Aches and Pains in Myositis w/ Dr. Bhai
ฝัง
- เผยแพร่เมื่อ 5 มิ.ย. 2024
- This is a webinar with Dr. Salman Bhai, Neurologist at UTSW and MSU's medical advisor, discussing the aches and pains we deal with living with Myositis - the how, what and why - and ways we can help manage our pain. And, he answers a lot of questions submitted by patient members. This is a DON"T MISS webinar!
Be sure to Download the MSU Pain Paper published in Rheumatology and take it to your doctor to have a conversation about treatment options. See our pain paper here: academic.oup.com/rheumatology...
Dr. Salman Bhai, MSU Medical Advisor is an Assistant Professor in the Department of Neurology and Neurotherapeutics at the University of Texas Southwestern Medical Center and Faculty Member at the Institute of Exercise and Environmental Medicine (IEEM) at Texas Health Presbyterian Hospital Dallas.
Thank you for taking the time to make such a thorough video. I'm 56 and was diagnosed 16 years ago with "undifferentiated connective tissue disease". However, new symptoms (and a creatine kinase of over 1,300) has led to a new diagnosis of "inflammatory myositis". I'm tapering off a 1 month course of steroids, in addition to taking azathioprine. Thankfully my labs at my 2 week check showed my CK levels had dropped to a normal 64! I'm so thankful to learn that I can (and must) continue with my daily exercise at the gym. I was unfamiliar with the term "Zone 2 exercise" but it appears that that is what I am currently doing. I don't feel pain from it, just extreme exhaustion and arms & legs that feel floppy. Now that I know that it is okay to feel this way and I'm not damaging myself further, I will continue like exercise is one of my daily prescriptions!!!!
Thank you for this video. So interesting and I agree with the importance of exercise!
Thank you for the video.
I just found your website and you are the first person who have made exercise an giving. I have been so skeptical about exercising. How should one proceed when starting exercise after being diagnosed? Before my diagnosis I went to the gym, I walked on the track, I did water exercise, I walked at least 1mile 3 times a week through my neighborhood. I'm eager to follow your advice. Thank you.
Thank you, Doctor Bai.
I was diagnosed with Myositis this year. I avoided steroids until March. They helped me immediately, but then, It made me gain 15 pounds.
I need to go with the hard way. It’s so so tough.
How are you today?
How you feel now
How are you feeling? I think I have this disease
Can mold cause this?