I have had Blastoid MCL for 5 years . my WBC count went from 13.6 avg over last 16 months. After starting a red meat diet 6 moths ago, its now 9.1, well within Normal. (9100 count per 3.38 oz of blood)
My husband just passed away from MCL after 10 years of treatments. First tumor was at the base of his tongue 😮 then 5-6 years later relapse was a tumor in his upper R lung hilar region. My only advice is after you gain remission first time just live your life because this is incurable and it is unpredictable. 🙏🏼💜
Thank you: that was very clear, positive and encouraging compared to other confusing and depressing content out there. From a MCL young patient. ❤
Thanks for the update
I have had Blastoid MCL for 5 years . my WBC count went from 13.6 avg over last 16 months. After starting a red meat diet 6 moths ago, its now 9.1, well within Normal. (9100 count per 3.38 oz of blood)
My husband just passed away from MCL after 10 years of treatments. First tumor was at the base of his tongue 😮 then 5-6 years later relapse was a tumor in his upper R lung hilar region. My only advice is after you gain remission first time just live your life because this is incurable and it is unpredictable. 🙏🏼💜
Acalbrutinib and Rituximab is the way to go on 1st Relapse . Hello?!?!?!?
Make the music louder so that it can be really annoying.