rotten?
I have ET, I’ve been shaking since I was 15. I’m 22 now and my ET is progressing (I now have gait ataxia etc). My grandmother also had young onset PD, I think she had symptoms as young as her 30’s.
Does anyone know a resource for having this smell test done?
So.. What is the tell-tale compound?
I can smell a strange odor from my own body. I was diagnosed with PD on Aug. 5th, 2019.
My saliva is really foul smelling, is smelly saliva a symptom do you know? (I have ET and my grandmother had PD)
extraordinary
Very interesting to see this great study
So interesting, I think my partner has this smell around him, the staining on the pillow case and his smell from his sebum left there is so strong. I have always smelt it on him for 10 years only it’s getting strong now every day . How can I get him to accept this idea though. As only I smell it, he gets offended when I notice the odour on him. How can I help him. His physical body is not presenting strong symptoms. His hands twitch, his smell around his neck and back are strong. It stains the pillowcase after a week. His pyjamas smell, the bedroom smells. I must have this hyper smell sense ?? I have not experienced it with other people’s aroma. What can I do to discover if he is presenting early Parkinson’s disease ?? How can I help him ?
Julia Hopkinson check for his writing. Is it small and child like? Was it nice before, now small and tight spaced? Does one arm stay by the side and not swing? When he talks, at times does his word or voice go quiet? These are symptoms as well.
You should contact the researcher, maybe your nose could help science.
I have hyperosmia as well. I consider this gift an absolute curse. When you tell people they don't believe you.
@@sylviem.1299 I've been trying 😔
@@KatrinaDancer You taught me a new word, thank you. My wife has an acute sense of smell but I don't think it's that sensitive.
I’ve been noticing a vast difference in my husband’s smell in the last year or so. It’s a tart, yeasty smell that is worse on his neck when he sweats at night. It’s terrible and even bathing more doesn’t stop it. How do I get his sweat tested?
Elsewhere the same is reported. Contact the scientist and alert your doctor
Is that any permanent tritment PD without any surgery?
Does anyone else have a strong odd odor behind your ears? My friend and I noticed this a couple years ago so I asked my PCP who said it means nothing. But after watching this and hearing about Joy’s ability, it worries me even more.
Fascinating
Im being checked for early parkinsons. I have a weird smell when i sweat and its in my arm pits my neck my groin. Have you heard of this??
Hello Ray,
I too have observed a strange smell in my armpits.
Were you detected with PD?
What were your initial symptoms mate?
Did Joy ever describe anything characteristics about the odor?
Musky, sweet sour, yeasty, odor of nuts. Some compared the tones to the ones from a beer factory
I smell it on myself musky wax like not too pleasant . Others can smell me and say I smell different i don’t smell like me! I am told he thinks i have Parkinson’s. I am not yet diagnosed as I’m in early stage i don’t need treatment yet. I am 70 yrs old.
My husband was diagnosed with Parkinson's last year. He's 66 years old. I've been able to smell that musky smell on him. I don't smell it all the time, though. Does it come and go?
Maybe when he washes well or the body is able to get most of the molecules.
I wish they described it, honestly I think I can smell it on myself.
I want the test
This is all very fascinating but for the average person who thinks they have Parkinson's there is no test available that diagnoses it.. I'd be very happy to send a sample of my t-shirt in so somebody can tell me if I have it or not, I think I do. Can you tell me where I can send a piece of my t-shirt or something else so it can be diagnosed?.Otherwise this talk is really kind of useless. I've read many articles about this woman. She has had this ability since something like 2013 it is now 2021. There is still not a test available that definitively diagnosis Parkinson's in 2021.
You can send it to me, give me a message
I’m not sure if I’ll be 100% helpful but I know someone who I felt had a strange smell and recently was diagnosed with PD
What does it smell like?
Musky, sweet sour, yeasty, odor of nuts. Some compared the tones to the ones from a beer factory. Push your doctor to run one of her tests, it’ll help if detected early
the smell of decay
It had got to be much different than the smell of death. Musty or musky as some have said, doesn't smell of death.
👍
Parkinson’s is caused by lifestyle choices. Being on a whole foods plant base diet, getting quality sleep, exercise, correct imbalances/correct posture, and avoid environmental stresses/chemicals
PD is possibly caused by industrial chemicals, such as paraquat and TCE...some still widely in use throughout USA, Australia and elsewhere. Read 'Ending Parkinsons'
I think this world would be over run with PD sufferers if life style choices were the cause.
My husband had pd he ate a lot of fruit fish