I Had Symptoms For YEARS! - Kirsty | Kidney Cancer | The Patient Story
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- เผยแพร่เมื่อ 7 ก.ค. 2024
- Kirsty's mysterious pain in her left side turned out to be the first sign of something far more serious. Despite repeated visits to the doctor and concerning test results, it wasn't until a fall from her bicycle led to further investigation that Kirsty discovered she had an extremely rare and aggressive form of kidney cancer, known as squamous cell carcinoma.
In this cancer vlog, Kristy recounts her journey from the initial misdiagnoses to the shocking revelation of her condition. Learn about her relentless fight, the impact on her life as a single mother of two young boys, and the importance of listening to your body when something feels wrong.
#rarecancer #kidneycancer #cancerpatient #cancersurvivor #patientstories #thepatientstory
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Video Chapters
0:00 Meet Kristy
0:54 My first symptoms of kidney cancer
3:26 What would've happened if I hadn't listened to my body
4:50 My reaction to my cancer diagnosis
6:47 My chemotherapy treatment
8:10 My chemotherapy side effects
10:08 My clinical trial experience
12:01 Parenting with cancer
14:44 We always have one more. Don't take life for granted.
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Man, every story starts with doctors blowing the patient off with "you're too young", "it's probably nothing", "drink more water" etc etc.
if doctors were as good in curing people as they are in gaslighting, nobody would be ill for more than 48 hours...
Every story? Or where the patient is a woman?
Probobly cause it's rare. However doctors are not honest and insurance company's own doctors. The early diagnosis means money spent. It's all about the money
@@sw6118 to be fair, most of these videos are by women. Perhaps because men wait until it's too late.
@@sw6118 Every story I've seen, man or woman, doctors play a very poor show. Unbelievable.
it’s so hard being sick when you’ve got kids. you’re a smart, lovely woman. i wish you all the best.
It's hard being sick when you don't have kids. Sincerely, everyone who hasn't had kids and has chronic or life limiting illness
I too have stage 4 kidney cancer. My tumor was 5lbs. Dr removed my kidney and the tumor but took no lymph nodes. I was ok for about 3 years. When the cancer spread to my lungs I went from stage 2 to stage 4.
I had 2 rounds of Interleukin 2. Which bought me another 3 years. My original oncologist gave me 6 months to a year. When I got another opinion my new oncologist, the one who got me in the Interleukin 2 trial, got me another 3 years. My wonderful Dr Treisman has kept me here for 14 years. I get cat scans every 3 months and have had infusions, chemo pills and other treatments when something stops working.
I am praying for you. You look good.
Prayers from family and friends have have helped.
Keep fighting!❤❤❤
Amen!
Omgosh how do you afford this?
Wasnt yr time.
@@winniecash1654Great insurance through my employer
Ask Jesus to heal you, 🙏 Amen. ❤
Most doctors have a big problem, they don't listen 😕 All the best to you❤
So sad!
I totally agree, doctors don't listen to people.
In my opinion they should be constantly learning, as things are always changing and evolving
Often also, they have so many patients and as human beings themselves they too have limits to their patience, but we cannot afford this from our medical team. Back in the day, doctors had a relationship on a more personal level with their patient, they MADE time for them. What we need is more competent doctors, and our government can provide incentive programs to increase our medical team capacity. And for fuck sake they should stop cutting funds to medical resources - if there is anything that needs funding it's medical and educational fields.
Just not fair. Too many young people being diagnosed with cancer that has already spread. I wonder what’s going on. I wish you and your precious sons all the very best and hope you get many many more years to make memories ❤
She's doing perfectly fine without romance scammers in her life, Dalec. go away
Vaxx
I think it's obvious what is going on, there should be some accountability for the mistakes of medical teams. Taking away one's license to treat patients should be on the table for one. For what if the next cancer patient is victim to the same level of laxness? What if you are this next patient?
what's going on is doctors don't care about you
Yep, we gaslight ourselves because that's what the doctors do to us. And they are never held accountable for their incompetence...🤬 How many people die because of this??
Many many people die due to medical negligence and incompetence. Doctors get away with murder.
Oh I so agree..
I 100% agree. Doctors studied for this, they know how to read the signs and what sort of follow-up search must be done. If they refuse to do so it can only be due to laxness, we cannot afford such behavior from our medical teams, they MUST be held accountable for their ineptitude.
Why do they always say oh you are too young, you're never too young to get it.
It's nothing to worry about because you've had it for so long ! I've heard that one. I've been ill for 3 years now, very slowly getting weaker by the day. I'm 61 and am being treated like a neurotic menopausal female. 1 doctor actually said " there's nothing wrong with you , you just think there is ". I know there is and I know I'm going to be one of the ones when they actually do find out what's wrong won't be here long. I'll get the we are so sorry, it's so rare, it doesn't usually happen to women and all the other B S comments I've already told my GP I won't want to hear. Good luck to you Kirsty and best of luck to anyone seeking medical help from the NHS system especially women of a certain age in Wales.
That's awful. So far I haven't had cancer (well, as far as we know, right?) But I ended up with very advanced osteoporosis at a youngish age, only diagnosed because my back pain had become chronic, and my husband asked for a scan. (My doctor didn't even examine me, just prescribed medical massage. To be fair, osteoporosis wasn't on my radar either, but the doctor is supposed to at least try to dig up clues, right?) After diagnosis, a new doctor said, "I just can't understand why you're taking this so seriously! It's not like you have cancer!" Maybe he was trying to calm me down (I wasn't aware I'd been panicking...I think maybe HE was, a little?) but I'm pretty sure no one responds well to being told to calm down. I've learned way more about the medical profession in the last year than I ever wanted to know, in any event, and it definitely doesn't make me look forward to getting older.
All the best to you.
Reading your account reminds me of My ex-sister-in-law. She told her doc she didn’t feel well and where it hurt (at the time). When she finally got someone to listen to her, the cancer was advanced and leapfrogged from area to area. No one should be told “it’s all in your head”. Good luck to you, keep being a pain in the a** until someone listens!
Same in USA
I understand what you are going through. If I didn’t change doctors I would be here today. My doctor kept telling me it was IBS and I didn’t have cancer. I went to another doctor, I had colon cancer and had to have 12 inches of my colon removed. We must advocate for ourselves. I’m so glad that you kept pushing for answers. You are very strong and I wish you all the best. Keep fighting and that positive attitude will help get you through. Thank you for sharing your journey and please keep us updated. Much love and blessings to you and your beautiful family.
What symtoms did you have?
@@Killaah91 I had bad stomach pains, bloating and weight loss. It was difficult for me to eat food without getting the pain. I was living on protein smoothies. Much blessings to you and your family.
@@user-oh7iv3ij5x Much love and blessings to you and your family
Same thing with my husband! We had to FIGHT to get him a colonoscopy even after he had blood in his stool because everyone said he was “too young for colon cancer”
@@blake3847 I am so glad that you fought to get him a colonoscopy. I pray all is going well with you, your husband and your family. Much blessings.
Cancer is just a horrific diagnosis, I have terminal stage 4 lung cancer,just living on borrowed time now.....I completely understand how the pain and nausea just knocks you out,it's debilitating, I'll be praying for you and your boys ❤
Consider being born again.
Acts 2:38, John 3:5
You are loved! 🤍
have you tried ivermectin?
Read Jane Mclelland’s book How to Starve Cancer
🙏🏼🙏🏼🙏🏼
It’s been my professional medical experience as an RN for more than 30
years, that the worst doctors are specialists.
The most dangerous thing you can have is a known condition, like your endometriosis, which the symptoms can be attributed to. I have lost count of the people I know, me included who have had potentially deadly illnesses missed. I am so sorry that this has happened to you. 😢
Thank you for sharing and spreading awareness. Prayers for your recovery and let’s hope for a cancer cure soon.
You are an amazing lady. Kidney cancer is a horrible cancer, I had Kidney cancer and the fear of not knowing what was the next treatment was. I also can't take codine so when the removed my kidney I had to have an epidural for pain relief. I have survived cancer and you are strong enough to beat this aswell. Always live for today as tomorrow is never guaranteed is my moto. Sending best wishes to your boys and you.
Sometimes I wonder if a man would have been taken more seriously. With women, doctors are quick to blame stress. God bless you and I pray you gain your health back, and thank you for sharing your story. You may have saved some lives.❤️
I pray you are fully cured and get to see every milestone of your boys.God bless
I really hope the boys dad is in the picture to be a part of their journeys and to support you all. Sending so much love to you and your boys ❤️
My gawd! Doctors have to listen to what people are telling them. We have the tests and technology to detect these issues.
I pray you make a recovery, it is so sad.
You are amazing and courageous. Thank you for your message.
Your boys are lucky to have you for a mum and whatever happens, they're going to carry you in their hearts forever.
Keep fighting - I know you will 🩷
I needed this so badly. Her strength is so inspiring. Prayers for the best treatments and healing.
You are not alone. Your boys are sweet and kind just like their mum. Please post when you’re up to it. I will keep you and your boys in my thoughts. I’m so glad you shared your story.
My uncle still alive and kicking after 15 years from kidney cancer
Best to you. Your boys are beautiful. You're obviously a wonderful mom/mum! 🌼
When the boys ask how long will we have you. Tell them you are not sure but you promise to tell them when the time is close. Then they can relax and trust you. They don’t need to know the number of days until you are really close to the end.
Thank you for sharing, praying you will beat this cancer. 🙏 canada 🇨🇦
When are doctors going to listen to patients and stop assuming it’s nothing 🤯
Bless you dear lady, I also have kidney cancer but it’s the most common type. I find out in December 2023, started treatment in January 2024. I lost tons of weight as well, but first indication was anemia…. Doctor was just treating anemia for 6 months…then I asked for something to be done to determine why I had anemia and unexplained weight loss. The ct scan showed stage 4 cancer, kidney, lungs and liver. I’ve been on keytruda for 6 months and a chemo pill, but Dr has taken me off that pill due to it causing high BP. My hemoglobin is much better and thankfully they have never tried IV chemotherapy yet. I’m with you on just living life, he told.d me one year without treatment maybe two years with treatment, I’m just going to live my life to the fullest while I can ……prayers for you from USA ❤️❤️❤️
Look into Essiac tea.
God bless you 🙏. I'm so sorry this has happened to you. Prayers from Australia.
Heartfelt story told so well with grace and a smile during such an earth shattering disruption in your own life. That may well be your superpower! Good thoughts sent your way.
You have been badly let down. I just hope the boys have a secure future in the pipeline without mummy.
Wishing you all the luck in the world to be here for your boys for many many years to come X
There are no words. Your wisdom... 🫂🕊️🌹🙏🏼🙏🏼
I support and give all my positive thoughts to those who have a deep desire to live. I feel deep down you WILL come out on top for now...... POSITIVITY is not a joke. It can influence your health and well being. stay positive.
I’m so sorry darling, it must be incredibly scary. You are an amazing mother, and an amazing person.
They found my kidney mass last year after I started passing blood. It's only small and I'm having MRI's every six months because both my kidneys are covered in cysts, they were going to do a biopsy but can't get near it without doing damage and having to remove it anyway and the other one is bad now because of repeated infections. Sending you lots of hugs to you. ❤❤
Thank you for sharing. I am praying for your recovery. Stay strong.
Your advice at the end of the video is wonderful, for all of us! Best wishes to you, thanks for sharing.
I’m so sorry to hear this news. You should try to get a 2nd opinion and/ or switch to Royal Marsden or a top notch hospital that specializes in rare forms of cancer or kidney cancer. It may get you more time with your children
You are one brave lady. Would love to follow your story. X
I’m so so sorry! Keep fighting. Prayers for your healing. 🙏🙏
Thank you for sharing your experience ❤
You are such a precious person. Praying for you and your boys! ❤
Thank you for sharing and blessings
Bless you and your sons.
Thank you. Lovely soul. Wish you the best of life.
Powerful story powerful message. I'm glad to have heard your story. I wish you all the best!
Kirsty thank you for your story. Very informative. You are gorgeous!
Bless you, lovely lady. Thank you for sharing your story ❤
I pray that you have a lot more time with your boys and that your body heals after your treatment finishes and you live on for many more years 🙏🧡
You darling, stay strong, sending love to you and your beautiful boys. ❤️
You are a lovely person. Thank you for this video. You’ve described side effects so well (yes, they differ for each person, but what you said will be very helpful to anyone taking that type of chemo). I so hope you live to old age, despite the prognosis. I wish you everything good in life.
Thank you for sharing. Sending you light and positivity to help you through this difficult time. Lean into Gratitude, I find its the best medicine for my mental health. ❤
thankyou for sharing your story ❤
God bless you. Thanks for sharing and I wish you peace and the best possible future.
THANK YOU 💗
So, so sad. I am really sorry to hear. Must be terrifying to live. Hoping for the best and sending you a lot of prayers❤❤❤
Dear lady , I fully understand your situation. I pray for your recovery and the happiness of your boys. Keep your spirit up ! God bless
Research the Joe Tippins protocol. I’m not a doctor or a medical person but I read his story recently. I’m not recommending this but it’s something worth reading about. He’s from the United States.
Again, you're too young. When are you too young to get cancer? Never.
Oh Kirsty, I'm so sorry this happened to you. My heart goes out to you and your boys. I pray for you and your family. You are brave and strong with a good head on your shoulders, take care I hope you have good people to lean on.💔🙏
Sending love and prayers for you and your boys 🙏🙏🙏
Sending love and healing prayers. ❤❤❤
You are an extraordinary woman! I'm so sorry that you are going through this ordeal. I wish you to be pain free and able to spend as much time as possible with your boys.
My remaining sibling has Leukemia and has been given hopefully the summer to live then he'll be in hospice. He and his wife are also celebrating their 50th anniversary this month. Sending warm healing hugs 🫂🫂🫂🫂😊💗🇨🇦
I’m so sorry 🙏🏽❤️
All love to you and your little family darling...pisses me off though tbh, another overlook and being blown out with other reasons when you can't even get an appointment with the GP half the time!! Sending as many hugs as my heart wants to give you right now. xx
Hope all goes well . Your a wonderful person I’ll pray for you 🙏🏻❤️
Thank you for sharing your journey, sending much love and best wishes your way, you have such grace & dignity , your boys are blessed to have such a wonderful mum, praying you have a full recovery back to good health & happiness with your lovely boys🙏🏼❤️
My mom was stage 4 melanoma, she is 20+ years cured. God bless dear lady. My Grandma was as healthy as can be at 94 died from a car accident. Then my MIL lay about wanting to die. Refusing to fight. Life is a strange journey.
Praying for you❤
God Bless you and heal you🙏🙏🙏
Best wishes dear! God bless! Feel better
Beautiful thank u for sharing 🙏🏾
Wishing you all the luck in the world going forward ❤
I had stage 2 clear cell renal cell carcinoma found on an mri of my bad back. Found in Sept 2023, nephrectomy in Nov and now monitoring kidney function. Also diagnosed with Addison’s disease following surgery ugh
Such sweet boys.
❤❤❤ Sending positivity and strength. ❤❤
Warm Hugs,my dear
You are a beautiful Lady
🙏 ❤ 🙏
For You
Always & Forever
Bless you .... I lost my Dad to cancer 39 years ago and dya know what nothing's improved within the NHS...There's more people than ever now with some form of cancer yet cancer research are getting more money from the public than ever ....As the CEO is on a 6 figure salary, chances are they're never going to pump more money into cancer research when they have big wages to pay...It makes me so angry !! .... Keep fighting the good fight...You have a great mind set, and that helps.
There are some wonderful non-conventional treatments out there that could help supplement the treatment you are getting now. It is worth doing your own research on. Your advice is something we all need to put into action. I send you love and wish you the very best. 🤗❤️
God bless you ❤️🙏
💜🙏 Blessings to you.
July 2nd will be one year since my father passed away from cancer Multiple Myeloma and he had no symptoms...he spiked a fever and he was hard to wake so i called an ambulance and my amazing father passed away 12 hours later! I didn't even know that could happen..but he was an alcoholic and they said if he wasn't drunk everyday he would have felt something was wrong! I am just completely heart broken and so angry! 💔 😭 Don't take one day for granted because i did..I thought i had many more years with my beloved Father..he wasn't an old man and i thought id lose him to alcohol or Cirrhosis 😢
Don’t beat yourself up, you did all you could and was a good daughter; there’s just so much that we can do
I mean this in the most loving way, passing quickly the way he did was less painful and traumatic for all of you. Liver failure and Cirrhosis would've been worse, although you would've had more time to prepare. I'm so sorry you lost your papa.
I'm so sorry. But think what laid ahead for him. Not a fine life. Rejoice that he went peacefully and with no pain. That's a treasure!
I’m in Australia and lost my best friend Meredith to large cell non Hodgkin lymphoma in April 1997 aged just 34 leaving 2 little girls, one 13 and the other one just 2. She had so much treatment, mainly for her girls, she never wanted to leave them. She is a grandma now to two very sassy little girls who are just like her and I can see her in them but I so wish that she was there to be their partner in crime. I miss her every day of my life, my loyal, caring, strong, funny, resilient, talented and creative and giving darling girl. She fought hard for 7 yrs for those girls. Your children are your loves and your reason for fighting. I wish those girls knew their wonderful grandma and what type of person she was, but her daughter Cass tells them about her. My daughter was stillborn 4 months after she died and I know that she is caring for my baby until I get there. I send you so much love from Castlemaine in central Victoria Australia. May you be protected by love always ❤️
Peace be with you 🙏
I can not imagine.
Best wishes for a treatments that is a cure! Your boys are adorable. I hope you have gotten several opinions.
You shouldn't be thinking of leaving your kids behind and dying, you should be living to see them grown up. I'm furious at the amount of times doctors let people down!!!
Your a star,I wish you all the ❤❤
NHS wow they just fob people off , be your own advocate!
My sister in law passed away from kidney cancer 10 years ago she was 46.good luck to you,🎉
This comment does not help in any way? 😳
Geeze. Right?? 😳@@Killaah91
They can remove the cancerous kidney and be ok since you can live just one kidney? You talked about it with such composure ❤ Prayers that the treatments work for you.
Please get another opinion about the surgery and treatment. All prayers for your recovery. ❤
What makes me upset when doctors tell you that every thing is fine, then after many months you go back the doctors get all worried.
The one upside to growing old is that it reduces and eventually eliminates the risk of dying young.
Praying you’ll kick this cancer’s arse!
You are very courageous. Thanks so much for sharing. Stay strong and continue your treatments.
Try all you can to get to a top hospital that specializes in treating cancer. Doctors can only treat what and how they know but others know way more. Keep going, find the best - usually teaching hospitals. Homeopathic methods combined with western medicine, try everything.❤
This is heartbreaking I can't believe the doctors didn't know the signs of kidney issues right away, especially the lower back pain, etc.! I know how a lot of doctors on the NHS are quite incompetent. This would have never happened in Hong Kong & the US. It makes a difference only having a BA in medicine, doctors not getting paid a lot, and an overwhelmed NHS (it takes all of that). I had to use the private system almost the entire time for my condition when I lived in London. The only good thing was that my medication was free on the NHS and that included supplements - this was a big plus but the only one. And the A&E being free (technically not free because of tax but still) is a plus but the incompetence is staggering sometimes. She is a STRONG woman - fighting cancer and being a single mother I just can't even fathom this. I hope she can improve or at least be as comfortable as she can be.
Hi my name is Andrea from Ireland not far from belfast I have ovarian cancer and cancer on the surface of the stomach and a rare cancer in the stomach called neuroendocrine tumour just finished a round chemotherapy got scan done see what the next step is they have already to me its just to prolong life have to see palliative care about my pain medication because im in a lot of pain
So sorry to hear you so unwell, have you tried cannabis oil.
evil is too kind a word to describe the medical and pharmaceutical industries…
you have a beautiful family, please try everything to get better ❤️🩹 🍀🇦🇺