My Broken Brain - When your Body becomes the Enemy | ENDEVR Documentary

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  • เผยแพร่เมื่อ 20 ธ.ค. 2024

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  • @ENDEVRDocs
    @ENDEVRDocs  7 หลายเดือนก่อน +16

    This compassionate documentary follows patients experiencing four conditions; Epilepsy, Motor Neurone Disease, Alzheimer's Disease, and Parkinson's Disease as they undergo testing, surgery, and treatment in the name of research. Their futures may be written but their present day stories are ones of resilience, love, and family in the face of huge adversity.
    Stories of resilience, love, and family in the face of adversity. Over 700,000 people in Ireland suffer from some form of neurological condition. Most of these conditions are debilitating, degenerative, or incurable. As this number is set to increase as the population ages, the importance of brain research cannot be underestimated.

  • @sherra-sama
    @sherra-sama 7 หลายเดือนก่อน +34

    As someone who suffers from Kleine-Levin Syndrome, I can say that coming to terms with the idea of your own brain betraying you is one of the most terrifying and yet strengthening things you can go through. I don't have symptoms nearly as bad as most of the folks documented here, but I felt every word they were saying on a deep level.

    • @Mr-fe5ng
      @Mr-fe5ng 7 หลายเดือนก่อน +8

      Its something the majority of people who have a healthy brain take for granted and also exploit it with drugs and alcohol. I, for one, am very grateful

    • @boynamedsue55able
      @boynamedsue55able 7 หลายเดือนก่อน +2

      Terrifying yes, strengthening quite the opposite for most brain diseases. Especially, having had encephalopathy that produces delirium, forgetting birthday at 38, incapable of forming simple sentences, having no circadian rhythm so you don't sleep, stopped sweating, don't know where you are and incapable of recognizing your own reflection off the driver side window while you're driving, can't tell left from right lane which becomes a guessing game at 55 mph. Getting lost in the produce section. It's only been debilitating and now drained my finances, so I can't even choose to eat the foods that my brain needs to hobble along. Strengthening comes from resources and manageable conditions. I don't think anyone that has had these experiences personally or the one's having to sacrifice their time and resources to care for someone would ever say it's strengthening. Neurodegenerative diseases are beyond debilitating like ALS, Parkinson's, Alzheimer's (early-onset 40s), CTE (only diagnosable post mortem), Autoimmune diseases like Lupus, RA, MS, autoimmune encephalopathy your brain destroys your brain cells losing comforting memories. Also, I got to watch a coworker who was 21 shrivel up and die of cancer b/c they like dumping pollutants everywhere in our soil. Their is no strength in that. It's horrifying for all that have to deal with this. Strengthening sounds like a t-shirt slogan or bumper sticker or a walk for some rich a**hole. It's weakening is the appropriate response.

    • @sherra-sama
      @sherra-sama 7 หลายเดือนก่อน +4

      @@boynamedsue55able Okay, but that was my experience, and I'm not speaking in absolutes. I said "can" be. I'm perfectly familiar with the other ways it can go too, but thanks for calling me an a**hole over my own condition.

    • @boynamedsue55able
      @boynamedsue55able 7 หลายเดือนก่อน

      @@sherra-sama You own some cancer institute?

  • @DDReed-y1i
    @DDReed-y1i 4 หลายเดือนก่อน +6

    MS at 35. 75 now and still here!

  • @SaelkieQ-sh6zz
    @SaelkieQ-sh6zz 6 หลายเดือนก่อน +6

    Epilepsy. Five years ago they removed my right temporal lobe. The seizures are greatly reduced. However, my life was changed beyond recognition. I'm not sure I will recover from the grief of all the losses... including my marriage to the love of my life. He says I am no longer the person he married.

  • @serenasmith7885
    @serenasmith7885 7 หลายเดือนก่อน +54

    Please dont blur out the surgical procedures. Thats why we watch these videos. 😢

    • @sparkythancztwise
      @sparkythancztwise 7 หลายเดือนก่อน +10

      Speak for yourself only please.
      That is most definitely *not* "why" I do.
      And it's a reasonable speculation that a majority of viewers do not watch for that reason, but for other content, and, that a majority would be uncomfortable (at the least) with that being fully depicted. I don't claim to know that as a factual statement though.

    • @kimsordyl
      @kimsordyl 7 หลายเดือนก่อน +4

      Why would they show it? This is not intended as medical education. Yt has a ton of “unblurred” sx vids.

    • @tabby73
      @tabby73 6 หลายเดือนก่อน +2

      I don't watch it for surgery images

    • @michellekirkendall5153
      @michellekirkendall5153 4 วันที่ผ่านมา

      They do that because YT won't allow it! Please at least try to use your brain for something.

  • @RachelJayne92
    @RachelJayne92 7 หลายเดือนก่อน +14

    I have ms, so can relate to a lot of this. This documentary had me crying, brain diseases are horrendous.

  • @BB-wh1nr
    @BB-wh1nr 6 หลายเดือนก่อน +6

    Amazing documentary 🤗 well explained. Was lovely to hear from the patients, their families, and the doctors. Gives a well rounded appreciation of what everyone is going through as well as giving a scientific perspective.
    The "why not me" got me. Wow. How 3 words can weigh so much.
    Sending everyone who is suffering so much love, their caregivers love, and all the doctors who work so hard love as well 🤗

  • @SaelkieQ-sh6zz
    @SaelkieQ-sh6zz 6 หลายเดือนก่อน +2

    Thank you for showing the world some of what life is like living with a broken brain... Much gratitude.

  • @ragapple1mark895
    @ragapple1mark895 7 หลายเดือนก่อน +10

    MS warrior here

  • @baraahhamdi8533
    @baraahhamdi8533 7 หลายเดือนก่อน +2

    praying for all of you to live better life that u deserve

  • @Applemaybay
    @Applemaybay 6 หลายเดือนก่อน +2

    Epilepsy warrior here I also have cerebral palsy and a vision impairment amongst a lot of other things that I have going on that don’t effect me every day so much

  • @GinxHorne
    @GinxHorne 7 หลายเดือนก่อน +24

    @endevrdocs Please do not blur out the scenes. A warning could be put at the start. This is an educational video and should be open for full information.

    • @sparkythancztwise
      @sparkythancztwise 7 หลายเดือนก่อน +3

      The video's educational purpose is to present other related content for another reason than to which you apparently allude. If you want to see and learn about that, there are more appropriate places to do so.

    • @tabby73
      @tabby73 6 หลายเดือนก่อน

      I didn't watch this excellent docu to watch images of surgical procedures. Didn't even know there would be any.

    • @michellekirkendall5153
      @michellekirkendall5153 4 วันที่ผ่านมา

      It will go against the YT guidelines. Adults are not the only ones who watch TH-cam. Find the documentary where it is not blurred.

  • @roseagaatsz8403
    @roseagaatsz8403 7 หลายเดือนก่อน +8

    Sending prayers to All 🙏❤️

  • @faithsmit6839
    @faithsmit6839 7 หลายเดือนก่อน +10

    Fascinating documentary. ENDEVRDocs I would love if you'd consider complicated long-term sleep disorders that are genetic, how they affect daily life, possible treatments, etc. I believe the US system just places the sufferer on sleep meds but does not look for the cause or real solutions. It's just looked at as a drug seeking mental issue. 😢

    • @ENDEVRDocs
      @ENDEVRDocs  7 หลายเดือนก่อน +4

      Thank you for the suggestion!

    • @hildiane21
      @hildiane21 6 หลายเดือนก่อน +4

      As someone who has Narcolepsy with Cataplexy, I second this!!!

  • @tracyjohnson3496
    @tracyjohnson3496 7 หลายเดือนก่อน +18

    Why do they blur the surgery?
    I HATE THAT!

    • @sparkythancztwise
      @sparkythancztwise 7 หลายเดือนก่อน +1

      Then go watch that kind of thing elsewhere.

    • @sparkythancztwise
      @sparkythancztwise 7 หลายเดือนก่อน +3

      "Why," you ask? Very likely because it's not relevant to the purpose of the documentary, and, because depicting that kind of content is unsettling or disturbing for other viewers who didn't come here for watching *that.*

  • @nickim6571
    @nickim6571 7 หลายเดือนก่อน +6

    I would definitely get tested for any genetic disease my parent had, and I would have my tubes tied if I was a carrier.

  • @aprilfavel1273
    @aprilfavel1273 7 หลายเดือนก่อน +6

    I seen a documentary about a woman who uses bee stings to control her movements

    • @chinookvalley
      @chinookvalley 7 หลายเดือนก่อน

      If you try to use Nature to cure your ills, you will be labeled a trouble-maker. I had MRSA that my doKtors could NOT cure. I was getting sicker and sicker. I told them I was going to use raw, local honey on it. OH HORROR! "You can't do that! We won't be responsible for the outcome. You don't know what you are doing! Are you crazy? " These were things my doks actually said. Within 2 weeks the MRSA was gone. Those doktors would no longer see me.

  • @lourdesgonzales2613
    @lourdesgonzales2613 6 หลายเดือนก่อน +1

    A Neurologist in London England is worth to watch.

  • @nunyabidness1962
    @nunyabidness1962 7 หลายเดือนก่อน +4

    all this info should be free and not dominated by commercials

    • @boynamedsue55able
      @boynamedsue55able 7 หลายเดือนก่อน

      It is if you have Brave Browser. Just download and switch and enjoy your new lease on life and extra free time. At this moment, Ads blocked 1,266,091 bandwidth saved 19.86 GB 17.6 hours of 'commercials' never watched. They said by not paying us for our personal data which is equivalent to more value than oil, that then we get in exchange no privacy, but at least free media. So why let them double or triple dip?

  • @postulatedspace
    @postulatedspace 7 หลายเดือนก่อน +11

    Stop blur out images. Very annoying

    • @ENDEVRDocs
      @ENDEVRDocs  7 หลายเดือนก่อน +5

      If you like to see images of a
      open brain surgery, I suggest visiting your local anatomical museum. It’s very interesting and worth visiting. And the blurs: a YT requirement as some viewers find it disturbing. And that’s okay.

    • @postulatedspace
      @postulatedspace 7 หลายเดือนก่อน

      @@ENDEVRDocs You are an obnoxious person. Just say YT requires and i would understand it. Visit local anatomical musseum? You are rude.

    • @TerresaFerguson
      @TerresaFerguson 6 หลายเดือนก่อน +1

      Agreed!

    • @TerresaFerguson
      @TerresaFerguson 6 หลายเดือนก่อน +2

      Stop blurring!

  • @KarsonsChannel
    @KarsonsChannel 7 หลายเดือนก่อน +4

    What was causing Brian’s seizures? What was the abnormal tissue called?

  • @mustwereallydothis
    @mustwereallydothis 6 หลายเดือนก่อน +1

    The full shaved look suits Brian very nicely

  • @MariaMariaLuZmikly
    @MariaMariaLuZmikly 6 หลายเดือนก่อน +1

    Was for very little I haven’t end up like Cinthia . It’s absurd that doctors some don’t see the beginning of the symptoms and just end the purposefully administering the wrong medications .
    Doesn’t classify as doctors they classify as butchers .

  • @francesfriesel6477
    @francesfriesel6477 7 หลายเดือนก่อน +4

    Exactly, why not me?

  • @headerahelix
    @headerahelix 7 หลายเดือนก่อน +5

    Sorry, but I'd rather have mental illness that can be fixed or at least managed than a degenerative brain disease. I suppose him saying that was just a means to cope.

  • @jaxbutterfly9186
    @jaxbutterfly9186 7 หลายเดือนก่อน +1

    Awesome tie.

  • @logicrealitytruth
    @logicrealitytruth 7 หลายเดือนก่อน +8

    Many people with Parkinson’s diagnoses actually have some vector borne disease like Neurological Lyme. Some have recovered using Rife or Function Generator technology.

  • @millisagable3018
    @millisagable3018 7 หลายเดือนก่อน +9

    My step mom has epilepsy she has her weed medical card and her smoking weed basically made it go away.

  • @tabby73
    @tabby73 6 หลายเดือนก่อน +1

    How old is this documentary? I didn't see any smartphones lol.

  • @JulyFourth1776
    @JulyFourth1776 7 หลายเดือนก่อน +4

    I'm a neurosurgeon

  • @ianriggs
    @ianriggs 7 หลายเดือนก่อน +1

    That girl about 45 minutes in is beautiful

  • @marietaof
    @marietaof 7 หลายเดือนก่อน +1

    What cause broken brain? And they are still young.

  • @nunyabidness1962
    @nunyabidness1962 7 หลายเดือนก่อน +1

    I hear and see the experience of the sufferes and then see a commercial for pillowie soft toilet paper. That's what this is all about. I pray for the sufferers but I see the commercialness.

    • @boynamedsue55able
      @boynamedsue55able 7 หลายเดือนก่อน

      It is if you have Brave Browser. Just download and switch and enjoy your new lease on life and extra free time. At this moment, Ads blocked 1,266,091 bandwidth saved 19.86 GB 17.6 hours of 'commercials' never watched. They said by not paying us for our personal data which is equivalent to more value than oil, that then we get in exchange no privacy, but at least free media. So why let them double or triple dip?

  • @ayasreviewsandtoycolection7148
    @ayasreviewsandtoycolection7148 7 หลายเดือนก่อน +19

    Why can't they try and use either CBD or THC to try and help those with Parkinson's disease??!!

    • @MrDutchmarshal
      @MrDutchmarshal 7 หลายเดือนก่อน +29

      I know some people who tried it. It's far from a miracle cure and doesn't help as much as you would think. The brain and body are very complex.

    • @ianriggs
      @ianriggs 7 หลายเดือนก่อน +8

      ​@@MrDutchmarshalalso really depends on the person. Might be a good thing to try but like other medications it may not help or even make things worse for certain people 🤷. I'm glad it's being studied as a medication more commonly now tho

    • @imalexmorningstar
      @imalexmorningstar 7 หลายเดือนก่อน +10

      Lmao you really think they haven’t?

    • @MsFireboy2
      @MsFireboy2 7 หลายเดือนก่อน

      Deep Brain stimulation an option here?

    • @kimratcliff3279
      @kimratcliff3279 7 หลายเดือนก่อน

      My father died from Parkinson's, and no he never did. ​@@imalexmorningstar

  • @RealEyesRealizeRealLies1
    @RealEyesRealizeRealLies1 7 หลายเดือนก่อน +5

    Do the carnivore diet and prolonged fasting. After 72 hours of not eating you are at the peak of autophagy in the brain!

    • @late_apexx
      @late_apexx 6 หลายเดือนก่อน +1

      I'm half way thru the video right now but Ive heard no mention yet of keto for treatment of seizures, unless I missed that part. There's alot of data to show it can help

  • @forestgreen916
    @forestgreen916 6 หลายเดือนก่อน +1

    ( : it is what it is : )

  • @Novastar.SaberCombat
    @Novastar.SaberCombat 7 หลายเดือนก่อน +2

    It is what it is. There are eight billion people on the planet. The majority barely have enough money to live, and definitely won't be getting a documentary done about 'em. Do whatcha can with whatcha got for the hours you have remaining. After that, ya don't gotta do ANYTHING! :) And that is a good thing. Myself, I literally (heh) can't wait for EOY 2026.

  • @juliejustus6878
    @juliejustus6878 6 หลายเดือนก่อน +1

    Don't they allow medical marijuana there?

  • @KalakoFala-vy9ry
    @KalakoFala-vy9ry 7 หลายเดือนก่อน +11

    My heart goes out to all those suffering. Endevr, you should be ashamed of your journalism. Not one attempt to explore other causes and treatments. The singing class? That's called vagal stimulation. Profound healing effects. The woman who calms after having a cigarette? Read up on the therapeutic benefits of nicotine. No exploring infectious and other toxicant possibilities? For Alzheimer's, look at the work of Dale Bredesen. He not only treats but makes significant improvements in his patients. Stop living in the past Endevr. Unsubscribed.

    • @ENDEVRDocs
      @ENDEVRDocs  7 หลายเดือนก่อน +22

      This is one documentary 52 minutes long that takes time with a few of the millions afflicted and explores some, certainly not all aspects of these complex diseases. We are not ashamed of the journalism of this documentary.

    • @jeannined7532
      @jeannined7532 7 หลายเดือนก่อน +4

      Agree with you 100%

    • @BobDeGuerre
      @BobDeGuerre 7 หลายเดือนก่อน +6

      Tantrum much?

    • @sparkythancztwise
      @sparkythancztwise 7 หลายเดือนก่อน +3

      I'm subscribing because I just saw this comment.
      You could have shared useful information without the scathing attempts at shaming and insulting.
      That is an embarrassment on your character, not on their delivery of service.

    • @sparkythancztwise
      @sparkythancztwise 7 หลายเดือนก่อน +2

      literally hadn't thought to subscribe before, I saw another doc they did that was amazing and important yet deeply upsetting (not through fault of theirs), but have subscribed now (thbbtp 😆😂)

  • @robertwilson2767
    @robertwilson2767 7 หลายเดือนก่อน +4

    ivermectin ,fenbendazole, animal wormers, , cannabis indica,, and mostly organic carnivore 18/6 ,, huge help ,, dr simon yu ,, royal rife ,, hulda clark ,,

  • @mikewright3530
    @mikewright3530 3 หลายเดือนก่อน +1

    My mom is getting hurt can you help save her

  • @mikewright3530
    @mikewright3530 3 หลายเดือนก่อน +1

    This is Luke Aaron Wixson can you please save her. She's my mom Lisa Kaye Wright

  • @michellekirkendall5153
    @michellekirkendall5153 4 วันที่ผ่านมา

    To everyone not wanting them to blur the images, they do it for a reason. YT will not allow certain things to be shown without the video going against the guidelines. It really is something that is not for everyone. This video did originate from somewhere. Look on that site to see the full video without it being blurred. At least try and use your brain, no pun intended.