I didn't see the study myself but someone quoted a study in another comment section that women at around puberty get stretchier tendons so they can open up more to give birth. This leads to more hypermobility.
I have Arthochalisa Ehlers Danlos Syndrome. I'm the only member in my family diagnosed on either side. I was finally diagnosed in St Louis Missouri 4 yrs ago this past August. It was always thought that I had Marphan's Syndrome. But I was born with bilateral hip dysplasia
In my experience doctors avoid treating pain, and just flat out refuse that men can be disabled as a concept. I've lost more than half my life trying to get treatment, with doctors doing everything left and right to tell me I'm just depressed after rows of medications, or need to get more sun and walks when they're the ones who took the MRI with visible spine degeneration.
From a males perspective, I really see these as the biggest factors: 1) Men go to the doctor less. The majority of males regularly seeing a doctor are children and seniors. During/after puberty our female counterparts are generally being taught the importance of health and going to the doctor. We're kind of told the opposite. Not only are we told to neglect our pain unless something is actually broken but we're also told by doctors that we have no reason to see them. 2) The second reason, I'd call rational bias. We normally have a rational and logical reason for why we think we have "x" pain (not saying females don't) and because of this we don't seek a larger reason. Ex: Repeatedly dislocating and subluxating my shoulder at football practice made sense because.... football. The possibility of something more than that never crossed my mind. Then once you reach your 20s, we're told it's supposed to hurt. So again, pain was rationalized and normalized. The easiest way I think I can explain it, is that all of the gaslighting and misdirection that women experience at the doctor, men were told as kids and therefore we generally just avoid the step of the doctor having to do it because by a certain age, we just do it ourselves. There's a few more reasons but I already feel like I've rambled enough and I'm pretty sure I've worded this poorly.
A special thank you to all of my male viewers with EDS! I see you and I appreciate your support!
I am a 21 yo cis male recently diagnosed with Heds after years of symptoms. We do exist!!
Glad to have you!
I didn't see the study myself but someone quoted a study in another comment section that women at around puberty get stretchier tendons so they can open up more to give birth. This leads to more hypermobility.
I have Arthochalisa Ehlers Danlos Syndrome. I'm the only member in my family diagnosed on either side. I was finally diagnosed in St Louis Missouri 4 yrs ago this past August. It was always thought that I had Marphan's Syndrome. But I was born with bilateral hip dysplasia
I was born with bilateral hip dysplasia as well, but I don't have the genetic marker for aEDS
In my experience doctors avoid treating pain, and just flat out refuse that men can be disabled as a concept. I've lost more than half my life trying to get treatment, with doctors doing everything left and right to tell me I'm just depressed after rows of medications, or need to get more sun and walks when they're the ones who took the MRI with visible spine degeneration.
@@doublepinger I'm so sorry you've had such a rotten experience with doctors so far. I promise there's some amazing ones out there!
From a males perspective, I really see these as the biggest factors: 1) Men go to the doctor less. The majority of males regularly seeing a doctor are children and seniors. During/after puberty our female counterparts are generally being taught the importance of health and going to the doctor. We're kind of told the opposite. Not only are we told to neglect our pain unless something is actually broken but we're also told by doctors that we have no reason to see them. 2) The second reason, I'd call rational bias. We normally have a rational and logical reason for why we think we have "x" pain (not saying females don't) and because of this we don't seek a larger reason. Ex: Repeatedly dislocating and subluxating my shoulder at football practice made sense because.... football. The possibility of something more than that never crossed my mind. Then once you reach your 20s, we're told it's supposed to hurt. So again, pain was rationalized and normalized. The easiest way I think I can explain it, is that all of the gaslighting and misdirection that women experience at the doctor, men were told as kids and therefore we generally just avoid the step of the doctor having to do it because by a certain age, we just do it ourselves. There's a few more reasons but I already feel like I've rambled enough and I'm pretty sure I've worded this poorly.
Makes perfect sense to me! Thanks for sharing your perspective!
That’s weird, Does men get Dx with Classical EDS? Or is it mainly just women? True, my dad HATED going to the doctor.
Good question! I haven't seen any studies about a gender gap with the other subtypes of EDS, but I'd be curious to know myself!
@@ehlersdanlosandi me, too. Hmmmm!