CROHN'S DISEASE I MY STORY OF LIVING WITH INFLAMMATORY BOWEL DISEASE (IBD) I THE GRUMBLING GUT
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- เผยแพร่เมื่อ 22 ก.ค. 2019
- MY CROHN'S DISEASE STORY
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If you follow me on my social media, then you know I go by the name of The Grumbling Gut (@thegrumblinggut) because what else could describe what my gut has been doing since 2006 when I first started experiencing symptoms of Crohn's disease one of the two main forms of inflammatory bowel disease (IBD).
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Life with Crohn's disease can be tough and so many people have asked me what is it like living with Crohn's disease. Well allow me to share my Crohn's disease story with you so you can see what it is like living with an invisible disability. I first started my Crohn's disease blog as a form of Crohn's disease and ulcerative colitis awareness to help me overcome the stigma of embarrassment.
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Since then it has allowed me to show people what does Crohn's disease look like on someone and to try and explain what does Crohn's disease feel like.
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Don’t forget to hit that subscribe button and join the newsletter here: linktr.ee/thegrumblinggut
FIND ME HERE:
→Website: www.thegrumblinggut.com
→Instagram: / thegrumblin. .
→Facebook: / thegrumblinggut
→Twitter: / thegrumblinggut
→Tiktok: / thegrumblinggut
• CROHN'S DISEASE I MY S...
Disclaimer: Any information given here is intended for educational purposes only. It is not intended to replace the services of trained healthcare professionals or be a substitute for medical advice. Medical knowledge and practical elements are constantly changing and while the maximum effort has been made to provide reliable data and information, the author (or publisher) cannot assume responsibility for the validity of all materials or the consequences of their use. You are advised to seek medical advice from your healthcare professional for any concerns you may have regarding your health or that of another individual, in particular matters that may require immediate diagnosis and treatment. Information provided herein is referenced accordingly.
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#thegrumblinggut #inflammatoryboweldisease #ibd #crohnsdisease #ulcerativecolits #crohns #colitis #crohnscolitis
Thank you for watching! Do you have any questions? Let me know in the comments below and don't forget to subscribe to my channel, like, comment and share this video if you found it useful! You can find more IBD resources by using the links in the description box!
Can a barium x ray with the liquid you swallow confirm crohns?
also i did many ultrasounds, ct scans and everything looks good...my crp in blood normal..my crp in stool is 121, high...i have severe pains almost daily, yellowish or orange loose stools daily...hmm..I dont understand..my gi specialist thinks Im crazy
Thank you so much for sharing your story ive been sick for my stomach for the last 3 years always off and on. Telling me its “stress” and that I’m not eating the proper food but recently they just told me I might have Crohns but due to this virus situation right now I still haven’t been able to see my new GI specialists. I feel like being “sick from your stomach” everyone just says it’s “normal” but only people who are actually suffering from that pain can tell its different and very uncomfortable. I’m so glad I found your page on Instagram! Will for sure be looking at more of your videos
I hope my channel and other pages will be useful for you 😊
You deserve a lot more views and subscribers.
Invisible illnesses are the worst to have because you can’t prove to anyone (doctors included) of the symptoms you’re experiencing! We push through, we find ways of avoiding triggers, and ultimately we pretend we’re ‘just fine’.... Kudos to you for putting yourself & your story out there so others can feel less isolated & misunderstood/disbelieved!
Thank you. It really is difficult because we're pretending to be healthy and not sick
Marie Kieniksman exactly
💯
You can prove Crohns disease though they can see it at a cellular level with a biopsy.
Thoroughly enjoyed that, thanks.
Hope it was helpful 😊
Thank you for sharing your story and all the info!! It helps knowing others out there are dealing with the same things...especially when I don't really know anyone in "real life" that understands.
Thank you for taking the time to watch. I hope my story can encourage others to not feel embarrassed about their IBD.
Major Respect. I can
totally relate to your story and in particular your comments from other’s about you not looking unwell 😱
Thanks for sharing and best regards 👍
Thank you so much for watching and supporting my channel 😊
This is a great video. I'm glad you're doing these. When I get pain I get really food phobic as well. I have fast days when I'm at my worst to rest my bowel. I obviously keep my fluids up on them days. It's awful atm, I'm off all meds atm as I wait for surgery. Which is taking its toll. So hearing others stories really help settle me alot. Your page great and really helpful, thanks x
Thank you so much. If there is a topic you'd like me to cover then please let me know. I hope your surgery goes well
Your videos are great 👍 keep them up.
Thanks Heather. There's more to come :)
Nice video and thanks for sharing. I can highly relate to this video :)
I hope by sharing my story that it has helped you and helped raise awareness :D
I love 💕 your videos honey. I’m 47 and been suffering for the last 7 years and I’m only just now getting the right tests and being treated seriously for Crohn’s disease. Even loosing 2 1/2 stone in 7 months has them stumped. But I’ll get there and starting the SCD diet tomorrow. Thank you for sharing your story and helping so many of us. Keep well honey. Xx
Hope you stay well and thank you for your words of encouragement 😊
You are extremely brave. May Allah bless you with complete health and happiness. Will you please share what were your symptoms like 6 to 12 months before you initially started feeling mild pain in your tummy. And how many times you were going to toilets in a day. Thanks for sharing this very personal video.
Nicely narrated video and I can definitely relate to parts of your journey, similarly to my own.
I've also tried the list of medications, the liquid diet and reintroducing certain foods for reactions - this seems like the normal route for doctors to try, but unfortunately didn't work for me.
My answer to remission has been an ileostomy and I've not looked back to the bad times for almost a decade now.
Have great success with your channel and finding the answer to relief too.
Thank you. Happy to hear that you're doing great with the ileostomy
I have crohns! Had it since 2015. Had a resection surgery because there were holes in my colon on the right side. So my surgeon had to remove that section and some small intestine. I could have died if I didn’t go to the hospital the same day I was picked up from school (high school 11th grade) nowadays I plateau on my weight at 120-125lbs, and deal with nausea on my bad days. I’m on disability but can live normally but the symptoms are inconsistent. Fatigue, dehydration and malnutrition are my red flags, but lately I’ve been managing. When I have a flare up, I feel drained and go to the bathroom a lot. This year has been really tame, which is great. I take humira every 14 days to cope, and promethazine for the nausea on certain days, anxiety doesn’t help at all, makes it worse. But I’m doing ok now, just maintaining. I’m 25yrs old. I was 17 when I was diagnosed.
Thanks for the share. Good stuff.
Glad you enjoyed it
@@TheGrumblingGut Very much!
This happened to my 9 year old. She has has severe stomach pains for years and they told me it was lack of fiber so now we are finally seeing a specialist. Even when she goes to the restroom she struggles and is in so much pain. We go on Wednesday ❤️. Everything your saying in this video is my daughter. I will update you next week. Great video
So sorry she's going through this
Hi there from a fellow Crohns sufferer and NHS AHP 👋🏽 thank you for the videos they are so informative. I can definitely relate to your story re: trying to get a diagnosis. If you don’t mind can I ask did you choose to stay on Aza and Pestana after your surgeries? and if so why did you not switch to something else? I’m asking as I was on that combo too. Due to start stelera next month. I’m 3 weeks post surgery. Thank you
Hey, nice to meet you 👍👋 I stayed on pentasa and aza because after I came off enteral nutrition things went well while on them. I came off aza a few years ago as a personal choice and it's been good so far 😊
Thanks for sharing your story I was only diagnosed in May I took unwell last October lost so much weight and I couldn’t go to the toilet my GP got my colonoscopy very quickly my crohns is terminal ileum I have no blood loss just right sided pain just terrible nausea and terrible fatigue I was on budesonide didn’t work Azathioprine made me very ill so I don’t know my next medication am taking ensure not bad tasting but there is so much to take in and get your head around it’s such a complex illness I’d love to read what people eat in a day and how to get weight on when I was first diagnosed people said it could be worse 😟which I understand but the only way I can describe crohns is like having food poisoning everyday and the medication is so scary sorry for rambling I look forward to your next video
I was on azathioprine for 10 years and my weight was a constant issue. I saw 2 dieticians. My second one was better than the first one and I also was on the drinks and had to use them as supplements to the food I was eating when I finished the liquid diet. It's a constant struggle especially when you're first diagnosed but don't give up things will get better
The Grumbling Gut thankyou so much it’s hard to see a light at the end of the tunnel but I’ll get there it’s just gonna take time hope you feel well 🙏
@@karenkimberley241 you will get there. All I can say is take this time to learn what works for you whether its food exercise or other things. Everyone is different and so you just need to find the right combination for you😊
I have similar crohns in my terminal ileum, and im on budesonide rn along w humira (that ive been on for years) but i think the budesonide is making my symptoms worse? its hard to tell but its weird bc its supposed to have really mild side effects :/
@@carriecatt2000 in terminal ileum there will be finger like projection....so I have some doubt that one having chrons may affect villi and cause villous atrophy
Great video Grumbling Gut...this is a growing problem and is so restrictive for people. I wonder if it is as common in other countries as it is in the US.
Roughly 300,000 people in the UK have IBD and millions more world wide including in the US. It was last estimated in 2015 that about 3million in the US had it
The Grumbling Gut Wow!!!! That is really high!! It used to be so uncommon! Thanks for the info! 😊
@@DianaPalm Happy to share the info :)
The heavy bleeding for me ended up the "norm" i ended up realising that this was ibd, so i wasnt shocked when i was diagnosed.
Unfortunately you do get used to the sight of bleeding after a visit to the loo
@@TheGrumblingGut by the way dear bro 💙 what county are you from?
Ain't GPS special yes thay told me it was in my head was most deff not in my gutt lol
It can feel like we are making it up when people don't believe us but what we go through is very real
Are you now fully recovered?
Yes I'm in remission 😊
@@TheGrumblingGut 🙏but Pray for the permanent healing of my blood pressure, my neck hurts and feels numb like tingling since I heard you have a painful experience
Omg- please get rid of that horrible background music
Hahah this was one of my earliest TH-cam videos. Definitely will think twice about the music 😊
Please, but great videos! Thanks.