When the positivity goes away - coping with Stage four Prostate cancer
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- เผยแพร่เมื่อ 17 ต.ค. 2024
- Hello, another little chat about my experiences dealing with Cancer. You can't stay positive all of the time , it's perfectly natural that you are going to have good and bad days , sometimes the roller coaster of living with Stage four Metastatic Prostate cancer can get too much.
Thank you for watching this video, I’ve been making these videos as a vlog sharing my journey through Advanced Metastatic Prostate Cancer.
My world literally fell apart on Sept 15th 2021 when I was diagnosed with Advanced Prostate Cancer which according to my Oncologist is incurable (although ive never accepted that) Questions such as how long have I got left how bad is it , in fact, a whole host of frightening thoughts, where suddenly swarming around my mind and exploding at opportune moments when I felt most vulnerable.
If I were to be honest, I was lost and lonely to begin with. People don’t know how to deal with someone who has stage four cancer. It’s a taboo subject. I honestly didn’t know who to turn to for help. It can be a dark place and I only wish I could have found a channel such as this to help me through those early days.
I started writing a blog whilst I was in hospital and recovering at home after the initial treatment phase.
I then decided to make this vlog because it seemed a better way to get my story out there. I want to provide a channel where I would continue telling my story for as long as I can and invite comments from others that can also help and share their own experiences.
Cancer can be a lonely place, and I hope this channel will help someone else who may be a bit lost and feel alone whilst dealing with their own diagnosis and experience.
Nothing is ever as bad as you think it will be, and that seems to be the case so far with my experience with Prostate Cancer.
Thank you for watching the video. Please comment and subscribe if you feel like it, and please share the videos with anyone you think may find them helpful
Woody ❤️
Keep fighting Woody. You're an inspiration to us all. Kevin
Thank you Kevin
I agree with your point today. I too survived stage 4 prostate cancer. Life is difficult now, made so by the cancer and the treatment (Lupron). Its hard to accept that. You dont have to surrender however, and can fight back. Do something different for yourself, something you would not have done before. For example, I intend to float about 150 miles down the Missouri River in Montana next summer, just to get outside and to experience something new. Just me and the river and anything that lives along side of it. I too am perpetually tired, and unless I do some activity, I am dead to the world by 6-700 pm. So, just do that. When we die, we die, but in the meantime, its important to live. Good luck. Rob in Arizona.
Thanks Rob,
Wow floating down a river in Montana sounds amazing, you have got me thinking of something I can plan. It's so important not to let this cancer take away our spirit. 🙏
Testosterone deficiency: low energy, low motivation, poor concentration, depression, memory problems, feeling of sadness, erectile and libido disfunction, low self confidence. The result of antihormone drugs (degarelix...)
its four and a half years now that i have been having this treatment , you have the ups and downs and the longer it carries on the more i seem to get used to the routine , just stay strong , tomorrow is another day and perhaps a miracle cure , one never knows , thanks for sharing , its not always easy to speak about ones feelings
A miracle cure is always possible, we all have to believe that.
I have early Prostate Cancer. I tried staying on Orgovyx 120, a testosterone suppressant.. the plan being to shrink my prostate, and then , hopefully irradiate it. I had a severe reaction to the drug and had to stop. This is something not discussed about people getting treatment for Prostate Cancer. I pray for you, my friend.
Good Morning: I have just discovered your channel and I appreciate the information that you have shared about your journey! I've just been diagnosed with Stage 4 prostate cancer with a Gleason score of 9-10 from 10 different biopsy specimens. I've just had my 1st injection of Lupron and will get 1 every 3 months. Additionally, I take a daily pill of Apalutamide. I will have my PSA checked and if the numbers don't stabilize or start to come down, they want to begin adding a chemotherapy treatment as well. Your insight about your daily life and experiences are very helpful in preparing myself for the journey that I am now on. I'm glad that you have been open and frank about what to expect and the mental ups and downs that will happen to me. I know that every person is different, but after researching my diagnosis and inserting my numbers from my biopsy and information from my body scan, I'm facing a survivability rate of 30% for 5 years. I'm glad I've found your channel to have a down to earth discussion of what to expect. Thank You and good luck with your journey.
Thank you @bobpatty8645
I'm sorry to hear about your diagnosis it sounds very similar to mine. A word of Friendly advice. Try not to put any figures on your life expectancy, I believe when we start doing that we start to subconsciously plot our own demise. Focus on each day and make the very best of it as if it's your last. Good luck and keep in touch with how you are doing 🙏
I had my prostate out in August, they were positive they caught it early and I'd be fine. Psa test came back at 1.4. So they didn't catch it. Psma scan showed 1 tumor in a lymph node. Had my bone scan and will be starting ADT in the next week or so. 35 radiation treatments starting in January. I'm just starting this journey, and I'm not having many positive days. Thanks for your videos
My next video will be more positive , hopefully tomorrow
Sounds similar to mine. I had my prostate out November 2022 and had thought 'one and done'. However when seeing my surgeon after 8 weeks he told me that lymph nodes were involved as my PSA did not go to undetectable. 3 monthly blood tests and PSA stayed the same until Sept this year when it suddenly doubled. Referred to oncologist who put me in for PSMA-PET scan and they found exactly where it is. Now on bicalutamide tabs and Prostap injections monthly for 2 years with 33 radiations to come later. One thing she did tell me though, is that now I'm on the hormones therapy, it is not as urgent as before as the treatment will keep it in check. Expecting radiation to start in a few months time. Sounds like you had very quick treatment, so keep positive, it may all be over soon and be just down to keeping watch. Good luck.
Thanks for doing these videos. I just started treatment and it is really helpful to have a guy like you sharing this stuff. Hang in there. You are doing good things for sure.
Thanks Rob that's really kind and nice to know it's helping others through their journeys
Thank you for the share I was dx Apr2023 I completed IMRT Radiation in Sept & been on ADT Lupron since June My PSA came down to 0.01 in November I have a discipline problem with eating I can’t resist sweet stuff even tho it is not good for PCa or blood sugar We should always accept what God wants for us He won’t give us a cross to hard to bear God bless you in your PCa journey
Thank you James
We all have those less than great days Woody. Never give up hope, you never know when that miracle might be just around the corner
That's the hope, what with AI and all that knowledge, fingers crossed a cure could be found for us.
As a PC patient, I really appreciate your sharing. Being positive all the time is a lot of work...blessings.
Thank you
Keep fighting, it is hard sometime but you must fight through. I have been on ttreatments for about a year now. the very low energy level on the hormone treatment ttake a toll on you. I wish you luck.
Thank you John, same to you too
I understand the down days, I also have them but I also have my GOD days i call them, where I can joke about it. We do need up days to forget the down days, Great job Thanks . I am also thinking of putting some videos up about my journey also , so people can she how some people have had different types of treatment and what they can expect. I just hit 6 months , stage 4 metastatic , with multiple lymph-nodes, bladder and multiple bone lesions, spine ,neck,shoulder and pelvis, been on abiraterone and prednisone and zoladax injections, Psa started at 873, now 6 months later down to 7.9. I so hope I can get afew years, Thanks again for for updates and channel , GOD BLESS
Would love to hear your story
Yes please share your story, I think it's important that we share our experiences and insights so we can help to support each other.🙏
@@Livingwith-prostatecancer Thanks for the encouragement I have started putting them up th-cam.com/video/HrbXj-dCq8g/w-d-xo.html
@@rogerembry4777 I have started
I’m on disability due to other health conditions, sitting around all day is not fun, the only thing keeping me going is my little dogs that are my babies, found out in 2015 I had prostate cancer, now on Lupron, it’s the worst thing I’ve ever had to go through
Be brave, best wishes for your health condition.
Sorry to hear that Roger, it's good you have your dogs, I would love to have one at some point.
Woody with Stage 4 cancer we must stay positive. I am sorry that your PSA is going up. PCRI have good video clips Woody.
Thanks Mike I have been checking them out they're very interesting.
Thanks Mike, I'll check them out
Good afternoon, my dear sir, I don't understand your language, I speak Portuguese.
I hope you recover and wish you all the best for never meeting us!
I was listening to "Father To Son" a song played by Phil Collins, one of the most beautiful songs I've heard
I love Phil Collins a great musician
Healthy people do not understand our suffering in body and soul. Stage 4, I am on psma Lutetium therapy now, we will see if it helps... greetings to you, dear Woody, from Dusan
Thank you Dusan you are very kind
So sorry to hear what you are dealing with... it always makes me wonder why we never hear about Rapamycin, Berberine, Ivermectin, Quercetin Phytosomes, Fisetin Phytosomes, Curcumin Phytosomes, Liposomal Apigenin, Modified Citrus Pectin and so on. There is very serious research on the NIH that discusses each and every one of them. I have the links if you are interested.
Yes please they will make interesting reading
@@Livingwith-prostatecancer The first thing we need to understand, is that for decades, flavonoids, polyphenols, proanthocyanidins, etc have been limited by their absorption capability and their bioavailability. Those days are gone, the advent of liposomal nutrition has begun a new era. I promise you, the data I have collected from the NIH is the most uplifting, potentially beneficial science we presently have available. I'm going to start with Apigenin, found in celery, chamomile tea, parsley. I'm so glad you are receptive, let's see where this takes us.
@@Livingwith-prostatecancer Can't post NIH links, they will not go through. Email may be the only way.
@@Livingwith-prostatecancer We seem to be having censorship issues, all I can say is search for quercetin phytosomes and PC at the NIH. Let's see if that is an acceptable statement.
@@Livingwith-prostatecancer Look for Berberine and PC at the NIH, also modified citrus pectin.
You looking good Woody
Ive just been informed my psa is 0.01 after radiotherapy and continuing hormone treatment for prostate cancer , im nearly finished treatment now , what happens next will it come back , im not sure what stage 4 means , life is journey we never know how it will end
Praying for you that it doesn't come back. I'm on hormone treatment for the rest of my life. I'm if course hoping to prove the doctors wrong and beat this. It's been two years so far and trying to stay strong
@@Livingwith-prostatecancer the rest of ur life seems extreme , usually 2 to 3 years
For hormone therapy , did you have radiation too
@@williamgibson1685 yes I did, it was a lot better than I expected it to be.
I had no choice really as my back was on the verge of collapsing due to the Mets at the bottom of my spine.
@@Livingwith-prostatecancer thanks for your info , i was told my cancer had not spread so im hoping it will not come back fingers crossed , i wish you all the best in our fight against this nasty disease take care my friend and all the best for a long life
How is your psa now, dear Woody?
0.17 at the moment up from 0.12 the month before .
Next week we again with blood tests.
It’s the doubling time you have to watch. There are second generation drugs available to assist you when needed. Psalm 23 Harry.
Yes, to be fair it's increasing slowly but I'm hoping it settles back down again,
I hate to see you this way woody . You say your PSA has been on the rise the past 3 months , so what is your oncologist doing about it ?
Hi Bob, I've just had a CT scan to see if it's spreading and I've got a full body bone scan coming up in December. Fingers crossed it's good news
I’ll be praying for you woody, I know you probably think I’m crazy for telling you to get your prostate radiated but ever since I’ve had it done my PSA has been non existent. I tell you this because I care and I want to see you have a long life.
@@bonmullins584 thank you , I'm feeling much better now. What will be will be, I'll keep fighting but I'm not wasting time worrying about results and things I have no control over.
But woody there’s so much more your oncologist can be doing for you. I fear they’ll only go so far and tell you they’ve done all they can when in fact they haven’t.
I’m sure your scans will be fine , your PSA is still low enough to be in remission