I too am a photographer and was diagnosed with the same thing back in September. I just had the surgery last week, I’m so grateful to have my life back.
Oh Jesse. I am so amazed by your attitude and calmness in the face of this challenge. I know exactly how it is to have your health slowly decline and to rationalize that it must be this, that, or the other thing. And to go down the Dr Google rabbit hole. Not glad that this is a pituitary tumor, but as opposed to it actually being MS, I think it is an easier hand you have to play, with much greater likelihood of 100% recovery. I got chills when you spoke about Tim. That was a beautiful thing he did, and it was a beautiful gift you gave his family using your craft to preserve memories for his family, even with the physical obstacles you were working through. Even if I didn't know you as a photographer, I'd still know it by your description of your vision issues as whites being blown out and everything contrasty. The fact that you know your histogram so well you can basically do your work half-blind is indicative of your skill level. I can't wait for you to have regained your health and be able to see you creating new wonderful photos.
Watching with great interest, I just turned 70, live in London UK and like you, have had problems with a cyst in my jaw (around impacted wisdom tooth), then flare-ups of pain and swelling in that lower left side of my mouth ever since, diagnosed as osteomyelitis/osteonecrosis likely due to the several years I had been taking bisphosphonates (alendronate, ibandronate) for osteoporosis, which in turn was due to sudden menopause brought on my losing my ovaries, again due to cysts of different kinds! The pituitary macroadenoma was spotted as an incidental finding on a scan I had a few months back of my troublesome jaw....then I was sent in a hurry for a dedicated pituitary MRI, which turned up a similar kind of tumour to the one you are dealing with. Will keep you posted, praying for you! Note that this trouble popped up, just as I was about to start in a job I was really wanting to get into.....hoping and praying that I can still get into it, and you will also be restored in your professional and personal life!
Appreciate your courage and vulnerability in sharing your story, Jesse, and the divine intersection with Timmy as his came to an earthly end. 🩵 love that you see the beauty in that through your own struggles. Hoping they’ll be able to expedite your surgery and get you on the road to recovery and back to doing what you love so very soon. Love you guys and we’ll be watching for part 2. 🩵🧡
Well done on your video Jesse! Thank you for explaining everything that led up to your diagnosis. This video will absolutely help someone else who may be struggling with an undiagnosed health issue. You have taught me the importance of paying attention to your body and not ignoring symptoms that may be a problem. It's so easy to blow that stuff off until it affects something really crucial like your vision. I know you will get through this and thrive in your photography career. You are so talented and that's rather rare. I look forward to seeing you soldier on and do your thing. You are a one-in-a-million special person.❤️💐
Thank you so much for sharing your story. I was diagnosed with a pituitary tumor about a month ago. I had a lot of the same symptoms you described. I at least know I’m not alone.
I had the same problem, I had the operation 12 years ago and have been fine ever since, I live in Canada so everything was free of charge. Hope everything goes smoothly for you.
Tim was a Earth Angel and Your story is Beautiful and blessed The Good lord puts us through struggles sometimes and we don't know why.... But they're are usually Beautiful lessons we learn from the School of Life were living in right now
I already know that I have a growth on my pituitary gland and my adrenal gland. My memory is getting worse by every day that passes. I also get migraines that are basically in my sinus . I have been napping too (didn’t used to). I was afraid I was getting dementia but now I’m almost hoping that it’s the growth on my pituitary gland. Saving this video
Prayers for you. I've been dealing with this tumor since 2018. All the traditional doctors want to do is push cabergoline on you and it made me so sick and i felt like death for over a year the side effects never got better. I've been untreated for over 3-4 years now. Kind of got tired of wasting money at Dr. visits that were going nowhere. And now im searching for any answers any solutions to treat my body without cabergoline or surgery. I'm 34 never had a child and now i havent had a cycle in 6+ years.. the doctors dont seem to care though. Considering acupuncture and a complete change of diet.
I am on my kids TH-cam account right now but literally I feel like you’re describing my entire year right now down to when it started. I’m currently trying to get diagnosed and have a brain MRI next week. I’m a dance teacher and the vision/hearing issues have literally killed me. I feel you and see you my friend. I seriously hope you keep advocating for yourself and get everything you need.
I'm feeling the same issues...I had it like 7 yesterday. Finally got the tumor surgery done last week. I'm in recovery but feeling the issues your taking about
Omg, the more I read about the symptoms this condition could bring, the more things click in… I’ve been experiencing all of the above for a couple years now but what’s throwing me off is that I’ve been experiencing changes in my vision, they’re temporary but keep coming back (hemianopsia). Doctors keep telling me they’re migraines since I’m young and refuse to do any tests. I have never heard people losing their vision due to migraines and sincerely, it’s scary, so I’m heading out of the country to get private care to get as many tests as possible to get to the root of the problem. I hope all the other symptoms are just coincidental and that it’s only migraines, if that’s the case, I’ll take the diagnosis but at least I tried my best to look for help.
My ex husband was diagnosed with a Macro pituitary Benign Tumor… Prior to his diagnosis, he would have severe headaches, aggressive and bouts of Rage. The pituitary tumor was discovered by having an eye exam. He didn’t have any side vision. He had his pituitary gland totally removed… He needs to take human growth hormone, testosterone and levothyroxine for the rest of his life.. Sadly, his personality never recovered. He is Not the same person who he was prior to about 5 years before. Sadly, it caused a Divorce and everyone involved is having a difficult time with his personality. None of this is his fault. There’s not enough information about dealing with permanent brain damage from Pituitary Tumors….. Very very sad 😢
My friend has had 2 pituitary tumors removed @ Emory University Hospital in Atlanta. One happened then 10 yrs later it came back She had surgery again And is thriving well again ❤❤❤❤❤❤
It just started with being tired. That in combination with brain fog and having trouble remembering things. The headaches didn't start until about a month before getting diagnosed. The headaches came on in combination with vision issues. Today it's extreme fatigue, brain fog, memory issues, 24/7 burning headaches and pressure in my head and peripheral vision loss and other vision issues with colour and light.
I was just diagnosed with the same tumor and will have surgery this week. It is large. Sight is very blurry and have hard time walking. Headaches, etc I figured I had a tumor two weeks ago but laughed it off. Before long it was so bad I was an er and quickly put me in with neuro surgeons.i will up date after surgery Frank Kollar, 77 years
I was diagnosed with the same thing two years ago. Keep your head up, things get better and you’ll have your life back soon. If your testosterone doesn’t come back look into TRT. Feel free to reach out if you have any questions along the way!
My pituitary gland has shrung in size about 2 years ago...I'm going thru the same as u my jaw hurts can't see properly sweating badly every day..I'm from England so we only have NHS.. I told doctors about all my simtums....thay said its all in my head.. I'm loosing the will to live becouse of how sick I feel.....sometimes I wish I lived in America 🇺🇸
I have a pituatary ratheclef cyst.. i had it removed ovet 20 years ago its come back as 1.4 cm still havent had it removed. Thankfully its not has difficult as it was back then
I was diagnosed with a Rathyke in March this year it's on 7mm , endocrinologist isn't very worried and I'm basically just told off you go . I might turn the mri down next year as if it shrinks and can grown whenever it likes I don't see the point yet , might wait another couple of years for next mri and just keep seeing optician regularly. I'm in uk ,hardly anyone knows what a rathyke is here ❤
I have had impossible miracles, lots of them. It's like heaven knows. The question is if heaven can do all of that, why not just fix me? Good question. I've thought about it a lot. I finally surrendered.
Eat carnivore diet. Forget about all coming from plants. Tons of reason to do that. At least you will be much more healthier and much better nutrished. Eat lot of animal fat and proteins. This will help balance your hormones, repair your body. And see some carivore videos and discussions under these videos.
Thank you for the suggestion. I am already on the carnivore diet and it's the best I've ever felt, haha minus the tumour. I'm going to do a video about my diet.
@JesseSchpakowski please do 🙏 I would love to hear more about it. Seems a lot of people are having good results with this diet. I'm glad to have found your videos.
@@joannadavis6716Sorry to disappoint you but nope. I avoided that stuff at all costs. My tumour is not cancerous and this type of tumour grows very slow. Given its size I’ve probably had it for most of if not my entire adult life. Only recently I’ve started experiencing symptoms which led to the diagnosis.
It sucks but it’s going to be okay. Mine was the size of an average strawberry. It was a complex and difficult surgery but it all worked out in the end. If you’re going to get a brain tumour this is one of the better ones to get. The worst part for me was the few days immediately after surgery. Once you’re through that it’s just a matter of time before you’re all healed up and feeling normal again. I’ll have to do some update videos now that I’m on the other side of it.
I too am a photographer and was diagnosed with the same thing back in September. I just had the surgery last week, I’m so grateful to have my life back.
I'm so happy for you. I can't wait until this is over. That was a long wait for surgery hey?
I'm so glad the surgery was a success! Wishing you continued health in the future ❤️
Did you need chemotherapy?
How different does life feel I've had it over 17 years. Surgery in 2025
My sis just got diagnosed 1.5cm
Massive prayers for you Jesse
Thank you.
Oh Jesse. I am so amazed by your attitude and calmness in the face of this challenge. I know exactly how it is to have your health slowly decline and to rationalize that it must be this, that, or the other thing. And to go down the Dr Google rabbit hole. Not glad that this is a pituitary tumor, but as opposed to it actually being MS, I think it is an easier hand you have to play, with much greater likelihood of 100% recovery. I got chills when you spoke about Tim. That was a beautiful thing he did, and it was a beautiful gift you gave his family using your craft to preserve memories for his family, even with the physical obstacles you were working through. Even if I didn't know you as a photographer, I'd still know it by your description of your vision issues as whites being blown out and everything contrasty. The fact that you know your histogram so well you can basically do your work half-blind is indicative of your skill level. I can't wait for you to have regained your health and be able to see you creating new wonderful photos.
Watching with great interest, I just turned 70, live in London UK and like you, have had problems with a cyst in my jaw (around impacted wisdom tooth), then flare-ups of pain and swelling in that lower left side of my mouth ever since, diagnosed as osteomyelitis/osteonecrosis likely due to the several years I had been taking bisphosphonates (alendronate, ibandronate) for osteoporosis, which in turn was due to sudden menopause brought on my losing my ovaries, again due to cysts of different kinds! The pituitary macroadenoma was spotted as an incidental finding on a scan I had a few months back of my troublesome jaw....then I was sent in a hurry for a dedicated pituitary MRI, which turned up a similar kind of tumour to the one you are dealing with. Will keep you posted, praying for you! Note that this trouble popped up, just as I was about to start in a job I was really wanting to get into.....hoping and praying that I can still get into it, and you will also be restored in your professional and personal life!
Appreciate your courage and vulnerability in sharing your story, Jesse, and the divine intersection with Timmy as his came to an earthly end. 🩵 love that you see the beauty in that through your own struggles.
Hoping they’ll be able to expedite your surgery and get you on the road to recovery and back to doing what you love so very soon. Love you guys and we’ll be watching for part 2. 🩵🧡
Tim sounds like a literal angel. 😌🌸 you make wonderful videos Jesse. Sending you so much love from Maine. ❤
Thank you, Tim was definitely an angel!
Well done on your video Jesse! Thank you for explaining everything that led up to your diagnosis. This video will absolutely help someone else who may be struggling with an undiagnosed health issue. You have taught me the importance of paying attention to your body and not ignoring symptoms that may be a problem. It's so easy to blow that stuff off until it affects something really crucial like your vision. I know you will get through this and thrive in your photography career. You are so talented and that's rather rare. I look forward to seeing you soldier on and do your thing. You are a one-in-a-million special person.❤️💐
Thank you so much for sharing your story. I was diagnosed with a pituitary tumor about a month ago. I had a lot of the same symptoms you described. I at least know I’m not alone.
My prayers are with you.
Thank you.
I had the same problem, I had the operation 12 years ago and have been fine ever since, I live in Canada so everything was free of charge. Hope everything goes smoothly for you.
I’m so glad you’re fine now,’ may I ask how big it was before it was removed ?
I was diagnosed with a micro adenoma (prolactin secreting). It’s not big enough for surgical removal.
Really hoping endocrinology can fix me!
I have the same thing. I'm praying it can be fixed because my life has never been the same.
What is the latest? I'm curious because I just got diagnosed with a Prolactin pituitary adenomena. Did yours get treated?
Tim was a Earth Angel and Your story is Beautiful and blessed
The Good lord puts us through struggles sometimes and we don't know why....
But they're are usually Beautiful lessons we learn from the School of Life were living in right now
I already know that I have a growth on my pituitary gland and my adrenal gland. My memory is getting worse by every day that passes. I also get migraines that are basically in my sinus . I have been napping too (didn’t used to). I was afraid I was getting dementia but now I’m almost hoping that it’s the growth on my pituitary gland. Saving this video
Prayers for you. I've been dealing with this tumor since 2018. All the traditional doctors want to do is push cabergoline on you and it made me so sick and i felt like death for over a year the side effects never got better. I've been untreated for over 3-4 years now. Kind of got tired of wasting money at Dr. visits that were going nowhere. And now im searching for any answers any solutions to treat my body without cabergoline or surgery. I'm 34 never had a child and now i havent had a cycle in 6+ years.. the doctors dont seem to care though. Considering acupuncture and a complete change of diet.
❤0peas research carnivore diet and testimonials. There are great Dr.'s involved with this diet/lifestyle. All the best on your journey.❤
I am on my kids TH-cam account right now but literally I feel like you’re describing my entire year right now down to when it started. I’m currently trying to get diagnosed and have a brain MRI next week. I’m a dance teacher and the vision/hearing issues have literally killed me. I feel you and see you my friend. I seriously hope you keep advocating for yourself and get everything you need.
I'm sorry to hear that you're struggling as well. It's a bummer when you don't know what's up. Keep in the loop, I'm curious to hear what's up.
I'm feeling the same issues...I had it like 7 yesterday. Finally got the tumor surgery done last week. I'm in recovery but feeling the issues your taking about
Omg, the more I read about the symptoms this condition could bring, the more things click in… I’ve been experiencing all of the above for a couple years now but what’s throwing me off is that I’ve been experiencing changes in my vision, they’re temporary but keep coming back (hemianopsia). Doctors keep telling me they’re migraines since I’m young and refuse to do any tests. I have never heard people losing their vision due to migraines and sincerely, it’s scary, so I’m heading out of the country to get private care to get as many tests as possible to get to the root of the problem. I hope all the other symptoms are just coincidental and that it’s only migraines, if that’s the case, I’ll take the diagnosis but at least I tried my best to look for help.
My ex husband was diagnosed with a Macro pituitary Benign Tumor…
Prior to his diagnosis, he would have severe headaches, aggressive and bouts of Rage.
The pituitary tumor was discovered by having an eye exam. He didn’t have any side vision.
He had his pituitary gland totally removed…
He needs to take human growth hormone, testosterone and levothyroxine for the rest of his life..
Sadly, his personality never recovered. He is Not the same person who he was prior to about 5 years before.
Sadly, it caused a Divorce and everyone involved is having a difficult time with his personality. None of this is his fault.
There’s not enough information about dealing with permanent brain damage from Pituitary Tumors…..
Very very sad 😢
My friend has had 2 pituitary tumors removed @ Emory University Hospital in Atlanta.
One happened then 10 yrs later it came back
She had surgery again
And is thriving well again ❤❤❤❤❤❤
Mine is 6mm I go get mri on Friday
Did you have any other symptoms than fatigue? Like headaches, dizziness, nausea, …
It just started with being tired. That in combination with brain fog and having trouble remembering things. The headaches didn't start until about a month before getting diagnosed. The headaches came on in combination with vision issues. Today it's extreme fatigue, brain fog, memory issues, 24/7 burning headaches and pressure in my head and peripheral vision loss and other vision issues with colour and light.
I was just diagnosed with the same tumor and will have surgery this week. It is large. Sight is very blurry and have hard time walking. Headaches, etc
I figured I had a tumor two weeks ago but laughed it off. Before long it was so bad I was an er and quickly put me in with neuro surgeons.i will up date after surgery
Frank Kollar, 77 years
How many can, ? My sis just got it, 1.5cm on mri
I was diagnosed with the same thing two years ago. Keep your head up, things get better and you’ll have your life back soon. If your testosterone doesn’t come back look into TRT. Feel free to reach out if you have any questions along the way!
Did you need chemotherapy?
@@selinaakter255is not cancer
Thanks for sharing
Is there anyone whose vision get worst after surgery?
I’ve had mine since 2016
My pituitary gland has shrung in size about 2 years ago...I'm going thru the same as u my jaw hurts can't see properly sweating badly every day..I'm from England so we only have NHS.. I told doctors about all my simtums....thay said its all in my head.. I'm loosing the will to live becouse of how sick I feel.....sometimes I wish I lived in America 🇺🇸
Please read my potted history that I just shared, prayers for you and for me!
My mom is having surgery for this soon. It took almost a year for year to get a diagnosis
I'm sorry to hear about your mom. That's a long time. I think it took me about 6 months to figure out what was wrong.
I have a pituatary ratheclef cyst.. i had it removed ovet 20 years ago its come back as 1.4 cm still havent had it removed. Thankfully its not has difficult as it was back then
I was diagnosed with a Rathyke in March this year it's on 7mm , endocrinologist isn't very worried and I'm basically just told off you go . I might turn the mri down next year as if it shrinks and can grown whenever it likes I don't see the point yet , might wait another couple of years for next mri and just keep seeing optician regularly. I'm in uk ,hardly anyone knows what a rathyke is here ❤
@@JoannaTremlettmy sis just got diagnosed is like 1.5cm
@乐乐-x6n hopefully her endocrinology results are all normal and not heading towards optics. Xx
💜🙏🌻
I have had impossible miracles, lots of them. It's like heaven knows. The question is if heaven can do all of that, why not just fix me?
Good question. I've thought about it a lot. I finally surrendered.
Eat carnivore diet. Forget about all coming from plants. Tons of reason to do that. At least you will be much more healthier and much better nutrished. Eat lot of animal fat and proteins. This will help balance your hormones, repair your body. And see some carivore videos and discussions under these videos.
Thank you for the suggestion. I am already on the carnivore diet and it's the best I've ever felt, haha minus the tumour. I'm going to do a video about my diet.
@JesseSchpakowski please do 🙏 I would love to hear more about it. Seems a lot of people are having good results with this diet. I'm glad to have found your videos.
Were you vaxxed and boosted prior to your symptoms showing up? This sounds like a vaccine injury from the jabs.
@@joannadavis6716Sorry to disappoint you but nope. I avoided that stuff at all costs. My tumour is not cancerous and this type of tumour grows very slow. Given its size I’ve probably had it for most of if not my entire adult life. Only recently I’ve started experiencing symptoms which led to the diagnosis.
@@JesseSchpakowski Do you know "metabolic aproach to cancer" ? th-cam.com/video/pwhRskOPwVk/w-d-xo.html
I have just been diagnosed with a 2.4cm pituitary macroadenoma absolutely shitting myself
It sucks but it’s going to be okay. Mine was the size of an average strawberry. It was a complex and difficult surgery but it all worked out in the end. If you’re going to get a brain tumour this is one of the better ones to get. The worst part for me was the few days immediately after surgery. Once you’re through that it’s just a matter of time before you’re all healed up and feeling normal again. I’ll have to do some update videos now that I’m on the other side of it.
Mine is 15 cm surgery soon researching healing
Did you had surgery? My sis is 1.5cm
Hypothetically speaking, of course, would it be in poor taste to comment "First" before the video is even posted? Asking for a friend.
Haha I always appreciate seeing anything that comes in from you!