My wife has just introduced me to this. Been suffering for 12 years now which coincided with a blow to the face during a soccer game. Can relate so much. Referrals to consultants have been unsuccesful. Have been free of Amyltriptelene and Gabapentin for 5 years now and have come to terms with the pain and have accepted it for what it is but am feel condemned that it may be with me till the day I die.
Yes , I've used a hammer , and baseball bat on myself... Your explaining exactly what I feel during attacks. No words to describe tactics i have taken... humming a certain ohm has helped... I found if can keep from crying it helps "sometimes"... on other occasions i felt the crying and screaming helped push out the pressure.. I don't know anything physically I haven't tried. If i moved to the desert, I may not get them as they come in fall - winter... I lived in Arizona before, as a young woman and never got one there... but...they never started until I turned 50 years old. I am willing to move or do whatever i have to do to live Cluster free... I'm doing a parasite cleanse next week... Will see if it cures them too... Pin worm can enter the brain and cause mucus and swelling ... so we'll see... Yes, suicide was a thought, A BIG THOUGHT... I was actually afraid i would accidentally kill myself because I banged my head so hard... Luckily i haven't, yet.. Thank you, winter is is almost here... 😢
Ainslie's testimony is so relatable. I've had the same thoughts about being cursed from a past life or something an ancestor did that I'm paying for. We are not crazy having those thoughts, they're completely normal while experiencing that level of pain. Before the internet I had never met anyone who could relate to it. The pain is out of this world and that is difficult to describe without sounding crazy. One big issue is the title having "Headache" in it, that word is misleading.
We did not do anything to cause this - it's just a Hypothalamic Dysfunction that causes an extreme pain response. I describe pain as a fire that has started, and your brain is the Fire Station that will send some engines out to dampen the pain,....and I describe Cluster Headaches as like the whole fire station is on fire, with all the engines inside, also on fire 🔥🤯
22:00 In my non-professional opinion, the Circadian & Circannual Rhythms are the main trigger of daily & yearly CH cycles. The amount & intensity of light we absorb depends on many factors such as location, time of year, sleeping conditions, skin tone, etc etc Night work is now considered a carcinogen, so clearly any disruption to the Circadian cycles are harmful to health in general, but more so in the Clusterhead, as you don't want to "wake the beast!"
You need an audience checker. Someone who listens and can tell you when your audio is off. I have clusters, and I couldn’t understand what the description of them was. If someone else was trying to understand, they probably didn’t either.
Yes , I've used a hammer , and baseball bat on myself... Your explaining exactly what I feel during attacks. No words to describe tactics i have taken... humming a certain ohm has helped... I found if can keep from crying it helps "sometimes"... on other occasions i felt the crying and screaming helped push out the pressure.. I don't know anything physically I haven't tried. If i moved to the desert, I may not get them as they come in fall - winter... I lived in Arizona before, as a young woman and never got one there... but...they never started until I turned 50 years old. I am willing to move or do whatever i have to do to live Cluster free... I'm doing a parasite cleanse next week... Will see if it cures them too... Pin worm can enter the brain and cause mucus and swelling ... so we'll see... Yes, suicide was a thought, A BIG THOUGHT... I was actually afraid i would accidentally kill myself because I banged my head so hard... Luckily i haven't, yet.. Thank you, winter is is almost here... 😢
My wife has just introduced me to this. Been suffering for 12 years now which coincided with a blow to the face during a soccer game. Can relate so much. Referrals to consultants have been unsuccesful. Have been free of Amyltriptelene and Gabapentin for 5 years now and have come to terms with the pain and have accepted it for what it is but am feel condemned that it may be with me till the day I die.
Yes , I've used a hammer , and baseball bat on myself... Your explaining exactly what I feel during attacks. No words to describe tactics i have taken... humming a certain ohm has helped... I found if can keep from crying it helps "sometimes"... on other occasions i felt the crying and screaming helped push out the pressure.. I don't know anything physically I haven't tried.
If i moved to the desert, I may not get them as they come in fall - winter... I lived in Arizona before, as a young woman and never got one there... but...they never started until I turned 50 years old. I am willing to move or do whatever i have to do to live Cluster free... I'm doing a parasite cleanse next week... Will see if it cures them too... Pin worm can enter the brain and cause mucus and swelling ... so we'll see...
Yes, suicide was a thought, A BIG THOUGHT...
I was actually afraid i would accidentally kill myself because I banged my head so hard... Luckily i haven't, yet..
Thank you, winter is is almost here... 😢
Ainslie's testimony is so relatable. I've had the same thoughts about being cursed from a past life or something an ancestor did that I'm paying for. We are not crazy having those thoughts, they're completely normal while experiencing that level of pain. Before the internet I had never met anyone who could relate to it. The pain is out of this world and that is difficult to describe without sounding crazy. One big issue is the title having "Headache" in it, that word is misleading.
We did not do anything to cause this - it's just a Hypothalamic Dysfunction that causes an extreme pain response.
I describe pain as a fire that has started, and your brain is the Fire Station that will send some engines out to dampen the pain,....and I describe Cluster Headaches as like the whole fire station is on fire, with all the engines inside, also on fire 🔥🤯
22:00 In my non-professional opinion, the Circadian & Circannual Rhythms are the main trigger of daily & yearly CH cycles.
The amount & intensity of light we absorb depends on many factors such as location, time of year, sleeping conditions, skin tone, etc etc
Night work is now considered a carcinogen, so clearly any disruption to the Circadian cycles are harmful to health in general, but more so in the Clusterhead, as you don't want to "wake the beast!"
You need an audience checker. Someone who listens and can tell you when your audio is off. I have clusters, and I couldn’t understand what the description of them was. If someone else was trying to understand, they probably didn’t either.
Yes , I've used a hammer , and baseball bat on myself... Your explaining exactly what I feel during attacks. No words to describe tactics i have taken... humming a certain ohm has helped... I found if can keep from crying it helps "sometimes"... on other occasions i felt the crying and screaming helped push out the pressure.. I don't know anything physically I haven't tried.
If i moved to the desert, I may not get them as they come in fall - winter... I lived in Arizona before, as a young woman and never got one there... but...they never started until I turned 50 years old. I am willing to move or do whatever i have to do to live Cluster free... I'm doing a parasite cleanse next week... Will see if it cures them too... Pin worm can enter the brain and cause mucus and swelling ... so we'll see...
Yes, suicide was a thought, A BIG THOUGHT...
I was actually afraid i would accidentally kill myself because I banged my head so hard... Luckily i haven't, yet..
Thank you, winter is is almost here... 😢