Splenic marginal zone lymphoma and active monitoring: Jackie's story

In this video, Jackie, diagnosed with splenic marginal zone lymphoma (SMZL) in 2008, talks about her experience of being on active monitoring (watch and wait) for 10 years after having a splenectomy. Jackie talks about how she looks forward to the future and enjoys spending time with her grandchildren.
For more information visit www.lymphoma-action.org.uk

[@leonidasm.4501]

I watched your testimony when I was first diagnosed. I’m now dormant. I watched it again. Found other new bits and pieces of encouragement and advice. Thank you for making it.

[@BChandlerBaxter]

Hi, I too have had Splenic Marginal Zone Lymphoma. I was in Stage 4 upon diagnosis, and have been in remission for over 2 years. I had Rituximab immunotherapy.

[@indianapoznan2937]

Hi have it too Splenectomy in 2009 and now is 2023 I start with Rituximab. How did you feel after first time of Rituximab ?

[@kchilz32]

@@indianapoznan2937how are you feeling? So when was your actual diagnosis? Hope all is well

[@indianapoznan2937]

@@kchilz32 better results but have to continue this after eight shots 😉

[@frankjoseph4273]

What a well spoken lady

[@shelleyscott5049]

Hi Jackie, I'm 33 and recently diagnosed with Marginal Zone Lymphoma (very rare for someone my age) and put on 'watch and wait' or 'watch and live' which I think is a better way of looking at it! Thank you so much for doing this video, it's so good to hear stories of people who've managed to remain well on watch and wait for long periods of time and gives me hope. Here's to your next 10 years!

[@wewekokowe6887]

Hi Shelley, how are you doing. I had similar weirdly in the skin. Post rituximab, how are you doing

[@kchilz32]

How are you doing

[@annaa2432]

So, your spleen has been removed 10 yeas ago. Did you have any treatment or just surgery of your spleen?

[@lisalangrehr8383]

Hi Anna it seems as though we're not getting many responses when we talk one here I have been diagnosed with the same thing

[@MissMaww]

My mother has now been diagnosed with this

[@LymphomaAction]

We are sorry to hear you mother has been diagnosed with this. There is information on both Splenic marginal zone lymphoma and active monitoring on our website lymphoma-action.org.uk/ - we send you and your mother our very best wishes.

[@tomtran270]

Hi/ now you ok ? / now i have same problem with you / help me share your case and how to do better ?

[@Slava65]

How are you doing today?

[@amyramsey9100]

SHOULD I GET IT REMOVED OR RADIATION?

[@LymphomaAction]

Hello Amy - thank you for asking this question. The information we have on Splenic Marginal zone lymphoma is here. lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/splenic-marginal-zone-lymphoma - we are unfortunately unable to comment on individual conditions so our suggestion would be to raise this with your medical team. We send you our best wishes.