My PACING System (5 steps!) for Chronic Fatigue Syndrome Recovery (M.E.)
ฝัง
- เผยแพร่เมื่อ 16 มิ.ย. 2024
- In this video: Finding a concrete and effective system to pace myself was the only way I was able to eventually recover from ME/CFS. Check out my 5 steps to get this on track - along with a free tool for you to use!
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Remember that I am not a professional - this is what worked for me, and it will not be suitable for everyone. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
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PACING PLANNER
mailchi.mp/655e93796e93/the-5...
FURTHER RESOURCES
Check out my book! FINDING FREEDOM: ESCAPING FROM THE PRISON OF CHRONIC FATIGUE SYNDROME. View on Amazon -- amzn.to/2LtzBcl
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WHAT TO WATCH NEXT
Chronic Fatigue Syndrome RECOVERY - Avoiding Health Crashes!
• Chronic Fatigue Syndro...
What I needed to know from DAY ONE (but no one told me) about ME/CFS RECOVERY
• What I needed to know ...
Lauren's Chronic Fatigue Syndrome (ME) FULL RECOVERY story!
• Lauren's Chronic Fatig...
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🚀 Join my new online course, Lifestyle Pacing: Tools for Optimizing Your Energy and Achieving Your Goals. Get 30 days full free access and learn more about successfully navigating your health recovery journey here 👉 skl.sh/3vaMQqg
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In this class you'll learn:
- Three powerful strategies for pacing your activities and maximizing your output from whatever usable time and energy you have.
- How to prioritize treatment options and make space for the things that are a good fit for you.
- How to shape your environment and harness the power of habits to get you on an upward trajectory. (And have fun while doing it!)
- How to eliminate energy vampires while simplifying your life and routines.
- How to hack your motivation with tools for keeping yourself on track and continually showing up for yourself - even on the days you don't feel like it.
Thank you for the support and I hope you find these strategies as helpful as I and others have!
Join for free here 👉skl.sh/3vaMQqg
Link doesnt work here
Hello. I’ve just bought your book & watched video but can’t find the link to download to PDFs mentioned. Can you attach it please? Thank you! Angelina
@@angelina8303unable to find link as mentioned
There's nothing like CFS/ME that will bring you to your knees begging for mercy. It is quite a humbling condition to have for sure.
1000%
Pushing to “do all the things” is how we got here to begin with. Perfectionist high achievers tend to be the ones who get CFS - the high stress people. Gotta let it go to get better - all that sympathetic tone is the problem. Great video. I just found you and also bought your book.
Hey Anita! I'm so happy you found my video useful and got a copy of my book-it means the world to me! Love hearing your insight, such a great perspective! 🌟❤️
I lost my job because of fatigue and anxiety. I have been resting for 10 months without any improvement. I really couldn't afford any mental consultations so thanks for this free content. Hope I can turn my life around.
I'm so sorry to hear that Alvin. I am wishing you all the best with this and also hope you can find what you need to get past this soon.
Fatigue and anxiety could come from many places. Even depression... Make sure you get a proper diagnosis
I had to fall in love with rest that's extremely important and I have been bedridden for years till I began to change my habits
How are you now?
How are you now Alvin?
I have suffered from chronic fatigue and I can definitely relate to feeling like I have lost control of my life. It can be hard to do even the most basic of things.
❤️❤️❤️
Come hai fatto a aguarire??? Per me è importante che tu risponda, grazie!
@@stefanialembo1816did you ever figure this out?
TH-cam says I've watched this before - I must have, because your advice has all gone in and the current system of pacing I have largely follows these steps :) I deleted my social media because it was making me depressed and anxious but also realise now it's done me a favour because writing comments drains my battery! I must say tho, this is much easier to follow now I have more energy. It all felt very hopeless a year ago. Thanks for your continued presence and positive message 💖
Massive hugs to you, Sonia ❤️❤️❤️
Thank you very much. I'm basically house bound and my biggest problem with pacing is trying to keep on top of household jobs and keeping the place clean. I know it's crazy and need to change. Keeping things clean etc was a way I dealt with trauma so it's a crutch but I need to get on top of this.
How are you doing now?
This is a great resource. I’m know I spend a lot of my time in bed on my phone when I need to be resting. I look forward to going through all the steps.
Wishing you all the best, Jellybean. I know it's not easy ❤️
Jellybean, how are you doing now?
Wow, wanted to cry. As a woman we are conditioned to be good housewives, now you have told me to relax a bit. Thank you.
You are so welcome, Wendie! It's a tough thing to let go of, isn't it. But in my experience really important 😊
You are so welcome, Wendie! It's a tough thing to let go of, isn't it. But in my experience really important 😊
Thank you so much 🥰
This is awesome.
Just as I was losing hope, came across this video and this has given me hope again. 4 years of cfs
I'm so sorry to heat that you've been struggling for so long. Hope is so important, isn't it? It's the main thing that got me through. Wishing you all the best with your own recovery journey 🌞
Thank you. Great advice 😊
I'm just coming to accept that I live with this fatigue after a year of not knowing what it was or thinking I'd go back to who I was. It's hard to accept this. But now I'm learning about pacing in hopes that it helps. That's so much for this video.
Thanks Raelan, this has been super helpful 💛
I'm so glad!
Hi again ! Thanks for doing another 1 .. I’ve seriously been trying recovery for around 8-9 mths now ( only found you a mth ago after find 1 person utube recovered !! ) I wanted to tell u that I went from listing jobs ( years doing this ) to feeling that I needed to list even the mundane & obvious! For my Mental Health ( I’ve seen yours & others interview s where you struggle not to breakdown ) to feel a sense of achievement in the act of ‘ another job done ‘. I don’t now but this video reminded me ! I would have make cuppa . & Get clothes out .& get dressed . & you feel good about all that u gave done .. I have a few different Diaries but I havnt come up with one that suits my needs yet . So I have at the moment one that I can see at a glance the week . I put days . Time I was UP how many hrs sleep I’d had . What I ate Times I ate & ive been consciously intermittent ‘ fasting ‘ & into diet so recording these things . I write my excersises down … I am improving g but I’ve got to say I made a discovery which was what got me started at the very beginning I can where that was now & at the same time I found a utube interview & heard them say something that got me thinking about a symptom that I HADNT had for some time & it’s the darnest thing ! ( it was one of urs ) so that then gave hope & I had all ur videos to encourage me too . I’m an empath so it gets to me all these stories but their so heartwarming too ! … I still have to figure more out & have days that r a struggle & ive been having blood test s that show low Vit D & B12 .. ( been on 40.000 a week since last Dec minus short breaks for more bloods ) so this has gotten me down lately .. I feel so inspired do well & have bad days … I live alone & one theory is that stimulation is needed but tricky to get / plan coz of Cfs .. Also I have a window of 6 hours up & then I know it’s a mistake but I lie down after eating ( not huge but a sml amount I NEED ) & then I’m asleep ! Every afternoon If I’m at Home ! I have tried doing jobs slowly but I honestly find it doesn’t matter if I ‘ pace ‘ ( when ppl used to say this to it would drive me mad ! They think it’s all u have to do & ur life will be bavk on track ) I have done pacing & could only mow the grass in stages . An hour job used to take me all day !! I kept stopping n sitting .. but I’m a person who used to not be able to ‘stop ‘ I’d be wound up not getting on with it ! Looking at it needing doing OR when rains threatens … I have been better it got upto 7 hrs & also it happened where I was asleep for only an hour & after a quick cuppa I was busy till T time .. Like a lot of ppl it would seriously help us if we support in each of our areas in touch coaching … I can get over whelmed by all the info about diets fasting . Excersising .. But I believe it’s all helped me . I bet we have all done things but forgotten … Your video s in here are a life saver .. thank u so much X
Thanks so much for all your videos - when I first developed long covid a few months ago I was so terrified that it would turn into ME/CFS (and that does describe my symptoms tho not officially diagnosed) but finding your channel and so many recovery interviews has shown me that labels don't matter and there is a way out of these conditions. Now improving significantly with brain retraining, physical rehab, and other strategies tho I still have a ways to go. Recommending your channel to everyone I know with long covid. Thanks so much!!!
How are you
I have LC too after 2 bouts of covid.
How are you doing now?
Outstanding video! Thanks so much, Raelan!
Glad you enjoyed it, Bobbie!
You are amazing Raelan. Sending a lot of love and thank you
Thank you, Anna! I appreciate it so much 💓
Love this video. Finally some hope
I will be using this approach
You got this! 💓
This is a super helpful video! Thank you so much for sharing your wisdom!
You are so welcome, Antonia! Glad it was helpful 😀
Thank you so much for this. I’m doing the ANS rewire and this is something I wish was covered there too - HOW to pace properly. This has been such a difficult thing for me without a clear plan 😊
Thank you! This is verry helpfull!!! 💕
Glad it was helpful, Eveline! 💓
This is an awesome share, thanks for your time and the document that helps accomplish pacing
Glad it was helpful, Zest! 💓💓💓
Thank you! This is so helpful. I love how you organized the pacing into doable steps. I am excited to try this! So grateful for your channel and the great videos you post!
You are so welcome, Cherie! I'm so glad you've found this helpful and I hope that this system helps catapult your healing efforts as much as it did mine 😊🚀
You are the best Raelan! Cannot thank you enough for your help! 😊❤
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Needed to watch this today. Thank you
You are so welcome
Thank you so much, Raelan. This is just what I need. I've realised that I don't have a system in place. It's so simple but so empowering to have a plan to keep to, instead of finding myself caught up in unnecessary activities. Thank you for all your videos - you are a life-saver!
That is really helpful♡♡♡
Thank you, greetings from Germany Xoxo
You're so welcome, Betty! Greetings back to you from (a Canadian!) in the US 😊
Thanks!
Thank you so much, Paula! 💓💓💓
Thank you ❤️
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So I’m new just joined you hi 👋🏻
So glad to find you 🤗 I’ve had me CfS for years x
Hey Alison! I'm sorry to hear you've had this for years, but it's great to connect with you! I hope you are managing ok 🌷
Pure gold!
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@@RaelanAgle
Hi Raelan, I know you are a busy 🐝 but hopefully you can reply to this question..
I have 5 years dealing with cfs.
I believe I have the tools now to tackle this situation to start feeling good again!
How to know if I'm resting enough or too much?
I certainly know when I over do it as I am a type A personality. But I I'd like to know more about this balance.
Thank you 😊
Thank you ❣️
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Hello! This was a fantastic video, thank you! I'm having difficulty finding the free PDF you mentioned in the video. Would you be able to post this again? Thank you :)
Thank you for sharing. I'm new to all of this and had no idea how to deal with it.
You are so welcome! Wishing you all the best with your own recovery journey. :)
Wow!!!! So true! Thank you so much. It’s basically learning to respect yourself 😍
That's basically it, isn't it Irene!
WOW! I have to say it again...WOW! this was so helpful. Thank you! I'm going to start these five steps right away.
I appreciate it so much, Roxie!
Thank you
You're welcome!
great advice. Pacing seems really productive
Thanks, Geoffrey! Yes, I am all about productivity that is for sure ☺️
Such great tips! Thanks! I keep a planner with all of my healing strategies I want to accomplish each day. Even though it's the same almost everyday, I love checking things off. I keep a lose schedule and make my healing a priority.
This is amazing, Kathy! And sounds similar to things I've done too. I love checklists - I find checking things off so satisfying. Good for you for having such a conscious approach to your days and I'm so glad you've found something that works for you.
Thank you so much.
You're welcome, Linda ❤️
Thank you so much for providing all this free content. Many can´t afford any program or treatment and your tips are just gold to set up a stable basis for recovery and even finding some tools that effectively help to make progress. I am just learning to give rest and things contributing to my wellness a priority and this helps a lot! Thanks Raelan!
So glad to hear this is helpful! All my best to you on your journey ☺️
Brilliant advice! I love your systematic approach to finding the best way to spend our day. It's so true - we let our time get whittled away by things that don't build into our long term health and one has to be objective and ruthless to get them out. Will try the chart this week. Eeek! I don't think I'm going to like everything I see! :D Thanks for sharing. Xx
Hahaha I just love your energy and thoughts on things! And I really respect how hard you work on all of this and the conscious and thoughtful approach you take to recovery (and life!). Best of luck with the time tracking and I hope this helps you focus your efforts even more 🚀
Thank you! This is so useful. How should I handle this pacing on days where I am drained because of insomnia. How can I pace when I am tired from lack of sleep? Thank you
I love this video, but the link won't bring up the pacing planner. Can I get this a different way?
Another great vid Raelan, thank you. My main takeaways are about getting better at asking for help with basic energy sucking tasks. A recent UCL / University of Exeter study showed people suffering severe Long Covid can have worse quality of life than advanced cancer sufferers. For those of us who are really struggling we need to ask for help
Thank you Raelan for another helpful video! I'm not sure how to download these forms. Are they still available, can anyone help, please?
Thank you for sharing your knowledge, much appreciated. We can recover :)
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Thank you so much Raelan this is great and I agree it is so important to put yourself back in the driving seat and to not allow ME/CFS to have control over your life. I can’t thank you enough for your positive approach towards recovering from this debilitating illness ☺️🙏🏻💜
I'm so glad you found this helpful, and thank YOU so much Janie for overall just being a wonderful human being! Your kindness really is so beautiful. I hope you are doing well ❤️
Finding this channel is everything I could ever have hoped for. Number of times I googled ME recovery with zero success I started to think there was no hope. It somehow appeared in my suggestions today.
Thank you. Thank you . Thank you
Great to hear, Freya! I'm so glad you're finding this helpful. Sending love and hugs to you for your health journey ❤️
Thank you once again. This is wonderful. After having a crash last week, I know I have to factor in emotional stress and I need to put more rest in place during these times. For me it was a new build beginning again. Before the lockdown my beloved cat if 15 years died and I had a month of flares. So, during times of emotional or psychological stress I need to build in a few more rests. I also make sure I keep moving in the day, even on rest days.
I am so sorry to hear about your cat. What a heartbreaking loss. Emotional stress is such a massive one, isn't it? It can level me faster than just about anything else out there. And it can be a challenging one to factor in with pacing. This is such a great point about the need for extra rest during times of stress - thanks for bringing this up. I'm definitely guilty for forgetting to do this and I'm sure others are too. Sending you love and hugs during this challenging time and thanks for sharing 💜
Another golden video from a golden lady.
I appreciate it! 💗
Thanks
Thank you so much, Grainne! ❤️
Very helpful video. I think it’s important to let ones friends know ones limitations as prolonged social interactions can prove very tiring and good friends will understand.Also giving oneself rewards for attains goals,however small and reassuring oneself of self worth.
Excellent!! So well and warmly articulated. :) what a gift. Finding ways to manage CFS and Fibromyalgia since COVID a year ago. Subscribed.
You're so welcome, Dawn! Thanks for subscribing! 😊🌟
I believe fybromyalgia is a symptom of CFS CFS 26 fybromyalgia 6. Are you hypermobile?.
Just started your book on Kindle 👍
Thank you so much, Graham! 💓💓
This so helpful! I really like the strategy of writing out how I can minimize the things that are taking my energy... going to start doing that. Great video :)
Glad it was helpful, Annie! ❤️
This is just superb, I have been researching "how to diagnose chronic fatigue syndrome symptoms" for a while now, and I think this has helped. Have you heard people talk about - Diyadelyn Ziyily Idea - (just google it )?
It is an awesome one off product for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) without the headache. Ive heard some super things about it and my mate got excellent success with it.
Thanks - great vid. I find that pacing also changes depends where I am on my menstrual cycle.
Yeah, me too.
I'm in grad school and I have eds and fibromyalgia.I am just discovering the concept of pacing and therebisnsonmuch unlearned im doing. Thank you so much,I think this will help me big . Can't wait to tell you how it went.
That's amazing to hear, Shreya! I can't wait to hear how it goes 🌟
You are absolutely right Raelan, Resolving to manage energy output on a moment by moment basis is doomed to failure...in my experience anyhow! No matter how determined i am, the second i get the tiniest amount of energy, i seem to use it..it happens daily, and as a result i feel i have failed once again to do the right thing for myself...which only leads to guilt and despair...a downward spiral!
So thank you for giving us the tools to enable us to keep track...i intend to treat it like my job...somehow i think that might help me to focus, and stick to what my body needs consistently! Thank you!
I'm so glad this was helpful, Dorothy! And yes - treat it like a job. That is the perfect way to put it (in my opinion!). We have to take this seriously, put ourselves first, and stop relying on willpower (and replace it with a plan!) 💜
Hi Dorothy, would love to hear how you are getting on, hope you are doing well!
I've just found this channel and find you really inspirational. I have had ME/CFS for 30+ years and for the past 10 years my symptoms have got worse. I could never get my head round pacing but your advice has motivated me to try again. Thank you so much.
Hey Lizzie, I'm so sorry to hear about your incredibly long haul with this. I can't imagine what 30 years of this would feel like, it sounds overwhelming and frustrating (to put it mildly). I'm so glad to hear that you are feeling motivated again though and found this video helpful in some way. Sending my best to you and I'm here cheering you on ❤️
How are you now Lizzie?
@@santeenl Hi. I'm not too good at the moment after having the Covid booster vaccination. Thanks for asking.
@@lizzieh5284Hey, how is it going?
Thank you for sharing this. I've been recently diagnosed with post covid syndrome and part of this is fatigue. I'm useless at pacing, living in a busy household and having been used to working full time, studying part time, looking after the family and dogs and cooking large meals from scratch. I also breed in my 'spare time'. Now I can't even walk round the block without a nap and this 'boom and bust' cycle is a part of my life everyday. This has given me real direction and inspiration. I don't know how long I'll be ill for but I can now start helping myself more. I particularly like the tip about the phone alarm as I tend to get carried away when I'm feeling 'energetic'.
I'm so sorry to hear that you've been facing this. It seems that there are an alarming number of people facing post covid syndrome and it sounds scary and overwhelming. And I suspect we are all useless at pacing until we are forced to find a way to learn how to be better. So you're definitely not alone! I hope you find what you need to put this behind you soon 💛
@@RaelanAgle thank you! Great website too. Very helpful resources :)
@@Ceretrea great to hear! :)
@@Ceretrea how are you feeling today? Any better?
@Softbreeze how are you doing now? I’m 6 mo long Covid trying to figure out how to recover. Breathlessness is my biggest issue..
Hey, thanks for your tips. May I ask how you managed your financies while you could not work? I am happy that people like you are found on the Internet, very helpful and inspiring.
Great question and one that I will start asking people when I interview them because I'm sure many others would also appreciate knowing this. For me, for about the first 18 months I was on disability insurance from work which allowed me to retain 66% of my pay (plus my husband was employed). After that I lived off of savings, and then went into a ton of debt. Eventually as I recovered a bit I was able to work in some capacity which kept me afloat 😊
Can you have too much sleep? I am starting to rest more to combat fatigue but i am becoming less and less active. Should i just give into sleep when i feel tired or should i stay awake and do gentle movements etc?
Hi Raelen, I had downloaded the pacing guide a couple months ago, but my computer shows it's not available. (who knows! it's a dumb microsoft) But I am not seeing it in your resource page anymore. Am I missing it? Thank you so much. ~Dee
I have had cfs symptoms for 22 years and I have never thought there is something really wrong with me, I am sick, and I have to look after myself to get better. I was just like, what is wrong with you, just push through etc...The more awareness we can give people that pushing through is not the answer in fact will possibly make you a lot sicker and enable the cfs to stay longer. I felt like a loser and a failure, that there was something wrong with me that I was sick. I never thought , you actually have a REAL illness here !!
So glad you've turned things around, Jacqui! Pushing through is definitely not the answer. Much love to you ❤️
One of the hardest things about the condition and I’ve had it also for about 20 years Is that people look at you on the outside and just assume that you feel like they feel. I’ve gotten so sick of that. I pushed many times when I should not have pushed. Now having gotten Covid in September and still suffering the effects of that I’m realizing that I’m just not going to push myself anymore. I’m just gonna do the things that I need to do. I’m gonna pray, I’m gonna seek the Lord’s healing for my body. I’ll do what I can for my living situation as my home is rundown and I’m just going to put me first.
Thank you!! How did you know when you were able to add more things in, when you were ready to increase your activity? ❤️
Good question, Elin. For me, the anchor/core of my recovery process was my movement/exercise program. So as long as I could manage my tiny workouts a few times a week then I knew I was ok. If I couldn't manage them then I knew I had to scale back. I imagine that we will each have a slightly different measure, but my guess would be that as long as you can still maintain your own recovery program after increasing activity then you should be good. I think it's a bit of trial and error unfortunately! If things seem to be going well, I try adding in a bit more. Sometimes it's ok, sometimes I'd have to scale back, depending on how I'd feel 😊
@@RaelanAgle thank you so much! This is super helpful! For me, movement also needs to come before anything else, and my ability to move gets better before my cognitive and other symtoms improve! I've tried to increase my activity too quickly in the past and had very many crashes , so I think I need to take it slower both with my schedule and updating my schedule! I saw NHS came out with some new guidelines for post viral fatigue lately that have also been very helpful for me 😊🙏 I have sent you a message request on fb messenger BTW 😊 your a huge inspiration!
Thank you for this video. I had my first crash in January of this year and after being diagnosed and given pacing advice, I still couldn’t wrap my head around it because none of it was structured enough for me to implement, and I just didn’t want to give up more than I already have. I’m 15 and I’ve had to stop going to school and seeing friends in person all together because it was just too much to handle. I’m skimming through your video because I’m in a crash. With all the advice coming from a person who struggled with this condition it feels a lot more achievable to pace. Though, I tried to look for your pacing planner and it is no longer available on your website? Is there any way I could get it?
Hi there, I signed up for the email subscription on the website just now and the pacing planner came to me then as a free gift. Give it a try. Hope it comes through to you okay.
Heyyy how are you
This was so great! I have EDS, but fatigue is a huge aspect of it. I have a "suspicion" that CFS/ME strategies will be helpful for me as well. Thanks so much for sharing!
Absolutely! Glad you enjoyed it Drixi, and I hope it's helpful. Best of luck with your own health journey!
If you have eds like me.its highly likely you have ADHD asperger's trifecata why we have fatigue
@@tomsale5142 I'm neurodivergent for sure (although it's ADHD and dyslexia for me). And I agree that it for sure contributes to the fatigue
@@macgirl1234 yeah it's the subconscious brain I've just lost my mum to severe ms heds asperger's.folks in the spectrum most caring folks ever.brilliantbthat means Dr lenz may help you I e had fatigue from birth though not CFS until 17 when I had a fall then pelvic pain then pots now it's more fybromyalgia or is it autism burnout combination because apparently that causes pain my grandfather had such a simple life he had no problems.apart from detached retina slipped disk ime sure his garden food helped him.to have you found anything that works any others heds in your family rccx gene theory
@@macgirl1234 the eds society realy helpful to
Thank you for the resources. Sometimes I will get a burst of energy. Do you stick to the plan even when you have a day or two that is better? I tend to crash after having energy for a day or two.
Personally I stick to the plan. My 'good' days could be dangerous and have consequences otherwise!
@@RaelanAgle thanks so much!
I’m lying here in tears because I feel so awful and feel helpless but listening to you has given me hope. My problem is I’ve not been diagnosed properly yet. The drs keep guessing different auto-immune. Only the first consultant diagnosed chronic fatigue as a big part but she retired. I don’t always get ‘flares’, only when I really push myself and this time I think I just pushed myself too far and now I’m paying the price. But I am so glad I’ve come across your channel. Thank you 🙏🏻❤️
I know it's tough and it's perfectly understandable that you are struggling sometimes. Unfortunately we all do. Hang in there, your puzzle pieces are out there!
@@RaelanAgle Thank you ❤️
Take care of yourself and check out all the recovery stories and put into place what you need to change and one day it will be you with your recovery story🥰
@@nolamayer2493 thank you so much, Nola ❤️🤗. I’m much better than I was when I posted this and diagnosed with Sjogren’s (which comes with terrible fatigue amongst other things) I’ve done and am doing lots of research and feel so much better than above. In fact I’ve even started a TH-cam channel on it with a different account. For me, so far, diet has been crucial. Thanks again and wishing you a lovely day 🤗
@@deliciouslyme6206 Glad you are feeling better and have a diagnosis, even though I understand that Sjogren's comes with many challenges. I don't have Sjoren's but I once knew a young mother who did; her condition was so misunderstood at that time and it was so hard for her. I wish you all the very best, Sarah
Do you have a video of chronic fatigue and periods. Yikes its rough
I don't, but this is such a good suggestion.
Thanks for your video
An Invisible illness is so lonely
Check out Dr lenz
What’s the difference between AF and CFS?
Please where is this downloadable
link ?
It is in the video description just expand the description and you will see it 🙂
What about things a list of things you find that drain your energy but they're not things you're necessarily doing as much as others may be using around you, or you might be using. I have multiple chemical sensitivity and laundry soap perfumes are a particular problem for me. My neighbours use them; I don't. I ended up moving to another apartment which exposes me less to them, almost nothing at all, so that I think was a bonus. I also believe inhaling car exhaust is part of this too and I want to move to a place out in the country so I can be around a more natural environment. I find that where I live now I basically can't stand the place. I moved here because I was on Ontario disability and I needed a cheap place to rent so I moved eastward. This place itself is entirely draining. I don't have any friends here and I can't wait to leave. I want to be around people who are real, not people who can't even talk about the weather without complaining about it. Complaining is not a way of life for me; although for some it is. Those people I find draining. So it's not always about what we do that's draining, I feel, but what we're exposed to, and who we're around that also plays a part. You're right when you say this has many causes. I personally believe it's a disease related to the chi and the body being too toxified.
Every single thing you've shared here resonates with my own experience. I noticed issues in my body with detoxing and managing stress of any kind. And it's tough to find people we fit with also, isn't it. Thank you so much for sharing.
E' possibile avere la traduzione in Italiano? Grazie!
Do you do coaching?
Hi Deidre! Not currently, however myself and a partner (another former ME/CFS sufferer) have in the works a ME/CFS support program that will be launching in the next few months. I'll be sure to share details here when it's out!
Raelan Agle Thanks!
I'm not sure if I have any but I definitely have chronic fatigue and IBS and I am extremely tired most of the time. I spent most of my day just lying in bed watching TH-cam videos as I feel I do not have the mental or physical energy to do anything else. It does get me down. So my activity list would look very boring. Maybe I need to do more. They say that exercise is bad for chronic fatigue though what is your opinion on that?
Hi James, I'm sorry to hear about the health challenges you've been facing. I can only speak to my experience, but for me very gentle exercise ( I started with one minute every second day) was a vital part of my recovery.
Raelan Agle Okay I will try a light exercise routine.
How about when you have to work full time
Do you know if menopause affects flares? Mine has just begun. It may be a coincidence. I just wondered if anyone can advise about a correlation? Many thanks as always xxx
I've wondered the same thing. I'm in perimenopause. Although I dont have a lot of symptoms of perimenopause. I thought I was going into menopause as I went 5 months without my period. Then it came back this last week and really knocked me out.
What a great question. I'd be very curious to hear about people's experience with this as well.
Yes!!! I’m so much worse a week before my period! Definitely hormonal as well. I’m keeping track.
Thank you! I wish i could work less. It would really help😢
Writing all the lisrs and making that many decisions about priorities..,is exhausting 🛌🏼🛌🏼🛌🏼🛌🏼
One more question lol, where does multitasking fit into the equation of recovery?
Great question, Deirdre. And a tough one! Hmm... for me multitasking has never worked so well. I'm a big fan of time blocking and only focusing one one thing at a time. But I imagine that this is a bit different for all of us depending on how we are wired. :)
❤
How do I do this? My biggest zapper is work…I have no choice but to work… I carry the insurance… I feel hopeless knowing I need to give up work and rest
I believe she's genuine her ME stories were all real and she actually helps, but one difference between her and us is she seems....a bit wealthier than the average. Idk what she did other than she claims she did but she definitely was in a better position than 90% of us.
I work 16 to 20 hours each day ... 7 days a week ... I sleep very little ... I take several showers throughout each day because I feel much better after a shower ... I buy my vegetables diced ... I don't use a stove or oven ... or fridge or freezer ... Once a month, a neighbor comes to get me to go to town for groceries ... Aside from that, I'm in bed 23 hours a day 7 days a week ... working on my laptop... on hundreds of projects that I love ... I talk on the phone once or twice a day for a few minutes each time ... I live on a mountain and don't have any close relatives... I've nearly died over a dozen times ... so I limit the chaos from others. I've been vegetarian since 1987 - but with lots of plant-protein for several years
What has nearly taken your life
So scared as my body because I haven’t been able to exercise is wrinkly I know I’m 56 but the muscle waisted is mad I don’t know what to do 🥺
That sounds frustrating Alison, and I definitely empathize. Its terrible when our ability to take care of ourself is taken away from us. Sending hugs to you for your health journey 💗
This is my worry. I've always been a fitness fanatic and since suffering with what I think is cfs post vaccine injury i've had to slow down and do a lot less but my body is not as toned and I've lost weight due to losing muscle mass. I'm 55. I have to work full time as I have a mortgage to pay. After work I'm shattered and often go to bed early but struggle to sleep..wired but tired 😩
Are you able to holiday now ?
Hi Tess, I'm fortunate that aside from about my first two years with this illness when my symptoms were more severe I've always been able to travel. When I was only partially recovered it was difficult, but doable. These days I'm feeling really well thankfully and travel isn't a problem at all 😊
Raelan Agle I’m so frightened. I heard. a journalist say if your over 40 you probably won’t recover . Hopefully I can gain 70% as I’m early only 3 months? Have you heard of some recovery at my age ?
What exactly do you mean by social media? TH-cam is considered social media
Do you know anyone else who doesn’t have a thyroid with this condition?
Strange - three people asked how he is now and no answer? Sad how many of these people dont answer avter a while. Did they die from covid or not being able to support themselves?
There is a simple treatment for Long Covid and I tried it and it worked for me. My Longcovid fatigue is gone. The ArtemiC Rescue and Support combo treatment for Longcovid worked for me. It takes 32 days normally, but mine was gone after 9 days. There are a few vids on YT about it and the official site is found easily by searching ArtemiC Rescue
Merci !
Thank you, Renate!!
it is 3 (max 4)months after you live without microwave you can cure from CVS=fatigue/bad digestion=shortage of vitamins/sore throat/depression/only being tired is not CFS.
When you need three of 18 minutes to describe, what you will do instead of simply doing it, its the beginning of wasting my time and energy.
now the cause of Chronic Fatigue Syndrome is found: radiation of microwaveoven.(magnetron)
To stop you have to eliminate the oven out of the house.
The plug out of electricity net because the oven has also radiation when it is not in use.And out of the house because the oven has a high voltage capacitor.
The distance between an oven and a person is very important.After a 2 weeks without microwaves health becomes better.
That's very interesting Dirk, thanks for sharing 😊
@Dirk thank you for sharing; I’ve been ill for 22 years and haven’t owned a microwave for the last 12 years 🤔 had no effect before and after owning one
@@mistymidnight4447 Same with a friend of mine, never had a microwave and still had to deal with this illness.