Ladies I am jumping up and down saying me too, me too. I so appreciate this channel in hearing real world experience with Addison, not just reading medical texts. Had symptoms since age 12, in 61 and since 2020 so much stress, first a blood cancer polycythemia Vera, and as of today loss of 80 lbs, unintentional and still waiting for cortisol suppression test. I’m praying for the rx for steroids? The medical! Ahhh! Blame gut, blame mental, blame depression, always excuses and judgement. They put me on disability in 2001 saying bipolar 4-8 meds for 27 years! I went for a new med clinical trial, and required tapering off psych meds. Had never been mental illness unresolved childhood trauma so when I got off meds I began to feel the things counselors first ask about. Then the blood test whammy. Always testing thyroid but nothing else. And I’m so weak from weight loss 3 er’s in last week no one will give me steroids! So now hopefully Friday Monday I may start to feel better and find my normal on meds. Although both rare I welcomed the blood test the endocrinologist ran. Because it explains all the symptoms! I’m a warrior hippie girl, tat says NOT DONE YET… the title of book I am writing about my journey. It started about just mental aspects, now I’m think it may be series…. lol! You two really give me hope that no matter the struggle I’m alive! We need to put together a get together at some point and meet for as few days, week and start to advocate as a group to save lives and educate! You are so special and feel like kindred spirits!
Ah new friend I am glad we have given you hope...that is what this is all about. Coming together as a community to support and inspire each other...we are not alone...we can do this together...please take care
WOW! what a story!!! Thank you so much for sharing. I love that this podcast spreads the awareness for self advocacy. I truly believe I'd be dead right now if I hadn't had discovered a comorbidity that led to my AI diagnosis on my own. A great tip for your advocacy that a lot of patients may not think about that I learned about quickly, always get a copy of your doctor's dictation of every appointment. You may have to wait a week or so after every one to get it, but always wise to follow up on this. It's amazing the mistakes and omittances I've found in my records. And obtain copies of results, lab tests, radiology, etc. If something is abnormal, research the effects of it. I also learned (unfortunately slowly with this one 😩) not all doctors follow up on lab results correctly.
![เจ็บที่ยังฮัก - ม่อน วรวิทย์ [ Official Mv ] จอนนี่มิวสิค](http://i.ytimg.com/vi/KALIGSRSjFs/mqdefault.jpg)
Thank you for sharing your story. Sending prayers for happy healthy days ahead 🙏🏻🙏🏻🙏🏻
Ladies I am jumping up and down saying me too, me too. I so appreciate this channel in hearing real world experience with Addison, not just reading medical texts. Had symptoms since age 12, in 61 and since 2020 so much stress, first a blood cancer polycythemia Vera, and as of today loss of 80 lbs, unintentional and still waiting for cortisol suppression test. I’m praying for the rx for steroids? The medical! Ahhh! Blame gut, blame mental, blame depression, always excuses and judgement. They put me on disability in 2001 saying bipolar 4-8 meds for 27 years! I went for a new med clinical trial, and required tapering off psych meds. Had never been mental illness unresolved childhood trauma so when I got off meds I began to feel the things counselors first ask about. Then the blood test whammy. Always testing thyroid but nothing else. And I’m so weak from weight loss 3 er’s in last week no one will give me steroids! So now hopefully Friday Monday I may start to feel better and find my normal on meds. Although both rare I welcomed the blood test the endocrinologist ran. Because it explains all the symptoms! I’m a warrior hippie girl, tat says NOT DONE YET… the title of book I am writing about my journey. It started about just mental aspects, now I’m think it may be series…. lol! You two really give me hope that no matter the struggle I’m alive! We need to put together a get together at some point and meet for as few days, week and start to advocate as a group to save lives and educate! You are so special and feel like kindred spirits!
Ah new friend I am glad we have given you hope...that is what this is all about. Coming together as a community to support and inspire each other...we are not alone...we can do this together...please take care
WOW! what a story!!! Thank you so much for sharing. I love that this podcast spreads the awareness for self advocacy. I truly believe I'd be dead right now if I hadn't had discovered a comorbidity that led to my AI diagnosis on my own. A great tip for your advocacy that a lot of patients may not think about that I learned about quickly, always get a copy of your doctor's dictation of every appointment. You may have to wait a week or so after every one to get it, but always wise to follow up on this. It's amazing the mistakes and omittances I've found in my records. And obtain copies of results, lab tests, radiology, etc. If something is abnormal, research the effects of it. I also learned (unfortunately slowly with this one 😩) not all doctors follow up on lab results correctly.
Great tips ❤️ be well friend ❤️ thank you for watching and commenting ❤️